Gratitude week 24

  1. This school year is finally in the books!! I think my daughter passed all of her classes. For the first time, I wasn’t sure it was going to happen…so that is tons of stress off of me!
  2. Summer!! Mother Nature has been moody this year. It’s either been hot, humid, and rainy or cool, dry, and windy. I almost froze this weekend sleeping in my winter pajamas. Some days we need the heat and others the A/C, but we are saving money by keeping both off.
  3. For the first time in my lifetime a tropical storm passed through the state of Wisconsin setting records. I almost felt like I did get that trip to Florida. Just another thing to add to the list this year of weird historical events I’ve lived through. Our foreign exchange student had her 16th birthday and party the day the storm hit. Talk about memorable.
  4. I finished a self(?)-help marriage book this past week. I realized I am an avoidant marriage partner. I like to take care of myself and not ask for help. I tend to hide out in my shell and have to be drawn out. As an introvert avoider raised by two introvert avoiders, I don’t tend to reach out to others as a source of comfort. I sometimes wonder if blogging is another way of avoiding relationships with other people. I am grateful for books that bring about more self-awareness.
  5. I also finished the colitis for dummies book. I learned a lot of helpful information. I also met with my wellness nurse this past week. I expressed frustration over not feeling good after going for almost a year. She still thinks she can help me but said that I have a lot of things going on in my body that have been that way for decades and are resistant to change. She gave me her personal contact info which she doesn’t give out to any of her other clients so I can update her on my progress. I feel like I can trust her. I am working hard with the nurse, counselor, and craniosacral therapist to heal my body. It seems almost voodoo like to have to purge all the junk I’ve stored in my body for so long to deal with the trauma in my life.
  6. I bought some flowers this week to decorate the outside of my house.
  7. I have been working with a mentor the last couple months on a Bible study on anxiety. When talking about what to do next, I suggested a couples study on marriage. I’ve been dealing with anxiety and depression my whole life but I haven’t been married that long. It’s something we want to work on with someone who has been married longer than us.
  8. I’m grateful my husband spent the weekend away working. His new business is taking off and I am happy about that since it was something we worried about.
  9. Flavored sparkling water.
  10. I’m grateful my daughter will be coming home for a visit this week.

Gratitude week 22

  1. It felt good to go in for a haircut this past week. Funny story, when I got to my appointment I had a fever from sitting outside in my hot car. I was a little afraid she would turn me away. By the end of the appointment, I looked great and my temp was below normal.
  2. We finished painting the shed. I wasn’t sure it was going to happen at first because it seemed like a wild animal was living inside. Every time I got close it started clawing at the walls. But a few days later it was gone. Estelle, Arabella, and I started painting together. Then Estelle and Arabella started fighting. Estelle will be leaving soon. I will miss her a lot because she became like a daughter to me, but I will not miss the fighting. The shed will be a visual reminder that everything happens in its season.
  3. The month of May is over. I’m saddened by the state of this country and have to hope things will get better. Maybe this month…
  4. We were able to go back to church for the first time since the pandemic this past Sunday.
  5. The books I ordered came in the mail. I paged through Colitis for Dummies and learned more than what my doctor told me already. Apparently I am the 10-15% of the colitis population that has an undetermined cause. It could be ulcerative colitis or Crohn’s, but they really don’t know. I wish my doctor would’ve explained that to me.
  6. This past week I celebrated my 5th blogging anniversary. I’m still here!
  7. Today is the 2nd anniversary of moving into our house. I am thankful to be living in a house that I don’t mind being quarantined in.
  8. I am grateful to have a husband that loves to cook and is good at it.
  9. I’m grateful that my mouse issue was solved with replacing the batteries.
  10. I am grateful to be able to do a little planning and finally put some new things on my calendar after everything else has been crossed out. The funny thing as I was looking ahead at my wall calendar I put the wording on December’s photo as best year ever. Note to self: never put the words best year ever on a wall calendar in December…maybe in January.

Gratitude week 19

  1.  It’s hard to believe that our foreign exchange student Clara has been gone over a month already. This past week we were able to have a conversation over Instagram. It was so nice to see her again.
  2.  My daughter graduated from college with a Bachelor’s degree over the weekend. I am grateful she was able to get a job in her degree field. I am happy she is doing great on her own.
  3.  I’m thankful for technology to be able to watch our daughter’s graduation. The graduation was held on zoom. Apparently family members were supposed to be watching it on live stream. We weren’t. When all of the graduates were on the screen in cap and gown moving their tassels, Paul and I appeared on the screen taking pictures of our daughter with our cell phones. Angel was smiling so widely, I thought she was so happy and proud. But she was really laughing at us for bombing her graduation. I was mortified about it when I found out, but she said it made her day since we couldn’t be together for it. Thankfully I wasn’t watching in my pajamas.
  4.  I was feeling bummed out on Mother’s Day. Not only was it cold and snowing (yes snowing!!!!) but I wasn’t able to have my mom over to celebrate this year. My daughter Angel was also not home. My husband Paul went out of his way to make it a really nice day for me.
  5.  Angel had flowers delivered to me for Mother’s Day. Plus the church dropped off a flower for me too. It was cool to go outside and see flowers delivered to me unexpectedly.
  6.  My kids remembered Mother’s Day and I was able to spend several hours talking to each of my kids over the last couple days. I feel like we are getting along really well at this time. I am grateful for peace within my family. That is very important to me.
  7.  Since I was not able to see my mom for Mother’s Day, I bought her flowers, a card, and a big bag of popcorn. Early that morning, I snuck over to her house and left her gifts outside her front door to surprise her. It was an adventure to try to get everything to her without being caught. It made her very happy. She wasn’t expecting anything and said she was going to decorate her house with all of her previous Mother’s Day cards. She wasn’t forgotten.
  8.  I have a great counselor. She wants to follow my blog. I think I will let her. I hesitate telling people about my blog. I’ve had friends want to follow me before but never told them how to. It is very difficult to put myself out there and be personal especially with people I know. I think she truly cares and wants to help me. I’m grateful to be able to trust a few good people in my life. I am grateful for healing however long it might take. I’m thankful to have a place to share my story.
  9.  I am meeting with my wellness nurse tomorrow and hopefully she will have some answers for me about my health. I’m still not feeling the greatest and hopefully she will be able to give me some insight on what to do next.
  10.  We had more deer in our yard this past week really close to our house. I found out that deer eat weeds. They ate some of the dandelions in our yard and started munching on my weed pile. Yeah! I have some help weeding this year.

April’s Fools

I woke up this morning hoping this whole thing was going to be an April Fool’s Day joke. But it seems like we are all stuck in some time warped Groundhog’s Day movie.

As each day runs into the next, I fight the urge to be unproductive. I feel sluggish like I’ve gained a great weight. I must keep fighting against the desire to hibernate. I don’t want this blog to become stagnant either. This week I finished puzzles, books, and Netflix series. I don’t want next week to be the same story at least on my blog anyway.

I still need lists and goals even if it is something simple like changing the lightbulb in my bathroom which I checked off my list today.

It’s time to clean house. Currently I have 11 posts in my drafts. It’s time to resurrect them or toss them in the trash. By the end of April my goal is to have zero drafts.

My normal writing process is as such. I usually write a draft in the morning or early afternoon. By late afternoon I edit and publish it. But sometimes I feel like the post is not ready. Some of the first editions end up in the drafts and I rewrite it altogether until it’s right.

If I have a bad feeling about something I wrote, then most of the time I don’t publish. Sometimes I let it marinate for a day or two, but some have been sitting in my queue since August. Those are the really personal ones.

Things are about to get a little crazier around here! Now is the perfect time for some spring cleaning!

 

Record breaker vs. broken record

I haven’t been feeling like writing much lately and I’m not sure why. I have things to say but don’t really feel much like saying them. Sometimes I think that I sound like a broken record. Who wants to hear the same thing over and over anyway? Or maybe I just need a break.

Instead of a broken record, maybe I could be a record breaker. That’s an awesome idea. But it’s really hard to do. It is so much easier to fall back into my same old patterns of behavior and routine.

No one listens to records anymore anyway. Broken records are thrown away. But record breakers are here to stay until someone else finds a way to beat them.

I’m trying to be a better person. I’m trying to change. But what do I replace my old garbage with? What would I fill my life with if it creates an empty void? Would I even recognize myself in me anymore? Is this who I really am or who I had to be?

I’ve grown accustomed to carrying all of this baggage. I want it to be gone, but I don’t want to put it away. I’m afraid if I do, I will lose what makes me me.

There has to be a better way.

 

 

666 followers

Outrunning my demons now has a total of 666 followers. Scary, right?

The number in and of itself is too evil to be celebrated.

What a perfect time to talk about the dark side of WP.

You know what really makes me burn?

I hate it when amazing bloggers leave without a trace.

I want to know why.

Did you die????

I really liked the quirky stories about your life.

Then just like that, you are gone.

I would like to think if I ever decided to leave that I would say good-bye.

I’ve seen so many great people come and go over the years.

I wonder how they are doing sometimes.

Just like an old friend, I want to see them again.

 

On writing

I took a step back from writing my book.

I was doing it all wrong. In January, I just jumped in and started writing. I took a break when we went on vacation in the beginning of February and haven’t wrote a word since.

It has become common knowledge now that I am writing a book. When my mom found out, she brought over 2 boxes of journals. I sat down and read through them all over a weekend. Most of them were notes between my mom and special ed teachers. It really gave me a glimpse into some of the school day that I didn’t see.

It was a reminder to me how incredibly violent my brother Matt was. There were times that he threatened school children with scissors and was into poking eyes. That is just a small glimpse.

Then I went and reread all of my personal journals. I flagged all pertinent parts of at least 15 journals and created a general outline of what I wanted to share in the book. Then I am going to go back and rewrite what I already started. I am even thinking about asking my other siblings if there was something that they wanted me to share. But I am afraid that they will be more open to what they don’t want me to share.

I decided that I will not write when I am really stressed out or feeling depressed. The next couple of weeks I will be performing a major part in the community theater production. That would not be a good time to stir my demons.

I have to be careful. I have to know when to run forward and stay back. I could get lost in it or worse dragged back into it. There have been times that I experienced PSTD symptoms. It is horrifying, but I am not afraid of it. I have people around me that will make sure I am safe. This is what I was meant to do.

I see writing this book as a challenge similar to my desire to conquer a 50k. It is a test of strength, determination, and will.

The people who know what I have experienced are saying that I am brave and strong to tackle this. I have a unique story that unfortunately is not unique anymore. When my brother was diagnosed with autism, as the first generation of de-institutionalized mentally ill, it was rather rare.

This is going to be a story of survival and abuse, many people do not realize that when I talk to them about it…the people that didn’t know me then. I seem so normal, healthy, and strong. But remember how I said I am in community theater. I can be a good actress. They don’t know how difficult this is going to be emotionally. I have to be very strong. I have to be smart to notice if I am slipping.

I am doing some public speaking in September for the local autism chapter. When I told the woman that I was going to write a book about my experience, she said that she knew of a publisher who would be interested. Maybe that should be my last resort. Maybe I can do this. Maybe this will be really big. If not, I am okay with it. I want to tell my story for me. I want to heal. I want to help others feel like they are not alone even if it makes me look bad.

I have decided to also keep my blog personal. I am at times tempted to share this blog with family and friends. I can’t waver. If I tell you I am tempted, please remind me of my words. It is a struggle to be fully honest with myself and others. I need to be completely genuine.

I can’t let anything stop me from telling my story.

 

Goal 10: Make peace with the past

For a long time I’ve outrun my demons and wondered how they could still catch up to me.

Writing this blog has been a great first step in making peace with my past. If that wasn’t enough, I started writing a book. I’ve found the process to be very therapeutic.

In a few months, I will start the process of public speaking about my experiences.

In doing all of this, I realized that I missed a very important step. I need to be open and honest with the people that care about me even if I get hurt. It’s not like I didn’t get hurt in the past and move on with my life.

I spent my whole life pretending to the outside world that everything was alright in my life. Life is good now. But I want to be able to tell people I am close to that things are not alright if they aren’t. I want to be able to ask for help instead of pushing everyone away and dealing with things myself.

Right now I’m trying to look back without having blinders on. Hindsight is not always 20/20. Sometimes I tend to wear sunglasses when I look at the darkest days. I make excuses and cannot face things as they truly were.

I tell myself that what happened in my life was completely normal. It wasn’t that bad.

Sometimes I think I will just be able to throw all of my painful memories into a book, then close the book and walk away. I’m not sure if I will ever be able to do that. But I do think that my story could help others and that I will be able to make peace with my past.

Geez, sometimes I wish my goal was to lose 10 lbs. Revamping myself on the outside sure seems a lot easier then stoking the demons within. But I feel like this is what I was meant to do.

Speaking instead of talking about it

Last week I had a meeting scheduled with someone from the local autism chapter. In a couple of months, I am scheduled to be on a panel as a sibling talking to parents about my story. What does this mean?

I am going to be given an hour to talk to parents of autistic children on how it feels to be a sibling. An hour! I will write my own presentation where I will speak in front of parents for 45 minutes and then have a 15 minute question and answer segment.

I did not know that I would be doing public speaking. Alone! In front of an audience. She also asked if I felt comfortable being recorded. Absolutely! I have no fear in doing any of this. In all honesty, I always saw myself doing this some day.

I also told her that I started writing a book about my experience as a sibling. She thought it was a great idea and also thought that there was a niche out there for a book like mine. No one else is doing this. She said she knew a publisher that would eat my book up if I decided that I wanted to publish my story. She said that she could also link my public speaking to this blog and would do what she could to promote my book.

She said that in previous videos, she received up to 7,000 views. People just love personal stories. This is where my fear started. I am not afraid to be a public speaker. I am not afraid to talk to strangers about my very personal experiences. I think it is powerful and moving. But, and here is the big but, I am afraid to tell my story to people I know.

I am afraid of getting more followers. I am afraid to put myself out there. I am rather paranoid about being found in all reality. That scares me. I’m not even sure why. Who cares, really? I won’t let anyone in. I have never told my friends my story, maybe just bits and pieces. My friends have asked to follow my blog and I told them that it is too personal.

I refuse to use my real name. But it is getting bigger. It is starting to snowball and I’m afraid I can’t stop it. But the question remains, why do I want to stop it? Isn’t it time to let people in?

This is my struggle, I want to tell my story but I don’t want anyone to know about it. I don’t know why this scares me more than public speaking. You would think I would want to talk about it with friends and family before speaking about it to strangers.

Has anyone else ever experienced this? How do I get over this fear?

Doubt

Would you be willing to hurt people you are closest to in order to help strangers?

Fear that is toxic. Anxiety whispers an endless echoing rhyme. Worry incessant. Doubt creeps in like a vine that entwines the wrestling demons running around in my mind.

I’m not sure I can do it. It’s too risky. Who do I think I am? Do I really think this will be a bestseller? Do I really think that my poison will be a tonic? Do I really think that my story is going to make a difference, change things?

Really, Alissa, you couldn’t even save your own family.

The thoughts painfully pierce my poorly healed wounds. The scabs tear away and bleed onto my parched paper skin. The memories scratch at the demons inside. They wreck havoc on my mind. Tears slip from my eyes.

Now I understand why there aren’t a lot of siblings telling their stories. I get it now. It is too painful. If the story is going to be effective, I have to be brutally honest. But that honesty is going to hurt, not just myself but other people.

Tomorrow I have a meeting with a lady from the local autism group. She wants me to be on a panel representing siblings of autistic children in front of a group of parents. There are not a lot of programs available for siblings because they are ‘normal’. I think that is very tragic if a child needs help and doesn’t receive it because they aren’t special enough.

My goal is to write a book about my story as a sibling. I want to advocate for siblings. My thought was to write a book and donate a certain amount of the proceeds to go towards helping siblings that are struggling through support groups and therapy, etc. Just how it is all going to come together is not totally known to me at this time. I would be willing to donate my time and money to help other’s struggling through what I’ve experienced.

Maybe tomorrow I will have some answers. But as for today, I never want to write again. I want to delete my blog. I want to throw the book that I started into the trash. I feel unsettled, almost angry and sad. Restless.

I am at a crossroad of sorts. Will it make a difference? Am I just picking at scabs and bleeding out into my words? Will it heal me? Or will it hurt me and those I love? Should I just let it go?

Will I be able to help others? Am I being delusional that I can make a difference? Would it be worth it if my story can help someone contemplating suicide if  my family turns away from me? Maybe my vision is too grandiose?

I am absolutely terrified, but I think it will be worth it.

What if I don’t help anyone and end up alienating myself from my family? Do I have the strength and courage to do what needs to be done?

I have my doubts.