- It felt good to go in for a haircut this past week. Funny story, when I got to my appointment I had a fever from sitting outside in my hot car. I was a little afraid she would turn me away. By the end of the appointment, I looked great and my temp was below normal.
- We finished painting the shed. I wasn’t sure it was going to happen at first because it seemed like a wild animal was living inside. Every time I got close it started clawing at the walls. But a few days later it was gone. Estelle, Arabella, and I started painting together. Then Estelle and Arabella started fighting. Estelle will be leaving soon. I will miss her a lot because she became like a daughter to me, but I will not miss the fighting. The shed will be a visual reminder that everything happens in its season.
- The month of May is over. I’m saddened by the state of this country and have to hope things will get better. Maybe this month…
- We were able to go back to church for the first time since the pandemic this past Sunday.
- The books I ordered came in the mail. I paged through Colitis for Dummies and learned more than what my doctor told me already. Apparently I am the 10-15% of the colitis population that has an undetermined cause. It could be ulcerative colitis or Crohn’s, but they really don’t know. I wish my doctor would’ve explained that to me.
- This past week I celebrated my 5th blogging anniversary. I’m still here!
- Today is the 2nd anniversary of moving into our house. I am thankful to be living in a house that I don’t mind being quarantined in.
- I am grateful to have a husband that loves to cook and is good at it.
- I’m grateful that my mouse issue was solved with replacing the batteries.
- I am grateful to be able to do a little planning and finally put some new things on my calendar after everything else has been crossed out. The funny thing as I was looking ahead at my wall calendar I put the wording on December’s photo as best year ever. Note to self: never put the words best year ever on a wall calendar in December…maybe in January.
I left shortly after I put my clothes back on. I was ready for bed. I thought I would check Facebook one last time as I waited for Paul to come back home. Facebook, that is where I learned that our previous family business was on fire. Paul arrived home after 10 PM tired without even eating yet. I left without him in great urgency as if my presence would stop the raging fire from burning.
Inside that building is where my family members lived on in my memory. My great-grandparents built the business 100 years before. Like a family farm, all of the family members lived next door or down the road. In my mind they worked together in a steady hum like a colony of bees. I don’t remember any conflict just hard work.
My grandpa and uncle Harold fixed cars. There were several other mechanics too that they treated like family. I remember Harold laughing and sharing stories with customers in his quiet way. My brothers and I were always running through the garage as kids only stopping to buy a bottle of soda from the machine for 25 cents. It was a magical place, a place where broken things got fixed. I loved the smell of tires and even the scent of gasoline because it only brings back good memories.
My aunt Grace did the bookkeeping with the help of my grandma. I can still see them pouring over the paper files and counting money in the antique cash register. It’s the one place I remember them all being together busy and productive.
I was pouring over these thoughts as I got closer to the scene. Roads were blocked, sirens blared and I was the only one from my family that was there. My parents were up north opening the cabin for the season. My brothers and I should’ve been there but even that is changing because of the conflict with my dad. The times at the cabin together as a family might have come to an end too. After not speaking to my dad for 5 months, I called him late that night to tell him the old family business was on fire.
I stood on the side street for over an hour and a half watching the orange glow as fire trucks steadily poured in and out. I talked to the only person watching with me, a stranger. At 1 AM, I told the stranger I was going home which wasn’t exactly true unless you consider home my parents house. I had to go to the bathroom really bad by this point.
My parents locked their house before leaving but they always have a spare key in the closet if you can find it. My parents could be considered hoarders. Their closet had 4 levels of tightly packed shelves of odds and ends. I found two keys, but they didn’t fit. I searched my purse hoping that I still had a spare but the keys I had didn’t fit so I left them. Finally I found the right key in the closest and let myself in.
I wasn’t ready to leave yet. I had to get closer to the flames. It was drawing me in like a June bug. I left my car in my parents driveway and decided to take the trail into town the back way. It was very dark and I felt anxious running down the road and trail by myself in the middle of the night. But I shown no light since I didn’t want to be seen. I was a little afraid of bypassing the police cars and sneaking in the back way. I was afraid of night animals but I figured the fire probably already scared them away. I ran without seeing what was ahead of me fighting my fear.
I couldn’t see the fire any better than before. There were trees in the way. I didn’t want to get any closer because there were many people there fighting the fire. There was another man leaving the area from the back way. I was afraid because I was alone and vulnerable, but the man meant me no harm.
I got home late that night. After a couple hours of sleep I awoke and went back for more. My parents came home early the following morning and found themselves locked out of the house. In my panic, I left the house keys in the bathroom and my own set outside the door. When I’m really stressed my mind stops processing the details which I so obsess over in normal times. I find it bizarre that the strongest part of my brain just quits working.
The building may have burned to the ground, but the memories of my family working together will always live on in my mind.
I never heard my mom cry like that before. It was the deep howling sorrow that was saved for behind closed doors. I could almost peak out the window she was staring out of if I stood on my tiptoes. The night sky a glowing orange haze in a hue I never saw outside before. Together we watched her childhood home burn down.
I went with my mom once to see her old house the year before when I was 3. I’m not sure how I remember it. Strong emotions of my mother typically elicited sparks of memories in me. There was a long dark inside staircase that went upstairs to the main floor of the house. There was a bright average sized kitchen with a window above the sink that I could imagine her mother standing at with her back to me. I never saw my grandmother’s face before but I was told my mother looked just like her.
We had to walk up one step to go into the living room from the kitchen. I found that rather strange. I saw the bedroom my mom shared with her sister Jan. It looked as small as a closet. I imagined my mother playing in that room with her one doll. Mom always said that Aunt Jan was messy and my mom was the clean one. They seemed to have switched roles. Aunt Jan never entertains because people get her house dirty. My mom never has people over because she is embarrassed by her clutter and hoarding.
I wonder now if she imagined her mother was still alive inside of that house cooking supper, washing dishes, or just living a normal life every time she used to walk by. That was the only house she remembered her mother living in. Her mother died and her family moved far away, but she remained in that small town.
My mom more often than not on nice days took us for walks by her old childhood home. Every day the memory of her mother was still alive inside of that house. I’m sure she thought of that when she took us on walks to visit her husband’s mother.
Until one day the house burned down and even those memories faded away. She couldn’t imagine her mother happy inside the house when the house was no longer there. It was almost like she lost her mother again.
- Just like that it went from winter to summer in Wisconsin. My favorite season is finally here!! This week we finally got green leaves on our trees. We took the cover off our pool.
- I trimmed down the list of people I’m following. I no longer follow people simply because they follow me like I used to. I’m following blogs I am interested in. The whole process was very glitchy so it is possible I may have accidentally unfollowed someone. I also axed some people that I genuinely liked because they haven’t blogged in several months or years. It felt good like I was cleaning. A big shout out to long time bloggers. I am grateful that you stuck it out.
- Coronavirus be damned, I hugged and cried with a complete stranger. As I mentioned yesterday, over the weekend a historical building once owned by my family burned down. I cried with the new owner who felt horrible because their intent was to restore the building and preserve its history. Also, because of it, I was able to see and hug my mom which with her terror over the virus I questioned if it would happen again anytime soon. I am grateful that we don’t have to deal with the devastation of a fire. The destruction and loss was overwhelming. I can’t imagine what they will have to go through. I am also grateful that no one was injured or died as a result of the fire.
- Paul got his first customer in his new business venture.
- I am slowly starting to feel a little better. By no means close to 100%, but if I had to live this way the rest of my life I could.
- On this Memorial Day, I am thankful for our wonderful veterans who sacrificed all.
- I am grateful for the ability to survive traumatic experiences.
- I am thankful for Paul. Even though things have been difficult lately, I know he has my back and I his.
- Taking the winter quilt off the bed, turning off the heat, and opening the windows.
- Estelle and I bought some orangish brown paint for the shed in the backyard. It is nice to have a project we can do together and something to remember her by once she goes home when I look at it.
By the end of last year, my life started to crumble apart. I was dealing with some serious issues with my dad. I reached out to God. Please God, if you are there, show me that you love me. Trust hasn’t always been my strong suit. But what I was asking for didn’t seem like much.
In February, someone I am very close to attempted suicide. Do you know the pain of feeling that one morning you might wake up and your loved one is no longer there? It’s pure hell. I stopped sleeping and battled insomnia for over a month with nightmares. Maybe if I was always vigilant, maybe if I didn’t sleep, than nothing bad would happen come morning.
In March, someone I knew decided to quit battling kidney disease. He died and we weren’t allowed to go to his funeral because this new virus was sweeping the nation. Later that month, we were planning on driving down to Florida to show our 2 foreign exchange students our country. The week we were leaving Disney World closed and we had to cancel our trip.
It was not the only trip that was cancelled. My mom, daughter Arabella, and I were planning on going on a school related music trip to Europe this summer. The company cancelled the trip and kept $1900 per person to line their pockets. The money they kept for all three of us was like one person went on the trip that didn’t.
We decided that our daughter Arabella could no longer be a foreign exchange student next year not only from coronavirus. When we sold our company, we took some of the profit as private equity stock in their business. We were supposed to get enough money to live on for the next couple of years the first quarter of 2020. We were going to use this to jump start a new business. It never happened and now we don’t know if and when it will happen.
Our financial security is gone. With the virus and the economy, it is a struggle to start a new business.
The schools shut down. Prom was cancelled. The track season that just started was cancelled. The musical postponed. My college daughter’s recital and later graduation was cancelled. The gym closed. I struggled to get a good workout because winter held on to the middle of May.
In April, one of our foreign exchange students decided to go home. It was during that time that I started taking an antibiotic prescribed by the wellness clinic which says a lot since they mainly treat with herbs and supplements. Ten days after the last dose, my body crashed. I was sick running to the bathroom 20 to 30 times a day, day and night for 10 days. I thought I was going to die. I pleaded with God to let me die. After being poked and prodded by several doctors and a colonoscopy later, I was diagnosed with colitis and sent on my way.
After the flare up, I was left with a hollow shell of a body. I am weak. I had to give up running. I am still sick. I can’t eat. I watch as my family members eat my favorite foods. In the last week alone I lost almost 10 pounds.
Meanwhile my daughter Arabella is packing back on all of the weight she worked so hard to lose. She went from an honor student pre-coronavirus to barely passing. I’m not sure she is going to pass all of her classes. I can’t blame her for feeling depressed since everything she was looking forward to is now gone.
Then I heard the news that the family business my great-grandparents built over 100 years ago burned to the ground. Although no longer owned by my family, a lot of my good childhood memories are tied to the building and my family that worked in it who are also gone. It was painful to see something they lovingly built destroyed.
There are things that happened this past year that I can’t even talk about yet. Somethings I will probably never share. It’s not even June yet. I’m not even sure if there is a God anymore. But if there is, right now I feel pretty certain that he doesn’t give two hoots about me. Or is God just taking the things I have away to show me what I already have been given?
What is love? Is it giving or taking away? Or is a mixture of both necessary for growth like sunshine and rain?
Okay, okay enough complaining for today. Tomorrow gratitude…
I wonder if wedding vows still espouse the traditional in sickness and in health. It’s been awhile since I went to a wedding, my own being almost 23 years ago. When I think of someone getting married, I think about young and healthy couples who probably don’t think that their love could battle health issues that might mess up their future dreams.
And the two shall become one. But what happens if one is sick? I’ve been thinking about that a lot lately since I haven’t been well.
Currently I am drinking 15 liquid elixir shots and popping 21 pills a day of supplements. I’m getting sick of it. I still don’t feel well. I am now trying to eat two small meals a day. My stomach hurts if I get too hungry and it pretty much always hurts after I eat. It’s a delicate dance.
Over the weekend I ate only bone broth. It is disgusting. I watched as my family ate pizza, hamburgers, birthday cake, chips with nacho cheese, and ice cream. It was hard to watch especially since my bone broth didn’t make me feel much better. I got very weak. The last thing I wanted to do was clean the kitchen up after they feasted which is a chore that mainly I do. Thankfully I didn’t have to.
Sometimes they feel bad for me. I get barraged everyday by well meaning loved ones with an are you feeling better yet. Sometimes they feel guilty for eating my favorite foods which I cannot have in front of me. Sometimes they care more about themselves.
Yesterday my husband went for a run and was apologetic to me. I didn’t enjoy running, I’m only doing it for my health. I feel horrible they are apologizing to me for doing the things they normally do. It makes me feel bad. But their normal behaviors are tormenting me because I can’t do it anymore. I think it is wrong for me to be upset about that. But it does upset me.
Oh, and another thing since I’m being totally honest here. It is hard to live with three teenagers in the house. The other day my daughter Arabella was eating cookie dough for breakfast at noon. My husband confronted her telling her she needed to eat something healthy. It was the right thing for him to do. Since then she has been angry at us and is once again slipping behind on her homework. I can foresee a lot of problems and confrontation with her in the near future.
Stress tends to make me feel worse. I have zero tolerance for stress right now which sucks because I see no end to that in sight.
Other than not feeling healthy, my mental health has been a struggle too. I used to cope with anxiety by running and keeping busy. Now I sit around and worry. I’m depressed because I don’t feel like I am accomplishing much. My husband gets irritated sometimes that he has to pull more of the weight since I’ve been sick. I don’t like it anymore than he does. It’s not like I’m trying to deliberately get out of doing my fair share. I’ve never been much of a slacker. No one in this house understands what it feels like.
I’ve been depressed because I don’t want to spend the rest of my life feeling this way. Now I think I understand why in sickness and in health are a part of the wedding vows. Will I still be loved if I am no longer the person I used to be?
For better or for worse, for richer and poorer, in sickness and in health…If you stay with someone long enough, you pretty much see it all.
I got some bad news today.
My brother Luke was diagnosed with kidney disease. It is irreversible. He is not to the point of dialysis and hopefully if he keeps on a strict diet it will not progress further.
How could something like this happen? My brother is a health nut. Why??
Apparently all it took was being very sick, taking too much OTC pain reliever, and becoming dehydrated to lose over half of his kidney function. Without a family history of kidney problems, the doctor could offer no other possible causes. Who would’ve guessed something like this could happen to someone young and healthy? Did lifelong intense stress weaken his kidneys?
Today when I found out about my brother I felt a lot of anxiety. But the strange thing is that I felt anxiety about something else. The first thing I did was worry about the garbage. Today is garbage day and I had this irrational fear that I threw out my son’s wallet when I grabbed the garbage out of his bathroom. Totally crazy!
Then I started to feel anger. Why would God allow this to happen to my brother! Then I felt sadness. I almost cried when I thought what it would be like to watch my baby brother die. What about his family? Life is just not fair. Why do bad things happen to good people? Why do healthy people get sick?
Life, it’s taking the cards you have been dealt and playing your best game. It’s lifelong growing, building, and change. It’s not guaranteed to be pain free, but if you give it your best shot it’s worth it. Time is short and I want to look back satisfied that I did the best I could. I did not give up when things got rough, instead I tried harder.
I want a rock solid marriage. That is something else worth fighting for. Someday I might have to ask him if he loves me enough to donate a kidney. They are the same blood type if that matters, whereas the rest of us are not.
This post was originally written back in November. It was one of the drafts I saved because I was not ready to accept this much less post it. It’s hard to think of my brother as sick. Who knew that in a few months I would follow him down the path of illness. I feel bad because his life has been very difficult. It’s not fair. I wanted so much more for him.
I’ve been struggling a lot lately, so at this point having a weekly gratitude list is probably more important. I have to remind myself of the good things that are happening in my life.
The wellness nurse put me on a liquid diet over the weekend to try to calm my gut. I lost 7 lbs over the weekend. I haven’t been feeling well and I’ve been weak and tired to boot. It takes the energy of a 5k just for me to put the clothes from the washer into the dryer. Sometimes I have to take a rest after doing nothing.
This past weekend I packed up all of my running gear and put it in another room. It’s a painful reminder of what I cannot do. I haven’t cancelled the 50k I was planning on doing with my cousin late summer. Maybe, a miracle…
It’s been hard because I’ve always been a go go go person, type A all the way. I’ve really been trying to hide from the world how sick I am. It’s been pretty easy to do with this virus. I want people to remember me as strong and healthy. I feel so discouraged because what I once was no longer is.
To make matters worse, the weather hasn’t been cooperating here in Wisconsin. We had snow flurries on Mother’s Day and record low temps this past week. Since yesterday it has been very cold with temps struggling to reach 50 degrees. It’s also been very windy and by the end of the day we are supposed to have a total of 3 inches of rainfall from the last couple days of rain. Everything is flooded. The weather guy keeps saying every week since the beginning of April that the following week will be nice but it never is. I really hope that the weather makes my gratitude list next week.
Here is my list for this week:
- My daughter Angel made a surprise visit home this past weekend. She hasn’t been home in over two months. It was very comforting to have her around when I wasn’t feeling well.
- My baby Arabella turned 17 this past weekend. She ended up having a nicer day than she thought she would.
- Since Angel got a nice job, she decided to lease a vehicle and gave us back our old car for Arabella. Although the car is older than she is, Arabella now has a car. It was nice to see her all excited about it and take the time to vacuum and care for it. Now Arabella doesn’t have to borrow my car for school or work. I will not have to drop her off or pick her up anymore which will be less stress on me.
- Today I can eat something besides bone broth. Yeah!
- I talked to Paul’s friend who has colitis and got a lot of advice from him. It does feel good to know I am not alone in this despite the fact I wouldn’t wish this on anyone.
- I had good appointments with the wellness nurse, counselor, and mentor this past week. I am making progress on my healing although at times it doesn’t feel like it.
- Estelle found her lost Nintendo Switch. I was very worried once it went missing that it was stolen.
- I got my new t-shirt in the mail.
- Paul put our sailboat in the water last week. With all of the wind and rain it hasn’t been sunk, damaged, destroyed, or cast away yet.
- My aunt tested negative for Covid. Yeah, it’s only pneumonia! Seriously though, my uncle has lung issues and they were around other older family members with health issues. So it is a good thing. I was worried that the coronavirus might wipe out several of my family members.
It’s funny but one of the things I miss most is not wearing lip gloss. Shiny sparkly lips covered by a mask is not possible anymore. It’s messy and it smears.
Life is like that sometimes, messy.
I don’t even want to leave the house anymore. The last time you saw me I was beautiful and strong. Since then I’ve let my hair go gray. My strength left behind me with my last run at the gym before its doors closed along with my youthful blonde locks.
I’m ashamed of myself. I’ve tried to put myself back out there but I’ve been much too weak to run. Perhaps it’s over. I’ve had to let myself go. Instead of outrunning I’ve been overrun.
Do you know how much work it takes to run a 50k? Or maybe a marathon? I used to be a great runner. But now I can barely walk a couple miles without feeling winded. How will I get it back? Everything I built gone in one swift blow to my health. I just can’t seem to do it anymore. Maybe my toned athletic body will turn into a blob of sludge.
I will never be what I was.
I’m mourning the loss of me. Aren’t I too old to have to find myself again?
Or is that just a part of life? Do we ever realize ahead of time when things are ending or even beginning?
Is this the end? I don’t know anymore.
If I had known it was going to be over, I would’ve enjoyed it more. I would’ve held on longer before it slipped through my hands.
But isn’t that what we always tell ourselves when we realize we just said our last good-bye? The guilt of not making the most out of our last time never seems to leave. I would’ve tried harder.
I have to let it go if it is truly over…but right now it hurts to even think it might be.
- It’s hard to believe that our foreign exchange student Clara has been gone over a month already. This past week we were able to have a conversation over Instagram. It was so nice to see her again.
- My daughter graduated from college with a Bachelor’s degree over the weekend. I am grateful she was able to get a job in her degree field. I am happy she is doing great on her own.
- I’m thankful for technology to be able to watch our daughter’s graduation. The graduation was held on zoom. Apparently family members were supposed to be watching it on live stream. We weren’t. When all of the graduates were on the screen in cap and gown moving their tassels, Paul and I appeared on the screen taking pictures of our daughter with our cell phones. Angel was smiling so widely, I thought she was so happy and proud. But she was really laughing at us for bombing her graduation. I was mortified about it when I found out, but she said it made her day since we couldn’t be together for it. Thankfully I wasn’t watching in my pajamas.
- I was feeling bummed out on Mother’s Day. Not only was it cold and snowing (yes snowing!!!!) but I wasn’t able to have my mom over to celebrate this year. My daughter Angel was also not home. My husband Paul went out of his way to make it a really nice day for me.
- Angel had flowers delivered to me for Mother’s Day. Plus the church dropped off a flower for me too. It was cool to go outside and see flowers delivered to me unexpectedly.
- My kids remembered Mother’s Day and I was able to spend several hours talking to each of my kids over the last couple days. I feel like we are getting along really well at this time. I am grateful for peace within my family. That is very important to me.
- Since I was not able to see my mom for Mother’s Day, I bought her flowers, a card, and a big bag of popcorn. Early that morning, I snuck over to her house and left her gifts outside her front door to surprise her. It was an adventure to try to get everything to her without being caught. It made her very happy. She wasn’t expecting anything and said she was going to decorate her house with all of her previous Mother’s Day cards. She wasn’t forgotten.
- I have a great counselor. She wants to follow my blog. I think I will let her. I hesitate telling people about my blog. I’ve had friends want to follow me before but never told them how to. It is very difficult to put myself out there and be personal especially with people I know. I think she truly cares and wants to help me. I’m grateful to be able to trust a few good people in my life. I am grateful for healing however long it might take. I’m thankful to have a place to share my story.
- I am meeting with my wellness nurse tomorrow and hopefully she will have some answers for me about my health. I’m still not feeling the greatest and hopefully she will be able to give me some insight on what to do next.
- We had more deer in our yard this past week really close to our house. I found out that deer eat weeds. They ate some of the dandelions in our yard and started munching on my weed pile. Yeah! I have some help weeding this year.