Finding the key

I had a visit with my counselor to try brainspotting as an attempt to heal from the trauma I’ve experienced in my life.

I wanted to tell you about it before I forgot. It was a strange, almost mystical experience. My counselor asked me to bring in an item that would remind me of something tragic. I talked about the experience and then she had me follow a pointer with my eyes until I felt the strongest amount of emotion. I also had to focus on a part of my body that I felt that emotion in. I picked my stomach, because when doesn’t it hurt?

I was asked to visualize the negative emotions leaving my body. I thought of my grandma, that she was with me although she has been gone over 10 years now. I imagined blue birds taking the negative emotions from the top of my head from my straw like hair. Later I imagined that all of the negative emotions and pain that I experienced were worms that spilled out of my mind to feed the birds.

There was a great outpouring that the birds carried away, then later balloons came to assist the birds. I told my counselor that it felt weird. I was very skeptical and thought it was rather stupid at first. I am a very logical person, structured and rigid. There is no room in my mind for fantasy, make believe, imagination, playfulness, and magic. My world is not sparkly, it is black and white. My counselor said that is how I dealt with the trauma in my life.

After the appointment, I felt a sense of peacefulness that I can’t remember experiencing before. I did feel some brief intense anxiety that the birds flew in and took away. I slept for threes nights in a row without insomnia or nightmares. I even slept through a storm. I can’t remember how long it has been that I slept for three nights in a row without insomnia or nightmares. It was amazing.

But then it went away. The sadness settled back into my mind. Every time the balloons wanted to carry it away, the birds popped the balloons with their sharp beaks. Then the insomnia and nightmares came back.

There were two other times after that when I felt like the birds were taking out the worms and decay, on my first run after the 50k and when I was getting a massage.

Now, several weeks later, I am on lock down. The rational and logical part of my brain took back control. It is all rules and structure. There aren’t any feelings, good nor bad. I am back home where I feel safe.

But now I know there is another world of childlike wonder locked away somewhere in my mind. There is hope that one day I will once again be able to find the key to peace and serenity.

 

 

Unrest

I don’t want to do this anymore, this whole life thing. I want to hibernate somewhere, hidden away under cover.

I don’t know how I got to this point. I’m just tired of it. I’m just tired.

I couldn’t fall asleep last night. It was after midnight before I silently fell into slumber. This happened twice this week although this type of insomnia rarely happens.

I couldn’t stay asleep last night. I slept restlessly. I awoke several times. At 4 AM I had to go to the bathroom. This is the type of insomnia I call home.

I had one of the most intense nightmares that I had in a long time. I was a little girl. I was brought to an empty house because there was going to be a lot of blood, my blood. I went willingly because I knew I had to be the sacrifice. I was afraid. I was going to be hurt badly, but I would live through it. Before anything happened, the owner of the house came back. She looked like a grown up me. I told her that she needed to leave because she would get killed for being there. She tried to help me, we ran away. She was killed and I hid in the closet terrified knowing I would be next. Now we both were going to die because she tried to save me.

I awoke at 5:30, less than an hour before my alarm was going to go off.

Today is the day that my video is being posted. I didn’t know it until this morning. I hate the video. I want to destroy it. I feel so anxious about it.

Why do I have this need to tell everyone about the things I’ve experienced? I just don’t want to do this anymore. I don’t want to write. I don’t want to blog. I want to disappear off the face of the earth like I never even existed.

I thought of strange things. I remembered the book my mom used to read to me about Toad and Frog. They left the door open and winter came in. They were cold, sad, and lonely. They made soup out of their tears. It was almost as if the hauntingly sad child me came for an unwanted visit. But to cast her away would destroy us both.

I struggled to find the motivation to do everything I needed to do. Some days are like that. I’ve been stirring up my demons. But I was able to make it through. It is hard to do when my body and mind doesn’t let me rest.

Maybe tonight I will sleep.

Unrest.

 

Done, done, and almost done

I am so relived that all of the difficult things over my head this month are now done.

I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.

Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.

Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!

I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.

Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.

Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.

Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.

It is finished now. I sent them. Whatever happens, happens.

Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.

I am done, done, and almost done. If I heal and help other people in the process, it is worth it!

Fortune cookie wisdom #20

Courage comes through suffering.

This fortune cookie blew away from the rest and was found the same day I found my lost ‘I am courageous’ sock. I only wore the socks once before losing one in Paul’s shirt for a couple weeks.

It seemed like a sign of some sorts. But what does it mean?

What does being courageous even mean? The dictionary defines courageous as not deterred by danger or pain; brave.

I would like to think that I am courageous. In the next couple weeks I am planning on doing courageous things.

This weekend I am running my first 50k. It takes a lot of courage for me to do this and probably will entail a lot of suffering too. There is no guarantee that I will succeed. I am very fearful that I might not be able to achieve the goals I’ve set in place for myself.

Within the next two weeks I will be submitting a 45 minute presentation for a local autism chapter about what it is like to be a sibling of someone with autism. I really need to put myself out there about the most difficult experience in my life. It is going to require a lot of courage. I am finishing my book on what life is really like with a disabled sibling. I’ve had to face my scars and demons.

As an extra test to my bravery, over the holiday weekend a filling fell out. I went to the dentist today to get it fixed. They said I could probably do it without being numbed. I would rather run a marathon with a broken leg. I was horrified and then they said I could get anesthesia just in case. But I decided to brave it despite my fear.

Then this past weekend I spoke to my dad about God. I don’t feel like he has much time left. For some reason he has softened his heart toward me lately. He told me that he loved me for the second time in my life. The first time was on my 18th birthday prompted by my mother. Then this weekend I asked him to come out and sit with us, his family, by the campfire. Surprisingly to everyone, he did.

Before this, I justified to myself that someone else should talk to my dad. My brother Luke sat down with my parents awhile back and aired out all of his grievances. It seemed like a good thing. I thought that he was getting along great with my dad. I felt like Luke is a better Christian than I am so he could carry the weight of talking to our dad. But my eyes were opened to the fact that Luke and my dad do not get along.

My mom is a devout Christian and my dad is a Christian bashing atheist. I bet you can guess how that worked. I believe that the best marriages are of those that have the same religious beliefs. Because, we the children, have to take sides. I feel the need to talk to my dad about God. I most likely wouldn’t have that burden if both my parents were Christians or atheists if I followed their beliefs. It causes a lot of disharmony and stress.

So on the way out of the cabin this weekend I said to my dad that I hope he finds God before God finds him. My dad laughed and said fat chance. I knew that my words probably did no good for him, but it released me. I did everything I could and if it is the last time I see him I will know that I did not leave a coward.

I don’t think that I am more courageous than the average person, but I am trying to be brave when there are demons to slay and fears to conquer.

 

A new family

Last night our foreign exchange students arrived, Clara from Germany and Estelle from France.

I felt anxious all day. I couldn’t believe it was really happening.

I worried. Would our new “children” like us? What will this next year be like?

My oldest two children are not as excited about it as I am. I think they think I’m replacing them. But maybe in a way I am. They are adults and don’t need me being a mother hen to them anymore. They are off living their own lives like they should be.

I am excited about this new adventure, but as with anything new a little frightened too.

I wonder what it would be like to see everything for the first time through their eyes. Maybe even for us, the old will become new again.

I hope it is a wonderful experience for all of us.

 

Brainspotting

I’ve realized a few new things about myself over the past couple days. The things I once thought were normal, or at least normal to me, I am questioning. I think I just got used to some things that are just not right.

There isn’t a day that goes past that I don’t think about the childhood trauma I’ve experienced. I wish I could just get over it or at best think about these things every other day. As a result, I’ve struggled with lifelong anxiety and depression.

But that isn’t all. I constantly experience exhaustion and fatigue. My doctor wanted me to go in for a sleep study when I was in my 20’s. I did and was told that I never went into deep sleep.

I started reading the book The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Dr. Bessel Van Der Kolk. I would highly recommend the book if you have experienced or are interested in trauma in general. One of the chapters talks about EMDR. EMDR is a therapeutic process in which someone focuses on a pointer moving back and forth while thinking of traumatic experiences. It somewhat mimics REM sleep which PTSD sufferers apparently don’t get a lot of. It is supposed to be very effective in healing trauma.

When I was a little girl, my autistic brother was physically violent with me on a daily basis for years. Sometimes while I was trying to sleep at night, he would come in my room and threaten me with violence. As a child, I slept with my door open. You see, I was afraid of the monsters in my closet and the ghosts under my bed that would attack me when my door was closed. I thought like a child. I feared illogical demons instead of credible threats to my safety.

The stress hormones pumped through my veins with a steady beat day and night. My body learned to never relax. I had to be alert for danger at all times. Deep sleep wasn’t safe.

I started paying attention to my sleep patterns lately. They’ve been the same as long as I can remember. I don’t have problems falling asleep, but I can’t seem to stay asleep. I usually awake between 2 and 4 and stay awake for an hour or two. I try not to think because then I might as well get up because I won’t be able to fall back asleep. Sometimes I get up and walk around.

Usually once or twice a week, I have bad dreams. It seems when I am just about ready to go into REM sleep, my body awakens me. Even though the danger is gone, my body is still on high alert.

I can’t remember the last time I slept through the night. I can’t remember the last time I didn’t have a nightmare when I had a dream. When things are really bad, I experience insomnia and intense nightmares together on the same night. These are the nights that I wake up sobbing, can’t go back to sleep, and if I do I have nightmares again. Thankfully it doesn’t happen all that often.

I am exhausted, but can’t relax. My anemia is making things worse. I lack energy and can’t seem to think straight.

My counselor is trained in brainspotting, which is an offshoot of EMDR. Next session I am going to give it a try and see how it works. Maybe I’ll finally be able to get some sleep. Even though a pattern of insomnia and nightmares is normal to me, I don’t think that it is normal. Maybe there is nothing I can do about it, but I’m going to try.

answers???

Tomorrow is the big day, I am getting scoped.

It’s been an eventful last couple of days to say the least. In the last couple of days I wrote about 4 drafts that I threw away. They seemed so negative and angry. Am I really that way?

It was a long holiday weekend. What should have been relaxing left me quite drained. I went up north for the holiday weekend. For the 4th of July, in Wisconsin, there is no place I’d rather be. Every night there were fireworks on the lake. Then it seemed like every day there were fireworks with my family. My dad picked fights with my mom. My brother Mark and his wife Carla were bickering. My mom got in an argument with Carla which was unlike her.

It was hot outside. The people of WI are not used to the heat. My dad sat around the cabin in only his underwear for some of the weekend which was disturbing to say the least. There were fights about whether the windows should be opened or closed.

I hope I’m wrong, but I feel fairly certain that I might have Celiac. I tried to spend some time relaxing drinking some of my favorite craft beers, hopefully not for the last time. Every time I cracked open a beer, my niece Gracie would lay into me. How many beers have you had? Wow, you really like beer. Are you a drunk? Her nagging got very annoying after awhile. I told her that she would make a very good wife someday in jest because of all her nagging. Then Gracie bragged to her sister Eva that I said she would make a great wife. Then Eva got upset that I didn’t say it to her. I just couldn’t win.

To make matters worse, my husband and I were having the argument of a decade. I was so angry and hurt that I wanted to take my wedding ring off and chuck it into the weeds. Incidentally, the fight started about a half an hour before I was supposed to meet the first guy that Arabella wanted to date. I tried not to look too angry.

I was so stressed out that I’m sure what happened next could’ve only have been explained by my relaxing (not) weekend. A few days after I stopped taking Prilosec, I was in GI distress. I spent Friday and Saturday barely eating and feeling so sick that I slept very little because I had to keep getting up to go to the bathroom. I had a lot of stomach pain and only got about 6 hours of sleep the whole weekend. When I did sleep, I had nightmares. It was terrible.

Then I had to drive home. I would not let Arabella drive home because it would take an experienced driver to fight the traffic going south on a Sunday afternoon after a holiday weekend. I had to wait 10 minutes to turn right to go south onto a 2 lane highway. I was only let in because someone stopped on the highway to let us in. There were times traffic came to a dead stop.

All in all, except for the beautiful fireworks at night, it was a miserable weekend. I am feeling a lot better now. Paul and I are getting along again. But for awhile, I was very angry with God. I am worried about my health. Even my brother Luke is having health issues and might need a biopsy. Not to mention all the crap going on with family over the weekend.

Tomorrow I might not get the answers I want, but at least I should have some answers. I guess that is a start.

Not feeling well

To be honest with myself, I haven’t been feeling well for quite some time.

I noticed it several months ago when I transitioned from running on the treadmill inside to running outside again. I seemed more tired than usual. I didn’t have my regular stamina. Was it normal for my endurance to drop so drastically? I could run 6 miles without stopping relatively easily. Then I started needing walking breaks.

I chalked it up to aging. After all, I will be 45 in a few weeks.

Maybe I just wasn’t used to all the hills? Peri-menopause perhaps? Seasonal allergies? The cool rainy weather? Maybe it is normal to be sluggish at this age.

I doubt I could run a 50k with the shape I’m in today. I have two months to go until the race. How am I going to run further than I’ve ever run if I can’t even run 6 miles without stopping?

This week I had a physical with my new doctor. It didn’t go well. I complained about the fatigue. But what middle aged person is not tired? A couple nights a week I have insomnia, but it wasn’t anything new to me.

The doctor ran some extra tests. The results show that I am slightly anemic which does explain some of the symptoms I’ve been having.

But what really concerned the doctor was that I have been taking two Prilosec a day for GERD for several years without ever being scoped. She said that wasn’t normal for someone of my age and health. She asked several more questions, then said she would like me to get scoped and tested for Celiac which is an autoimmune disease. The only treatment of Celiac is a strict gluten free diet. I think 2 of my brothers already have undiagnosed Celiac.

I looked up Celiac when I got home. I have almost all of the symptoms and have had several of them since I was a child. I hope the doctor’s suspicion is wrong, but I think I see the writing on the wall. Even anemia is a symptom because Celiac prevents your body from absorbing nutrients. Otherwise it makes no sense since I am already taking a multi-vitamin with iron.

Today I bought donuts. I bought chicken patties to eat on big hamburger buns. I bought my favorite food, macaroni and cheese. I bought my very favorite craft beers. I am going to go to Arby’s to eat a big roast beef sandwich with mozzarella sticks on the side. I am starting to think of state fair cream puffs. I want to eat my favorite foods before I can never have them again. I almost started crying in the craft beer section.

I am feeling very down about this. I was told this was the best time in history to be gluten free. But that doesn’t make me feel any better at the thought of giving up my favorite foods and drinks forever.

I think it would be hard to even go grocery shopping. I don’t think I would want to go out to eat with friends and family. Forget parties. Maybe I won’t leave the house.

I need to stop taking Prilosec as well. I am down to one pill a day. I bought a big bottle of Tums and liquid antacid for the pain I will be in. It’s already started. This morning I felt nauseous. The acid burn in my throat is back, so is the burping.

But it will be good to have answers.

I have been feeling so tired, weak, and depressed lately. I have been having a hard time thinking. I am very organized and meticulously detail oriented. In the last couple weeks, I’ve forgotten things that were on my grocery shopping list. Today I went running and got lost on a trail I have been running for years. I can’t seem to keep a thought in my mind for long. I forget what I am going to say sometimes mid-sentence. That’s scary!

I am afraid.

I will have more answers soon and hopefully I’ll start feeling better. It just might not be the answer I want.

 

My life with a teen driver

I wonder if Arabella will ever get her license. She is 16 now, but I am hesitant to set up her driving test appointment because I don’t think she will pass.

My life is in danger. Just yesterday, she blew through a stop sign. She almost ran a red light. I had to yell at her to stop. Generally a relatively patient person, I screamed an obscenity as I watched my life pass before me as she changed lanes into another car’s path on a roundabout. The other driver pulled over as if my daughter was driving an emergency vehicle with sirens blaring. I simply screamed as I saw myself going towards the other driver as if in a nightmarish bumper car ride.

But that wasn’t all! Yesterday she cut off a driver on the highway almost causing an accident. The elderly man drove past her wagging his finger at her violently. He must’ve been a nice man. Most drivers lay down on the horn screaming what I can only imagine are obscenities while shaking their middle finger at her.

Maybe if she goes one week without someone flipping her off, then I will schedule her appointment. Even if she passes her test, I will worry about her driving. It doesn’t help that a close friend’s daughter died in a car accident last year when she was 16. Having a new driver is one of the most horrifying steps of independence for a parent.

To make matters worse, Arabella has zero sense of direction. I have to give her directions to places that she has been to a million times.

She also knows everything about driving and doesn’t want to listen to my 30 years of experience. Even though I never got any tickets or was ever in an accident. I didn’t even hit a deer which is unheard of around here. I did run into a septic tank cap up north a couple weeks back that I didn’t see which caused some front end damage to my car. But we won’t talk about that today.

I wish I could help Arabella be a better driver. It’s really no wonder I feel anxious. Maybe things will get better…

Hurt again

I felt a burning fire rage within me today. I think it was the combination of a lot of different things that ignited the fiery red flame.

Yesterday I wrote in my book about one of my most painful early adult experiences. Previously in my writings, there seemed to be a separation between what I was saying and how I felt. There has been an insulation protecting me from the words. Yesterday it was removed and I felt angry.

My mom always told Matt that it wasn’t his fault he was violent. Sometimes she told him he was having a seizure after being exposed to loud music. Most of the time Matt was told that he was having an allergic reaction. It was an accident and not on purpose. The school told my mom that they wanted Matt to be told it was wrong when he hurt someone and to have consequences for his negative behavior.

That never happened. Six months later Matt got arrested at school for assaulting his teacher’s aide. She was pregnant at the time and it took 2 adults to get him off of her. Matt’s aide was my childhood best friend Shelly. I was the maid of honor in her wedding. We were best friends forever, or so I thought at the time.

When I got married, Shelly wasn’t invited to the wedding. I had to choose between my family and my best friend. My mom had the attitude of oh well you were growing apart anyway. But if we grew apart and the friendship ended it would’ve been my choice, but it wasn’t. It tore our whole friend group apart.

It was very painful to lose a best friend, all my close friends really because my brother attacked her.

I was rage cleaning this morning as a result.

I had to take a step back from running. My Boston marathon friend contacted me to go running again. We ran 8 miles together at breakneck speed. Then she told me that I really needed to work on hill training. I pushed it really, really hard and ended up hurting my ankle. Now just walking gives me pain.

Something else happened too. Someone I know told me the story of how her son recently fell asleep while driving and caused a fatal accident. After hearing her story, I started feeling anxiety driving again. It started by not sleeping well one night, then driving Arabella and her friends somewhere for her birthday. I started to worry that I would fall asleep and kill someone too. For the last couple of weeks, my driving anxiety has been back and I am worried that it is going to turn into full blown anxiety again. I worked so hard to get over it.

I have just been feeling angry and frustrated by the things I have experienced and the things I am experiencing. My son had some friends overnight and I waited until 1 PM to vacuum near them. I didn’t say one word to them but they seemed so terrified of my anger that they went from a dead sleep to packing up all of their stuff and leaving.

My son saw me rage cleaning and asked if he did something to make me so angry. I told him that it had nothing to do with him really. He pressed me for more details and I ended up telling him about my childhood for the first time. He is almost 19 and will know all about it when I publish my book anyway. We had a really nice conversation for almost 2 hours. In that time my anger dissipated.

I’m not sure what is going to happen, but I plan to keep writing no matter how hard it is or gets. Sometimes it is very hard to stir up my demons because I don’t know how I’m going to react. This has been my biggest obstacle so far, but I refuse to give up. After all, that is how I hurt my ankle. Sometimes I need to learn when it is time to ease up. That’s never been my strong suit.

It sounds kind of funny. Most people complain that they don’t have my determination, but all I want is the ability to relax and not be so hard on myself. So here I am, hurt again.