Update

It seems like I am blogging less and less. This is not what I want, but there are a lot of things that I don’t want happening right now.

Last week went by in a blur. It’s been a whole week since the salvage yard came by and picked up not one but two of my son’s cars. One has been dead for a long time, the other was at the mechanics half the summer and was deemed unfixable. The little bit of money we got for them was gone the same day because the dryer broke later that afternoon. Tuesday the dryer was repaired. Wednesday I dropped a weight on my foot at strength training class. Thursday I woke up to a flat tire on my car. The mechanic was throwing a customer appreciation party when I got there. I am suspicious that they were throwing it because my son’s car was towed out of there never to be seen again.

It’s a sad time here. The boats are coming out of the water this week for the winter. Last week was brutal. We got tons of rain and broke the record for the wettest year ever recorded in history. We still have 3 months of rainfall left on the year. It was a rough summer. A lot of people had to change plans because of all the flooding and rain. We only had around 6 weeks of warm weather. So we have to go into the dark days feeling like we didn’t have much of a summer this year.

I haven’t been feeling well. I think I am still anemic. I don’t have much endurance at all anymore. I’m still having insomnia and nightmares. Pretty much everything I eat goes right through me. I feel nausea and acid re-flux every day. I’ve been sticking to my diet too. I haven’t had dairy for 6 weeks and avoided all of foods I am sensitive to for 2 weeks.

It’s been killing me to watch my friends drink beer and eat pizza while I can only have the salad bar. A salad without cheese, eggs, tomatoes, and dressing. Plus I still feel sick. Some days I can barely eat I am so miserable. There is nothing I can eat that I want to eat anyway.

It’s been emotionally challenging being on a special diet too. I feel like an outsider looking in. I feel lonely and left out. I don’t want to go out to eat. I don’t know what to make for supper anymore. It kills me to make and serve dishes I can’t eat. Maybe it wouldn’t be so bad if I actually felt better. It’s been dragging me down. I’ve been having a hard time with this. I feel so angry and impatient with myself for feeling sick. But it is important to keep to my regular routine whether I feel up to it or not. I haven’t cancelled any plans, although some days I don’t feel like getting out of bed. Friends and strangers alike have been coming up to me and ask me if I am alright. I hate feeling weak.

The good news is that tomorrow I have an appointment set up with a health and wellness doctor. Maybe I can get my body back on track again.

Other than that, I have been doing a lot of running around now that my son doesn’t have a car. I have 4 teenagers in the house. In the morning I drop the girls off at school then come back to take my son and his friend to work. He practically lives here too. Then this afternoon I dropped my daughter off at work, picked my son and his friend up from work, and picked our foreign exchange student up from after school sports. Plus I went grocery shopping, have to make supper, clean up afterwards, and then go pick my daughter up from work.

Every day is a variation of picking and dropping off kids. I feel very busy but like I don’t get anything important done. It’s been frustrating and I feel like blogging has been the last thing on the long list lately. I am going to try to blog more and be more positive. We’ll see what happens.

Finding the key

I had a visit with my counselor to try brainspotting as an attempt to heal from the trauma I’ve experienced in my life.

I wanted to tell you about it before I forgot. It was a strange, almost mystical experience. My counselor asked me to bring in an item that would remind me of something tragic. I talked about the experience and then she had me follow a pointer with my eyes until I felt the strongest amount of emotion. I also had to focus on a part of my body that I felt that emotion in. I picked my stomach, because when doesn’t it hurt?

I was asked to visualize the negative emotions leaving my body. I thought of my grandma, that she was with me although she has been gone over 10 years now. I imagined blue birds taking the negative emotions from the top of my head from my straw like hair. Later I imagined that all of the negative emotions and pain that I experienced were worms that spilled out of my mind to feed the birds.

There was a great outpouring that the birds carried away, then later balloons came to assist the birds. I told my counselor that it felt weird. I was very skeptical and thought it was rather stupid at first. I am a very logical person, structured and rigid. There is no room in my mind for fantasy, make believe, imagination, playfulness, and magic. My world is not sparkly, it is black and white. My counselor said that is how I dealt with the trauma in my life.

After the appointment, I felt a sense of peacefulness that I can’t remember experiencing before. I did feel some brief intense anxiety that the birds flew in and took away. I slept for threes nights in a row without insomnia or nightmares. I even slept through a storm. I can’t remember how long it has been that I slept for three nights in a row without insomnia or nightmares. It was amazing.

But then it went away. The sadness settled back into my mind. Every time the balloons wanted to carry it away, the birds popped the balloons with their sharp beaks. Then the insomnia and nightmares came back.

There were two other times after that when I felt like the birds were taking out the worms and decay, on my first run after the 50k and when I was getting a massage.

Now, several weeks later, I am on lock down. The rational and logical part of my brain took back control. It is all rules and structure. There aren’t any feelings, good nor bad. I am back home where I feel safe.

But now I know there is another world of childlike wonder locked away somewhere in my mind. There is hope that one day I will once again be able to find the key to peace and serenity.

 

 

Unrest

I don’t want to do this anymore, this whole life thing. I want to hibernate somewhere, hidden away under cover.

I don’t know how I got to this point. I’m just tired of it. I’m just tired.

I couldn’t fall asleep last night. It was after midnight before I silently fell into slumber. This happened twice this week although this type of insomnia rarely happens.

I couldn’t stay asleep last night. I slept restlessly. I awoke several times. At 4 AM I had to go to the bathroom. This is the type of insomnia I call home.

I had one of the most intense nightmares that I had in a long time. I was a little girl. I was brought to an empty house because there was going to be a lot of blood, my blood. I went willingly because I knew I had to be the sacrifice. I was afraid. I was going to be hurt badly, but I would live through it. Before anything happened, the owner of the house came back. She looked like a grown up me. I told her that she needed to leave because she would get killed for being there. She tried to help me, we ran away. She was killed and I hid in the closet terrified knowing I would be next. Now we both were going to die because she tried to save me.

I awoke at 5:30, less than an hour before my alarm was going to go off.

Today is the day that my video is being posted. I didn’t know it until this morning. I hate the video. I want to destroy it. I feel so anxious about it.

Why do I have this need to tell everyone about the things I’ve experienced? I just don’t want to do this anymore. I don’t want to write. I don’t want to blog. I want to disappear off the face of the earth like I never even existed.

I thought of strange things. I remembered the book my mom used to read to me about Toad and Frog. They left the door open and winter came in. They were cold, sad, and lonely. They made soup out of their tears. It was almost as if the hauntingly sad child me came for an unwanted visit. But to cast her away would destroy us both.

I struggled to find the motivation to do everything I needed to do. Some days are like that. I’ve been stirring up my demons. But I was able to make it through. It is hard to do when my body and mind doesn’t let me rest.

Maybe tonight I will sleep.

Unrest.

 

Brainspotting

I’ve realized a few new things about myself over the past couple days. The things I once thought were normal, or at least normal to me, I am questioning. I think I just got used to some things that are just not right.

There isn’t a day that goes past that I don’t think about the childhood trauma I’ve experienced. I wish I could just get over it or at best think about these things every other day. As a result, I’ve struggled with lifelong anxiety and depression.

But that isn’t all. I constantly experience exhaustion and fatigue. My doctor wanted me to go in for a sleep study when I was in my 20’s. I did and was told that I never went into deep sleep.

I started reading the book The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Dr. Bessel Van Der Kolk. I would highly recommend the book if you have experienced or are interested in trauma in general. One of the chapters talks about EMDR. EMDR is a therapeutic process in which someone focuses on a pointer moving back and forth while thinking of traumatic experiences. It somewhat mimics REM sleep which PTSD sufferers apparently don’t get a lot of. It is supposed to be very effective in healing trauma.

When I was a little girl, my autistic brother was physically violent with me on a daily basis for years. Sometimes while I was trying to sleep at night, he would come in my room and threaten me with violence. As a child, I slept with my door open. You see, I was afraid of the monsters in my closet and the ghosts under my bed that would attack me when my door was closed. I thought like a child. I feared illogical demons instead of credible threats to my safety.

The stress hormones pumped through my veins with a steady beat day and night. My body learned to never relax. I had to be alert for danger at all times. Deep sleep wasn’t safe.

I started paying attention to my sleep patterns lately. They’ve been the same as long as I can remember. I don’t have problems falling asleep, but I can’t seem to stay asleep. I usually awake between 2 and 4 and stay awake for an hour or two. I try not to think because then I might as well get up because I won’t be able to fall back asleep. Sometimes I get up and walk around.

Usually once or twice a week, I have bad dreams. It seems when I am just about ready to go into REM sleep, my body awakens me. Even though the danger is gone, my body is still on high alert.

I can’t remember the last time I slept through the night. I can’t remember the last time I didn’t have a nightmare when I had a dream. When things are really bad, I experience insomnia and intense nightmares together on the same night. These are the nights that I wake up sobbing, can’t go back to sleep, and if I do I have nightmares again. Thankfully it doesn’t happen all that often.

I am exhausted, but can’t relax. My anemia is making things worse. I lack energy and can’t seem to think straight.

My counselor is trained in brainspotting, which is an offshoot of EMDR. Next session I am going to give it a try and see how it works. Maybe I’ll finally be able to get some sleep. Even though a pattern of insomnia and nightmares is normal to me, I don’t think that it is normal. Maybe there is nothing I can do about it, but I’m going to try.

Being weeded

The end of the week was just as strange as the beginning of the week. I don’t think I want anymore signs.

I’ve been struggling this week searching for purpose and meaning. I’ve been depressed and clinging dearly to life by a small cobweb string. There have been fights and arguments. There was one where I pried off my wedding ring just to chuck it at my husband. Maybe we should separate. Maybe we should divorce.

Most of our friends have already been divorced. Some live with another and never remarry. Some are on their second or third marriages. They seem so happy. Sometimes it seems so much easier to throw everything you have away and start all over again.

This week we will be married 22 years and lately it has been more difficult than it has been before. We let our children become the center of our lives and have to learn to live with each other again. We don’t know what we are doing. We had a newborn on our first anniversary.

This week our baby got her driver’s license, first try. I honestly didn’t think she would pass. While she was taking the test, I was already thinking about when she could retake it.

My husband got his hours cut at the business we sold. He is only going to be paid for 12 hours a week. That has been very stressful. We should be okay with the money we saved up. Tomorrow morning, however, Paul is planning on signing papers to become a franchise owner of a new business. He wants us to work together again. Most of the arguments were about me not working. Although I am almost done with my book, I had to set it down for awhile because I promised myself if I got really depressed that I would set it aside.

We decided to keep working on our marriage and to go after our dreams. If it doesn’t work out we could always do something else. We have to trust that things will fall into place.

Paul and I had a good day together yesterday, but things gradually fell apart. Arabella had a friend over, went to drive her home, and had the windows fog up but didn’t know how to defrost the windshield. I kept my ringer on just in case she needed more help. Most nights I turn my ringer off before I go to bed. I’m a light sleeper and figure my adult children can take care of themselves.

I was tired, but left my phone on and stayed up late. I received a call from Alex saying that his car broke down and needed towing. We just had it at the garage the day before, but they said what he needed fixing is very expensive. The body of the car dropped to the ground and he can’t drive it unless it is fixed. He was distraught that he now has two cars that don’t run.

He asked what the meaning of life was if it only brought suffering and pain to himself and the people he cares about. I told him he has a purpose and his job in life is to find that purpose. Don’t listen to the thoughts in your head that tell you that you are worthless. Don’t be discouraged, yet at times I am.

Now we are waiting to see if the car is worth fixing or if it is beyond repair. We got home late last night, around 1 AM. We were ready for bed when my phone rang again. My daughter Angel was calling. Her friends took her out for her 21st birthday. She was rather intoxicated and called to tell me she loved me. I talked to her for awhile, but she wasn’t making much sense. At the end of the call, her boyfriend Dan came on the phone and assured me not to worry that he would get my daughter back home safe.

I knew she was going out. I did worry especially since I wasn’t sure if Dan was going because he had a funeral to attend on the other side of the state earlier in the day. His uncle died in a freak accident trying to clean up after the storm that hit.

As I was ready to finally go to bed around 1:30, my mom texted and said she got safely to her vacation destination out of the country. She wanted me to call my dad because he doesn’t text and it was expensive to call. I called my dad today. At the end of the conversation, he told me he loved me for the second time in my entire life.

I went in the house to eat lunch with Paul and a song was on I never heard that said you’re being weeded.

Although I’ve been having a faith crisis, I’ve been still going to church because I am able to find some serenity there. Last week there was a sermon about how the weeds are planted alongside the good seeds. But if you pluck the weeds too soon, the plant will also be uprooted and die. But at the right time, the weeds will be pulled out and the plant can flourish and grow like never before.

I think I’m being weeded.

Not feeling well

To be honest with myself, I haven’t been feeling well for quite some time.

I noticed it several months ago when I transitioned from running on the treadmill inside to running outside again. I seemed more tired than usual. I didn’t have my regular stamina. Was it normal for my endurance to drop so drastically? I could run 6 miles without stopping relatively easily. Then I started needing walking breaks.

I chalked it up to aging. After all, I will be 45 in a few weeks.

Maybe I just wasn’t used to all the hills? Peri-menopause perhaps? Seasonal allergies? The cool rainy weather? Maybe it is normal to be sluggish at this age.

I doubt I could run a 50k with the shape I’m in today. I have two months to go until the race. How am I going to run further than I’ve ever run if I can’t even run 6 miles without stopping?

This week I had a physical with my new doctor. It didn’t go well. I complained about the fatigue. But what middle aged person is not tired? A couple nights a week I have insomnia, but it wasn’t anything new to me.

The doctor ran some extra tests. The results show that I am slightly anemic which does explain some of the symptoms I’ve been having.

But what really concerned the doctor was that I have been taking two Prilosec a day for GERD for several years without ever being scoped. She said that wasn’t normal for someone of my age and health. She asked several more questions, then said she would like me to get scoped and tested for Celiac which is an autoimmune disease. The only treatment of Celiac is a strict gluten free diet. I think 2 of my brothers already have undiagnosed Celiac.

I looked up Celiac when I got home. I have almost all of the symptoms and have had several of them since I was a child. I hope the doctor’s suspicion is wrong, but I think I see the writing on the wall. Even anemia is a symptom because Celiac prevents your body from absorbing nutrients. Otherwise it makes no sense since I am already taking a multi-vitamin with iron.

Today I bought donuts. I bought chicken patties to eat on big hamburger buns. I bought my favorite food, macaroni and cheese. I bought my very favorite craft beers. I am going to go to Arby’s to eat a big roast beef sandwich with mozzarella sticks on the side. I am starting to think of state fair cream puffs. I want to eat my favorite foods before I can never have them again. I almost started crying in the craft beer section.

I am feeling very down about this. I was told this was the best time in history to be gluten free. But that doesn’t make me feel any better at the thought of giving up my favorite foods and drinks forever.

I think it would be hard to even go grocery shopping. I don’t think I would want to go out to eat with friends and family. Forget parties. Maybe I won’t leave the house.

I need to stop taking Prilosec as well. I am down to one pill a day. I bought a big bottle of Tums and liquid antacid for the pain I will be in. It’s already started. This morning I felt nauseous. The acid burn in my throat is back, so is the burping.

But it will be good to have answers.

I have been feeling so tired, weak, and depressed lately. I have been having a hard time thinking. I am very organized and meticulously detail oriented. In the last couple weeks, I’ve forgotten things that were on my grocery shopping list. Today I went running and got lost on a trail I have been running for years. I can’t seem to keep a thought in my mind for long. I forget what I am going to say sometimes mid-sentence. That’s scary!

I am afraid.

I will have more answers soon and hopefully I’ll start feeling better. It just might not be the answer I want.

 

Hurt again

I felt a burning fire rage within me today. I think it was the combination of a lot of different things that ignited the fiery red flame.

Yesterday I wrote in my book about one of my most painful early adult experiences. Previously in my writings, there seemed to be a separation between what I was saying and how I felt. There has been an insulation protecting me from the words. Yesterday it was removed and I felt angry.

My mom always told Matt that it wasn’t his fault he was violent. Sometimes she told him he was having a seizure after being exposed to loud music. Most of the time Matt was told that he was having an allergic reaction. It was an accident and not on purpose. The school told my mom that they wanted Matt to be told it was wrong when he hurt someone and to have consequences for his negative behavior.

That never happened. Six months later Matt got arrested at school for assaulting his teacher’s aide. She was pregnant at the time and it took 2 adults to get him off of her. Matt’s aide was my childhood best friend Shelly. I was the maid of honor in her wedding. We were best friends forever, or so I thought at the time.

When I got married, Shelly wasn’t invited to the wedding. I had to choose between my family and my best friend. My mom had the attitude of oh well you were growing apart anyway. But if we grew apart and the friendship ended it would’ve been my choice, but it wasn’t. It tore our whole friend group apart.

It was very painful to lose a best friend, all my close friends really because my brother attacked her.

I was rage cleaning this morning as a result.

I had to take a step back from running. My Boston marathon friend contacted me to go running again. We ran 8 miles together at breakneck speed. Then she told me that I really needed to work on hill training. I pushed it really, really hard and ended up hurting my ankle. Now just walking gives me pain.

Something else happened too. Someone I know told me the story of how her son recently fell asleep while driving and caused a fatal accident. After hearing her story, I started feeling anxiety driving again. It started by not sleeping well one night, then driving Arabella and her friends somewhere for her birthday. I started to worry that I would fall asleep and kill someone too. For the last couple of weeks, my driving anxiety has been back and I am worried that it is going to turn into full blown anxiety again. I worked so hard to get over it.

I have just been feeling angry and frustrated by the things I have experienced and the things I am experiencing. My son had some friends overnight and I waited until 1 PM to vacuum near them. I didn’t say one word to them but they seemed so terrified of my anger that they went from a dead sleep to packing up all of their stuff and leaving.

My son saw me rage cleaning and asked if he did something to make me so angry. I told him that it had nothing to do with him really. He pressed me for more details and I ended up telling him about my childhood for the first time. He is almost 19 and will know all about it when I publish my book anyway. We had a really nice conversation for almost 2 hours. In that time my anger dissipated.

I’m not sure what is going to happen, but I plan to keep writing no matter how hard it is or gets. Sometimes it is very hard to stir up my demons because I don’t know how I’m going to react. This has been my biggest obstacle so far, but I refuse to give up. After all, that is how I hurt my ankle. Sometimes I need to learn when it is time to ease up. That’s never been my strong suit.

It sounds kind of funny. Most people complain that they don’t have my determination, but all I want is the ability to relax and not be so hard on myself. So here I am, hurt again.

Amongst the weeds

I wouldn’t say that I am the overly jealous type, not about material things anyway. The biggest thing that causes me jealousy is relationships.

I felt jealous when your parents moved up from a southern state just to be closer to you. I should have been happy for you, but sadly that was not the feeling it triggered.

The last time I saw my parents together, they were fighting. My dad went almost a year without showering when my mother said she couldn’t take it anymore. Now she said that he must shower once a week or there will be consequences. On that day, my mom and I went somewhere. When we got back, my mom asked my dad if he showered yet like he was a small child. He did not and she yelled that he better hurry or he would be in trouble. I would never ask them for marriage advice.

My dad did not attend Alex’s graduation. He did go up north with the rest of the family (not including us). He sat around all weekend in his underwear. This bothered my SIL Carla greatly and she complained about him. Carla and my brother Mark helped clean out my parents shed. Carla said now that it is cleaned out a little, they can fill it with more crap. Or maybe they can buy another car. Carla said she would love to buy a hearse for my dad. It was funny, yet it was not.

I felt jealous when your brother told me he was going to move closer to home to help you and your husband raise your first child. I know your family will be there for you anytime you needed them. I could probably count on one hand how many times we were able to get away when our kids were little because we didn’t have anyone to help us.

I had to schedule my 3rd C-section to be in the hospital over the weekend so my husband could watch our other kids. He just started his business and had to work on the day our last child was born. After he came back from working a few hours, my mom dropped off our other two children at the hospital because my brother Matt had an appointment. Matt always came first, even on the day I gave birth.

I found someone else with demons. We hold each other’s hands as we walk through our own hell fires. Paul is the only person I can count on and I trust he will be there until he can’t be. We’ve had to rely on each other.

Paul never had a dad. His mom had a brief marriage when Paul was little, but she left her husband because she said he was abusive. Martha did remarry after Paul grew up and left home.

Paul did not have one single person from his family to invite to our son’s graduation, unless you count his step-dad. His step-dad Darryl attended but brought a new girlfriend that we met for the first time that day. Darryl has moved on with his life. Paul shared his grief over the thought that his mother will no longer be remembered. He is an orphan. His whole family is gone.

Paul grew up with a great void. I grew up in an environment of dysfunction and abuse. We had to rely on ourselves to survive. It gave us grit and strength beyond belief. But there was no one to turn to when we needed help or advice.

It’s tremendously hard to create a healthy family without having a firm foundation to build our house upon. You may envy our fierce drive and independence, but behind it lies brokenness, emptiness, and pain. Maybe you envy our financial success, our big house, and attractiveness. But I’ll tell you what. We both would give everything we have in exchange for a healthy family of origin.

It’s amazing that we survived and thrived as beautiful flowers among the weeds in which we were planted.

 

 

Being in a better place

I met with my therapist this week.

She asked me what I thought about living in my old house. I told her that my old house wasn’t anything special but it suited the purpose at the time.

She then asked me what it was like living in my dream house. Did it change me at all? Do I feel like I am a ‘softer’ person? Did I give up some of my determination?

I said that I don’t think I changed at all.

To this she responded, what if you were a healthier person inside? Do you really think that it is going to change you for the worse?

She trapped me in my own thinking.

Maybe I could have inner peace without giving up some of the grit that survival awarded me with.

I did what I had to do in order to survive. But now I am stuck because I know no other way. It suited its purpose at the time, but I no longer need to live there.

Why am I so fearful of being in a better place?

 

 

Outrunning my demons

Arabella skipped school today. She was very upset and was crying this morning because she did not get cast in the next community theater show.

For some reason, it brought back memories for me of the time I tried out for a community theater show when I was a couple of years younger than her. Maybe it’s just because I am almost to this point in my book.

I remember sitting outside in the sunshine with other children that summer working on my lines. I got the part of a princess. I was a pretty little girl with the sun hitting my long golden hair. I was happy and excited about my part. It made me feel like I really was a princess.

But something went wrong. My brother Matt had to spend the summer in the hospital. I had to drop out of the show because my brother was really sick. (It took me 20 years to audition for another show).

After that, my whole life changed. My brother became home bound after getting out of the hospital. I saw the paperwork for that yesterday. The original paperwork gave him a period of 2 months to be educated at home. But he was home bound for over 3 years. My mom quit her job and pulled my other brothers and I out of school as well. It was the time of the great isolation. Few people were allowed to come in and we rarely went out.

I am making excellent progress on my book. I try to work on it several hours every day. There are usually one or two days a week when I cannot. Right now I am over 30,000 words and am nearing the halfway point in my story.

I’ve decided to title my book ‘Outrunning my Demons’ with the subtitle of ‘What Life is Really Like with a Mentally Ill Sibling’.

I know my daughter is very disappointed right now that she didn’t get a part in the show. I feel bad for her. But in a few days she will be on to something else. She probably won’t even give it another thought a couple months from now. But I will always remember the summer, over 30 years ago, that I could no longer be a princess.