What is the meaning?

Are you there God? Just show me a sign. Let me know that I am not walking alone. Sometimes I feel alone.

I am angry dealing with a rebellious 17 year old. Maybe someday I can look back and laugh at this. Maybe it will be like the time when his buddies and him mooned his classmates at recess in grade school. I laugh about that now.

Even though I am angry, I still feel love. He is a good person. He said that most teenagers would jump at the chance to have a cabin to party at with free alcohol. Perhaps that is true. He didn’t partake of the property destruction.

Last week my son texted me about saving a bird. He saw it as he was leaving for school flapping on the ground. The bird hit the garage door and was bleeding from the head. I tried to save it, but it was too far gone.

Doesn’t God care for the sparrows? Doesn’t God care even more about me?

I have been thinking a lot the past few days. I don’t think I feel angry about my current situation as much as I do about the past. It brings me back to a time that I didn’t feel like God was there for me, for my mom..

My mom is right up there at the top of God’s most faithful servants list. I, perhaps, am at the top of the doubting Thomas list.

You see, my mother’s life has been difficult since her first premature breath in a foreign country. I can almost understand if God is not there for me…but my mother??

She had to deal with 4 teenagers at a time…two that were severely depressed. One that was into alcohol and drugs…and my brother Matt, the Helen Keller of mental illness…anxiety, autism, schizophrenia, and tourette’s. He was often violent. My dad was also depressed. When he wasn’t depressed, he was angry and cruel…

God, were you with my mother the many nights she cried alone??

Does what I went through have purpose?? What is the meaning? Did I even help one person live another day besides myself??

Are you there God? Can you show me a sign?

 

Walking away

I bet you were waiting all weekend to hear if we have bedbugs. Good news! We don’t.

We spent money to find spiders apparently. But I have a piece of mind that everything is okay.

We have since moved on to our next crisis.

Our son’s car broke down right after the exterminator left. The car started steaming when he got to our road. When he pulled into the driveway, all of the antifreeze leaked out. Today we had to get the car towed to the garage to be fixed.

We have been having record high temps in WI. It has been hotter the first few days of fall than it has been all summer. All I wanted to do was go to the beach, but that never happened.

On Saturday we drove a couple hours to go to my friend Lisa’s 40th birthday party. She wanted to go to a small town’s Octoberfest.

While we were there, we heard from a friend that we might get sued.

Just a quick recap…last month my son, along with 20 other kids, went partying at another girl’s cabin without her. She got busted by her parents with alcohol but told her friends to go anyway. She gave them directions and told them how to get in. There was some minor property damage…a broken water pump, broken glass, blood on the carpet, and penises drawn on the wall.

We have been in constant communication with the parents and have offered to pay for a share of the damages. Now we are wondering if we need a lawyer. It doesn’t appear that my son will be facing criminal charges since he got permission to spend the weekend at the cabin via text from the daughter. However, we don’t want to get sued. We know some of the other parents will be unable or unwilling to pay. Will they go after us for more than our fair share?

I didn’t feel like celebrating after hearing we might be going to court. I didn’t even do one dance. I took a walk through the small unknown town by myself. I needed to be alone to think. I walked until I saw the courthouse and sat on the steps. It seemed bizarrely suiting for the occasion.

Sometimes I feel like walking out of my house with the clothes I have on and never coming back.

When I am really upset, I aimlessly drive for hours or go on a long walk. Last night I went for a long walk. I felt anger and despair. I wondered if God really was there.

Paul and I have been upset and/or fighting about this all weekend. We accused each other of not caring about the other, but neither one of us said that we didn’t care.

Now we just sit and wait wondering what will happen next. We just want this to be over with. We want to stop feeling angry every time we hear about it. Thankfully Paul and I are getting along better today..It is hard to be angry and to express that anger without feeling blamed or attacked.

I just want to walk away…or better yet, sit on the beach oblivious to the cares of my world..

 

Just one more day….

It’s been a rough week for me. I have been struggling with insomnia. My mind has been tormented with fits of anger, deep lows, and crippling anxiety. I found myself making mistakes at work although known for my accuracy. I feel sick to my stomach with nervousness. 

Tomorrow is the Half Ironman. 

I have been having nightmares more nights than not when I do sleep. I dreamt  that my legs weren’t working to peddle my bike. I dreamt that I was running straight up and when I got to the top I couldn’t get over the edge. I asked for help but no one would help me. I even had my first nightmare about blogging. I dreamt that there was someone who knew me so well that he left little notes to stalk me. What am I doing? I am a private person. 

Everything in me tells me to stop…stop racing..stop writing..But a few days without it and I am a basket case. 

I am terrified about tomorrow although everyone has been very encouraging about my endurance and ability to finish. I feel exhausted and run down. 

I have to get my mind in the game but it just doesn’t seem to be working right. I hope it is worth all of this. I think it will be after I get through my first Half Iron. I will keep you posted….

Sibling bonds

I saw my mother-in-law last night…it was the first time I’ve seen her since she died. She told me that she would be there for me. But I wasn’t in my house…I was in my childhood home. My husband was there too. He was trying to fix something that was  not fixable..

I woke up crying at 4:30 AM. I feel it happening again.

When I got the news, I was driving my car. I wanted to cry.

Then I felt angry. I drove faster than usual. I wanted to punch someone. I almost wanted someone to hurt me so I could kick, punch, scream, and fight back.

When I got home from my swimming class, I wanted to go for a long hard run. But it was getting dark out.

I felt deep sorrow. It took me to some dark places. It brought back demons so ugly, dark, and evil that I couldn’t possibly outrun them by running hard.

How could we not see what was happening? When Matt was taken off of his anti-psychotic medicine what did we expect would happen?

Matt was taken off of his medication because long term use was straining his liver..

Then started the sleepless nights of agitation. The tics and Tourette’s. The gagging and throwing up of meals. The extreme anxiety.

It wasn’t withdrawal. It wasn’t a virus. The old Matt was back. We just didn’t recognize him because he was gone for so long.

Don’t you remember Alissa? I used to read you books at night…books like Little Women. But Matt would pace the floors in agitation keeping everyone up until midnight. I had to stop reading to you. I had to be with him.

Then yesterday my mom told me that the hallucinations came back.

It started with a dream. A dream of Matt hurting my niece. In the dream, he killed her. He has become fixated on hurting her.

You see, I was Matt’s first victim. Year after year, day after day..it was me that he hurt. He punched me. He kicked me. He clawed me. He bit me.

After awhile, it seemed almost normal.

I wasn’t allowed to fight back. I wasn’t allowed to feel anything.

Then I grew up and had a little girl of my own.

Matt became obsessed with her…or I should say that he became obsessed with hurting her. What would happen if I held her head under water? What would happen if I twist her arm? Would she cry? The voices told him to hurt her.

Then one day he did.

He hurt my daughter on her 4th birthday. After my brother and husband wrestled Matt off of her, my brother Luke took Matt home. Matt went into a psychotic episode so bizarre. He muttered to himself for hours not seeming to be aware of his surroundings.

He still obsessed about hurting my daughter for years afterwards. I had to isolate myself from my family. I did not allow Matt around my daughter for years after that.

Then Matt went on anti-psychotic medicine and became a very peaceful loving person. He started giving hugs instead of bruises. Eventually we were able to reunite as a family once again.

But then this happened.

My mom decided to put Matt back on his medication despite the possible health risks.

Matt loves his family and doesn’t understand why he would want to hurt them.

My brother Luke is keeping his little girls away from Matt until he gets better again.

I never understood how autistic people could be violent. Hearing voices that tell you to hurt someone you love does not seem like a symptom of autism to me. But, a lot of autistic people I know who are violent are non-verbal. Would they be telling the same stories if they could talk?? How is this even possible?

I took the news about this pretty hard.

We will be okay. We will get through this again.

I just feel very compelled to share my story with you.

Please, if you are going through something similar…I would love to hear from you. I feel very alone in all of this.

 

A blue Christmas…

     

Last night I decorated my new real blue Christmas tree…alone.

I felt such a loss after Angel left to go back to college. Year after year, we decorated the Christmas tree together. I really missed having her here this year. I didn’t tell her that though. There are so many kids dropping out to be closer to home. We both know she is right where she needs to be.

My other two children were not interested in decorating the tree with me. Just this last weekend Arabella said that she didn’t think her teenage self would like me very much. Bayley was over and Alex wanted to spend time with her. The last thing I wanted was to force the kids to spend time with me. I want them to want to.

I wanted for just a second to put them into my world growing up. I wanted them to realize how important this tradition is to me. But I protect them from all of that.

The holidays sometimes does crazy things to my head. 

The next thing I know, I am back home. Mom and I are baking cookies for Santa. There is a tree with glimmering lights. There were Cabbage Patch dolls hidden in wrapping paper under the tree. 

Then just like that, everything I had was gone.

Mom said that Matt couldn’t tolerate Christmas trees, real or fake. Everything stopped. We no longer had Christmas trees in the house. We no longer put out cookies for Santa. We no longer decorated with lights or candles. That was no longer allowed. What used to be magical and fun turned cold and desolate. It became a season of despair for me. 

Thankfully, my grandma always had us over on Christmas Day. I never cared that her trees were less than perfect. She always cut her own tree from her backyard. I was happy there. Except for the year that my mom told her that she could no longer have a tree because Matt was allergic. My grandma decorated the wall with bows that year. I was so angry.

Last night I put my head in my hands and cried. A part of me will forever be broken.

I wanted my kids to understand what having a tree means to me because I never had it. I did have it at one time, but it was taken away. I wonder if my younger brothers even remember a time when we had a Christmas tree in the house. Perhaps I will ask them. Maybe it is better if they don’t remember.

Last night I felt so much anger and despair. If my mom were to call, I wouldn’t answer the phone. It is not fair to her to be angry about something that happened 30 years ago. It’s not her fault that Matt is autistic. The whole situation was unfair to all involved.

I want to help other special needs families learn from my experiences, but I feel so much rage. It hurts to reach out. My mind goes absolutely haywire this time of year with anger, depression, and anxiety. I can’t seem to control it. I can’t seem to escape the memories. So many years have past now, but it still hurts when I pick at the scars.

Why did you take everything away from me? Did you think that taking our Christmas traditions away from us would make Matt any less autistic? It was not like he broke out in hives and had trouble breathing. I needed this to help get through the dark days. I needed some light. But my needs got ignored. The funny thing is, Matt wasn’t any more or less violent without the tree. It didn’t matter either way to him, but it did to the rest of us

I’m sorry, I didn’t intend for my post to be this way. I was going to post a picture of my lovely blue tree. This post was going to be light and fluffy like the snow we don’t have on the ground outside. I didn’t think that I would respond this way. This time I didn’t brush the feelings away. I let myself grieve. Sometimes I wish my kids would understand that the things they take for granted as normal were never normal for me. 

I am not usually an emotional person. I am usually cool, calm, and detached from feelings. I don’t want to live in that cold emotionless void anymore. I want to feel now even if it hurts. I am stronger now, strong enough to handle this.

Thanks for listening to me. It really helps me feel better. 

A tempest is raging

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It was felt before it was seen. There was a tension in the air. An edginess without explanation. A premonition of pressure change. A calm that was unsettling.

Then it began, the first teardrop fell. A lightening bolt flashed through the evening sky. A small flash mocked at its side. The wind roared battering the potted plants knocking them down. The thunder boomed shaking the trees. The creatures of the Earth stirred from their silent slumber within. There was nowhere to hide from your anger.

June 2016 069

The sky glowed a fiery orange. Although beauty was in full bloom all around, the lilacs couldn’t compete with your ethereal radiance. The night was electrical, exciting perhaps. We felt the full force of your wrath.

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Miscommunication. Things aren’t what they seem.

A celestial being from the heavenly realm calms the raging tempest. The moon is full, the stars are bright.

That is what you would think. Instead a few lingering rain drops sprinkle across my lens, distorting my view.

The storm is over.

I walk into the house and shut the door.

Urgent matters

Work has been busy. Tempers have been flaring. Angry hot words sizzle like an egg frying on the hot summer sidewalk. 

On Monday, I paid for the afternoon I took off from work on Friday. I am afraid to take any time off because I have to work ten times as hard to make up for it. I feel guilty leaving our employee to cover for me when the work load is heavy.  

Over the past couple weeks, one of our vendors was updating their website which caused an order that we spent over an hour placing to be all messed up. This kept our clients waiting longer than they usually do. Our vendor did not return our calls regarding our issues because they were bottlenecked which caused us to be bottlenecked. Deadlines were approaching, clients called in desperation. Tetris again. I made the decision to spend a couple hours after work placing the order again despite the double charges. I asked for reimbursement but we might end up eating the double charges. Stress. It seems to happen day after day.

Paul and I were finally getting along only to fight again. We only have time for the urgent matters now not the important things. I was upset that he had play practice on my birthday. He said that he wished he never decided to try out for the play. He was pressured because he would make a perfect lead. He thought I would understand the commitment that 450 lines would take. The play is only a few weeks away. He apologized.  

I was a little miffed that he took 2 of his theater friends sailboat racing last week. I didn’t like the fact that he took a younger single woman that has the hots for him. He had an open invitation to whoever wanted to crew and she took it. Not me. Whatever. I guess she had a horrible time. He had 2 new crew members on a really windy race night. The boat did a lot of heeling and the woman was terrified. She spent a lot of time hiding in the cabin. It wasn’t a peaceful evening like their first sail. Paul didn’t do too well that night. He apologized that I felt left out. 

We finally were able to talk things through and work things out just to fight again. Friday night Paul exploded. He tends to let it all out in one angry storm. It reminded me of a time last summer when Paul was angry. He made homemade pizza for supper which we were starting to enjoy on our deck table outside. He was angry about something. He set his glass down on the table hard to emphasize a point. The table cracked and shattered into a zillion little pieces. Then he went around the house roaring and screaming as loud as he could with the windows open. I briefly wondered what the new neighbor’s thought. Afterwards, he apologized. 

There have been a lot of stressors for Paul. He is stressed about the play, work, the kids, and his mother with terminal cancer. He had a screaming fit Friday night, the day before the graduation party. It was stressful preparing for the party. Would the weather be nice? Did we have enough food? Etc..  Plus it was hard for Paul because not one family member of his would be attending. How strange is it to have a big party for your child with no one respresenting you there? He is like an adult orphan, all alone. He only really has me.

I have been really stressed out too. My anger releases slowly, just a little steam at a time. I criticize. I condemn. I judge his outburst with unforgiveness. I hate. I consistently pour out whispered four letter “s” and “f” words throughout the day. I am no better. SSsssstttrreesssss…

I think that we are finally getting along again. It took awhile. Marriage can be like that at times. 

I am trying not to let the day to day stress get to me. Paul and I have to be on the same team to make this marriage, family, and business work. 

I need to look forward to some stress free time away. I am starting to plan a business trip out to California this fall. Paul and I have never been out to the west coast. Maybe we can add a couple of days of fun while we are out there.  

Ready to call it a day…

It has been a long day…

Paul and I awoke this morning at 6 AM by the jarring ring of his cell phone. His busybody cousin was calling early to tell him that she thought his mother needed more home care. His mother has been in and out of the hospital over the past month with terminal cancer. Martha insisted that she didn’t need home care. His cousin who is a CNA that acts like a doctor said that Martha was lying. Then she started accusing Paul for not being there more. This is a cousin that we have not seen for about 15 years. She swooped in out of nowhere and started taking charge. Paul suggested that if she has a problem with Martha’s care, then she should talk to Martha’s husband Darryl. 

It really wasn’t the best start this morning. Paul felt so offended by his cousin. It is always so terrifying to have a late night or early morning call when you have a dying parent. Who does that?? 

Then I scrambled to work for a half day to find out that the employee that would be covering for me in the afternoon couldn’t make it in because her brother-in-law had a heart attack. Oh, and she told me that she had to take my birthday off for a doctor appointment after I already made plans. So I had to cancel my birthday plans. 

At this point, I am feeling stressed and angry. Not a good morning at all.

I took the afternoon off of work to take my son in for his driving test. We spent a couple of hours before the test having a “crash” course on driving. He only got honked at once. Then he went in and passed the test. Afterwards, he started asking if he could borrow the car for the weekend to hang out with his friends. So now this starts?? I’ve accepted the fact that I am not his number one hang buddy. He is finally starting to talk to me more. Last night he even hung out with me and played his favorite rap songs. I can’t say that I approved of all the lyrics. But he wanted to hang out with me, so I tolerated it. Pathetic, I know. Wait until you have a teenage son that never comes out of his room. I did get a few new running songs though.

Then this evening I have plans to organize Angel’s graduation party. It is only a few weeks away and I have no idea what I am doing. I am not a crafty mom at all. 

I am ready to call it a day already!

Back to the present

Today I struggled with what to write. I want to go back to my autism series that I started earlier this month but so much is happening in my life right now. How can I talk about the past when the present is exciting, here, and almost gone?? I will finish it though. With the marathon last weekend and my first child’s graduation this weekend, I have a thousand thoughts and emotions running through my head. And it all has to fit into one post per day that should contain an average of 500 words. Lol.

Last night, Paul and I decided to call our parents to try to convince them into going to Angel’s graduation. I called my dad and asked him directly if he was going. Now I typically call my dad twice a year, on his birthday and on Father’s Day. So it was a big deal that I was calling him. He seemed happy to hear from me. He told me that Angel was a nice and good girl. He said that he was planning on going to her graduation. I was floored. Then he even asked me how my marathon went. I was shocked that the whole conversation was very positive.

Then I walked out of my bedroom to find that things didn’t go quite as well with Paul and his mom. Martha was on the phone with Angel saying that she wasn’t feeling well and wouldn’t be able to make it. But this time she is really sick. So sick that she couldn’t make it in to her chemo appointment yesterday. I believe that she is really sick this time. But I liken it to the story of the boy that called wolf. Martha has been calling wolf so many times over the past several years that now my mind finds it had to believe that there is a wolf.

But there is a wolf. Martha has terminal cancer, the big devouring wolf. A few weeks ago, Martha was going to go with me to see Angel perform her solo and ensemble pieces at state. Martha was supposed to be at my house by nine. I waited around until 11:00, Martha didn’t show up or call. By that time I had already missed half of Angel’s performances. At 11, Paul called his mom and she was still at home an hour away from our house. She wasn’t feeling good enough to go but didn’t bother to call. She was going to try to make it out to eat with us later that evening for Mother’s Day.

I knew that Martha was sick. But it still brought up all of those old feelings that I had towards her for standing up my kids. I was very angry and hurt. I drove fast to get to the remainder of Angel’s events. I was pissed that I wasn’t there to support Angel when I told her I would be there to watch her. Then I even started to feel a little guilty that I was angry with my mother-in-law who is dying. So I have become tolerant. I have repressed the years of resentment, hurt, and anger.

It is hard because now I think that Martha might want to go to Angel’s graduation. But it is too late now. She should have gone to more things when she was able to. She should have been the involved grandparent then. Now it is much too late.

 

Bear with me

I had to take the last couple of days off from writing. I still haven’t been feeling all that well. The stomach ailment that I had last week set my acid reflux into over drive. I have been feeling very nauseous as well. I finally broke down today and called the doctor’s office. I was so afraid that I would need to be scoped, instead I was prescribed some anti-nausea meds. Hopefully that will help. 

I have been downright crabby at home, not just because I haven’t been feeling well. Everyone is sick of hearing about it around here. 

Bear with me!

This past weekend, Angel had her last choir concert. It is finally starting to sink in that she will be graduating soon. I have been mopey and crying about this fact off and on over the past couple of days now. I told you I am a mess!

Bear with me!

This weekend is the marathon. I finally have some sliver of hope that I will be able to run it. Maybe I will be feeling better!?! The last couple of days, I did run really fast to the bathroom though. It has almost been 2 weeks since my last run. Tapering down is never a good thing for me. When I can’t run, I get pretty psycho. Yesterday, I was so moody and angry that I broke down and took the dog for a walk. 

Bear with me! Or just say screw it and be a bear with me!