NAMI

Mental health awareness month

/ Outrunning my demons / Leave a comment

Many of you are probably aware that May is mental health awareness month. Maybe you already shared the cutesy memes on social media stating you are a friend that anyone can call day or night. Maybe that is enough for you to feel good to check off your awareness month, and have moved on to planning your pride party for June. Or maybe you also live in Wisconsin and are stocking up on cheese curds for June dairy month. I know, I know…cheesy..

Or maybe you are like me and found out that mental illness is not all that cute. Maybe you or your loved one has already lost the friend that you can call anytime. Mental illness is tough. I’m sure everyone who struggles with it would remove that part of their life if they had the choice. It’s so painful and malignant, that far too many remove themselves from life altogether when it refuses to leave them.

Through NAMI, and talking with other parents whose children struggle with mental illness, I was surprised to find some striking similarities. I am not the only parent whose child attempted suicide. I am not the only parent whose child was incarcerated after a psychotic episode. I am not the only parent whose child, after making abuse allegations, moved in with another family. I am not the only parent whose child hears voices commanding them to end their life and soothing voices telling them how peaceful death is. I am not the only parent whose child has lost a lot of good friends because of their mental illness. I am not the only parent whose child was bullied because they are different.

I could make a much longer list. But the point here is awareness. Don’t blame the family. Don’t blame the mentally ill. Most would choose to change it if they could. Don’t shun them out of ignorance or fear. Treat them as if they have a potentially life threatening form of cancer. Treat them with compassion while being mindful of your own mental health as well.

Be kind to the server who has cutting scars all over her arms. For today, she has successfully battled the voices in her head. She has battled the voices outside her head sending similar messages about her worth. She has many battle wounds but is still alive fighting. That girl is also my daughter. But she could be your daughter as well. Or your son, sibling, parent, partner, neighbor, friend, or yourself.

Be aware that one in five Americans struggle with mental illness.

Green light, red light 7

/ Outrunning my demons / 2 Comments

It has been a whole month now since the mania and delusions started. Arabella is gradually getting better, but these kinds of medications take time to kick in fully.

The endless pacing back and forth has gotten slower but she can’t sit down. When she talks her voice isn’t as loud as if she is yelling. She no longer talks non-stop but she is still constantly interrupting conversations. Having a conversation in the room she is in is next to impossible. If we go in a different room, she might knock on the door.

She has become like that of a young girl, around 6 or 7. She has given up smoking. I’m not sure if it is because she now thinks she is too young or even if it will stick after all this is over. If it ever ends.

The voices in her head are quieting. I didn’t know she heard voices. She told us she thought everyone heard voices. Sometimes the voices told her to do awful things like cut or kill herself. Sometimes the voices she hears are like my voice. It can almost make sense to me why she thought I was tormenting her.

It’s exhausting. At times the suffering and grief is unbearable. Sometimes I think this is going to kill me. Sometimes I don’t even care if it does.

I am envious of people who in times like these can lean on their faith to bring them peace, comfort, and hope. As a seeker, I never can seem to find what I’m chasing after.

Why has this been what is chosen for me, my daughter, my family.

Green light, red light 6

/ Outrunning my demons / 3 Comments

Several times during her hospital stay, Arabella put in requests to come back home. On day 10, we picked her up and brought her back home. She was doing better, a lot better than when we took her in. But she was still manic and delusional. Maybe our expectations were too high. Or maybe we picked her up too early.

She didn’t sleep the first night we brought her home. The hospital changed all her medications. Then when she got home, she took her old nightly medications. It was a jumbled up mess so we decided to call her psychiatrist’s office in the morning to figure it all out. The process of figuring everything out took the whole day. By that afternoon, things got progressively worse. Arabella was very manic and kept interrupting us every few minutes to tell us a bunch of nonsense. By late afternoon, Arabella told us she took a couple of gummies and smoked weed. She was stoned out of her mind, and totally freaking out.

My mom stopped by for a random visit right around that time. She wanted to go for a walk, but I was in the middle of a million things. It’s nearly impossible to get all the things done I wanted to get done when I’m constantly interrupted and in crisis mode. That is when we received a call back from the doctor’s office. Paul and I took the call in Paul’s office on speaker phone while both my mom and Arabella came in and talked to us while we were having a serious discussion with the nurse. We were beyond annoyed, frustrated, and stressed.

The nurse said the doctor wanted to discontinue some of the new meds from the hospital while adding back some of the old meds and discontinuing some others. They were going to call the prescriptions into the pharmacy and would be available two hours before the pharmacy closed. She was going to need to start the new medications that evening. I was going to need to figure it all out before she went to bed. I took a bag full of her medications on hand and went through everything while waiting for the pharmacy.

I needed to go through the meds, fold laundry, and make supper before picking up the meds. My mom tried calling several times while I was getting everything together to make supper. I figured she wanted to talk about Arabella since she left while we were on the phone with the doctor’s office. I ignored her call because I was in a real hurry and didn’t want to take the time to explain everything yet again.

Then Paul came into the room while talking on the phone. He asked whoever it was if they were going to be arrested. I knew he wasn’t talking to Arabella since she was in her room. It was my mom. He said that while she was on the way home she hit a guy on a motorcycle with her car. He said that I needed to go pick her up from the scene of the accident. He said my mom was okay. The guy on the motorcycle was alive but injured.

While in a crisis, we got hit with yet another crisis. I abandoned supper to get ready to pick up my mom. Paul said he would pick up the medication before the pharmacy closed. He wanted me to do it originally because it was my strong suit. On the way out the door, I called my best friend Cindy on the phone. She lived a couple blocks from the accident. She told me I should come over to her house and she would drive me because I was way too shook up myself.

Cindy and I picked up my mom from the place where they towed her car and the motorcycle. Good thing Paul picked up the medication because the pharmacy closed before I got home. The pharmacy screwed up the medication. But at least they gave her a prescription for something she was no longer using. The hospital also gave her an injectable medicine the day she left and I got a prescription bottle with a vial of the injection in it.

While all of that was happening, I received a call from Alex’s friend. It was his 21st birthday that evening and they wanted me to come out celebrating with them. It was a sweet gesture that my kid’s friends also think of me as their friend as well. Paul was just meeting with this young man and helping him set goals to get his GED which he just finished. I will always think of my kid’s friends as children even when they are in their 20’s and able to go out to the bars. If anything, I was worried that they would all make it home safely. Especially after the kind of day I was having.

They weren’t the only ones on the road. Dan and Angel were just getting home from a vacation in Japan. The flight back home was a rough one, then they had to drive another 4 hours to get back home. I was anxious all around. My nerves were shot and I didn’t know how much longer I could handle the stress. Bad news doesn’t seem to shock me anymore.

Now I find it shocking when good things happen.

Green light, red light 5

/ Outrunning my demons / 2 Comments

Another crisis was averted when Arabella rescinded the release order she signed the day after her voluntary commitment. Paul and I decided it was time for us to visit Arabella.

We arrived during adult visiting hours in the evening. Once again we had to lock up all of our belongings including our cell phones and sat in the waiting room with a sad lot of people. Like in an elevator, no one looked long at each other. We all got swept by the metal detector screening us for weapons. Then with a buzz the outside door unlocked and we silently walked down the long hallway into the cafeteria where we waited for our loved ones to arrive.

It seemed like we waited a long time for Arabella to arrive. Everyone else arrived before her. We watched while the others embraced with a smile and sat down as if in a regular restaurant to have normal conversations. Arabella arrived in disarray clutching a notebook with the word password written on it. She said password was the password and if we could read it, we could look inside. She cautioned us that the hospital was bugged. First we had to bug the system to debug the system. It was strange because they were having issues with their phone system which Arabella slid comfortably into a delusion that everything was bugged so we had to go to a different algorithm.

Arabella said she was a genetic freak. She was born of one woman and two men. She had an extra chromosome. She said she was colorblind, men can only see primary colors and women can only see secondary colors. She said she liked apple juice because she ate from the tree of knowledge of good and evil. When she ate she knew all the answers to all the problems of the world.

She said she needed Bryan to come to the hospital because he was her soulmate, her other half. Her bloodwork wouldn’t be complete without him coming in the have his blood drawn. They were storm chasers and she could leave now because it wasn’t storming. She spoke of science, DNA, physics, time travel, and biology. The things she was saying had an iota of truth but was jumbled and didn’t make a lot of sense. She was unable to hold a conversation with us.

But the most troubling thing was that she was slurring her words off and on. We noticed that when we were talking on the phone several times but thought maybe it was from being sedated. She held her mouth funny at random times and words almost seemed to whistle through her teeth. She said she couldn’t talk because no one ever showed her how to talk right. She also said no one ever showed her how to brush her teeth and she had gingivitis.

We were very concerned about her new symptoms. Then she started singing. They said sometimes she would sing loudly in her room. When visiting time was over, the patients had to line up on one side and the visitors on the other. Arabella went her own way and started to take one of the signs off the wall. We told her she couldn’t take the signs off the wall.

We left in shock. Our daughter was still gone. Would she ever be the same again?