anemia

January recap

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I had a feeling it was going to be a difficult year when the police showed up at my house in the wee hours of New Year’s Day. Besides going away to Las Vegas for several days, I’d be ready to scrap the whole month (if not the whole year if things don’t get better).

The first week of January I ended up getting COVID. At first I just felt a little bit off. I felt a little more tired than usual, lightheaded, crampy, and sore. For where I was in my cycle, it wasn’t too far out of the norm as I tend to be anemic. I thought maybe I was being a bit of a hypochondriac until I came down with a fever the next day. A couple days later, Angel felt sick.

Then after that, we ended up having to put our dog down. He was 14 years old with really bad arthritis, congestive heart failure, and cancer. He was on 5 different medications and he was gradually going downhill. He couldn’t see, hear, or get around well. He started shivering and biting at his paws, had a few accidents in the house, and lost a lot of weight because he wasn’t eating much. It was time. Part of me felt like we shouldn’t have waited so long and part of me feels guilty for putting him down. Maybe if I wouldn’t have accidently tripped over him a couple months back, he would’ve lived longer. I never thought I would overthink this and grieve so much over our dog, but I did. Thankfully the vet was very kind and compassionate through the whole process.

After that we went to Las Vegas. A couple days into the trip my husband started feeling a little off. Neither one of us thought all that much about it because it was almost two weeks after I had gotten sick. He spent one of the nights hanging out in the bathroom and after that had a stuffy nose, a tickle in his throat, and a dry cough. But we were in a dry climate hanging out in stale smoky casinos with our friend who was a smoker.

After we got home, Paul lost his job. His boss wants someone who can work year round since Paul took off last summer to run our seasonal business. This summer he was going to try to do both but probably wouldn’t have gave either business the attention it deserves. The news was rather unexpected and shocking. It creates a lot of uncertainty about the future. I think we will be okay financially, but the safety net has been taken away. As of right now, we are starting to gear up for our seasonal business this week. We have a booth at a trade show. I will start to work on the administrative end while Paul gets into sales. But after this summer, I’m not sure what is going to happen and I don’t necessarily like that.

The evening after Paul lost his job, he spent half the night coughing instead of sleeping. He heard his lungs crackle and pop. I could hear it too. The next afternoon he took a nap and slept most of the afternoon. When he awoke, he was burning up with a temperature of 103. He was still doing a lot of coughing and looked absolutely miserable. I decided to take him to Urgent Care.

The doctor thought he had pneumonia. Paul had a chest x-ray and two COVID tests, one instant and one not. The rapid test came back negative for COVID. They said they would send the results for the non-instant test through his patient portal. The x-ray came back better than expected. The doctor said he had a bad case of bronchitis, gave him a prescription for antibiotics, and he was on his way.

The following morning his patient portal said his COVID test was negative and he was starting to feel better with the antibiotics. He was feeling a little more hopeful he would be able to go on the annual ice fishing trip with the guys this weekend. Before that, he said he was like a country song. He lost his dog. He lost his job. He lost his health.

A couple days later, the day he was supposed to leave for the fishing trip, he got a call from the nurse saying his non-instant test came back positive. He was really puzzled because he thought he already got all the results back. The nurse said he had already passed the quarantine time and is no longer contagious. Since the antibiotics were working, he also had a bacterial bronchitis as well.

So, yeah, it’s been a looooooonnnngg month. I really hope we are done with problems for a while now.

Last summer, this summer

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Maybe I was naïve to think after my son graduated from high school last year that it would be smooth sailing. Sometimes I can be like that, overly optimistic. And things were good for about a month. Then my life fell apart again in a different way.

It was last summer that my health went to crap. I found a new doctor and she was appalled that my last provider had me on 2 pills a day for a duration of 5 years for acid reflux. These were pills that should be taken once a day for a course of 10 days. She took me off my medication and had me scoped. She told me to take a few Tums for my gushing gut wound and sent me on my way. Besides being anemic nothing else was wrong with me.

But something was wrong with me. I’ve even had a doctor once say it was all in my head. She only said that once because I never went back to her again. Please if it is all in my head, fix it.

After being very strongly encouraged by my mother, I decided to go to a wellness clinic for allergy testing. I was found to be allergic to 22 foods. The biggest culprit was dairy. I said good-bye to my favorite comfort foods. But I still wasn’t feeling better.

I scheduled an appointment with the wellness nurse. She said I had a level of inflammation in my gut that she has rarely seen before. I had more tests done and started a treatment plan.

In the meantime, I discovered that I have Complex PTSD from childhood trauma. I have been seeing a great therapist. I have been working through my lifelong struggle with depression, anxiety, and insomnia. Meanwhile my life fell apart in other ways with family problems that really had nothing to do with me.

Over a month went by where every single night I did not sleep the full night. Some nights I would just get up and sit looking into the darkness. Nightmares were common. If only I could sleep then my problems would be solved. With help from both my therapist and wellness nurse, I am now able to sleep a couple of full nights a week. With sleep, my mood improved greatly. I was feeling a little less like a zombie.

Once again I become overly optimistic. I had more tests done. I’m getting better. I was going to finally be able to do the 30 day detox diet and get my allergies retested. I imagined myself this summer eating my favorite foods again. This summer it was going to be cheeseburgers, mac and cheese, pizza, cheese, cheese, cottage cheese, yogurt, cheese curds, lasagna, and cheese. It was so close I could almost smell it.

I went into my follow up appointment last week with great expectations only to have them dashed. My results showed that only 5% of the healthy population got test scores like mine. I have several parasites. I also have Small Intestine Bacterial Overgrowth (SIBO). This means that I have good bacteria in the wrong place which interferes with food absorption. This could explain the anemia.

So now I am on an even more restricted diet. Limited sugars, starches, carbs, processed food, and fiber. Too much of these foods can make the bacteria grow and make me feel sick. Pretty much the only thing I can eat now is meat. If it weren’t for living with a meat and potatoes man and ham I would probably be a vegetarian. This has really taken the joy out of eating.

The nurse also gave me a prescription for an antibiotic to kill off the parasites. It will help a little with the SIBO too. She said she only prescribed it to two other people but thought it was necessary in my case with my chronic gut issues. I was a little terrified to take the first pill. I read about parasite die off and it sounded miserable. So far I don’t feel great, but I don’t feel awful either.

It was hard going in with the expectation of good news. But I am on the road to recovery however long that might be. I know what I’m up against. It’s good to know it all isn’t in my head.

Update

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It seems like I am blogging less and less. This is not what I want, but there are a lot of things that I don’t want happening right now.

Last week went by in a blur. It’s been a whole week since the salvage yard came by and picked up not one but two of my son’s cars. One has been dead for a long time, the other was at the mechanics half the summer and was deemed unfixable. The little bit of money we got for them was gone the same day because the dryer broke later that afternoon. Tuesday the dryer was repaired. Wednesday I dropped a weight on my foot at strength training class. Thursday I woke up to a flat tire on my car. The mechanic was throwing a customer appreciation party when I got there. I am suspicious that they were throwing it because my son’s car was towed out of there never to be seen again.

It’s a sad time here. The boats are coming out of the water this week for the winter. Last week was brutal. We got tons of rain and broke the record for the wettest year ever recorded in history. We still have 3 months of rainfall left on the year. It was a rough summer. A lot of people had to change plans because of all the flooding and rain. We only had around 6 weeks of warm weather. So we have to go into the dark days feeling like we didn’t have much of a summer this year.

I haven’t been feeling well. I think I am still anemic. I don’t have much endurance at all anymore. I’m still having insomnia and nightmares. Pretty much everything I eat goes right through me. I feel nausea and acid re-flux every day. I’ve been sticking to my diet too. I haven’t had dairy for 6 weeks and avoided all of foods I am sensitive to for 2 weeks.

It’s been killing me to watch my friends drink beer and eat pizza while I can only have the salad bar. A salad without cheese, eggs, tomatoes, and dressing. Plus I still feel sick. Some days I can barely eat I am so miserable. There is nothing I can eat that I want to eat anyway.

It’s been emotionally challenging being on a special diet too. I feel like an outsider looking in. I feel lonely and left out. I don’t want to go out to eat. I don’t know what to make for supper anymore. It kills me to make and serve dishes I can’t eat. Maybe it wouldn’t be so bad if I actually felt better. It’s been dragging me down. I’ve been having a hard time with this. I feel so angry and impatient with myself for feeling sick. But it is important to keep to my regular routine whether I feel up to it or not. I haven’t cancelled any plans, although some days I don’t feel like getting out of bed. Friends and strangers alike have been coming up to me and ask me if I am alright. I hate feeling weak.

The good news is that tomorrow I have an appointment set up with a health and wellness doctor. Maybe I can get my body back on track again.

Other than that, I have been doing a lot of running around now that my son doesn’t have a car. I have 4 teenagers in the house. In the morning I drop the girls off at school then come back to take my son and his friend to work. He practically lives here too. Then this afternoon I dropped my daughter off at work, picked my son and his friend up from work, and picked our foreign exchange student up from after school sports. Plus I went grocery shopping, have to make supper, clean up afterwards, and then go pick my daughter up from work.

Every day is a variation of picking and dropping off kids. I feel very busy but like I don’t get anything important done. It’s been frustrating and I feel like blogging has been the last thing on the long list lately. I am going to try to blog more and be more positive. We’ll see what happens.

Running out of time

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I’m STILL waiting for a call from the doctor. I did get one call yesterday. It was from someone who barely spoke English trying to sell me final expense insurance. Did they somehow know I was worriedly waiting for test results?

At least all of this waiting gave me plenty of time to think. If I end up not having Celiac, I think I will go the allergy testing route. I was going to beg the doctor to put me back on Prilosec, but decided against it. When they did the scope, they found numerous polyps in my stomach that they think were caused by long term Prilosec use. It’s rare that they are cancerous, but they could be. They did a biopsy, but couldn’t remove them all.

In the meantime, I’m running out of time. My first 50k that I signed up for is a little more than a month away. I’m planning on running a marathon distance next week.

Training for this has been incredibly challenging. I really didn’t realize how awful I’d feel off of Prilosec. I have been feeling sick to my stomach a lot or having a stomachache. Several times I have been afraid to be far away from the bathroom. I’ve had to turn around and come back home. I’ve had to run into the woods. I’ve had no where I could go.

Being anemic, I feel exhausted, weak, and lightheaded without running. Running I feel like my legs are made of lead and I have a large weight on my back. Most days I need to take a nap.

I hurt my ankle last month and had to take some time off.

The weather hasn’t been cooperating either. We had a late start to the summer with record rainfall and cool days. My favorite trails were underwater. Some of the races in our area even had to be cancelled due to the weather. Then summer hit full force. Tomorrow will most likely be one of the top ten hottest days on record in our area. Followed by more rain and strong storms.

The storms have been hitting us unexpectedly at times. Just this week I drove my daughter to camp. It was sunny, hot, and humid. We passed a lady walking with her child on the way. By the time we got to camp, there was a continuous roar of thunder and heavy rain. On the way home, I saw the lady with her daughter who was about ten. It looked like the mom was huddled on the side of the road trying to protect her daughter. I know how terrifying it can be to get caught in an unexpected storm, so I pulled over and offered them a ride home.

I hollered at them to get into my car fast because a car was coming and I didn’t know if they could see me stopped in the torrential downpour. I was out in the middle of nowhere. I was almost out of gas. I was hydroplaning. Cars were driving slow or pulled over to the side of the road altogether. But it was exhilarating. I got someone home safe. But it grew exhausting driving about a half an hour through flash flooding in a torrential downpour.

You would think that all the rain would’ve washed all the mud off my car from trying to find a hiking trail that had its access dirt road under water. But no. Unfortunately, my car was unable to get through the washed out road. Instead it looked like I went mud running which regrettably didn’t earn me any bad ass mom points with my teenagers.

Needless to say, I have also wanted to stay close to home for fear of getting caught in a bad storm. Not to mention, I had a lady come up to me when running to tell me that a bear was spotted on my running route. Then there is the endless stream of drivers hellbent on trying to run me down with their cars.

I almost deserve more than a banana and medal if I can finish this race.

The good news is that I found a new running trail pictured above. It seems pretty safe and full of nature (and bathrooms). Despite my health and fears, I am determined to run this race. I might not finish, but I sure am going to do my best to try.

 

 

Not feeling well

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To be honest with myself, I haven’t been feeling well for quite some time.

I noticed it several months ago when I transitioned from running on the treadmill inside to running outside again. I seemed more tired than usual. I didn’t have my regular stamina. Was it normal for my endurance to drop so drastically? I could run 6 miles without stopping relatively easily. Then I started needing walking breaks.

I chalked it up to aging. After all, I will be 45 in a few weeks.

Maybe I just wasn’t used to all the hills? Peri-menopause perhaps? Seasonal allergies? The cool rainy weather? Maybe it is normal to be sluggish at this age.

I doubt I could run a 50k with the shape I’m in today. I have two months to go until the race. How am I going to run further than I’ve ever run if I can’t even run 6 miles without stopping?

This week I had a physical with my new doctor. It didn’t go well. I complained about the fatigue. But what middle aged person is not tired? A couple nights a week I have insomnia, but it wasn’t anything new to me.

The doctor ran some extra tests. The results show that I am slightly anemic which does explain some of the symptoms I’ve been having.

But what really concerned the doctor was that I have been taking two Prilosec a day for GERD for several years without ever being scoped. She said that wasn’t normal for someone of my age and health. She asked several more questions, then said she would like me to get scoped and tested for Celiac which is an autoimmune disease. The only treatment of Celiac is a strict gluten free diet. I think 2 of my brothers already have undiagnosed Celiac.

I looked up Celiac when I got home. I have almost all of the symptoms and have had several of them since I was a child. I hope the doctor’s suspicion is wrong, but I think I see the writing on the wall. Even anemia is a symptom because Celiac prevents your body from absorbing nutrients. Otherwise it makes no sense since I am already taking a multi-vitamin with iron.

Today I bought donuts. I bought chicken patties to eat on big hamburger buns. I bought my favorite food, macaroni and cheese. I bought my very favorite craft beers. I am going to go to Arby’s to eat a big roast beef sandwich with mozzarella sticks on the side. I am starting to think of state fair cream puffs. I want to eat my favorite foods before I can never have them again. I almost started crying in the craft beer section.

I am feeling very down about this. I was told this was the best time in history to be gluten free. But that doesn’t make me feel any better at the thought of giving up my favorite foods and drinks forever.

I think it would be hard to even go grocery shopping. I don’t think I would want to go out to eat with friends and family. Forget parties. Maybe I won’t leave the house.

I need to stop taking Prilosec as well. I am down to one pill a day. I bought a big bottle of Tums and liquid antacid for the pain I will be in. It’s already started. This morning I felt nauseous. The acid burn in my throat is back, so is the burping.

But it will be good to have answers.

I have been feeling so tired, weak, and depressed lately. I have been having a hard time thinking. I am very organized and meticulously detail oriented. In the last couple weeks, I’ve forgotten things that were on my grocery shopping list. Today I went running and got lost on a trail I have been running for years. I can’t seem to keep a thought in my mind for long. I forget what I am going to say sometimes mid-sentence. That’s scary!

I am afraid.

I will have more answers soon and hopefully I’ll start feeling better. It just might not be the answer I want.