- I am thankful for the beauty of the freshly fallen snow and the opportunity to go snowshoeing for the first time. It is good to have active winter hobbies.
- I am grateful that my husband is a genius at budgeting and finance. He is great at managing the household financially and that is one less thing I have to worry about. Plus while we were at the bank, my husband brought me over a sucker when he took a cookie since I couldn’t have one. I am thankful for the little things, not being forgotten.
- I’m grateful that my husband and brother Luke when on a men’s retreat together this weekend. I hope it was a time of spiritual renewal so they can have more faith to keep walking the narrow path during tough times. I am thankful they were able to do something together.
- Instead of isolating myself when my husband was gone, I reached out to a friend I haven’t seen in about a year to go cross-country skiing.
- I am thankful no one else in our house got sick after my daughter was sick and missed several days of school this past week.
- I love to read self-help type books on various topics. The last book I read, although helpful, was very dry and hard to get through. I’m grateful I finished the book this past week after taking several months to read it. I started reading The Tattooist of Auschwitz which is very good.
- I am grateful to have another light week and weekend coming up.
- I am grateful for the busyness of having 4 teenagers in my house. In a few months I won’t have any teens in my house.
- I am grateful that Arabella’s credits as a foreign exchange student next year in France will count towards graduation when she comes back home.
- I am grateful to have friends and ‘family’ around the world that I hope to visit someday.
What does the whole healed version of me look like?
- Sleeps restfully without insomnia or nightmares.
- Does not let the bad choices of others affect me!!!!!!!!
- Energetic without anxiety.
- Quieted inner critic.
- Healthy, no more gut issues.
- Does not excessively worry.
- Relaxed, not always on alert for danger.
- Peaceful. Serenity. Tranquility.
- Wisdom to help self and others.
- Joyful despite circumstances.
- Able to feel and express feelings.
- Sets boundaries.
- Less black and white/all or nothing thinking.
- Able to admit faults, tolerant of imperfection in self and others.
- No longer tries to fix/control others.
- Unconditional positive regard.
- Works on relationships/trust issues.
- Gratitude for what I have.
- Be able to see the best in others.
- Trusting, but not gullible.
- Takes better care of myself.
- No suicidal thoughts.
- Able to depart from a routine without stressing out.
- Able to enjoy accomplishments.
- Not let the past dictate my future.
- Not be triggered so easily by everyday things.
- No delayed processing of feelings.
- Work less, play more.
- Saying ‘no’ more to things I don’t want and ‘yes’ more to what I want.
- Not being afraid to speak my mind or stick up for myself.
- Be honest.
- Embrace both my strengths and weaknesses.
- Appreciate everything I’ve been through and allow it to be an inspiration for the healing of others.
- Deeper meaningful relationships.
- Being willing to listen even if I have to set aside my to-do list.
- Be patient with myself during the healing process even if progress is slower than I’d like.
- Get out of survival mode.
- Let go of things not worth holding onto.
Well, I think this is a good start…..
Last night I finished my book, my life story. It stirred within me many mixed emotions. I felt like I was covered in a blanket of deep sorrow, yet at the same time I felt joy. It’s been a journey of remembering and releasing in words previously unexpressed.
Last night I sent my book to two test readers, a friend who is an author and a friend that is a child psychologist who works specifically with autistic children. I also sent a copy to my therapist. After I receive feedback, I will edit my book again. Then I want to send my book to my husband, my daughter Angel, my son Alex, and my brother Luke. After that, I am going to find a publisher. Then I will share it with you.
Perhaps this will start the healing process, perhaps not.
I figure if I can do some really difficult things (like running a 50k or writing a book revealing my trauma), then I probably can figure out a way to do something almost everyone can do. Relax. Heal. Let go.
I have been working with my therapist on brainspotting. I shared my first session with you and that was a very positive experience. After that session, things took a dark turn. I have been releasing all of the negative garbage I’ve been holding inside. It stinks! I’ve been working hard on trying to express my feelings. It has been painful, yet beneficial. Through this process, my lifelong struggle with insomnia and nightmares has gone away.
For a long time, I understood myself. I know what triggers my depression and anxiety. I understand the attacks of my trauma on my well being. But I’ve never known what to do about it. Visiting a therapist is taking the next step. Self-awareness is important, but it isn’t a catalyst for change.
I’m trying to give up control. It’s not like I had any in the first place. Just like being a clean freak never seems to make the dirt go away. Being a control freak doesn’t give peace and serenity to the voice that cries out for it. Worry is a waste of time. It doesn’t bring me peace.
I am trying to figure out who I really am. For most of my life I lived in survival mode. Now who am I? The person I needed to be to survive? Or who I really am? It’s hard to be myself if I don’t know who I really am. It’s a new time for self-discovery and growth. I want to fully experience my purpose in life.
I started meditating. Maybe I will try yoga. I always burned my anxiety off by hard workouts at the gym. This is how I process my anger. I am going to keep this, but add to it by including relaxation exercises.
I am going to read a Bible verse a day. This will incorporate inspiration for spiritual healing and growth. I want to trust God more. I also want to trust the people that care about me even if it means I might get hurt. I want to cultivate meaningful relationships. I want to cut off unhealthy relationships altogether, and if I can’t then I’ll set healthy boundaries.
I also started visiting a wellness clinic for physical healing of my body. My nervous system took a big hit from the long term stress. I suffered from stomach and GI issues my whole life. I’ve been working on avoiding the foods I am sensitive to and rebuilding my gut for optimal physical health.
If I can train my body for a 50k, I can train my body for growth and healing. My book is done, but I will never stop writing. The story hasn’t ended yet. The best is yet to come.
I am so relived that all of the difficult things over my head this month are now done.
I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.
Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.
Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!
I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.
Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.
Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.
Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.
It is finished now. I sent them. Whatever happens, happens.
Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.
I am done, done, and almost done. If I heal and help other people in the process, it is worth it!
I did it! I finished my first 50k.
The ultra marathon started at 6 AM. I got up at what would’ve been 3 AM my time at home after a restless night’s sleep.
It was still dark when the race started. I borrowed my cousin’s headlamp. I thought that I could just use my cell phone, but was told that a headlamp would work better. I never ran with a headlamp before. It was disconcerting and took some getting used to. I felt like I was running with a strobe light.
I felt tired and had stomach issues for three quarters of the race despite my best efforts to get enough rest and not eat anything that could possibly disagree with me. My body likes routine and kept cuing me that something was off. I did a lot of walking dragged along by my cousin who was always in front of me. He kept encouraging me along and everyone else along the path.
As the day grew long and the end neared, we greeted everyone and were greeted with a great job, keep going, looking good. It was a difficult course despite near perfect weather conditions. I saw runners vomit, covered in dirt, lay on the ground, and fall in front of me. Some were running the 100 mile race that started the afternoon before. Some looked strong and others looked like they were barely holding on.
Every muscle in my body screamed at me to stop after I ran the length of a marathon. My feet ran along in a slow shuffle. In my mind my movements were exaggerated. I thought I was picking up my feet high enough to get over several roots on the trail. Twice I tripped and caught myself from falling. My body jolted in a pain so fiercely never experienced before.
There was no way I could keep up to my cousin after that, but he wouldn’t finish without me. He told me how strong I was and to keep going. The closer I got to the end the more my mind told me just the opposite. I sucked at running and was despicably weak.
Meanwhile, Paul and my cousin’s wife followed us around routing for us. They stopped in the middle of the woods for a picnic lunch which prompted a runner to ask them if they were real.
C’mon now, we only have a 10k left…now a 5k. After another mile, we just had 3 miles to go. Wait you told me that a mile ago. Are you lying?
The last two miles were the hardest. It took everything I had to just keep walking. I never ran that far before. I didn’t trust myself to run. I felt like I was going to pass out. But I was determined to finish even if I had to crawl. My cousin said he would carry me across the finish line if he had to, but I said I would never allow for that.
My cousin is a very kind and caring person. He stopped to offer help to everyone he saw struggling on the path.
Finally we were about a mile away. I saw some fortune cookies left on an almost empty snack table. In only one package, there were two fortunes. I convinced my cousin that those were for us.
Ability will enable a man to get to the top, but character will keep him from falling.
Seems fitting, I guess. I am quite the character.
Finally, the end was in sight. I ran with all the strength I could muster across the finish line.
Courage comes through suffering.
This fortune cookie blew away from the rest and was found the same day I found my lost ‘I am courageous’ sock. I only wore the socks once before losing one in Paul’s shirt for a couple weeks.
It seemed like a sign of some sorts. But what does it mean?
What does being courageous even mean? The dictionary defines courageous as not deterred by danger or pain; brave.
I would like to think that I am courageous. In the next couple weeks I am planning on doing courageous things.
This weekend I am running my first 50k. It takes a lot of courage for me to do this and probably will entail a lot of suffering too. There is no guarantee that I will succeed. I am very fearful that I might not be able to achieve the goals I’ve set in place for myself.
Within the next two weeks I will be submitting a 45 minute presentation for a local autism chapter about what it is like to be a sibling of someone with autism. I really need to put myself out there about the most difficult experience in my life. It is going to require a lot of courage. I am finishing my book on what life is really like with a disabled sibling. I’ve had to face my scars and demons.
As an extra test to my bravery, over the holiday weekend a filling fell out. I went to the dentist today to get it fixed. They said I could probably do it without being numbed. I would rather run a marathon with a broken leg. I was horrified and then they said I could get anesthesia just in case. But I decided to brave it despite my fear.
Then this past weekend I spoke to my dad about God. I don’t feel like he has much time left. For some reason he has softened his heart toward me lately. He told me that he loved me for the second time in my life. The first time was on my 18th birthday prompted by my mother. Then this weekend I asked him to come out and sit with us, his family, by the campfire. Surprisingly to everyone, he did.
Before this, I justified to myself that someone else should talk to my dad. My brother Luke sat down with my parents awhile back and aired out all of his grievances. It seemed like a good thing. I thought that he was getting along great with my dad. I felt like Luke is a better Christian than I am so he could carry the weight of talking to our dad. But my eyes were opened to the fact that Luke and my dad do not get along.
My mom is a devout Christian and my dad is a Christian bashing atheist. I bet you can guess how that worked. I believe that the best marriages are of those that have the same religious beliefs. Because, we the children, have to take sides. I feel the need to talk to my dad about God. I most likely wouldn’t have that burden if both my parents were Christians or atheists if I followed their beliefs. It causes a lot of disharmony and stress.
So on the way out of the cabin this weekend I said to my dad that I hope he finds God before God finds him. My dad laughed and said fat chance. I knew that my words probably did no good for him, but it released me. I did everything I could and if it is the last time I see him I will know that I did not leave a coward.
I don’t think that I am more courageous than the average person, but I am trying to be brave when there are demons to slay and fears to conquer.
I’m STILL waiting for a call from the doctor. I did get one call yesterday. It was from someone who barely spoke English trying to sell me final expense insurance. Did they somehow know I was worriedly waiting for test results?
At least all of this waiting gave me plenty of time to think. If I end up not having Celiac, I think I will go the allergy testing route. I was going to beg the doctor to put me back on Prilosec, but decided against it. When they did the scope, they found numerous polyps in my stomach that they think were caused by long term Prilosec use. It’s rare that they are cancerous, but they could be. They did a biopsy, but couldn’t remove them all.
In the meantime, I’m running out of time. My first 50k that I signed up for is a little more than a month away. I’m planning on running a marathon distance next week.
Training for this has been incredibly challenging. I really didn’t realize how awful I’d feel off of Prilosec. I have been feeling sick to my stomach a lot or having a stomachache. Several times I have been afraid to be far away from the bathroom. I’ve had to turn around and come back home. I’ve had to run into the woods. I’ve had no where I could go.
Being anemic, I feel exhausted, weak, and lightheaded without running. Running I feel like my legs are made of lead and I have a large weight on my back. Most days I need to take a nap.
I hurt my ankle last month and had to take some time off.
The weather hasn’t been cooperating either. We had a late start to the summer with record rainfall and cool days. My favorite trails were underwater. Some of the races in our area even had to be cancelled due to the weather. Then summer hit full force. Tomorrow will most likely be one of the top ten hottest days on record in our area. Followed by more rain and strong storms.
The storms have been hitting us unexpectedly at times. Just this week I drove my daughter to camp. It was sunny, hot, and humid. We passed a lady walking with her child on the way. By the time we got to camp, there was a continuous roar of thunder and heavy rain. On the way home, I saw the lady with her daughter who was about ten. It looked like the mom was huddled on the side of the road trying to protect her daughter. I know how terrifying it can be to get caught in an unexpected storm, so I pulled over and offered them a ride home.
I hollered at them to get into my car fast because a car was coming and I didn’t know if they could see me stopped in the torrential downpour. I was out in the middle of nowhere. I was almost out of gas. I was hydroplaning. Cars were driving slow or pulled over to the side of the road altogether. But it was exhilarating. I got someone home safe. But it grew exhausting driving about a half an hour through flash flooding in a torrential downpour.
You would think that all the rain would’ve washed all the mud off my car from trying to find a hiking trail that had its access dirt road under water. But no. Unfortunately, my car was unable to get through the washed out road. Instead it looked like I went mud running which regrettably didn’t earn me any bad ass mom points with my teenagers.
Needless to say, I have also wanted to stay close to home for fear of getting caught in a bad storm. Not to mention, I had a lady come up to me when running to tell me that a bear was spotted on my running route. Then there is the endless stream of drivers hellbent on trying to run me down with their cars.
I almost deserve more than a banana and medal if I can finish this race.
The good news is that I found a new running trail pictured above. It seems pretty safe and full of nature (and bathrooms). Despite my health and fears, I am determined to run this race. I might not finish, but I sure am going to do my best to try.
It’s been a busy week and I haven’t really felt like writing.
Most of the time I have no qualms about throwing it out there. But for some reason this week I’ve felt impersonal. I want to keep my distance and my thoughts to myself. I worry that I’ve already shared too much.
I feel frustrated. My thoughts are fluctuating about my writing. One day I have great confidence. My book will be a bestseller and I can’t wait to chronicle my descent into despair. The next day I want to walk away from it all and not open myself up to be vulnerable to the world.
I don’t think I’ve ever read a book that has been as personal as mine is going to be.
Word has gotten around that I am writing a book. I got a call from a publisher this week. She wants to meet for coffee to discuss my book. She said that memoirs are flying off the shelves right now. She wants me to send her a sample of my book. I am thinking about turning her down, but I am not sure if that is a smart idea. She is a small publisher that mainly publishes works of fiction.
I am not ready to deal with this yet. I want to take my time and write a great book before I worry about finding a publisher. Then I feel bad because I have some good friends who wrote great fiction books and haven’t been able to find a publisher.
The end of the summer, I will be public speaking about being a sibling with an autistic brother. My contact said that once I have my book written, she had someone interested in publishing. I would prefer to publish my book in the mental health memoir genre. Now I will need to reach out and contact them to see what my options are. It is all very confusing as a first time author.
All I want to do is write my book and not worry about anything else right now. The publisher said that if I finish writing a book, I will find myself in the 1% of the population who has. That is rather exciting, but I have no interest in being an author.
I just want to write my book. I’m not sure what I’m going to do after that. I can see myself doing public speaking and being an advocate for families, especially siblings, of the disabled. But I haven’t even done my first public speaking stint yet. Maybe I won’t like it. Maybe I won’t be good at it. The thought of public speaking about something this personal is starting to fill me with anxiety.
I’m not sure where this path is going to lead me and I am filled with doubt. But I think I need to keep writing.
I just signed up for my first 50k.
There is no turning back now. Thankfully, I have until September to train. I will be running the ultra with my cousin.
It has been a cold spring here in Wisconsin. I have only been out to run a handful of times. Today’s high temps are in the mid-40’s and it is raining. Yuck! But at least it’s not snowing.
I was able to run with my new friend from the theater. I doubt we will ever run together again and I am okay with that. She is so much better than I am. What I didn’t know was that this new friend qualified for the Boston Marathon 6 times and ran it twice. She even ran something like 10 miles the day she gave birth. Talk about hard core!
She is a couple years younger than me as well which doesn’t sound like a big deal, but it is in the racing world. Maybe if I was 20 years younger than her, I would be able to keep up. That might even be pushing it.
Now that I am almost 45, I don’t have the stamina I used to.
I had a really bad run outside a couple weeks ago. I was several miles from home when I had to go to the bathroom really bad. I was in the suburbs and there was no where to go. I was so tempted to run up to a stranger’s house and ask if I could use their bathroom. How mortifying would that be! Every time I ran, the urge to go was stronger but walking prolonged the journey home. I called my husband to pick me up, but he didn’t answer. There were people everywhere. I finally made it home accident free.
Maybe I need to add Depends to my running supply list! That is the only thing I like about running on the treadmill at the gym. There is a bathroom close by if I need it. It is easier to stay hydrated as well. I finally broke down and bought a hydration belt with water bottles for the long runs outside.
Again, having to go to the bathroom is always an issue outside. Not to mention bugs, pop up thunderstorms, reckless drivers, adverse weather conditions, those horrible hills, chafing, injuries, dehydration, and animals. But that is what also makes for the best stories and adventures that won’t be forgotten. It’s the dirt and the grit. Determination. The testing of the limits. The long runs to think. Enjoying nature when it doesn’t call. The friendships, the camaraderie of strangers, the goodness of fellow travelers along the trail. I love it all!
I am hoping that the training goes a lot better once it warms up outside. Since I have a few marathons under my belt, what is a few more miles? Right?!??
My daughter wants to lose 100 lbs.
She blames me for her weight gain, and for part of it I blame myself. She was pretty settled into her life when everything changed. I told myself that she would be able to adapt since she is the one that likes change. Plus it was a positive change. Change for the better should be easier, right? To think I thought that the pets would have a harder time adjusting than the humans.
She always lived in the same small house up to that point. She went to the same school where she knew everyone since 4k. She had a group of friends that she fit in with. Plus we weren’t moving far away so she could still see them if she wanted to.
When we moved, everything changed. Arabella started her sophomore year at a new high school. I told myself that it is a nicer school and it is. Some of the kids from her old school decided to go to that school out of district. It’s a bigger, better, and richer school with more resources.
When I drop Arabella off at school, I would say that half of the cars in the student parking lot are nicer than mine. Of course, that probably doesn’t make it easier to fit in.
She doesn’t have as many friends as I hoped she would. She only had two friends over for an hour or two and only went to one friend’s house since school started. She hasn’t been invited to any sleepovers or birthday parties. Meanwhile, her old friends are having sleepovers that she wasn’t invited to.
Arabella eats when she is lonely and bored. She gained about 40 lbs since we moved less than a year ago.
She is right around my height and needs to lose 100 lbs to be right around my weight. I never knew what to do about it. I never had those kind of struggles. We don’t have a lot in common. Sometimes we don’t get along. It seems like we either get along great or don’t get along at all.
It’s really not fair, I have so much in common with my older two children. They never struggle with their weight. In fact, I think my oldest two children are too thin. I haven’t had to deal with this issue before.
It is frustrating because I just want to tell my daughter to stop binge eating junk food. But I know it won’t be that simple. It would be like her telling me not to worry when I am having a panic attack.
I just can’t relate. I’m the type that doesn’t eat much when stressed out. The last thing I want to do is give her a complex by saying the wrong thing. She is loved no matter what, I just want her to know that even if nothing changes.
Last night Arabella and I met with a coach for a weight loss program. What a racket that is! Since she is a minor, we have to get the doctor’s approval first. She wants to start with the most restrictive diet for her weight loss plan. It would involve cutting out dairy and fruits. I am all for it if she has the stamina for such a rigorous routine.
I really hope this works for her. But I think it will be a lifelong struggle. Right now she wants to go to school for culinary arts after high school. I just want her to be at a healthy weight. Right now she is not healthy. She is starting to have back pain. The heavier she gets, the harder it is for her to be active. As a runner and someone who places a high value on health, it is hard for me to watch her struggle.
I am happy that she has decided to take a step in the right direction and will do anything I can to help her achieve this goal. I have no doubt this is going to cost a lot. But it could cost even more not to do anything at this point.