March on to the end

Life has been pretty quiet since last week. I still have my thumb bandaged up and will be seeing the doctor tomorrow for a follow up. I never realized how much I used my thumb before. I haven’t been wearing pants with a zipper and a button because what happens if I need to go to the bathroom and struggle with limited use of my thumb. Unhooking my bra strap. Tying shoes. Opening pill bottles. Cleaning to name a few… I hope it heals quickly, but I am not sure my nail will ever look the same.

I start my new job in a week and a half. I still haven’t gotten my schedule yet so I have been hesitant to plan anything. Thankfully my mom has her neurology appointment set up for next week so I should be able to take her. I will be working 4 days a week and every other weekend. I am content with this schedule as it will leave me a couple days off during the week to volunteer and take family to doctor appointments. But before I start, I need to go through 6 weeks of training which might be either in person or online 5 days a week Monday through Friday. So until I find out more, I wait.

I am starting to make some headway with transitioning over as Matt’s guardian. For the past several years, my mom has struggled with financial tracking and balancing Matt’s checkbook. She has been paying all the bills and I want to transition over to a payee. Thankfully, my husband has been helping her with this and has been wonderful with the financial end of things. He has been an enormous help with record keeping which I need to set up a payee through the county. He was able to answer questions I had no clue about. The whole process to set up a payee will take 2 months. In the meantime, I need to pay all Matt’s bills without a lot of information on how to do it.

Also, the county has been marvelous to work with as well. Over the decades, I heard a lot of negative things about the county. However, I found the opposite to be true. They have been very diligent and supportive throughout the transition process. I’m starting to feel like everything is falling into place.

Arabella is continuing to make improvements. She is starting to wear makeup again. It might not seem like it, but it’s a big deal. She stopped wearing makeup over a year ago. She didn’t care much about her appearance and had no motivation to do anything about it. Plus her old anti-psychotic medication was making her hands shaky which made it almost impossible to do her eyeliner. I know it doesn’t seem like much since most of her peers are getting ready to graduate from college. I wish she could have a normal regular life too, but she does not. She is in a good place now and any proof of that is worth celebrating.

In the next couple days I am looking forward to: doing stand up comedy, having a game night with Paul, Arabella, and her boyfriend, coffee with friends (I want to try a coffee flight), volunteering at the cat rescue, and trivia night. I am in the process of finishing my memoir, which has been 6 years in the making. Next week I will be very busy tying up loose ends before I start working full-time. I have something going on every day.

Handing over the baton

A little over a month ago, I spent two full days in Wisconsin Dells at the waterparks. I told you about the trip, but I don’t think I mentioned how much pain I was in. After two full days of walking, I could barely walk. My foot was hurting a lot. I never really noticed how inactive I’ve gotten until I had to be active. So many times I chalked up my foot pain to bunions, arthritis, and fibromyalgia. But this time I felt something was really wrong because one foot was hurting much more than the other.

The following day I reached out to my doctor to get an appointment with a podiatrist. They questioned why I wanted a referral. I told them that I was still having foot pain like I mentioned at my last physical in November when they took X-rays of my foot. At the time, my doctor couldn’t find anything that would cause a lot of pain. It took me a month to get an appointment with the foot doctor.

By the time I got to my appointment, I was feeling a lot better. But I went in for another set of X-rays and waited over an hour to see the doctor who was behind schedule. I thought perhaps I was wasting his time. When the doctor came in, he told me I had a stress fracture. What??!?? How did that happen? I was going to have to wear a boot for 6 weeks and then come in for more X-rays to see if it was healing properly.

I have no idea how I fractured my foot. My feet started hurting when I was running long distance training for a 50k. But that was years ago. And aren’t your feet supposed to hurt if you are running 30 miles on them? The only other thing I could remember happening was having a large water bottle fall onto my foot. But again, that was years ago. How did I have a fractured foot and not even know about it?

It’s been 3 years since I ran. Gradually I stopped going on walks too because it hurt and I was having GI issues. I went from thinking I was wasting the doctor’s time to being angry with myself for not going in sooner. Hopefully now it will finally be able to heal and I can get on with life.

I stopped running right after Angel moved back home and started running. We enjoyed running together for several months. This weekend she will be running her first marathon and I will be supporting her every step of the way. I was instrumental in starting the fire that ignited her passion, and now I will be handing over the baton.

distractions

“There’s a difference between being happy and being distracted from sadness.”

I recently saw the above quote on Facebook and loved it. Lately close friends and family have been making happiness statements to me. Are you having fun? Did that make you happy? I’ll do whatever makes you happy. Would it make you happy if… It’s so good to see you smile and have fun.

I understand they want me to be happy and don’t want to see me suffer. The best I can ask for right now are distractions from sadness. The stress is really starting to get to me. It’s affecting my health. It’s wearing me down. I don’t think I can handle much more.

Happiness seems unattainable. It’s for other people. Peace and joy are glimpsed at illusions.

I have little control over the events taking place. I just want the suffering to end.

Most people don’t know what to say. That’s okay. There is really nothing anyone can do about it. I understand that.

Just be a friend. Don’t walk away. That hurts more than saying the wrong thing.

I don’t want to be a burden. I don’t want to play the victim. It’s just what is happening in my life. I don’t want to talk about it all the time.

But I am open to distractions…

Recently when my good friend Lisa was over it was eye opening to me. She has experienced a great level of pain and suffering. I didn’t know what to say to her. Offering up thoughts and prayers seemed absolutely meaningless. I just wanted her to be happy. I wanted her to think life is enjoyable and worth living. Maybe her suffering has some sort of purpose or meaning and she can take something bad and make it good somehow. I could feel her pain. Through my worry about the wellbeing of my friend I was able to see how others view me. I finally understood.

Bad memory

Several years back I remember my brother Mark and I talking about something from our childhood with our Aunt Jan. My aunt replied to my brother that she thought he had a bad memory of his childhood. I laughed and responded to my aunt that he didn’t have a bad memory just bad memories. Sometimes you just have to laugh.

All joking aside, I have been thinking about childhood memories a lot lately. The new couples therapist my husband and I are going to has her office in a clinic with multiple providers of different types of wellness services. One of those services is hypnotherapy. I’ve always been fascinated by the idea of being hypnotized since my friend and I tried to hypnotize each other in middle school. I really never had the opportunity therapeutically and didn’t think about it much until I saw it listed as an option last week.

I’m sure there are a lot of things I don’t remember. Maybe I don’t want to remember? The most troubling question to me is what would I do with the information. Would remembering offer solace and closure to the naggings of my mind? Or would I be opening another can of worms? Would I view other people differently if I remembered how they hurt me and may be hurting others?

Should I keep the door locked or should I peer at the fiery demons contained inside? Part of me thinks that I don’t remember for my own protection. The other part of me wants to tear down the walls to see what is inside. Will it help? Will it hurt? Only one way to find out I guess.

Broken peace

Last week Paul and I had our first opportunity to volunteer at a center that offers assistance for families in need. There was someone who sticks out in my mind, a young woman in her early 20’s who was very pregnant. Apparently she usually comes in with another lady who was also pregnant. But this time she came in alone and said the friend she usually comes in with was in the hospital delivering a stillborn baby. It was heartbreaking and I didn’t even know the lady.

Later the volunteer coordinator said to us she would get through it and be fine since she has the Lord to lean on. I really hope so. Does anyone ever really get over the loss of a child? Today it’s been 4 years since my friend Lisa lost her daughter in a car accident. I still worry about my friend. It’s hard to watch her suffer and only have thoughts and prayers to offer.

I don’t know about you, but I am really horrible at having a strong faith in times of trouble. I am pretty good at doubting though. Do our prayers change the heart of God? Does he really care about the continuum of time? The truth is we are all going to die.

I’ve had to accept a lot of things. Sometimes I have fleeting moments of peace. I’ve come a long way from feeling I would never be able to climb out of the despair.

Maybe I’m forever stuck in the loop of viewing my heavenly father as my earthly father. I’m just being honest here. I felt anger towards God. I’ve had to parent my parents since I can remember. Why can’t I just walk away? Why do I feel responsible for them? I never had parents I could go to for support.

When I found out about my dad’s crime and a few months later my daughter attempted suicide, I turned to our pastor for support. But I felt like I was doing something wrong. I didn’t forgive. I wasn’t good enough or have enough faith to be blessed with a healthy family. I took advice from a pastor who had some of the best parents I’ve ever seen. He wasn’t abused. His dad wasn’t a pedophile. He wasn’t dealing with decades of childhood trauma. He didn’t grow up in a household of worry and fear. His childhood gave him good memories, mine gave me PTSD. It was like trying to get marriage advice from a priest. He couldn’t relate.

But somehow I came through it. I made my peace with God. Our new pastor is great, although I know he can not relate. Not many can. Our church has a shortage of pastors. The other day my husband said if he was younger he would’ve liked to be a pastor. I think he would make a great pastor, I would not however make the best pastor’s wife. The sad thing is Paul said he didn’t feel like he would ever be good enough to be a pastor, he is too broken.

But somehow I think it’s better to help others when you have been through it yourself. Between Paul and I, we’ve both been through a lot of hard times and maybe we can use our experiences to help others. It took me two years to get to the spot where I thought maybe I could experience joy in my life again. It took a lot of work. I still struggle. Sometimes I wonder if God cares. If you find you are having a hard time getting by with the little faith you have, you are not the only one.

I wish I had good advice to help other people in our lives who might be hurting. What did I want in my darkest days? What I wanted more than anything was to be left alone, but that also wasn’t healthy for me to isolate myself. It helped to have a couple people to talk to that didn’t treat me like something was wrong with me because they couldn’t understand. My best friend would check in on me every couple of days. Don’t just offer thoughts and prayers, look at me with pity, and go on your merry way. Ask what you can do to help. Say kind things like…I don’t know how you can stay sane. Talk about your problems with me. I felt bad when friends wanted to talk but said my problems are nothing compared to yours.

When I see others struggle with similar circumstances, I try to tell them they are not alone or that I felt the same way they did. I understand why people don’t cut their dysfunctional families out of their lives. It’s because they are a good person. They want to help. They have been conditioned from a young age to have to do things most people have no understanding about. The fear of a parent killing them self and you are the only person who might be able to stop it, fix it can not just walk away. Don’t tell someone who has lost a child to just get over it. There is no timeline for grief.

We can really hurt others with our words. But more importantly, we can offer great comfort and help. That is the true joy of suffering.

Life lately

I started having bad dreams again, nothing too terrifying. Last night it was the wild animals. I spotted a bear in the distance that wanted to get inside of my house. Then there were the dogs. They snarled and clawed outside my door if I tried to lock them out. It was horrifying to let them in, but if I did they ran through my house then were gone.

Sometimes I feel memories clawing through my mind. Memories I want to repress, but the more I do the more they nag me swirling endlessly awaiting connection. Incomplete memories, a camera, the fish tank upstairs that I don’t remember being upstairs, other things…

My therapist asked if remembering would change the way I feel about myself. I said it could go one of two ways. I could be more bitter than I already am. Or I can think I survived more than I thought I could with a certain courageousness.

My therapist asked if it would change how I felt about my parents. I said I didn’t think so. I will always view my mother as weak. She always seemed to protect the wrong people. My dad, I don’t even think all my children would even attend his funeral. He never made an impact on anyone’s life. Oh, I stand corrected. He never made a POSITIVE impact on anyone’s life. At this point, what would it matter?

I did learn something new about my dad. When my brother Luke called he told me about some things my dad did to him that I didn’t know. But the new details weren’t upsetting as much as my brother calling me to vent. You see, Luke is the strong one. Most times I think he is stronger than me. He rarely calls to vent. He said that time wasn’t healing his wounds, instead they are oozing and festering. I feel sad he can’t escape the pain anymore than I can.

Then Arabella came to visit for a few days. She lost her job. She is never to work on time and has a tendency to not get along with her managers. It is hard not to get wrapped up in my worry for her.

Then my mom came over. She didn’t sleep well the night before and emotionally was a big mess. I can’t help but feel some of it is her own fault. She has had several therapists tell her if she doesn’t like her life, she should change it. They tell her she should leave my dad, but in the end she always leaves the therapists who tell her that. My brother Luke said if my dad dies my mom will either wake up and realize she was in a bad relationship all along or she will immediately find someone else just like him.

I think about that a lot lately, my parents dying. My mom is in a really bad head space right now. It wears on me. Then I am worried about my daughter and my own aging. My doctor appointment is less than two weeks away. My therapist said I should focus more on my wisdom and insight versus the aging process. She is right. I might not have all the cards I want in my hand, but it would be smart to play my strong suit.

My therapist also said I have an extraordinary amount of stability for everything I have been through. I sometimes wonder…shouldn’t I be crazier? I found her words to be very encouraging. Yet I have to be careful. Last week I read the whole childhood portion of my book. I thought to myself, what a bit pile of shit. I got into a ferocious mood. I have to take writing and reading in small doses. I can’t do it when I am under a lot of stress. Writing has been healing for me. But it also can be the sword that cuts open my wounds if I am not careful. Having nightmares and a hard week with family is a good time to back off a bit.

I have not be happy lately. I feel as if I have been neglecting this blog. I am going to try to write more even if I don’t have anything to say.

Fortune cookie wisdom #39

Dwelling on the negative simply contributes to its power.

I think the key word here is dwelling. I recently heard on the radio that negative experiences are more memorable than positive ones. I think that is true.

Yesterday I spent 3 1/2 hours writing. A small portion was writing on my blog and the rest I spent writing my book. I added a journal entry written by my mom to the book describing Matt hitting my brother Mark and also hitting and kicking me. I wrote about my brother attacking me from my mom’s point of view. I can’t even describe what that feels like. In some ways I felt totally detached since the journal entry was almost 30 years old. Mainly I felt sad for the little girl that was me.

Then I wrote another entry remembering a time my mom asked my dad to help her by watching my brothers and I swim in the lake up north while she made supper. Any time my mom asked my dad for help he did things aggressively or half assed. Let’s just say I didn’t have the dad who would sweep me onto his lap and read books to me on the couch.

This is what happened that day when my mom asked for help. My dad came in the water with us. When Mark and Luke were swimming my dad would grab them by their feet and yank them backwards. My brothers would choke and sputter swallowing water and getting it up their noses. Then they would cry and dad would laugh saying they were just playing a game.

I was terrified of the weeds so my dad grabbed me and forced me to stand in the weeds and muck. He laughed at me while I cried and called me names. When he let me go, he threw weeds and a dead fish at me. It didn’t take long for my brothers and I to be done swimming. My dad got out of doing something he didn’t want to do. He got his jollies by making us cry, calling us names, mocking and humiliating us.

That pretty much sums up my childhood. My brother Matt frequently attacked us with no consequence because there was something wrong with him. I wouldn’t consider my dad to be physically abusive per se. There were times he hit and manhandled us, but he seemed to enjoy terrorizing us more. He liked taking what we were afraid of the most and taunting us with it like my fear of weeds. When we would cry he would laugh in our face and call us babies. He often called us stupid.

If my dad was taunting a sibling it was best to ignore him or better yet to join him because that would ensure your safety. Comforting a sibling often meant your next. Pretend not to care. Pretend nothing scares you. Show no vulnerability or weakness where he could worm in.

I spent several hours writing about the physical abuse from my brother and the psychological abuse from my dad. By the end of the afternoon I was spent. I was feeling depressed and wanted to just emotional detach from everyone. Thinking about the negative things that happened to me really wasn’t doing me any good.

My husband said maybe I shouldn’t continue writing the book or just do it in small segments of time. I told him writing this book gives my life purpose and meaning. The question is how can I write about painful experiences without dwelling on the negative? I end up spending a lot of time in a place I no longer want to be.

I do think writing my story is very therapeutic and healing, but I can’t deny there is a dark side to it as well.

Fortune cookie wisdom #31

If you want the rainbow, you have to tolerate the rain.

Wow, this is another good one. There is so much truth in this fortune as well. Oh, if we could only experience the rainbow without all that darn rain. I’m guilty of this as much as everyone else.

I want my life to be full of joy and uplifting experiences. Personally, I am getting really sick of the trauma and drama, my rain. Sometimes I get so caught up in it that I am under a perpetual rain cloud even when the sun is shining.

Yesterday I met with my therapist. I told her how triggered I’ve been lately. It doesn’t take much at this point after all the trauma I’ve been through. The other day I saw a commercial of a teen girl with her loving grandparents. I felt triggered because I don’t have the relationship I want with Arabella and my parents. My kids don’t have the grandparents I had. There is a lot of pain there.

I also heard my daughter Angel scream in the next room. She was goofing around with her fiance. For an instant I was triggered that she was in pain and I needed to help her. It reminded me of when I was young and I heard my brother attack someone and needed to help pull him off of someone. For a couple moments in time it took me back to the fear I lived in a couple decades ago.

I love the holiday season but I am afraid it’s going to be triggering for me. It always has been. Last year was one of the worst because it was the one year anniversary of my daughter Angel finding child porn on my dad’s computer. It tore the whole family apart. I’m anticipating this year will be difficult because Arabella left home on bad terms. The last several times she has reached out to me has been negative. I’m not sure if she is even going to be coming home for Thanksgiving and I’m not sure if I want her to.

I talked to my therapist about my concerns. I think it is unrealistic for me to hope that I won’t be triggered this year. My therapist said that being triggered is not necessarily bad. She said when she first started seeing me that I didn’t feel anything. I was numb. She said being triggered and feeling emotional about the triggers is better than being numb. She said I needed to make sure I didn’t get stuck in the triggers.

I think grief is a process I need to work through. But sometimes I get triggered and stay stuck in the feelings of despair and hopelessness too long. When I don’t want to live anymore that becomes a problem. I have to have realistic expectations otherwise I am setting myself up for more hurt. I cannot change people or circumstances. Sometimes the false hope that this time things will change, this will be the year I don’t get triggered, puts me in a bad place.

But where would I be if life was great all the time? We all have to go through sorrow and pain in order to feel joy. There has to be sunshine and rain in order for there to be a rainbow. If the sun shines all the time it wouldn’t feel special anymore. Life would get boring. Without inspiration my writing would become lackluster.

There is something amazing that happens when the clouds lift, the rain is ending, and the sun is starting to poke through to produce a rainbow.

It has to stop raining soon. I will keep watching for the rainbow.

Sifting through the ashes

There was nothing left after the explosion that left a crater sized hole in my heart. It destroyed everything I built.

I had dreams of what it was going to be like before it existed. I painstakingly wove together the blueprints within my very own walls. I laid out the best foundation I could build with the resources I had. Every day I devoted to it before it fully came into existence. I dreamed of what it would be like. I tried my best to make sure it was built right. It may not have been a magnificent palace like those who had rubies and gold but it wasn’t built out of straw like my own flimsy abode.

It’s all gone now. It’s hard to look back at what was. Were my dreams wasted? I just wanted what everyone else seemed to have, a happy home. All that is left are footprints in the cold concrete. There is a date next to it but it is weathered like an ancestral gravestone.

Every day I go back and sift through the ashes of what’s left. Baby teeth, thankfully not bones, left for the tooth fairy long ago hidden away in a drawer uncovered in the dirt. A teddy bear smeared with soot its fake eye hanging from a thread. A gift to you. I remember when it was brand new. But I can’t think of that now. A tarnished spoon.

Where within the gray ashes is the silver lining of hope? I search trying to find a sign. Maybe there is a flower about to root hidden underground safe from the blast. Maybe something good can come out of this. I dig and dig to find a joker from a playing card. What is the purpose? It’s useless scary and ugly discarded in rejection from a regular hand.

I keep searching for anything left. Maybe if I tried harder to fix the cracks before the explosion it wouldn’t have happened. Maybe it just wasn’t built right. Maybe some of my straw got mixed in with the brick. How come I didn’t notice? I thought I built it strong enough to weather the storms on the outside. But I didn’t weather proof the inside. Why would I even think I might have to? Would padded rooms keep it secure and safe from the bomb blast?

Why did this have to happen anyway? It wasn’t supposed to be like this. It didn’t happen with other houses. Was it my fault? Was the builder to blame? I screamed at the hollow shell, my own emptiness echoing back. I wanted to shatter something but it appears as if everything is already broken.

The rains came and I cried along with it. It was once a beautiful house. Did you see the brilliant colors of the walls like a prism refracted in the brightest sunlight? Did you see it? Don’t you remember how it was? I should’ve inspected every room closer to see if the angles were off. Maybe I could have done something, anything. Maybe I could’ve tried harder.

I search for clues of why it happened in old pictures. You see, the house looked fine there. It was the same house when the shadows cast on it as it was in the bright sunshine.

I would give anything just to be in the house one more time. I’m sorry I didn’t enjoy it more before it was gone. If only I’d known. I want to drive in the driveway and see my house waiting for me to come home. I want you to wave at me through the window like you used to. Even an empty window would be alright if I knew you were still there. I’m not asking for much.

They say I should move on. I shouldn’t keep searching. But I cannot. Even in my dreams I am stuck there looking for things I might have missed. There is nothing left. It can’t be rebuilt. But that doesn’t stop me from going back. I remember what it was like at its finest. I can’t believe it is gone. I can never go back to the carefree days I spent dancing through the halls.

Nothing is the same. Do I think if I keep going back that one day everything will magically be put back together again? Why do I keep searching? Why can’t I let it go?

How can I go on missing a part of my heart? I don’t want to die but I can’t seem to live.

Questionable truth

My first memory was of my dad standing over my autistic brother and hitting him while he flailed back on the floor. They were in the kitchen and on that day I remember my brother screaming and the cupboard doors rattling. He must’ve been 3 because I was around 4. My mom stood in the doorway a few rooms away holding back my brother Mark while I stood by her and watched.

That’s how my life started out. Many well meaning people who would rather not get involved told me things such as God is in control and God will never give you more than you can handle. No one prayed more fervently than me. God if you are in control, please make it stop. But my dad never became the loving father I wanted him to be. My brother never became normal. Did I do something wrong? Did I pray wrong? I couldn’t understand why things didn’t change when I so badly wanted them to. I tried my best to be perfect but still nothing changed.

There were many times I felt like I couldn’t take anymore. I wondered what would happen when I finally broke. But that didn’t happen either. I became angry at God. If he wasn’t going to control things, I sure was going to try to. I became pretty good at controlling myself, others not so much.

For a long time I carried the burden of over responsibility. I can clearly remember when that started. I was 6 when I watched my younger brothers swim in the lake by myself. That was the day my baby brother almost drowned. I always thought that it was my fault until many years later when I realized how young I was. Maybe it even started before then, but I can’t remember. I always felt like I was responsible for things I didn’t have control over.

It became my job to try to fix things. I became a pretty good problem solver and counselor, but that should never be the responsibility of a child. In essence, I took the place of my dad because he only reacted with anger over issues and never stepped up. Still I prayed every night that things would change, but they never did.

If God wasn’t going to change things I was going to try to. But that didn’t really work so well for me either.

Then I thought maybe I’m looking at this all wrong. It’s time to throw away the childish coping mechanisms that I clung to. It’s not very realistic to think God is going to force my dad to become the father I’ve always wanted him to be. He had that choice and he threw it away.

The last post I talked about how strongly I felt about the freedom of choice. But maybe I don’t really want that. Maybe I just want God to sweep down and take control of my dad so he loves me.

Just because I want something to be good or perfect doesn’t mean it’s going to be that way. My idea of God being in control and taking all my problems away when I can’t handle them anymore is incorrect.

Lately I was looking at my new 2022 pocket calendar. Inside there were little fun things to write about. One was to write down your favorite memory you had with your dad. I was stumped. I thought and thought for a long time. Nothing.

But for the first time, I didn’t blame it on God. I blamed it on my dad. I shouldn’t feel guilty for not wanting to continue having a relationship with someone who hurt me. I shouldn’t feel sorry for him either. But I struggle with the thought that I am causing pain and that somehow this is my fault.

I am still confused about my relationship with God. What’s the purpose of prayer if God doesn’t answer them? My husband says that prayer is supposed to make us feel better about the situations we are in versus changing the situation. That is hard for me to understand because for me feeling better means things will change. Apparently I still have a lot to learn.

Maybe I am healing and growing if I am questioning things I always thought were truth.