The price you pay

Right before Paul left to go back to work away from home a couple nights, we had an argument about the COVID vaccine. We weren’t on the best of terms when he left. But nonetheless, he called me that night and everything seemed to be alright.

It was the next day that was a problem. I found out on Facebook that someone we knew was going to be at the same place Paul was with his clients. I commented on their status to say hi to Paul if they saw him. Now these people are really nice but are heavy drinkers. Part of the argument too was over Paul drinking. That evening the people we knew sent me blurry pictures of Paul saying they found him. He didn’t call me that night like he usually does. Now going through my head were a lot of scenarios. I thought perhaps something happened to him or maybe he met up with these people and had too much to drink.

While I was waiting, my mom called. She said that she and her siblings decided that no unvaccinated people were allowed to go to the family reunion in a couple of weeks. I was no longer welcome. I was angry but I didn’t know why. After I processed it I realized why. That excluded my brothers and I from attending as we were planning on doing. She could have suggested the plan that all unvaccinated people needed to get tested before attending and abstain if they were sick. They could wear masks. That has been the protocol for a lot of events. But I hardly think my mom would suggest something that someone else might not want even if it excludes her whole family. Maybe if Matt couldn’t go she would put up a fight. She never stood up for us with anything and that was triggering.

I was also angry because she is the one that drilled into us as kids that chemicals of any kind were bad. While our cohorts were guzzling down Kool-Aid, we weren’t allowed to drink the Kool-Aid. Artificial colors and flavors were of the devil. We didn’t have Twinkies or any of that stuff in our house. Fluoride was bad so we had to rinse our toothbrushes in peroxide and dip them in baking soda. I wasn’t allowed after awhile to take the green fluoride rinse that was wheeled into our classroom on the little carts about once a month. Just another way I was the weird one.

My mom took it a step further and also said what Matt ate caused him to be violent. He ate something with dairy and had a reaction that caused him to attack a stranger. We didn’t have milk or cheese often at our house. We weren’t allowed to drink it at school. Chemicals and allergens caused his hallucinations. We had to be extremely careful about food in our house. Because of the Agent Orange his body couldn’t handle any more chemicals. They ripped out the wood stove because wood causes allergies. We couldn’t have a Christmas tree because of allergies. Tree pollen caused violence. I literally freaked out once I got into the real world where people used chemicals liberally.

Imagine my surprise when my mom and Matt were the first in line for the shot.

Now she says I can’t be around the extended family if I’m not vaccinated? But it’s okay for her to live at our house.

I also realized not only do I have a lot of fear but I’ve lost a lot of hope. I thought that life would be back to normal by now. I thought if we did our lockdown and wore our masks everything would settle down. But I don’t see it ending anytime soon. Not only that but there are so many negative things happening in the world right now that it’s easy to feel discouraged. I’m sick of people arguing about who’s vaccinated and who’s not. Can’t we just agree that we don’t know when this is going to be over and everyone is doing the best they can? No, let’s fight about it because you didn’t make the decision I did and I’m right.

People are ending long term friendships and families are torn over this. When is it going to end?

Then my mom told me that my brothers were planning on getting together the following weekend to work on a huge project at the cabin. Again, this left me upset. They didn’t even talk to me about it and I know they will be complaining that I don’t do my fair share. I’m not going to be around when they want to do the project. We could’ve set up a time where I could help along with my husband, son and his buddies, daughter and future SIL. I could’ve offered up more manpower but they didn’t bother to ask me.

I didn’t sleep hardly at all that night. I was furious. I thought my marriage was in trouble. I entertained the thought of not seeing my family for another year of holidays. I started thinking seriously about leaving. I wanted to go to an area where no one knew my name. I was at a point where I just didn’t feel like I could take it anymore. I was done with COVID. I was done with being responsible for people and situations I have no control over.

I was still angry at my husband the next morning when he called. He apologized for worrying me. He said he got back late and didn’t want to wake me. He said he is so afraid that something is going to happen to me because I didn’t get vaccinated. I worry that his drinking is going to hurt him too. We were only worried about each other. Once I understood that, I felt a little better.

Living in fear

My mom called today. Her counselor told her that she backslid since she went back home. She hasn’t been staying with us since before Arabella’s grad party a couple weeks back. Paul and I were gone on our sailing trip then Arabella got COVID otherwise she would’ve been here. To be honest, I think it’s better for me when she is not here. She still doesn’t feel comfortable coming over because of COVID although I’m pretty sure she would be fine at this point. Then Paul and I have another sailing trip planned for next week so I told her maybe after Labor Day. She was distraught that we would be gone. She said she couldn’t handle being around my dad and she was too afraid to be alone up north. She was going to call her siblings to see if she could stay there.

COVID, Arabella got the shot and tested positive. She was really sick but responded well to the antibody infusion. My daughter Angel got sick too. She didn’t get the shot but had COVID a couple months back. She tested negative and a few days later lost her sense of taste and smell. So she quarantined along with her sister because she thought it could be a false negative. So it’s likely that Paul and I were exposed before and after we came back from our trip although we limited contact when we got home after we found out.

A couple days after we got home, we went in to be tested. Paul had no symptoms and was vaccinated. He tested negative. Two days after I got home I had a low grade temp, body aches, and this general feeling of malaise. I did not get the shot. I tested negative. I have no way of knowing this but all I can say is that I think my body was fighting it off. I started feeling better in 3 days. But was it a false negative? I decided to stay home and quarantine too just to be on the safe side.

But in all of this, I noticed something I haven’t noticed as much before until now. Fear. Sure, everyone was afraid when the virus first came out. We pretty much all did what we could. We did the lockdown. We rarely ventured out and if we did we had our masks on. We got tested if we felt sick and even if we didn’t. I’ve had 3 negative tests now.

Then the vaccine came out. Some people wanted to be first in line. Some people wanted nothing to do with it. I think this is where a lot of the trouble started. People started choosing sides. Right now the last I heard our state has a 50% vaccination rate. We are right down the middle and I feel it right down to our own house. People are hating and name calling. Now some medical facilities are forcing employees to get vaccinated. This has really caused people to be up in arms and protests. The fighting around here is more vicious than it was during the election. I don’t know how that is even possible.

What ever happened to my body, my choice? Oh wait, my bad, that is the slogan for another social issue. But seriously, if you want to get the shot get it. If you don’t, don’t. There is never going to be 100% compliance especially if it becomes forced. When there are elections 100% of the votes don’t go to one candidate. If you want to get the shot and trust the science, then trust your science. If you want to trust drinking bleach to protect you it’s pretty stupid but that’s your choice as well.

But as for me, I am afraid. I am afraid to get the shot because once I do it I can’t change my mind. I’m not saying that I will never get it but I want to see the research first. I want to make an informed choice backed by data. That’s my choice. I am not a trusting person. If I feel forced before I am ready I probably won’t.

I spent most of my life afraid. I grew up in an environment where we didn’t trust. My dad was a Vietnam vet. Ever since I was little I thought I had poison running through my veins called Agent Orange. I felt lucky because Matt had a lot more than I did and ended up the way he did. My mom was terrified of chemicals. We weren’t allowed to wear mosquito spray because it was poison. I remember staying at my cousin’s for a week one summer when I was about 12. Her mom sprayed us with mosquito spray even though I protested. I remember where we were. It was dusk and we were at a ball field by a playground. I thought I was going to die.

When the farmer’s sprayed chemicals we had an hour to evacuate the area in sheer panic. We had to pay attention to signs that the area was decontaminated such as several days would pass or there was a rainfall. We didn’t park the cars in the garage. Fresh newspapers weren’t allowed in the house because they smelled of chemicals. We did not spray our lawn or kill weeds with chemicals. That was poison that once we got in our system we would have a hard time getting out. I’ve never used weed killer. I wouldn’t even know how. I’ve realized over time that my mom was paranoid about these things. Other people don’t seem to be quite so concerned about it so that tells me that maybe all chemicals are not the devil. We lived in an extreme chemical free environment for Matt.

Then when my oldest daughter was born the study came out that linked autism with the MMR shot. My mom threw all the other theories away and jumped on that bandwagon. She didn’t want my kids to get vaccinated. I did get all my kids vaccinated but at my own pace. I especially waited on the MMR shot. Because what if it was true?

So as far as the COVID shot goes, I’m just not ready yet. Neither are my brothers or their families. No doubt COVID is a real threat. But I just don’t trust the shot yet. My mom, however, was the first in line to get the shot for herself and Matt. It’s as if she threw away everything she taught us and left us wondering if any of it was true. It’s hard to break myself from the fear that if I get the shot I will die. I’d rather take my chances.

But regardless of whether we are vaccinated or not, we all live in fear and that is not a good place to stay. I give it zero stars.

I just want the boring life

I should’ve known what kind of day I would have when my phone alarm woke me up this morning. You see, I never set my alarm. At 6:40 AM it started playing an explicit song called Woman by someone called Doja Cat on Spotify. I never heard the song before. I don’t know why it happened. When I searched the internet all I could find is that people have to pay to get an app that does that. Lucky me! All I have to say is that I’m happy it didn’t happen at 4 in the morning. My son said maybe it was a sign of some sort. Of what I don’t know.

I feel so frustrated by life that sometimes I just want to leave it behind and walk away. I guess it’s better than wanting to find the closest cliff to jump off of.

It stormed most of the day. Finally a good storm that the thunder cracked so loud it seemed to shake the very foundation of my house. I stayed inside and cleaned.

Paul had his first appointment with a new counselor. She asked him an interesting question. Who do you turn to for support? He didn’t have an answer. Really besides me, he has no one else. He didn’t have a dad or even a grandfather. He didn’t have a mentor. My dad was pretty much worthless to fill those shoes. There wasn’t anyone. He was alone but always willing to give the shirt off of his back when someone else needed help. It makes me so sad. We were always alone having to help parent our parents that never supported us. He can’t turn to me when I have nothing left to give. It’s no wonder why he wants to drink if it takes away some of the pain. He has done so well in life compared to where he came from. But he has his own demons and I have mine. He really likes this counselor but he came back angry. That’s okay though, I understand. I would be angry too. I am angry too. I respect him for trying to better himself, he didn’t have to go.

The last couple of years have been unbearable mainly because of my dad and the mental health struggles we’ve had with Arabella. I lost a part of myself. I am rarely fun anymore. I just feel an unrelenting sorrow. If you saw me you would see it on my face even if I did smile at you. I’m struggling to keep my faith. I’m angry a lot, but mainly sad.

I’m having a hard time with everything lately for more reasons than I’ve had a chance to share with you. The last couple of days Arabella has been slipping into depressed mode. She’s been manic for months. I hate the manic mode for her impulsiveness and risky behavior. But the last couple of days she switched. She quit her second job and I worry she might lose her first. She has been working as a server the past two months. When she was manic she was very upbeat and personable. But the last two days she has been crying uncontrollably while at work. They had to pull her off the floor because they didn’t want her crying in front of customers. Instead she spent her shift folding napkins in the back. Then today, although she wasn’t scheduled to work, she wanted to go in to hang around the people at work because they are nice.

I am so terrified that they are going to let her go. She had a hard time even finding that job in a labor shortage. What am I going to do? I can’t have her not working and am so afraid she is going to be suicidal again especially if she loses this job. Thankfully she has an appointment on Thursday with the psychiatric nurse. I told Arabella to tell her what has been going on. I don’t think it will help, but maybe. I know she is an adult and I should let it go, but what if she needs help? It’s hard because her best friend is going off to college this week and she is not. She has been moody and angry towards me when I try to talk to her sometimes. Some days she likes me, other days she does not.

Then the icing on the cake was that my son got pulled over tonight a half a block from our driveway. A couple weeks back he bought a fire engine red Camaro that roamed the earth with the dinosaurs, or should I say pre-internet right around when I graduated from high school. That car is so fast I could probably outrun my demons in it or maybe he could his guardian angel. I knew it was going to happen. I just didn’t know it would happen so soon. I think he bought a lemon too. He got it from a guy that bought it 3 months ago. He bought it a couple weeks back, drove it a few days, and then it ended up in the garage getting fixed until today. But anyway, he was travelling about three times the speed limit and got pulled over. I was nice enough to run his insurance cards down to him so he would avoid getting ticketed for that too.

I decided to punch a boxing bag to help work off some of the stress but ended up knocking it off it’s stand. So here I am writing instead. So much for light and fluffy posts. I don’t think I have much of that left in me. Maybe I should just go to bed before anything else happens. But if I wake up to a song tomorrow morning I think I’ll have my son run over my phone with his fast car. I really want tomorrow to be boring and uneventful.

I want the boring life.

Threats of imaginary monsters??

I was never safe. Matt was autistic/schizophrenic. He was the most dangerous when he was hearing voices. You could almost always tell when he was hearing voices because he would mutter back to them. Sometimes he would laugh in a way described as purely evil like a villain in a superhero movie except without the superhero. He was in his own psychotic world he couldn’t easily be pulled out of. He would become incredibly agitated in this state. His ears would turn red and his eyes constrict as if possessed. He was small but had superhuman strength in those moments. It was a matter of time before he hurt someone. Those were the days when we couldn’t leave the house with him. It was too dangerous.

Matt was also violent when the voices were silent especially when he had to do something he didn’t want to do. The most common thing he would do was pull someone’s hair, mainly mine. When I say he pulled my hair, it was more than a little tug. He would latch onto a fistful of hair and yank while his victim screamed trying to get away. I would’ve thought I would’ve lost more hair than I actually did. Typically it would take at the optimal two people to restrain him and try to peel his hands off of their head. I’ve done it many times. I’ve also been the victim of his attacks countless times because I was the only one in our house that was little and had long hair.

There were also times Matt would attack for no apparent reason. Here are some of the things I’ve seen him do as a child to myself and others, some strangers. He gave black eyes, bloody lips and noses, head butts, scratched up arms, pulled hair, kicked, poked eyes, slugged just to name a few. I was often seen sporting bruises and clawed up arms. He threatened me with a knife. He tortured my pets. He was so violent that he was not allowed in school for several years, the school sent a teacher out to our house. Hence the home school years. The police were called when he went back to school. He was arrested. Somewhere there is a mug shot of him.

Matt being violent was a common (at times multiple daily) occurrence throughout my childhood. He ran around like a wild child. We were not safe day or night. My mom took him to every doctor she could find in desperation but it wasn’t until he was in his 30’s that an anti-psychotic medicine removed his violent tendencies and rendered him docile.

Being autistic, Matt was extremely hypersensitive. He could not tolerate his teeth being brushed. This was very problematic because his teeth were rotting. My parents tried the best they could but he usually screamed every night when it was teeth brushing time. Sometimes my mom couldn’t do it and asked my dad for help. My dad would get angry, manhandle Matt and forcibly brush his teeth. This made Matt incredibly agitated. He didn’t dare attack my dad because my dad would give it back. A lot of times Matt would harm himself mainly by beating his head over and over with his fist.

There were journal accounts written by my mother of Matt attacking our sleeping youngest brother Luke. Imagine a little child awoken from sleep by being hit with a fist. Sometimes Matt would come into my room at night when I was trying to sleep with his fist raised at me.

But here is where I was lucky. Matt and my two other brothers had to share a room. I had my own room. But being a child, I was too frightened to sleep with my door closed and locked. There were demons and monsters hiding under my bed and in the closet. There were murderous dolls in my room just waiting for me to close my eyes. There were kidnappers outside the window. There were things that could get me if I slept with my door closed. As a child I was so afraid of the imaginary things that I was unable to protect myself from the real threats.

Now I am an adult and have long outgrown the threats of imaginary monsters. When I am up north with my extended family I am usually the last one to go to bed and the first to arise. Unconsciously I must feel safer that way. To this day I am a light sleeper and awake to every noise hyper-vigilant of every possible threat. I wish I could say that I outgrew the need to protect myself like I outgrew the threats of imaginary monsters. My body never overcame the fear that I was not safe.

But I am safe now.

Gratitude week 86

  1. Arabella has recovered from COVID and is back at work.
  2. Everyone else in our house tested negative.
  3. Just to be on the safe side, I cancelled the plans I had for the weekend and had a nice weekend at home.
  4. I finished a couple of books this week. It’s been a long time since I could say that I read more than one book in a week. I really enjoyed My Sister’s Keeper. Although a piece of fiction, it really made me think about what life was like with a disabled sibling. The disability aside, I remember feeling as if I didn’t matter. There was always something more important than me. I’m not saying that it was always a bad thing that my mom favored Matt, he did need her more. But things were always chaotic. Nothing could be planned or counted on in case Matt was having a bad day. Unexpected change is very triggering for me. I’m trying to have more compassion for myself in that regard as I read stories of other siblings having a hard time cancelling plans they were looking forward to because their sibling was sick, etc. I’m starting to go deeper to the more subtle effects the little things had on my life. It makes more sense why I respond the way I do if I start delving deeper.
  5. I ordered 4 more books, three of which are memoirs about people struggling with mental health issues.
  6. To a great weekend spent with my daughter Angel at home reading, writing, swimming, and watching movies.
  7. For having an adult daughter that is more like a best friend.
  8. Indian takeout food. Angel and I both ordered cheese naan and chicken tikka marsala. It was excellent!
  9. Summer!
  10. For health and healing in general. Last week was really hard because I didn’t know what was going to happen with the sickness in my house.

Am I mentally ill?

I’ve been reading a lot of memoirs and books (not to mention blogs) lately about people who struggle themselves or have family members with mental health issues. I have seen a common theme that I can’t disregard. One of the most important factors in recovery that I can’t deny is having parents who are supportive through this struggle.

If I think about it, the most difficult thing about my dad was not his porn addiction. It wasn’t his hoarding. It also wasn’t his lack of good hygiene. For the most part, he just didn’t care and that was a good thing. We tried hard to keep under his radar because we didn’t want him to notice us. Him noticing us involved bursts of explosive anger. He frequently told us how stupid we were or how we would never amount to anything. Our dreams, aspirations, and goals were ridiculous. He laughed when we cried.

The hardest part though for me was when he would taunt us with the things we were most afraid of. He amplified our fears. For example, he knew I was afraid of weeds. One of the few times he went in the lake with us as kids, he grabbed me and forced me to stand in the muck and weeds. I cried as he laughed at all of the things that slithered under the weeds that my feet could be touching. It was horrifying. I screamed and I cried for him to let go while he laughed. When he finally let go I ran for shore while he chucked weeds and even a dead fish at me while calling me names.

Then at times in my life when I am afraid, I wonder why God hates me. I wonder why I have trust issues that no one else seems to have. I wonder why I almost feel better at the thought of a distant God than one who hates me. Duh?

My relationship with my mom is much more complicated. She always expected too much from me, perfection. I felt this way since I can remember. But the first real memory of this for me was when my mom had me watch my three younger brothers in the lake by myself so she could spend time with my dad in the cabin. I was 6 and one of my brothers almost drowned. That’s too much responsibility.

My mom never confronted my dad for his poor behavior. But she would move heaven and earth for Matt. If someone gave him a wrong food just to be nice she would call the school and chew that person out. But when I had to go to school to try out for cheerleading while I had the flu and a high fever and I was the only person that didn’t make the team nothing was done.

My mom loved playing the martyr card. She got a lot of attention for having a special need’s child and an asshole husband. But she never did anything about it. She never gave Matt the skills to live without her. She never confronted my dad for being cruel to their children or anything else other wives would’ve left him for.

She also likes to manipulate, control, and guilt trip. She was jealous when I had friends because I was her best friend. She pulled me out of school from 8th through 10th grade where I lived in extreme isolation. She didn’t like the guy I was dating so she set me up with my ex without me knowing it. She made me feel guilty about even thinking about leaving the area to go to college or living my own life that didn’t revolve around helping her or caring for Matt. But the hard part is that I think my mom is a genuinely good person. She just saps the life out of everyone she is around with her negative energy.

My dad struggles with depression, my mom with anxiety. I can’t remember a time in my life before I started struggling with anxiety and depression. Not only was it modeled to me but there probably was a genetic component as well. I really could’ve used their help with my own struggles. I could’ve used their help when I was raising my own children. I could’ve used their help when I had to deal with my own children’s mental health struggles. But they always needed me to help them. It’s no wonder why I feel so alone. My husband doesn’t have any family either.

I guess maybe the moral of the story is that I shouldn’t be so hard on myself. If I needed to be a certain way such as untrusting in order to survive then maybe I shouldn’t shame myself for having a lack of trust. It might just take a little longer than most people to get there. If nothing else my husband and I, although neither one of us has had it, try to be supportive parents of our children when they are struggling with their own mental health issues. At one point I even thought that maybe they wouldn’t struggle if we were good enough parents. Unfortunately that’s not true. There’s hardly a sane person in the family. What did I expect??

But we can do our best to help them through. Besides, sane is boring anyway!! I’ll keep telling myself that.

The full story…coming soon

I got invited into the popular group once in middle school. They gave me a handful of candy. I threw it away.

I could never bring them to my house anyway. The outside of the house was brick, big and beautiful. But inside was another story altogether. I couldn’t do slumber parties and sleepovers.

My dad roamed the house in his underwear. He answered the door that way. On occasion, he mowed the lawn that way. Sometimes he would even get the mail that way. The truth is that he was more interested in porn than his own wife and kids. He never hugged me, held me, or told me that everything would be okay. Maybe it was a good thing he had an aversion to touching me.

Our house was a hoarder’s paradise. Piles of magazines and papers littered all seating surfaces, our table, and floors. My mom hoarded food so there was always rotting food in the fridge. There were cupboards full of food, a fruit cellar, freezer upon freezer, refrigerator upon refrigerator. But we knew the newest food was always in bags on the dining room floor. There was always a stack of unwashed dishes on the counter full of you guessed it rotten food. The whiff of rot hit you as soon as you entered the door.

If that wasn’t bad enough, there was always pee on the bathroom floor and a dirty sink. My dad was a greasy guy in more ways than one. He rarely showered and criticized us for showering daily as if we were the strange ones. My dad didn’t brush his teeth but wiped them on the hand towel so I always had to strategically plan where to dry my hands in a spot I thought would be the cleanest. I don’t know how I ever survived the 8th grade hand washing compulsion.

Then there was my brother Matt. He was the school ‘retard’. That’s what my classmates called him anyway as they mocked his bizarre behaviors. He heard voices that told him to attack other children and he listened. He ruled our house and my mother bowed down to him. Anything for Matt. Never mind her three other kids.

We had crazy rules to live by for the sake of Matt. For example, no one could come into our house that was wearing perfume. That is why you could find me before middle school started ratting my hair in the middle school bathroom along with the girls that changed their clothes into outfits not allowed out of the house. My unscented hairspray had too much scent. For awhile we had to brush our teeth with peroxide and baking soda. We had to shut the windows if there was an east wind blowing auto exhaust fumes into our house. We didn’t have A/C back then. My mom even took down her brand new curtains because of the formaldehyde and hung old blankets on the windows. We had to take shelter if a neighbor was spraying his fields. The air purifier ran constantly. But none of those things stopped the voices or the attacks.

So you can see I had to reject the popular kids before they had the chance to reject me. I hand selected a few close friends but in the end I lost them anyway because of Matt.

I hated my life. I didn’t belong. To make matters worse, kids looked at the outside of my big brick house and thought I was richer than they were. In high school I drove a bright red Firebird. I was an exceptionally beautiful child voted most likely to be a supermodel by the graduating class which did nothing to help me fit in when boyfriends of potential friends flirted with me. People envied and hated me for the things they saw outside. Things that I didn’t have any control over. In a heartbeat I would’ve given it up to just have a normal healthy family.

The kids at school could never see the pain and sadness inside of me. After awhile I stopped caring about what people thought. I hated small talk and following all the stupid rules anyway. I said screw them and became a rebel, strong and unreachable. When I got hurt, I retreated to the corner and licked my wounds alone. I had to take care of myself because no one else really cared.

I am still the same person. I try to play the best game with the hand I’ve been dealt. On the good days, I thank God for all my blessings. On the bad days, I reject God because I feel he has rejected me. I can’t sing that God has been good to me all my life when I don’t believe it. Why do I feel like God hates me when I try hard to be a good person? I spent a lot of my life trying to be perfect but it didn’t matter.

What is the purpose of pointless suffering? How has it made me a better person? How does it help anybody else? There will always be a part of me that feels alone no matter how many people are around. Maybe God will always be off in the distance and uncaring just like everybody else. I can’t seem to reach him either. I could never find a way to connect to normal people. My life has been way too crazy. I’ve had very different life experiences.

I will never be the motivational speaker that others seem to be. I am not the one who will tell you my anxiety went away by praying more or that my depression was cured by positive thinking. I don’t have the answers, just more questions. I am a broken person that will never be put back together right. Before my brain finished developing I experienced trauma more than compassion and love. I didn’t have that one teacher who made a difference in my life.

What can I say? I have a lot of trust issues. Who else has my back better than me? How am I supposed to trust?

Maybe someday I’ll get it right. Maybe someday I won’t feel angry anymore. Maybe even someday I will trust. But one thing I do know for sure. Soon I will be telling the full story. And it’s far from boring…

My daughter is sick. But I am not?

It started this morning. A shifting in my mind like a veil torn away. A new anxiety replaces an old. Like no longer worrying about becoming impregnated once you are, but fearing what it will do. It doesn’t belong yet it’s a part of you.

The lines on the window appear darker, crisper, blunt while other ones smear bleak and blurry. It seems kind of funny somehow that what once was unchanging can look so different today.

My body aches. It lingers shortly then circles around. My knees. My head. My eyes. My back. Maybe I worked out too hard yesterday.

I’m so tired I could rest forever but there are things to do.

My temperature fluctuates between normal and a little warm. Maybe from sitting in the hot sun I console myself but don’t believe it to be true.

I sniffle, I sneeze, I cough. Just allergies, perhaps?

I decide to get tested. My daughter is sick. But I am not?

Why do I deny the truth? Is it the truth? I’ll know for sure in a couple of days.

Gratitude week 85

  1. Summer! The last couple of days the weather has been perfect. If only we had this weather last week so we could cross Lake Michigan. But I’m not complaining. I’m going to hold on to these nice days as long as they last.
  2. Even though we weren’t able to cross the big lake, we were able to go to some nice places. The pictures turned out great and maybe just maybe I’ll share some later this week.
  3. Although Angel tested negative for COVID, both of my daughters lost their sense of taste and smell. But they are both feeling a lot better and so far no one else has gotten sick that I know of.
  4. Although I love to travel, it is nice to be back at home and sleeping in my own bed.
  5. It’s nice to have a week with nothing planned until the weekend. I decided to spend some time today in the pool and started a new book. I try to remind myself that we were still supposed to be on vacation when I feel like I am being lazy by taking it easy.
  6. I’m grateful to find out what I don’t want. Paul and I are thinking ahead to our 25th anniversary next year. I was thinking that it would be fun to sail somewhere beautiful for our summer anniversary. But after the frustration of not being able to do anything that we planned months in advance for this last trip I would rather do something else.
  7. I started reading My Sister’s Keeper. It’s a great piece of fiction. I wanted to read more memoirs like Educated which was phenomenal. I decided this fall I will start the second edition of my book. I want to read some good memoirs in the mental health genre in the meantime. I want to analyze them to see what makes them great (if they are). Really good books in that genre are hard to find. If anyone has suggestions for books especially dealing with family members with mental health struggles, please let me know.
  8. As much as I hate to admit it, I’m grateful to have a crazy life to write about.
  9. I’m grateful that I don’t have a gas leak in my house especially since after we left we had the rest of the household lose their sense of smell.
  10. After I couldn’t find any in the stores, I’m grateful that my husband was able to order goat macaroni and cheese online for me. No, it’s not made out of goats but it is dairy free and delicious.
  11. I’m grateful for my husband, who was a big part of the leadership for the Lake Michigan crossing cruise, for the difficult decisions he had to make in order to keep everyone safe. We had a total of 5 boats wanting to make the crossing. A majority of the sailors have never sailed across before including all five people on our boat. Some of the boats were small. The rest, besides our boat, had only one experienced sailor with either inexperienced crew, incapacitated crew, or passengers that were very nervous. In some ways I’m grateful we didn’t cross because I couldn’t relax with a sick child at home. I guess it wasn’t meant to be this year.
  12. I’m also very grateful for the people we tried to cross Lake Michigan with, especially those on our boat. Everyone was very kind and supportive after we received the news that our daughter has COVID. Some offered rides home. No one expressed anger or irritation that they could’ve been exposed through us or that we wanted to go home early. Everyone seemed to have the attitude that being sick or exposed was the new world we live in now. I’m grateful to be around a wonderful group of people with a similar hobby.
  13. I’m grateful that my best friend has a new grandbaby.

Vacation frustration

We came back early from our sailing trip. I’m finally starting to get over the frustration and disappointment of our latest adventure.

I guess it started before we even left. Little things. Arabella’s car had a driver’s side window that went off track and was stuck all the way down. That happened the night before we got 4 inches of rain and we found out about it after it had been raining for most of the day. We had a pool pump that kept flipping the breaker. Dan switched out the breaker. After that the pool pump worked but the boiler kept erroring out. My husband was concerned there could be a gas leak. So we called the heating/cooling guys out before we left. I threw on my clothes from the night before but I was scrambling because I wanted to wash them before we left. So after I thought I was done talking to them I put my robe back on and threw my clothes in the wash. I frantically threw enough clothes for a week in my suitcase as the heating guys told me there wasn’t a gas leak while I was standing around in my robe. Why didn’t they tell my husband this?

Meanwhile, he was on the phone with the group of sailors we were planning on crossing Lake Michigan with. We decided to delay the trip by one day due to weather. I was rushing as fast as I could only to halt in my tracks finding out the rest of the day I no longer had any plans. I felt angry and frustrated. But, hey, at least we didn’t have a gas leak.

The weather was balmy hot. It was unpredictable, volatile, and unsettling. We watched the news late that night and the news forecast called for a chance of severe weather all the next day. We didn’t know if we would even be able to make it to Sturgeon Bay, the meeting place for all the sailors before departing for the cruise the following day. We went to bed feeling anxious. We would have to try to leave early again the next morning but we had a lot to do before leaving. Meanwhile my daughter Arabella told me she went to the doctor because she had a UTI.

The next morning Angel wasn’t feeling good either, a head cold or tonsillitis possibly. We left as early as we could though and made it to Sturgeon Bay in our sailboat with an hour to spare before the severe weather hit. I was a nervous wreck. There were tornado and severe thunderstorm watches and warnings all over the place. I was more worried about the kids at home than I was about being on a boat. Angel said the tornado sirens were going off and the skies were as dark as night during the day. To make matters worse, Arabella started throwing up and went to the ER thinking maybe she had a kidney infection. We also had a business emergency where an accident happened and a piece of equipment got broken.

But the plan still was to cross Lake Michigan the next morning between 5 and 6 AM. The trip across was going to take somewhere around 12 hours and we would be out of cell coverage a big portion of it. It was a horrible night but we were still dedicated to making the trip because Angel was taking care of things at home. Nothing seemed life threatening. The ER did a lot of tests that didn’t find anything wrong and that Arabella should just keep taking her antibiotics as prescribed. We couldn’t tap out easily because we had 3 passengers on our boat. Some of them had to take vacation days for this trip. Plus we were excited to go because none of us has crossed the big lake before.

I had a restless night’s sleep only to be awakened at 4:50 AM by a knock on our boat. There was a problem. The weather radio predicted 8ft waves the last portion of our trip. We decided not to cross that day and head up to Washington Island, then cross the following day. We sailed up Door County lake side and the waters were rough even close to shore.

When we got to the marina I received a call from my daughter saying that Arabella had to go back to the ER. She was really sick and throwing up. I was furious. Everyone was relaxing and having a few drinks so I decided to take a walk. I was angry with God. Why can’t we just get away for a few days and have respite from the stress? I was plotting how to get back home. Maybe I could hitch a ride with someone leaving the island on the car ferry. Then Paul and the rest of the crew could go on as planned without me. Later that evening the group got together for supper and planned the following day. It was there I got the text that Arabella tested positive for COVID. Again, I was angry. She finally got tested for COVID the third day she went in. They gave her an X-ray, CT scan, pelvic exam, STD tests, strep test, blood work, urine test BEFORE they thought to test her for COVID. Seriously, what the hell is wrong with those people??

So here my daughter is at home really sick with COVID even though she is 18 and fully vaccinated. They scheduled an antibody infusion for the next day. If that didn’t work she was going to have to be hospitalized. I was a wreck. We told the passengers on our boat and the people we were travelling with. Everyone was understanding even though there was a chance that through us they could be exposed. Some offered rides home if needed. The weather for the following day didn’t look great to cross the lake so everyone tapped out and we decided to start heading back towards home.

I slept horribly the whole night. I tossed and turned. I woke up cold and shivering. Was everyone cold that night? Or was I getting sick? Was that just a tickle in my throat? A sniffle in my nose? What if we had to sail rough waters sick? I had nightmares all night that I had COVID but awoke the next morning tired but feeling alright. We spent the next night in a marina. The following day we anchored out at an island. Although the shore was rocky and hard to walk on, we wanted to spend the night because it was simply beautiful. Maybe we could still save this trip after all. The infusion worked wonderfully and Arabella was feeling a lot better. Then we started worrying about going home and getting exposed since neither Paul nor I have had COVID yet.

We were looking forward to spending the night anchored out at the island but Paul said it was no good. It was going to be too windy so we headed back to our marina. Meanwhile, Paul and I were arguing. It was too stressful. I never wanted to go sailing again. I thought we were going to cross the big lake. I thought things would be good at home for a few days. I thought work would be okay without us. Boy was I wrong! I was so disappointed. I think we all were. Then when we were almost back to our home port we came across a smoking power boat. We thought they were on fire. We quickly grabbed whatever fire extinguisher we could find but I guess they were okay. One of their engines blew out. It was rather terrifying though to think we might have to do a water rescue. Or maybe the boat would blow up.

Then we came home to face COVID. I really hope this next week goes a lot better!