17 thoughts

This summer has been very busy and unfortunately I haven’t been able to set aside as much time as I would’ve liked for writing. Here is a summary of what has been happening which may or may not lead to future posts about the events.

  1. My mom’s POA was activated after a diagnosis of frontotemporal dementia.
  2. I set up a tour for my parents of an assisted living facility. They will be moving in this weekend.
  3. My brothers and I will be meeting over the weekend to make some hard decisions about what to do with my parents properties, vehicles, belongings, etc… As my parents are hoarders, this could take more than a year to straighten this mess out.
  4. I am still dealing with guardianship issues with my brother Matt in terms of his finances and health. My mom has been very angry with me that I am allowing him to have a diet with no restrictions. There will probably be more about this in a later post.
  5. Arabella broke up with her boyfriend. It was more of a mutual breakup and they left on good terms.
  6. Arabella has less than a month of probation left.
  7. Angel and Dan moved their camper from North Carolina to Indiana. They are doing great, but it’s been an adjustment this year not seeing them often.
  8. Paul had genetic testing done for cancer. On the test, 76 out of 77 screenings came back as normal. The other was neither negative or positive as they don’t have enough info to be certain if it’s a problem area or not.
  9. Our dog jumped the fence and was missing for 24 hours. We looked for him everywhere. We thought he was a goner until the following day when I came into the house to find him laying on the couch like he never left.
  10. The dog ran away right before I had to leave for work. That day I went in late. I left a message for my supervisor who didn’t bother to ask if we found our dog. I think that was the point where I started to despise my supervisor. The company I work for and the management really suck as I’ve seen them screw over the employees. This left me in a hard spot. I really like my job, the people I work with, and the patients. But is that enough for me to stay with a company I have no respect for because they don’t take care of their employees.
  11. Talking about employees, a previous problem employee of ours when we ran our company was convicted of felonies which landed her in prison.
  12. For the first time, I was called to go in for jury duty and was selected to be one of the jurors for a felony case involving the se#ual assault of a child.
  13. I decided to have three rings resized that were a gift from my mom when I was in my 20’s. It means a lot more to me now that my mom is ‘gone’.
  14. My son moved back into the house. He is doing really well as a musician, having a full-time job, and starting a business on the side. But in other ways he is not doing well. Like his dad, he struggles a lot with his drinking. At least at this point he is acknowledging it’s an issue he needs to work on.
  15. I really think that now is a good place to end my memoir. It’s been six years since I started it. I even finished it at one point, but life kept happening.
  16. The bar I made my stand up comedy debut in shut down. There are other venues I can try out though.
  17. There are so many things I probably forgot about…

The appointment, part 2

July was the month of appointments, none of them mine. Matt had an appointment scheduled for his physical. I had a long list of questions to take with me. My mom never allowed anyone to take part in Matt’s care. She wanted full control and everyone had to do what she told them.

I expressed concern to the doctor how many supplements Matt was taking along with his medications. Matt was even taking a multi-vitamin with iron, although he had no medical purpose that I knew of to be taking it. I asked the doctor if Matt should be taking dozens of supplements. Was it possible his previous liver issues were due to taking too many supplements? The doctor said it was likely.

Then I discussed with the doctor the strict diet Matt was on. I told her I would like Matt to try a diet with no restrictions. The doctor asked Matt if he would like to have some ice cream. I told her Matt has no idea what ice cream is because he never had it before. As kids, we never drank milk. There were many foods Matt never had before. I wasn’t sure how his system would respond to a new diet. I was fearful he might have an allergic reaction of some sort. The doctor decided to draw some blood just to check if Matt was deficient and needed vitamins.

The blood draw was difficult for Matt as they couldn’t find his veins easily. The doctor said she could order allergy testing and even a brain scan to see what was going on if I wanted. But I told her I didn’t want to do anything invasive to Matt if what we were doing was working for him. His anti-psychotic meds are working. I didn’t feel the need to do a brain scan to prove he has schizophrenia or another disease or disorder.

The doctor told me the group home called her and pleaded with her to talk to my mom about Matt’s care. I went home and cried. I was overwhelmed with sadness that Matt was forced to live this way for so long with no one stepping in to tell my mom she was going too far. I came to the conclusion that he wasn’t sick, she was. It rang Munchhausen by Proxy warning bells in my head. It made me question everything I ever believed, everything she taught me as truth. I felt anger towards my mom for the abuse. I am so ashamed of my family. I feel nothing but disgust, yet I have to be the bigger person to make the decisions about everyone’s care. Was I making the right call??

Weeks passed, Matt started trying new foods. He ate ice cream cake for the first time at 49 years old. He really liked it. He didn’t have a reaction to it at all. Then he tried pizza. My mom found out that Matt was off his special diet. She became very angry and yelled at the staff member who gave it to him. I was afraid something like that would happen.

The last time we visited Matt he looked happy. I have more compassion towards him. I feel sad I couldn’t have changed things before. But my mom was the guardian and wanted to be in complete control. I couldn’t do anything about it before, but I can now and I am.