- We made it across the bay back to our home port before the storm hit on my birthday.
- It seemed like absolutely everybody at the marina knew it was my birthday (even people I didn’t know). It’s probably the first time since I turned 40 that I am all birthdayed out. It was too much attention for this introvert.
- I met my son’s new girlfriend at my birthday party. She is really quiet and that is nice.
- Today I met my daughter Arabella’s new boyfriend. I did meet him briefly before when he came over at night and I was sleeping on the couch. I told him it was nice to finally meet him when I was dressed. Well that was awkward. I meant to say it was nice to meet him when I was awake (not sleeping on the couch in my pajamas).
- Summer!! After the storms on my birthday I couldn’t ask for better weather.
- I am planning Arabella’s graduation party. I am grateful to plan her party. As I looked at all of her pictures throughout the years I found myself really grateful that I am planning her graduation party and not a funeral. Worrying about death is one of the hardest parts of being a parent of a child with serious mental health issues. Graduating was a milestone worth celebrating, even if she is not heading to college like all of my friend’s kids.
- Over the weekend I went out to eat at the restaurant Arabella works at. I felt grateful that she has a job she really loves.
- I also went to a wedding show over the weekend with Angel, Dan, and his mom. I think within the next week or so we should have a date. I still cannot believe my daughter is getting married!
- Although I slept better on the sailboat, it is really wonderful to sleep in my own bed again.
- I am grateful for Angel’s birthday this week. We are planning massages and going out to eat at our favorite pizza place.
Distant shores
I promised I would share some of the pictures I took from our last sailing trip.
We ended up delaying our trip by a day due to storms. The following day the water was still choppy at first.
(Apparently I haven’t shared a lot of pictures lately because WP changed everything again so bear with me.)
A distant lighthouse located somewhere between Wisconsin and Upper Michigan.
We visited a new to me marina. On the water life isn’t too busy. It’s nice to get away from all the noise.
Sometimes all we see is a distant sailboat on the endless water.
On the water I can experience peace mixed with adventure. The next evening we anchored out.
We made our way up to Chamber’s Island where we took our kayaks to land and explored a lighthouse.
We jumped into the ice cold waters to cool off on a warm enough day.
It’s really neat to see huge cargo ships on a voyage. I wonder if they think it is cool to see us too…
One of my biggest passions in life is photography and travelling to places I’ve never been to before. This was the first time I visited these places. I love being on the water. I’m not sure why it brings me calm and peace while in many others it would cause fear. Tomorrow, for my birthday, we are going to brave possible stormy weather and go on another adventure.
Triggered
Maybe my expectations were too high. I thought that my dysfunctional family of origin could handle being functional for a couple days. Is that too much to ask for? Apparently so.
It started out okay. I headed up north with Angel after she was done working on the Thursday before the 4th. We were jamming to our favorite tunes that were cranked. A couple people waved as they passed us on the highway. People everywhere were excited to celebrate the first big holiday after COVID. The weather was going to be absolutely perfect. Who could ask for more?
Thursday went well. Angel and I opened up the cabin. A couple hours later my brother Luke joined us with his family. But after that pretty much everything went downhill. I couldn’t for the life of me understand why. I had a plan for everything. The plan was if my mom slept well, she would drive up with my brother Matt. If she didn’t sleep well, they would hitch a ride with my husband Paul.
It looked like my mom left the house, so I got my nieces all psyched up for her to visit when my mom called me and said she wasn’t coming up. My brother Luke and his family were leaving later that afternoon for family camp which meant my mom wasn’t going to see them since she was feeling tired and anxious. This was really triggering since a couple weeks before my mom left my brother’s house right before my niece had her dance concert. Now everyone was angry and hurt. My nieces were so incredibly sad saying that grandma didn’t care about them. I was furious because I already had contingency plans A through F in place in case something like this would happen.
The new plan was that my brother Mark and his wife would pick up my mom after driving 5 hours. They were going to spend some time with my dad because Angel and Luke did not want to see him. Luke ended up going to pick up my mom instead. Everything got all messed up and everyone was upset.
Eventually on Friday afternoon almost everyone was up north. I thought the problems would end there, they didn’t. Arabella called to tell me that her car wouldn’t start and how was she going to make it to work the whole weekend. I told her she could use my car. Another problem solved.
My husband decided to help out by mowing the lawn since my dad doesn’t do anything to get the cabin ready for us. He is terribly lazy and now that he has this new heart condition he does absolutely nothing. He won’t even take out the trash now. He expects everyone to take care of him. But I digress. Since my dad didn’t mow the lawn, Paul did. The grass was so high that Paul did not see the metal line that the dog was tied up to and hit it. It got all twisted up in the lawnmower. Worse yet, it yanked the dog so hard that his collar broke. Originally Paul had him chained to his choke chain and I put him on his collar. Good thing because it probably would’ve killed him otherwise. I was very angry that my dog could’ve died.
That evening my brother Luke and my daughter Angel left. Angel was very upset before leaving. My brother Mark’s wife Carla did not congratulate her on her engagement. She made passive aggressive comments about Angel sleeping in their bedroom. She also said how she couldn’t wait to have steak with my dad. Angel took this as an attack. My brother Luke does not want his daughters around my dad nor does my daughter Angel after she found child porn on my dad’s computer and turned him in to the police. Angel felt like Carla was blaming her for this. After Luke and Angel left, my dad showed up which is another stressor. Matt and my dad are very difficult people to be around.
Carla screamed at my brother Mark the whole weekend. She yelled at him for everything like eating his cheese separately from the burger she cut the cheese for. She is incredibly controlling and verbally abusive. At one point she yelled at him so much that I was even shaking. It triggered my husband because his mom was the same way. He wanted to tell her off but we didn’t want to make things worse for Mark. Carla offered to take care of my dad and Matt so my mom didn’t have to. She was taking it out on Mark.
Paul and I tried to spend as much time outdoors away from everyone as we could. Sunday morning I suggested to Paul that we go kayaking. Then everyone wanted to go kayaking. Carla yelled at Mark that she wanted to go and why didn’t he plan that for her. Since the kayaks were Mark and Carla’s, we decided to pull the canoe out of the garage. My mom wanted to go too. We didn’t get far before she wanted us to turn around since she can’t swim and is afraid of water. Then she wanted us to take Matt so he wouldn’t be left out. Matt is worse on the water than she is so we said maybe later.
There were some good things that happened over the 4th. The fireworks over the lake were absolutely awesome. My aunt Jan came out with her husband and my son came up for the fireworks. But for the most part, I found the weekend with family to be very triggering. My anxiety was through the roof. I fell into a deep depression that took almost a week to pull myself out of. I felt like I was a child trapped in despair. It dragged me back to that feeling again. It was hard to see others triggered by the events too. I always liked being up north. As a child, it seemed like a safe and special place. But then I started to remember times when it wasn’t that way. It ruined my memory that there was any safe or happy place in childhood. The things I clung to were remarkably but unbeknownst flawed.
I really think that I need to limit how much time I spend with my family of origin. I didn’t realize how much it would negatively impact my current state of mental health.
Gratitude week 80
- I have been having a lot of computer issues as of late. Thankfully my future son-in-law Dan was able to fix my computer so I didn’t have to buy a new one. It is so incredibly fast now that I don’t even have to take a nap while it loads.
- Tonight we are going out to celebrate Dan and Angel’s engagement at a new restaurant I’ve never been to before. Dan’s parents will also be there.
- Summer! The weather has been perfect the last couple of days. Dry, breezy, and upper 70’s. It really doesn’t get a lot better than that!
- The weather was cool and rainy mid-week which delayed our sailing trip that we planned, but we were still able to go.
- I was able to spend the night on the boat at a beautiful marina I’ve never been to before. One night we anchored out with friends near an island I’ve also never been to. We were able to go to shore and tour a lighthouse. I live in such a beautiful area. I can’t wait to share the pictures.
- I went out to eat Indian food with my best friend one evening.
- Oh my gosh, my son has a new girlfriend. He has been single for over two years. I will be meeting her this week.
- My birthday week has officially started!!
- I got my hair cut and colored today. A little pampering is a good way to start the birthday week.
- I’m grateful I was able to write about some really difficult things and close the book on the last series.
Gratitude week 79
- Arabella was the only server that showed up to work on the 4th of July. So, yeah, I think they forgot about the day she slept through her whole shift.
- The fireworks were absolutely amazing over the lake.
- Summer! I was able to spend a lot of time on the water over the holiday weekend. The weather has been crazy this year. It has been extremely hot, in the 90’s, for the last couple of days. Later this week it’s supposed to be in the 60’s with rain. It’s either been incredibly hot or cool and rainy.
- I saw all three of my brothers this past weekend, one of my brothers I haven’t seen since before COVID.
- I put on my new boxing gloves for the first time this past week. My son is teaching me how to box. I gotta have nice looking arms for the wedding.
- It’s my birthday month. I can’t believe my birthday is next week already. I’m thankful for another year of life.
- I’m grateful that my husband was able to buy a new battery for Arabella’s car when it died.
- I’m grateful that he was also able to take our son in to get a new phone when it died.
- I’m grateful for the family that sent my daughter engagement gifts. It was very thoughtful of them.
- I was finally able to spend time with my nieces for the first time this year.
Everyone else’s problems
Okay, so maybe things aren’t going to be all that light and fluffy yet. I feel really irritated today. Maybe it’s just PMS or something.
Some days I can just let it go and other days not so much.
Yesterday my husband and I made plans to take my daughter Angel and her best friend sailing for her birthday. Apparently the weather had other plans. It ended up going alright anyway. But that wasn’t the problem. When we got back around 5 PM, I noticed that Arabella was still home. I thought she was scheduled to work at 4:30 PM. So I went to talk to her and found out she was supposed to work at 10:30 AM. She slept through her whole shift. So she missed a whole day of work and the previous two days before that she was late.
My husband and I were livid. The last thing we want is for her to lose the job that she says she loves. We again told her how important it was to sleep at night and wake up in the morning. After I woke her up she called work. Thankfully she didn’t get fired but I’m not sure how long that will last. They are very nice to her too and said she could wear a short sleeved shirt despite her cutting scars. They told her they don’t discriminate. She was really upset with herself and when I asked her if she wanted to talk about it she told me to leave her alone. Just like old times. She is upset with me but can’t do it by herself.
It really stressed me out.
Also, when we got home yesterday, we had the invisible fence lady at our door. I was on the phone with a client a few days ago when I saw my dog cross the road and almost get hit by a car. Our dog is almost 14 years old and is practically deaf and blind. He has been going right through the fence and onto the road. We had to do something. So they came out and turned the collar all the way up. Thankfully he is responding to it now. But it is hard to see him go downhill so fast. Our cat is 15 and not in much better shape. I don’t think either one will make it through another winter and it is hard to see both our pets decline.
Then if all that wasn’t enough. My mom came back yesterday. She is all stressed out because her tooth cracked and she had to get a crown, my dad now has some sort of heart problem, and my brother Matt had a CT scan because of some benign tumors on several organs. She only slept an hour last night and was a bear to deal with today. She wanted me to drive her to her appointment today which I did. But she was annoyed by my music saying it was too loud (it wasn’t) and clangy and asked me to turn it off.
A huge, huge pet peeve of mine is complaining about my music when I’m driving. It’s not a big deal if someone asks me to turn it down so they can talk to me. That’s no problem. I usually keep the volume down when I have passengers anyway. But saying they don’t like it and asking me to turn it off when I’m doing them a favor is another thing entirely. I just had the radio on quietly. Yes it was rock music. I hate her music too but never ask her to turn it off.
It kind of reminds me when my kids were young after I got past the stage of having to listen to that dribble Barney crap, I would listen to music I liked. When they complained, I told them that when they drove they could listen to whatever they wanted to. That came back to bite me because they can listen to stuff off their phone. In my book, driver picks the music whether I like it or not. Sometimes my husband will be really nice when he drives and tells me to put on anything I want. It’s like heaven to me.
But anyway, here I am back to letting everyone else’s problems bug me. I don’t even want to go up north this weekend to be around family anymore since they all carry so much negative energy. I am looking forward to seeing my brothers Mark and Luke but my dad, Matt, and my mom aren’t very relaxing to be around.
When can I live my own life and let everyone else’s problems go? Seriously!!?!
The story unfolds
So now the story unfolds. It’s been over a month since Arabella has been home from residential. She was there for over two months.
She is now writing her own story in a book that will perhaps never be written. We did our best. Now here we will remain as a landing pad when her wings are broken from life as sometimes happens when a bird first leaves the nest.
We keep telling ourselves that everything will be okay. Even if it’s not, we will still walk through it together.
On the rough days we talk of Paul’s mom. She made a good life for herself. She didn’t have much. She didn’t have a high school diploma but was always able to find a job. She raised a child as a single parent when she was right around Arabella’s age. She struggled with mental health issues, but she had her mother to help her and later in life she married a good man. She had a house to live in.
If Martha could do it, then Arabella has a good chance to live life independently. In some ways, I think that Martha was happier than most people I know. Ignorance is bliss they say. I don’t even think she knew she was not very bright or that she was mentally ill.
Arabella is out in the world now. She is finding her way, even if it is not the path I would’ve chosen for her. She is not out of the woods, but she is doing so much better. She wants to live now. Crazy can be fun and exciting. Normal is boring anyway.
I am closing this series. It’s been very challenging to write about my daughter’s mental health struggles in only the way that personal painful pieces can be. But I feel like it’s been therapeutic for me as well.
From here on out I might get a little light and fluffy for awhile. I might post about my travels, wedding planning (yeah!), or go back to writing about the fortune cookies I’ve amassed. But I’m not going anywhere. I just need to lighten things up after talking about such serious personal topics.
I can be fun too, but you guys probably don’t know that about me.
Gratitude week 78
- Oh my gosh guys, this is super exciting!!! My daughter Angel got engaged over the weekend. Finally some good news!
- Summer!! Even though it’s been raining hard the last couple of days. (We do need the rain though).
- My daughter Arabella paid us back the money she owed us and so far loves her new job.
- I had two appointments with my therapist this past week. The last couple of weeks I’ve been really anxious and am starting to have stomachaches again. I’m hoping to manage my stress better, so here is to taking steps to do that.
- Yesterday I celebrated the graduation of my best friend’s son. Again, I was able to catch up with some acquaintances that I haven’t seen since before COVID. It was cool and rainy so we huddled inside their garage most of the afternoon. But it was nice to celebrate with friends on a rainy day that I wouldn’t do much else on. I won’t take for granted celebrating with friends after last year with COVID.
- I can’t believe that it will be the 4th of July next weekend. I have plans to go up north with my family to celebrate. It’s been almost a year since I’ve seen Luke and I haven’t seen my brother Mark and his wife since before COVID.
- Thunderstorms without severe weather.
- Oh my gosh, my daughter is getting married. How can that be??
- My daughter’s fiancé Dan is a really great guy.
- I’m just grateful right now to be home and sleeping in my own bed.
Residential care
The first couple of weeks at residential were really rough. I was afraid that Arabella was going to get kicked out of the program. They told us while she was on the waiting list if she did any self-harm, such as banging her head against the wall like she did at her second inpatient stay, they would release her. She knew that because she was part of that conversation. She hated it there at first. She didn’t have any friends. They purposefully kept her alone to increase her tolerance in a safe environment.
We received nightly calls from her which were not always good. She begged us to send her expensive gifts overlooking the cost of treatment. She bragged about her arguments with staff and how she broke the rules. They had a hard time waking her up in the morning like we did. It wasn’t going well because she didn’t want to be there. She argued with us and hung up on us on multiple occasions. I was always waiting for a call that we should come pick her up and there was nothing they could do for her.
The first call from the therapist was rough because she said that Arabella made allegations of abuse against us which they had to report to social services. Nice! What were they going to do anyway? Take her away? I jokingly said to my husband that maybe then the county would pay for her residential treatment. But nothing ever happened.
Arabella caught on fast, but she couldn’t focus. She was easily distracted which lead to a diagnosis of ADHD. She improved greatly in the program after she was treated for this. I felt like this was a turning point in her treatment. She wanted to be there after that and wanted to get better. She could finally focus on studying and new hobbies.
Some other strange things happened while she was there. Arabella went into a dissociative state and freaked out scaring other patients. She didn’t know who she was or where she was. In this dissociative state, Arabella ate plastic which prompted more testing for pica. Dissociation can be a symptom of borderline. After this she had every single diagnostic characteristic of borderline. I wondered if this had anything to do with her eating nonfood items before. I was completely puzzled.
Before this I did not know she experienced dissociative episodes. She admitted to dissociating in the shower. She also said that she had episodes in her room where she looked down at herself and thought that she was a very bad person that didn’t deserve to live or a very good person. I found it very hard to understand and didn’t even know it was possible or likely without experiencing major trauma.
After the treatment for ADHD and after her dissociative episode ended, there was a time of tremendous growth. She started working on learning and applying skills. I guess what I’m trying to say is that we were very fearful at first about whether or not this treatment was going to work. We had a lot invested in it and not just financially. I think our fear in early treatment was normal, we just didn’t know what to expect.
I think the residential DBT program was a lifesaver. It gave her (and us) more tools to work on some of her mental health issues she was struggling with. But we were also worried about how things were going to be when she got home. Would the skills carry over? Would she be able to live independently or would she need lifetime care? Again, we just didn’t know what to expect in recovery.
From the beginning
Strangely enough after Arabella went to residential I got asked even more (rather unusual) questions by the therapist. What was your pregnancy, childbirth, and Arabella’s early infancy years like?
When I got pregnant with Arabella I had a 4 year old and a 2 year old. I was also babysitting 50 hours a week for the next door neighbor’s kid who was 3. She called me mom. The neighbors worked all the time then every weekend they dumped their kid off at grandma’s so they could party with friends. The mom was harsh and I thought she was rather verbally abusive. The dad wasn’t the greatest either. The whole situation disgusted me, but I felt rather envious too. I rarely got a break from my kids.
Right before I got pregnant, my brother Matt heard voices to tell him to attack my daughter Angel which he did at her 4th birthday party. After he hurt her, I set a boundary with my mom that Matt could not be around my children anymore. My mom pushed back against that boundary and tried to force Matt back into my kids life which caused a lot of stress. I lost all help when I pushed Matt away because my mom had to care for him and he wasn’t allowed around my kids. My MIL didn’t help much at all. She could barely handle the one kid she had. Even my husband had to work the day our daughter was born because he just started his business at the time. He was a one man show and he was the one that paid our bills.
I was worried when I found out I was having another girl. I would have been more worried if it was a boy though. My brother was fixated on hurting little girls. But if I had a boy I worried he would be schizophrenic/autistic like my brother. I didn’t tell anyone the gender because it was too painful. Either way invoked worry that robbed me of the joy of pregnancy.
Arabella was breech. They told me it didn’t matter because she was to be my 3rd C-section. I felt really sick after she was born and didn’t even want to nurse her because I had a reaction to the pain medicine. My mom stayed with the older kids overnight so I could have Arabella early in the morning. Then she dropped the kids off at the hospital right after Arabella was born because Matt had a dentist appointment. I scheduled my C-section so I would be in the hospital over the weekend when my husband didn’t have to work because we didn’t have anyone to watch the kids.
A week after my C-section I was home alone with all three kids. I remember being a zombie hopped up on pain medicine after sleepless nights. I’m not going to lie, it was hard. Thankfully the neighbors got divorced and I wasn’t babysitting anymore.
I was constantly stressed because I didn’t have the help I needed. I didn’t take very good care of myself. I sometimes wonder if I caused this with all the stress hormones constantly pumping through my body. I ended up getting mastitis twice. I was sick all the time. Right after Arabella was born my grandma had open heart surgery. I took on all the holidays since my grandma wasn’t able to.
I had a baby that cried constantly day and night. She refused to be comforted. She wouldn’t take a pacifier. She didn’t suck her thumb or fingers. She didn’t want to be held unless she was nursing. The only thing that she responded to was the infant rocker and having music constantly playing on repeat in her room at night on the CD player. When the CD would stop at the end and go back to the beginning, she would cry.
I took her to several doctors. Did she have an ear infection? That was the only reason my other kids would cry at that age. Was she autistic like my brother? Colic? (I suspect doctors tell parents that when they don’t know why your baby doesn’t stop crying). Big surprise, they couldn’t find anything wrong with her. I nursed her longer than the rest of my babies. When I weaned her, she took her tiny fists and beat them against my chest while screaming. My other kids didn’t do that. Everything seemed wrong but nothing was wrong. It took her over a year to finally sleep through the night.
The therapist thought that Arabella always had emotional dysregulation and that her condition was genetic. She didn’t experience any out of the norm trauma (death of a grandparent). She was a lot like my MIL who did experience trauma. Or did she? I don’t even know anymore. And if trauma caused her mental illness then how did it influence her genes to pass borderline on to her granddaughters? There is so much that I don’t understand yet, but I do know that Arabella’s infancy years were tough and apparently that is indicative of future problems.
Outrunning my demons 