Complex PTSD

Middle of May update

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The clock keeps on ticking and time seems to fly by. Today is Arabella’s birthday and I have the day off of work. We’re planning on getting our nails done and going out to eat.

Life has been eventful as of late. I ran into an old friend of Arabella and they reconnected which lead to a whole bunch of excitement. Let’s just say that several nights were spent drinking. Literally whole nights where I woke up in the morning and they were still up. Arabella’s friend was doling out shots the whole night and come morning she was totally wasted along with my son. Through their intoxication, they realized they were totally in love. Arabella and her boyfriend were trying to talk both of them to go to sleep and figure things out later when they were sober. I awoke to Arabella’s boyfriend yelling at Alex.

Alex could barely walk as I walked with him to his room. I’ve never seen him so drunk. He had to perform in his band later that evening. By this time I was fed up with the whole lot of them. That evening was more of the same. Arabella’s friend was flirting with much older strangers talking them into giving her cigarettes and buying her shots. Paul had enough of it and ended up confronting the girl and telling her she was no longer welcome at our house unless she got her drinking under control. She already has been cut off by her family and has an ignition interlock device on her car from drunk driving. I hope she gets some help and figures her life out.

This was the first time Paul told someone they were not welcome here due to their drinking. Believe me when I say her drinking was pretty out of control for Paul to say that being a drinker himself. We were both afraid it would jeopardize Arabella’s recovery and if she started dating Alex the relationship would be toxic to say the least. They probably would both take their drinking to new heights.

We were sad to see Arabella’s friend go. Arabella doesn’t have many friends and this girl has been a good friend to her in the past. The rest of the weekend was pretty mild compared to this. Mother’s Day was almost uneventful. Paul and I took my mom and Matt to her church. My mom and brother displayed inappropriate behavior both passing gas several times in the pew. My mom was very confused. She couldn’t seem to reason that she needed enough room for 4 people to sit. But in some ways I enjoyed going to my childhood church. One member said I look more and more like my grandma the older I get. It made me feel good to receive that compliment and to be around people that remembered family long dead.

The rest of the time with my mom was stressful and I couldn’t wait to leave. She was confused about her medication. Earlier in the week I received a call from my dad who said that she took too many pills and ran out. She gets angry and emotional easily. Her food hoarding has gotten out of control. She wanted me to reimburse her out of Matt’s account (I am now his guardian) for over $200 worth of food which included 8 bags of gluten free flour and a dozen containers of breading.

Some good things did happen so far this week. I met with my therapist who said I am in a good spot and after almost a decade said I didn’t need therapy anymore. I saw a quote recently I thought applied to this which said that as someone with Complex PTSD we don’t need to know how to survive trauma and pain. This is something we are used to dealing with skillfully. What we need is to know how to handle joy and happiness, something I never learned how to do. It really resonated with me.

Over the next couple of days, I am looking forward to spending some time with Arabella for her birthday. Alex’s band is playing outdoors this weekend. Early next week Angel and her husband will be back home for a couple weeks.

The unplanned

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I was intending to write sooner but life had other plans. I ended up in the ER after I got a rather large sliver under the nailbed of my thumb. It was incredibly painful. Thankfully they were able to numb me up enough to get it out. But they had to remove a chunk of my nail to get it all out. This happened on my dominant hand so it’s been a bit of a challenge to do things. I have to keep it wrapped up for a week and watch for signs of infection. I’m not sure how it is going to look when it heals. It was a horrible and disgusting experience. I am not in much pain now, but I just feel exhausted. It didn’t help that I had my new hire physical today with bloodwork and a flu shot.

Other than the trip to the ER, this past week went well with a lot of fun activities planned. Angel came home and a group of us went out to eat and watched the musical she directed the music for. She wasn’t home for long, but we enjoyed our time together. Unfortunately for Angel, she got stuck at the airport in Chicago because the weather out east was not good and her flight got cancelled. But she did make it home safely and that’s what counts even though she did have to spend the night in Chicago.

We also had a group of friends meet us out to watch Alex’s band perform at a local brewery for St. Patrick’s Day weekend. I volunteered at a local film festival event. We saw our son’s bandmate perform on St. Patrick’s Day, drank green beer, and played trivia with friends that evening. It was probably the busiest extended weekend of the month if not year so far and one of the most fun as well. This weekend is going to be a lot quieter, but that is okay.

Last week I met with Matt’s case manager and program coordinator. I was not surprised to find out that my mom had complete control of Matt’s finances and medical care. I don’t want to control anything. My mom wouldn’t allow the care team to attend appointments with Matt, which is what they typically do. My mom also had extreme and strict restrictions on what the staff could and could not do. (Why couldn’t my mom be a clean freak instead???) I basically told them that all restrictions would be removed. They were all overjoyed, except for my mom that is. I know she is angry with me for not doing things her way and for not being able to control me. The way my mom treats me is hurtful at times. But my expectations of my parents are so low that it doesn’t matter all that much.

Both Paul and I feel terribly alone with our lifelong lack of parental guidance. I honestly don’t know if I would miss my parents much when they pass away. We don’t have that kind of relationship. It seems like they have been gone for years. I feel sad and jealous of stories of warm and loving parents. Parents that don’t leave a legacy of messes for their children to clean up. There is never a dull moment. But in some ways I rejoice for not being controlled because in families there are rules. I can finally do things my own way and no one cares. I created the family I wanted and what more could I need? Maybe grandchildren…

My best friend is going to be a grandma again. Her 21 year old son and his girlfriend are going to have a baby. It was a bit of a surprise no one was expecting which created a lot of mixed feelings. They are young, immature, and not ready to be parents. But who is, really?

I’m not sure what this next week will bring. I guess I needed a reminder that things don’t always go according to plan. Planes are late and accidents happen that throw off the normal trajectory of life. Sometimes, though, it is easier to face disappointment and suffering when you plan on it being that way.

What is coming next

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I want to start blogging more again. Maybe I can try for once a week. I realized today I have been blogging almost ten years. It takes some form of dedication or insanity to continue that long. One of the hardest parts for me is finding people I connect really well with and then they are gone. Maybe their blogging experience is only temporary. Sometimes bloggers pass away. That component is harder for me then finding things to write about.

This past week has been difficult/emotional in different ways. The job search has lead to several dead ends. I was selected for the lucrative job I took the proctored exam for. However, I am sitting in limbo. It’s been over a month since I applied. When I reached out, I was sent a form letter stating that I am in a pool of applicants and if/when they need me they will reach out. My test results will be on file for two years and if I don’t hear anything by then I am welcome to reapply. But I am looking for a job now.

A friend told me over the weekend that she knows someone who works for the job I am waiting on. She said for the first 6 months they had to work 3rd shift until there was an opening in 1st shift. I am not willing to work 3rd shift, been there done that and don’t ever want to do that again. I would be willing to work those hours once in a while but not often. I AM, however, willing to work day shift (early morning is fine), 2nd shift, weekends, and holidays. I don’t want to work a regular Monday through Friday 9 to 5 job either. I just don’t think it would be possible for me at where I am in my life right now.

As of this last week, I am now the successor guardian for my brother Matt. However, I am not going to do everything the same way my mom did. I am not going to cater to his every whim. This is going to be an adjustment period for all of us and I am going to be pulling off the band-aid. At first I felt a tremendous amount of guilt for doing things my way, the way I think will be the best for Matt. But I had to remind myself that I have taken on the responsibility to be responsible for my brother for the rest of his life or mine. I never signed up for this. I don’t want to have a brother with a disability. But I was willing to take it on even though it was not in my best interest. There are going to be a lot of things I have to learn.

This past week my mom had her neuropsychological evaluation we waited 5 months for. We will be getting the results this week. My brother Luke went with my mom and I to the appointment which lasted 4 hours. We had around an hour to talk to the doctor about our concerns without our mom in the room. I think we were listened to and adequately described the situation. The last few months my mom’s dementia has gotten worse and she reached a new level of raw unfiltered obsessiveness and self-focus. I think she may have more than one personality disorder on top of whatever dementia she is facing. Spending time with my mom is very difficult. I have to limit it to once a week for my own mental health. I had horrible nightmares the evening of her appointment.

This is why I can’t look for a 9 to 5 job. I have several appointments during the month during the day for my mom, daughter, and will for my brother Matt as well. Also, I would like to continue volunteering for several organizations during work hours. My husband and I just finished facilitating an 8 week family class through NAMI this week. We had the opportunity to guide ten other people who are new to mental health struggles with family members. It was great to use my experiences to help other people. We had such a great group and I am sad to see the class is over.

Every week I am looking forward to several opportunities to de-stress. This week I am planning on going to trivia night with friends. The first time we did it, we won second place. This will be the second time. After taking two months off to teach the class, I had to take a hiatus from stand up comedy. I will be doing stand up comedy this week. This weekend my son’s band will be playing so I am looking forward to going with friends and family to watch them perform.

I am also planning on finishing the third edition of my memoir this week. Last year I was planning on ending it but so much more has happened to write about. I feel like I finally found a good place to stop the story. My plan is to have it completely finished by April 11, which would’ve been my grandma’s 100th birthday. Even though she has passed many many years ago, I want to celebrate her day and the life she has given to me. Without her influence in my life, I don’t know where I would be.

Other than that, my husband and kids are doing well. It’s great they are all in a good place right now. I feel like I am at a crossroads of sort. It is a very uncertain and anxious time, yet on the other side of the same coin is a sense of anticipation and excitement for what is to come next. I might take some classes and go a whole different career route. Who knows at this point? I think I should have a lot of answers this week.

Blue Monday

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Apparently I forgot to cancel the trial and tribulations subscription in time for the new year. It’s been a rough start and I am feeling frustrated.

Some of it is the little things. This past weekend my son was performing with his band. As I was scooting my chair closer to the bar, I smashed my finger. I didn’t realize as I was pulling it in that the seat separated from the base. I sat down on my finger trapping it between the chair and the base with my body weight. Man did that hurt! My finger swelled up and was bleeding from under the nail. It still hurts a little and my finger is bruised under the nail, so I’m hoping I don’t lose my nail.

Or we can talk about today. Today I found a worm on my cat’s backside. I had to give both cats, under protest, de-wormer and deep clean their cat boxes. As I was cleaning, dirty litter box water splashed on my face. Fun times! As I was taking the dirty litter out to the garbage, the bag broke spilling dirty litter all over our walkway. I had to clean this up so the dogs wouldn’t get into it outside while the temperature was twenty below zero.

Then there are the bigger things. Like our investment falling through, from when we sold our business, that we were planning on living on the next couple years. Now I have to go back to work full-time. All the things I have been planning had to be cancelled, like our road trip out to Virginia to see Angel and Dan who will be living out there for the next couple of months. I applied for a job over the weekend. I think I have a good chance of getting it. I will need to pass a proctored exam to see if I will qualify. That was even a big process because I had to update my resume and all the stuff that goes into looking for a job. I will also need to pass a physical as the job is very active. Against medical advice I started running again.

The other big thing is that my mom’s health is deteriorating rapidly. It has become apparent that I need to take over guardianship of my brother Matt. That is not as easy as it would seem. I had to take an online class and fill out a whole bunch of complicated paperwork. At first, my mom refused to sign the paperwork to resign as guardian. She doesn’t think anything is wrong with her. She is trying to hide her dementia.

My brother Luke came home to try to figure out my parents finances. They have several accounts that are an absolute mess and haven’t been balanced in years. My mom is refusing help with her finances. Finally on Friday my mom signed the guardianship resignation letter. Luke and I went with my mom to pick up Matt from his group home. Then we stopped at the grocery store which was insanely busy. Luke and I were trying to help my mom shop with Matt. If you can imagine what it is like taking someone who has dementia and is confused along with someone with intellectual and mental illness. Neither have any awareness of other people. Matt almost bumped into someone. I had to pull him out of the way. Luke and I were very stressed out. I almost started crying in the store. But everyone was very nice and looked upon us with pity.

I have an appointment later in the week to meet up with someone from the county to see if my parents qualify for meals and in home care. I’m still in the middle of the whole guardianship paperwork process. That is also going to be intensive with the financial reporting, needing to meet with doctors and the case manager. My brother lives 40 minutes away so it is going to take a lot of time on my part to get everything set up.

Not to mention doctor appointments with my own daughter. Arabella is doing well on her new medication, but it is causing her to gain a lot of weight. At the last appointment, she gained 13 lbs in 6 weeks, so I’m not sure if she is going to go through another med change.

I have a feeling it’s going to be a long year.

The most wonderful time of the year?

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It’s the most wonderful time of the year, or is it?

Just like everyone else, I’m getting into the hustle and bustle of the busiest time of year. I’m hosting 4 parties over the holiday season. I don’t really mind the decorating, the cleaning, set up, take down, or cooking all that much. As much of a planner and how organized I am, sometimes I don’t want to do all the planning. I don’t enjoy the menu planning anymore. It’s a ton of work trying to keep in mind everyone’s dietary restrictions and preferences.

Overall, Thanksgiving went well. But try as I might, I couldn’t get the menu right. Several people are gluten and dairy free. I tried to improvise by using dairy free butter and almond milk for the mashed potatoes versus regular butter and milk. But I found out that several people were almond free too. I had to set aside some plain potatoes for my brother Matt. My mom was constantly reminding me to set some aside for him. I was so annoyed as I had several foods I was preparing at once. She wanted me to mash his separately. I made sure at least one turkey was gluten free, as I had a regular and a smoked. Then I found out Paul’s step-dad’s fiancée couldn’t have turkey. Thankfully she brought some of her own food along to make it easier. But she ate something my mom brought which wasn’t GF and my mom didn’t tell her until she was almost done eating it.

The holidays are difficult in other ways. To me it’s a constant reminder of broken relationships and dysfunctional family members. This year my oldest two kids are not on speaking terms which is hard on me. There is a lot of strife with other family members. My dad is not a part of things because he is a horrible person. I think we all just do our best to tolerate each other which is not how family should be.

My mom’s cognitive functioning has greatly declined. Thankfully I have an appointment in the books for the end of February to see what is going on. It took months on the waiting list just to be able to schedule the appointment. I’m hoping she can hang on until then. I’ve been getting concerned calls from family and friends of my mom. My mom’s friend told me my mom went in the ditch at her house. As she was leaving, she drove across the lawn and into a deep ditch. She also said my mom didn’t even look before pulling out from a stop sign in front of somebody and they almost got hit. She said my mom was no longer a safe driver. She also said my mom needed to stop babying my disabled brother and my dad needed to get off the couch. The last two have been issues since I can remember.

I am hoping to sit down with my brothers over Christmas to discuss the care of our parents and disabled brother. I don’t want to be the only one making these calls and having all the responsibilities. I’m sure they would be willing to help, but they live further away and we don’t see each other often.

Other than that, I have most of my shopping done. My husband, our kids, and their significant others all made Amazon lists which made things really easy. So far everything went good with Arabella’s boyfriend meeting the family. By the end of the year, he will have met pretty much everyone. It’s so awkward to start dating someone right before the holidays. We like him, and he is absolutely crazy about Arabella. She is going through some major medication changes and she is responding well. Earlier in the year, I never would’ve guessed we would be at the point we are at today.

It will be interesting to see what the new year brings.

Freezing to death

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I naively thought we might have escaped the harshness of winter with our unseasonably warm December and start of the new year. Until last week, that is. We got hit with several snowstorms and kicked the weekend off with a blizzard. Then we plunged right into arctic cold wind chills.

Paul was supposed to go on an ice fishing trip in the far north woods of Wisconsin. The mild winter only produced a couple inches of ice on the northern inland lakes and Lake Superior has open water. Usually by this time of year, people are driving their trucks on the lakes and have their ice shacks set up. This year with the weak ice followed by a blizzard then arctic cold, the trip got cancelled. Although the ice is forming fast now.

While Paul was gone, I had plans to go on an overnight trip to a casino. My friend Sue, who won a small jackpot months before, had to be present for a chance to win a car and $100,000. Paul said since his plans got cancelled, he would be willing to drive us there in his truck. But with the weather, we weren’t sure if we were going or not. Normally the trip takes us two and a half hours. But since half the trip is small towns and back roads, no doubt it would take a lot longer. The side roads would be snow covered and slippery since ice doesn’t melt in subzero temperatures if the roads are not plowed right away.

We decided to brave the trip. If we waited for perfect weather conditions in our state, we would be hibernating half the year. Late Saturday morning, Paul and I set off for our trip with Sue and her husband. We had supper at an Italian restaurant with really good food. Then we went to the casino. The drawing for the car and chance to win the money was at 10 PM. While there, I saw several people win big jackpots. The place was packed with jackpot winners waiting for their chance to win yet again. Sadly, Sue didn’t win. But we had a fun time anyway.

Arabella was home watching the pets. I spent a lot of my time worrying that the dogs were going to freeze to death. It was the first night we left the dogs for the night. Even if I am home, I am very paranoid the animals are going to freeze to death. Maybe the cats will sneak outside with someone. Maybe Arabella will let the dogs out then forget to let them back in. The maybes start swirling through my head faster than the snow in the blizzard winds.

Why am I always so worried about my animals when it is cold outside?? Then it hit me. As a child of around 13, I did have some animals freeze to death when I wasn’t home. It was probably around October and it was freezing at night. Two of my outdoor cats had kittens. One had 6 and the other had 4. One of the mama cat’s was a good mom and the other cat was not. The mama cats were sisters and they took care of each other’s babies. At night, I had to lock the cats in with their kittens because one would stay and the other would not.

We hardly went anywhere, but that night we got home late. Too late, in fact. One of the mama cat’s was with a box of babies and the other was not. The box of babies without the mama cat froze to death. My mom said I needed to bury the box of dead kittens. I found a shovel. It was dusk when I found a good burial spot. The ground was cold and hard. But I was able to dig a little hole. I put my hand into the box to pick up one of the fluffy kitties. I screamed when I touched the kitten’s little frozen body. I couldn’t do it. The kitten was so cold and death was so final for these babies. I started crying and threw the box, kittens and all, into the weeds.

I felt awful. Maybe their deaths could’ve been prevented if I didn’t go somewhere with my mom and brothers. I blamed myself. And on Arctic bitterly cold days, I can’t help but worry it could happen again.

The last of November

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It’s hard to believe it’s been a whole week since Thanksgiving came and went.

I had a wonderful Thanksgiving holiday. Angel came home for a couple days while her husband was hunting. She had Wednesday off of work and came along with Paul and I while we volunteered helping families in need. Thanksgiving morning Paul and Angel got up early to run a local race. Then we had friends and family over for the evening meal. Everyone was on their best behavior. No drama, and almost everyone offered to help me with the cooking and clean up afterwards.

No one stayed really late as some of the guests had to work the next morning. Paul, Angel, and I went to listen to some of Alex’s new music he created for school. We had a great time talking and visiting. Arabella wasn’t very involved in the family celebration. While we were visiting later that evening, Arabella went out to meet someone from an online dating site. The guy told her he had to go to the ER. She drove an hour and sat outside the hospital for hours, then finally came home. The guy said he was sorry and wanted her account info so he could send her money for having to wait. Then Arabella came home and ate the rest of the deviled eggs I made, around a dozen which upset the rest of us. She tried to meet up closer to home with the guy the next day, but he did the same thing again making her wait. Once she said she wasn’t going to wait any longer, the guy ghosted her. She figured it was a scam and thankfully didn’t give out any of her account info. But it did cost her time with her family.

Friday morning Paul, Angel, Alex, and I went Christmas tree shopping at a nearby tree farm. Arabella didn’t want to get up early to go with. We had a great time anyway. It’s wonderful to have adult children in the area who still want to have family time even though they are all grown up. Angel had to leave shortly after we got back, but Alex stayed all day and hung out. After his girlfriend got done with work, we decorated the trees. We got two trees, one a traditional tree and one was a sparkly purple tree. Thankfully our new pets don’t seem too terribly interested.

Saturday was when things took a turn for me. I was so exhausted I had to take an hour nap in the morning and another hour nap in the afternoon. Everything seemed so perfect that it was such a letdown when it was over. I became irritable and there was some fighting, and crying on my part. Then I went to bed an hour early and slept 9 hours which is very unlike me. I thought something was wrong and was convinced it was the medicine I’m taking. The next day it was the same thing, napping in the morning and afternoon.

By the evening, I was in full blown PTSD. I was having flashbacks to childhood and feeling terror and fear towards my dad. I was so scared I wanted my grandma, but my mom wouldn’t let me go. My eyes darted back and forth and I cried a lot. These attacks don’t happen very often, but I felt very similar to when I was having the pseudo seizures earlier this year. I did some research and it seems it is not uncommon for people to struggle with both PTSD and pseudo seizures.

I think I was triggered by several things. First, it was the anniversary of when my daughter found child porn on my dad’s computer. It was the beginning of one of the darkest periods in my adult life. Two months after that was Arabella’s first suicide attempt and her descent into serious mental illness. I was reading a book about Borderline and was irritated she didn’t make the effort to spend time with family. Second, there is a commercial where a Santa character looks exactly like my dad. I even saw it yesterday while I was getting gas at the gas station. Apparently, it’s unavoidable.

I am feeling much better now. It usually lasts two days and then it goes away. This was the first time Paul sat with me through an episode.

Hanging on

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I reached the end of my rope yet somehow still kept hanging on. An ambulance ride to the ER, two MRI’s, an EEG, and 25 vials of blood later nothing can be found wrong with me. I’ve heard that stress can kill you and boy did it do a number on me. I am feeling better, back to myself again. Or back to some sad version of me anyway.

My dad had his surgery, spent the night in the hospital, and was back in the ER the following day. But things have settled down. My brother Luke was in town and stopped by for a visit. It’s good to know we are on the same page. Our mom is starting to slip mentally. We are not sure what to do about it. She is not taking good care of our dad. But our dad made his own bed through a lot of bad decisions and has to live with that. We are going to play things by ear. Kind of like a watchful waiting.

Meanwhile, we are starting to prepare for Arabella to get out of jail. Yesterday we invited our old friend over whom we haven’t seen in over 10 years and told him our daughter was accusing him of raping her as an infant. It was a difficult but necessary conversation since Arabella spoke recently of contacting him when she gets out of jail. We know he didn’t do it. Come to find out he now lives a block away from us. I did a Google search on him and it pulled up his full address and phone number. If I could find him in two seconds, I know she will be able to as well. She could even walk to his house to confront him. We had to warn him. He had no idea why we would reach out after all these years. He thought maybe we were offering him a job or something not telling him he might have to watch his back and possibly file a restraining order.

This is the first summer I’m not really looking forward to. Life just has been way too serious lately and not very much fun. I’m not sure what life is going to look like when our daughter gets home. Plus now we have legal expenses and medical bills when I’d rather use the money for travelling.

On a good note, my husband, Angel, and Alex really stepped up when I was sick. I have a core group of people who are pulling for me. Through all of the stress, Paul and I are working together to keep our marriage strong. Although I’d rather not struggle at all, it helps to have a partner to go through this together. I’m not very hopeful for my daughter’s future, but we are doing everything we can to support her which I can say no matter what happens we did all we could.

We might have to put down our cat in the near future. He is around 17-years-old and is not in the best health. I know, I know…not a lot of good news, but that’s life. I’m just glad right now to be feeling better. What a wake up call. I thought I had MS. I had visions of myself spending a good chunk of the rest of my life in a wheelchair. It was terrifying and I can’t imagine having serious health issues. I think it opened my eyes in a new way to the suffering of others. It’s scary when your body doesn’t do what you want it to do. I couldn’t trust myself. I had to cancel the motorcycle class and I’ve decided to let that dream go.

I’ve been trying to deal with my stress in a healthy way. It got pretty scary when what was once working no longer seemed to work. I think I’m back on track again. We’ll see what happens.

Breakdown

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I think it started with the Mother’s Day letter I got in the mail Arabella sent me from the mental hospital. It was a well written heartfelt letter telling me what a great mother I am. When she called me later that afternoon from jail I was looking forward to talking to her. But since she wrote the good mom letter her mood had changed to me being a bad mom. The contrast from the letter to the phone call the same day I read it was from day to night. She accused my husband and I of horrible things to the point where my husband walked away from the call and I stayed. She blamed us for being shitty parents and that is why she is in jail.

It was that day I decided to let it go. I had to accept she is never going to change. Everyone had been harping on me to let go and let God. I don’t understand how people can find comfort in God. Although I loosely believe all I seem to find is anger and pain. I made the choice to let go and I stopped caring. I had finally reached the end of my rope. I drank more than I ever drank in my life. I just didn’t care. I didn’t even want to live anymore. I struggled with insomnia and nightmares. I woke up exhausted and my body ached.

Arabella called me about her delusion that an old friend of ours sexually assaulted her. She asked me what I thought of it. I asked her if it was possible she was delusional to think our friend raped her while she was sleeping as a child. She said what I was saying was correct, he didn’t rape her as a child but as an infant. She said she was planning on finding and visiting him when she gets out of jail. My stomach dropped. We have to find him before she does. He is in danger.

Meanwhile, my mom cancelled my dad’s surgery. I don’t think she wanted to take care of him after the surgery because she had plans for an extended weekend away to celebrate her sister’s birthday. She asked if I would take care of him. I told her I was busy. I had to work Friday and Saturday then had plans on Sunday to watch Angel complete her first half-marathon. Afterwards, Paul was going to show me how to do some paperwork for our business and we had some things we needed to do around the house because come Monday he was scheduled to work 9 days straight. It’s the busy season for our business.

My mom left anyway. On Saturday my mom asked if I could take care of my dad. She said he wasn’t able to carry food with his walker. I replied if dad needed me to help him give me a call and I would try to figure something out. I felt a tremendous amount of guilt. That is when the tremors started in my arms. My mom never responded to my text but decided to come home early. She posted a picture of herself at home that evening on her BeReal looking disappointed.

The next morning I started having tremors in my hands, face, and legs. I was having a hard time walking. I hadn’t been feeling well and had a doctor’s appointment scheduled for later that afternoon. My son insisted on taking me after he saw my tremors. At the doctor’s appointment I was tremoring pretty badly. The doctor couldn’t figure out what was wrong. She ordered a MRI and took 15 vials of blood. I didn’t bother trying to hide how stressed and depressed I was. I was always mistrustful of telling the doctor about the severity of my anxiety and depression and that I have PTSD. I was afraid I would be committed and medicated. But I no longer fear that because with my daughter I realized how much of a joke the mental health care system is. I did relent to being put on anti-depressants though.

The tremors turned into seizures where I was fully conscious. I started to think something was seriously wrong with me like MS. I had other symptoms too. My eyes hurt. They were blurry, puffy, and very sensitive to light. At times I had double vision. I stopped eating. Food stopped tasting good. I felt nauseous and my stomach was upset. I only ate a few bites once a day after being forced by my family. I couldn’t even be tempted by my favorite foods. I was still experiencing insomnia. I felt numbness and tingling in my arms similar to the feeling right before a blood pressure cuff is released. My body ached. I couldn’t focus on anything and the exhaustion was overwhelming. I struggled at times to think and speak. I thought my life was over.

My dad was in and out of the ER. One day my mom posted a picture of him on BeReal in the hospital in a gown on a gurney with a nurse taking care of him. I don’t know how I felt about my dad and the possibility of him dying. I can’t even remember the last time I saw him.

Thursday night Arabella called and said grandma was going to bail her out of jail if it was okay with me. We got into an argument. I felt angry with my mom thinking she threw me under the bus. I told Arabella she can’t get out because if she messed up again with the felonies against her it would mean prison. But she didn’t listen. Then I talked to my mom. My anger turned to worry. She was worried about my dad. She was worried because she thought my brother Luke was angry with her. She dumped her problems on me and I felt stressed.

By Friday morning of Memorial Day weekend my seizures got worse. I could barely walk. My mom texted me my dad was back in the ER. Then as Paul was checking on me from work, I had a huge convulsion where I fell to the floor. I hit my head on the refrigerator. Paul could hear me flopping on the floor. He called our son to come over and check on me. Alex found me convulsing on the floor. It wouldn’t stop and I had no control over it. Alex called 911 and told them to please hurry. He talked calmly to me, patted my arm, and told me I was going to be okay.

I could hear the sirens getting closer. The next thing I know there are a whole bunch of people in my house. They gave me a shot of Benadryl, but the seizures still didn’t stop. They strapped me in a chair and put me into a gurney then got me into the ambulance. They gave me another shot, this one was painful and the seizures stopped. They tried to put an IV into my arms but they both collapsed. They were talking about my veins out loud and I thought I was going to throw up. They finally got an IV in my hand. I felt tired and dizzy as I watched the traffic behind us as the ambulance took me to the hospital without the sirens on. I watched for my son’s car but couldn’t see him.

The next thing I know I was in an ER room. A few minutes later Alex and Lexi showed up with Angel and Dan. I could tell my kids were frightened and crying. Paul left work early and was on the way. My best friend works in the hospital and soon she was on her way too. They set me up to get a MRI right away, but the seizures started up again. This time they put me on a strong anti-anxiety medicine. Paul arrived right before they wheeled me into the MRI. I was in and out of dreams. I heard loud noises. My family went to the cafeteria and waited. They thought it would take a half an hour and it took two hours. They thought maybe I would die. At the end I was awake. I felt a lot of pain in the back of my head. I was becoming restless.

The doctor came in after everything was done. He said he was puzzled by my condition. The MRI turned out fine. I didn’t have a brain tumor and it didn’t show up anything concerning. They told me to contact neurology after the holiday weekend and sent me home. The seizures continued. I imagined my life in a wheelchair. I wanted to die. I didn’t want to be a burden for my family.

My daughter cancelled her plans for the weekend including going out of town for a friend’s wedding. She worked out of my house. She did the cooking and cleaned my house. She wouldn’t let me be alone for one second. She didn’t let me walk alone. My son helped out with appointments and wouldn’t let me leave his side while he was with me either. My kids really stepped up. Even their friends offered to help. Arabella didn’t know anything about it. Even my dad called several times to check on me which was puzzling because of our relationship. In those ways, it brought us all closer.

For the first few days everyone was amazing. They treated me like I was on my deathbed, all hugs and love you’s. Everyone thought I could die. Then they became desperate. My husband was sobbing because he felt helpless and didn’t understand why I was suffering the way I was. He never cries. He became a Google doctor. He thought maybe this was a side effect of my sleeping pills. He wanted me to stop taking them. So did my son. His girlfriend and Angel thought it was dangerous to just stop taking my meds. They were discussing me like I wasn’t even there. No one knew what to do.

Meanwhile, my mom went up north for the holiday weekend and left my dad home alone. My dad ended up falling in the middle of the night and calling the rescue squad. My sister-in-law Carla got into a fight with my mom up north. She screamed at my mom out in the yard, regardless of the neighbors around, for cancelling my dad’s surgery and not taking good care of him. She totally lost her shit and my brother Mark had to leave with her.

Arabella yelled at Paul saying he turned grandma against her. She said someone in jail might pay her bond if she does special favors for them when she gets out. My daughter could be showing up on our doorstep at any time. Without talking to me Paul asked my parents if they would take her in if she shows up. My dad went to the ER again. My mom told us my dad wants to die. Paul said to her well join the club. I thought my husband was going to have a heart attack he was so stressed.

I kept having seizures. Sometimes I felt like I wanted to die. At other times I felt a great amount of fear like I was going to be attacked. Any small thing could set me off.

They told me to get an appointment with the neurologist after the holiday weekend. The earliest they could get me in was the middle of July. They told me to call everyday to see if there were any cancellations. I was able to get in the end of the week. My husband raced me there like I was going to the ER. He was incredibly stressed and almost got into a couple accidents on the way. As I was sitting in the full waiting room I started having convulsions again. I started crying saying I didn’t want to do this anymore. They took me in to do an EEG right away. They also took 8 more vials of blood.

Although I didn’t get all the test results back yet, the nurse said she couldn’t find anything wrong with me. She basically told me in a polite way that it was all in my head. She didn’t think it was ALS or MS, she thought it was from stress. My husband was overjoyed exclaiming it was wonderful news. I was pissed. I felt like something was wrong with me. I felt like I didn’t have any answers. If it’s all in my head why would my body do this to me? I can handle a lot of stress. I felt embarrassment and hatred towards myself. I just wanted to crawl in a corner and die. My husband asked why I wasn’t happy with the news. Did I want to die? I told him spending the rest of my life with a serious illness is not how I wanted to die. I just couldn’t believe my body would betray me like this. How could I trust myself? I had to cancel my motorcycle class. I’m not even allowed to drive right now.

After the appointment, I started to feel better. I’m not going to die. I started to eat again. Every day I’ve been having some small tremors but nothing major. It was a very traumatic experience for my family and I. Through it we learned some important lessons. I really matter to my husband and two oldest kids. They will be there for me if I need them. It was a wake up call to find a way to de-stress. In some ways it was a positive experience.

I really hope nothing like this ever happens to me again. I just wanted to explain what happened and why I was gone.

distractions

/ Outrunning my demons / 2 Comments

“There’s a difference between being happy and being distracted from sadness.”

I recently saw the above quote on Facebook and loved it. Lately close friends and family have been making happiness statements to me. Are you having fun? Did that make you happy? I’ll do whatever makes you happy. Would it make you happy if… It’s so good to see you smile and have fun.

I understand they want me to be happy and don’t want to see me suffer. The best I can ask for right now are distractions from sadness. The stress is really starting to get to me. It’s affecting my health. It’s wearing me down. I don’t think I can handle much more.

Happiness seems unattainable. It’s for other people. Peace and joy are glimpsed at illusions.

I have little control over the events taking place. I just want the suffering to end.

Most people don’t know what to say. That’s okay. There is really nothing anyone can do about it. I understand that.

Just be a friend. Don’t walk away. That hurts more than saying the wrong thing.

I don’t want to be a burden. I don’t want to play the victim. It’s just what is happening in my life. I don’t want to talk about it all the time.

But I am open to distractions…

Recently when my good friend Lisa was over it was eye opening to me. She has experienced a great level of pain and suffering. I didn’t know what to say to her. Offering up thoughts and prayers seemed absolutely meaningless. I just wanted her to be happy. I wanted her to think life is enjoyable and worth living. Maybe her suffering has some sort of purpose or meaning and she can take something bad and make it good somehow. I could feel her pain. Through my worry about the wellbeing of my friend I was able to see how others view me. I finally understood.