Author: Outrunning my demons

The (guilty) party

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A couple of months ago, I shared with you the story of how my son was involved in an underage drinking party at a friend’s cabin. The problem was that his friend wasn’t there. She was supposed to go but got busted with alcohol by her parents before she even left the house. My son, the driver, was sitting with a car full of teens at a gas station waiting for her.

My son received a text stating that she could no longer go. It would have been reasonable to turn around at this point and head towards home. But she told them to go without her. Maybe she would show up later. She also texted them explaining how to get into the cabin if it was locked and where to find the alcohol.

My son, his friends, and a dozen other teens that he didn’t know showed up for the weekend to party. As you can imagine with a cabin full of teenagers without the owner there, there was a general lack of regard for the property. The problem was that the girl’s parents didn’t even own the property, her grandma did.

They left the cabin that weekend with cigarette burns and blood on the carpet, a broken water pump, broken glass, and vulgar images drawn on the wall.

We received a call from the girl’s dad, a friend of a mutual friend, a few days later. We were very upset and had a long conversation with our son about his misdeeds. We grounded him and cooperated with the parents.

This past weekend my husband, son, and a few of his friends had a meeting with this girl’s dad, uncle, and grandma. I did not attend as I was out of town with Angel for her singing competition. I was very anxious about the meeting. I waited by the phone in sheer panic…feeling excited for my daughter and feeling anxious about my son.

When Paul called, he said that the grandma was a very kind lady but spoke sternly about how she felt violated having strangers invade her cabin. She asked my son what happened that weekend and he told her.

They also wanted a total of $4,000 for damages incurred. Paul paid our son’s share. They wanted Alex to collect the money from everyone that was there, but he didn’t know some of the kids. So the group of friends that Alex had there said they would tell the others they knew were there and would have them send the money. So far no one is stepping up and taking responsibility for their kids.

The problem was that no one told their parents about the party except Baylee. One of the guys had a summer job and wanted to pay his share without telling his parents. Trunk boy told his mom and she thought it was some sort of scam. Trunk boy was the guy that rode in the trunk of my son’s car and his mom showed up at our door to complain that my son didn’t give her son enough rides. Trunk boy’s mom is psycho and I don’t want her at my door again.

My son’s girlfriend Baylee’s parents didn’t want to pay either. They said that Baylee didn’t do anything wrong. She didn’t drink. She was simply there to babysit. I believe that is true. My son is such an adrenaline junkie with his cliff diving, motorcycle riding, and other risky things I know nothing about. He is a daredevil and leader. He would be the first to try something stupid or adventurous. He told me that he would tell me someday about everything that he has done, but I really don’t want to know. Baylee is his only voice of reason.

The other friends parents simply won’t be able to afford to pay, especially now during the holiday season. There are some that simply don’t care about doing the right thing.

I don’t think that this family will get the money they want. I would do things so differently. I would start with writing a persuasive letter addressed to the parents of so and so. I would say that I wanted x money by x date. I would include a copy of the police report. I would further state if the money is not received by x date, that they will be hearing from my lawyer which might include criminal charges.

Thankfully my child wasn’t dumb enough to throw a party at his grandma’s cabin. As far as I am concerned, this whole issue is resolved now. I don’t think they will ever get their money, but we paid for our share.

Notes on music

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Things went well this past weekend with my daughter Angel’s singing competition. She made it to the semi-finals. Although she didn’t make it to the final round, she was satisfied with her performance. Being satisfied with her performance was big. She is like her mother and tends to cut herself down if she makes mistakes. Plus earlier in the week she told me that she wasn’t doing it. She had tonsillitis and was not able to practice much.

We didn’t run into any of her previous stalkers on campus which was a plus. The biggest problem she encountered was on her way there. Her map wasn’t working on her phone and she got lost. I had to find her on my phone’s map and give her directions from where I thought she was which was no easy task in the dark in a strange town.

I checked into the hotel a long time before she arrived. I checked in at the same time as her singing professor whom I greeted in a very friendly manner. He didn’t recognize me and I was hoping that he didn’t think I was a lady of the night.

 

We ended up eating supper after 9 PM. It was great watching Angel perform. I think the visit will tide her over until she comes home at Thanksgiving. This is the longest she has been away from home and she was starting to feel homesick.

Then Paul and I returned back to the same college yesterday with Alex for a campus tour. His girlfriend also attended the tour. Alex and Baylee have been dating for almost a year and a half. They have been talking about going to the same college. We think that if they go to the same school they might get married someday.. Time will tell. I thought that Angel and Mitch would marry, but they broke up this year.

Alex wants to go to school for saxophone performance or possibly jazz studies. My oldest two children want to or are going to school for music performance and don’t want to be educators.. There will always be a spot open for them in my basement.. Although very talented, the likelihood of them both having a successful career as performers is slim. I always like it when people ask me what their backup plan is…My basement, that is their backup plan.

I remember when I bought Alex his saxophone. I bought the instrument used for half the price of a new one. New saxophones are pricey and I didn’t want it to end up collecting dust on the shelf after high school ended.

I went to a stranger’s house to purchase the instrument. She kept all of the receipts. She told me that her son lost interest in band. A few months after I purchased the instrument for my son, her son committed suicide. It was a strange feeling. Was the selling of his instrument a warning sign that he was losing interest in his hobbies? It was very sad. My son asked me afterwards if I bought the instrument from the boy that died. I did not lie.

I was afraid that my son would find playing the instrument distasteful after that, but he brought the instrument to life. Many years later, my son wants to take this instrument with him far into his future. I want the previous owners to know that this instrument that once belonged to their only son did not end up on a shelf somewhere. But maybe through it a small piece of his life is carrying on…

 

What lies behind closed doors

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What lies behind the door for us? Do we ever truly know? I thought about these things while going with my son today on his first college tour.

I think that as we near the completion of high school, we are faced with a lot of choices…paths…doors perhaps..Some of the doors seem obvious to open..They might have our name written all over it. Other doors are there, but we think some of those doors are locked because we have been told that they are so we never try to open them.

This past weekend, I had the opportunity to listen to some of the best college level vocalists in our state. A few were so talented they almost brought ME to tears. As I was watching my daughter and other singers perform, I could no longer tell what the judges of the competition were looking for. I couldn’t find any fault with the performers…maybe a few little mistakes were made that I noticed from some of the freshman.

At college level, they are so far beyond the middle school and high school solo and ensemble level. In high school, and middle school especially, I could hear every missed beat and note that was slightly off. Back in those days, my daughter asked me for singing advice. I have had no professional singing training, just raw talent. Now I ask my daughter for singing advice. I can no longer tell when she makes a mistake. It was like listening to a language that I no longer recognize as my own.

Then I realized with regret that the singing path door was always there for me to choose. I was just told that the door was locked, so I never tried opening it.

When I was a child, I always loved water. I begged to take swimming lessons beyond the few months of basic lessons. But I got piano lessons instead and hated it because I didn’t have a passion for it. This year I competed in my first Half Ironman. I really struggled with the swimming because of my basic skill level. It was frustrating for me to try hard but not be able to compete against someone who has been swimming 30 years longer than I have at a proficient or experienced level.

Maybe if I was allowed to take lessons when I was young…I have this strong desire to be the first person to cross the finish line. I wanted to be the person that qualified for the Boston marathon on my first marathon. I long for it, but it will never be. I wish I was satisfied being the small percentage of the population that completed a marathon. I have to fight against the urge to berate myself for not being that great. Perhaps I opened the door too late.

Some doors are there all along, but we never open them. Some doors remain hidden in plain sight. Some doors we open and squeeze into before they are locked. Some doors simply no matter how hard we try to open them will remain locked.

Then there was a beautiful ornate door that once was hidden behind the roses and thorns. It was the writing door. I should have seen it all along…there were many years of scribbles in journals. There was a book written in grade school about a house full of troubled girls that were saved, torn up and thrown away.. There was this girl that wanted to share the story of her life..

That door has been opened and can no longer be kept shut.

 

Cloudy with a chance of stalking

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I will be leaving shortly. As you are reading this, I am probably on the road. I will be driving 2 hours to meet up with my daughter Angel who will also be driving 2 hours to meet me. Tomorrow she has a vocal competition at the midway point’s college.

We weren’t even sure she would be competing. She was sick with a fever off and on the last couple of weeks. She has been to the doctor 3 times in the past month and is currently getting over tonsillitis…which isn’t the best for a singer. In the meantime, my husband will be staying at home taking care of the business and kids.

On Friday, Paul is taking our son and his girlfriend to meet up with the family of the people whose cabin they had a party at this past summer. Quick recap, the daughter offered her family cabin for an underage drinking party, ended up getting busted by her parents, didn’t go but told the others to go without her. Twenty kids showed up and trashed the place. They want to talk to our son because we were one of the few parents that made their kid apologize and offered to help pay for damages. I have a bad feeling that the meeting is not going to go very well.

Meanwhile, I will be out of town with Angel. We will be at the college of her ex-boyfriend Mitch. This is problematic. A few years back, Angel befriended a guy named Jeremy while she was on a school music department trip. Angel liked the guy as a friend and Jeremy liked her more than that. At the time, Mitch and Angel were dating.

Jeremy started stalking Angel. He hacked into Mitch’s facebook account. He sent her threatening messages from random numbers on her phone…one of them said that he would rape her. Then Jeremy punched Mitch on the campus we will be visiting this weekend.

Wait, there is more…After Mitch and Angel broke up, Angel confided in me that she thought that Mitch could have been posing as Jeremy all along. Either way, it doesn’t matter…they both go to the college we will be at tomorrow. Chances are we might run into one of them and things could get dicey. We have no idea who the guilty party is…that makes it really hard to know what could happen.

I am going to the college to support my daughter and also as a bodyguard so to say. I don’t think that either guy would be willing to give her grief in front of her mother. In my mind, I think I could take them on. A karate chop to certain body parts. Hiyyyaaahhh! Realistically, an athletic woman in her 40’s probably doesn’t stand a chance fighting a couch potato 20 year old male. But it would be very entertaining.

I am happy to have some time to spend alone with Angel. I haven’t seen her for a month. She hasn’t been home since August and is starting to feel homesick for the first time. It is hard to be sick away from home without a mother to give you chicken noodle soup. Not to mention not having a doctor and having no clue what to even do.

AAAAGGHHHH!!

Then after all this is all said and done, I will be turning around and heading back to the same college campus for a college tour with my son next week…

Will the insanity ever end?????

Inoculation

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Today I got inoculated. I like the word inoculation, it sounds so much better than shots, immunizations, or vaccinations. I just don’t like the action.

Since Paul and I are going to Thailand in a few months, we decided to book an appointment with the travel nurse. I only ended up getting 2 shots, Hepatitis A and the flu shot. What happens if you have to sit next to someone for 20 hours on a plane that has the flu? A ruined vacation..

We got a prescription for typhoid pills that we can’t take with alcohol…so no drinking for 10 days. I’m already going to use that as an excuse to not attend a party that I really don’t want to go to.

The Wisconsin immunization registry pretty much pulled up a blank on us. It registered our Tetanus shots from 2012, that’s all.

We both had chicken pox. My mom said I got it really bad in 4th grade. I had chicken pox in my mouth. My eyes swelled shut. I still have a few scars. I think that Paul even had a small pox shot.

I don’t think I had my last MMR shot. There was that couple years that I didn’t attend school. I vaguely remember needing to have a booster and telling my mom I didn’t want it, so I didn’t get it. That is how I remember it, but I’ll admit my memory of my high school years is a bit hazy now.

My mom suspected that the MMR shot caused my brother’s autism back then. Of course, that is not saying much. She questioned every little thing she did and didn’t do back then.

I have always been on the fence about shots myself. This is the first time I’ve ever had a flu shot. I don’t like taking medicine. I wanted a totally natural childbirth. To tell you the truth though, if it was as natural as I wanted it to be, I probably would’ve died. I hate taking medicine unless it is absolutely necessary.

The whole vaccination autism scare came out in full force when my oldest child was born. What was I to do? What if it did cause my brother’s autism?? What information do I trust?? Do I trust the huge pharmaceutical companies?? Do I trust the doctors that are supposedly getting big kickbacks from the drug companies for pushing vaccinations??

What do I do when it affects my family??

To tell you the truth, I really don’t have an opinion whether or not vaccinations cause autism. It didn’t even matter to me. What mattered was that if there was even an iota of a chance, I felt that it would be prudent to be cautious. My children received all of their necessary vaccinations, but on my timeline.

Some people looked down on me for the decision I made.

Did I know that I was hurting my children??

Did you know what it was like living day to day with a violently autistic brother?? Did you see how this tormented our family?? No, because I never bothered to tell you…

It was the late 90’s and early 2000’s…we didn’t know. We still don’t know. I didn’t want anything happening to my children. I didn’t want them to get autism. I didn’t want them to get measles.

I think that I made the best decision with the information I had available to me. I am still hesitant to trust other people when they try to tell me what is best for my children.

All these thoughts whirled through my head as I was nervously waiting to be inoculated…

 

Halloween lore

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To be honest, I’ve always had mixed thoughts about Halloween.

Growing up, my mom had conflicting feelings too.

We lived outside of a small town of around 200 people. My mom was big into walking. So almost every year, we walked into town on Halloween with flashlights if it wasn’t too cold out.

We would always stop at Aunt Grace’s house. Being a banker, she was always practical minded and handed out money to the kids. She would give us a roll of nickels or dimes. I’m not sure if she handed out the whole roll to the other kids.

My grandma always had 3 white sheet ghosts hanging from the big tree in front of her house. She liked to wear funny shirts like the one that said ‘I’ve got bats in my belfry’. She always had tons of candy. Grandma was always happy and smiled greeting the children in costumes. Those are the memories that I am most fond of.

At times, I walked around the neighborhood with older kids. I remember stopping at an old man’s house. He was probably in his 80’s Although in my young mind, he could’ve been 40. He handed us apples as a treat. APPLES!! We walked halfway down the block and smashed them. The bigger kids said that there could be razor blades in them. I still feel bad that the old man might have walked down the road and seen his wrecked apples. It was the 1980’s and in those days we heard stories about the Halloween candy being tampered with in some way.

I also heard stories of black cats being sacrificed and made sure my outdoor cats were locked up somewhere safe for the night. It seemed like a scary night to a worried child. Perhaps it was the one day that evil was allowed to seep into the world because it was invited in.

In the later years, my mom felt conflicted about the holiday after some friends kept their whole family hidden in the basement with their lights off. They thought that partaking in Halloween was akin to devil worship and would land them a prime spot in hell. Halloween has been associated with people doing evil things. I understand how people wouldn’t want their children involved in a holiday that celebrates evil.

When I had children of my own, I felt a little conflicted about the holiday too.

Don’t get me wrong…I love scary movies. I love wearing costumes and pretending to be someone else (alas my love for community theater). As a child I was obsessed with the Salem witch trials and read every book on it the library had. I abhor having lights on in the house. I am a big fan of black cats and the color black in general. I have a healthy fondness for candy.

Over the years we attended various churches…Some were of the opinion that Halloween was of the devil and the only way it should be celebrated is by handing out Christian literature to the children that come to their door…to children dressing up in Halloween costumes for Sunday service…

Who is right? How is a Christian supposed to act?

I can understand every viewpoint. What is wrong with not celebrating? Nothing…less money for the dentists..What is wrong with dressing up as an evil character?? Are you celebrating evil? Are you doing evil? What is your motive?? What is your intent? I personally don’t know anyone that spent the day drinking blood…or sacrificing animals despite the witch lore.

Paul and I decided that we would celebrate Halloween but only allow our young children to dress up in costumes that celebrated goodness. Over the years we had Tinkerbell, an angel, a cow, a mermaid, a cheerleader…I miss those days.

 

 

 

Out running

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Change is inevitable. It happens each season. This week a cold wind came into Wisconsin and blew the warm falls days and sunshine away. Sadly, I started going to the gym and running on the dreadmill again. I really can’t complain. It has been a warm fall with hotter temperatures than this summer.

Usually we get our first few flurries by this time of year. It makes me remember my grandma. For the first little snowfall she would write the word flurries or put a F on her empty calendar like it was a huge event. I have a F on my calendar too. It reminds me when I need to give my pets their flea medicine. Seriously, what did you think it stands for??

The last time I ran outdoors, I took a few photos to show you how beautiful my running route is. It was probably a good time for a change anyway. People were getting to know my routine which can be a little disconcerting. It was always the same cars that almost hit me. People were starting to actually honk when I wore my ‘honk if you’re going to hit me’ shirt.

I had a great season with huge goals…My first 18 mile trail run weekend, my first Olympic triathlon, and my first Half Ironman. Plus I ran another marathon. I am thinking of cutting back though. I’m not going to decide for sure until January.

Three out of four races, I had to travel far enough from home to need a hotel room. Plus adding in all of the gear and race fees, it can be a pricey hobby. I will probably still race, but will cut back on the amount of races and the longer distances. I also might want to try other things like doing a Tough Mudder. Plus next summer, the local theater is planning on doing the show Cabaret which is heavy on dancing.

Running has a special place in my heart. I spoke to my trainer at the gym this week. I told him that my races went well but I was thinking of cutting back. I told him that I want to run for the long run. Running gives me time to process my life in a healthy way. I don’t want to over train, hate it, or get hurt. I want to enjoy this hobby as long as possible. Plus I want to do other things I enjoy like dancing, cross country skiing, or kickboxing without being locked in an always training box.

I just love to run. Who knows? I might be able to get outside a few more times this year before it snows. Wisconsin is a very beautiful place to run.

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Journal 5, part 3

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It has been a rough week of posts here, hasn’t it?? Here is the funny post that I promised…It is akin to my parents stories of walking uphill to school both ways.

10/10/1990

I am feeling tired today. Last night I watched a movie at my friend’s house. Her mom rented a VCR and we had to take it back to the rental place by 10 PM. We left her house at ten to ten. On the way there, the car broke down. We knocked on a couple doors, but no one answered. We walked back to her house which took almost an hour. By the time I got home, it was 11 PM. That sure didn’t help my cold any..

Young folks, times were hard growing up. Watching a movie wasn’t as easy as perusing Netflix for the perfect show. From this journal entry, I am going to assume that the VCR rental was for my friend’s birthday which was a few days before the journal entry date. We watched Gone with the Wind and Adventures in Babysitting (great old movie BTW). I had no recollection of this event before reading about it…the previous day’s journal entry mentioned the movies that we were going to watch. I vaguely remember walking back to her house on quiet country roads late at night.

You were pretty much screwed if your car broke down in the middle of nowhere at night if no one answered the door. Forget Uber. Of course, sometimes you were screwed if someone answered the door. As a teenage girl, it was creepy going into a stranger’s house to use their rotary phone. It was also creepy allowing strangers into the house to use the phone. I think it is something the kids of today are told not to do…allow strangers in your house or go into a strangers house.. Of course, kids of today don’t need to worry about taking rented VCR’s back or leaving the house without someone having a cell phone.

Even going to the movies was complicated. We had to watch the newspaper for the new listings. Or sometimes we would call on a Friday night to listen to a long automated message stating the new showings. Sometimes the phone was busy.

Remember having to rewind the VHS tape after viewing? That took almost as long as the movie. The rental tapes would be plastered with stickers that said ‘Be kind, rewind’ and other obnoxious things. Then upon returning the movie to the store, the clerk would always pop open the tape case while glaring at you with an eyebrow raised prejudging if you were an evil offender that didn’t rewind. If you were a few minutes late (probably due to rewinding) with the rental drop off, you would be fined a couple bucks.

I can almost imagine the fines my friend received for returning the VCR the next day. Maybe the cops were called. Uh huh, car trouble you say…I bet your dog ate your homework too..

I never had to worry about renting a VCR at our house. We always had at least 10 VCR’s in our house at all times. Unfortunately, none of them worked or they ate tapes. My dad repaired them as a living and was always doing favors for neighbors on the side. People would literally stop by with their junk…broken VCR’s, stereos, TV’s…Discombobulated machines laid on our table and were strewn all over our house for months. My dad was a procrastinator. By the time he fixed the broken machines, the people forgot about them or were on their third one. But he charged them next to nothing.

I wonder how much time we wasted on video tapes?? Almost as much time as we spent waiting by the phone…

How did we ever survive???

 

 

Journal 5, part 2

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5/2/1991

I’m only going to eat one meal a day or else I will be sick. When I was younger this worked all of the time until I felt better..

It is true that sometimes the needs of the ‘normal’ kids get swept under the rug when there is a special needs child in the house.

I know now that I have been a lifelong sufferer of GERD. I didn’t know this as a child. All I knew was that I had stomachaches all of the time. When it was really bad sometimes eating made me feel sick. I felt like I had a fire in my chest. Eventually the acid crept into my throat, gave me frequent canker sores in my mouth, and wore down the enamel on my teeth as a child. My parents threatened to take me to the doctor if I didn’t eat, but they never did.

My brother Matt also has GERD which was made worse by his gagging from Tourette’s. He frequently threw up his breakfasts. There was a time that the valve completely closed between his stomach and intestines. He couldn’t keep down any food and had to have the valve surgically opened again. In the meantime, he dipped below 90 lbs and he almost died.

Whose needs were more important??

Not only did Matt suffer from GERD, he also has autism. He engaged in a lot of self-stimulating repetitive behaviors such as rocking and flapping his hands together. At one time he had to wear a helmet on his head because when he became agitated he would hit his head with his fist. He was hypersensitive to touch. He would scream when he had to have his teeth brushed. He had to be sedated to go to the dentist for cleanings. He would only tolerate having 1/4 of his teeth cleaned at a time and eventually his teeth rotted. He has difficulty communicating and understanding emotions.

He suffers from Tourette’s. He would gag when eating and constantly make sticky saliva sounds with his mouth. His body would twitch and he repeatedly blinked his eyes.

He suffers from schizophrenia. He hears voices that tell him to hurt little girls. Sometimes the voices terrified him. He had nightmares. He would talk to the voices and laugh at the evil things they would tell him to do.

He is intellectually impaired. He cannot read, write, or do simple math.

He has issues with anxiety.

Matt made anything that my brothers and I struggled with minor in comparison.

There was a 3 year period when Matt was not allowed to go to school because of his violence. After that time period, he had very limited exposure to the outside world up until he was placed on an anti-psychotic medicine that eliminated the voices and the violence towards self and others.

My mother did not want my brother institutionalized in a place for the violently mentally ill so she pulled him out of most situations where he could hurt others. That did not stop him from being violent towards me at home. He grabbed a knife and threatened to cut my eyes out. He punched, scratched, kicked, bit, and pulled my hair on a regular basis. Who protected me?? Who reported his violence against me? No one.

I want to say that I handled it like a trooper, but I did not.

I withdrew into myself. I became very depressed. Although childhood goes by fast, it seems to take forever when you are being abused. I wanted out. I cried myself to sleep at night. I woke up crying in the morning after being awoken by nightmares.

I held my body tight like I was always bracing for impact. I cowered like a dog that was beat too much. My shoulders were held tightly up to my ears. I suffered from insomnia. I fell asleep easily but was typically awake from 2 to 4 AM. In the middle of the night, I suffered from muscle pains. I had to wrap pillows and blankets around my legs. I think my muscles were finally trying to relax in the middle of the night and it hurt.

I suffered from anxiety and worry. I was angry. I developed structure, rituals, and routines to feel like I had some control over my environment. For awhile, I was a compulsive hand washer. I washed my hands so often that they cracked and bled.

With everything going on at home, I couldn’t concentrate at school. My grades were horrible. I was put on a high dose of ADD medicine. It helped me focus, but made my skin crawl. I scratched my skin until it bled, especially on my scalp. I scratched until I pulled out scabs with big clumps of hair.

I was exhausted most of the time.

I was a mess.

That was a long time ago.

I survived.

I am strong now.

I am healing.

I feel ready to fight my demons.

 

Journal 5, part 1

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12-10-1990

Tonight is my choir concert. For awhile my mom wasn’t going to go because Matt was reacting. But she is going to go.

Events were always difficult for my family. My mom always wanted Matt to be included in all of the family activities. We never really wanted him to attend our special days. We were afraid that if he hurt someone that would mar the day forever in our memory. Plus we wanted some time when we could be the focus.

How would we feel if a special day was ruined by Matt attacking someone? It would make for an unforgettable choir concert, graduation, or wedding day.

My parents typically took turns attending events if Matt was unable to go. My dad would often times stay home with Matt because he hated social events.

But if Matt was ‘reacting’ bad enough, my mom would stay behind. She didn’t trust anyone else to take care of Matt. If Matt hurt someone, he could sometimes be hurt in the process of restraining him.

For example, if Matt was at the roller rink and attacked a small girl…what do you think her father would do? My mother said that no one could love Matt like she did.

Usually there were early warning signs of reacting that we became hyper vigilant for.. His ears would turn red, his fists and teeth would clench, and his pupils would constrict giving him wild eyes. Sometimes these reactions would last for a short time and sometimes for several days. Sometimes it would happen unexpectedly and sometimes we just knew..

The longest it usually lasted was 2 days until it slowly faded away. For 2 days, Matt would scream and be agitated in general. He would often hurt himself or those around him. He would keep our younger brothers, that he shared a room with, awake at night by rocking his body side to side in his bed violently. During the day, he would run in place flapping his hands together sometimes violently enough to make his chin bleed after his hands rubbed against it repetitively.

He had to be watched constantly because sometimes he would run away. Or he would do deviant things like overflow the sinks. Most of the time he muttered to himself. He would laugh after hurting someone or doing something wrong.

After the reaction was over, Matt would sleep all day and all night.

My mom went to great lengths to try to explain Matt’s strange behavior by saying that he was reacting, or allergic to things.

Matt attacked the stranger in the roller rink because the music was too loud.

Matt attacked the girl because she was wearing perfume. The perfume triggered it. We were no longer allowed to wear or have anything with a fragrance in it. No hair spray, no nail polish, unscented soaps…we even had to dip our toothbrushes in peroxide and baking soda to brush them. I found this to be very restrictive when most girls my age used a bottle of hairspray a week.

Sometimes it was auto exhaust. My mom no longer allowed the cars to be parked in the garage. They had to be parked at the bottom of the driveway. If the wind was blowing in a certain direction, we had to shut all of the windows. My mom would panic if we had to follow another vehicle closely on the road, the exhaust could seep in and set Matt off.

Maybe it was gluten, dairy, and artificial colors. My mom started buying Matt organic food. She went to great lengths to make separate meals for Matt that no one was allowed to eat.

Maybe it was the wood stove. That furnace was removed.

Maybe it was the formaldehyde in the curtains. They were removed and old blankets were put up.

I could probably list at least 50 or more things that at one time my mom thought were triggers. We had to painstakingly follow rituals to try to stop the triggers from eliciting a response in Matt, but it never worked.

My mom took Matt to almost every doctor in the state and to several doctors in other states. She had faith that he could be healed from this affliction. As a child, I believed that he could be healed too. We hung on to every hope that he would be completely healed.

My mom took Matt to physicians, homeopathic healers, allergists, and even a lady that read auras. But nothing worked.

I fear that what I am telling you makes my mother sound like she was completely crazy. But I want to assure you that my mother was the sanest person in the house. In her natural state she is an easy going…go with the flow kind of person…She is very compassionate, sensitive, and loving…But with Matt, my mother was fierce and determined to do anything she needed to do to protect him…to feel like she had an iota of control over something that no one had any control over… and to seek answers while holding on to this irrational dream that some day she would wake up and he would be normal.