Aging

No kidding

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Life has been busy the last couple weeks with the holiday season rolling in and working full-time. I will be working every day this week except Christmas day. Although I like my job, I am not looking forward to this week since I will be working the next 6 out of 7 days.

I had this weekend off. My uncle and cousins flew into town from Texas to say good-bye to my mom. We were told this past week that the nurse was considering putting her on hospice tomorrow. She had a UTI over the past couple of weeks that speeded up her trip downhill. I kind of blamed myself for that, although I know it’s silly. The times I took her out of the assisted living facility I had to help her with the bathroom and I told myself I didn’t do something right. Why do we tend to blame ourselves for things outside of our control? I realize it’s foolishness.

Now my mom is struggling with daily activities more, like walking. My mom was always physically active so it is hard to see her like that. The dementia is starting to ravage her body now as much as her mind. She still knows who I am, but she just repeats nonsense words. She kept saying no kidding over and over. But her voice was so quiet I had to go closer to hear expecting something meaningful, but just to get a no kidding. The rest of the time she just blankly stares at me.

No one knows what to say when they don’t feel like there is anything they can do to change the situation. I just feel this nagging sadness and overall numbness right now.

No kidding.

A harsh winter is on the way

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Just like that, the holiday season has begun. Winter weather came along with it blowing its harsh cold winds. We have snow on the ground and had a few days of subzero wind chills.

We hosted Thanksgiving here which turned out being very busy with a total of 18 people. The weather was very cold and I am thankful Angel and Paul decided not to run the Turkey Trot in order to help me out more. I didn’t ask them to forgo the race to help me, but I couldn’t have done it without their help. They helped me pick up my mom and Matt to bring them to the party. I didn’t know it yet, but my mom’s health had declined since I last saw her.

I dished up my mom and Matt’s food, giving my mom easy to eat foods and Matt whatever he wanted. My mom didn’t even notice this time when Matt ate foods she wouldn’t let him eat. This was confusing to Matt. He didn’t understand why he didn’t get angry when he ate foods with gluten. He asked mom if it was okay and she didn’t respond. I told Matt that God had healed him and now he can eat whatever he wants and be fine. Matt said some day mom would be healed when she goes to heaven. Matt said he would have lots of energy when he gets to heaven and that he would be able to run very fast. Oh, to have the faith of a child and be ignorant of everything around me.

My best friend’s family also celebrated Thanksgiving with us. The youngest member of their family arrived in late summer. I spent some time holding the new baby and feeling jealous of my best friend who now has 4 grandchildren and another on the way. I spent the weekend after Thanksgiving working and this past weekend we had our first Christmas party with my mom’s siblings and their families.

It was a difficult family party because everyone there spent some time saying good-bye to my mom. It will very likely be the last Christmas we spend with her. My mom didn’t talk a lot but when she did it didn’t make much sense. She told everyone she died on her birthday. And in some way she sort of did. Back in August, she was angry with me and agitated she wasn’t in control. Now she doesn’t seem to even care. She needs help going to the bathroom and even eating. We had a heck of a time getting her in and out of the vehicle. I wasn’t even sure we would be able to convince her to go anywhere.

My mom is almost gone now. The family has been coming to say their good-byes. I’m going to try to see her as much as I can before she is gone. In many ways, I wish we knew what was going on much sooner. Maybe we would’ve been less frustrated with her inappropriate behavior. I can’t pinpoint when my mom first left us, but she has been gone for several years now. It started so gradually, but now the time is going fast.

Mid November update

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As of right now, we are keeping our heads above water. Life has settled down since the last time I wrote. Alex is more stable. He has been seeing a therapist which is something he was vehemently against in the past. So that is a step in the right direction I guess. He has been a man of few words, at least with my husband and I anyway.

My brothers and I started the process of cleaning out our parent’s house. What an overwhelming task! The one time we got together we barely made a dent in everything. I’m not sure when we are going to be able to get together again to go through everything.

In the meantime, Paul and I rented a huge dumpster for our own house. We got rid of the couches the dogs chewed up among other things. We are not going to be leaving a huge mess behind for our children to clean. It feels good to purge, clean, and declutter. Today I dropped off a trunk load of previous treasures to the thrift store. Some of the items I got rid of were gifts from Alex’s old girlfriend. It was time as they broke up over a year ago. And guess who ended up working at the thrift store and taking in my donations?? Alex’s old girlfriend! I wonder what she thought when I was getting rid of the stuff she gave me, like the cat cookie jar. Or the dress I let her borrow to wear for my daughter’s wedding. In an odd way, it really felt like closure to me.

My husband just accepted a new seasonal position doing tax work. He also decided to start a new career this year. Right now he has been diligently studying and learning everything he can.

I started taking medicine for high blood pressure. I feel old now that I am into my 50’s. But most of the time I don’t care as much about things that I used to think were important, so it evens out.

Assisted living

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I scheduled an appointment to visit an assisted living facility with my parents after my mom’s birthday in early August. They had two immediate openings for two rooms next to each other with a shared bathroom. They were willing to take both my mom and dad, although my mom needs memory care and my dad has a physical disability. We jumped at the opportunity. Finally a windfall!

My aunt threw a birthday party for my mom on her birthday which I attended. My mom expressed anger with me at her party for allowing my brother, whom I am guardian of, to have an unrestricted diet. It was all very awkward, being reprimanded by my mom in front of everyone in a public place. I told my mom we could talk about it later but at the moment we were there to have fun and celebrate her birthday.

My SIL also threw my mom a birthday party at the family cabin. It would probably be the last time she goes up to the cabin and maybe the last birthday she will be somewhat cognizant for. That in and of itself was depressing. Once again, my mom expressed anger towards me about Matt. I helped Matt make a plate of food for himself and my mom took half the food I put on his plate and threw it in the garbage. She was upset I forgot to bring his applesauce for him to take his pills. I also forgot a few other things I had no idea she wanted me to bring. She was so upset she wanted to leave.

Then last weekend arrived, the weekend my parents were set to move in. On Saturday we went up north and closed down the cabin for the season. Then my brothers and I sat down and talked for several hours about the plan going forward. What are we going to do with the house, cabin, their vehicles, finances, cleaning out the house, etc. My brother Luke said he was living off his faith to get through it. I said I was burning off my anger. It’s hard to have to grieve your parents while they are still alive, even more so because my relationship with my parents is complicated. I feel a lot of anger about how I was treated in the past and how the mess they made, we are going to have to clean up. Because of their hoarding tendencies, I think it’s going to take years to clean out the house. I hope I am wrong.

Then moving day came along. We went to my parents house to load up some of their belongings. My mom kept grabbing things to put in boxes. My SIL took them out and put them back. I decided to go outside with my mom to keep her out of their hair. My mom wanted to take a walk to her church down the road. I was the last one to walk with my mom down the only road that I could remember her living on. My mom stopped along the way to pull out weeds along the ditch. She carried them over to to a grassy area on an uneven pathway. I was afraid she might lose her step.

When we got to the church, mom wanted to walk around the cemetery and talk about people who died. I saw the gravestones of my ancestors and familiar names. My mom asked if I knew them, the graves of my great-great-grandparents. I said I did, but I didn’t really. I softly cried on the walk. My mom was always a fast walker, and I had to struggle to keep up. But this time she shuffled along and I was afraid she might not have the strength to make it all the way back.

This time my mom was kind towards me, almost childlike. I watched her say good-bye to her house, the only house I’ve ever seen her live in. The grief slipped from anger into sadness. My mom is gone now. She is leaving more and more every day.

The end of June

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How is June almost over already???

I’m just trying to keep my head above water. It’s a big adjustment going back to work full-time. My days off tend to be filled with running errands, cleaning, and checking in/doctor appointments. I am thinking my mom will be ruled incompetent soon. My dad is listed as POA and I am secondary. Either my dad will take on being POA so he can force us to let them stay at home or he will resign and it will be on me. Neither are good options.

Meanwhile, I am changing things up with my brother Matt who I am now guardian of. I switched his account over to a professional payee which will be easier in the long run but is an adjustment right now. Things are getting really messed up because my mom is still getting some of the notifications about bills and doctor appointments. Then she is making arrangements for him incorrectly that I know nothing about. It has lead to a lot of confusion all around to the point where the group home thought he was missing a couple times my mom cancelled his transportation.

At times my mom still wants and thinks she has full control over Matt. She has been very unreasonable with his care and I am going to change that. This has lead to stress on my part. I had a nightmare that because of the changes I made that he became violent again. There is a sliver of doubt in my mind. What if my mom was right? What if I do the wrong things for the right reason? It’s a lot of responsibility.

Arabella had her doctor appointment in there as well. The doctor is decreasing her dose of her anti-psychotic medication due to weight gain that didn’t get better on weight loss meds. We’ll see what happens with that.

Alex’s car broke down, so I have been giving him some rides to work when I can. He moved back into the house which I have mixed feelings about. He is incredibly moody and can be hard to live with but I love him anyway. He is more of a responsibility than help most of the time.

Angel is still in the area. Thankfully since confronting her stalker neighbor, things have gotten a lot better. There haven’t been any issues. Dan has been on the road all month and will be coming home soon. But after that, they have no idea what they will be doing which has been stressful for them.

Paul has been working a lot too. I am thankful for him. He offered to take Matt to his doctor appointment for me when I was scheduled to work. However, the doctor’s office ended up rescheduling Matt’s appointment and I picked a time when I can take him.

I think I’m going to call this the summer of responsibility. I try to catch little breaks when I can. Yesterday I had the day off and went to lunch with my friend Jen. It’s the little things that keep me going right now.

The last full week of April

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It’s hard to believe April is almost over already. The whole month seemed to go by in a blur. This was my first full week working in the ER shadowing other employees. So far so good, I haven’t been squeamish at all.

Paul and I spent my day off walking around the NFL draft area. Too bad I am not a sports fan, otherwise I would go all out. Paul loves football but he doesn’t get all decked out. I mainly wanted to check it out to people watch. We wanted to get some food from the food trucks but the line was a mile long and there was nowhere to sit.

The last two days have been cold and windy. Yesterday was downright miserable with highs in the upper 40’s with strong winds and rain at times. My son’s band was set up outside to play last night and we were absolutely freezing. I could see my breath it was so cold. Today it will get up to 60 and it will be sunny, so it should be a better afternoon and evening being outside to watch my son play in both the bands he is in. I am not driving so that is even better.

Absolutely everyone is sick, but somehow I managed to keep my head above water. For once my body has not failed me being around sick people at home and work. Arabella and I are the only ones who managed to stay healthy. Ever since Arabella got her tonsils out, she has not been getting sick every time a cold wind blows.

Angel and Dan made their way down to Georgia with their camper where Dan will be working the next week. They made the trek on Easter day. Dan drove the camper down in his truck while Angel followed him in her car. On the way, Dan’s truck broke down. He is driving a truck from the 1980’s. Dan’s dad is a mechanic who taught Dan everything about fixing vehicles. Thankfully they were able to make it to the campsite they are staying at. My daughter and her husband live a very frugal life which I am very proud of. But sometimes I just have to roll my eyes and laugh a little as they don’t have to live that way. Some of it is because I know we are the same way.

A couple things happened this past week that are worth noting. One day was particularly rough as I had an 8 hour day of reading policies for work. Over my lunch, I had a dentist appointment. They took my blood pressure before the cleaning and it was high. I have been checking it at home and it is still higher than it should be. I’ve also started getting headaches every day. Nothing major, but I never had headaches before. I am keeping an eye on things but I don’t have time for another problem. I’m too busy worrying about other things, like my mom’s blood pressure. Her doctor wanted her to come in and get tested as it has been running high lately.

Next week my mom has two doctor appointments. One is for a PET scan over two hours away from her house. My sister-in-law was going to take her but she backed out. Since it is on my day off next week, my husband and I will be taking her. I am not looking to 5+ hours of driving. I am really hoping to get some answers with this test as her MRI results were inconclusive. I still haven’t found anyone to take her to her other appointment yet.

The other notable thing that happened was that I got asked to be one of the comedians for a comedy show on Mother’s Day weekend. Patrons will need to pay to get in and I will be getting paid to be in the show. Not too bad for someone who just started doing stand up comedy a couple of months ago. Who would’ve guessed?

This weekend I am looking forward to my son playing in his bands. The biggest challenge will be finding a work/life balance trying to take care of my mom’s health without neglecting my own. I do have some fun things planned during the week such as trivia night and stand up comedy. I will plan on making time to do another update next week.

April begins…

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I am scheduled to start working in less than a week and I still haven’t gotten my schedule yet. As a planner, it’s been driving me crazy. My mom and Arabella have doctor appointments the next couple weeks and I don’t know if I can take them. Tomorrow my mom has her appointment with the psychiatric nurse and the following day she has her first appointment with the neurologist. Thankfully, I will be around to take her to those appointments. Unfortunately, my mom doesn’t live all that close so just the driving to appointments takes 2 1/2 hours of my time. Hopefully we will be closer to answers on the type of dementia my mom has and closer to options for treatment.

My follow up appointment with the doctor went well to check on my thumb where a chunk of nail down to the base was removed to get out a sliver. No signs of infection. However, it is going to take months to heal if it ever does heal properly. I will still need to wear a Bandaid as there is a thin portion that remains which tends to get snagged on clothing.

I got the sliver while vacuuming against a wood railing. Last week after cleaning the house the switch on our well pump went out. Mind you this happened at 5 PM on Friday while I was rinsing veggies to make supper. We ended up without water for the weekend. It would work briefly if someone tapped on the switch. So just enough to hand wash the dishes but not enough to run the dishwasher. Ironically, after the water turned off inside it started pouring outside. We had heavy rains, thunderstorms, sleet, some snow, and an ice storm before the system left late Sunday night. Monday morning service people came out to do their magic and we have water. Today I cleaned the house again. Hopefully nothing bad happens. I’m starting to doubt a little cleanliness never hurt anyone.

Despite the lack of running water, the weekend went well. I finished writing my memoir. I know I’ve said that several times and then a lot of things happened. But I think this time I am really done.

This week I am looking forward to doing stand up comedy again. Then Paul and I are going out of town for the night to see Alex perform with his band. It’s one little last hurrah before I start working next week…if I start working next week. Hopefully I’ll get my schedule soon!!

Hopefully the next time you hear from me I’ll be complaining about my new job. Just kidding. I used to really get into April Fool’s Day jokes. But it really doesn’t interest me too much anymore. Maybe that’s a part of being a ‘mature’ woman.

The unplanned

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I was intending to write sooner but life had other plans. I ended up in the ER after I got a rather large sliver under the nailbed of my thumb. It was incredibly painful. Thankfully they were able to numb me up enough to get it out. But they had to remove a chunk of my nail to get it all out. This happened on my dominant hand so it’s been a bit of a challenge to do things. I have to keep it wrapped up for a week and watch for signs of infection. I’m not sure how it is going to look when it heals. It was a horrible and disgusting experience. I am not in much pain now, but I just feel exhausted. It didn’t help that I had my new hire physical today with bloodwork and a flu shot.

Other than the trip to the ER, this past week went well with a lot of fun activities planned. Angel came home and a group of us went out to eat and watched the musical she directed the music for. She wasn’t home for long, but we enjoyed our time together. Unfortunately for Angel, she got stuck at the airport in Chicago because the weather out east was not good and her flight got cancelled. But she did make it home safely and that’s what counts even though she did have to spend the night in Chicago.

We also had a group of friends meet us out to watch Alex’s band perform at a local brewery for St. Patrick’s Day weekend. I volunteered at a local film festival event. We saw our son’s bandmate perform on St. Patrick’s Day, drank green beer, and played trivia with friends that evening. It was probably the busiest extended weekend of the month if not year so far and one of the most fun as well. This weekend is going to be a lot quieter, but that is okay.

Last week I met with Matt’s case manager and program coordinator. I was not surprised to find out that my mom had complete control of Matt’s finances and medical care. I don’t want to control anything. My mom wouldn’t allow the care team to attend appointments with Matt, which is what they typically do. My mom also had extreme and strict restrictions on what the staff could and could not do. (Why couldn’t my mom be a clean freak instead???) I basically told them that all restrictions would be removed. They were all overjoyed, except for my mom that is. I know she is angry with me for not doing things her way and for not being able to control me. The way my mom treats me is hurtful at times. But my expectations of my parents are so low that it doesn’t matter all that much.

Both Paul and I feel terribly alone with our lifelong lack of parental guidance. I honestly don’t know if I would miss my parents much when they pass away. We don’t have that kind of relationship. It seems like they have been gone for years. I feel sad and jealous of stories of warm and loving parents. Parents that don’t leave a legacy of messes for their children to clean up. There is never a dull moment. But in some ways I rejoice for not being controlled because in families there are rules. I can finally do things my own way and no one cares. I created the family I wanted and what more could I need? Maybe grandchildren…

My best friend is going to be a grandma again. Her 21 year old son and his girlfriend are going to have a baby. It was a bit of a surprise no one was expecting which created a lot of mixed feelings. They are young, immature, and not ready to be parents. But who is, really?

I’m not sure what this next week will bring. I guess I needed a reminder that things don’t always go according to plan. Planes are late and accidents happen that throw off the normal trajectory of life. Sometimes, though, it is easier to face disappointment and suffering when you plan on it being that way.

Marching on

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I found a job.

It’s a job I didn’t have on my radar last week. I was hired by a hospital to work in ER admissions. I never worked in a hospital before. The ER department sounds stressful but exciting. The only thing I really don’t like is being around sick people all the time. My immune system has been strong as of late, so I’m hoping it will stay that way. This is not going to be a 9 to 5 Monday through Friday kind of job. I didn’t want a job with those hours anyway since I have appointments for family members several times a month.

My mom had her follow up appointment this past week with the neuropsychologist. The test results showed a major neurocognitive disorder. However, more tests will need to be done before we know what kind of dementia she has because it is not presenting itself in the normal way. She will need a MRI before we know more, and maybe more testing beyond that. One type of dementia the doctor thinks it could be has a strong genetic component and is very aggressive. However, my mom is older than the age where it usually presents itself which is within the age range my younger brothers and I am. The thought is horrifying that I could have this ticking time bomb inside of me. I am trying not to think about it all that much until we have more answers. But damn is it scary. My dad’s side of the family has a strong genetic link for dementia as well. I may have to start doing some planning soon depending on the test results.

My mom has been very confused and frightened. It’s terrifying for her because her memory is still within the range of normal. However, her executive functioning is at 5%. She doesn’t have the mercy to forget something is terribly wrong with her. The doctor said she should no longer be driving. My mom will need to do a driving simulation test and if she fails that, she will no longer be able to drive. She is not supposed to attend appointments by herself and it is almost time to get her power of attorney paperwork in place.

Meanwhile, I have become Matt’s guardian and will meet with his case manager this week. There are several things I need to figure out, such as how to transition over the financial aspect of it. I am hoping to have everything in place before I start working full-time.

I have been trying not to let the stress get to me. Thankfully I have a lot of experience dealing with stressful situations so I know how to cope with everything. Last night Paul and I went with family and friends to see our son play in the band. It really was a great time. He will be playing again next weekend…so more fun. When we are all free, Paul and I play games with Arabella and her boyfriend which is fun. I did stand up comedy this week and went to trivia night with Paul and friends.

This week Angel will be coming back home from out East to visit. We will be going with her and a group of people to see the musical she was the music director for. It’s been a month and a half since we last saw her. I can’t wait until she comes home again. We have a lot of fun things planned.

The weather is slowly starting to warm up. I saw my first robin of the season yesterday. The snow is starting to melt.

February update

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I passed the proctored exam I needed to take to get to the next step of the hiring process.

It wasn’t an easy test and I was nervous about passing it. Starting a new career at 50 can be intimidating. Everything is so different now. I have yet to talk to an actual person about the position. Even taking the test was a whole new experience for me. The last time I took an important test was on paper with a number 2 pencil. I didn’t have a cell phone to lock up. I didn’t have to lift up my hair to show I wasn’t hiding any devices to cheat with. They even measured my wedding ring because if it was larger than a certain size, it would have to be removed.

I left the test site feeling out of touch. Most test takers were half my age. I had overdressed while the other test takers were wearing comfy clothes like oversized sweaters and jogging pants. My confidence dipped. Although I have a plethora of life experiences, I am not young and fresh with all the latest technology. But I have other things to offer. I keep telling myself that. It has been a month since I applied and I am still waiting. It’s been a week and a half since I filled out the background and credit check paperwork. I have no worries about that, but my patience is running thin as I check my email several times a day to see if I hear anything.

I just turned in all the paperwork to be my brother’s successor guardian. My mom’s functioning has continued to decline rather rapidly. She no longer makes a lot of sense when I talk to her. She has been forgetting to pay some of my brother’s bills on time. A week ago, Matt received a disconnect notice if his bills weren’t paid for his portion of the group home. It’s been stressful as my mom has been handling all of Matt’s finances and I don’t have any intentions of doing so. I would like to be more hands off. Matt’s roommates in the group home have a payee set up through the county and receive transportation for appointments. I would like to do that. He doesn’t live close by and with going back to work, I won’t be able to do everything.

Thankfully my mom has her neuropsychological evaluation next week. We have been waiting for months for this appointment. I wonder if there is still time for her to get treatment that would help her or if her dementia is too far advanced.

Meanwhile, Angel moved out to the east coast for the next couple months to be with her husband who is working there. Thankfully she is able to work remotely. They bought a camper to travel in for work. It’s an exciting adventure for them.

Alex got involved with a new band and he will be touring the west coast for a couple weeks this summer. He is planning on starting up a music studio and moving out. I wish I could travel coast to coast with my kids on their adventures. But it is not going to work out. That’s okay though. This is their time.

Arabella had her doctor appointment last week and she is on the road to recovery. She is still having some side effects from her meds, but continues not to suffer from symptoms of schizoaffective disorder. She still has her job and boyfriend. Life for her has been stable and that is all we are hoping for right now.

It has been very cold and snowy here as of late. I am ready for winter to end.