Admitting questions

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When my daughter was admitted into residential they asked her a lot of questions. One of them was if anyone she knew committed suicide. She said ‘yes’.

It brings us back to a year and a couple days ago. A friend from our theatre group decided to end his life. I had known him a couple of years by that time. Since I’d known him he was in dialysis. He even had a kidney transplant that failed before I met him. Every week he would go to dialysis for 30 hours. He couldn’t work. He lived by himself. He didn’t have a girlfriend, wife, kids, or barely any family. He didn’t have much of a support system from what I saw.

He wasn’t good looking. He wasn’t popular. Most people thought he was weird. He was kind, but I got the impression that most people didn’t really like him. He wasn’t even a good actor. He never got any good parts.

One day he posted on Facebook that he was trying to find a good home for his pets because he decided to discontinue dialysis. Some people tried to talk him out of it. Others tried to convert him because he didn’t have faith in any God or creed. I have to pose the question if it really was suicide. Technically, I suppose it was because he decided to discontinue the treatment that was keeping him alive.

I know he was suffering greatly. He had lost hope. There wasn’t a cure just spending the rest of his life tied to a dialysis machine. Could anyone blame him for his decision? Maybe I would’ve chosen the same thing if I was in his situation. But who really wants to think about that? We just want to judge. As an adult I can understand and reason. But maybe the young folks in the theatre who didn’t fully understand his suffering might think that suicide is a good solution for dealing with pain.

I felt sorry for the man and about the situation he found himself in. He passed away right before the lock down started. Because of COVID we didn’t even have the chance to say good-bye. His funeral was cancelled. In most respects, he was forgotten until a couple days ago when he was remembered as the man that committed suicide.

I seem to find myself in a moral dilemma. Is suicide okay in some scenarios and not others? What about emotional pain and suffering? I have a friend that decided to stop Chemo because it greatly affects her quality of life. Is it okay to discontinue life extending treatment if the quality of life it gives you is horrible? We are not going to escape this life alive.

Are we going to cut off the elderly from our lives because they could die of COVID? Just for them to die in a nursing home alone without their family. Is it worth it? We are making those level of decisions right now. Is the emotional pain of being separated from loved ones worth an extra year of life?

I would have to say that the answer to these questions should come down to individual choice. I don’t have to agree with it. But as far as my family is concerned I would like to have some say.

Gratitude week 62

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  1. My daughter Arabella was admitted into a residential care facility and we are doing the best we can to get her the help she needs.
  2. I’m grateful for warm spring weather and sunny days. It makes me feel so much better even if there is still snow on the ground.
  3. I’m grateful to hear the birds chirp in the morning which is another sign of spring.
  4. I’m grateful to be able to see wildlife in my yard this week including birds, deer, and a red fox. I’ve never seen a fox in our yard in broad daylight. I was a little paranoid that as a nocturnal creature it might be rabid or something. But apparently after doing some research found out it wasn’t too unusual to see foxes during the day in spring.
  5. I’m grateful to be feeling healthy.
  6. I’m grateful that my daughter Angel had a mild case of COVID. Her boyfriend is finally starting to feel better today. It’s frustrating because if anyone is super careful about COVID as young folks they are. They don’t take any unnecessary risks. Then they got sick. There was a COVID outbreak where Dan works.
  7. I’m grateful to be able to visit my mom and go for a walk with her this afternoon.
  8. Although I feel helpless about Angel and Dan and his mom being sick, I’m grateful that I was able to help them out by dropping off medicine and other things they needed after being quarantined a week.
  9. I’m grateful that I cleaned out my daughter Arabella’s room. It makes me feel better. Even though she didn’t mind, I couldn’t leave it messy.
  10. I finished a really hard puzzle I have been working on the last couple of weeks. It makes me feel good when all of the pieces finally come together. Now if only that could happen in real life. Right?

Feeling tested

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The last time we talked I told you that my daughter Arabella was admitted into a residential mental health treatment facility. What I didn’t tell you was that at the same time my other daughter Angel most likely had COVID.

Last weekend I briefly saw Angel’s boyfriend Dan. We were close to each other for a few minutes while I opened the sliding door we all walked out of. I was in close contact with my daughter Angel who was in close contact with her boyfriend Dan. Are you following me yet?

The next day Angel goes to Dan’s house. While she is there he develops a fever. She decides not to come home. The next day Dan has an instant test and tests positive for COVID.

To make matters more complicated, my mom stopped by with my brother Matt on Saturday. My mom and Matt both received all of their COVID vaccinations. Because of COVID, I have not seen my brother Matt since last June when my mom had a medical emergency and I needed to take him back to his group home. Once he returned to his group home, he couldn’t go back home until fully vaccinated. My brother Matt has not seen my daughter Angel or her boyfriend since Christmas of 2019 again thanks to COVID. After the visit, before we found out Dan was sick, my mom took Matt back to his group home. My mom and brother were not in close contact with us but they did give everyone hugs including Dan.

Monday morning Dan has an instant COVID test and tests positive. He gets really sick. His mother gets sick. My daughter Angel gets sick. So far his father is fine.

What am I to do? My daughter was scheduled to be admitted into residential care. This was her last chance to get into a great adolescent program. She will be an adult in 2 months and they said if she didn’t fill the bed she would lose the opportunity. She had to wait 3 months to get in.

I decided to call the COVID hotline. Not only was it a bad connection, but it was useless conversation. She told me that my situation was really unusual and complicated and that I would be better off calling my doctor or going on the CDC website. My husband and I fought over what to do next. We don’t see eye to eye on COVID. Words were said that weren’t meant.

Meanwhile, my mom’s COVID anxiety ramped up again. She called the group home, program, and case managers. Two of the people told her that Matt should be okay since he had both shots. What more could she do beyond that? Is he never allowed to see family again after everything was done in her power to prevent him from getting sick? Two of the people my mom contacted chewed her out. They said how irresponsible she was. One of them even told Matt he wasn’t going to be allowed home again which caused him distress. My mom was beside herself with worry about Matt. I tried to calm her down but I was worried myself about the ones who were already sick and what would happen next.

I was worried that my brief exposure to Dan would be enough to get me sick and then I would get Arabella sick and then she wouldn’t be able to go into residential. Or Arabella would get sick alone and spread it on to others in a hospital setting. A few days after Dan got sick, Angel got sick too. She got sick several days after I saw her last. I felt pretty confident that I didn’t get exposed from her. I felt iffy about Dan though. I did see him although we weren’t in close contact for very long at all. According to the CDC website I don’t think what we had was considered close contact but I still wasn’t sure because I saw him right before he got sick. But who knows? It’s not like I was keeping track of how far apart we were or how long he was in the room.

Thankfully I had Arabella tested for COVID right before she was admitted and it came back negative. Now it has been several days since I saw her and I still feel fine. I take my temperature everyday and I have been laying low. Everyone has been telling me I have to stop worrying about it and trust God. I’m trying but this has been really stressful. To be honest, trust wasn’t my first instinct. I felt angry. Of all times, why does this have to happen right now??

The first time my mom takes Matt out of the group home he gets exposed. Why God? Why? I sometimes wonder if my family is cursed. Arabella is healthy and everything ended up being alright. But still??!? It was horrible timing to go through a COVID scare. Plus I’ve been worried sick about Angel and Dan and his family. It’s hard knowing my daughter is sick and there is nothing I can do to help her. I’m feeling that way about both my daughters right now.

I ran over to Dan’s parents house today and dropped off some medicine, vitamins, and Gatorade. Angel is feeling a lot better already, but Dan is still pretty sick.

What a week! What a wreck it has made of me! I feel so tested.

Saying good-bye for now

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It’s been a crazy busy week here. Yesterday Paul and I dropped our daughter Arabella off at a residential mental health facility. It was a bittersweet moment. I felt like a great weight had been lifted. This will be her best opportunity to get on the path of living a normal life. If I learned one thing, it’s never to take for granted your health mental or otherwise.

I spent the last couple of days getting Arabella ready to leave. She needed lab work at the doctor’s office, medication, a dental exam, and a COVID test. We also took her out to eat because she finished her high school curriculum. Then there was the process of packing and going through all of her clothes.

I wasn’t expecting to feel as sad as I did when we dropped her off. I had to fight off the tears at many moments and felt emotionally drained. I should be dropping my daughter off at college not at the psych ward of a mental hospital. It was very painful processing the can’t haves instead of the should bes.

I’m not sure if I mentioned this before, my daughter has an eating disorder. It’s not what you think. She is a binge eater and weighs somewhere around 270 lbs. With her money she buys massive amounts of candy, cookies, and sweets. I am worried about diabetes. She gained 13 lbs. in one month. She is at her highest weight.

My daughter is also a hoarder. She had piles and piles of clothes strewn all over her room. I helped her pack, hang up clothes in her closet, and start a get rid of pile. It took hours. In the process I found out that our cat has been peeing on the clothes in her room which created more laundry and garbage. It was so gross. She had the cat sleep with her at night so she didn’t feel alone which really wasn’t a problem until I found out he was using her room as a cat box. The hoarding, which I find so suffocating, comforts her. We overlooked some things (like keeping a clean room) in favor of promoting other things like graduating from high school and not killing herself.

Today I finished cleaning out her room. I took out three full garbage bags and three full recycling bags. It took half the day but it looks sparkling clean. She will absolutely hate it! In the process of cleaning I found a suicide note. Although I do miss her a lot already, I thought about how horrible it would’ve been to have to clean out her room for the last time if she went through with it. I know we are doing everything we can to help her get better. But I do wish she was at college. In a way it feels like she is. One month at a residential facility costs as much as a semester at my other daughter’s private college. I really hope it helps her.

Gratitude week 61

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  1. It’s the last day of February and it feels like spring is coming.
  2. I enjoyed a spa day with my mom. Her COVID anxiety dropped drastically after the second dose of the shot.
  3. My daughter’s name finally came up on the waiting list for residential care.
  4. Arabella finished all of her high school coursework online and will be graduating on time! I’m grateful she has completed school before residential. I honestly didn’t think she would be able to pull it off, but she did. Yeah!!
  5. My daughter Angel achieved great success with her hobby business and her work will be displayed online with a popular brand.
  6. I’m grateful for a coffee date with my best friend.
  7. I’m grateful I was asked to give my testimonial for the wellness clinic. I thought maybe they just wanted me to write a little something. But they want to do a video of my success story. I think it’s pretty cool to have the opportunity to share my story.
  8. I’m grateful that my hard work paid off so I could have a success story to share.
  9. I’m grateful that my daughter Angel spent a couple days visiting at home. We watched some old movies while I worked on my puzzle.
  10. I’m grateful that my husband and son are on their way home after spending a couple days on their annual fishing trip with the guys.

The daughter

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Romantic films have happy endings. In real life only the beginnings are happy and nothing ends well. But then, nothing really ends.

The Daughter by Jane Shemilt

I picked up the book The Daughter at the airport in Chicago as I was waiting for my flight. I brought a book with me but almost finished it on the long layover. I bought the book because it looked intriguing. I know, I know, one should never choose a book by its cover. I didn’t know the author. How risky!

The main character of this fictional book was a physician whose daughter went missing. I don’t want to give anything away so I won’t. I’ll just tell you that I really liked it and think you would like it too. It struck some heavy chords such as if I wasn’t so busy at work I would’ve known something was wrong with my daughter.

Blame. It’s so easy to get into that trap as a parent. I’ve asked myself many of times what I did wrong. Maybe if I was paying more attention I would’ve known my daughter was depressed. Maybe she wouldn’t have tried to kill herself. Maybe she wouldn’t have mutilated her body so badly from cutting that she needs plastic surgery to look like she did before. But maybe, just maybe, I am part of the reason she is alive right now.

It’s hard not to blame yourself as a parent in the transition from everything’s normal to there is something really wrong. It’s easier to brush it off as a one off even though the patterns indicate it’s clearly not. We tend to trick ourselves into believing everything is fine and blame ourselves later when it’s obviously not.

At the end of the book I read the write up on the author. She is currently a full-time physician and mother of five. In her free time she went back to school to get a Master’s degree in writing and wrote a couple of books, one is a bestseller that I didn’t read yet. How impressive is that?? The author has a brilliant mind and it comes through in her writing. I loved the above quote from her book. Her quote pretty much sums up why I don’t like romance novels. Sometimes life is messy and things don’t work out in the end. I read a book a couple of months back that was a real mess but everything magically worked out in the end. I hated it because it offered false hope and not real life.

My favorite genre of books are psychological thrillers, mysteries, and dramas. I love reading self-help books too because who doesn’t want to fix themselves and everyone around them?!? I also love the classics, historical books, and survival stories fictional and non.

I don’t always want a happy ending. I want real characters and personable honest people. What are you really thinking and experiencing? I want problem upon problem. I want to know how people handle adversity. I don’t want things to magically work out in the end. I don’t know about you, but that is not how my life has been. I want to analyze how people deal with difficult circumstances. I want to know about the things you don’t want to tell anybody.

I finished my book that I was writing. It’s been over a year now. I even sent it off to test readers. But things changed. Since then I found out about the crime my dad committed. My daughter started struggling with serious mental health issues. I was no longer constrained to writing about my experiences as a sibling of someone with serious mental health issues. I could now write as a mother.

I am hoping to process everything I’ve experienced within the past year and write about it on my blog. From there I would like to incorporate it into the first edition of my book. To me it’s not all about happy endings, it’s about learning to live with what we have been given. There is beauty to be found in tragedy. That is where real stories of hope, courage, and inspiration lie.

Taking a break down instead

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Maybe she just needed a break. That always makes me feel better.

We had a trip planned. Paul and I were renting a van to drive down to Florida. We were taking Arabella and our two foreign exchange students with us.

I imagined how perfect spring break was going to be. Sunshine and shorts after another long winter. Estelle and Arabella together on a long road trip becoming best friends once again. My daughter becoming a functional depressed person like I am. She said it was a mistake and wouldn’t happen again.

But our magical trip wasn’t meant to be. The week we were scheduled to leave Disney World closed. A new virus was sweeping through the nation. In my lifetime I’ve seen many viruses come and go, but this was different. People were panicking. We didn’t know what was happening. We didn’t know what to believe. It reminded me of when HIV first came out and people were afraid to use public bathrooms. With a world of information at our fingertips, we still didn’t know what we were dealing with.

We debated whether or not to take the trip after Disney closed. Since we were driving, would we be able to stop to have sit down meals after a long drive? Some states were closing. Would gas station bathrooms and rest stops even be open? Was that the America we wanted our foreign visitors to see? What happens if someone gets sick? Could we get trapped somewhere? What if our decisions caused sickness and/or death in the children who weren’t ours that we were responsible for? The beaches in Florida started to close. We decided to stay home.

The high school closed and schooling went to online. The spring play, going to state, track, and prom all were cancelled yet the school work remained. Everyone felt the loss of what was planned that could no longer be. The beautiful prom dresses hung in the closets unworn. Time lost that could never be recaptured. Our German foreign exchange student Clara went home a couple months early whereas Estelle stayed an extra month.

I thought that Arabella and Estelle would be forced to work out their differences because they would have to be together all the time without much outside contact. It didn’t work out that way. Arabella withdrew into herself and snarled at me to leave her alone when I reached out. She would take long walks or drive to the park to sit by herself for hours sometimes after dark or in the rain. Estelle grew very close to me. She would fight with Arabella if she felt like Arabella was being mean to me.

Florida was gone. Arabella’s opportunity to be a foreign exchange student was gone. It was all she ever talked about for over a year. She was already signed up and the paperwork completed. Thankfully I could say that she wasn’t going because of COVID versus a suicide attempt. We were going to tour Europe in the summer, but that was gone too.

With everything that was lost, I’m grateful that we didn’t lose Arabella too.

Gratitude week 60

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  1. I’m grateful that the arctic blast (two weeks of subzero temps) is now over!!!!
  2. With all the snow on the ground and the departure of the bitterly cold weather, I am able to exercise outside. I went snowshoeing this morning and am planning on going cross country skiing later this week. This is the first time I have been out this season.
  3. I’m grateful that my daughter’s frogs should be able to eat crickets now that it is warmer out. With the snowstorms and cold weather, the shipments for crickets has been severely delayed or the crickets arrive dead. After my daughter’s pets went a whole week without eating because we couldn’t find crickets anywhere, my husband bought some fishing worms for them so they didn’t starve. Yeah again for warmer weather!!
  4. My appointment with the wellness nurse went very well this past week. I graduated!! Yeah, I only need to go in once a year now. I went from having acid reflux, colitis, multiple parasites, SIBO, and over 20 food allergies to being back to a state of good health. Today the clinic called and asked if I would be willing to give a testimonial. I told them absolutely!
  5. I had lunch with my friend Jen this past week. I was kind of embarrassed though because I always order the same thing and the waitress joked with me that she didn’t even need to bring a menu because that’s what I always order. So much for being a wallflower!
  6. Paul and I went to our sailing club cruise planning meeting. Nothing feels better than getting out my calendar and scheduling the summer. We have some fun trips planned and are planning on crossing Lake Michigan for the first time in our sailboat.
  7. My daughter Angel and I spent the day together on Saturday. We went out to eat and had pizza at a restaurant that offers gluten and dairy free options. The pizza I chose was absolutely amazing. Afterwards we had vegan ice cream, again it was amazing. Then we spent the rest of the day thrift shopping. My big find was a murder mystery game that I haven’t played before. Once things settle down I’ll have to host a murder. I’ll also have to find a tape player as some of the clues are on cassette tape.
  8. My mom got her second COVID shot this past week. We have plans to visit the spa in a couple days. It will be nice to be able to visit with her again. Hopefully a lot of her fears will be put to rest.
  9. I just finished a wonderful book call The Daughter. I’m grateful to find a new author that I like. There is a quote from the book that I want to post later this week that I thought was profound.
  10. I am grateful for the opportunity to document my life mainly through writing but also through photography. I’m excited about starting the series regarding having a teenager with mental health struggles. Talking about my dad and now my daughter has been very challenging for me. But I know how beneficial writing has been in my healing journey and I am hoping that by doing so I can reach others who are also struggling with similar circumstances.

Right before the pandemic

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Maybe she was crying out but I wasn’t listening. Her problems seemed so petty, like the fight with Estelle. I had given her everything I wanted but never had as a child. In my mind my problems always trumped hers because I was shielding her from life’s real problems. I didn’t listen to any complaints about how hard she had it for anything.

But in reality I really was trying to protect her. She just didn’t know about it. I didn’t tell her anything about my dad. I didn’t tell her that several weeks back her older sister found child porn on their grandpa’s computer and turned him in to the police. She was a child. I wanted to protect her from that. She seemed so innocent, carefree, and happy. Why take that from her?

I developed a plan. Arabella was going to be a foreign exchange student. Maybe she wouldn’t find out about her grandpa until it was all over. But I was worried. There were a few problems with the plan for the children in my house to have the perfect childhood. The police could arrest him any day and then the world would know what kind of monster my dad is. Our foreign exchange students might get sent home. Their parents might not want them here although they would have nothing to do with my dad.

Then there was the part about me being a complete and total mess. I fell into a downward spiral of depression and despair after I heard about my dad. I suffered greatly from the blow and the trauma I experienced as a child resurfaced in the worst way. I knew I was suffering from Complex PTSD. But that knowledge didn’t stop me from going through what I did.

I pushed everyone away. I pretended everything was okay. But I wondered how anything could ever be fine again.

I experienced moments of extreme anxiety and hyper-vigilance. One day I thought I could try to calm myself by listening to music in my earbuds. Arabella came up behind me unexpectedly to give me a hug. I freaked out and screamed at her to not touch me and get away from me. I was horrified. I apologized and tried to explain to her not to touch me if my back was to her. But I could tell she didn’t understand. She felt rejected and I blamed myself for it.

After Arabella’s suicide attempt, we had a long talk. I decided to tell her everything that was happening with my dad. I told her that I was having a hard time with it and me pushing her away had nothing to do with her. Together we cried.

Inside, though, I was furious. If my dad didn’t screw up my life once again I would’ve noticed that my daughter was depressed. I didn’t call him on his birthday. I didn’t even send a card. I blamed him for what happened with Arabella. I was so focused on his mess that I didn’t even notice my own child was suffering.

I wasn’t doing well before the suicide attempt and I certainly didn’t do well after. I suffered severely from insomnia and nightmares for over a month. I thought I was going to lose my mind. That all happened right before the pandemic.

A year and two days ago

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It’s been a year and two days since my daughter tried to take her life. It was on a day like today. It happened while I was sitting in the same spot I’m in today, writing my post oblivious to what was happening a couple rooms away.

It came out of nowhere. I blamed myself for not noticing something was wrong. Me, the hyper-vigilant one. I was focused on other things, other problems.

There was a fight between my daughter and our foreign exchange student Estelle. Before then things were great between them, better than I could’ve ever expected. Arabella and Estelle were best friends. We even signed Arabella up to be a foreign exchange student hosted by Estelle’s family. Then there was the fight. Arabella accused Estelle of trying to steal her friends. I thought it was temporary, petty even. They would work it out themselves. But a few days later my daughter tried to kill herself.

She tried to OD and laid down in her bed to go into a forever sleep. She was filled with horror and threw up the pills she ingested. She reached out to her friends, then she reached out to me. That is when she found me writing my post on a day just like today. She came into the room sobbing hysterically. I literally thought someone had died. She said it was a mistake and it wouldn’t happen again. I don’t know why I believed her. We were naïve and new to her mental health struggles back then. We didn’t know what to do and certainly had no idea what would happen next.

One of the first feelings I felt was enraged. I screamed and kicked the garbage can across the room spilling its contents everywhere. I can’t remember a time of such anger and uncontrolled rage in myself. I wanted to punch a wall or through the glass in the door. Looking back it seemed like an unusual response because I usually suppress my anger. But that is what happened.

Sometimes I wonder what it would’ve been like if she succeeded that night in February. Succeeded, what a horrible word to describe something like that. I don’t think I would’ve made it through to share my story. My demons could have me. I just wouldn’t have the fight to run from them anymore.

For a long time after that night, I would awake in the middle of the night to see if she was still breathing. I would watch for the rise and fall of the blankets. Sometimes I couldn’t see and would reach out to touch her gently as to not wake her reminiscent of the early years when I checked on my sweet baby to see if she was still breathing after she stopped crying out for me in the middle of the night.

Now there was a new fear that robbed me of my peace both day and night. Will my daughter choose life today? I rejoice that it’s been over a year and she is alive!!

It was the start of a new journey. I was no longer just a sibling of someone with serious mental health issues, now I am a mother.