Aloha!

Paul and I just got back from our trip to Hawaii. Over the next several days I will be posting about our travels. I’m glad we were able to go. It was looking iffy about whether or not we would be able to go. Arabella was in crisis mode right before we left experiencing mania and psychosis. I felt like it would totally crush my spirit not being able to go. But I also felt guilty about leaving her. Some time there is not such a thing as good timing.

Paul and I worked hard to make the trip possible. We set up a meeting with a social worker who is working on getting Arabella a case manager. We had Alex and Lexi set up to watch over Arabella and our pets with Angel and Dan being the backup for them. Then we also had our best friends being backup for our adult children.

We were gone over Easter which was a different experience altogether. I felt a little bad for leaving over the holiday because I didn’t want Alex and Lexi to have nowhere to go. Arabella was spending the holiday weekend with my mom. Thankfully Angel’s in-laws invited Alex and Lexi over for dinner and even got them little baskets of candy. It warmed my heart to see them having a nice time without me.

I was worried about how things would go at home. But like most of my fears, the bad things I worried about didn’t end up happening. And the things that actually did happen were not expected. Such is life.

We ended up having a snowstorm at home while we were gone and the power was out for over a day. The power came back on in the wee hours of the morning right before we got home. Thankfully the refrigerator was pretty empty so we didn’t lose a lot of food. There are still some people without power from the storm. The yard is full of sticks and small branches from the strong winds which is really making the dogs happy.

Overall, though, everything went as good as it could. The medication is finally working and Arabella is no longer psychotic. She is doing so much better which is a great relief for us. We are slowly digging out of the pile of laundry, emails, and cleaning. The house is still standing.

We had a wonderful getaway.

Green light, red light 4

The aftermath after our daughter was committed was like that of a bomb going off. We were left with shattered lives and broken pieces of rubble. Shards impossible to put back together even as it was a few weeks before everything crumbled.

I can’t find the way back.

We both walked around like zombies afterwards. It’s even hard to focus enough to tell this story adequately. But that’s all a part of being in crisis mode. In utter despair our tears fell to the ground. Arabella was doing so well for the first six months after jail living at home. She found a job. We gave her a stable environment and that gave us a false sense of hope and control. The stress of her tonsillectomy was enough to send her into a relapse worse than we ever saw her in before. She was seeing things and talking to people who weren’t there.

I can’t find the road she is on.

The prognosis bleak, the illness severe. But it’s not the kind of illness where anyone brought her flowers and sent her cards to get well soon. There will be no speedy recovery. Schizophrenia, people shudder in fear and stay away as if it’s contagious. It’s not the mental illness offering up cutesy meme’s of awareness and support. It’s scary and shameful without go fund me and caring bridge pages.

I can’t find anyone who really cares.

I don’t want to talk about it over and over again to people who don’t understand. It’s exhausting in every possible way. I feel tired when I wake up. Bipolar mania, she needs support day and night. She needs support when I need to sleep. No, you can’t buy a snake. You talk too long and too loud. I need a break just to get the things done I need to get done.

I don’t have the strength to do this anymore.

Borderline personality disorder, sometimes you love me and other times you hate me. Which will it be today? It’s too much trapped inside of one body. Finally the doctors were seeing in the hospital what we were seeing at home. Right away, she signed an AMA (against medical advice) to come back home. They had 24 hours to evaluate her before she was going to come back home. Could we even take her back home? She had nowhere else to go.

I don’t know how to help her.

Sunday morning I tried to hide my swollen eyes as I went to church. I felt bitterness enter my heart. I didn’t want to see the happy healthy families. I don’t want to hear about kids going into the ministry. My daughter thinks she is God, does that count? It’s painful to see the normalcy all around me, like being impoverished while everyone is feasting on their riches. I don’t feel the joy or God’s blessings. I think I’ve been cursed since the day I was born. I don’t want to see suffering anymore. Sometimes I even get bored with my feelings of anger towards a God who is supposed to be loving.

Yet I can’t find the way.

What were we going to do? Where are the answers? What if she comes home too early in an agitated psychotic state? Do I call the police? Do I send her back to jail? Do I have her face her felonies or go to prison for an illness she didn’t choose and doesn’t have control over? How was I going to make hard decisions when I couldn’t even think? Decisions that could affect the rest of her life.

Yet I can’t find the way.

We had to find a way to get her to stay as if our very lives depended on it.

Where is the way?

Green light, red light 3

Arabella said she would go to the hospital if her dog Bryan could go with her. We waited for what seemed like an hour for the crisis center employee to find an open bed. Afterwards, she told us she found a place for Arabella. However, they would not accept dogs real or imagined. Arabella said that was okay because she was on the same wavelength as Bryan so she could take him in her mind. As soon as we could, we left for the hospital. The officers reminded Arabella to follow the rules and they left as well.

The ride to the hospital was long, not in distance but in endurance. Although it was late morning, I was exhausted. Arabella kept talking about algorithms, time travel, and said strange things like her dad wasn’t her dad. She didn’t have a dad, but then all dads were collectively her dad. She wasn’t making a lot of sense and I just tried to listen and placate her until we got there.

We went along with Arabella into the assessment room. We had to lock up all our belongings in a locker before we could enter. They took a wand to sweep over our bodies for weapons. Finding none, they opened the door with a badge and took us into the assessment room without windows. Once we entered, the door locked behind us closing us in the small room with the assessor.

There was paperwork to fill out and questions to answer. We didn’t have all the answers, but most of the time Arabella answered with green light, red light so we gave him our best guess. When was the last time that Arabella felt suicidal? We didn’t know. She was having a hard time being present. At times, she would laugh at nothing. When I asked her why she was laughing, she responded she could see lights and diamonds all over the walls.

On some forms, she wrote down that her name was God. She didn’t know how old she was because she was in an alternate world with alternate time. The questions she answered either yes or no almost angrily without expression. She told the assessor that she was married to Bryan and she lived with him. She said she was the president of the United States. About ten minutes later, the assessor asked Arabella if she was the president in which she emphatically answered, “What, NO.” She said she was several cartoon characters.

Arabella tapped on the assessors computer and said the computer was bugged. Then she stopped answering most questions and asked us repeatedly as her parents whether we chose red light or green light. If we answered green light, she said it was time to go home. If we answered red light, she said it was time to stop and go home. She wanted to get back to Bryan who was waiting for her at home.

After awhile, I asked the assessor what time it was. I made lunch plans with my friend Jen several weeks ago. Earlier in the morning, I pushed the time back to 12:30. It was already past 12:30. I asked the assessor if I could be let out to check my phone. Jen texted me 10 minutes earlier to tell me she was waiting for me at a table. What was I going to do? I asked the assessor if he thought it would be a while yet. He said the assessment was a lot more complex then he thought and would probably be a while. I decided to meet up with my friend and left Paul behind with Arabella.

I ordered a large pizza to bring some food back for him. We left in such a hurry we didn’t bring anything with us to even drink. In the hours we were there, we were each offered a small bottle of water. That was it. I quickly stopped back home to check on the dogs and grab my glasses. Everything was just as we left it. The lights were on and the coffee mugs were left on the table. As I was heading back I received a text from Paul saying he was ready to go home.

It was a miracle he was able to talk Arabella into admitting herself into the hospital to receive help. We were in a crisis mode, but the good news was that the doctors were finally able to see Arabella in the psychotic state we were telling them about. The last time it happened, she got arrested.