bipolar

The fall, winds of change

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Even though autumn is my second favorite season, I always feel sad to see the end of summer. I don’t feel like I enjoyed summer as much as I should’ve. The end of summer brings another change, and not just with the seasons.

Tomorrow Arabella has her last court date. After two years, she will now be off of probation. She spoke with her lawyer, and told him she has since been diagnosed with schizoaffective disorder. Hopefully she will be able to have her charges dismissed. Her crime was classified as domestic abuse, without consideration she was in a manic state with psychosis. She didn’t have the diagnosis at the time of her criminal offense, her mental illness was just beginning.

The first couple months out of jail was a rough ride, but once she finally got a proper diagnosis with the proper treatment she has become the daughter I’ve always wanted her to be. Perfect, no. But finally getting her life back together. She has been holding down the same job for the past two years. My son Alex recently told Arabella he forgave her for hurting us and his hatred towards her. She is a different person now, a better person who wouldn’t think of hurting anyone. This past week she started dating someone new. He seems like a nice guy.

Alex starting dating someone too. He is with Arabella’s friend, the girl who went to rehab a couple months back. This past weekend Alex was playing with his band. By the time Paul, Angel, and I got to the show his new girlfriend was wasted. She was hitting on everyone. She met Angel for the first time and it didn’t go well. Angel tried to tell her she was Alex’s sister but Angel thought his new girlfriend saw her as competition. This girl was drunk and out of control in front of Alex while he was playing. At one point, she could barely walk so we sat her down with some water.

When Alex got done playing, he was upset and wasn’t sure what to do. We thought perhaps their relationship would be over. The next day, Alex told us he gave her an ultimatum. He told her if she wanted to be with him, she had to stop drinking. He told her in return he would quit drinking too. I have been really concerned lately about my son’s alcoholism. Since he started with this new girl, both of them took drinking to a whole new level. She wanted them to do shots first thing in the morning. He has been black out drunk several nights in a row for weeks, maybe longer. I don’t always see it.

It won’t be easy to turn away from alcohol in our culture. When Alex plays, fans often buy the band drinks and shots. The last week or so his eyes were opened. While playing he had the opportunity to see what hard core alcoholism looks like, how it can destroy people and relationships. He said with or without his new girlfriend, he was going to give up drinking because he doesn’t want that to be a part of his future.

I see a lot of change in the air.

Blue Monday

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Apparently I forgot to cancel the trial and tribulations subscription in time for the new year. It’s been a rough start and I am feeling frustrated.

Some of it is the little things. This past weekend my son was performing with his band. As I was scooting my chair closer to the bar, I smashed my finger. I didn’t realize as I was pulling it in that the seat separated from the base. I sat down on my finger trapping it between the chair and the base with my body weight. Man did that hurt! My finger swelled up and was bleeding from under the nail. It still hurts a little and my finger is bruised under the nail, so I’m hoping I don’t lose my nail.

Or we can talk about today. Today I found a worm on my cat’s backside. I had to give both cats, under protest, de-wormer and deep clean their cat boxes. As I was cleaning, dirty litter box water splashed on my face. Fun times! As I was taking the dirty litter out to the garbage, the bag broke spilling dirty litter all over our walkway. I had to clean this up so the dogs wouldn’t get into it outside while the temperature was twenty below zero.

Then there are the bigger things. Like our investment falling through, from when we sold our business, that we were planning on living on the next couple years. Now I have to go back to work full-time. All the things I have been planning had to be cancelled, like our road trip out to Virginia to see Angel and Dan who will be living out there for the next couple of months. I applied for a job over the weekend. I think I have a good chance of getting it. I will need to pass a proctored exam to see if I will qualify. That was even a big process because I had to update my resume and all the stuff that goes into looking for a job. I will also need to pass a physical as the job is very active. Against medical advice I started running again.

The other big thing is that my mom’s health is deteriorating rapidly. It has become apparent that I need to take over guardianship of my brother Matt. That is not as easy as it would seem. I had to take an online class and fill out a whole bunch of complicated paperwork. At first, my mom refused to sign the paperwork to resign as guardian. She doesn’t think anything is wrong with her. She is trying to hide her dementia.

My brother Luke came home to try to figure out my parents finances. They have several accounts that are an absolute mess and haven’t been balanced in years. My mom is refusing help with her finances. Finally on Friday my mom signed the guardianship resignation letter. Luke and I went with my mom to pick up Matt from his group home. Then we stopped at the grocery store which was insanely busy. Luke and I were trying to help my mom shop with Matt. If you can imagine what it is like taking someone who has dementia and is confused along with someone with intellectual and mental illness. Neither have any awareness of other people. Matt almost bumped into someone. I had to pull him out of the way. Luke and I were very stressed out. I almost started crying in the store. But everyone was very nice and looked upon us with pity.

I have an appointment later in the week to meet up with someone from the county to see if my parents qualify for meals and in home care. I’m still in the middle of the whole guardianship paperwork process. That is also going to be intensive with the financial reporting, needing to meet with doctors and the case manager. My brother lives 40 minutes away so it is going to take a lot of time on my part to get everything set up.

Not to mention doctor appointments with my own daughter. Arabella is doing well on her new medication, but it is causing her to gain a lot of weight. At the last appointment, she gained 13 lbs in 6 weeks, so I’m not sure if she is going to go through another med change.

I have a feeling it’s going to be a long year.

almost to the end

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Over the weekend, we hosted a Christmas party with my mom, my siblings, and our families. We also attended a Christmas party with my mom’s extended family. There has been no hiding that my mom’s dementia is getting worse. She no longer recognized her brother-in-law, someone she knew since she was a teenager.

After the first Christmas party, my siblings and I had a meeting to discuss the current situation of our parents. Then we spoke to our parents about some of the things we discussed. I was very stressed out before the meeting. Thankfully my brothers and I are in agreement about how things should be handled. The biggest problem is that our parents are not in agreement with us.

My parents should not be driving. I’ve received several calls about my mom’s driving. She got into a car accident this year causing an injury to another person. Her friend told me she pulled out in front of someone without looking first and her friend came close to being killed. She also drove across her friend’s lawn and face planted her car into the ditch instead of using the driveway. When my brother asked her about her driving, she told us that she was a good driver. My dad can barely walk and doesn’t see well. They refused to stop driving or look into options such as assisted living.

The only thing they said they were willing to do was give me guardianship of my disabled brother Matt. Honestly, I don’t really want to do it. But I don’t feel like I have much of a choice. I told my brothers I was not going to baby Matt or give him special treatment which he is used to receiving from our mother.

I can’t stand even being at my parents house because the level of dysfunction and chaos is almost more than I can handle.

It’s hard not having any sense of control and just stand by waiting for something bad to happen before any changes are made. But I’ve been through this before recently when my daughter started developing a serious mental illness. When someone is an adult, it’s nearly impossible to intervene on their behalf if they don’t want your help.

Despite the stressful meeting, the holiday parties went really well. Everyone was for the most part nice and respectful. With the exception of a couple days, I’ve been in good spirits. I joked around and laughed a lot with my family when others around seemed to be rather down with all the bad news. Maybe it’s because I don’t care as much anymore about the things I can’t control, which is freeing. Maybe I’ve gotten used to living with suffering all around me and I’ve become desensitized. Or maybe it’s because I’m medicated. Life is just too short to take seriously all the time.

The most wonderful time of the year?

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It’s the most wonderful time of the year, or is it?

Just like everyone else, I’m getting into the hustle and bustle of the busiest time of year. I’m hosting 4 parties over the holiday season. I don’t really mind the decorating, the cleaning, set up, take down, or cooking all that much. As much of a planner and how organized I am, sometimes I don’t want to do all the planning. I don’t enjoy the menu planning anymore. It’s a ton of work trying to keep in mind everyone’s dietary restrictions and preferences.

Overall, Thanksgiving went well. But try as I might, I couldn’t get the menu right. Several people are gluten and dairy free. I tried to improvise by using dairy free butter and almond milk for the mashed potatoes versus regular butter and milk. But I found out that several people were almond free too. I had to set aside some plain potatoes for my brother Matt. My mom was constantly reminding me to set some aside for him. I was so annoyed as I had several foods I was preparing at once. She wanted me to mash his separately. I made sure at least one turkey was gluten free, as I had a regular and a smoked. Then I found out Paul’s step-dad’s fiancée couldn’t have turkey. Thankfully she brought some of her own food along to make it easier. But she ate something my mom brought which wasn’t GF and my mom didn’t tell her until she was almost done eating it.

The holidays are difficult in other ways. To me it’s a constant reminder of broken relationships and dysfunctional family members. This year my oldest two kids are not on speaking terms which is hard on me. There is a lot of strife with other family members. My dad is not a part of things because he is a horrible person. I think we all just do our best to tolerate each other which is not how family should be.

My mom’s cognitive functioning has greatly declined. Thankfully I have an appointment in the books for the end of February to see what is going on. It took months on the waiting list just to be able to schedule the appointment. I’m hoping she can hang on until then. I’ve been getting concerned calls from family and friends of my mom. My mom’s friend told me my mom went in the ditch at her house. As she was leaving, she drove across the lawn and into a deep ditch. She also said my mom didn’t even look before pulling out from a stop sign in front of somebody and they almost got hit. She said my mom was no longer a safe driver. She also said my mom needed to stop babying my disabled brother and my dad needed to get off the couch. The last two have been issues since I can remember.

I am hoping to sit down with my brothers over Christmas to discuss the care of our parents and disabled brother. I don’t want to be the only one making these calls and having all the responsibilities. I’m sure they would be willing to help, but they live further away and we don’t see each other often.

Other than that, I have most of my shopping done. My husband, our kids, and their significant others all made Amazon lists which made things really easy. So far everything went good with Arabella’s boyfriend meeting the family. By the end of the year, he will have met pretty much everyone. It’s so awkward to start dating someone right before the holidays. We like him, and he is absolutely crazy about Arabella. She is going through some major medication changes and she is responding well. Earlier in the year, I never would’ve guessed we would be at the point we are at today.

It will be interesting to see what the new year brings.

Riding with the changes

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I have been feeling uninspired as of late. I feel bored; which I guess isn’t too bad because it is a step above feeling melancholy. There is no immediate crisis, but change is in the air. I can’t tell if it’s good or bad or just is.

The past several days have been very summer like. It has been easy to convince myself that fall is way off into the future somewhere even though the calendar says otherwise.

Uncertainty and change are all around us. Who will our next president be? What kind of changes will that bring?

There have been some big changes in the business we are running and there is uncertainty which road to take. We are waiting in anticipation to see if our finances will change. If not, what kind of changes will that bring? My husband wrestles with wanting to retire and wanting to keep working indefinitely.

I have entered a new decade and my health has been changing.

My son and his girlfriend got new jobs. My son-in-law and daughter might be moving across the country for work for 6 months. I think it’s an exciting opportunity, but I will really miss them. They could be leaving within the month or not.

My parents are experiencing a great deterioration of their health. This has been problematic in many ways. I realized recently that my relationship with my parents has been very destructive and toxic. I sacrificed my young years, my best years, trying to help them because they needed me so much. I was more of their parent then they were ever mine. Looking back, I wish I cut ties with them decades ago. But I didn’t, and now I will never be set free. I will never have the relationship with them that I would’ve wanted.

My mom has been having memory issues, but refuses to admit anything is wrong. I’ve been seeing my mom in her raw form which is very difficult to see. She no longer disguises her extreme favoritism towards my disabled brother. She insists that the world needs to change around Matt instead of helping Matt adapt to the world he lives in which has been a huge disservice. She has placed her favoritism towards Matt over the safety of her children and grandchildren. Nothing is wrong with Matt or her, the problem is the rest of the world. Yet she seeks attention for being a martyr for taking care of my dad and Matt. It’s painful for me when others talk about their fond memories with their aging parents when the only thing I have to bring to the table is shame. There is a lot of uncertainty what will happen with my parents and brother in the near future.

Then there is Arabella. She is having side effects from her medication which have been hard for her to deal with. A couple weeks back I had to take her to the ER because of it. The doctor made a mistake and it ended up being a traumatic experience for both of us. Being on her medication has been a lifesaver, but not an optimal long term solution. Just keeping someone alive is different from being fully alive. Although a lot of troubling negative behaviors are gone, she is just a shell of the person she used to be. She used to be outgoing and fun loving. Now she spends her free time in isolation in her room watching TV. Her friends are gone. Her social interaction is limited to family and work. Her ex moved on and that has been hard for her. No one ever mentions how recovery is a lonely road.

Things have even changed on the blogosphere. Some of my favorite bloggers have fallen off the face of the earth. That feels like losing a friend. I have no intentions of leaving, although I know I’ve been too much of a stranger as of late. What is the purpose? Some days feel meaningless and it’s really hard to find motivation in that mind frame. I’m trying to just ride with the changes, although I’ve never been particularly good at that.

Safe for now

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I feel like I got my daughter back. The daughter I had before everything started. Before the suicide attempts, the cutting, sneaking out late at night to meet up with strangers, the delusions, the depression, the mania, hospitalizations, jail, and all the other struggles I’ve been writing about the past 4+ years. We are getting along better than we have before.

Everything changed once she was on the right medication. At her last hospitalization, they put her on a mega dose of the powerful anti-psychotic Haldol. The doctor has been slowly trying to taper her off the medication. In the beginning her doctor also put her on Lithium as a mood stabilizer. She has been diagnosed with Schizoaffective Disorder which is a mix of schizophrenia and bipolar. After several months, her doctor tried to take her off of Lithium thinking an anti-psychotic would be enough to manage her symptoms. After a week off of Lithium, she started to hear voices telling her to kill herself. Thankfully she communicated what was happening to her with me. I called the doctor’s office and they put her back on Lithium. Once again she was stable.

At the last appointment, the doctor tried to reduce her Haldol. He wants her off of the medication altogether. I asked the doctor if the hospital made a mistake by putting her on Haldol in the first place. He said when Arabella was admitted to the hospital she was very, very psychotic. If a psychiatrist says that it must mean a lot more than usual. They had her on ten times the average dose. That’s why when we visited her in the hospital, we were traumatized to see her because she was shaking and couldn’t talk right. Her jaw was tremoring and her words were slurred. They put her on another medication for side effects of Haldol and that caused her to have vision changes.

At the last appointment, the doctor tried to taper Arabella down to a high dose within the normal range. She didn’t respond well. She started to have intrusive violent thoughts. He decided to put her back on her dose previous to her last appointment. And once again, she is stable and enjoyable to be around. If it was up to me right now, I would like to keep her on the medication she is on now for the rest of her life. But the doctor said that after being on Haldol long term she will very likely have irreversible side effects similar to the ones she had before on the mega high dose. By age 30, the medication that is saving her now will cause her to be physically disabled by her condition.

Is it worth it? We might not have another choice. The doctor said it’s going to be a very long process to get her where she needs to be. But as for right now, it’s wonderful to have my daughter back.

What to write

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I haven’t been feeling very motivated to write since I finished my book. I say finished loosely because it is going to need more work. Nothing major though. I hope to have it ready to publish by early next year.

I think I need to revisit my goals. What do I want to do next? Try my hand at fiction? Or am I happy to keep writing on a personal blog although with my book it seems like I told everything I wanted to tell. I think I want to keep writing in some capacity, but what?

There are always things going on in my life to write about. I guess I wasn’t meant for a life of mediocrity. Sometimes I am jealous of people who live an ordinary average life who can join groups on Facebook called the dull women’s club. True story, I looked at some of their posts and some people just sit around watching their garden grow. I could only post about watching my plants slowly die.

I figured part of my problem is that I was never shown how to care for plants. My mom got rid of all our houseplants when she went on a kick that my brother Matt was allergic to them all. Last summer I bought a banana plant and the only way it lived over winter was because a friend showed me basic plant care 101.

My grandpa had a nursery when I was young. One day, he pulled out a dying shrub he was going to get rid of. I decided I was going to ‘rescue’ the shrub. So I planted it in my backyard and watered it everyday. One day I went out to water it, and it was no longer dying. It even looked twice its size, green and healthy. It was a miracle, I saved it. But now as I am older I realize my grandpa probably had something to do with my unrealistic expectations about plant rescue.

This is totally going in an unanticipated path. I do have a lot of stories to tell, but we’ll save them for another rainy day. There have been a lot of rainy days as of late. The arthritis in my knee has been acting up for the last week or so. I may soon be able to predict the weather like my relatives of old. My arthritis is acting up, it’s going to rain. How time changes things. Five years ago I would be trying to get in a run before the storm. Now I sit around and complain about how hard it is to walk because my joints can feel the rain coming. It’s hard to think I will never be able to do something again I used to enjoy so much.

Maybe I’m just having another mid-life crisis. I will be 50 in less than a month. It’s hard kissing my 40’s good-bye. Fifty is old. I’ve gained weight. I can’t see worth a crap. Some days I have a hard time getting around. Arthritis. Grey hair. I don’t look or feel young anymore. I’m at an all time low, but it’s not going to get any better. But I’m trying not to complain about it too much because those people are just a drag to be around.

Otherwise, things are going okay. Arabella is stable on her medicine. On Monday, she has a goal planning appointment with her new case manager to help her gain independence. She literally hasn’t visited with friends for weeks and spends her day following me around. I don’t mind all that much. I’m trying to enjoy what time I have with her. She never liked me before so in that way it is kind of nice. I know I’m cool and all, but I want much more for her than that.

My other two kids, Angel and Alex, are not getting along. That has been stressful because I hate feeling like I am in the middle especially with a holiday weekend coming up. Not to mention dealing with the extended family. Then having a party and turning 50 right after that.

I have been feeling pensive and melancholy lately. Maybe I just need a little sunshine.

Mental health awareness month

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Many of you are probably aware that May is mental health awareness month. Maybe you already shared the cutesy memes on social media stating you are a friend that anyone can call day or night. Maybe that is enough for you to feel good to check off your awareness month, and have moved on to planning your pride party for June. Or maybe you also live in Wisconsin and are stocking up on cheese curds for June dairy month. I know, I know…cheesy..

Or maybe you are like me and found out that mental illness is not all that cute. Maybe you or your loved one has already lost the friend that you can call anytime. Mental illness is tough. I’m sure everyone who struggles with it would remove that part of their life if they had the choice. It’s so painful and malignant, that far too many remove themselves from life altogether when it refuses to leave them.

Through NAMI, and talking with other parents whose children struggle with mental illness, I was surprised to find some striking similarities. I am not the only parent whose child attempted suicide. I am not the only parent whose child was incarcerated after a psychotic episode. I am not the only parent whose child, after making abuse allegations, moved in with another family. I am not the only parent whose child hears voices commanding them to end their life and soothing voices telling them how peaceful death is. I am not the only parent whose child has lost a lot of good friends because of their mental illness. I am not the only parent whose child was bullied because they are different.

I could make a much longer list. But the point here is awareness. Don’t blame the family. Don’t blame the mentally ill. Most would choose to change it if they could. Don’t shun them out of ignorance or fear. Treat them as if they have a potentially life threatening form of cancer. Treat them with compassion while being mindful of your own mental health as well.

Be kind to the server who has cutting scars all over her arms. For today, she has successfully battled the voices in her head. She has battled the voices outside her head sending similar messages about her worth. She has many battle wounds but is still alive fighting. That girl is also my daughter. But she could be your daughter as well. Or your son, sibling, parent, partner, neighbor, friend, or yourself.

Be aware that one in five Americans struggle with mental illness.

Green light, red light 7

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It has been a whole month now since the mania and delusions started. Arabella is gradually getting better, but these kinds of medications take time to kick in fully.

The endless pacing back and forth has gotten slower but she can’t sit down. When she talks her voice isn’t as loud as if she is yelling. She no longer talks non-stop but she is still constantly interrupting conversations. Having a conversation in the room she is in is next to impossible. If we go in a different room, she might knock on the door.

She has become like that of a young girl, around 6 or 7. She has given up smoking. I’m not sure if it is because she now thinks she is too young or even if it will stick after all this is over. If it ever ends.

The voices in her head are quieting. I didn’t know she heard voices. She told us she thought everyone heard voices. Sometimes the voices told her to do awful things like cut or kill herself. Sometimes the voices she hears are like my voice. It can almost make sense to me why she thought I was tormenting her.

It’s exhausting. At times the suffering and grief is unbearable. Sometimes I think this is going to kill me. Sometimes I don’t even care if it does.

I am envious of people who in times like these can lean on their faith to bring them peace, comfort, and hope. As a seeker, I never can seem to find what I’m chasing after.

Why has this been what is chosen for me, my daughter, my family.

Green light, red light 6

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Several times during her hospital stay, Arabella put in requests to come back home. On day 10, we picked her up and brought her back home. She was doing better, a lot better than when we took her in. But she was still manic and delusional. Maybe our expectations were too high. Or maybe we picked her up too early.

She didn’t sleep the first night we brought her home. The hospital changed all her medications. Then when she got home, she took her old nightly medications. It was a jumbled up mess so we decided to call her psychiatrist’s office in the morning to figure it all out. The process of figuring everything out took the whole day. By that afternoon, things got progressively worse. Arabella was very manic and kept interrupting us every few minutes to tell us a bunch of nonsense. By late afternoon, Arabella told us she took a couple of gummies and smoked weed. She was stoned out of her mind, and totally freaking out.

My mom stopped by for a random visit right around that time. She wanted to go for a walk, but I was in the middle of a million things. It’s nearly impossible to get all the things done I wanted to get done when I’m constantly interrupted and in crisis mode. That is when we received a call back from the doctor’s office. Paul and I took the call in Paul’s office on speaker phone while both my mom and Arabella came in and talked to us while we were having a serious discussion with the nurse. We were beyond annoyed, frustrated, and stressed.

The nurse said the doctor wanted to discontinue some of the new meds from the hospital while adding back some of the old meds and discontinuing some others. They were going to call the prescriptions into the pharmacy and would be available two hours before the pharmacy closed. She was going to need to start the new medications that evening. I was going to need to figure it all out before she went to bed. I took a bag full of her medications on hand and went through everything while waiting for the pharmacy.

I needed to go through the meds, fold laundry, and make supper before picking up the meds. My mom tried calling several times while I was getting everything together to make supper. I figured she wanted to talk about Arabella since she left while we were on the phone with the doctor’s office. I ignored her call because I was in a real hurry and didn’t want to take the time to explain everything yet again.

Then Paul came into the room while talking on the phone. He asked whoever it was if they were going to be arrested. I knew he wasn’t talking to Arabella since she was in her room. It was my mom. He said that while she was on the way home she hit a guy on a motorcycle with her car. He said that I needed to go pick her up from the scene of the accident. He said my mom was okay. The guy on the motorcycle was alive but injured.

While in a crisis, we got hit with yet another crisis. I abandoned supper to get ready to pick up my mom. Paul said he would pick up the medication before the pharmacy closed. He wanted me to do it originally because it was my strong suit. On the way out the door, I called my best friend Cindy on the phone. She lived a couple blocks from the accident. She told me I should come over to her house and she would drive me because I was way too shook up myself.

Cindy and I picked up my mom from the place where they towed her car and the motorcycle. Good thing Paul picked up the medication because the pharmacy closed before I got home. The pharmacy screwed up the medication. But at least they gave her a prescription for something she was no longer using. The hospital also gave her an injectable medicine the day she left and I got a prescription bottle with a vial of the injection in it.

While all of that was happening, I received a call from Alex’s friend. It was his 21st birthday that evening and they wanted me to come out celebrating with them. It was a sweet gesture that my kid’s friends also think of me as their friend as well. Paul was just meeting with this young man and helping him set goals to get his GED which he just finished. I will always think of my kid’s friends as children even when they are in their 20’s and able to go out to the bars. If anything, I was worried that they would all make it home safely. Especially after the kind of day I was having.

They weren’t the only ones on the road. Dan and Angel were just getting home from a vacation in Japan. The flight back home was a rough one, then they had to drive another 4 hours to get back home. I was anxious all around. My nerves were shot and I didn’t know how much longer I could handle the stress. Bad news doesn’t seem to shock me anymore.

Now I find it shocking when good things happen.