Month: April 2017

This girl on the train

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Sometimes people like a story of great tragedy, drama, and suspense. But not today, people, I’m on vacation. If you could call taking a few days off to run 18 miles a vacation, that is.

Last night, my husband and I stayed overnight in Milwaukee at The Brewhouse Inn and Suites. Only in WI can you stay at a hotel that was once a brewery. Across the street is a microbrewery that was once a church. We spent most of the evening at the bar and grill next door. We happened to be there eating during trivia night. The trivia turned to 80’s bands. I exclaimed, “Oh my gosh, I had that tape back in the 80’s”. A young guy at the next table said that his mom did too. His mom?? As we looked around the room, we were the oldest ones there. Seems like we are either the oldest or youngest in the crowd lately. Ah, midlife…but still no pending crisis. 

It was a warm evening when we pulled in, probably the warmest of the year around 70 degrees. But today it is snowing at home. 

Before we left, my husband and I renewed our passports. For the first time, I listed my adult daughter as an emergency contact instead of my mom. It was a sobering experience. Paul’s mom passed away this year and she was younger than my mom. By the time it is time to renew my passport again, my mom will almost be 80. Yikes! 

Paul and I are planning on taking a trip for our 20th anniversary next winter. Twenty years doesn’t seem that long. Where did the time go? Then I look around at my closest friends, only one couple has been married longer. My two best friends have been married half as long on their second marriages.

At first I wanted to plan a trip to Bora Bora. But apparently February is their rainy season. The last thing I want to do is spend tons of money and be stuck indoors. Seriously, we are not newlyweds. 

This summer over our anniversary we are planning on going sailing for a week. I would like to sail to Washington Island on the tip of Door County. Believe it or not, I have never been there. I told my husband that wherever we are exactly at the time that we got married, we would do a little vow renewal. I am going to present him with a new wedding band since he lost his second at the theater. The first he broke fishing. Hobbies! 

I can see us pulling up to some beach somewhere decked out and asking a random stranger to participate. My husband exclaimed how spontaneous that was of me. Seriously, I am planning it all out right now!

Right now this girl is on the train. We left Milwaukee this morning and are heading to Michigan so I can do 18 miles of trail running with my cousin. It is supposed to be cold and rainy for the race. At least it won’t be snowing I guess. 

This is my first time on an Amtrak train. I did ride the subway in Chicago and a few old trains at museums. Please Europeans, stop laughing. 

I did see some Amish people waiting for the train at a table nearby. Their eyes were glued to the big screen TV behind me. I chuckled inwardly as they watched a pharmaceutical ad with their jaws dropped. Everyone else in the room did everything not to watch the commercials. I love people watching.

Here’s to the start of the racing season. Here’s to 18 miles of grueling trail running in the muddy rain. Here’s to our first long trip on a train. 

I’m going to try to not worry about the kids or work. It’s time for adventure.. 

Autism’s sibling, journal 3 part 2

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One time when mom’s old friend stopped by, Matt threw rocks at her car and she left..

What I don’t understand is why the nice friendly Christian ladies at church didn’t offer to give us an hour break from Matt. We never got a break. I only had two friends that lived with me, my two cats. But Matt was mean to them and they eventually ran away. Life with him has been hell. Even though Matt is small, he is very strong.

I also have a lot of nausea. Once my depression and nausea got so bad I couldn’t eat. Nobody cared about me. Nobody cared about Mark either. They cared about Luke because he was a troublemaker and got a lot of attention. Sometimes he would even be as bad as Matt.

What I hated most was talking to relatives. They always asked how Matt was. That really hurt because it is like I don’t exist. Usually people ask how you are. But imagine if they asked about your brother and not you. It hurts to know that people really don’t care if I’m alive.

I remember when the three boys were wild at the table. Mom had to feed them. Mom and dad would fight. Mom would get upset and go upstairs to cry. I was her best friend. I would talk to her and tell her that things would be better tomorrow, but it never did. There were always more problems or more doctor bills. Things are better now, but I still feel the pain and it’s holding me back from being happy.

I had a friend that stayed over once in awhile until Matt kicked her. She never wrote back to me after that.

Alissa, 1990

Isolation…being completely alone…emptiness…a cold barren winter devoid of color….loneliness…the crying of the wind…sadness…the darkest days of the year.

Isolation…for three years Matt had a school teacher come out to the house to educate him. He was deemed too violent to attend school. My mom took a leave of absence from work and pulled my younger brothers and I out of school as well. Sometimes we only left the house once a week to go to church. I spent a lot of time alone in my room writing in my journals.

Emptiness…Robbed of joy and childhood magic…My dad couldn’t handle the stress…he was there physically, but he was gone emotionally…I had to step up to the plate…the firstborn…the caregiver…the fixer…weighed down with adult worries…numb to pain, numb to joy…Pushing all feelings away…left empty inside…Not able to feel anything.

Loneliness…Friendships were severed. When friends came over, it was a disaster. We only had people over once or twice a year and it usually did not go well. My mom and my cats were my best friends. I had more pen pals than actual friends, it was safer…the friends we had went away and never came back…

Sadness…My mother, the kindest and most compassionate person that you would ever meet. I think that it truly hurt others when they had to kick us out of public places because of Matt’s violence…he hurt someone…I have to kick you out…you are welcome back again, but give it some time…Those were the years when I saw my mother’s tears more than I heard her laughter.

Isolation…being completely alone…emptiness…a cold barren winter devoid of color….loneliness…the crying of the wind…sadness…the darkest days of the year.

I spent three teenage years completely alone..Those were the darkest years of my life. Years that I don’t talk about.

 

Autism’s sibling, journal 3 part 1

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Now I am ready to tell you about myself, my family, and you will understand everything..

Everyday Matt would be violent. He would bite me and claw up my arms. I have the scars to prove it, although they faded a little because he’s a little better. But it was awful. Everyday he would be uncontrollable. It was always me he hit.

Once he had this thing about men with beards. He would scream and be awful. Once Matt, mom, and I went grocery shopping and Matt saw a guy with a beard. He got really mad. When mom was checking out, she had to hold him down on the floor because he could hurt someone. 

Or how about the time when we had to move the knives because he took one out and threatened to stab my eyes out.

Or when my mom got a bloody lip because he threw his head back on her. She started crying and it really upset me when I heard her say, “What kid would do this to his mother?”.

The stress was unbearable.

I couldn’t have any friends over because they might have on a fragrance and he might react. So you could say that I never really had many friends over because he would hurt them or me. I couldn’t wear any hair spray or anything with a fragrance.

Other times he would hurt small kids.

We had to do different things. We had to get unfragranced soap, shampoo, deodorant, and laundry soap. We had to close the windows when there was an east wind because the auto exhaust would bother him.

He couldn’t leave the house. He had to eat special foods. We never had anyone over because Matt might hurt them.

He can’t read and when he was younger, he couldn’t talk. He would do weird things like grind his teeth and hit his head. He broke about 5 stereos, one of mine, one of mom’s, and the rest were his.

He couldn’t go swimming because of the chlorine. He would be wild for two or three days in a row. He threatened to run away.

Alissa, 1990

Over time, I have forgotten the magnitude of the stories written by a younger me.

To be honest, something has been scratching at my mind since I stirred up my demons.

My last post was on locker rooms of all things..Talking about locker rooms seemed to bother me more than it should have..Memories swirl through my mind. My mom taking a too old Matt into the girls locker room? There weren’t options back then like there are now. A too old screaming autistic boy in the ladies locker room would have been memorable back then, but I don’t remember more than a flicker.

There are whispers quietly echoing through my mind, but I can’t make out the words.

I am nervous as I type.

Do I really want to remember?

Locker room talk

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I’ve spent a lot of time at the gym the last few months. I have become well acquainted with the locker room.

The locker room that I use at the gym is for adults only. Of course, rules aren’t necessarily always followed. It really drives me nuts when a mom brings in screaming toddler. They have a separate parent child locker room for that. Seriously, I work out to relax!

Or better yet, when a mom brings in a little boy that gawks at the naked ladies. They have a separate locker room for that too, mixed gender parent and child.

Seriously, I get it. I was once the mom that anxiously awaited outside the boys locker room and men’s bathroom for my son to emerge. It was scary the first few times…Is that your little guy in there? I helped him reach the paper towels. Don’t worry, he should be out soon..

It has become a pet peeve of mine when these rules are not followed. Frankly, it doesn’t bother me if teens use the women’s locker room. Of course, it may be scary for them to view a real woman’s body. I have yet to see anyone that looks like a Victoria’s Secret model stumble in. And these are the women that work out at the gym!

Not that I sit around and look or anything…

I’ve always wondered why when the locker room is totally empty except for one person that I end up having the naked lady using the locker next to mine. It happened last night. Uncanny…no, not really..lol.

Of course I always use proper locker room etiquette. I look with my eyes to navigate to my locker. If I happen to see someone naked, I drop my eyes to my feet like I am in an elevator. I may even hum elevator music softly in my head.

Sometimes I even use the locker room when the group of developmentally disabled come in from the group home. It doesn’t really bother me. Although it was a little uncomfortable when the first naked lady came up to me and complimented me on my  physical attributes or articles of clothing as I was putting it on. Hello, I don’t have any pants on and you’re naked.

Seeing the very nice group home ladies always reminds me of my brother…This is where the story gets very twisted…I’m in the locker room naked thinking of my brother! It makes me sad to think that my brother could be standing in the men’s locker room doing the same thing. It bothers me that his responses are not socially appropriate…like farting in an elevator. These ladies are probably someone’s sister…They don’t know what they are doing, but we can see..As a special needs sibling, I understand. I feel compassion and respect for them although it hurts me that they act that way. It’s a strange feeling..

It reminds me of other times…my daughter’s high school play…Matt in the bathroom using the urinal…grunting (Tourette’s) doing pelvis thrusts to dry himself (sensory issues)..a classmate freaked out…laughing…a weird man in the bathroom..hitting on me?…odd behavior…should I call the cops?…wouldn’t be the first time…my brother…no dignity…it hurts.

Sometimes the locker room is the hardest part of my work out. It elicits feeling of annoyance or sadness. I never expected that..

Going bananas

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This year I signed up an 18 mile trail race, a marathon, an Olympic triathlon, and a Half Iron. This year is going to determine everything…whether I go to the next level or not…

The countdown is on…9 more days until my first race of the season…an 18 mile trail run…probably the least grueling race of the season..

Yesterday, I went for a 6 mile trail run with my friend Lisa. Frankly, I’m not sure if I would have the courage to run it alone. It seems creepy and scary out in the woods alone. I feel like I could become the victim of some twisted fairy tale villain when in reality the only thing that could be twisted besides my mind is an ankle. I fear that pedophiles lurk in the woods out to find a hapless female runner alone. I should probably be more worried about being attacked by ticks..

Lisa is just afraid of bears, black bears.. Yesterday as a woman was exiting the trail, Lisa asked her if she saw any bears…Lisa it is only a sign posted to prevent frivolous lawsuits.. We were well into the run, when we saw something black coming towards us growling through the woods..Oh my gosh..a bear! But it was only a man dressed in all black grunting as he pedaled towards us up over a hill. For a few minutes, I thought I would have to outrun Lisa…no easy task…We must have laughed a half mile about the ‘bear’ we saw in the woods.

All joking aside, we fell into a deep conversation about competing…Those are my favorite conversations…lots of laughter followed by serious conversation..

How is it that we find ourselves never satisfied with what others would consider big accomplishments??

Why am I not happy to have run a marathon if I don’t feel like I did a good job?

Instead, I always want to do better. I always want to accomplish more. More, more, more…I want better times, more difficult challenges…But will that satiate me or will I never be fulfilled?

Or maybe an even deeper question for reflection is…why am I not satisfied with the difficult things in life that I’ve already done?? Why does the big stack of medals lose its luster? Why am I driven to strive for more?? Why am I not content living an ordinary average mundane boring life??

Nevertheless, I am very excited for the start of another racing season…the struggles…the obstacles…the goals…the medals…the achievements…

Oh, and the ‘free’ banana afterwards…

That right there is the reason I do all of the crazy things I do…I’m going (for the) bananas! That is what a lot of people seem to think anyway…

Places where the past and present collide

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The last few days I haven’t been feeling much like writing. I toy with the temptation of disappearing and being totally anonymous again. Strange thoughts trickle through my mind. I worry that my anonymity has been compromised when the phone rings. I get the pseudonyms crossed in my mind. Will I call someone by the wrong name in real life? Will I use their real name here? The boundaries blur…the wires cross…in my mind..

Time zigzags between the past and present…I enjoyed having Angel home over Easter break, but it blurred the adulthood with childhood in my mind. Is she still my child after childhood fades?

We had a bowling party for Matt’s birthday and a family get together for Easter. Right before the party on Saturday morning, I started feeling depressed and a tad bit angry. I didn’t want to share anything with anybody.

I always feel edgy right before family occasions. Matt’s party went great. We had a fun time. It’s just that sometimes in my head the past blends in with the present and I start feeling or thinking the way I felt or thought back then when Matt was violent.

A group of young laughing girls walked by Matt. I remembered the old Matt…the Matt that would attack them…the Matt that would pull their hair and kick them.

Fear trickled through me.

But the new Matt paid no attention as the girls walked by.

I can’t separate the past from the present. The old triggers still flip a switch in my mind that I can’t seem to turn off.

Yesterday, I pulled out another old diary from 1990. This was something I willingly decided to do in my writing process to confront my demons.

But sometimes I fear that this may trigger memories that are darkly hidden. I am afraid sometimes that I won’t be able to handle what I find…what I remember…and the feelings those memories trigger.

It seems insurmountable to me right now. Like running a marathon right up a mountain.

But once I make it to the top of the mountain, I will see things that I have never been able to see before…new insight, new understanding, a deeper knowledge…peace.

Sometimes I need to take a step back to go forward…too see where I’ve been…to notice how far I’ve already climbed.

I want to be able to put the past behind me so it doesn’t mingle with the present anymore. I think it is going to be a long and difficult hike up the mountain, but well worth the view at the top.

Maybe at the end of my climb, I can finally put my demons to rest.

Prom…the good, the bad, and the not so ugly.

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There was this 17 year old girl (Ali) that got the part of the floozy that I wanted in the musical. She pulled it off a lot better than I thought she would as someone rather inexperienced in life and love. She has the body that many would envy with long gazelle like legs and curves in all of the right places. She also has a kind and compassionate heart…truly beautiful inside and out. She almost seemed to feel bad that I didn’t get her part although it wasn’t a big deal.

After the show one night, Ali told me that she was missing her junior prom. She bought a dress, had a date, and couldn’t go because it was the same night as the show.

She spoke with regret…lamenting a missed prom…while at a theater full of beautiful costumes, wigs, and makeup…including a stage with music, lighting, and speakers. It seemed like a no brainer to me…I decided to throw Ali a prom. We picked out lovely dresses and had a dance party with most of the people that were lingering about. Almost everyone got into glamorous costumes and danced the night away.

Afterwards, people started treating me like I was Mother Theresa. I became (gulp) almost popular. People told me how wonderful I was for throwing Ali a prom. Ali was even crowned the prom queen. I really felt uncomfortable with all of the praise. Maybe because I had more fun at her prom then I ever did at mine.

I missed my first two high school proms because I was home schooled. My autistic brother was too violent to be in school, so we had a retired school teacher come out to our house to educate him. My mom pulled us all out of school during this time. We weren’t treated well at school because Matt was the first violent autistic child in the school district. Apparently, it was the family’s fault he acted the way he did. For 3 years, I was not in school.

When I was a sophomore, there was a boy I wanted to go to prom with. I finally got up enough courage to call his house. He wasn’t home, so I ended up talking to his mother under the guise of some church fundraiser we were having at the time. I don’t think he ever knew I called for him. I didn’t have a prom date and didn’t attend the school.

So no luck for prom!

I went to my junior prom with my boyfriend at the time, Timmy. My mom picked out a dress for me and brought it home one day. It was ugly and I hated it. But I wore it anyway. We got our pictures taken at Timmy’s house. His step-dad grabbed my ass. Timmy was angry when I told him. At prom, another girl told me that someone wore the same dress that I was wearing the previous year. She also said that Timmy was planning on breaking up with me after prom.

After prom, Timmy and I got into a huge fight on our way to an after prom party about him wanting to break up with me. We sat outside the party in his car on the road. It was pouring. Several people stopped asking if we had car trouble, but the screaming and tears suggested otherwise.

Not a good prom.

Then senior prom came along…my long term boyfriend Bobby and I just broke up. I was heartbroken…so I started dating Bobby’s next door neighbor and friend. Nothing exciting happened beyond a few hickeys on my neck to get back at Bobby. Boy did that show him! Lol…But, I was planning on going to prom with Bobby’s friend. He didn’t have his license. When I went to pick him up, his sister said that he left for the weekend to go on a fishing trip with his dad.

So, I went to prom alone in a cheap thrift store dress with hickeys on my neck. At prom, a low status guy asked me out… I thought to myself…Sure, why not?? I didn’t like the guy, but I was feeling miserable and alone at the time. The other kids found out about it and laughed. Someone had the DJ announce ‘congrats Alissa and Donny for making a love connection’. We broke up the next day.

Not a good prom.

So this past weekend…I threw Ali a junior prom…Maybe I feel guilty for having so much fun. It was like I was redoing my prom all over again.

Sure, it was a nice thing to do…but I am not a saint for doing it.

I just wanted her to have happy memories. If nothing else, she will have a lot of interesting stories..

It was a great prom!

Stranger then family

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We had our final show this past weekend…What started out as trepidation ended with exhilaration..

I have been thinking again the last couple of days…Community theater is not that much different from running a marathon. I know that some of you may think my comment is a bit of a stretch, especially if you have done one or the other or neither..

There are commonalities… The months of training that nobody really sees… Special clothing… Anticipation…Dread…Goal setting… Setbacks…Worries… Until the months of training culminates with one big ending…the show or race with a lot of spectators.

Our common goal forces us to reach out to people that we wouldn’t talk to in our everyday ordinary lives..that person is the one we hold hands with as we limp across the finish line…It doesn’t matter if we voted for different candidates. All of the things that divide us melt away as we walk hand in hand towards a common goal.

It becomes a place where strangers become family.

It doesn’t matter if I really liked my part or not, although being cast in a great role that really fits adds so much to the experience. I can’t say my lines if no one replies with theirs. We have to work together.

It doesn’t matter if I run fast or slow. Maybe it is a good thing that I am not the fastest runner. It forces me to reach out for the hand of another running down the same road.

Long distance racing and working as a team to make a community theater show great are some of the biggest natural highs that I have experienced in life.

All of the long hours memorizing lines, practicing songs, and running long distances makes it all the more rewarding.

The more you put into it, the more you get out of it.

Why can’t life be like that all of the time? Why can’t we grab the hand of a fellow stranger struggling along the path? Why must we get so hung up on squabbling about our differences??

 

Suppertime sadness

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The tool box clanks on the floor…It’s 6 PM…Dad gets home from work…Supper is on the table…Matt and Luke are tied to their chairs with my mom’s apron…otherwise they don’t stay…

Dad bangs his fist on the table…This dog shit you call supper…He roars as he walks away…The TV is turned on in the next room…laughter on the screen…laughter from my dad…my mom cries…The boys struggle against their restraints…

My stomach hurts…I don’t want to eat…But I have to stay until all of my food is gone..

Some harmless, some hidden

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Memories swirl around in my mind. Some harmless, some hidden..

…laughter of teenage girls…the lighter flicks…not to smoke…melting the tip of the eye liner so it glides on easier…

I put on eye liner for the show. It goes on easy. It almost smears, unlike the sharp pencil of my younger years…Does anyone use a lighter anymore to soften their eye liner pencils?

…I see a younger face in the mirror, then she is gone..

A harmless memory..

An interview for the show…

Were you ever involved in theater before you came to this theater?

…My dad dropped me off at the theater before work…I was the little girl with a small part in the show…I was dropped off early before everyone else…I walked the trails alone in the woods surrounding the theater, sometimes afraid…but it was only a deer…alone…fun on stage…the big kids…the costumes, the makeup…

…The only time alone with my dad…his boss taking him for lunch…maybe I can go too since I ride with him…laughter…why would I take you??

The next summer, I got a part in another play. I was a princess.

…Reading my lines out loud with the other princesses on the grass in a circle in the summer sun…gone…have to drop out…Matt is sick…my mom left for the summer to go to a hospital out of state with Matt…selfish…how could you still want to be in the show…your brother is sick…so lucky that you are not sick…so lucky…anger and tears…some things are more important…crying…no ride…alone…loneliness…missing my mom…fragments of memories reflect off the surface of the dark murkiness in my mind…

Were you ever involved in theater before you came to this theater?

Just one innocent question scratched the surface…I don’t answer…

It has happened before over the years…innocent questions avoided…the explanations too personal…too painful…they shouldn’t be, but are.

Over 20 years later, I walked through the doors of another theater…in another town…and left all those old hidden painful memories behind me..

Or did I?