Family

Autism’s sibling, journal 3 part 2

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One time when mom’s old friend stopped by, Matt threw rocks at her car and she left..

What I don’t understand is why the nice friendly Christian ladies at church didn’t offer to give us an hour break from Matt. We never got a break. I only had two friends that lived with me, my two cats. But Matt was mean to them and they eventually ran away. Life with him has been hell. Even though Matt is small, he is very strong.

I also have a lot of nausea. Once my depression and nausea got so bad I couldn’t eat. Nobody cared about me. Nobody cared about Mark either. They cared about Luke because he was a troublemaker and got a lot of attention. Sometimes he would even be as bad as Matt.

What I hated most was talking to relatives. They always asked how Matt was. That really hurt because it is like I don’t exist. Usually people ask how you are. But imagine if they asked about your brother and not you. It hurts to know that people really don’t care if I’m alive.

I remember when the three boys were wild at the table. Mom had to feed them. Mom and dad would fight. Mom would get upset and go upstairs to cry. I was her best friend. I would talk to her and tell her that things would be better tomorrow, but it never did. There were always more problems or more doctor bills. Things are better now, but I still feel the pain and it’s holding me back from being happy.

I had a friend that stayed over once in awhile until Matt kicked her. She never wrote back to me after that.

Alissa, 1990

Isolation…being completely alone…emptiness…a cold barren winter devoid of color….loneliness…the crying of the wind…sadness…the darkest days of the year.

Isolation…for three years Matt had a school teacher come out to the house to educate him. He was deemed too violent to attend school. My mom took a leave of absence from work and pulled my younger brothers and I out of school as well. Sometimes we only left the house once a week to go to church. I spent a lot of time alone in my room writing in my journals.

Emptiness…Robbed of joy and childhood magic…My dad couldn’t handle the stress…he was there physically, but he was gone emotionally…I had to step up to the plate…the firstborn…the caregiver…the fixer…weighed down with adult worries…numb to pain, numb to joy…Pushing all feelings away…left empty inside…Not able to feel anything.

Loneliness…Friendships were severed. When friends came over, it was a disaster. We only had people over once or twice a year and it usually did not go well. My mom and my cats were my best friends. I had more pen pals than actual friends, it was safer…the friends we had went away and never came back…

Sadness…My mother, the kindest and most compassionate person that you would ever meet. I think that it truly hurt others when they had to kick us out of public places because of Matt’s violence…he hurt someone…I have to kick you out…you are welcome back again, but give it some time…Those were the years when I saw my mother’s tears more than I heard her laughter.

Isolation…being completely alone…emptiness…a cold barren winter devoid of color….loneliness…the crying of the wind…sadness…the darkest days of the year.

I spent three teenage years completely alone..Those were the darkest years of my life. Years that I don’t talk about.

 

Places where the past and present collide

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The last few days I haven’t been feeling much like writing. I toy with the temptation of disappearing and being totally anonymous again. Strange thoughts trickle through my mind. I worry that my anonymity has been compromised when the phone rings. I get the pseudonyms crossed in my mind. Will I call someone by the wrong name in real life? Will I use their real name here? The boundaries blur…the wires cross…in my mind..

Time zigzags between the past and present…I enjoyed having Angel home over Easter break, but it blurred the adulthood with childhood in my mind. Is she still my child after childhood fades?

We had a bowling party for Matt’s birthday and a family get together for Easter. Right before the party on Saturday morning, I started feeling depressed and a tad bit angry. I didn’t want to share anything with anybody.

I always feel edgy right before family occasions. Matt’s party went great. We had a fun time. It’s just that sometimes in my head the past blends in with the present and I start feeling or thinking the way I felt or thought back then when Matt was violent.

A group of young laughing girls walked by Matt. I remembered the old Matt…the Matt that would attack them…the Matt that would pull their hair and kick them.

Fear trickled through me.

But the new Matt paid no attention as the girls walked by.

I can’t separate the past from the present. The old triggers still flip a switch in my mind that I can’t seem to turn off.

Yesterday, I pulled out another old diary from 1990. This was something I willingly decided to do in my writing process to confront my demons.

But sometimes I fear that this may trigger memories that are darkly hidden. I am afraid sometimes that I won’t be able to handle what I find…what I remember…and the feelings those memories trigger.

It seems insurmountable to me right now. Like running a marathon right up a mountain.

But once I make it to the top of the mountain, I will see things that I have never been able to see before…new insight, new understanding, a deeper knowledge…peace.

Sometimes I need to take a step back to go forward…too see where I’ve been…to notice how far I’ve already climbed.

I want to be able to put the past behind me so it doesn’t mingle with the present anymore. I think it is going to be a long and difficult hike up the mountain, but well worth the view at the top.

Maybe at the end of my climb, I can finally put my demons to rest.

Suppertime sadness

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The tool box clanks on the floor…It’s 6 PM…Dad gets home from work…Supper is on the table…Matt and Luke are tied to their chairs with my mom’s apron…otherwise they don’t stay…

Dad bangs his fist on the table…This dog shit you call supper…He roars as he walks away…The TV is turned on in the next room…laughter on the screen…laughter from my dad…my mom cries…The boys struggle against their restraints…

My stomach hurts…I don’t want to eat…But I have to stay until all of my food is gone..

Some harmless, some hidden

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Memories swirl around in my mind. Some harmless, some hidden..

…laughter of teenage girls…the lighter flicks…not to smoke…melting the tip of the eye liner so it glides on easier…

I put on eye liner for the show. It goes on easy. It almost smears, unlike the sharp pencil of my younger years…Does anyone use a lighter anymore to soften their eye liner pencils?

…I see a younger face in the mirror, then she is gone..

A harmless memory..

An interview for the show…

Were you ever involved in theater before you came to this theater?

…My dad dropped me off at the theater before work…I was the little girl with a small part in the show…I was dropped off early before everyone else…I walked the trails alone in the woods surrounding the theater, sometimes afraid…but it was only a deer…alone…fun on stage…the big kids…the costumes, the makeup…

…The only time alone with my dad…his boss taking him for lunch…maybe I can go too since I ride with him…laughter…why would I take you??

The next summer, I got a part in another play. I was a princess.

…Reading my lines out loud with the other princesses on the grass in a circle in the summer sun…gone…have to drop out…Matt is sick…my mom left for the summer to go to a hospital out of state with Matt…selfish…how could you still want to be in the show…your brother is sick…so lucky that you are not sick…so lucky…anger and tears…some things are more important…crying…no ride…alone…loneliness…missing my mom…fragments of memories reflect off the surface of the dark murkiness in my mind…

Were you ever involved in theater before you came to this theater?

Just one innocent question scratched the surface…I don’t answer…

It has happened before over the years…innocent questions avoided…the explanations too personal…too painful…they shouldn’t be, but are.

Over 20 years later, I walked through the doors of another theater…in another town…and left all those old hidden painful memories behind me..

Or did I?

The thickness of water

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Last week I ran into my aunt at the gym..I can almost hear you whisper to yourself…who cares?…Maybe if I told you that my aunt and uncle are going through a nasty divorce after being married over 30 years…my uncle is blood, my aunt is the water…that is the thick and thin of it..

When I saw my aunt at the gym, I gave her a big hug…I am the person that shies away from hugs, not the person that seeks out people in sweaty gym clothes to hug.

I didn’t even take her side…she wanted to leave…he wanted her to stay.

I am not sure why at the moment I hugged her after all of the hurt she caused.

I miss the times I visited them when I was a child…Nostalgia for the moments past…And, yes, I miss her.

When I was a child, there weren’t many happy moments at home. But there were many happy moments at my aunt and uncle’s home.

My mom would take my brothers and I to their house on a hot summer night and we would swim until dark. Afterwards, we would stay up late watching scary movies like Poltergeist.

I love swimming and scary movies. It reminds me of the happiest days of my childhood.

Sometimes I wonder if we like certain things just because they remind us of a good feeling…and perhaps the opposite could be true too…dislike for things that are reminders of bad times..

Then I wonder…what if certain periods of our life are so difficult that even good ‘things’ remind us of bad times…Can that trigger feelings of sadness?

Can we like things that we wouldn’t otherwise like just because of memories of doing those things with loved ones, like fishing for example…Or do we simply like what we like irregardless of relationships, memories, and emotions…

Here I go off on a thinking tangent again…

Maybe one of the reasons I saw my aunt at the gym was because of my love of swimming. We joined the gym again so I could practice swimming for the half Iron, something I probably won’t have even thought of trying if I was afraid of water.

Sometimes I love being on water more than land.

I certainly did not learn that from my parents..

My mother doesn’t swim and is afraid of water.

The only time my dad went swimming he terrorized me by pulling me under, throwing weeds or death stuff at me, or dragging me out into the weeds and forcing me to stand there even though I was afraid.

One of my most traumatic childhood memories is of being in charge of watching my younger brothers in the water when I was 6. I stood speechless in terror unable to call for help while my youngest brother struggled for air, choked on water, and almost drowned…My mom left me in charge for only a few minutes…Minutes that could’ve lasted forever…

I should be terrified of water.

Instead I love the feel of water around me. I love the bubbles that flow through my fingers. For some reason, I associate water with happiness instead of fear..

I have to wonder if my love for swimming sprouted from those hot summer nights at my aunt and uncle’s years ago.

It is sad to see their marriage come to an end. I have always known them to be together..But maybe, just maybe, there will be more stolen sweaty hugs at the gym. For a few moments, it can take me back to those warm (sweaty) happy summer nights when they were still together…back to some of the happiest days of my childhood.

 

 

Wings without roots

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Last weekend Paul went ice fishing with Darryl. (Yes, it was still cold enough here despite the calendar saying something about spring).

Paul and Darryl talked about fatherhood. Usually when the guys go out on the ice, they talk about nothing even if they are gone for the whole weekend. There is never any interesting gossip to share. Unlike getting together with a group of women which usually includes emotions, crying, and gossip galore.

Darryl told Paul that he was working on his will. Darryl wants Paul to be the executor of his will. Paul told him that he didn’t have to worry about giving us anything. After all, he isn’t Darryl’s real son and his mother is gone now.

Darryl has two sons. He kept his landline for years just in case they called. After Martha passed, Darryl was in rough shape. He really wanted to contact his estranged sons but didn’t have a way. I was able to find one of the sons on Facebook and told him to give his dad a call. Both sons called, but didn’t attend the funeral or even send a card. That was really upsetting to Darryl.

I always thought that Darryl would’ve been a great father. His ex-wife left him and moved out of state with their two boys when they were little. She was bitter and poisoned their minds against their father. He had the boys every summer for a few weeks. They were always trouble. They would steal money that wasn’t hidden away. They got in trouble for shoplifting. Both boys spent half of their adult lives in prison.

Martha always had that over Darryl. Look at your sons in prison while my son got an MBA and started a business.

So it went on for many years…Darryl wanting his sons…a father without his sons…Paul wanting a father…a boy without a father..

Regret…

Too bad Darryl came along after Paul grew up.

Darryl told Paul that he was a wonderful father for never having a father

Then the conversation turned to the identity of his real father. Darryl thought that Paul’s brief step-dad in early childhood was his father..

How can you be married to someone over 20 years and not know the identity of their child’s father??

I found that shocking. Wouldn’t you??  I guess that secret has been buried with Martha.

I asked Paul if he ever wanted to find his bio dad. Now would be the day and age to do it..We only have snippets of info to go on..his name was legally omitted from the birth certificate…but we have an approximate age…69…last name Wilson…no first name, just initials…in a Chicago motorcycle gang…from somewhere else…Kentucky or Tennessee…red hair…green eyes…

He may have died in Vietnam…he may have tried to steal Paul…he wasn’t interested at all in being a dad…the same conflicting stories told over and over that never made any sense.

Is any of it real??

I admit to being a little curious over the years, but Paul never wanted to know.

Sometimes, I google variations of the name on Facebook or online. Is that your father?? Is that your dad?? Sometimes the temptation to open Pandora’s box is rather great for me…But I can see that the problem with opening that box is the risk of knowing what is inside..We can’t unknow things after they are known..but sometimes, just sometimes, I want to peak inside..

Maybe I am looking for the wrong things…

Am I blind to what is right in front of me??

I should focus on the here and now without looking back…appreciate the man with strong wings to fly alone…and not look for hidden roots…

Maybe some things are better left buried…hidden in the past…forgotten forever..

The last conversation

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Death…lately it has been swirling around nearby…but it has yet to come knocking at my door..

Of all of my grandparents, three died of heart issues. One of a heart attack after having long term health issues. Two others of congestive heart failure after open heart surgery. They all made it to or past 80. I think that I can beat the heart problems that run in my family by running and taking good care of myself. I have low blood pressure and cholesterol. I am doing what I can.

My other grandparent died in childbirth at the age I am now. I think I can pretty safely surmise that that will not be my demise.

There is something about watching a close relative pass that makes me ponder my grand exit…or at least face the fact that I won’t be here forever.

Last week my last ‘great’ passed away. Now my parents are my oldest living relatives. This is frightening…where does the time fly to after it has passed?

I also found out recently that my great aunt passed away from a rare genetic lung disease that apparently two other relatives have or had. There is some confusion at this time because we really don’t know for sure.

I remember my aunt passing away from this horrible disease. I was really young then, so was she. She was on the lung transplant list. She couldn’t get around and needed her husband care for her.

Having my aunt and great aunt pass away from this and another relative has had it for over a decade now…I have to wonder or face the fact that it could happen to me…The first few days after I found out, I was really afraid.

Saturday morning, Paul and I sat in the hot tub and drank our coffee in deep conversation. I told him that I wanted to talk about this and that I would never talk about it again. I asked him if he would still love me if he had to take care of me.

Would you still love me if you had to give up sailing to take care of me? What if you had to give up all of your dreams the last few years of your life to take care of me?

As a very active person, a marathon runner, nothing torments me more than the thought of sitting still…being dependent on others…being a burden..

Until death do us part, but not together forever unless we die at the same time. He said that sometimes it is difficult for him to show he cares because I am so fiercely independent. Also, I care so much for others but refuse to let other people care for me. I rarely ask for or admit that I need help.

Paul said that his step-dad Darryl felt important and needed taking care of his wife during her cancer. Darryl took great pride in making her shakes. He patiently doted on her and it made him feel good. She wasn’t a burden as much as caring for her was a blessing..It showed us the power of unconditional love…

I also saw the genuine care and love that my uncle gave to my aunt while she was ill.

I found both situations very tragic yet touching to see such great care and love.

Sometimes I worry about Paul. His mom passed away from lung cancer last month and his uncle passed away from it last year. His grandpa had a massive heart attack a few years older than Paul is now. He has a family history of heart disease and cancer…the other side of his family history is completely unknown.

Would it be better to know?? I don’t know..

Despite the seriousness of the topic, we had a nice conversation over coffee…I felt that whatever happens I won’t be alone. Paul said if it comes down to it, we can sit together on the beach hand-in-hand sharing the same oxygen tank.

But until then, I decided that I am not going to worry about it anymore. Whatever happens happens. I am going to live my life to the fullest now.

We won’t be talking about this again.

This will be our last conversation about this too.

 

No escape??

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And just like that Angel’s college break is over…she is on her way home(?) even as we speak..

I felt bad since she was sick the whole time she was home. We did get a lot of appointments checked off our list, but we didn’t have a whole lot of fun things planned.

That is why I booked a family outing to the escape room on Friday night. Alex’s girlfriend Baylee joined us too. It has been on my bucket list for awhile. As the event drew closer, I admit I was a little nervous. I had to sign a waiver saying that I wouldn’t hold them liable in case of death, domestic disputes, panic attacks, etc… Wait? What? Panic attacks?? I briefly remembered my extreme fear of being trapped…my panic on airplanes..What did I get my(self) whole family into??

My mind was put at ease the minute I entered the room. They did have an escape emergency release button in case of a fire, natural disaster, or bathroom necessity. Of course, the fire code! Now why didn’t my worried mind think of that?? Must be because I gave up worry for Lent. Ha ha..

We were given an hour to figure out puzzles and riddles to escape. We were in a dimly lit room. It was hard to see with my old eyes to put the codes on the locks. I found myself good at holding up a lantern. But as for solving the clues, I don’t think I think that way. My son Alex was a genius at it. When we finished, they offered him a job which would be a perfect fit for him.

They were really excited to hear that he has some work experience in the field. A few years ago he worked as a zombie for a paint ball place at Halloween time. He got paint in his eyes and mouth, welts all over his body, frostbite, shot at close range by drunk guys, almost got hit by a vehicle because he couldn’t see out of his mask, and I had to pick him up after midnight..He did all this for $30. I don’t even think that Darryl would do that. (Last time I mentioned my step-father-in-law was picking up bodies for $50).

We were successful in escaping the room with 3 minutes to spare.

My friend and her family were not able to escape a different escape room and her kids are all geniuses. Is it bad that I am so competitive?? Challenge accepted.

Afterwards, we went out to eat. When we got home, I was so exhausted that I went to bed right away. I had Paul wait up until Alex got back from taking Baylee home. I was drifting off to sleep when I heard the phone ring. Alex hit a deer with his car. The deer landed dead in the middle of the road and did some damage to the car. Alex had to drag the deer off into the ditch and drove home with one headlight.

I told my mother what happened. She was worried that Alex was crawling with deer ticks. Did I check him?? Well, no.. It’s cute, my mom thinks I don’t get my worrying from her.

It was sad to see Angel off, but things have been better since my last post..

Why worry?? Why?

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I really shouldn’t be here talking to you right now. I simply don’t have the time. But if I don’t tell you what has been going on the last few days I will go absolutely crazy! Oops…sorry…CRAZIER..

My daughter Angel is home for spring break…it has been absolutely freezing out by the way..It all started Tuesday…I was going to leave work for an early lunch to go train. The plan was to swim and then bike 20 miles. When I stopped at home, Angel said that her ears hurt and she needed to see the doctor. I set up the doctor appointment…there went my work out over lunch..

Technically, I didn’t need to accompany Angel to the doctor since she is an adult. But her brother is being treated the second time for a bacterial colitis he picked up from being on antibiotics while visiting his dying grandma. Seeking treatment meant the possibility of catching something a lot worse. Plus she didn’t have a car.

How could my day get worse??

Then Paul told me that he was coughing up blood. Since his mother died last month from lung cancer, I told him to get it checked out. I am terrified that he is going to work really hard and die before he sees the fruit of his labors. Lately I have been telling him that I don’t want to retire and walk the beach hand-in-hand with someone else. Harsh, I know. Although he is also a runner, he has the tendency to drink and eat too much under stress. A couple weeks back he wolfed down a whole bag of chips.

I worry…He drinks..

For Lent, Paul decided to give up drinking during the week. He said that he wants to be more self-disciplined like me. I want him to be healthier. That is when I decided to give up worrying, or should I say excessive worrying because I want to be more carefree and positive like him.

So far it is not working out as well for me as it is for him..

Paul made a doctor appointment for the following day.

How could my day get worse?? Then my mom sent me a text saying that my aunt had a stroke and is unresponsive. Perfect!

After Angel’s doctor appointment, I decided to swing by work to take care of a few things that I needed to do before hitting the gym. There was a big problem with a new large client that I ended up getting sucked into. I missed the open swimming time. I barely had enough time to squeeze in 20 miles of biking.

I missed my last scheduled run on Saturday. The kids had solo and ensemble. My son was one of the few kids to make it to state for a very difficult band solo. We realized for the first time how gifted he is in music. I have 2 kids that are extremely talented at music and one that is not. Arabella did a vocal trio. One of the girls didn’t show up and it didn’t go well. All of Arabella’s friends from the theater watched her and she was mortified.

I had planned to go to the gym when I got home Saturday afternoon. I got back later then expected and had been battling a cold for a few days. Instead, I fell asleep for an hour and a half. Paul said that maybe I should give up all my racing and just be like everyone else since I seem to be having such a hard time finding balance in my life.

After my 20 mile bike ride, I left the gym and drove 40 minutes in the opposite direction to pick up Arabella from her after school activities. She played her music really loud on her cell phone. I told her to turn it down. She said that I was annoying and that is why she hates me which was frustrating.

This all transpired on Tuesday.

Wednesday morning I awake to a text from Arabella’s coach saying that her drama team is going to make it to state. The top two teams competing in each challenge make it to state. There are only two teams competing, so they automatically go to state. This wouldn’t be a problem except that they changed the date of state this year because of Easter and moved it to the weekend that we are going to be performing in a musical. Of course, I didn’t find out about this until a commitment was made to both events. So I am faced with either pulling her out of the musical last minute for one or two shows OR have the team go to state without her and having to rewrite the whole script without her in it last minute.

Maybe things will be better at work…When I get to work, I drop my keys between the seat and the console. They wrap around under the seat and I can’t fit my hands in to get them out. I spend the first half an hour of my work day trying to dislodge my keys. I cut up my hand and get blood everywhere but can’t find bandages. I also lost my key charm in the fight, but got my keys out.

Work is the busiest I have seen it this year. We had to hire a new employee and if it doesn’t slow down we might have to hire a few more. This is all wonderful, but stressful especially since one of the employees called in sick yesterday.

The doctor said Paul has an upper respiratory virus. He came into work with a fever. I need him to pick up the slack from the employee that called in. Then I am faced with the decision to either stay at work late or go with my mom and uncle to visit my ailing great aunt. I walk away from a big pile of work and choose family.

After I drive my mom and uncle over an hour to visit my aunt at the nursing home, we get there 15 minutes too late. She already passed away. We walk in through the closed door to find the nuns and nurses anointing Aunt Doll’s head with holy water. They put water on my finger to anoint her too. Then we sing Amazing Grace over her body. We cry. Enough of the death and dying already!

The most horrifying part was that it wasn’t the stroke that killed her. I found out last night that it was a genetic lung condition that killed her. The same lung condition that claimed the life of my oldest aunt. One or two of my mother’s cousins are also afflicted with this disease that renders them wheelchair bound and hooked up to oxygen. Oh my!

Is everything that I am doing right now in vain?? All of this eating healthy and working out…Will I be like them? I don’t think I could handle it. Will I have to watch my mother die this way?? My daughters?? It seems to present itself in females more than males.

Last night before going to sleep, I said my nightly prayers…as I was praying to God I could hear my dog puking outside my bedroom door…

God, I can’t take this anymore..

 

 

 

 

 

 

 

 

Funereal unreal

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When I was in my last month of college before graduation, I took a career and aptitude test. The test results said that I should be a funeral director. Seriously?? I didn’t go to school for that. Was it the school’s plan to have me stay for a few more years?? Why didn’t they do the test before I picked a major??

I could see myself being a good funeral director. I am very serious, calm, and have a deadpan demeanor about me.

But sometimes I have a strong urge to laugh when least appropriate. Maybe that is a common fear of extremely self-disciplined stoic people. Let loose…quit being so serious…but do it to the extreme…laugh at a funeral…swear in church…dance and sing down the aisles of a grocery store…scream in the library..

It probably wouldn’t have worked well for me.

A few months ago, right when my MIL was in the last few weeks of her battle with cancer, her husband Darryl’s job of several decades was on the line. The company that he was working for got bought out. He lost his job as a forklift driver and his hours got cut in half. Just what he needed with the mounting medical bills coming in.

Over the years, he had other second jobs to make ends meet. He cleaned a clinic, plowed snow, and was a chimney sweep just to name a few. He worked as much as possible before work and after work. Plus he maintained a large garden, fished and hunted for food, fixed his own vehicles, and chopped his own wood to heat his house. One time he even cut his leg with a chain saw. He was even good at sewing and stitched up his own leg to save a doctor’s visit. Not at all squeamish…

Maybe you know where I am going with this..

Right now Darryl is working part-time cleaning the meat room. Not a fun job. The last time I saw him, he showed me where he got electrocuted on his finger. Eccentric man, that Darryl. So I didn’t think it was all that strange when he told me he asked the funeral director if he had any work..

Now Darryl has a new second job. He will be picking up bodies. Fifty bucks a stiff. I can picture Darryl now with a couple of bodies in the back of his pick up truck…

We briefly talked dead seriously about starting a new family business…