Mental health

Blue Monday

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Apparently I forgot to cancel the trial and tribulations subscription in time for the new year. It’s been a rough start and I am feeling frustrated.

Some of it is the little things. This past weekend my son was performing with his band. As I was scooting my chair closer to the bar, I smashed my finger. I didn’t realize as I was pulling it in that the seat separated from the base. I sat down on my finger trapping it between the chair and the base with my body weight. Man did that hurt! My finger swelled up and was bleeding from under the nail. It still hurts a little and my finger is bruised under the nail, so I’m hoping I don’t lose my nail.

Or we can talk about today. Today I found a worm on my cat’s backside. I had to give both cats, under protest, de-wormer and deep clean their cat boxes. As I was cleaning, dirty litter box water splashed on my face. Fun times! As I was taking the dirty litter out to the garbage, the bag broke spilling dirty litter all over our walkway. I had to clean this up so the dogs wouldn’t get into it outside while the temperature was twenty below zero.

Then there are the bigger things. Like our investment falling through, from when we sold our business, that we were planning on living on the next couple years. Now I have to go back to work full-time. All the things I have been planning had to be cancelled, like our road trip out to Virginia to see Angel and Dan who will be living out there for the next couple of months. I applied for a job over the weekend. I think I have a good chance of getting it. I will need to pass a proctored exam to see if I will qualify. That was even a big process because I had to update my resume and all the stuff that goes into looking for a job. I will also need to pass a physical as the job is very active. Against medical advice I started running again.

The other big thing is that my mom’s health is deteriorating rapidly. It has become apparent that I need to take over guardianship of my brother Matt. That is not as easy as it would seem. I had to take an online class and fill out a whole bunch of complicated paperwork. At first, my mom refused to sign the paperwork to resign as guardian. She doesn’t think anything is wrong with her. She is trying to hide her dementia.

My brother Luke came home to try to figure out my parents finances. They have several accounts that are an absolute mess and haven’t been balanced in years. My mom is refusing help with her finances. Finally on Friday my mom signed the guardianship resignation letter. Luke and I went with my mom to pick up Matt from his group home. Then we stopped at the grocery store which was insanely busy. Luke and I were trying to help my mom shop with Matt. If you can imagine what it is like taking someone who has dementia and is confused along with someone with intellectual and mental illness. Neither have any awareness of other people. Matt almost bumped into someone. I had to pull him out of the way. Luke and I were very stressed out. I almost started crying in the store. But everyone was very nice and looked upon us with pity.

I have an appointment later in the week to meet up with someone from the county to see if my parents qualify for meals and in home care. I’m still in the middle of the whole guardianship paperwork process. That is also going to be intensive with the financial reporting, needing to meet with doctors and the case manager. My brother lives 40 minutes away so it is going to take a lot of time on my part to get everything set up.

Not to mention doctor appointments with my own daughter. Arabella is doing well on her new medication, but it is causing her to gain a lot of weight. At the last appointment, she gained 13 lbs in 6 weeks, so I’m not sure if she is going to go through another med change.

I have a feeling it’s going to be a long year.

almost to the end

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Over the weekend, we hosted a Christmas party with my mom, my siblings, and our families. We also attended a Christmas party with my mom’s extended family. There has been no hiding that my mom’s dementia is getting worse. She no longer recognized her brother-in-law, someone she knew since she was a teenager.

After the first Christmas party, my siblings and I had a meeting to discuss the current situation of our parents. Then we spoke to our parents about some of the things we discussed. I was very stressed out before the meeting. Thankfully my brothers and I are in agreement about how things should be handled. The biggest problem is that our parents are not in agreement with us.

My parents should not be driving. I’ve received several calls about my mom’s driving. She got into a car accident this year causing an injury to another person. Her friend told me she pulled out in front of someone without looking first and her friend came close to being killed. She also drove across her friend’s lawn and face planted her car into the ditch instead of using the driveway. When my brother asked her about her driving, she told us that she was a good driver. My dad can barely walk and doesn’t see well. They refused to stop driving or look into options such as assisted living.

The only thing they said they were willing to do was give me guardianship of my disabled brother Matt. Honestly, I don’t really want to do it. But I don’t feel like I have much of a choice. I told my brothers I was not going to baby Matt or give him special treatment which he is used to receiving from our mother.

I can’t stand even being at my parents house because the level of dysfunction and chaos is almost more than I can handle.

It’s hard not having any sense of control and just stand by waiting for something bad to happen before any changes are made. But I’ve been through this before recently when my daughter started developing a serious mental illness. When someone is an adult, it’s nearly impossible to intervene on their behalf if they don’t want your help.

Despite the stressful meeting, the holiday parties went really well. Everyone was for the most part nice and respectful. With the exception of a couple days, I’ve been in good spirits. I joked around and laughed a lot with my family when others around seemed to be rather down with all the bad news. Maybe it’s because I don’t care as much anymore about the things I can’t control, which is freeing. Maybe I’ve gotten used to living with suffering all around me and I’ve become desensitized. Or maybe it’s because I’m medicated. Life is just too short to take seriously all the time.

The most wonderful time of the year?

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It’s the most wonderful time of the year, or is it?

Just like everyone else, I’m getting into the hustle and bustle of the busiest time of year. I’m hosting 4 parties over the holiday season. I don’t really mind the decorating, the cleaning, set up, take down, or cooking all that much. As much of a planner and how organized I am, sometimes I don’t want to do all the planning. I don’t enjoy the menu planning anymore. It’s a ton of work trying to keep in mind everyone’s dietary restrictions and preferences.

Overall, Thanksgiving went well. But try as I might, I couldn’t get the menu right. Several people are gluten and dairy free. I tried to improvise by using dairy free butter and almond milk for the mashed potatoes versus regular butter and milk. But I found out that several people were almond free too. I had to set aside some plain potatoes for my brother Matt. My mom was constantly reminding me to set some aside for him. I was so annoyed as I had several foods I was preparing at once. She wanted me to mash his separately. I made sure at least one turkey was gluten free, as I had a regular and a smoked. Then I found out Paul’s step-dad’s fiancée couldn’t have turkey. Thankfully she brought some of her own food along to make it easier. But she ate something my mom brought which wasn’t GF and my mom didn’t tell her until she was almost done eating it.

The holidays are difficult in other ways. To me it’s a constant reminder of broken relationships and dysfunctional family members. This year my oldest two kids are not on speaking terms which is hard on me. There is a lot of strife with other family members. My dad is not a part of things because he is a horrible person. I think we all just do our best to tolerate each other which is not how family should be.

My mom’s cognitive functioning has greatly declined. Thankfully I have an appointment in the books for the end of February to see what is going on. It took months on the waiting list just to be able to schedule the appointment. I’m hoping she can hang on until then. I’ve been getting concerned calls from family and friends of my mom. My mom’s friend told me my mom went in the ditch at her house. As she was leaving, she drove across the lawn and into a deep ditch. She also said my mom didn’t even look before pulling out from a stop sign in front of somebody and they almost got hit. She said my mom was no longer a safe driver. She also said my mom needed to stop babying my disabled brother and my dad needed to get off the couch. The last two have been issues since I can remember.

I am hoping to sit down with my brothers over Christmas to discuss the care of our parents and disabled brother. I don’t want to be the only one making these calls and having all the responsibilities. I’m sure they would be willing to help, but they live further away and we don’t see each other often.

Other than that, I have most of my shopping done. My husband, our kids, and their significant others all made Amazon lists which made things really easy. So far everything went good with Arabella’s boyfriend meeting the family. By the end of the year, he will have met pretty much everyone. It’s so awkward to start dating someone right before the holidays. We like him, and he is absolutely crazy about Arabella. She is going through some major medication changes and she is responding well. Earlier in the year, I never would’ve guessed we would be at the point we are at today.

It will be interesting to see what the new year brings.

November happenings

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It’s hard to believe November is half over already. Soon we’ll be entering the holiday season and just like that another year will slip away.

Change seems to be the only thing that is consistent in my life.

Angel and Dan just bought a camper. Soon Dan’s job will be taking him to the East coast for half a year. Angel will be joining him and working remotely out of the camper. It’s going to be very strange without them living 20 minutes away. I’m going to miss them so much, but what a grand adventure.

Alex joined another band, a bigger name band that just released an album, and is possibly touring the West coast next summer. We went to see his band and for the first time we had to pay to watch him perform. The venue was crowded. It’s exciting to see where this new adventure might take him as well.

Arabella’s medication change is working out well for her. She is less like a zombie and more like the person we knew before. She is putting herself out there more and just recently started dating someone new. We met her new boyfriend already and so far so good.

My mom’s memory issues are getting worse and I was finally able to get her set up for a neuropsych eval for the end of February. I have been making a lot of phone calls lately regarding my mom and I’m hoping she can stumble along until then. I’m hoping to talk to my brothers over the holidays and come up with a plan. I don’t want to get stuck managing the care for both of my parents and disabled brother by myself.

Sometimes when life is hard, you just need to have a good laugh about it. One of my bucket list items is to do stand up comedy. I’ve been up on the stage for open mic several times now and it’s been so much fun. You’re never too old to try something new. I foresee a lot of adventures in the upcoming year!

Breaking up

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It happened on Saturday night a few minutes before the band went up to play. Having another commitment, I didn’t show up until the band was halfway through playing. My son played magnificently, better than I’ve ever heard him play. Afterwards, I told Alex to do whatever he did differently every time because he did an amazing job.

He said funny I should say that because right before the band started playing, his friend called to say he saw his girlfriend with another guy. Lexi ran off to the bathroom when she was caught while Alex’s friend talked to the guy. Apparently Lexi has been going out with this other guy for 4 months. We were shocked. Alex and Lexi were together over three years. She was like a part of our family, and one of Arabella’s best friends.

My son was upset over the betrayal and wanted to smash all her things. Thankfully a friend stayed with him that evening to talk him out of doing anything rash. Sunday night Alex texted to say Lexi was over to pick up her things if we wanted to say good-bye. I went over first and told Paul he should be there to make sure everything was alright. Alex was filled with rage and was screaming at Lexi. For the most part, Lexi was quiet and didn’t look at us. Sometimes she cried or yelled back. It was the worst break up we witnessed. I tried to stay out of the fighting. I didn’t want anyone to get hurt, but it was a little too late for that.

Lexi threw most of her things in garbage bags. Outside the drought had ended in a pouring rain. It was a blustery evening, a reflection of our emotions. Arabella came over after work, and I cautioned her that although she wanted to say bye it might not be the best thing for her. But she wanted to anyway. My stress level was through the roof. We were all in a state of sadness, grief, anger, shock, and anxiety. Arabella was crying. The fighting seemed like it would never end.

But then it did end as Lexi packed everything that was hers in her vehicle and drove away. I thought maybe she was the one. But that dream is gone and there is just an emptiness in the space she once occupied in our hearts. Arabella has been crying every day. She was a friend, a best friend who painted with her and went to the movies together. I worry about her. The day before everything happened she started going through another medication change.

Alex has been unreachable. He doesn’t want to talk to me about it beyond the anger. I worry about him. Things ended badly. It’s going to take some time to get through this. It was so unexpected. Lexi has a lot of issues, and I keep telling myself there is someone better out there for him.

Safe for now

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I feel like I got my daughter back. The daughter I had before everything started. Before the suicide attempts, the cutting, sneaking out late at night to meet up with strangers, the delusions, the depression, the mania, hospitalizations, jail, and all the other struggles I’ve been writing about the past 4+ years. We are getting along better than we have before.

Everything changed once she was on the right medication. At her last hospitalization, they put her on a mega dose of the powerful anti-psychotic Haldol. The doctor has been slowly trying to taper her off the medication. In the beginning her doctor also put her on Lithium as a mood stabilizer. She has been diagnosed with Schizoaffective Disorder which is a mix of schizophrenia and bipolar. After several months, her doctor tried to take her off of Lithium thinking an anti-psychotic would be enough to manage her symptoms. After a week off of Lithium, she started to hear voices telling her to kill herself. Thankfully she communicated what was happening to her with me. I called the doctor’s office and they put her back on Lithium. Once again she was stable.

At the last appointment, the doctor tried to reduce her Haldol. He wants her off of the medication altogether. I asked the doctor if the hospital made a mistake by putting her on Haldol in the first place. He said when Arabella was admitted to the hospital she was very, very psychotic. If a psychiatrist says that it must mean a lot more than usual. They had her on ten times the average dose. That’s why when we visited her in the hospital, we were traumatized to see her because she was shaking and couldn’t talk right. Her jaw was tremoring and her words were slurred. They put her on another medication for side effects of Haldol and that caused her to have vision changes.

At the last appointment, the doctor tried to taper Arabella down to a high dose within the normal range. She didn’t respond well. She started to have intrusive violent thoughts. He decided to put her back on her dose previous to her last appointment. And once again, she is stable and enjoyable to be around. If it was up to me right now, I would like to keep her on the medication she is on now for the rest of her life. But the doctor said that after being on Haldol long term she will very likely have irreversible side effects similar to the ones she had before on the mega high dose. By age 30, the medication that is saving her now will cause her to be physically disabled by her condition.

Is it worth it? We might not have another choice. The doctor said it’s going to be a very long process to get her where she needs to be. But as for right now, it’s wonderful to have my daughter back.

Time flies

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Time somehow has a mystical way of slipping through the hour glass. I’ve been thinking about that concept a lot as I am spending the last few days left in my 40’s. Fifty seems old to me. The beginning of the end. The end of the beginning. I never pictured myself growing old. I have some regrets. Not so much for the things I’ve done, but for the things I didn’t do early enough.

I sacrificed my childhood and young adult years worrying about adult problems that really weren’t mine to bear. Childhood was never fun, magical, or carefree. I don’t have good memories to tide me over on the hard days. I had to think for a very long time to come up with one good memory. My good memory of childhood was playing badminton in our yard with my parents and brothers.

I didn’t feel like I had the freedom to live my own life. My mom didn’t want me to leave. She wanted me to stay close by because she needed me. I didn’t realize what I was giving up. I went to the college closest to home. I studied psychology in hopes of becoming a counselor. Then I would be able to SAVE my family from their dysfunction. I could FIX them. I was young enough to think my education would change things. Being a caregiver was what I was good at. I was the 6-year-old who was watching her younger brothers in the lake by herself after all.

I was too stupid and worthless to try other things. That’s what my dad said anyway. My mom said if I tried new things I wouldn’t be perfect and would fail. I totally lacked confidence and self-esteem. I did have other interests such as music, genetics, microbiology, library science, and probation and parole. Some of those programs weren’t offered at the local college. I didn’t even try out the choir because I wouldn’t be good enough.

Fast forward another three decades. My family of origin is just as dysfunctional as it always was. Somehow at times it still is surprising to me because I don’t know how anybody could stand to live that way.

I don’t regret the family I have now. I didn’t waste a lot of my young years in a bad marriage. I love my kids. My husband and I met because we lived in the same apartment building when I was going to college. The good things in my life happened because I stayed close to home. Or maybe it was just the choices I made.

Most young folks stay near/at home for their parents help, not to help their parents. Sometimes I wonder what my life would’ve been like if I left home sooner. If I could go back in time, I would tell my younger self to live your own life guilt free. It’s not your job to rescue your parents. You don’t have the power to fix them. It’s hard enough to change the things you don’t like about yourself.

Time flies.

What to write

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I haven’t been feeling very motivated to write since I finished my book. I say finished loosely because it is going to need more work. Nothing major though. I hope to have it ready to publish by early next year.

I think I need to revisit my goals. What do I want to do next? Try my hand at fiction? Or am I happy to keep writing on a personal blog although with my book it seems like I told everything I wanted to tell. I think I want to keep writing in some capacity, but what?

There are always things going on in my life to write about. I guess I wasn’t meant for a life of mediocrity. Sometimes I am jealous of people who live an ordinary average life who can join groups on Facebook called the dull women’s club. True story, I looked at some of their posts and some people just sit around watching their garden grow. I could only post about watching my plants slowly die.

I figured part of my problem is that I was never shown how to care for plants. My mom got rid of all our houseplants when she went on a kick that my brother Matt was allergic to them all. Last summer I bought a banana plant and the only way it lived over winter was because a friend showed me basic plant care 101.

My grandpa had a nursery when I was young. One day, he pulled out a dying shrub he was going to get rid of. I decided I was going to ‘rescue’ the shrub. So I planted it in my backyard and watered it everyday. One day I went out to water it, and it was no longer dying. It even looked twice its size, green and healthy. It was a miracle, I saved it. But now as I am older I realize my grandpa probably had something to do with my unrealistic expectations about plant rescue.

This is totally going in an unanticipated path. I do have a lot of stories to tell, but we’ll save them for another rainy day. There have been a lot of rainy days as of late. The arthritis in my knee has been acting up for the last week or so. I may soon be able to predict the weather like my relatives of old. My arthritis is acting up, it’s going to rain. How time changes things. Five years ago I would be trying to get in a run before the storm. Now I sit around and complain about how hard it is to walk because my joints can feel the rain coming. It’s hard to think I will never be able to do something again I used to enjoy so much.

Maybe I’m just having another mid-life crisis. I will be 50 in less than a month. It’s hard kissing my 40’s good-bye. Fifty is old. I’ve gained weight. I can’t see worth a crap. Some days I have a hard time getting around. Arthritis. Grey hair. I don’t look or feel young anymore. I’m at an all time low, but it’s not going to get any better. But I’m trying not to complain about it too much because those people are just a drag to be around.

Otherwise, things are going okay. Arabella is stable on her medicine. On Monday, she has a goal planning appointment with her new case manager to help her gain independence. She literally hasn’t visited with friends for weeks and spends her day following me around. I don’t mind all that much. I’m trying to enjoy what time I have with her. She never liked me before so in that way it is kind of nice. I know I’m cool and all, but I want much more for her than that.

My other two kids, Angel and Alex, are not getting along. That has been stressful because I hate feeling like I am in the middle especially with a holiday weekend coming up. Not to mention dealing with the extended family. Then having a party and turning 50 right after that.

I have been feeling pensive and melancholy lately. Maybe I just need a little sunshine.

Mental health awareness month

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Many of you are probably aware that May is mental health awareness month. Maybe you already shared the cutesy memes on social media stating you are a friend that anyone can call day or night. Maybe that is enough for you to feel good to check off your awareness month, and have moved on to planning your pride party for June. Or maybe you also live in Wisconsin and are stocking up on cheese curds for June dairy month. I know, I know…cheesy..

Or maybe you are like me and found out that mental illness is not all that cute. Maybe you or your loved one has already lost the friend that you can call anytime. Mental illness is tough. I’m sure everyone who struggles with it would remove that part of their life if they had the choice. It’s so painful and malignant, that far too many remove themselves from life altogether when it refuses to leave them.

Through NAMI, and talking with other parents whose children struggle with mental illness, I was surprised to find some striking similarities. I am not the only parent whose child attempted suicide. I am not the only parent whose child was incarcerated after a psychotic episode. I am not the only parent whose child, after making abuse allegations, moved in with another family. I am not the only parent whose child hears voices commanding them to end their life and soothing voices telling them how peaceful death is. I am not the only parent whose child has lost a lot of good friends because of their mental illness. I am not the only parent whose child was bullied because they are different.

I could make a much longer list. But the point here is awareness. Don’t blame the family. Don’t blame the mentally ill. Most would choose to change it if they could. Don’t shun them out of ignorance or fear. Treat them as if they have a potentially life threatening form of cancer. Treat them with compassion while being mindful of your own mental health as well.

Be kind to the server who has cutting scars all over her arms. For today, she has successfully battled the voices in her head. She has battled the voices outside her head sending similar messages about her worth. She has many battle wounds but is still alive fighting. That girl is also my daughter. But she could be your daughter as well. Or your son, sibling, parent, partner, neighbor, friend, or yourself.

Be aware that one in five Americans struggle with mental illness.

Life around here lately

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It seems like forever since I wrote about life as it currently is. I don’t know where to start. And now we find ourselves at the end of May. The temperature is slowly starting to climb up and today we face the first risk of severe weather. The air feels charged and I hear the rumble of distant thunder. But for a time I’ve found myself in calm waters.

This past weekend Paul and I went to a NAMI (National Alliance on Mental Illness) training seminar to prepare to teach a class for families next winter. It was an excellent educational experience, albeit exhausting. Paul is gearing up for another busy summer running our seasonal business. He had his annual physical a couple weeks back and his numbers weren’t quite where they were supposed to be. Tomorrow he is going in for a CT scan. At this point, we haven’t talked much about it to others and are trying not to worry.

Angel already finished reading the memoir I wrote. I haven’t had the opportunity to talk to her much about it, but I think she loved it. She was happy I shared it with her and if nothing else she has a small piece of her family history. I’m not sure how she did it, but she was able to upload my book onto her Kindle to read it. It was a strange experience to see my book in that format, almost as if I was already a published author. Over the weekend, Angel finished her second half-marathon. She was going to run the full marathon but suffered from an injury earlier this year so is putting the full off until the fall. Dan was going to run the half with her but he also got injured right before the race and couldn’t run. I know she will finish her goal of running a marathon.

Alex just completed his certificates in audio recording and music production. He has been given the opportunity to play in a wildly popular local band. We’ll see where he goes with it.

Arabella has been doing well. She is on a medication regime that works for her. For the first time in her life she considers me a best friend. We have been getting along better than we have ever gotten along before. I’m trying to enjoy the good times with her while they last. It’s been a very long road to get to this point for all of us. Last week Arabella turned 21. Although the doctor said she could only have one drink, the family pulled together and made it a great day for her.

I can’t complain, things are going well and I’m enjoying having a close relationship with all of my kids. That doesn’t mean everything is perfect. I enjoyed Mother’s Day with all my kids and their significant others. It turned out to be a hot and humid day which rarely occurs so early in May. I didn’t have much of an agenda, just church in the morning, yard games in the afternoon, and going out to eat that evening at the restaurant Arabella works at. My brother Matt was sick so my mother came over without him which was nice. If Matt were there, my mom would cater to him and leave early. My mom stayed to go out to eat for supper.

I did find myself annoyed with my mom on Mother’s Day. When we asked if she would go out to eat for Arabella’s birthday, she said she wasn’t going to go because she didn’t like tomatoes. What did that have to do with anything? She ended up changing her mind later in the week and ended up going but I was irritated. We had a long wait to get a table at the restaurant and once again I found myself irritated because there wasn’t a lot of seating in the waiting area. I was annoyed that the young people weren’t offering up their seats for the elderly patrons. It’s a big pet peeve of mine.

All in all, it was a good day. Angel and Dan came to church with us. Angel made some lemon dessert bread which she has to save the recipe for. It was excellent! Paul made us a nice lunch of grilled cheese, tomato bisque soup, and salad. We played bocce ball and jenga (which I lost at twice). We enjoyed the sunny day. Angel and Dan left before supper to visit Dan’s mom. We had a great supper with Arabella as our server. Later in the evening, Paul, Alex, Lexi, Arabella, and I were going to watch a movie. Arabella said she wasn’t feeling the best and wanted to go to bed. Next thing I heard was several big splats from the other room and a call for mom. Arabella threw up all over her bed and the floor. Lexi offered to help me clean up the mess, but I refused.

That’s what being a mom (a parent) is all about, taking the good along with the bad. And hopefully when the storms come, being able to weather them.

The sun is shining now, but I know the storms are coming soon.