Scabies and other things that bug me

My autistic brother Matt has been in a group home for about 5 years now. Begrudgingly, my mother decided that it was better for her to choose a home of her liking versus having us do it after she is gone. It was something that my parents put off doing until Matt was in his mid 30’s and they were their 60’s. It wasn’t an easy adjustment, but it was mainly good. Well, except for the scabies. That’s right, one of the care providers brought scabies to the house. This ended up resulting in my brother getting scabies which he needed 3 pesticide treatments for. He had a major allergic reaction to the treatments which caused his hands to blister, peel, bleed, ooze in a red angry rash. My brother went around looking like he had a flesh eating virus for the past 6 months. The care provider refused to seek treatment and kept spreading it to this group of people again and again until they were forced to let her go. My brother is starting to finally get better. It was something so disgustingly horrible that I find hard to describe without pictures. You wouldn’t want to see them anyway. 

In response to all of this, my mother did some extreme allergy testing. This resulted in some extreme responses while we were up north this last weekend. First of all, the sun revolves around Matt. Remember me saying that last time up north when it was very hot Matt was angry because he couldn’t sleep? He wanted all of the fans off so my mom turned them off. So what? Who cares if he is angry? What, is he going to hurt our children like he hurt us? About the diet, my mom was going to wash off the grill after we made hamburgers just in case there was something in the seasoning that Matt was allergic too. That is too extreme. When he comes to my house he brings his own hand towel because he may be allergic to my detergent. That is too extreme. He also brings his own soap. That is too extreme. Matt is allergic to one kind of sugar and not another, but the canned food label only says sugar. Perhaps we should call the company and ask what kind of sugar they use. That is too extreme. He can no longer have baked beans because he is allergic to the pork now. 

Mark and Carla decided to have a pig roast for their wedding in 2 weeks. Matt now can’t eat what they are serving. My parents asked if they could stay at  Carla’s house for the wedding because of the special diet and linens that needed to be used for Matt.  Carla said that she didn’t have anywhere else to get ready, to put on her dress. Emily passed on a word of advice to Carla that apparently I gave her, to set boundaries. Emily said that my mom asked her to ask what kind of butter was in the mashed potatoes on her wedding day. Emily is right, the bride has too many other things she has to worry about. Mom asked Mark if Matt would be the best man at the wedding. Mark just said that in passing a couple weeks ago because he hates being the center of attention. Tensions are high, no one is ready. 

Recently, my brother Luke and I have been discussing taking our families on vacation this winter. I told Luke that mom might want to bring Matt along. He said absolutely not. I agree. I’m sorry, I can’t live like this anymore. If we decide this week to fly down to Florida, either my brother or I will have to be the bad guy. We love our mother and Matt, but this extreme favoritism just brings resentment from the rest of us. We have our own problems with our own kids. I don’t think that scrubbing down the grill is going to make a difference. I know mom needs to feel like she has some control. 

I am sorry, I feel very angry today. I realize that parenting a forever child is difficult for the parents, but guess what? It is hard for the siblings as well. We spent our whole lives dealing with all of this crap. Just because you are martyrs doesn’t mean that we don’t struggle. I’m sorry to be so edgy, some bad things happened today that I can’t talk about now. I will probably be able to talk more about it tomorrow. 

Bracing myself again

Today was a very humid day. I tried to get a run in before work, but was greeted by thunder and torrential downpours so I waited until my lunch break. After the holiday weekend, I spent a long day at work racing around putting out fires. I was able to get in a 6 mile run in though. It was a tough run. It seemed like my whole body hurt. My back, shoulder, wrist, right hip, and left knee were sore today. My knee hurt more than last week. If it doesn’t get better soon, I may make a doctor appointment. I always thought that running was a relatively cheap sport. What do you need really? My husband caused a big stir a couple years back by being a barefoot runner. Talk about cheap! He did spend a lot on bandages until his feet got tough as leather. He now runs with minimalist shoes which oddly enough never seem to wear out. Over the years, I have acquired more running gear. Plus money spent on races. Now if I end up having a running induced injury, I can see it being an expensive sport. 

It wasn’t like I did anything strenuous over the weekend to cause this pain. I watched the men do the heavy lifting. It was pretty nice giving unsolicited advice with my 2 little nieces next to me. It helped prevent unwanted responses. Lol. It is hard for me to stand and watch the men work. Here my dad is pushing 70. He gets winded walking across the room. I feel guilty standing by when I am in great shape. I asked Paul why I can’t help the guys. He said I complain too much. Oh, slow down. It’s too heavy. Sad thing is that he is probably right. So far all I’ve done is complain about everything that hurts. Whaaaaa. 

I haven’t been sleeping well either. Oh, insomnia, my nighttime companion. I recall sleeping well once over the last couple of weeks and it was drug induced. It was after I took meds for my crown. I have become used to being tired. About 2 decades ago I had a sleep test that said that I never go into a deep sleep, so I never feel rested. As a teen it took me forever to fall asleep and I didn’t stay asleep. Now I fall asleep pretty good, I just spend an hour or more awake at night and wake up early. Probably stress and hormones. I am going to try taking some melatonin tonight to see if I can sleep. I come from a long line of poor sleepers. My dad has severe sleep apnea and restless leg syndrome. I always thought that my mom couldn’t sleep because of the kicking and snoring. After sleeping in different beds, my mom doesn’t sleep any better than I do. What a wicked bunch indeed. 

Sorry, it is just hard for me to feel physical pain without an exciting story to tell.  I am just getting old. It is hard to watch my body have limitations while watching my teens not motivated to do all that they can while they can. It is hard to focus at work who you have a sleep hangover without the fun the night before. The more sleep deprived I get, the moodier I become. I walk around like a irritable zombie. My IQ drops at least 2 standard deviations. 

Okay, enough with the pissing and moaning. I did decide that I want to do my first triathlon next summer. That is if I can still walk. 

Up north, part 5

Well this is it. Summer is unofficially over tonight. The deceptively warm weather this past week and weekend tricked my mind into believing that it was just beginning as we took out the dock and shut the cabin down for the season. But the leaves are changing color ever so slightly like the season of my life that I am entering now. Cooler temps will enter the scene tomorrow as if Mother Nature did get the memo after all. Saying good bye to summer is like losing a best friend which incidentally happened this summer as well. 

Since we last spoke, my husband came back from his week long sailing trip. Then guess what we did on Saturday? That’s right, I had him take me sailing to a beach that we haven’t been to all summer. There were lots of boats littering the beach, but ours was the only sailboat. This always attracts attention. Three bikini clad women just had to take a tour. Paul helped the ladies on board telling them that they could grab ahold of anything they needed for support. I was thinking, not everything ladies, not everything. But it didn’t come down to that. Lol. We came back as the sun was setting, eating sushi. Man, sometimes a sailor can make a woman feel so classy. Then we got home and I proceeded to fall asleep on the couch. Scratch that comment I made earlier about runners being up for anything on a Saturday night. Ah, maybe next weekend…

Then there was the matter of a slight domestic dispute between my teenagers on the way to church. And I thought things were going well when my son was ready to leave for church early. Almost made me proud until my daughter got into the shower 10 minutes before it was time to leave disrupting the natural ebb and flow of the morning tide. This resulted in a big fight of hurricane force that had me pulled over to the side of the road barricading myself from hair brushes and 4 letter words. My daughter screaming at my son for taking the first shower when he knows that she has long hair that needs time to dry. In a thundering crescendo, she pulled my son’s short hair. The waves of emotion growing higher threatened destruction. He grabbed her hairbrush, broke it in half, and flung it at her hitting her in the mouth. She’s crying, splattering large tears, saying that he broke her tooth. Just a slight bloody lip inflicted from the roaring wind of her tempest mouth. We live close to the church so we had to hurry up and put on our happy family forced summer sunshine all kitties and puppies smile. Nice how are you’s answered with a seething angry happy good everything is fine plastic fake smile. 

It was then that I thought for that brief moment that my mother-in-law was right. The previous weekend she dropped off my son after spending the weekend there and told me that my kids were brats and he was not welcome at her house ever again. She locked him at her house without Internet and friends, more than I ever get. I got the biggest hug and I love you mom after that. Wonderful. Then my mother-in-law proceeded in telling me that her best friend’s grandchildren were perfect, not like my bratty kids. I said, “Well how nice for her”. I would be upset with my son, but this happens almost every time we see her so I just shrugged it off. Then she criticized what I was making for supper and got in a fight with her husband. I kept telling myself that she could have aborted her unwanted child, my husband. It is in these moments that I remember that if my husband had an easy childhood, I probably wouldn’t appreciate how far he has come as a husband and father without having a father himself. Or how hard he has worked starting a business and getting a Master’s degree when his only parent dropped out of high school. We can all have a better life beyond the limitations of childhood. 

Oh life, someday I’ll laugh over all of this. 

A game of cat and bird

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I admit, this picture is not award winning. But it is one in a million. How often are you in the kitchen with your cat when a bird decides to peek in? Plus have the opportunity to take a picture before the moment passes. I have always been a bird magnet which causes conflicting polarity since cats have always been drawn to me as well. Or perhaps the bird was looking in hopes to find our neighbor that moved away. His massive gardens and bird feeders long gone.

A few days later, I was sitting on my deck listening to the old Pink Floyd song Cirrus Minor. The song begins with the melodic singing of birds. My new friend came over by me again. I think he must be lonely. I would recommend other Pink Floyd songs to him if he could get past The Wall, that is. He may relate to the raw feelings of loneliness in The Final Cut. Or like the sounds of clocks and bells, even the little sounds of bicycle bells that may honk at him. He may also like the sounds of other animals such as pigs, sheep, dogs, insects, or cows in other songs. Or the lonely seagulls cry in Set Controls for the Heart of the Sun. He may think some of the old songs are just too creepy. Some are, but if you dig far enough into the “Relics” there are a few hidden gems like Cymbaline, Julia Dream, and See Saw. Or “our song” which has always been Fat Old Sun, not Fat Old Son as my husband jokes. 

I have seen evidence of you, little bird, when I was gone. Little streaks of bird poop on my clothes drying on the line. I didn’t appreciate this, but I know I have to take the good with the bad. You do tolerate my cat. I might miss you when you decide to fly away. Some day I too will be alone when my little birds decide to leave the nest. 

A sailor’s return to health and hearth

Today is the day that my husband comes home. A week ago he went off sailing into the sunset with a bunch of other sailors. I am glad that he sailed away. Since we work together and are practically inseparable, it was good to appreciate him in his absence. With the stresses of running a business and raising teenagers, we both do our part in keeping the antacid pharmaceutical companies afloat. Some time putting stress on the back burner helps keep the burning acid fires at bay. 

I am sure that the men were happy to get away from their wives nagging them about how much they eat, drink, or smoke. I do my fair share of nagging, I know. Paul is 6 years older than me, women live longer than men, plus longevity is on my side not necessarily his. So I figure that statistically speaking I should outlive him by 13 to 20+ years. We have been together 20 years this month, almost half my life. And I almost lost him once about 10 years ago. 

Ten years ago… I was staying at home taking care of our 3 little kids while Paul was building his own business. It was a one man show back then. Paul started having a lot of back pain. Our dr gave him cortisone shots and muscle relaxers, but the pain didn’t go away. After further testing, a cyst was discovered in his kidney area. No problem the dr said and plans were made to have an ultrasound to aid in the removal of the cyst. When we got to the appointment something was wrong. The dr didn’t like what he saw. He feared that the cyst was cancerous and trying to remove it by a simple procedure would tear it open and spread the cancer all over his body. Special tools needed ordering and surgery would be required. 

This all happened right before thanksgiving. Life went on. We had the whole family over for thanksgiving as planned. Paul got up early and cooked the meal in a tremendous amount of pain. We prayed and we worried. Cancer, the thought of forever losing my husband. The procedure required a major surgery that involved removal of a couple ribs, a week in the hospital, and a long recooperation time. Plus it was going to be expensive. Like most small business owners, we had a very high deductible and only went to the dr for catastrophic events. 

I remember the day of surgery quite well. It happened in the afternoon. The pastor and another church member prayed for my husband. Then I was left sitting in the waiting area for hours alone. I brought a book with me that I must have read the same sentence over and over. I looked down at the lonely desolate streets and watched the street lamps come on. I thought of facing life alone as I watched the wind blow the remainders of the late fall leaves swirling away. The dr finally came out and said that everything was ok. Paul had a cyst the size of a football on his adrenal gland, but it was most likely not cancerous. After I saw that he was safe in his room, I headed home. The weather took a turn for the worst. There was black ice everywhere. A car slid off the overpass and lay overturned in the ditch. There were many accidents on the way home that night. But we lived through that day!

Paul lost a lot of weight. He was thin and sickly which says a lot since he was always a big man. He needed help. I had to take him to work. He needed help getting up and down the stairs to his office. One step at a time. This was before Internet allowed him to work remotely. So much for recovery time. It was before I knew how to do the work myself. But he dragged his sore, heavily medicated body in. It was painful to watch. At the time, he was also taking a 4 credit master’s degree accounting class. He spent the weekends, when he should have been resting, working on his accounting spreadsheets and then finals. This is why I love this man, he preserveres. I admire his strength. 

Go ahead, take a week off. 

Running etiquette, rules, and humor top 10

After almost getting hit again by a car today, I decided to scrap the blog I was going to write and focus a little bit on running etiquette for runners and maybe especially more so for nonrunners. 

Here is my top ten list:

1. If you see a runner on the road while you are driving, it is best to move over to the other lane if possible. Runners don’t like the uneven ankle twisting gravel on the shoulder. They like jumping into a ditch even less. If there is a car in the other lane, just slow down. It won’t kill you to take a few minutes to slow down a little. But it could kill us if you don’t. I decided to wave at the people that follow my rules of the road. Maybe a little positive reinforcement goes a long way. 

2. If you are a woman and a guy in a service truck obeys these rules then just ignore them. Waving could signal more than positive reinforcement of rules. One time my friend and I had a service tech guy stop us on the road. He said, “Girls, wanna cucumber?” He actually had a bag of cucumbers, but you never know. After several strange encounters like this and being whistled at, it is better not to even look. If I wanted to get hit on, I would have joined a gym. 

3. Runners know when you are lost and need directions. The elderly women wanting to know where a street down the road was while peering over their glasses at a mapquest map were probably lost. The guy with the septic pumping truck plastered with a local address was probably not. 

4. If you suffer from anxiety, you should try running. I always had a nervous energy while being tired all the time. Running mimics my body’s response to anxiety. It makes your heart race, you sweat, and at times you feel like you are going to pass out or die. It does help my body deal with anxiety by comparing stressful situations to running. Okay, control your breathing. Relax, body. It is just like running. If driver’s knew at times how close I felt to passing out, maybe they wouldn’t drive so close to me. 

5. I always run in busy areas. People see me. That is ok, I don’t think that running on remote back roads or trails alone is very safe. Plus on busier roads dogs are more likely to be tied up. Believe me, it is not fun tripping over a dog that ambushes you. Been there, done that, and have the scar. 

6. Running at night makes it hard for me to fall asleep at night. I like to tackle a run first thing in the morning or over lunch time if it is really cold out. It actually gives me energy the rest of the day. 

7. It is probably best to avoid an injured runner or someone who stopped running before a big race. Running makes me happy and helps me cope with life. Without it, you will have to cope with me roaring like an injured caged wild animal. Blogs full of profuse profanity. Grrrr#***%#! Just kidding, but you get the picture. 

8. Runners are always happy to see other runners on the road, unless you sneak up on them and scare them like I did to someone this morning. Sorry. Nothing motivates me more than seeing other runners on the road. I feel an instant comraderie when I see strangers in running shirts when I am not on the road. If you are a runner, I love you. Nevermind that you could be a serial killer. 

9. If you are forced to run on a treadmill when it is 20 below at least watch a good horror or thriller flick. Run a Netflix marathon. Soap operas are probably the worst thing to watch. Isn’t that what you are running from anyway? The craziness of your own life. I found that running is a great way to relieve anger, anxiety, or life stresses. 

10. Runners are the best type of people. They are adventurous and fun. They don’t care about what they eat for the most part. I eat healthy, but do not have to justify calories from that cheeseburger or dark beer. I have the energy, stamina, and endurance to be open to anything. Would you rather spend Saturday night with a couch potato? Not me, I am out to live my only life to its fullest. 

Bracing myself

I received a fortune cookie this week. It read, “our duty, as men and women, is to proceed as if limits to our ability did not exist.” Sometimes I feel like I have the opposite problem. I have the mind set of an iron pumping 17 year old male trapped in the body of an iron popping 41 year old woman with a sore knee. I am not the only one of my siblings to have knee problems either. My brother Mark blew out his knees and pretty much the rest of his body years ago from intense physical labor. My youngest brother already had 2 knee surgeries from being a hard core competitive volleyball player. We have been known to beat the crap out of our bodies, I wonder why I thought I could be the exception. My daughter said I may have to quit running and take up knitting. God forbid!

I bought myself a knee brace this week and ran with it yesterday for a 6 mile run. I wrapped it around my knee tight as a tourniquet. About half way through, I did feel a twinge of knee pain. What I did notice, however, was that I had a lot less pain after the run. I can imagine myself running in the future with a full body brace. I am bracing myself for that. Lol. Did I tell you that I also have a carpal tunnel brace? I need to wear it if I spend too many hours at the office or if I have a jigsaw puzzle marathon. C’mon, you live through decades of Wisconsin winters and tell me what you end up resorting to. Then my sanity level should not “puzzle” you. Just another thing I will have to brace myself for, a long winter. I am going to tell myself that it is summer as long as I can. 

I did see something interesting on the road yesterday. It was a young man walking covered head to toe in camouflage. He even carried a large camo bag. What wasn’t covered in camo was covered in tattoos. He had long dishwater blonde hair with a bit of a beard growing. He meant me no harm on his long journey. I imagined that he was discharged from the military in Texas and decided to take the long way home. It is strange how we can meet up with strangers that converge for a very brief moment on our path. Here he is in my blog, unaware. Maybe for a second I was strange to him too, bracing myself for the path I chose to tread upon. 

Back to school 2

Ok, here is the blog you have been waiting for…. As a follow up to an earlier blog, I tallied up the cost to send my 3 kids back to school. I also realized the benefit of sending my kids off to school this morning as they were fighting on their way out the door. Lol. What does an average middle class American family spend to send their kids back to school? I don’t know, but here is what I came up with. I spent a total of $450 on school supplies. The big time expense this year was a calculator that cost over $100. I really was hesitant on this purchase until the teacher said that all math problems will be shown on this specific calculator. If I buy a cheaper model it will be at the expense of my child. What really sold me was that it could be used on the ACT test assuming that my child doesn’t lose it before then. When asked about getting an extra warranty, I said forget about it. I mean, really? I don’t think that my son will be overusing it. The probability is statistically higher that he will lose it. 

I spent another $230 on school fees. This included laptop warranties, marching band uniform, parking permit, and general class fees. Plus I still need to sell 10 magazines or pay $100 so my daughter can graduate. It was hard to send off my daughter on her first day of her last year of high school and my son to his first day of high school. I know how fast the time flies. Almost as fast as this summer went by. 

I spent another $190 per child on clothing which included shoes. Both my son and youngest daughter graduated from kids clothes into adult clothes this year. My son grew a foot since last year and is taller than me now. My 12 year old daughter went from a kids size to an adult size 12. They all have shoe sizes bigger than mine. I found that adult shoes cost a lot more than kids shoes. 

So, I ended up spending a little more than I thought I would….maybe next year I don’t want to know how much it costs to send my kids back to public school. I will focus on the benefits instead. Sounds good to me.