Gratitude week 17

The past week has been very rough. I guess I’ve been saying that a lot lately.

I am now on day 6 of being sick. I haven’t slept much because I am up multiple times a night to use the bathroom. I am not well. I’ve had to take all my goals, dreams, and hopes for the future and put them on a shelf. Or maybe I have to give them up forever. I’m starting to grieve that my old life is probably over.

There have been times I’ve curled up in pain in a fetal position on the floor tears cascading from my eyes. I’ve had a fever off and on and I feel it starting to climb back. I don’t know how I am going to make it through the prep tonight for my procedure. I’ve been thinking about that a lot, death. Sometimes it feels so close that everything still left inside me tells me to prepare.

I don’t have much time to talk, nor much energy. So, that being said, here are my ten things I’m grateful for this week.

  1. Soon maybe I’ll finally have the answers for what is wrong with me.
  2.  I reached over 750 followers on my blog. I am thankful for you my readers and friends who are supportive of me telling my story.
  3.  I am thankful for my husband. He is the best man I could ever ask for. Please keep him in your thoughts and prayers because he is really having a hard time with this.
  4.  I am grateful especially for my children, my mom, my brothers, my aunt Jan, and my best friend Cindy. They have been checking in on me so much that I can barely get any rest.
  5.  I am thankful for my pets, especially my cat. He follows me around everywhere.
  6.  I am thankful for the deer that grace my yard. Watching nature keeps my mind off my pain.
  7.  I am thankful for finally getting some weather that makes us think of spring.
  8.  I am grateful I tested negative for COVID-19.
  9.  I’m grateful I’m not missing much because I’ve been stuck inside sick.
  10.  I’m grateful that my procedure is very early tomorrow morning. I don’t have to wait much longer to hopefully get some relief.

I need to take some more Tylenol and eat some chicken broth. Prep starts in less than 2 hours. I will try to update you in the next couple days. Thanks for your thoughts and prayers.

purpose

What is the purpose of struggling?

I’ve felt sick like this many times before. There were times in my childhood where I was in so much pain that I didn’t eat much for several days. I was deemed a picky eater. My parents yelled at me, at times forced me to eat until I threw up, and threatened to take me to the doctor. I really wish they did. Maybe I wouldn’t be in the predicament that I’m in now.

Maybe if I was an only child things would be different. My brother had special needs so mine were ignored. It was selfish of me to take care of myself. I mean, look at my brother.

I can’t blame my parents for everything. I once told a doctor about the things I was experiencing and she told me it was all in my head. Maybe it was all in my head. Maybe it still is. I have that fear. Maybe I will go in for the colonoscopy and they will find nothing wrong with me. But if it is in my head, you better lock me up because I can’t live this way much longer.

At its greatest intensity, the stomach cramps feel like I am in labor. That being said, I didn’t really get a lot of sleep last night. I was in too much pain.

What does this mean for my life going forward? I’m thinking about giving up running. I am not well. My running really took a downhill (or uphill) turn last year. But I did finish a 50k. I achieved everything I wanted to. Oh my gosh, will my life come down to walking and yoga? Shoot me now!

I have to think this physical struggle with my health has some purpose. I have to think my childhood trauma had some purpose too. Why is purpose so meaningful to me? Without it, what is the point?

My husband has been very supportive. I want to thank him for giving me the best years of my life. I know we annoy each other and fight sometimes, but I can always count on him. I guess that is as close as I can get to trusting someone in this life.

I have been struggling because I want to write about what happened last summer with my husband. But I don’t want to hurt him because he is a good person. He did give me the green light, but I would choose him over being transparent with you any day if I felt it’s what I needed to do.

The whole purpose of having a personal blog is sharing my story. The ups and downs and the bumps along the way. Maybe I can help someone else in this journey. Or maybe it just makes me feel better.

My story is the only thing that cannot be taken away from me. Unless I end up with dementia, of course, which I am convinced will be my demise. But until then I am going to keep writing.

 

 

 

inflamed

I’m sick again. This time it is worse and it hasn’t gone away.

It started Wednesday morning. I woke up having to run to the bathroom. I felt nauseous too but didn’t throw up. I was tired and had to lie down to rest in the morning. By the afternoon, I had a horrible stomachache and muscle cramps. Sorry Jillian Michaels but I was cursing your name. The day before I did a new workout video, or should I say tried to. It was so difficult I could barely do it. My whole body ached. I would’ve run outside but we are back to winter in Wisconsin, so yeah.

I also blamed it on the night before. I ate chili and a fake grilled cheese sandwich for supper. I tried to keep my portions small because I am allergic to tomatoes, eggs, and baker’s yeast (bread). Plus a lot of chili beans are a no-no for my SIBO diet. My diet is so limited it is hard to eat with my family. Or maybe it was food poisoning or stomach flu, although I was the only one sick.

By the afternoon, I rated my stomach and body ache pain at a 7. I decided to take my temperature and discovered I had a fever. Everyone was freaking out because of the coronavirus and told me I needed to call the doctor. I decided to wait until the next morning because it was after office hours and maybe I would feel better the next day. Even during the night I was up every hour or two to run to the bathroom. I’m not going to lie, this has been miserable.

I called the doctor’s office and after being screened by the nurse scheduled an appointment with another doctor for later that morning. I struggled to take a shower and get dressed. I wanted to let you know how I felt at my worst but I couldn’t even sit up to do my puzzle because I was in so much pain. I couldn’t think either.

Paul has been wonderful and took me to my appointment but I would not allow him to go in with me. He is over 50 with high blood pressure and I did not want him to risk his health for mine. Outside of the clinic there was a tent set up for COVID testing. There was someone standing outside the door to the clinic in full protective gear with a clipboard who allowed me in when I told her my name. It was like I was famous getting VIP access to a club.

I entered an empty clinic, checked in, and was called back right away. Everyone at the clinic wore scrubs and a mask with a full face visor over it. It was hard at times to understand what they were saying. There were signs on the door that said dirty room or clean room. The room I went in had nothing on the door. I heard people coughing. On the way out I saw several sick and scared looking people.

I had a whole array of tests done. I was even tested for COVID although the doctor did not think I had it. They took a large cotton swab which they swirled back inside of each nostril. It wasn’t as bad as I thought it would be, but I just got my blood drawn and was more anxious about that.

It’s day three now and I’m still sick. I do feel better than I did on day 1 or day 2. Thankfully my COVID test came back negative. But several tests came back showing inflammation. The doctor now thinks I might have colitis or Crohn’s. I have all of the symptoms. So Tuesday I go in for my first colonoscopy.

I know it sounds crazy, but I probably wouldn’t have called the doctor if it wasn’t for the coronavirus. I was worried about getting other people sick. I probably would have dismissed it as the stomach flu or food poisoning like I’ve done before although no one else in my house ever gets sick. I struggled with lifelong stomach/GI issues that I brushed off as normal for me.

It seems worse this time. Maybe the SIBO and parasitic inflammation that the antibiotics killed was masking other problems. I don’t know. But hopefully next week I will get some answers. It’s hard not feeling well and not knowing what is wrong.

 

 

working well not working

My husband and I ran a business together for 10 years. We worked amazingly well together. Running a successful business with your spouse is a huge accomplishment that few couples wish to tackle. Both of us are rather type A task oriented people. There aren’t any back burner lists or room in our lives for procrastination. What can be done tomorrow should’ve been done yesterday. We worked together for a common goal.

At home discussions commonly were about our shared experiences. Our frustration about working with a difficult client. How we were going to solve a work related issue. Our kids got used to shop talk at the dinner table. It was a big center of our life and created a level of intimacy rarely found in most marriages.

Together we built something so amazing that it was coveted by others. It’s been over two years now since we sold our business. The new owners kept me on for the first year then outsourced my job to a centralized corporate branch. It was a huge adjustment for me.

One of my favorite ways to outrun my demons is to throw myself into the distraction of work. I didn’t have time to think about my problems because I was always too busy. I rushed to this and rushed to that. I had kids to race here and there. I had a new bigger house to clean. I filled every minute of my day. I started writing. I trained for marathons.

It was hard for me when I lost my job and my husband continued on. It was harder to push the demons down when I could finally hear the cries of my inner child. Then two out of three of my kids became adults. I was starting to feel the emptiness of losing them. My health went downhill and I haven’t fully recovered. But even worse, the foundation of my once enviable marriage started to crack.

My husband’s hours were drastically cut. He is pretty much a figurehead for the company we sold. They wheel him out every now and then as needed. But he is pretty much semi-retired. Retiring early sucks! I’m just going to say that now. It’s a huge adjustment. You really can’t do anything during the week because all of your friends are still working. It is really hard for two task oriented workaholics.

So we fought. A lot. We fought about the big things. We fought about the little things. How come we worked so well together when we had so much stress and things to do? There was no longer anything new to talk about. Our relationship got stagnant like putrid water. Everything he did annoyed me. Everything I did annoyed him. I tried to fix him. He tried to fix me. Many times we wanted to throw in the towel but we still both wanted to keep working on our marriage.

It was hard because there was nowhere to go for advice. Neither of us wanted marriages like our parents. Most of our friends are on their second or third marriages. Where do you turn? We kept talking and working through our issues, some days that was all we accomplished.

We decided to start a second business where we could once again work together. Things were going pretty well.

Then this whole coronavirus hit. Once again we were forced together with nothing productive to do. Everything we were looking forward to is now gone. My structure and routine have been replaced with chaos and uncertainty indefinitely. We are getting ready to launch our new business. How will that work in this economy? Plus the money that we were counting on living on is simply not there. Who knows when and if it will rebound? Then we started fighting again.

We are still working on our marriage. I have to be a healthy me and Paul needs to work on himself. We can’t fix each other. If I learned one thing about being married over twenty years it’s that. Both people need to be willing to work on themselves to work on their marriage. We will get through this too.

Gratitude week 16

  1.  I created an Instagram account that I can use to stay in touch with Clara.
  2.  I have been sleeping a lot better which greatly improves my mood.
  3.  I helped Paul shave his head. What better time to try out a new look?
  4.  I was able to de-clutter some of my house which always feels good.
  5.  All of my family members are healthy and safe.
  6.  I am finally off of the antibiotics.
  7.  This whole virus thing coupled with a resurge of winter is forcing me to change. I can no longer hold onto structure, work, exercise, and routine addiction. It is painful to go without it but sometimes growth hurts. I am so bored that maybe I will try a new way of doing things that I wouldn’t have otherwise done if not forced.
  8.  Maybe it’s time to slow down and let go. Maybe life is more than tasks, goals, bucket lists, and achievements.
  9.  Now is the time to redefine purpose and meaning.
  10.  I feel motivated to write with even more truth. Maybe now would be a good time to start working on the second edition of my book.

Sick as a dog

Right before everything shut down I foresaw the last window of opportunity to get things done. Paul and I had one last lunch date at the Chinese restaurant before it closed its doors maybe for good. I returned some Amazon items at the mall. I knew that once the school closed the mall would shortly follow. I got fingerprinted for my census job as soon as I could then found out later that I did it on the last day they kept fingerprinting open. It took 3 weeks later to get my background check back. Because of this I would be surprised if I start my census job much before summer ends.

One of the first things I did after everything was shut down was to buy some heartworm pills for my dog. Would it be bad to say that I took a risk for my dog? I have geriatric pets. My dog is almost 13 and my cat somewhere around 14. I try not to keep a large supply of expensive pet products because, well…

So I wandered out that day to buy heartworm pills. I saw a dog with heartworm once. It looked pretty miserable and I didn’t want the same fate for my dog. I even saw a dog with rabies once but that was so long ago.

The dog with rabies was sitting by the burning barrel. Did you have a burning barrel as a kid living out in the country? This really brings back childhood memories. We would take our garbage out to the burning barrel. This was years before recycling was even a thing. This was in the days I had trouble lighting a match. I was always afraid to light the fire.

When the burning barrel was lit we would put a grate over it so fiery pieces wouldn’t fly out and create other fires. As kids, this allowed us ample opportunity to play with fire. My mom gave us her old pots and pans. I created rock soup with dirt. It didn’t taste as good as I was expecting. Neither did grass. Sometimes we would take rotten vegetables from the garden like zucchini and cook them on the fire in a frying pan. I guess I was a child once but I don’t think children would be given the task of starting a burning barrel fire today.

That is where we found the dog with rabies. My mom drove in the driveway with all of us kids in the car. We saw the dog crouched next to the burning barrel snarling and foaming at the mouth. We were scared. I remember the fear. It was hot sitting in the car waiting for my mom to decide what to do. Something was wrong with the dog. It wasn’t our dog. We never saw it before. My mom thought we could make a run for the house to call for help.

By the time the man arrived with a gun, the dog moved a little further from the house. Mom told us to stay inside and I was big enough to peek out the bathroom window. I saw what happened to that dog.

I have seen a dog with fleas, heartworm, and even rabies in my lifetime. Yet I don’t know anyone who tested positive for coronavirus. It’s interesting to see how our experiences shape us. I had to make sure that didn’t happen to my dog, but at the same time I wasn’t too worried that something would happen to me.

Maybe tomorrow…

Yesterday I said maybe…Maybe school will start back up again. Maybe you can plan your birthday party next month. Maybe your best friend whose mom has cancer will be able to go.

Yesterday I said maybe, then yesterday maybe was gone. The governor cancelled school for the rest of the school year. The girls still have online schooling. But now everything deemed as fun is officially over. Tomorrow they were supposed to be going to prom.

It’s been a rough week here. Winter made a come back. There is a smattering of snow on the ground. It’s been cool and windy. I haven’t even been outside running this week. Everyone has cabin fever on steroids. It is a problem around here this time of year when we aren’t locked down.

It brings back memories of long ago. When I was in 8th through 10th grade I was homeschooled. My mom pulled us all out of school when my autistic brother Matt could no longer go to school because of his violent behavior. As a teen I lived in isolation for three years rarely leaving the house and rarely having anyone over. It seemed different then, maybe because I was a child.

I spent three years in isolation as a teen. It’s been a month now and I probably leave the house as often as I left the house back then. Maybe I have to examine that as part of my trauma experience. I’ll add it to the list.

I told myself I liked the isolation and really I think I do. I told myself that is what I wanted. When you can’t have what you need sometimes the best coping mechanism is to tell yourself what you have is what you want. You get used to it. It becomes normal.

Now everyone else is just as crazy as I am. The sanity playing field has leveled out. Maybe now you feel the anxiety that I always felt. Maybe the anxious introverts are now pulling ahead of the coping game. If you also struggle with depression, give yourself another point. Now the social anxiety people even don’t have to feel bad for not wanting to leave their house.

It feels strange to leave the house now. It feels strange to drive my car. I went to the store today to get groceries for my elderly parents. It feels strange, to call them elderly. It is hard to get groceries from someone else’s list. I’m not sure why.

I wore my mask that my crafty daughter sent me in the mail. I don’t mind wearing a mask though, although I couldn’t wear my glasses which made it harder to read the list. I don’t feel like I have to smile because no one can see my mouth.

Most of the people at the store wore masks. I don’t see little children anymore. That’s different. I hear more people fighting. That’s different too. It’s exhausting, but I don’t do anything to be exhausted for. When I get to my parents house, my mom opens the trunk to her car and I put the groceries inside. I wave at my mom and my brother Matt through the window. My mom looked different today like a wilted flower.

I wonder when all of this will end.

Maybe tomorrow…but yesterday I said maybe tomorrow too.

This stinking sinking boat we’re in

I think the numbness has worn off and it is starting to hurt now.

I’m struggling today. Just the other day I was thinking about how hard it would be to be trapped inside the house with toddlers. But, you know what, it is hard to be trapped inside with teenagers.

It came to my attention yesterday that my daughter Arabella is behind in her online schooling. I had a sneaky suspicion about that although she has never had issues with grades or school before. I didn’t think I would have to micromanage my teen. I would almost rather teach common core math to a grade schooler right now. It would probably be less frustrating.

I can imagine how hard online schooling must be for a teenager. It takes a lot of grit, maturity, and strength of character to have self-motivation. When your whole world is falling apart you still have homework to do. The world is ending, but math..

The girls were supposed to go to prom this weekend. They had appointments to get their hair done. Now their beautiful dresses hang on a rack in the back of a closet. I could go on and on. The musical. Concerts. Going to state. Track. Spring break trip. Goofing around with friends. ALL GONE!

Why bother when the only thing left is the thing about school that most teenagers don’t want to do?

I have been angry. YOU NEED TO DO YOUR HOMEWORK. I have been frustrated…impatient. How do you help your teenager cope with disappointment? Now my daughter dug herself into a hole she might have a hard time getting out of. How do you deal with that? Should I ground her from her phone? She hasn’t seen her friends in a month. What else is there to take away?

How can you be upset with someone for feeling depressed right now?

It is hard to deal with disappointment if you never learned to deal with it at this level before. My daughter clearly is not at her best. All she does is mope around and eat junk food. Over the past year she worked really hard to lose 50 lbs. Now she is packing on the weight again and it is awful to see.

Our remaining foreign exchange student is not fairing much better. She has been sleeping a lot and not eating much. She hardly weighs anything as it is. It’s hard for her to find the motivation for school as well since this year does not count for her when she goes back. This is no longer the American experience she paid a lot of money for.

Also, her mother was going to visit in June and they were going to go back home together. Estelle just found out that her mom won’t be coming and she is not even sure she will be able to go home as planned. So far her departure is the only remaining thing left planned on my calendar.

So here we sit. What do I do? My just do it mentality is not working. I see everyone around me falling apart and I can’t motivate them. I’m trying to be supportive and understanding but it isn’t working well.

I’m not sure what to do about it but I can’t be the only one in the same stinking sinking boat.

Gratitude week 15

  1. It’s Easter! Although this is probably the first Easter that I didn’t go to church, it was one of the most enjoyable. We colored eggs while watching church online. We have the technology to do amazing things. Plus I didn’t have to dress up or anything.
  2.  And more compliments on my hair.
  3.  Clara was able to travel safely back home to Germany where she was reunited with her family.
  4.  We have been getting cards in the mail from friends and family telling us how special we are to them. It really means a lot.
  5.  I have been digging out memory boxes from storage from our wedding and when the kids were little. It brings back many happy times that I’ve almost forgotten.
  6.  A huge snowstorm is making its way through Wisconsin and it looks like it might miss us.
  7.  Life has gotten a lot quieter and less rushed. I like it more that way. When this whole isolation thing is over I might examine how busy I want my life to be going forward. It has given us the opportunity to look at what we want to keep or get rid of.
  8.  I am thankful for self-awareness.
  9.  I am thankful that all of my friends and family are healthy and safe.
  10.  I am grateful that today I am making the most out of the situation we find ourselves in. Although it doesn’t feel like Easter, or spring, we can take what we have and make the best of it.

Would it kill you to be nice?

What if I told you that my son had a couple of friends overnight last night? Would you lecture me and call me stupid?

What if I told you that the two boys were brothers who got kicked out of their house by their single mother who went off of her medication for severe mental health issues? What if I told you that when she is like that she is violent towards her children? Would that change your mind?

What price is too high to pay for human kindness?

What if I told you that the day our foreign exchange student went home Paul asked the coordinator if there were any other children in dire need of a place to stay? Who willingly takes on more teenagers in a time of crisis? Who steps up to take the children who have nowhere to go?

My best friend Cindy took in a teenage boy who is friends with her son. He was going through a hard time at home. Yesterday Cindy took this kid to the ER for what might have been kidney stones. Would you risk getting sick by taking someone else’s child to the ER right now?

What if your parents were in need of groceries and were afraid to leave the house? Would you spend over two hours in the store to get them everything that they need even if you didn’t have a mask to wear?

All of these things happened within the last couple days. It’s the new moral dilemma. Do you put yourself at risk to help others? There are so many people who are struggling right now.

What price is too steep for human kindness? Seriously, I want to know. Is the risk too high to help others if you are healthy? Would you donate blood? Would you try to make a difference in this world even if it means you might get sick?

I think of all the doctors and nurses who are stepping up to save lives at the price of losing theirs. What is that worth? There are many people out there making a difference in other peoples lives.

Would it kill you to be nice? Maybe it would this year.

At Eastertime I reflect on the sacrifice Jesus made for us. What would he want from us? I think he would want us to be caring and kind towards the other people he placed in our lives. In times of struggle it’s hard to do nothing if there are people out there that need help.