Author: Outrunning my demons

Unrest

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I don’t want to do this anymore, this whole life thing. I want to hibernate somewhere, hidden away under cover.

I don’t know how I got to this point. I’m just tired of it. I’m just tired.

I couldn’t fall asleep last night. It was after midnight before I silently fell into slumber. This happened twice this week although this type of insomnia rarely happens.

I couldn’t stay asleep last night. I slept restlessly. I awoke several times. At 4 AM I had to go to the bathroom. This is the type of insomnia I call home.

I had one of the most intense nightmares that I had in a long time. I was a little girl. I was brought to an empty house because there was going to be a lot of blood, my blood. I went willingly because I knew I had to be the sacrifice. I was afraid. I was going to be hurt badly, but I would live through it. Before anything happened, the owner of the house came back. She looked like a grown up me. I told her that she needed to leave because she would get killed for being there. She tried to help me, we ran away. She was killed and I hid in the closet terrified knowing I would be next. Now we both were going to die because she tried to save me.

I awoke at 5:30, less than an hour before my alarm was going to go off.

Today is the day that my video is being posted. I didn’t know it until this morning. I hate the video. I want to destroy it. I feel so anxious about it.

Why do I have this need to tell everyone about the things I’ve experienced? I just don’t want to do this anymore. I don’t want to write. I don’t want to blog. I want to disappear off the face of the earth like I never even existed.

I thought of strange things. I remembered the book my mom used to read to me about Toad and Frog. They left the door open and winter came in. They were cold, sad, and lonely. They made soup out of their tears. It was almost as if the hauntingly sad child me came for an unwanted visit. But to cast her away would destroy us both.

I struggled to find the motivation to do everything I needed to do. Some days are like that. I’ve been stirring up my demons. But I was able to make it through. It is hard to do when my body and mind doesn’t let me rest.

Maybe tonight I will sleep.

Unrest.

 

I finished my book!!!

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Tonight I’m celebrating.

I finished my book today!

I know that now the hard work begins…editing…trying to find a good publisher. But tonight I will put all those worries aside.

Tomorrow the video I created will be sent out to hundreds of parents of autistic children. Then it will be posted online to be viewed by countless people. I am nervous and excited to see what will happen.

Thanks for your continued encouragement and support!! I just wanted to share the good news!

Done, done, and almost done

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I am so relived that all of the difficult things over my head this month are now done.

I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.

Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.

Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!

I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.

Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.

Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.

Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.

It is finished now. I sent them. Whatever happens, happens.

Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.

I am done, done, and almost done. If I heal and help other people in the process, it is worth it!

My first 50k

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I did it! I finished my first 50k.

The ultra marathon started at 6 AM. I got up at what would’ve been 3 AM my time at home after a restless night’s sleep.

It was still dark when the race started. I borrowed my cousin’s headlamp. I thought that I could just use my cell phone, but was told that a headlamp would work better. I never ran with a headlamp before. It was disconcerting and took some getting used to. I felt like I was running with a strobe light.

I felt tired and had stomach issues for three quarters of the race despite my best efforts to get enough rest and not eat anything that could possibly disagree with me. My body likes routine and kept cuing me that something was off. I did a lot of walking dragged along by my cousin who was always in front of me. He kept encouraging me along and everyone else along the path.

As the day grew long and the end neared, we greeted everyone and were greeted with a great job, keep going, looking good. It was a difficult course despite near perfect weather conditions. I saw runners vomit, covered in dirt, lay on the ground, and fall in front of me. Some were running the 100 mile race that started the afternoon before. Some looked strong and others looked like they were barely holding on.

Every muscle in my body screamed at me to stop after I ran the length of a marathon. My feet ran along in a slow shuffle. In my mind my movements were exaggerated. I thought I was picking up my feet high enough to get over several roots on the trail. Twice I tripped and caught myself from falling. My body jolted in a pain so fiercely never experienced before.

There was no way I could keep up to my cousin after that, but he wouldn’t finish without me. He told me how strong I was and to keep going. The closer I got to the end the more my mind told me just the opposite. I sucked at running and was despicably weak.

Meanwhile, Paul and my cousin’s wife followed us around routing for us. They stopped in the middle of the woods for a picnic lunch which prompted a runner to ask them if they were real.

C’mon now, we only have a 10k left…now a 5k. After another mile, we just had 3 miles to go. Wait you told me that a mile ago. Are you lying?

The last two miles were the hardest. It took everything I had to just keep walking. I never ran that far before. I didn’t trust myself to run. I felt like I was going to pass out. But I was determined to finish even if I had to crawl. My cousin said he would carry me across the finish line if he had to, but I said I would never allow for that.

My cousin is a very kind and caring person. He stopped to offer help to everyone he saw struggling on the path.

Finally we were about a mile away. I saw some fortune cookies left on an almost empty snack table. In only one package, there were two fortunes. I convinced my cousin that those were for us.

Ability will enable a man to get to the top, but character will keep him from falling.

Seems fitting, I guess. I am quite the character.

Finally, the end was in sight. I ran with all the strength I could muster across the finish line.

Fortune cookie wisdom #20

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Courage comes through suffering.

This fortune cookie blew away from the rest and was found the same day I found my lost ‘I am courageous’ sock. I only wore the socks once before losing one in Paul’s shirt for a couple weeks.

It seemed like a sign of some sorts. But what does it mean?

What does being courageous even mean? The dictionary defines courageous as not deterred by danger or pain; brave.

I would like to think that I am courageous. In the next couple weeks I am planning on doing courageous things.

This weekend I am running my first 50k. It takes a lot of courage for me to do this and probably will entail a lot of suffering too. There is no guarantee that I will succeed. I am very fearful that I might not be able to achieve the goals I’ve set in place for myself.

Within the next two weeks I will be submitting a 45 minute presentation for a local autism chapter about what it is like to be a sibling of someone with autism. I really need to put myself out there about the most difficult experience in my life. It is going to require a lot of courage. I am finishing my book on what life is really like with a disabled sibling. I’ve had to face my scars and demons.

As an extra test to my bravery, over the holiday weekend a filling fell out. I went to the dentist today to get it fixed. They said I could probably do it without being numbed. I would rather run a marathon with a broken leg. I was horrified and then they said I could get anesthesia just in case. But I decided to brave it despite my fear.

Then this past weekend I spoke to my dad about God. I don’t feel like he has much time left. For some reason he has softened his heart toward me lately. He told me that he loved me for the second time in my life. The first time was on my 18th birthday prompted by my mother. Then this weekend I asked him to come out and sit with us, his family, by the campfire. Surprisingly to everyone, he did.

Before this, I justified to myself that someone else should talk to my dad. My brother Luke sat down with my parents awhile back and aired out all of his grievances. It seemed like a good thing. I thought that he was getting along great with my dad. I felt like Luke is a better Christian than I am so he could carry the weight of talking to our dad. But my eyes were opened to the fact that Luke and my dad do not get along.

My mom is a devout Christian and my dad is a Christian bashing atheist. I bet you can guess how that worked. I believe that the best marriages are of those that have the same religious beliefs. Because, we the children, have to take sides. I feel the need to talk to my dad about God. I most likely wouldn’t have that burden if both my parents were Christians or atheists if I followed their beliefs. It causes a lot of disharmony and stress.

So on the way out of the cabin this weekend I said to my dad that I hope he finds God before God finds him. My dad laughed and said fat chance. I knew that my words probably did no good for him, but it released me. I did everything I could and if it is the last time I see him I will know that I did not leave a coward.

I don’t think that I am more courageous than the average person, but I am trying to be brave when there are demons to slay and fears to conquer.

 

Life’s good

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I feel happy with life right now. It’s been a long time since I felt this way. Things are finally coming together. I think I actually slept two full nights this week following a week of insomnia and nightmares.

What makes me happy is that everything is coming together for my family.

My daughter Angel just started her last year of college. She is dating a guy that I would be happy to call my son-in-law. I think they might get engaged soon. Her future looks pretty exciting right now.

My son Alex just started tech school. He is joining a band that I approve of. It’s all I can ask for right now.

Things are going better than expected with the foreign exchange students. I have been busy getting them registered for school and trying to do all of the fun stuff around here before summer ends. Weather wise, it pretty much has ended. It’s been a cool and rainy summer.

Arabella is doing good with her diet and one of our foreign exchange students offered to host her as a foreign exchange student next year. Things are coming together.

Paul is starting a new business, not a start up company this time but a franchise. We are getting along better now than we have before.

I am excited and nervous to be traveling to Michigan next week for my first 50k. Paul and I are taking the car ferry across Lake Michigan for the first time. I love planning trips, even if they aren’t very far. Off to another adventure which I’ll be sure to tell you about.

I don’t know what the future brings. But as for right now life is good. I’m going to hold on to that as long as I can.

My intolerance

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You may have remembered that I said I was going in for allergy testing a couple weeks back. Let’s just say that now I know why my mom wanted me to go in for testing. Something about misery loving company.

Although I don’t have any allergies that could send me to the ER, I was found to be intolerant of several of my favorite things. I guess the whole general premise is that if I am able to give up the things I am sensitive to, then after a year I may be able to reintroduce them into my diet.

The top foods that I am sensitive to are dairy, chick peas, and brewer’s yeast. I wasn’t expecting it at all. So no more cheese or beer for me for awhile. I might as well just exile myself from Wisconsin. Gotta love the dairy state. Not to mention that beer is pretty much a staple here as well.

I decided that after the Oktoberfest party this past weekend, I was going to give up the things I am most intolerant to. Then I will work on things that I have a minor intolerance to such as black pepper, rice, eggs, tomatoes, peanuts, almonds, crab, turkey, and baker’s yeast (breads, pizza crust, etc..). Seriously, what can I eat??

Friday night Paul made his famous homemade pizza. Then I sampled almost all of our friend’s homemade craft beers at the party on Saturday.

The party went by way too fast and soon Sunday morning came. I drank my coffee with my new hemp dairy free creamer. Yeah, my coffee tasted like rope.

I am a total cheese addict. I honestly don’t think I’ve gone a day without dairy in the last 20 years. It has been really hard. Although I do feel a lot less bloated.

Yesterday I went to a health conscious food store with my mom. She is dairy free too. I felt better after that. I was able to find some goat’s and vegan cheese. I was even able to find mac and cheese. Now if the stuff tastes good, that will be a bonus.

I am hoping to feel better and have less stomach issues. Maybe after I get this whole food thing figured out, I’ll go in for hormone testing. Two weeks of the month are total heaven and the other two weeks are complete hell. Thankfully the 50k will be in the good 2 week span. But I am back to having insomnia again. I haven’t slept for more than a few hours at a time over the last several days. I’ve been trying hard not to bite anyone’s head off, especially when I see them eating cheese.

A cold craft beer with a side order of cheese curds sounds so nice right now. I’m sure it will get easier and I will feel better. But right now giving up my favorite things has not been a lot of fun.

666 followers

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Outrunning my demons now has a total of 666 followers. Scary, right?

The number in and of itself is too evil to be celebrated.

What a perfect time to talk about the dark side of WP.

You know what really makes me burn?

I hate it when amazing bloggers leave without a trace.

I want to know why.

Did you die????

I really liked the quirky stories about your life.

Then just like that, you are gone.

I would like to think if I ever decided to leave that I would say good-bye.

I’ve seen so many great people come and go over the years.

I wonder how they are doing sometimes.

Just like an old friend, I want to see them again.

 

Expectation reflections

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It hasn’t been too much of an adjustment having 4 teenagers in the house.

Our foreign exchange students have been very quiet and friendly. When we told others of our plan to have 2 foreign exchange students, they cringed. Most shared horror stories of wild teen exchange students that made every effort to sneak out and party. So far there haven’t been any problems.

It’s probably because they are not comfortable being family yet. There aren’t any fights or talking back. We are all on our best behavior, no belching or farting. My husband has been giving them special treatment. He is buying the foods they like, taking them to places they are interested in going, asking if they are too hot or too cold. It’s hard not to treat them like visitors.

This is going to sound insane, but I felt a twinge of jealousy. It triggered something inside of me that reminded me of my mom’s special treatment of my autistic brother Matt.  Everything in our house revolved around Matt and what he wanted. I honestly wasn’t expecting to feel that way.

Of course, the students paid a lot of money to have a great experience here. I want things to be wonderful for them. Things are going really well. The girls don’t seem to be too homesick. If anything, at times they seem a little bored. But I’m sure that will change once school starts and they make friends.

It’s fun because they get excited about all of the little things, like going to the grocery store. They eat differently than we do. They use their knife and fork to cut things more. They cut up grilled cheese sandwiches instead of just picking them up and plunking them in their soup like I did.

Today Clara made homemade German potato salad for our friend’s Octoberfest party tomorrow. Real German food!

I also didn’t realize how much Hitler and the nazi’s were the butt of American jokes in TV and movie comedies. Awkward! But none of us were alive when any of that happened. If anything, countries that were once at war can be friendly towards each other again.

Hopefully in the next couple weeks the girls will come out of their shell a little. As for right now, I’m really happy that things are going better than I expected.

A new family

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Last night our foreign exchange students arrived, Clara from Germany and Estelle from France.

I felt anxious all day. I couldn’t believe it was really happening.

I worried. Would our new “children” like us? What will this next year be like?

My oldest two children are not as excited about it as I am. I think they think I’m replacing them. But maybe in a way I am. They are adults and don’t need me being a mother hen to them anymore. They are off living their own lives like they should be.

I am excited about this new adventure, but as with anything new a little frightened too.

I wonder what it would be like to see everything for the first time through their eyes. Maybe even for us, the old will become new again.

I hope it is a wonderful experience for all of us.