Autism

Switching gears

/ Outrunning my demons / 2 Comments

As we speak, my daughter is on her way back to college. This is the first time that she doesn’t want to go back. It is because we are cool and all that. Seriously though, it is amazing having a child that wants to hang out with you versus having one that finds you annoying. She is finally able to see us as we really are.

To tell you the truth, I think parenting is a sham. We try to act like someone else around our children. We want them to be better than us. Part of the way we do that is try to hide our weaknesses and mistakes from our children. We nag our teens about being responsible and cleaning their rooms when we were back talking brats that lived in a pig sty like they do. Then suddenly they become adults. For better or worse, the blinders come off. We realize that our child has become a friend because she is really just like us.

We don’t have to lie to her anymore. We don’t have to tell elaborate stories about the tooth fairy, Easter bunny, or Santa. We don’t have to show fake excitement for stupid children’s songs or TV shows. When Angel was little, she was really into Barney. I sure am glad that is over now. If I had to listen to another song about cooperation and sharing from a purple dinosaur while my kids sat in front of the TV and fought, I would probably lose it.

Now we can have fun together and have serious conversations.

There were a lot of last minute dinner dates and shopping to send Angel back off to college.

On Friday, Angel and I went out to eat with my mom for lunch. We went to a local restaurant that wasn’t too busy and what did they do?? They set us up at a table next to and facing a couple with their adult disabled son. The couple was trying hard to get their son to act appropriately. He got up several times and burped loudly. Can I never escape reminders of my own brother??

My mom said that she really wants me to write a book with her. I also feel the mission that I have a story to tell.

I actually have two stories to tell…

The first story is about my brother Matt…growing up with a violent autistic/schizophrenic sibling. I have just touched the tip of the iceberg. There is so much hidden underneath the surface that I haven’t even begun to delve into yet.

But I can only tell the story in small pieces. There is a sadness, melancholy, depression that is hard to explain after diving into the depths. If I spend too much time there, I will surely drown.

I am a broken person, despite my tough exterior. Only a few people truly realize that. You are one of the few people I let inside. Paul notices so many things that others overlook. He understands. We are both high functioning broken people. Silently we weep together. Together we succeed at fighting our demons.

It is hard to find someone on the same level who has survived difficult circumstances. I’m thankful that we found each other.

The second story I was meant to tell is about Paul. So I am going to switch gears a little bit here…but trust me if you can…it will be well worth the ride.

Emerging from the ashes

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I am angry.

I am angry with my mother.

I am angry with Matt.

I am angry about my childhood.

I am angry.

There I said it.

It was difficult to admit and hard to post yesterday about feelings of anger. I must have edited the post a million times as the minutes slipped away. I cut and hacked the angry words away. I almost scrapped the post altogether. I thought about deleting it after I posted it.

Anger…I was taught that it was wrong to feel that way.

You shouldn’t feel angry, it agitates Matt.

You shouldn’t feel angry, he can’t help it.

You shouldn’t feel angry, you are normal.

You shouldn’t feel ANGRY!

You shouldn’t feel angry…

You shouldn’t feel…

I didn’t feel…I stopped feeling. I was numb inside. I could no longer feel pain, but could no longer feel joy. I was empty inside. I became devoid of color. I lived in a cold, barren desert. No more tears, no more laughter. I could stare at the same spot on the wall for hours. I was sinking inside of myself.

My mom sent me to a therapist.

How do you feel, Alissa? I don’t feel.

Yes, you do. Take a look at the feelings chart. I don’t know.

Over time I started to feel again. But the feelings right away weren’t good. I felt everything that I wasn’t trying to feel before. It was a dark place. I was afraid that I wouldn’t make it through to the faint light in the distance. Sometimes the empty void called me back. You don’t want to feel if you have to feel like that.

It was a long journey to get to the place I am now.

I had to lock away the demons that tore at my soul. But I still kept the key.

Sometimes, in the dark of night, the flame from the fire that burns through the keyhole draws me in. I’m curious if I can stoke the fire without getting burned. I keep looking in. I pick at old wounds to see if they still hurt. The scars are starting to fade.

I’m holding the key. I feel strong enough now to slowly unlock the door…

I think the person that emerges from the ashes will make walking through the fire worthwhile.

 

 

On ffffffeeling angry

/ Outrunning my demons / 7 Comments

My mom called me first thing Monday morning. She told me that she wanted to work on her feelings of anger. She thought it would be a good idea if I did too. Maybe, she said, I should think about seeing a therapist.

She point blank asked me if I was angry with her. No, mom. She asked me if I would tell her if I was angry with her. Sure, mom.

My mom asked if I was angry that my autistic brother Matt hurt my daughter Angel. Mom, that happened over 15 years ago.

My mom asked if I was angry that she spent/spends more time with Matt than she did with me. Mom, Matt needs you more than I do.

Right now I spend my time angry about other things. Arabella is starting to get late assignments. Her straight A’s are starting to slip…Not to mention that she rolls out of bed 10 minutes before the bus comes and expects to have enough time to take a shower and get ready. And somehow that ends up being my fault.

I am angry that I got a letter from the police department regarding a fine my son received over break for doing donuts in a parking lot…a minor incident nonetheless, but we didn’t find out until we got a letter in the mail. We told him that he had to pay his own fine to find out later in the week that he pissed away most of his hard earned money from his summer job on fast food.

This is what boils my blood now.

But I don’t tell my mother that. I barely talk to her at all about anything personal anymore. I don’t tell her about the things that make me angry. I want to protect her from that. She has had a hard life. She shouldn’t have to deal with any more problems during her last years.

To tell you the truth, sometimes I am angry with my mom. I am angry that I gave up my childhood to take care of my brother. Then when I needed her the most, I felt like she wasn’t there.

My mom did the best that she could. So why should I feel angry?

So what if she babies and spends more time with my disabled brother?? He needs her more.

Why do I feel anger towards my mother sometimes for something she had little control over??

The more important question is why don’t I feel anger towards my dad?? He had an ideal childhood, but wasn’t a good parent. He was lazy. My mom worked long hours to be the main breadwinner. She supported the family. My dad worked part-time jobs here and there.

My dad stuck around but wasn’t there. He was more interested in TV than being an active father or supportive husband. When he was involved, he was reactive and abusive.

My mom did everything and needed help. So I stepped up to the plate to help my mom raise my 3 younger brothers.

That being said, why should I feel angry towards my mom?? Why not my dad? She did the best she could. He could’ve done so much better.

How come feelings don’t make any sense?? There really is no logic behind them. They are so complex that I barely understand my own feelings much less the feelings of others.

No, mother, I am not angry…says my mind…but on some days my heart tells me differently. Why??

Past presents

/ Outrunning my demons / 5 Comments

I think it was my aunt’s mission to get me drunk at the family Christmas party.

Alcohol…it has a way of bringing me to life. It makes me feel emotions that are otherwise stuffed away. I answer questions less guarded. Sometimes not only do I then like people, but I become the life of the party.

I was cornered. Have a glass of wine. Once it is emptied, it was refilled by another. Normally I might have told her to piss off (but probably in kinder words)…I am in control of my body and how much I choose to drink. But for some reason, I didn’t care. My aunt through marriage is a very eccentric person and I am drawn to her because she is exciting.

After a few drinks, my aunt started talking about her college days. Apparently she was in a sorority and could drink most people under the table. She started asking questions about my college days as she refilled my glass yet again.

What I told her was that I spent a majority of my college years taking care of my special needs brother. I told her that my mother needed my help so I stepped up to the plate.

What I didn’t tell her was that I only applied to one college, the one closest to home. I didn’t tell her that I never went to one party when I was in college. I didn’t tell her that my mom had a hard time keeping minimum wage caregivers for Matt because he was violent towards them. I didn’t tell her that Saturday night was shower night for Matt, not party night for me. This was the night I bathed him like a small child, not like a slightly younger brother.

My aunt told me I was gypped. Why didn’t my mother put Matt in a group home sooner so I could have a somewhat normal life?? She told me that she saw all these things happening to me but there was nothing that she could do about it.

Her words brought tears to my eyes that threatened to drop. I didn’t want her pity. I told her it made me a better person. That is just the type of bull I say to make people stop seeing me as a victim. I view myself as a strong person, not in any way am I weak or to be ever portrayed as such even though I once was. This is the protective shell I cover my hidden vulnerability with.

Has it made me a better person?? In all honesty, probably not. I don’t believe that I would’ve been a ‘bad’ person if I went to a keg party instead of staying home on a Saturday might to bathe my brother.

Usually I just keep my mouth shut about topics that could lead to conversations about my childhood. I don’t like people picking at my scabs. I feel very hurt that I was robbed of a childhood. It has been a great weakness for me as a parent. I’ve spoiled my children by giving them the childhood I never had. Deep down inside I feel hurt, anger, and resentment towards my mother for taking that away from me. I feel guilty because I know that my mother did not want it to be that way.

I am living the best years of my life right now, but I can’t seem to escape the constant reminders of a painful past.

Grandma’s rocking chair

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My eye hurts really bad. It feels like it is on fire as the tears roll down my face.

Matt is screaming again. He poked me in the eye on purpose. We are both screaming now.

I told Grandma that I hate Matt.

She didn’t tell me that I should feel lucky that I am normal. Nor did she say that I shouldn’t be upset since Matt can’t help it. She didn’t tell me that Matt has it harder either. Those were the things that Mommy and Aunt Grace said.

She didn’t push me away to comfort Matt.

Instead, Grandma picked me up and rocked me in her gentle arms. She sang me beautiful songs until my tears dried and I fell asleep.

Run off

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Today I had my first run after taking a week off. I ran 5 miles wearing an ankle brace. It wasn’t totally pain free, but it was feeling better than before. At this time, I decided to keep my leg in watch mode. I hate being in watch and see what happens mode. I want answers. I want solutions. I hate uncertainty.

I was doing some reading online about stress fractures. It said that women in their 40’s were more likely to get stress fractures from running due to brittle bones. Milk was a rarity in our house growing up, so I do worry about it.

Over the week I’ve had off of running, I could feel my mood plummet. There was one morning I woke up crying. I’ve wanted to withdraw from people and write my stories. I seem to feel the need to tell you the dreary and sad stories. But I don’t want to make you feel sad when reading them. It is a conundrum.

I’ve also felt edgy and irritable at times. I have to work extra hard to make sure my filter is on before I speak.

I got into arguments with my kids this morning which is unusual. I think it was justified.

I got into Arabella’s case for getting up 5 minutes before the bus came to pick her up. She didn’t even have time to take a shower.

I got into an argument with Alex too. Arabella and Alex are staying after school for after school activities. I asked Alex to bring Arabella home. He said that he didn’t want to wait for her since his activity let out before hers did. Now I have to pick her up.

I don’t ask a lot from my kids. But when I do ask, I expect them to do it. I usually don’t give them chores over the school year like I do in the summer. I feel very conflicted about this.

As children, my brothers and I had a long list of chores. At first, I worked outside with my brothers until I almost hurt myself carrying a really huge log to impress my parents. After that, I was no longer allowed to do outdoor work. As soon as I was tall enough to reach the clothes line, I was in charge of the family laundry. I also had to help my mother make meals…grating carrots, washing and cutting vegetables..simple boring stuff, and I was in charge of cleaning the kitchen.

There is a part of me that wants my kids to be children. I want them to have something I didn’t have, a childhood. There will be enough to do around the house when they are adults. They will figure it out.

Plus I am always fighting myself with wanting things to be done right. No one else knows how to do things right like I do. I really don’t know why I need to feel some sort of control over things that probably don’t matter. Who cares if the towels are folded wrong?? Or if the Teflon pan ends up in the dishwasher?? Apparently I do!

All I ask of my children is to keep a clean room and pick up after themselves a little. This is certainly not done up to my standards.

When I do ask for help, I expect a gracious response. Of course, I will help you mother. After all, I pay for my son’s gas for the car I bought for him to use. Although that may be coming to an end soon.

I tried to give my children everything I didn’t have and probably ended up spoiling them.

My son also said unkind words about his sister. He is now going out with a popular girl. He does not want to be seen with his unpopular sister. He said that he didn’t want to do her any favors, but I told him that it would be me he was helping. I have no sympathy for his embarrassment.

When I was his age, my brother was exposing himself to my friends. He also attacked my best friend which basically resulted in the end of our friendship.

What did you say about being embarrassed by your sister again?? Maybe I’ll throw that one in his face during our next argument.

I really need to get back into running hard core. I am starting to feel the bat $#!+ crazy coming on….!

 

 

Narcissistic worry

/ Outrunning my demons / 6 Comments

Last week I read a wonderful post about narcissism. Then I got to worrying…Oh my, am I a narcissist??

Growing up my life revolved around my autistic brother Matt. It was all about Matt…Matt…MATT all of the time. I wanted it to be all about me. ME! ME! ME!
Aren’t I great??

I was on my own for a very short period of time. I graduated from college, got married 2 months later, and got pregnant 2 months after that. I have been a mother since my mid-20’s.

Right after I was out of my parents house (taking care of my brother)…I ended up having three children. Since then it has been pregnancy, having C-sections, breastfeeding, diapers, sick kids, lost teeth, sibling warfare, birthday parties, braces…to today where I have 3 teenagers. My life involves taxiing my kids around, dealing with difficult issues such as sex, drugs, and lets throw rock and roll in there too. Why not?? I have to deal with underage drinking, bad grades, messy rooms, rebellious attitudes…all the normal issues of dealing with teenagers…plus cooking, cleaning, and laundry.

I secretly fantasize about being an empty nester. I want it to be all about me. I don’t want to have to worry about anyone else…I don’t even want to have to take care of pets anymore. I am sick of having to get a pet sitter every time we want to leave. I hate it when the pets bring fleas into my house…or when the dog gets into the garbage…or puke on the carpet…the constant crying for food the minute I wake up in the morning or right when I get home from work…the poop on the floor right outside of the litter box.

Last month my brother Luke and his family lost their family dog. The were heartbroken at the death of a member of their family. Last week they got a new puppy. I feel guilty for not wanting any responsibilities. I will gladly take care of the pets I have until they are gone…but after that…I don’t even want a fish!

I am also a completely vain person. I envision myself always looking great in a bikini while I gaze at my reflection in the pool. I want to tell my classmates that I was carded this year. I am getting younger while my classmates are so old and weathered that I don’t recognize them anymore. I couldn’t possibly look as old as they do, right??

I also have Mary Poppins syndrome. I think that I am practically perfect in every way. I never admit to having any faults. I strive for perfection.

On a side note**I wouldn’t recommend making deviled eggs for Thanksgiving if you are a perfectionist! Grrrr..

As a child I was punished for making mistakes. One bad grade in elementary school and all of my dolls were taken away for a semester. I was so afraid of making mistakes and not being good enough.

Sometimes I think that harshest judges have been most harshly judged.

I’m working on it, okay?

Yesterday I just realized that my criticism and annoyance with others could be viewed as annoying..

As I sit here gazing in self reflection…I realize that I am probably not a narcissist. I just need a little responsibility free time to myself. I love my family and pets, but sometimes taking care of them all the time can be overwhelming. In a few years I probably won’t know what to do with all of the ‘me’ time.

I figure if I am so worried about being a narcissist, that I am probably not one. Narcissists don’t worry that they are narcissists…Do they?? No, just anxious people worry…Boy, do I feel better..

To think…for a few minutes I thought it was all about me!

Annoying annoyances

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Today I got annoyed with myself for being so easily annoyed.

I am very hypersensitive. Other people in my family have the same traits. My autistic brother has this to the extreme.

I have extremely good hearing. When people told me that cranking my radio would make me hard of hearing, they lied. I think I will be like my aunt Grace. She couldn’t see a damn thing, but she could hear a pin drop. When I was her caregiver at the end, the noise of having my family around would bother her. She demanded the silence that a young family could not give.

I understand now. I practically wake up during the night when I hear my neighbors down the road fart. Seriously, how annoying is that?? I can hear conversations across the room. I am so distracted by the noise of someone chewing that I have a hard time focusing on what they are saying. I make faces like I am disgusted with them for chewing because I am. I hear noise frequencies that only teenagers and small children are supposed to hear. It drives me insane!

It doesn’t end there…I am also hypersensitive to bright lights. I prefer a dark house. Bright lights in the morning slice through my eyes causing my eyes to squint and water.

I am hypersensitive to touch. I feel the tags scratching my skin. I can feel the slightest mosquito touch. Touch is generally uncomfortable. Aunt Grace was like that too. She didn’t even like the touch of animals.

I am hypersensitive to textures. I will not eat coconut although I like the flavor. Forget mushrooms, onions, and shrimp.

I find it annoying to be annoyed all of the time. It really makes it hard to have relationships with other people. Everything is okay if people don’t touch me or make any noise. Maybe that is why I enjoy my blogging friends so much..

I am thankful I already lost my mind..

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Things have been crazy busy around here. I have been running around like a chicken with its head cut off. Or should I say turkey? Would that be more seasonal?

I am getting ready to have Thanksgiving at my house.

Tomorrow Angel is coming home from college. This has been the first time she has been home since August.

The guys just got back from deer hunting. My son Alex shot his first deer. He also played a trick on me. I asked him to send me a picture of his buck and he sent me a picture of a Bambi. Horrible thing to do. Then he told me it was too little to keep. He said he was going to throw it into the woods for the wolves. I was mortified.

He was just kidding. He found a picture of a Bambi online. Real funny! Not…He has my awful sense of humor…Oh deer..

I knew that they would get a deer because last month we got a quarter cow and this week we are getting a half a pig. The freezer is full…so of course the guys wouldn’t come home empty handed.

Alex wants his new girlfriend to come over for Thanksgiving. I feel like it is too soon since he just broke things off with Baylee. I wanted some explanation to why they broke up. Alex told me that Baylee was fake. He said that she was lying to us the whole time. He asked me if I really believed that Baylee didn’t drink at the underage drinking party at the cabin. She portrayed herself as a reluctant party goer…almost like a mother hen…or a nun. Paul and I wanted Alex to pay her share of the party damage fees. All this time he was covering for her lies..

The new girlfriend looks a little like Baylee…so the family we haven’t seen in months might think it is her..

Paul’s step-dad, Darryl, will be here. This year his wife passed away. Lately Darryl has become obsessed with online dating.

My uncle Rick will be in attendance as well. He is newly divorced for the holidays and has nowhere to go. On a side note, uncle Rick and his ex go to the same gym as I do…I have to budget an extra 20 minutes into my workout now to listen to them bitch about each other..

Then my mom will be here…my brother Matt…my brother Luke and his family. My antisocial dad will stay home and my brother Mark is not coming. This will be the first time that Matt is around Luke’s girls since he went off of his anti-psychotic meds and wanted to kill them.

Thanksgiving will be the test to see if Matt will be okay around Luke’s daughters again. I think things will be okay. His hallucinations are gone and so is his fixation with the girls since he is medicated again. We have been dealing with this for so many decades now, but it doesn’t make things easier.

So, I will be hosting Thanksgiving at my house.

Last month I had my daughter Arabella’s confirmation at my house.

Next month I will be hosting Christmas and New Year’s. Time to buy a bigger house if I have to do all of this party hosting..We are crammed in this cracker box house tighter than ten boxes of stuffing in a small turkey..

If you don’t hear from me for a few days…I am cleaning, I am cooking, I am party hosting…

Hopefully I am not prying my brother Matt off of my nieces, explaining how Alex’s girlfriend is not Baylee although she looks like her, wiping away tears for the first holiday without my MIL Martha, talking with Darryl for hours about online dating, or commiserating with Rick on how much his ex sucks..

Oh, did I mention that almost everyone has a special diet??

Have a happy Thanksgiving! Gotta love my crazy family! Thank God I already lost my mind or I wouldn’t be able to deal with all of this!! There is never a dull moment.

Maybe you are lucky to have a prim and proper boring family. That was never my lot in life…

You will hear from me in a few days, unless I have the nervous breakdown I so rightly deserve…or maybe a midlife crisis…I just can’t decide!

 

The nursery

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A few days ago, I posted about trees. Sounds boring, I know. Sometimes I have an idea that scratches around my mind that I want to write about that leads to more ideas, and yet more until it takes root.

Today I am going to write about trees again and family roots.

I just want to be upfront with you right away…I do not have a green thumb. I’ve killed every house plant that I’ve ever had. Once I got a chia pet for Christmas. I ended up regifting it because it was too much pressure.

My grandpa had a nursery located on the edge of my parents property when I was growing up. Most of the trees in the photos that I posted the other day were of trees that came from my grandpa’s nursery. My grandma came to my house and helped me plant those trees. My grandpa passed away the year we bought our house. Even my grandma has been gone for almost a decade now.

We are thinking about moving in the next year. It seems silly to say that one of the things I will miss the most is my trees. It is one of the last connections I have left to my grandparents now. I remember painstakingly deciding where to plant the trees with my grandma.

Thinking about the trees again made me think about growing up. Oftentimes my grandpa would remove the trees that weren’t thriving. He would put them on a pile to discard. When I was a young girl, I decided I would rescue one of the dead trees. It was a little pine tree with brown needles. I planted it in my parents backyard. I watered the tree everyday, but it still looked dead.

Then one morning I went outside to check on my tree and it was alive with leaves of brilliant green. I did it! I saved my tree. Things went downhill after that with my green thumb. I don’t know who replaced the tree. It probably was my grandma, but I will never know for sure..

Then my memories started taking me down a darker path.

Strangers stopping by to buy trees. Grandpa coming over in his truck. The smell of fresh dirt. Fertilizer. The musty smelling plastic bags the trees were sent home in.

Strangers in our yard. We must be alert. We worry. Are there children? Are there little girls? I give my mother a report. Keep an eye on Matt while I walk over. We could prevent Matt from going places where he could hurt someone, but we could never warn the strangers that came into our yard unaware.

I never felt safe. It would probably shock you if you knew how many times we had to worry about the safety of outsiders. My brother Matt is violently autistic/schizophrenic. We couldn’t control Matt but we did our best to push other people away to protect them.

Today I sit in public places with my back to the wall…always watching. I notice when patterns are off. I do everything I can to be a protector although I am never needed anymore.

It is strange how thinking about something neutral like trees could take me back.