My 4th marathon

On Thursday night, or I should say in the wee hours of Friday morning, I picked my family of travelers up from their vacation. As I went to bed at 3 AM, I dreaded the thought that I would be getting up in a little over 24 hours around the time I was going to bed that night to run my 4th marathon.

I didn’t get much sleep, but took Friday off to pack and get ready for camping. My husband went into work for a couple hours and was suffering from jet lag. We had to drive three hours to get to the campground.

We set up camp as a storm was blowing in. The torrential downpour started as soon as we had the tent set up. It rained two inches that night. When we went to pick up our race packets, one of the tents collapsed from the rain. We were going to go to my cousin’s camper for a spaghetti supper, but went out to eat instead. It was hot, humid, and stormed most of the night. But our tent stayed dry for the most part.

I woke up at 4:30 AM after a restless night of sleep. I was dead tired and had to scrape up some energy for a marathon. The marathon itself was brutal. My cousin said that it was the most challenging marathon he ever did. There were some very difficult steep inclines. We had to walk across slippery bridges and wet rocks. I didn’t fall, but I saw others fall and almost fell myself several times.

It was a very picturesque course with beautiful views at the top of the bluffs. It seemed surreal like I was on a movie set. I was waiting for the dinosaurs to come out at any minute. Even though it was a rather remote trail run, there were enough bathrooms and aid stations. I even drank some pickle juice which seems to be the new craze.

It was a tough race, but we finished it. Afterwards, we decided to head to the beach to cool our aching legs. I was only in the water for 10 minutes when someone took my beach towel. The beach was absolutely crowded on a hot Saturday afternoon.

Showering was another challenge. I showered in the handicap stall just because I thought that it would provide an area for me to sit. Undressing and dressing was a bit of a challenge. There was nowhere to sit and there was a lot of standing dirty water on the floor. So I decided to dress from the waist up and go into the dryer bathroom portion to get my shorts on.

I wrapped a towel around my waist for the short trip outside to the bathroom. When I walked into the bathroom, there was a man inside. He seemed to be checking on the cleanliness of the bathroom. He put his initials on the paper by the door and exited quickly. The bathroom and shower stalls were absolutely filthy. I struggled to get my pants on without having to take another shower.

That evening, my cousin and his wife made the spaghetti dinner that the storm prevented us from having the previous night. His dad and step-mother came over for a visit and wished me a happy birthday. They brought homemade strawberry shortcake. It was a nice evening.

After that, I spent another restless night trying to sleep in the tent. My body ached and I couldn’t get comfortable…Sunday morning we packed up for the long ride back home. I couldn’t relax. I found myself feeling agitated and depressed. Although my body ached, my mind couldn’t sit still. I took the dog for a walk when I got home and felt a little better…then had another restless night of sleep.

I think I had one good night of sleep in the last month. Staying up until 3 AM and then getting up very early to run a marathon probably pushed me over the edge. I hope I feel like my old self soon. Tomorrow I’m getting a massage. Maybe that will help.

Fortune cookie wisdom #9

The sky seems small if it is looked at from the bottom of the well.

Well, that’s deep!

Life is a matter of perspective.

Where did you start?

Do you see things as they really are?

Do you see things like I do?

Was your view obstructed by the wall of the well that surrounds you?

Do you live in murky waters that make the blue sky seem gray?

Even the clearest of waters can distort and refract our reflection.

Maybe the well is dry but you can only see the things around you with tunnel vision.

Does the sky matter? Or are you only concerned with what you are surrounded by?

What do I see when I look down at you? Only a poor reflection of myself?

I shouldn’t judge your views if you see things from a different angle.

I wonder…How did you get inside the well in the first place?

Were you born that way?

Did something push you over the edge?

Did you fall into it unexpectedly?

Are you trying to hide from your demons behind the cool dark walls?

Were you seeking satiation and got trapped in the drink?

What if you need help?

If you are at the bottom of a well, perhaps you have bigger concerns than the size of the sky.

It’s too bad, the sky it a beautiful baby blue today without a cloud.

 

Would you rather?

Would you rather…be hurt or watch someone you love get hurt?

I’ve been overthinking again.

Maybe the dreary weather has been making me all dreary inside.

It was my childhood.

I feel alone.

If I said I grew up with an alcoholic parent, many of you could relate. But my parents rarely drank. It wasn’t that.

How could you understand?

My autistic/schizophrenic brother Matt hurt me again and again. He threatened me with a knife. He kicked, clawed, bit, hit, scratched, pulled my hair, and punched me on a regular basis without consequences.

My dad was either depressed, angry, or apathetic. He neither hit nor hugged me, but he tore me apart with his words.

My mother was more concerned about Matt than anyone else. If a person needed to pull Matt off of someone he was hurting, she was more concerned that their hands would grab onto him too tightly.

I lost my best friend from high school because Matt hurt her. I was the maid of honor in her wedding, but she wasn’t invited to mine. My mom said, “Oh well, you were going in different directions anyway.” But I didn’t have a choice in the matter.

I always defended my mother and her actions. I can’t seem to see that she did anything wrong.

I always demonized my dad. He never did anything right.

My parents fought a lot. Luke and I sided with my mom. Mark sided with my dad.

There must’ve been some coping mechanism in place to view someone as all bad or all good. Any thoughts to the contrary are declined. I can’t seem to break through it.

When Matt grew up, he threatened to hurt or kill our children at some time or another. Did I expect things to be any different?

How could I feel angry at Matt when he is severely mentally ill? His mind thinks like that of a young child forever.

So I walk this journey of healing alone, or so I think.

I was thinking about it this morning. My brothers Mark and Luke lived through this hell with me. I always thought I had it the hardest because not only was I expected to be a caregiver, I was at the receiving end of most of Matt’s attacks.

But then I thought about something else…

Is it easier to be hurt or is it easier to watch someone you love being hurt and not be able to do anything about it??

I know, I am starting to sound like the horrible ‘Would you Rather?’ game that my daughter has. Would you rather stab yourself in the eye with a needle or nail your hand to the table??

I would rather not be hurt at all. But, I would rather be hurt than to watch a loved one suffer and be powerless to do anything about it.

I recently came to the realization that my younger brothers are victims in this as much as I am. The sound of me crying is etched in their minds. They are haunted by the same demons.

It was my brother Luke’s birthday this week. I wished him a happy birthday and this is how he replied…when we have time, I would like to talk more in depth about when we grew up if you would be open to that.

We never really talked about it, our childhood, in depth.

He wanted to know if I would be open to talking…

YES!

I am not alone, my brothers were there right with me.

 

Wine versus exercise in the long run…

Most of you know me as a thoughtful, serious, worried, borderline depressed individual that has had a difficult past. You would be correct. But I’d like to think I have a sense of humor that balances everything out.

It is the weather, people. Yesterday I ventured out and several random strangers stopped me and asked me when spring is coming. Did they think that I know?? I haven’t had any birds trying to nest in my blonde straw like hair yet, so it might be awhile. I didn’t mention my bad grade in the 8 AM college meteorology class though.

I just looked at the weather forecast for this weekend. We are expecting another foot of snow/ice. I’m going to jump off of a cliff. I had to say that out loud and my cliff diving son gave me suggestions of where to go.

Anyway…I saw a funny plaque a few weeks back that I bought for the bar (remember I live in WI) in my new house. It read and I quote…

Exercise makes you look better naked. So does alcohol. Your choice.

Nice, huh? I was thinking of hanging it up next to my medal display. But, wouldn’t that be tacky??

I’ve seen some debate online lately about exercise and wine drinking for longevity.

A new study says that drinking wine is better for longevity than exercise. Of course I had to make a comment…We’ll see who lives longer. Wait! How will you know I am right?

I didn’t bother reading the stupid article. But my question is this…Where do you draw the line??

How much exercise? How much wine??

Last month I went to a party and my best friend asked a doctor friend if running a marathon was healthy. She said that the jury was still out on that one. Talk about safe answer! As most of you know, I signed up for my 4th marathon. I said I would quit after the first one.

Wait! Does that sound like a problem??

How much wine? A glass a day…a bottle a day?? I know people that do both. Again, where is the line?

I have friends that run marathons and are alcoholics. Will they live forever??

Sometimes I wonder if I should say something about their drinking. Now maybe I should say something about their running too. Honey, the exercise is going to kill you long before the drinking ever will.

I think that most people my age (40’s) truly know almost everything there is to know about themselves. They have had enough time to contemplate their lives. At this stage in the game, I am well aware of my strengths and weaknesses. Most of my friends are probably aware that they drink (or exercise) too much. Is it my place to remind them of that every time I see them? What a buzz kill I would be at the post marathon party.

One of my biggest weaknesses (and strengths) is my critical eye. I love to solve problems. I want to fix things that are broken, i.e. people. I want to be in control over the domain beyond my person. I have a natural tendency to nag, complain, and nit pick. I have no problem providing that service to the people closest to me in my life. But most of the time I find myself biting my tongue. Who am I to play God??

Think about it, you probably don’t need me telling you what you suck at. You probably already know.

I know that some of you think I am crazy for running hours at a time. But running actually makes me feel less crazy.. If you’ve never run a marathon, I don’t think I could explain it to you. If you have, you know. Sometimes physical pain provides a release for emotional pain. It clears the troubled mind.

I have nothing against drinking in moderation (because that is what I do). But I don’t exercise in moderation. I’m even thinking of doing an ultra race which is longer than a marathon.

Is that healthy? Or is it a problem??

We’ll see who lives longer.

 

 

Sprinter

Judging by the title, you might be tempted to think this post is about running. But I hate sprinting almost as much as I hate this sprinter.

I’ve heard this spring is referred to now as sprinter because winter has been hanging around too long at the end.

Last week we got over a foot of snow. We had one massive snowfall and very brief periods of heavy snow on a couple of other days. It’s been so cold and windy that I was tempted to cut down a Christmas tree for Easter.

I heard we broke a record for snowfall amounts in April. We also broke a couple of records older than me for record low high temps. On some days our high temperatures should’ve been our low temps for this time of year. So far we are expecting a 6 inch winter mix this next weekend. Seriously, we already broke the sprinter record. Why not call it quits? The only med(t)al you are going to get will be from the back of my shovel.

My car got stuck in the driveway at work. The snow was up to the bottom of my car. There was no way I was going to be able to drive through it. My husband said that my car was not made for Wisconsin winters. I agreed. I think I need a car for every season. I could have a 4WD Jeep for winter. In the summer, I would have a convertible. In the fall, I would buy an old VW robin egg blue hippie van for road tripping. I picture myself wearing vintage 60’s clothing as I am checking out the fall colors on Route 66…My husband said that probably won’t be happening anytime soon..Oh well.

The weather has brought about other repercussions. Our kids ran out of allotted snow days at school. Now they have to go to school 10 minutes earlier for the rest of the school year. It was that or have a week off for summer break. We’d also have to hope the week they had off was actually summer like. Okay, I may be exaggerating a bit…but I do remember a time where we had 6 inches of snow in the middle of May.

I spent sleepless nights wondering if the school bus would be 10 minutes early. Would my daughter roll out of bed right as the bus showed up? How will I get them out of bed earlier? I think my son was late for school today. He is always late. I told him last week that he would probably be late for his own funeral. Personally, I don’t care when he dies as long as he has given me many opportunities to roll over in my grave before he joins me at the pearly gates.

On days that school is off, my autistic brother Matt does not go to his workshop for the disabled. Apparently, however, he got picked up from his group home and was dropped off at the workshop. All of the doors were locked and he was left out all alone in the cold blustery snow. He wandered around for awhile outside in the cold until he found a business that was open. He went inside and told the lady at the front desk that he needed help.

Thankfully, he ended up being okay. It could’ve turned out worse. He could’ve froze to death out in the cutting cold north wind and blowing snow. I felt angry at the incompetence of my brother’s caregivers. What a bunch of idiots.

How can you feel good about dropping off a disabled person at a place where there aren’t any cars and the lights are all out during a snowstorm?? I’ll dump this guy off in the snow bank and be home in time to watch Family Feud. My brother doesn’t have a cell phone and has a hard time communicating with the people he knows.

Maybe something good will come out of it. Maybe the drivers will be required to make sure their disabled passengers get inside wherever they are going.

This past weekend I helped my uncle transplant at his greenhouse. I wasn’t allowed to touch the plants because I have been known to kill them. Instead I stuck labels in front of the plants like a tombstone in the cold dirt. The flowers smelled so nice and the greenhouse was so warm and sunny, like summer. I didn’t even mind all of the sneezing! For a few brief moments, I almost felt happy.

I hope this sprinter will morph into a full on marathon of summer.

Soon, I hope! I can’t keep going at this pace much longer..

In my feelings…

Last year, at about this time, my brother Matt was taken off of his anti-psychotic meds. Slowly, the docile Matt that we came to love disappeared. It started with a grunt and a few twitches. The Tourette’s was back. Then he started flapping his hands again, the Autistic self-stim. It all would’ve been tolerable for his liver’s sake, I guess.

But then the old Matt came back in full force. He talked to my mom about wanting to kill my niece, my brother Luke’s daughter. He fantasized over scenarios of killing or harming her. The voices were back. He laughed at the things they told him to do. He had conversations with himself as he flapped, grunted, gagged, and twitched.

He had to go back on the medicine. It took months to wean him off and it would take months until it was fully effective again. In the meantime, Luke had to keep his little girls away from Matt.

All of this happened before…

He attacked my daughter at her birthday party when she was 4. That was before he was medicated and in a group home. After that happened, I cut myself off from my family for years.

Before that, it was me. It’s okay if he hurt me, we were the same size. It happened day after day for year after year.

I was told not to feel. Don’t feel…don’t feel…don’t feel. I got pretty good at not feeling.

My dad never told me he loved me or said that everything would be okay. He could sit in the next room laughing over something stupid on TV while I cried. He didn’t care. He looked at me with vacant eyes. He wasn’t there.

He didn’t hug me, nor did he hit me.

Then there was a switch that would go off somewhere in my dad’s mind. He would become angry. He screamed, he swore, and flailed out at everyone. He laughed at our fears and tears. He ridiculed us, called us stupid, and told us how much he hated us. My brother Luke got the brunt of my dad’s anger. But Luke rattled his cage.

My dad never said ‘I’m sorry that you have to go through this’. Instead he called us names like wimp, baby, or worse if we cried or showed any signs of weakness. I built a tough exterior around myself that wouldn’t even allow empathy in. For every punch, hit, or bruise from my brother, my mantra was that the physical pain would make me stronger. The bruises and scars have long faded, but the inner scars will always remain unseen to most.

My mother was the perfect mom. Except she had one weakness, Matt. She favored him over everyone and everything else. If Matt wanted to go, we went. If he wanted to stay home, we stayed. If Matt was hot and we were cold, she would crank the A/C. Matt couldn’t help it, she said. We had control over ourselves, he didn’t. Sometimes she was so blinded by Matt, that she would put other people at risk by his behavior. But, she cared.

A few months ago, my mom brought Matt up north for my niece’s birthday. I’m not sure if it was a miscommunication or if she was trying to force Matt back into Luke’s life once she deemed Matt as better. Both situations happened before. Luke and my mother got into a huge argument. He wasn’t ready to trust Matt around his daughter. My mother left crying.

This takes us to a couple of weeks back…my mom stopped by on a Friday night. I asked her why she was over. On Friday nights she goes to the group home to pick up Matt. She said that Matt wasn’t coming home because Luke was coming over the next day to talk…something about therapist…repressed memories…

I felt very anxious the next day. For a brief moment, I wept. I know how Luke feels. I’ve been there before. It rips you apart.

It’s been almost a year and a half since I had my last what I call post traumatic stress episode.

It started out innocently enough. I was decorating the Christmas tree. Then this memory came back, almost like an image in my mind that I couldn’t get out. With this memory came intense emotion…stronger than anything I have ever felt before. It lasted almost two days. I couldn’t sleep and when I did I had intense nightmares where I woke up crying and frightened. I had several nightmares a night. I felt intense fear, panic, and rage. I couldn’t eat. I couldn’t think rationally or otherwise. It was very horrifying.

I fell into a deep dark depression. I drove around aimlessly in my car. I had this strong desire to end it all. If I drove fast in my car and missed a turn…well…oh well. I screamed at anyone that tried to help me and pushed them away. I remembered. I felt the feelings I tried to repress 100x’s more powerful than if I would have felt them before.

I am afraid of this happening again.

My childhood…the flashbacks…those are the times my feet have swept the bottom of the ocean floor. I honestly don’t know how I survived, thrived in fact. I am completely ‘normal’, but my experiences in life are far from it.

The meeting with my brother was all very hush hush. He talked to my dad for 3 hours and my mom for 2 1/2. It sounds like there was closure and healing. At this point, it is hard to say.

Maybe I should talk to my parents too while I still have the chance.

But I’ve chosen to write about it instead.

Paul’s journey, part 7

It bothers me now that I didn’t keep a journal over the early years of our life together. The entries from page to page are a couple of years apart. There are so many things that happened in the gap, so many things that I wanted to say…to remember.

I’m glad I am doing it now.

It has been almost a year since Paul’s mother died from cancer. I want to say that our time with her on earth was always good, but it was at times rather rocky.

It was a long grieving process. Paul lost his only parent, a parent whose mutual path with him was oftentimes a twisted road mixed with conflict, happiness, disappointment, and love.

Martha was a difficult person to get along with. It was all or nothing with her. We were either an angel or a devil to her, nothing in between.

I was the best daughter-in-law the world has ever seen. I could do nothing wrong. The next minute I was the devil and would come careening off my pedestal. It seemed as though she had relationships like that with everyone that was close to her.

Happy elated hellos turned into screaming hollering good-byes.

Martha was an unrealistically extreme optimist. She told the kids she would buy them a pool when she retired. She would get everyone’s expectations up only to dash them into the ground. Over time I learned to translate the meaning behind her words. When she said she was going to do something, it didn’t mean that she was actually going to do it. It meant that she wanted to do it.

Martha was a bit of a free spirit. She oftentimes said she would be somewhere only to show up hours late, not show up at all, or cancel out last minute.

She always had an excuse for everything. It was always the fault of someone else, not her own. She didn’t graduate from high school because the school burned down. She didn’t have enough money for gas. It might rain for an outdoor party. It might snow for her granddaughter’s high school choir solo debut. It was too hot for the kids outdoor birthday party. She ran out of hot water. The car broke down. She had to work. She was sick.

She often made up stories that couldn’t possibly be true, but she believed them. She argued with people who tried to convince her otherwise. She, at times, thought that other people were out to get her.

Martha just wasn’t like me……she didn’t suffer from feelings of depression or anxiety. She didn’t worry about anything. She was outgoing, carefree, and spontaneous. She saw the world through rose colored glasses. She didn’t care if she was late. The clock’s ticking did not grind at her. She was happy with what she had. There wasn’t a harsh taskmaster in her head striving for more. She was easily excited by ordinary things. She was an interesting person, simple yet complex. You never knew what you were going to get.

It was hard sometimes not to feel irritated. Then there were feeling of guilt because we knew that Martha meant well. She just wasn’t playing cards with a full deck.

Life, sometimes it is a battle of heart versus mind. The logical part tells you that you shouldn’t feel a certain way, but you can’t stop from feeling the way that you do.

Regardless, we made our peace with Martha. We thanked her for her sacrifice of raising a child that she wasn’t ready to raise on her own. In the end, we knew she loved us and did the best she could. She knew that we loved her too.

Switching gears

As we speak, my daughter is on her way back to college. This is the first time that she doesn’t want to go back. It is because we are cool and all that. Seriously though, it is amazing having a child that wants to hang out with you versus having one that finds you annoying. She is finally able to see us as we really are.

To tell you the truth, I think parenting is a sham. We try to act like someone else around our children. We want them to be better than us. Part of the way we do that is try to hide our weaknesses and mistakes from our children. We nag our teens about being responsible and cleaning their rooms when we were back talking brats that lived in a pig sty like they do. Then suddenly they become adults. For better or worse, the blinders come off. We realize that our child has become a friend because she is really just like us.

We don’t have to lie to her anymore. We don’t have to tell elaborate stories about the tooth fairy, Easter bunny, or Santa. We don’t have to show fake excitement for stupid children’s songs or TV shows. When Angel was little, she was really into Barney. I sure am glad that is over now. If I had to listen to another song about cooperation and sharing from a purple dinosaur while my kids sat in front of the TV and fought, I would probably lose it.

Now we can have fun together and have serious conversations.

There were a lot of last minute dinner dates and shopping to send Angel back off to college.

On Friday, Angel and I went out to eat with my mom for lunch. We went to a local restaurant that wasn’t too busy and what did they do?? They set us up at a table next to and facing a couple with their adult disabled son. The couple was trying hard to get their son to act appropriately. He got up several times and burped loudly. Can I never escape reminders of my own brother??

My mom said that she really wants me to write a book with her. I also feel the mission that I have a story to tell.

I actually have two stories to tell…

The first story is about my brother Matt…growing up with a violent autistic/schizophrenic sibling. I have just touched the tip of the iceberg. There is so much hidden underneath the surface that I haven’t even begun to delve into yet.

But I can only tell the story in small pieces. There is a sadness, melancholy, depression that is hard to explain after diving into the depths. If I spend too much time there, I will surely drown.

I am a broken person, despite my tough exterior. Only a few people truly realize that. You are one of the few people I let inside. Paul notices so many things that others overlook. He understands. We are both high functioning broken people. Silently we weep together. Together we succeed at fighting our demons.

It is hard to find someone on the same level who has survived difficult circumstances. I’m thankful that we found each other.

The second story I was meant to tell is about Paul. So I am going to switch gears a little bit here…but trust me if you can…it will be well worth the ride.

Past presents

I think it was my aunt’s mission to get me drunk at the family Christmas party.

Alcohol…it has a way of bringing me to life. It makes me feel emotions that are otherwise stuffed away. I answer questions less guarded. Sometimes not only do I then like people, but I become the life of the party.

I was cornered. Have a glass of wine. Once it is emptied, it was refilled by another. Normally I might have told her to piss off (but probably in kinder words)…I am in control of my body and how much I choose to drink. But for some reason, I didn’t care. My aunt through marriage is a very eccentric person and I am drawn to her because she is exciting.

After a few drinks, my aunt started talking about her college days. Apparently she was in a sorority and could drink most people under the table. She started asking questions about my college days as she refilled my glass yet again.

What I told her was that I spent a majority of my college years taking care of my special needs brother. I told her that my mother needed my help so I stepped up to the plate.

What I didn’t tell her was that I only applied to one college, the one closest to home. I didn’t tell her that I never went to one party when I was in college. I didn’t tell her that my mom had a hard time keeping minimum wage caregivers for Matt because he was violent towards them. I didn’t tell her that Saturday night was shower night for Matt, not party night for me. This was the night I bathed him like a small child, not like a slightly younger brother.

My aunt told me I was gypped. Why didn’t my mother put Matt in a group home sooner so I could have a somewhat normal life?? She told me that she saw all these things happening to me but there was nothing that she could do about it.

Her words brought tears to my eyes that threatened to drop. I didn’t want her pity. I told her it made me a better person. That is just the type of bull I say to make people stop seeing me as a victim. I view myself as a strong person, not in any way am I weak or to be ever portrayed as such even though I once was. This is the protective shell I cover my hidden vulnerability with.

Has it made me a better person?? In all honesty, probably not. I don’t believe that I would’ve been a ‘bad’ person if I went to a keg party instead of staying home on a Saturday might to bathe my brother.

Usually I just keep my mouth shut about topics that could lead to conversations about my childhood. I don’t like people picking at my scabs. I feel very hurt that I was robbed of a childhood. It has been a great weakness for me as a parent. I’ve spoiled my children by giving them the childhood I never had. Deep down inside I feel hurt, anger, and resentment towards my mother for taking that away from me. I feel guilty because I know that my mother did not want it to be that way.

I am living the best years of my life right now, but I can’t seem to escape the constant reminders of a painful past.

Running update

Good news! I was able to go for a 10 mile run today without pain!!

I think that cutting back in my running helped my body heal physically.

But it was not good for my mind.

I was starting to get depressed. I felt like life was meaningless. I felt like I had no purpose or reason to get up in the morning. I struggled to keep the tears from my eyes. I was edgy…moody…irritated. I felt like there wasn’t one person in the world that cared about me.

I know that those feelings are not real. My life is actually going pretty good. I’ve surrounded myself with so many people that care.

Not running does strange things to my mind…so it is good to be back on my feet again.

Thanks for your thoughts, comments, and prayers. I really appreciate that you take the time to follow the winding story of my crazy life.

Wow! See? I’m feeling better already!