Not feeling well

To be honest with myself, I haven’t been feeling well for quite some time.

I noticed it several months ago when I transitioned from running on the treadmill inside to running outside again. I seemed more tired than usual. I didn’t have my regular stamina. Was it normal for my endurance to drop so drastically? I could run 6 miles without stopping relatively easily. Then I started needing walking breaks.

I chalked it up to aging. After all, I will be 45 in a few weeks.

Maybe I just wasn’t used to all the hills? Peri-menopause perhaps? Seasonal allergies? The cool rainy weather? Maybe it is normal to be sluggish at this age.

I doubt I could run a 50k with the shape I’m in today. I have two months to go until the race. How am I going to run further than I’ve ever run if I can’t even run 6 miles without stopping?

This week I had a physical with my new doctor. It didn’t go well. I complained about the fatigue. But what middle aged person is not tired? A couple nights a week I have insomnia, but it wasn’t anything new to me.

The doctor ran some extra tests. The results show that I am slightly anemic which does explain some of the symptoms I’ve been having.

But what really concerned the doctor was that I have been taking two Prilosec a day for GERD for several years without ever being scoped. She said that wasn’t normal for someone of my age and health. She asked several more questions, then said she would like me to get scoped and tested for Celiac which is an autoimmune disease. The only treatment of Celiac is a strict gluten free diet. I think 2 of my brothers already have undiagnosed Celiac.

I looked up Celiac when I got home. I have almost all of the symptoms and have had several of them since I was a child. I hope the doctor’s suspicion is wrong, but I think I see the writing on the wall. Even anemia is a symptom because Celiac prevents your body from absorbing nutrients. Otherwise it makes no sense since I am already taking a multi-vitamin with iron.

Today I bought donuts. I bought chicken patties to eat on big hamburger buns. I bought my favorite food, macaroni and cheese. I bought my very favorite craft beers. I am going to go to Arby’s to eat a big roast beef sandwich with mozzarella sticks on the side. I am starting to think of state fair cream puffs. I want to eat my favorite foods before I can never have them again. I almost started crying in the craft beer section.

I am feeling very down about this. I was told this was the best time in history to be gluten free. But that doesn’t make me feel any better at the thought of giving up my favorite foods and drinks forever.

I think it would be hard to even go grocery shopping. I don’t think I would want to go out to eat with friends and family. Forget parties. Maybe I won’t leave the house.

I need to stop taking Prilosec as well. I am down to one pill a day. I bought a big bottle of Tums and liquid antacid for the pain I will be in. It’s already started. This morning I felt nauseous. The acid burn in my throat is back, so is the burping.

But it will be good to have answers.

I have been feeling so tired, weak, and depressed lately. I have been having a hard time thinking. I am very organized and meticulously detail oriented. In the last couple weeks, I’ve forgotten things that were on my grocery shopping list. Today I went running and got lost on a trail I have been running for years. I can’t seem to keep a thought in my mind for long. I forget what I am going to say sometimes mid-sentence. That’s scary!

I am afraid.

I will have more answers soon and hopefully I’ll start feeling better. It just might not be the answer I want.

 

My life with a teen driver

I wonder if Arabella will ever get her license. She is 16 now, but I am hesitant to set up her driving test appointment because I don’t think she will pass.

My life is in danger. Just yesterday, she blew through a stop sign. She almost ran a red light. I had to yell at her to stop. Generally a relatively patient person, I screamed an obscenity as I watched my life pass before me as she changed lanes into another car’s path on a roundabout. The other driver pulled over as if my daughter was driving an emergency vehicle with sirens blaring. I simply screamed as I saw myself going towards the other driver as if in a nightmarish bumper car ride.

But that wasn’t all! Yesterday she cut off a driver on the highway almost causing an accident. The elderly man drove past her wagging his finger at her violently. He must’ve been a nice man. Most drivers lay down on the horn screaming what I can only imagine are obscenities while shaking their middle finger at her.

Maybe if she goes one week without someone flipping her off, then I will schedule her appointment. Even if she passes her test, I will worry about her driving. It doesn’t help that a close friend’s daughter died in a car accident last year when she was 16. Having a new driver is one of the most horrifying steps of independence for a parent.

To make matters worse, Arabella has zero sense of direction. I have to give her directions to places that she has been to a million times.

She also knows everything about driving and doesn’t want to listen to my 30 years of experience. Even though I never got any tickets or was ever in an accident. I didn’t even hit a deer which is unheard of around here. I did run into a septic tank cap up north a couple weeks back that I didn’t see which caused some front end damage to my car. But we won’t talk about that today.

I wish I could help Arabella be a better driver. It’s really no wonder I feel anxious. Maybe things will get better…

Hurt again

I felt a burning fire rage within me today. I think it was the combination of a lot of different things that ignited the fiery red flame.

Yesterday I wrote in my book about one of my most painful early adult experiences. Previously in my writings, there seemed to be a separation between what I was saying and how I felt. There has been an insulation protecting me from the words. Yesterday it was removed and I felt angry.

My mom always told Matt that it wasn’t his fault he was violent. Sometimes she told him he was having a seizure after being exposed to loud music. Most of the time Matt was told that he was having an allergic reaction. It was an accident and not on purpose. The school told my mom that they wanted Matt to be told it was wrong when he hurt someone and to have consequences for his negative behavior.

That never happened. Six months later Matt got arrested at school for assaulting his teacher’s aide. She was pregnant at the time and it took 2 adults to get him off of her. Matt’s aide was my childhood best friend Shelly. I was the maid of honor in her wedding. We were best friends forever, or so I thought at the time.

When I got married, Shelly wasn’t invited to the wedding. I had to choose between my family and my best friend. My mom had the attitude of oh well you were growing apart anyway. But if we grew apart and the friendship ended it would’ve been my choice, but it wasn’t. It tore our whole friend group apart.

It was very painful to lose a best friend, all my close friends really because my brother attacked her.

I was rage cleaning this morning as a result.

I had to take a step back from running. My Boston marathon friend contacted me to go running again. We ran 8 miles together at breakneck speed. Then she told me that I really needed to work on hill training. I pushed it really, really hard and ended up hurting my ankle. Now just walking gives me pain.

Something else happened too. Someone I know told me the story of how her son recently fell asleep while driving and caused a fatal accident. After hearing her story, I started feeling anxiety driving again. It started by not sleeping well one night, then driving Arabella and her friends somewhere for her birthday. I started to worry that I would fall asleep and kill someone too. For the last couple of weeks, my driving anxiety has been back and I am worried that it is going to turn into full blown anxiety again. I worked so hard to get over it.

I have just been feeling angry and frustrated by the things I have experienced and the things I am experiencing. My son had some friends overnight and I waited until 1 PM to vacuum near them. I didn’t say one word to them but they seemed so terrified of my anger that they went from a dead sleep to packing up all of their stuff and leaving.

My son saw me rage cleaning and asked if he did something to make me so angry. I told him that it had nothing to do with him really. He pressed me for more details and I ended up telling him about my childhood for the first time. He is almost 19 and will know all about it when I publish my book anyway. We had a really nice conversation for almost 2 hours. In that time my anger dissipated.

I’m not sure what is going to happen, but I plan to keep writing no matter how hard it is or gets. Sometimes it is very hard to stir up my demons because I don’t know how I’m going to react. This has been my biggest obstacle so far, but I refuse to give up. After all, that is how I hurt my ankle. Sometimes I need to learn when it is time to ease up. That’s never been my strong suit.

It sounds kind of funny. Most people complain that they don’t have my determination, but all I want is the ability to relax and not be so hard on myself. So here I am, hurt again.

Hoarders and clean freaks

This past weekend my mom came over to help me weed. I didn’t ask for help, she just saw the need.

It got me to thinking about something that I couldn’t place which was bothering me. There was an in-congruence in my thought patterns. My mom is one of the hardest workers I know. Yet she has one of the messiest houses I’ve ever seen. How conflicting the thought was in my mind. I always thought that hoarders were lazy. But are they?

My parents are the biggest hoarders of magazines and papers. They still have a phone book from the 1970’s from a different city that they lived in out of state. They have stacks and stacks of papers that litter the living room floor and all available counter spaces.

My parents kept almost all of their clothing since they got married. Their closets are full of old clothes and jackets. It comes in handy for me when I am going to a costume party.

My mom hoards food. Her cupboards are stocked full of canned goods. All of her refrigerators and freezers (they have several) are full. The refrigerators always smell like rotten food. It is very important to check the dates on items before you eat them. The freshest foods are in the grocery bags that line the dining room floor.

Thankfully for me, my mom kept every school and personal journal documenting Matt’s life in great detail. It has been very helpful for me in writing my book. I don’t think that I could be writing as powerful and moving of a story without her help.

Their hoarding always suffocated me. It was hard to clean the house. The counters were so full of stuff that there was no place to move anything in order to clean it. Then you just put the items back on the cleaned areas. I always felt like I was emptying the ocean a tablespoon at a time. It stirred within me feelings of hopelessness.

My brothers and I are not hoarders. It bothers me when things are cluttered. It fills me with despair. The strange thing is that my parents feel the opposite way. It causes my mother emotional pain to get rid of things. My mom threw out my brother’s baby blanket when he was in his 30’s. She cried and lamented about it for days even though my brother didn’t want it. She tries to get rid of things but it is very upsetting to her.

Sometimes my mom will clean out the cupboards and closets. Instead of throwing things away, she gives them to me. Recently she gave me a bag of my dad’s old worn out socks. It is a little easier for her to give things away then to throw them away even though she must know that is what I will be doing with it.

It is hard for me to understand how my mom’s feeling are tied up in useless things.

It must be very hard for my mom to see her house in the shape that it’s in. She is embarrassed to have anyone over. I wish I could understand. Yet I am glad I do not.

I feel guilty for my mom’s help around my house when she needs it more than I do. It’s overwhelming to try to help her. I would just come in and start throwing things away and she couldn’t handle that. I know, I’ve tried. I feel like my hands are tied. But I know that my brothers and I are going to end up throwing most of the stuff away or getting rid of it someday.

I need to be careful in my own life so I don’t end up on the opposite spectrum. I have a tendency to be a clean freak. Dirt and clutter stresses me out. I want everything to be clean, neat, and organized. But I try not to let it control me.

I also have relatives that are clean freaks. We once went camping with my Aunt Jan. It stormed out and we ended up huddling in my aunt’s garage freezing because we were too dirty to be allowed into her house. I also have an uncle that would host parties and follow his guests around with a vacuum cleaner. I’ve also witnessed him on his hands and knees scrubbing the bathroom floor while guests were over.

I don’t think people at either extreme seem happy. I tolerate uncleanliness when guests are over. But it’s also kind of funny that I picked this topic to write about as I am freaking out about cleaning my house and weeding everything this week to have a perfect house for my son’s graduation party.

But since I grew up in a house of clutter and hoarding, I realize if people really care about me then they are willing to overlook some slight imperfections.

My son’s graduation

It happened on a rare perfect day in Wisconsin. The temperature 75 degrees with a light breeze under partly sunny skies. No rain, no muggy humidity.

I’m not sure why we felt so stressed out that morning as my husband and I snapped at each other. Maybe the perfect conditions was a sure sign to be cautious that something might go wrong.

Last minute Alex couldn’t find dress pants that fit and had to borrow a pair of Paul’s. I was worried that he would be late for school one last time.

We sat with family on the bleachers in the gym. I tried to keep an open mind, yet inwardly I judged.

Did the people in front of us manage to have some of the few empty seats because they purposely didn’t shower? I ended up sitting behind them because no one else could stand the smell.

Then there was the mother with the ripped jeans and crop top like she was attending her daughter’s graduation from pole dancing school. I was appalled. I am not big on fashion, but made sure to buy myself a new dress. There are some things that one must simply look respectable for.

There was the child that sat behind us with an incessant whine.

Well at least they were there showing their support which is more than my dad did. He decided not to attend.

I’m not going to lie to you. I was filled with anxiety.

I was worried all week that I would get that knock on my door with a certified letter stating that my son did not meet the requirements to graduate. I imagined myself full of shame as I explained why my son’s name wasn’t called at the graduation ceremony when people came bearing gifts at his graduation party. But I emptied that anxiety just to fill it with more.

I had irrational fear that my son would end up punching someone instead of shaking their hand as he received his diploma. I still thought that maybe he wouldn’t graduate as he received his diploma. There was a part of me that was very unsettled. I felt fear that there could be a school shooting during the graduation. Sadly, I no longer feel safe in large crowds of people.

I saw my son’s friends come in that attended another school. Included in the group was the boy we took into our home that stole from us. I felt uncomfortable.

My brother Luke asked my daughter’s boyfriend Dan if he was having flashbacks of his own graduation there. He said, “Yeah, more like PTSD”.

The graduation ceremony was boring. It was hard to see, the nearby projector didn’t work and the microphone kept cutting out if the speaker didn’t have their mouth right on the microphone.

The guest speaker was a doctor of neurophysics. She showed pictures of herself and spoke of all of her amazing accomplishments in a monotone voice. I thought to myself that I needed to get out of all graduation ceremonies I can in the future.

After the ceremony was done, I felt very happy and giddy. I was ready to go out and pop champagne in the school parking lot. Would that be against the law? Never mind, I didn’t have any champagne. I hugged boy B’s mom. We did it! We convinced our boys that hated school to graduate. I can’t quite explain the feeling. I felt like I almost got hit by a bus, but at the last second got away. That feeling of just escaping disaster. My son was also the happiest I’ve seen him in a long time.

Afterwards, we had family over at our house. It was so nice that we were able to play games outside and sit on the patio with a fire.

All in all, it was a wonderful day. We are happy that our son graduated. I can’t tell you how relieved I am.

 

 

Being in a better place

I met with my therapist this week.

She asked me what I thought about living in my old house. I told her that my old house wasn’t anything special but it suited the purpose at the time.

She then asked me what it was like living in my dream house. Did it change me at all? Do I feel like I am a ‘softer’ person? Did I give up some of my determination?

I said that I don’t think I changed at all.

To this she responded, what if you were a healthier person inside? Do you really think that it is going to change you for the worse?

She trapped me in my own thinking.

Maybe I could have inner peace without giving up some of the grit that survival awarded me with.

I did what I had to do in order to survive. But now I am stuck because I know no other way. It suited its purpose at the time, but I no longer need to live there.

Why am I so fearful of being in a better place?

 

 

Write, right?

It’s been a busy week and I haven’t really felt like writing.

Most of the time I have no qualms about throwing it out there. But for some reason this week I’ve felt impersonal. I want to keep my distance and my thoughts to myself. I worry that I’ve already shared too much.

I feel frustrated. My thoughts are fluctuating about my writing. One day I have great confidence. My book will be a bestseller and I can’t wait to chronicle my descent into despair. The next day I want to walk away from it all and not open myself up to be vulnerable to the world.

I don’t think I’ve ever read a book that has been as personal as mine is going to be.

Word has gotten around that I am writing a book. I got a call from a publisher this week. She wants to meet for coffee to discuss my book. She said that memoirs are flying off the shelves right now. She wants me to send her a sample of my book. I am thinking about turning her down, but I am not sure if that is a smart idea. She is a small publisher that mainly publishes works of fiction.

I am not ready to deal with this yet. I want to take my time and write a great book before I worry about finding a publisher. Then I feel bad because I have some good friends who wrote great fiction books and haven’t been able to find a publisher.

The end of the summer, I will be public speaking about being a sibling with an autistic brother. My contact said that once I have my book written, she had someone interested in publishing. I would prefer to publish my book in the mental health memoir genre. Now I will need to reach out and contact them to see what my options are. It is all very confusing as a first time author.

All I want to do is write my book and not worry about anything else right now. The publisher said that if I finish writing a book, I will find myself in the 1% of the population who has. That is rather exciting, but I have no interest in being an author.

I just want to write my book. I’m not sure what I’m going to do after that. I can see myself doing public speaking and being an advocate for families, especially siblings, of the disabled. But I haven’t even done my first public speaking stint yet. Maybe I won’t like it. Maybe I won’t be good at it. The thought of public speaking about something this personal is starting to fill me with anxiety.

I’m not sure where this path is going to lead me and I am filled with doubt. But I think I need to keep writing.

Write, right?

BAD (Battling Anxiety & Depression)

I’m always in a battle with anxiety and depression.

Anxiety is what wakes me up in the middle of the night.

Depression is what makes me feel tired all day.

Anxiety is my all.

Depression is my nothing.

Anxiety is gales of nervous laughter.

Depression is a hurricane of endless teardrops.

Anxiety makes me care too much.

Depression makes me not care at all.

Anxiety fears death.

Depression cheers on self-destruction.

Anxiety worries about the future.

Depression agonizes over the past.

Anxiety overthinks.

Depression can’t concentrate at all.

Anxiety overachieves.

Depression labels me worthless.

The battle rages within.

Hopefully someday I will win.

Can you fix me?

I have been having a debate with myself forever over what is coincidence and what is meant to be. Do things happen for a reason or is there no rhyme or reason?

When we bought our house almost a year ago, we had some problems with the dryer. It was taking forever for the clothes to dry. I really didn’t notice it after awhile. But then other things started to break. The fan went out in our refrigerator. The dishwasher started to leak. I needed to get someone out to the house to fix these problems. While the guy was here, he might as well check the dryer.

I started to time how long it took to dry clothes. Three hours for a big load! I knew it was long but I didn’t realize it was that long. Maybe I just needed a new dryer?

The guy came out and pulled tons of lint out of the machine. It was backed up into the vent inside of the house. Big time fire hazard that I wasn’t even thinking about fixing until other things started to break.

Why did I ignore the biggest problem that needed fixing?

I think that I ignored it because it was still working, however dangerously and inefficiently. It only became a problem for me when something else wasn’t working at all.

This past week I went to see the counselor alone for the first time. I never would have set up an appointment by myself for myself. My husband insisted on talking to someone when we were having problems with our son. Now our son is doing so much better and here I am going to the counselor talking about myself.

I asked the counselor if she could fix me. She said that she could not, but I can. How come I ignored this for so long? I want to fix everyone else, but don’t want to work on the broken parts of myself.

I think the way I’ve been living my life has been working, although at times not very well.

The counselor asked me what are three things I wanted to keep the same about myself:

  1. My grit/determination
  2. Honesty
  3. Continue seeking self-reflection/growth

Then she asked me what are three things I want to change:

  1. Worry less/relax more
  2. Healing
  3. Be at peace

When discussing these goals, I realized that I was afraid. Part of me wants to stay the way I am. The demons I know aren’t as scary as the unknown. My anxiety and inability to relax has given me great determination as a runner. My depression and quest for full healing and making peace with the past is what I attribute to my honest self-reflection as a writer.

If I am able to change the things that I perceive to be negative in my life, will I still be able to keep the positive outcomes that was ignited by my pain?

Will I still have grit if I have nothing to run from? Will I still be able to write if I was totally happy with my life? Would it be worth giving up some of my grit in order to be at peace or relax more?

Would I even be me anymore? It was very confusing.

Some of the negative things in my life I turned into blessings. If I get rid of the bad, would I purge the good that came out of it as well?

Do I have to give up the good things I have to get the good things I want?

I guess the big question I can ask myself is why I didn’t do anything about the major problems until something else wasn’t working?

Why didn’t I start writing my book until I lost my job?

Why didn’t I ask for help until my house was almost on fire?

I was so upset when I lost my job, when my son was acting up, and when several appliances stopped working. But I now believe that God used these things for my own good to spur me into action that I needed to take. Maybe I am wrong, but I can’t believe that any of these things have been a coincidence.

 

 

 

Cycles of life

I’m at the period in my life when I’m feeling the most hormonal.

It’s crazy like the very beginning, without the excitement of what is yet to come.

I’m getting older, midlife.

Hot flashes.

My body aches.

My skin itches.

My stomach bloats.

I feel ugly and fat.

My clothes don’t fit right.

Lights seem glaringly brighter.

Sounds normally tolerated scratch like nails on a chalkboard.

I feel irritated and angry.

Like PMS on steroids.

What sounds like my normal voice to me comes across as an attack to them.

They ask why I’m being so rude.

But I respond in my regular tone.

What do you mean?

I cry at the slightest provocation.

My eyes are red and puffy wrapped in dark circles.

I want to be left alone, yet I don’t.

Mood swings.

Laughter mixed with tears of sorrow.

Anxiety kicks in, marching in double time.

I am exhausted.

I can’t sleep.

I stare at the clock.

Is it too early to get up?

When sleep finally comes, I wake up soaking wet.

He is cold, but the room is on fire.

I feel hot, not in a good way.

I feel stinky, gritty, grimy, and gross.

My body seems to have forgotten how to regulate itself right.

I want to wish time away so this will be over.

But I don’t have extra time to spare.

I know in a few days I’ll feel better.

Then the whole cycle starts again.