Author: Outrunning my demons

What is coming next

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I want to start blogging more again. Maybe I can try for once a week. I realized today I have been blogging almost ten years. It takes some form of dedication or insanity to continue that long. One of the hardest parts for me is finding people I connect really well with and then they are gone. Maybe their blogging experience is only temporary. Sometimes bloggers pass away. That component is harder for me then finding things to write about.

This past week has been difficult/emotional in different ways. The job search has lead to several dead ends. I was selected for the lucrative job I took the proctored exam for. However, I am sitting in limbo. It’s been over a month since I applied. When I reached out, I was sent a form letter stating that I am in a pool of applicants and if/when they need me they will reach out. My test results will be on file for two years and if I don’t hear anything by then I am welcome to reapply. But I am looking for a job now.

A friend told me over the weekend that she knows someone who works for the job I am waiting on. She said for the first 6 months they had to work 3rd shift until there was an opening in 1st shift. I am not willing to work 3rd shift, been there done that and don’t ever want to do that again. I would be willing to work those hours once in a while but not often. I AM, however, willing to work day shift (early morning is fine), 2nd shift, weekends, and holidays. I don’t want to work a regular Monday through Friday 9 to 5 job either. I just don’t think it would be possible for me at where I am in my life right now.

As of this last week, I am now the successor guardian for my brother Matt. However, I am not going to do everything the same way my mom did. I am not going to cater to his every whim. This is going to be an adjustment period for all of us and I am going to be pulling off the band-aid. At first I felt a tremendous amount of guilt for doing things my way, the way I think will be the best for Matt. But I had to remind myself that I have taken on the responsibility to be responsible for my brother for the rest of his life or mine. I never signed up for this. I don’t want to have a brother with a disability. But I was willing to take it on even though it was not in my best interest. There are going to be a lot of things I have to learn.

This past week my mom had her neuropsychological evaluation we waited 5 months for. We will be getting the results this week. My brother Luke went with my mom and I to the appointment which lasted 4 hours. We had around an hour to talk to the doctor about our concerns without our mom in the room. I think we were listened to and adequately described the situation. The last few months my mom’s dementia has gotten worse and she reached a new level of raw unfiltered obsessiveness and self-focus. I think she may have more than one personality disorder on top of whatever dementia she is facing. Spending time with my mom is very difficult. I have to limit it to once a week for my own mental health. I had horrible nightmares the evening of her appointment.

This is why I can’t look for a 9 to 5 job. I have several appointments during the month during the day for my mom, daughter, and will for my brother Matt as well. Also, I would like to continue volunteering for several organizations during work hours. My husband and I just finished facilitating an 8 week family class through NAMI this week. We had the opportunity to guide ten other people who are new to mental health struggles with family members. It was great to use my experiences to help other people. We had such a great group and I am sad to see the class is over.

Every week I am looking forward to several opportunities to de-stress. This week I am planning on going to trivia night with friends. The first time we did it, we won second place. This will be the second time. After taking two months off to teach the class, I had to take a hiatus from stand up comedy. I will be doing stand up comedy this week. This weekend my son’s band will be playing so I am looking forward to going with friends and family to watch them perform.

I am also planning on finishing the third edition of my memoir this week. Last year I was planning on ending it but so much more has happened to write about. I feel like I finally found a good place to stop the story. My plan is to have it completely finished by April 11, which would’ve been my grandma’s 100th birthday. Even though she has passed many many years ago, I want to celebrate her day and the life she has given to me. Without her influence in my life, I don’t know where I would be.

Other than that, my husband and kids are doing well. It’s great they are all in a good place right now. I feel like I am at a crossroads of sort. It is a very uncertain and anxious time, yet on the other side of the same coin is a sense of anticipation and excitement for what is to come next. I might take some classes and go a whole different career route. Who knows at this point? I think I should have a lot of answers this week.

February update

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I passed the proctored exam I needed to take to get to the next step of the hiring process.

It wasn’t an easy test and I was nervous about passing it. Starting a new career at 50 can be intimidating. Everything is so different now. I have yet to talk to an actual person about the position. Even taking the test was a whole new experience for me. The last time I took an important test was on paper with a number 2 pencil. I didn’t have a cell phone to lock up. I didn’t have to lift up my hair to show I wasn’t hiding any devices to cheat with. They even measured my wedding ring because if it was larger than a certain size, it would have to be removed.

I left the test site feeling out of touch. Most test takers were half my age. I had overdressed while the other test takers were wearing comfy clothes like oversized sweaters and jogging pants. My confidence dipped. Although I have a plethora of life experiences, I am not young and fresh with all the latest technology. But I have other things to offer. I keep telling myself that. It has been a month since I applied and I am still waiting. It’s been a week and a half since I filled out the background and credit check paperwork. I have no worries about that, but my patience is running thin as I check my email several times a day to see if I hear anything.

I just turned in all the paperwork to be my brother’s successor guardian. My mom’s functioning has continued to decline rather rapidly. She no longer makes a lot of sense when I talk to her. She has been forgetting to pay some of my brother’s bills on time. A week ago, Matt received a disconnect notice if his bills weren’t paid for his portion of the group home. It’s been stressful as my mom has been handling all of Matt’s finances and I don’t have any intentions of doing so. I would like to be more hands off. Matt’s roommates in the group home have a payee set up through the county and receive transportation for appointments. I would like to do that. He doesn’t live close by and with going back to work, I won’t be able to do everything.

Thankfully my mom has her neuropsychological evaluation next week. We have been waiting for months for this appointment. I wonder if there is still time for her to get treatment that would help her or if her dementia is too far advanced.

Meanwhile, Angel moved out to the east coast for the next couple months to be with her husband who is working there. Thankfully she is able to work remotely. They bought a camper to travel in for work. It’s an exciting adventure for them.

Alex got involved with a new band and he will be touring the west coast for a couple weeks this summer. He is planning on starting up a music studio and moving out. I wish I could travel coast to coast with my kids on their adventures. But it is not going to work out. That’s okay though. This is their time.

Arabella had her doctor appointment last week and she is on the road to recovery. She is still having some side effects from her meds, but continues not to suffer from symptoms of schizoaffective disorder. She still has her job and boyfriend. Life for her has been stable and that is all we are hoping for right now.

It has been very cold and snowy here as of late. I am ready for winter to end.

Blue Monday

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Apparently I forgot to cancel the trial and tribulations subscription in time for the new year. It’s been a rough start and I am feeling frustrated.

Some of it is the little things. This past weekend my son was performing with his band. As I was scooting my chair closer to the bar, I smashed my finger. I didn’t realize as I was pulling it in that the seat separated from the base. I sat down on my finger trapping it between the chair and the base with my body weight. Man did that hurt! My finger swelled up and was bleeding from under the nail. It still hurts a little and my finger is bruised under the nail, so I’m hoping I don’t lose my nail.

Or we can talk about today. Today I found a worm on my cat’s backside. I had to give both cats, under protest, de-wormer and deep clean their cat boxes. As I was cleaning, dirty litter box water splashed on my face. Fun times! As I was taking the dirty litter out to the garbage, the bag broke spilling dirty litter all over our walkway. I had to clean this up so the dogs wouldn’t get into it outside while the temperature was twenty below zero.

Then there are the bigger things. Like our investment falling through, from when we sold our business, that we were planning on living on the next couple years. Now I have to go back to work full-time. All the things I have been planning had to be cancelled, like our road trip out to Virginia to see Angel and Dan who will be living out there for the next couple of months. I applied for a job over the weekend. I think I have a good chance of getting it. I will need to pass a proctored exam to see if I will qualify. That was even a big process because I had to update my resume and all the stuff that goes into looking for a job. I will also need to pass a physical as the job is very active. Against medical advice I started running again.

The other big thing is that my mom’s health is deteriorating rapidly. It has become apparent that I need to take over guardianship of my brother Matt. That is not as easy as it would seem. I had to take an online class and fill out a whole bunch of complicated paperwork. At first, my mom refused to sign the paperwork to resign as guardian. She doesn’t think anything is wrong with her. She is trying to hide her dementia.

My brother Luke came home to try to figure out my parents finances. They have several accounts that are an absolute mess and haven’t been balanced in years. My mom is refusing help with her finances. Finally on Friday my mom signed the guardianship resignation letter. Luke and I went with my mom to pick up Matt from his group home. Then we stopped at the grocery store which was insanely busy. Luke and I were trying to help my mom shop with Matt. If you can imagine what it is like taking someone who has dementia and is confused along with someone with intellectual and mental illness. Neither have any awareness of other people. Matt almost bumped into someone. I had to pull him out of the way. Luke and I were very stressed out. I almost started crying in the store. But everyone was very nice and looked upon us with pity.

I have an appointment later in the week to meet up with someone from the county to see if my parents qualify for meals and in home care. I’m still in the middle of the whole guardianship paperwork process. That is also going to be intensive with the financial reporting, needing to meet with doctors and the case manager. My brother lives 40 minutes away so it is going to take a lot of time on my part to get everything set up.

Not to mention doctor appointments with my own daughter. Arabella is doing well on her new medication, but it is causing her to gain a lot of weight. At the last appointment, she gained 13 lbs in 6 weeks, so I’m not sure if she is going to go through another med change.

I have a feeling it’s going to be a long year.

almost to the end

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Over the weekend, we hosted a Christmas party with my mom, my siblings, and our families. We also attended a Christmas party with my mom’s extended family. There has been no hiding that my mom’s dementia is getting worse. She no longer recognized her brother-in-law, someone she knew since she was a teenager.

After the first Christmas party, my siblings and I had a meeting to discuss the current situation of our parents. Then we spoke to our parents about some of the things we discussed. I was very stressed out before the meeting. Thankfully my brothers and I are in agreement about how things should be handled. The biggest problem is that our parents are not in agreement with us.

My parents should not be driving. I’ve received several calls about my mom’s driving. She got into a car accident this year causing an injury to another person. Her friend told me she pulled out in front of someone without looking first and her friend came close to being killed. She also drove across her friend’s lawn and face planted her car into the ditch instead of using the driveway. When my brother asked her about her driving, she told us that she was a good driver. My dad can barely walk and doesn’t see well. They refused to stop driving or look into options such as assisted living.

The only thing they said they were willing to do was give me guardianship of my disabled brother Matt. Honestly, I don’t really want to do it. But I don’t feel like I have much of a choice. I told my brothers I was not going to baby Matt or give him special treatment which he is used to receiving from our mother.

I can’t stand even being at my parents house because the level of dysfunction and chaos is almost more than I can handle.

It’s hard not having any sense of control and just stand by waiting for something bad to happen before any changes are made. But I’ve been through this before recently when my daughter started developing a serious mental illness. When someone is an adult, it’s nearly impossible to intervene on their behalf if they don’t want your help.

Despite the stressful meeting, the holiday parties went really well. Everyone was for the most part nice and respectful. With the exception of a couple days, I’ve been in good spirits. I joked around and laughed a lot with my family when others around seemed to be rather down with all the bad news. Maybe it’s because I don’t care as much anymore about the things I can’t control, which is freeing. Maybe I’ve gotten used to living with suffering all around me and I’ve become desensitized. Or maybe it’s because I’m medicated. Life is just too short to take seriously all the time.

The most wonderful time of the year?

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It’s the most wonderful time of the year, or is it?

Just like everyone else, I’m getting into the hustle and bustle of the busiest time of year. I’m hosting 4 parties over the holiday season. I don’t really mind the decorating, the cleaning, set up, take down, or cooking all that much. As much of a planner and how organized I am, sometimes I don’t want to do all the planning. I don’t enjoy the menu planning anymore. It’s a ton of work trying to keep in mind everyone’s dietary restrictions and preferences.

Overall, Thanksgiving went well. But try as I might, I couldn’t get the menu right. Several people are gluten and dairy free. I tried to improvise by using dairy free butter and almond milk for the mashed potatoes versus regular butter and milk. But I found out that several people were almond free too. I had to set aside some plain potatoes for my brother Matt. My mom was constantly reminding me to set some aside for him. I was so annoyed as I had several foods I was preparing at once. She wanted me to mash his separately. I made sure at least one turkey was gluten free, as I had a regular and a smoked. Then I found out Paul’s step-dad’s fiancée couldn’t have turkey. Thankfully she brought some of her own food along to make it easier. But she ate something my mom brought which wasn’t GF and my mom didn’t tell her until she was almost done eating it.

The holidays are difficult in other ways. To me it’s a constant reminder of broken relationships and dysfunctional family members. This year my oldest two kids are not on speaking terms which is hard on me. There is a lot of strife with other family members. My dad is not a part of things because he is a horrible person. I think we all just do our best to tolerate each other which is not how family should be.

My mom’s cognitive functioning has greatly declined. Thankfully I have an appointment in the books for the end of February to see what is going on. It took months on the waiting list just to be able to schedule the appointment. I’m hoping she can hang on until then. I’ve been getting concerned calls from family and friends of my mom. My mom’s friend told me my mom went in the ditch at her house. As she was leaving, she drove across the lawn and into a deep ditch. She also said my mom didn’t even look before pulling out from a stop sign in front of somebody and they almost got hit. She said my mom was no longer a safe driver. She also said my mom needed to stop babying my disabled brother and my dad needed to get off the couch. The last two have been issues since I can remember.

I am hoping to sit down with my brothers over Christmas to discuss the care of our parents and disabled brother. I don’t want to be the only one making these calls and having all the responsibilities. I’m sure they would be willing to help, but they live further away and we don’t see each other often.

Other than that, I have most of my shopping done. My husband, our kids, and their significant others all made Amazon lists which made things really easy. So far everything went good with Arabella’s boyfriend meeting the family. By the end of the year, he will have met pretty much everyone. It’s so awkward to start dating someone right before the holidays. We like him, and he is absolutely crazy about Arabella. She is going through some major medication changes and she is responding well. Earlier in the year, I never would’ve guessed we would be at the point we are at today.

It will be interesting to see what the new year brings.

November happenings

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It’s hard to believe November is half over already. Soon we’ll be entering the holiday season and just like that another year will slip away.

Change seems to be the only thing that is consistent in my life.

Angel and Dan just bought a camper. Soon Dan’s job will be taking him to the East coast for half a year. Angel will be joining him and working remotely out of the camper. It’s going to be very strange without them living 20 minutes away. I’m going to miss them so much, but what a grand adventure.

Alex joined another band, a bigger name band that just released an album, and is possibly touring the West coast next summer. We went to see his band and for the first time we had to pay to watch him perform. The venue was crowded. It’s exciting to see where this new adventure might take him as well.

Arabella’s medication change is working out well for her. She is less like a zombie and more like the person we knew before. She is putting herself out there more and just recently started dating someone new. We met her new boyfriend already and so far so good.

My mom’s memory issues are getting worse and I was finally able to get her set up for a neuropsych eval for the end of February. I have been making a lot of phone calls lately regarding my mom and I’m hoping she can stumble along until then. I’m hoping to talk to my brothers over the holidays and come up with a plan. I don’t want to get stuck managing the care for both of my parents and disabled brother by myself.

Sometimes when life is hard, you just need to have a good laugh about it. One of my bucket list items is to do stand up comedy. I’ve been up on the stage for open mic several times now and it’s been so much fun. You’re never too old to try something new. I foresee a lot of adventures in the upcoming year!

Old friends

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I’m happy to say within the last week I was able to visit with all my old friends. All three of them (Vince, Harv, and Kate) are in their 90’s. I have been worried about them as of late. The last time Paul and I tried to call them, they didn’t answer, and they didn’t call back. At times, I stalked their accounts and googled their names just to check they weren’t in the obituaries.

Last week I came home to find Vince at my house talking to Paul and Arabella. I haven’t seen or heard from him in over 6 months. I saw Harv and Kate at a banquet over the weekend. I can’t remember the last time I saw them either. Kate had hip surgery a few months back and they ended up moving into a nursing home. Harv views Paul as the son he never had, and Paul would’ve been happy to have Harv as his dad. I think Paul and I both would’ve been proud to call them our parents. You can choose your friends but not your family. But what happens if you and your parents are mismatched? Sometimes the right people, your tribe, end up finding you.

Our friends in their 90’s are adventurous and fun loving people. Being in their 90’s, although it has slowed them down, hasn’t stopped them from living life to the fullest. They have a harder time hearing, seeing, and getting around. But nothing stops them. I wonder what they were like when they were younger. If I live another 40 years, I aspire to be like them.

My daughter’s first marathon

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Just a follow up from a couple weeks ago, my daughter Angel finished her first marathon. She did an amazing job and I’m proud of her. I am joyful that she achieved her goal.

I experienced a wide array of emotions on marathon day. First of all, pride. Angel was training for the big day for months. She was very disciplined and serious about her training, at times turning down fun activities that interfered with her training schedule. She avoided all alcohol. She counted calories; making sure she was eating enough which properly fueled her body and gave her strength. She thinks that is where I went wrong when I was training. I ate when I was hungry and didn’t eat when I wasn’t.

I felt a lot of anxiety for her during the training process. I feared injury, but mainly I feared she would be victimized as a beautiful young woman running alone on long, lonely trails and through sketchy neighborhoods. I feared she could be hit by careless drivers which almost happened to both her and me.

I felt relief in the dream lived. I already completed multiple marathons and finished that goal. It was not something I always wanted to do but never achieved. I have no regrets except that that part of my life is over.

I felt sadness, especially when I saw mothers and daughters crossing the finish line together. I wanted to be that mom. I wanted that to be us. Angel and I did run a few of the same races. She was just beginning as I was coming to an end.

I felt envious of all the support she received from family and friends. Most of the time, and for my first marathon, my only spectator was my husband. He was an amazing support person. Some of Angel’s friends drove for hours to see her cross the finish line. It’s a reminder of what I didn’t have. I never received the support of my parents, although I used that to be the parent I always wanted for my children. It’s a part of giving what you don’t have, but knowing what you would’ve wanted to create something wonderful out of nothing worth passing down to the next generation.

I miss feeling young, strong, and important. I received a lot of attention for my accomplishments. Now I’m just a has been with a collection of medals hanging on the wall. It shows where I was and where I now am. I’ve come to accept that and have moved on to new dreams and goals.

I feel satisfaction that my daughter decided to follow in my footsteps. She finished her first marathon in her 20’s whereas I was in my 40’s. I am excited to see where she will go with this. It’s exciting to be a part of what inspired her. In some ways, through her, I am still experiencing it. Being a spectator is more difficult than I expected. The path of a participant is clearly marked. But as a spectator, it is not clear about where to go or when they will be there. The tracking app was not working for the marathon so we had to wing it. Then there were closed roads down unfamiliar streets. Marathon traffic. Finding a place to park. An inability to find bathrooms or food/drinks. Long walks carrying lawn chairs.

I miss the lifestyle and comradery of the running community. I miss the friendships strengthened and formed over a common passion. Those were the best years of my life. Overall, I’m happy my daughter decided to choose the same path I did. She is able to carry on some of the goodness in me.

Breaking up

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It happened on Saturday night a few minutes before the band went up to play. Having another commitment, I didn’t show up until the band was halfway through playing. My son played magnificently, better than I’ve ever heard him play. Afterwards, I told Alex to do whatever he did differently every time because he did an amazing job.

He said funny I should say that because right before the band started playing, his friend called to say he saw his girlfriend with another guy. Lexi ran off to the bathroom when she was caught while Alex’s friend talked to the guy. Apparently Lexi has been going out with this other guy for 4 months. We were shocked. Alex and Lexi were together over three years. She was like a part of our family, and one of Arabella’s best friends.

My son was upset over the betrayal and wanted to smash all her things. Thankfully a friend stayed with him that evening to talk him out of doing anything rash. Sunday night Alex texted to say Lexi was over to pick up her things if we wanted to say good-bye. I went over first and told Paul he should be there to make sure everything was alright. Alex was filled with rage and was screaming at Lexi. For the most part, Lexi was quiet and didn’t look at us. Sometimes she cried or yelled back. It was the worst break up we witnessed. I tried to stay out of the fighting. I didn’t want anyone to get hurt, but it was a little too late for that.

Lexi threw most of her things in garbage bags. Outside the drought had ended in a pouring rain. It was a blustery evening, a reflection of our emotions. Arabella came over after work, and I cautioned her that although she wanted to say bye it might not be the best thing for her. But she wanted to anyway. My stress level was through the roof. We were all in a state of sadness, grief, anger, shock, and anxiety. Arabella was crying. The fighting seemed like it would never end.

But then it did end as Lexi packed everything that was hers in her vehicle and drove away. I thought maybe she was the one. But that dream is gone and there is just an emptiness in the space she once occupied in our hearts. Arabella has been crying every day. She was a friend, a best friend who painted with her and went to the movies together. I worry about her. The day before everything happened she started going through another medication change.

Alex has been unreachable. He doesn’t want to talk to me about it beyond the anger. I worry about him. Things ended badly. It’s going to take some time to get through this. It was so unexpected. Lexi has a lot of issues, and I keep telling myself there is someone better out there for him.

Handing over the baton

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A little over a month ago, I spent two full days in Wisconsin Dells at the waterparks. I told you about the trip, but I don’t think I mentioned how much pain I was in. After two full days of walking, I could barely walk. My foot was hurting a lot. I never really noticed how inactive I’ve gotten until I had to be active. So many times I chalked up my foot pain to bunions, arthritis, and fibromyalgia. But this time I felt something was really wrong because one foot was hurting much more than the other.

The following day I reached out to my doctor to get an appointment with a podiatrist. They questioned why I wanted a referral. I told them that I was still having foot pain like I mentioned at my last physical in November when they took X-rays of my foot. At the time, my doctor couldn’t find anything that would cause a lot of pain. It took me a month to get an appointment with the foot doctor.

By the time I got to my appointment, I was feeling a lot better. But I went in for another set of X-rays and waited over an hour to see the doctor who was behind schedule. I thought perhaps I was wasting his time. When the doctor came in, he told me I had a stress fracture. What??!?? How did that happen? I was going to have to wear a boot for 6 weeks and then come in for more X-rays to see if it was healing properly.

I have no idea how I fractured my foot. My feet started hurting when I was running long distance training for a 50k. But that was years ago. And aren’t your feet supposed to hurt if you are running 30 miles on them? The only other thing I could remember happening was having a large water bottle fall onto my foot. But again, that was years ago. How did I have a fractured foot and not even know about it?

It’s been 3 years since I ran. Gradually I stopped going on walks too because it hurt and I was having GI issues. I went from thinking I was wasting the doctor’s time to being angry with myself for not going in sooner. Hopefully now it will finally be able to heal and I can get on with life.

I stopped running right after Angel moved back home and started running. We enjoyed running together for several months. This weekend she will be running her first marathon and I will be supporting her every step of the way. I was instrumental in starting the fire that ignited her passion, and now I will be handing over the baton.