Cancer

Saying good bye?

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I have often wondered why we say the words good bye. What is ever good about parting with someone that you care about?

This morning I said good bye to Angel as she left to go back to college. I won’t be seeing her again until March.

Last night Angel said good bye to her grandma, probably for the last time.

It was a rough week. Darryl called earlier this week very distraught. The doctor told him that Martha was never going to go back home again. She was going to be transferred from the hospital into a nursing home. They thought that she was going to beat this terminal stage 4 cancer thing. It is hard to blame them for feeling that way as they don’t have the internet at home and we are all new to this stage 4 cancer thing.

Living with her day to day, I’m sure that Darryl didn’t see how the cancer eroded her body like we did. Losing 100 lbs isn’t as noticeable if you lose it 1 lb a day. It broke Paul’s heart to see his step-dad break down and start talking about final wishes and funeral arrangements. We knew we had to arrange one last visit with Angel and her grandma before she left.

The night that Darryl called, Paul cried. Before all of this, in the 20+ years I’ve known Paul, he has only cried a handful of times. Mainly when his grandma, who helped raise him, died. Dealing with his mother dying has brought out a whole new range of emotions, some of them not very good. I want to fix things, but I can’t.

Sometimes I worry about Paul. He takes on too much responsibility. He is a great leader and everyone wants his help on this board, committee, or that. I find that most people care more about what he can do for them instead of him.

Besides Paul and my friend Cindy (who keeps calling and asking how I am doing), I have been pushing everyone in my life away. When things get difficult I shut everyone out. No personal Facebook statuses for me. I don’t want anyone to know. It surprises me that I even talk to you. Sorry, no offense, I’m sure you are a great person.

Instead of dealing with my emotions, I put more things on my plate. No, not food, if I’m really stressed I barely eat. Working long hours…yes…trying out for a part in the play…yes…signing up for an 18 mile trail run…yes…another marathon…yes, yes, yes….a half iron…yes, yes, oh yes!

Keeping very busy has always been a tactic of mine.

I’m not sure I can keep going at this pace. But I am afraid. If I stop juggling all of these busyness balls, I will surely drown.

I will keep going. I am determined to persevere. And I am going to keep writing (take you along on this journey with me)! Lucky you! XOXXO

 

 

A flame’s last few flickers 

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Yesterday I spent the evening in the ICU.

My mother-in-law Martha collapsed on her way to her doctor appointment. An elderly friend of Martha was taking her to her appointment, pulled over when Martha said she was going to be sick, and couldn’t get her back in the car.

The rescue squad transported her to the nearest hospital where they had no room in their ICU. Then they transported her to a hospital a couple of hours away. This was good news for us because Martha was 20 minutes away versus 2 hours away. 

We drove in nervous silence to the hospital. It was a long, windy, and bitterly cold day. It seemed like I had to park miles away from the door. The sharp winds whipped my face and stung. I ran to get in as fast as I could, but I really didn’t want to go. I was afraid of what I would find. I was afraid of how I might respond.

We searched for a long time down empty corridors for Martha’s room. We didn’t know where to go or what was happening. We weren’t sure what to expect. We had many questions and no answers.

We finally found the ICU. Only 2 visitors were allowed at a time. Paul and Angel went in first. While we were waiting, Martha’s husband Darryl arrived. Angel came out crying. My other 2 children went in. Angel sat on my lap and I held her in my arms while she cried. 

Darryl and I were the last ones to enter. Paul helped me tie on my gown and I put latex gloves on as was ICU protocol. Then I saw Martha. She was so weak, sick, and fragile looking. She asked me if I was okay since I looked so tired. Her concern for me was strangely touching as she was the one in the hospital bed hooked up to machines. She was getting a blood transfusion and had a couple more bags being emptied into her body. She had to sign a consent form but couldn’t quite remember how to spell her name. 

She told me that if she didn’t make it home, I should go through her items with the girls and take what I wanted even though she said she doesn’t have much. I told her I would.

It was all very beautiful and ugly at the same time. All of our previous issues faded away into the past. Yet I felt like I was in the way of the nurse. I didn’t know what to do. There was nothing I could do. Nothing but be there for her as her light starts to fade during her flame’s last few flickers.  

Soon our brief time together came to an end. I tore off my gown and threw it in the garbage along with my gloves. I washed my hands in the the sink. Martha told me that she loved me. I told her that I loved her back. 

After a long glance, I walked away and didn’t look back.     

Happy New Year!

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Yesterday morning this was the sight in my kitchen. Seems like I can never have a proper party without trashing my house.  I spend all day cleaning and cooking only to be faced with it again. 

I had a smashing party! Literally. At the crack of midnight, Alex’s friend smahed his head against the table 5 times starting the new year with a bang. Not to mention a swollen, bruised, and bleeding face. I’m surprised that I haven’t had a late night knock on the door from a mother screaming about a concussion and a law suit for the nefarious happenings at my house. What can I say? My house was over run that night with teenagers. Ten teens to be exact and 3 other kids…One of the teen girls was very attractive and possibly single if that explains anything. 

So I spent the next morning cleaning up after the party. I threw out the items that were broken. I searched for the items that were lost of stolen. I started a new year’s resolution to never to have a New Year’s Eve party again. Then I took down my Christmas tree and purged my house of 2016.

After a sleepless night and a snow storm of cleaning, I packed the kids up in my car and headed on the long trip to visit my mother-in-law. Paul left to spend a couple of days with her early in the morning, but I couldn’t rouse the kids before noon. My MIL, Martha, has stage 4 terminal lung cancer. She drastically declined since our last visit. Her figure that once had a little padding is now reduced to grayish yellow skin on bones. Her clothes were baggy, even her glasses were too big for her gaunt face. Her once jet black curls were replaced by patches of gray hair.  She coughed and wheezed with every inhalation. 

Martha was happy to see us. We had a nice visit for a few hours, then went home. The trip home was sorrowful. Angel was certain that she would never see her grandmother alive again since it is almost time to go back to college in a town far away. Our spirits were low. 

So I did what I had to do. 

I took the kids out to a Chinese buffet. I thought maybe it would cheer them up a little. Everyone got a good fortune cookie, except Alex. His fortune cookie was empty. I’ve only saw that happen to one other person. Me. When I was his age. It really bothered me back then. I thought that perhaps I would get hit by a bus or something. Alex said that meant we could create our own future, that we are really lucky according to Google.

I thought a lot the last couple of days about this new year. We were invited to sail the Caribbean with some new friends for their honeymoon. Regrettably, due to my MIL’s failing health, we had to turn down our spot on the love boat (yuck anyway). Instead, we will stay closer to home. This next weekend we are heading to Chicago as my daughter Angel was lucky to get tickets to see Hamilton.  
Being in a musical is just a much fun (if not more) than watching them. Angel has a lead role in her college opera this spring. Paul, Arabella, and I are going to try out for the local community theater musical this week. I am hoping to get the part of a floozy. I haven’t been on stage for 5 years and am nervous and excited to be back.

Paul and I will be celebrating our 20th anniversary this summer. Where did the time go?? We will go on a week long sailing trip to celebrate this summer. However, we decided to not go to Tahiti next winter to celebrate but chose Thailand instead. We have friends that live over there. What is better than having our own tour guide that speaks our language to show us around off the beaten path?? We are planning on visiting Bangkok April of 2018 for their New Year festival. It is very hot and humid during that time, but we want to go to celebrate their New Year as they have several days of country wide water fights. It would be the trip of a lifetime. Plus I would get closer to checking off visiting all of the continents off my bucket list especially since I have never left my own continent.

So, I will save my pennies and look forward to sunnier days during these dark times.

I hope that you all have a wonderful new year! 

Boot thief

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I am going to take the kids to see my mother-in-law this weekend.

The last time I visited, she accused me of stealing her boots. She said that someone, possibly my daughters or I, took her boots and left a pair that looked just like hers behind.

I really didn’t know what to say. Why would I steal my dying mother-in-law’s boots?

I admit, my relationship with my mother-in-law Martha has been rocky at times.

I am structured and overly responsible. Martha is spontaneous and irresponsible. She is usually late and she only does what she feels like doing. If she doesn’t feel like doing something, she won’t do it. She might cancel out last minute after she made a commitment. She usually has good intentions.

She once cancelled out of going to her grandchildren’s birthday party because it was going to be too hot outside and we were having the party outdoors. Or it might rain or might snow. Or she spent all her money at the casino and didn’t have enough for gas. Or she had to work. Or she was sick. Or the hot water heater stopped working and she couldn’t shower. Or the car broke down. Or she needed to go shopping instead. All of these excuses have been used.

Some of my biggest pet peeves are when people don’t do what they say they are going to do or when they cancel out last minute without a good reason.

Most of the time, I didn’t argue. The handful of times that I did over the past 20 some years angered Martha enough not to talk to me for years. Martha is always right. It was never her fault. It’s not worth arguing. I just nod my head and smile if I disagree. It is not worth having my children not have their grandma in their lives over.

I am a peaceful person that avoids conflict, but is never at peace. I am the one that is upset. I am the one that is hurt.

I have learned over time to lower my expectations. I am not upset that she accused me of stealing her boots. Martha is a difficult person. Paul and I talk about the things that bother us so it doesn’t fester into something bigger.

Really, what does Martha care if I am upset??

She is the biggest owner of rose colored glasses that I know. She is happy. She talks of all the things she is going to do when she kicks this terminal cancer. She is happy while she is getting chemo. She thinks she is getting better. She has always lived in her dream world of lies. She is happy. She is happy. She is happy..

I am a realist and I am completely miserable.

Some have called me a pessimist and I would argue. But I would admit I am not an optimist. I want to have both feet on the ground. I want to know the facts. I want to know the truth. I see the world as it really is and sometimes that bothers me.

Is such honesty worth it? Try as I might, I can’t seem to change.

 

Over the river and through the woods

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Yesterday morning I awoke with a feeling of trepidation. I think I was nervous. I wasn’t sure what to expect..

I drove over the river (or I should say over the railroad tracks, I’ve never seen so many tracks crossing the highway anywhere else) and through the deep dark woods of WI to take the kids to see grandma (my mother-in-law Martha). She didn’t make it over for Thanksgivng. In fact, she has gotten to the point where she is no longer eating much more than applesauce. 

For years, my son Alex and my husband Paul joined Paul’s stepdad Darryl to hunt. For the last couple of years, Martha would come to my house and spend the weekend playing cards, working puzzles, and watching movies. But she is too sick to go anywhere now. She has stage 4 terminal cancer. The chemo stopped working and the cancer has spread. The guys have been visiting her the last couple of weekends, but I haven’t had the chance to visit for awhile. I felt that it was important to take Angel out to see her while she was home from college for a few days. Will it be the last time?

I was afraid. Afraid of what I would find. Paul has been coming home upset from his time spent there. He didn’t know why. Then after awhile, he said that it was horrible seeing his mother die.

So I was afraid. My stomach felt upset. Would she be in great pain? Would she forget my name like the last time I visited. It’s hard to see someone who was once so vibrant and full of life fade away. She lost over 50 lbs and is just skin and bones. Her hair is starting to grow back in a brown patch of fuzz, so different from her black curly long hair she once had. Her gait is slow, she aged 20 years in a year. 

She was happy to see us. 

I was able to sneak away for awhile to see the deer stands. In all these years, I have never seen where they hunt.  In all those years, they only got one buck. To think just this last week we awoke to find a deer delivered to the end of our driveway, but the meat was not salvageable.  
Regardless, if they don’t bring back a buck, every year they bring back a Christmas tree. 

I had to show you a picture of Alex and Paul at Alex’s tree stand. 

Our visit with Martha went better than the girls and I expected. Martha is such an unrealistic optimist that I think she makes herself feel better. She kept talking about the day that she will get better and be able to come over to visit. That day will never come, but maybe it is better that she believes it.  It was nice to see her so upbeat and not have to see her suffer. The thought of watching a loved one suffer is unbearable.

Thanksgiving break is officially over now. Today I dropped Angel off to catch her carpool for the 4 hour drive back to school. It was strange to see her go back again with her suitcase full. I don’t always like my new reality, but I have learned to accept it. If only I could stop time for just a few seconds…

I dropped Angel off and came home to a glorious blue Christmas tree. I am excited for the beginning of the next holiday season. A time of hope and light. A time of such intense busyness that I forget all of my troubles.. 

I am going to decorate my tree tonight..

The end of the race

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I ran my last race for this year, a half marathon. I was happy with my time, just a few minutes over 2 hours. Although when compared to my running friends, that is not impressive. 

Cori stayed up until 3 AM the night before. She drank a 12 pack of beer. I went to bed by 10 and only had one beer. She beat my time by 10 minutes! Lisa stayed up until 2 AM and had a couple of beers. She beat my time too. Then for the 5k we ran together, she stayed up all night long drinking and was probably still drunk. I went to bed early. She beat my time. WTH? Why am I so slow? I try to do everything right! 

I wish I was an ultra runner. It seems like I am prone to injury. I wasn’t able to finish any race this year without knee pain. This year I planned on running a 5k, 10k, half, full, and my first tri. I achieved my goal, however no PR’s. Every single race day was either hot and/or humid. Then there was my knee. 

Maybe I should find some friends that aren’t runners. Someone who hears the word marathon and thinks of Netflix. I can hear it now…. Wow, a 5k! You’re so amazing! Did you win? Would that be better than trying to do everything right and still not being good enough? Idk. I took second place so I am not bad. So, whatever. I just feel sometimes that they look down at me for not being as good as they are. In my defense, Cori doesn’t work and dedicated her life to running and working out. How can I compete with that? 

After the race, I picked up Arabella and her BFF from camp. I had to do a lot of driving. That made me a little nervous. Would I fall asleep behind the wheel? After I picked up the girls, we headed up north. We stopped by my in-laws on the way. Martha lost more weight since I saw her last. She looked like a feeble old woman walking around slowly with her walker. Cancer, the horrible devastating destroyer. Martha started giving away some of her items. She gave me a platter that she got as a free gift from some casino. I don’t know what to do with all of the “treasures” she is giving me. 

I would much rather hear family stories from her, like who Paul’s father is. Does she even know?? Does it even matter anymore though? Paul will never look for him. I want to hear stories of her childhood and growing up. This is our last chance to really know her. 

Martha’s husband Darryl invited us to stay for supper. He had some raccoons cooking in the crock pot. I politely declined. I’m not sure trying raccoon is on my bucket list.

We finally got to the cabin around supper time. The water wasn’t working and the pump was running nonstop. My dad decided to come up to the cabin to look at it. Thankfully, it was an easy fix. So I ended up spending the evening talking alone with my dad while the girls played games in the next room. It was strange since I don’t remember ever spending the evening up north with my dad without a lot of other adults around. It was actually nice to talk to him. Who knows how much time he has left?

Other than that, the weekend was rather uneventful. It is nice to be done racing for the year. I am already starting the think about next year…

Ready to call it a day…

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It has been a long day…

Paul and I awoke this morning at 6 AM by the jarring ring of his cell phone. His busybody cousin was calling early to tell him that she thought his mother needed more home care. His mother has been in and out of the hospital over the past month with terminal cancer. Martha insisted that she didn’t need home care. His cousin who is a CNA that acts like a doctor said that Martha was lying. Then she started accusing Paul for not being there more. This is a cousin that we have not seen for about 15 years. She swooped in out of nowhere and started taking charge. Paul suggested that if she has a problem with Martha’s care, then she should talk to Martha’s husband Darryl. 

It really wasn’t the best start this morning. Paul felt so offended by his cousin. It is always so terrifying to have a late night or early morning call when you have a dying parent. Who does that?? 

Then I scrambled to work for a half day to find out that the employee that would be covering for me in the afternoon couldn’t make it in because her brother-in-law had a heart attack. Oh, and she told me that she had to take my birthday off for a doctor appointment after I already made plans. So I had to cancel my birthday plans. 

At this point, I am feeling stressed and angry. Not a good morning at all.

I took the afternoon off of work to take my son in for his driving test. We spent a couple of hours before the test having a “crash” course on driving. He only got honked at once. Then he went in and passed the test. Afterwards, he started asking if he could borrow the car for the weekend to hang out with his friends. So now this starts?? I’ve accepted the fact that I am not his number one hang buddy. He is finally starting to talk to me more. Last night he even hung out with me and played his favorite rap songs. I can’t say that I approved of all the lyrics. But he wanted to hang out with me, so I tolerated it. Pathetic, I know. Wait until you have a teenage son that never comes out of his room. I did get a few new running songs though.

Then this evening I have plans to organize Angel’s graduation party. It is only a few weeks away and I have no idea what I am doing. I am not a crafty mom at all. 

I am ready to call it a day already!

Back to the present

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Today I struggled with what to write. I want to go back to my autism series that I started earlier this month but so much is happening in my life right now. How can I talk about the past when the present is exciting, here, and almost gone?? I will finish it though. With the marathon last weekend and my first child’s graduation this weekend, I have a thousand thoughts and emotions running through my head. And it all has to fit into one post per day that should contain an average of 500 words. Lol.

Last night, Paul and I decided to call our parents to try to convince them into going to Angel’s graduation. I called my dad and asked him directly if he was going. Now I typically call my dad twice a year, on his birthday and on Father’s Day. So it was a big deal that I was calling him. He seemed happy to hear from me. He told me that Angel was a nice and good girl. He said that he was planning on going to her graduation. I was floored. Then he even asked me how my marathon went. I was shocked that the whole conversation was very positive.

Then I walked out of my bedroom to find that things didn’t go quite as well with Paul and his mom. Martha was on the phone with Angel saying that she wasn’t feeling well and wouldn’t be able to make it. But this time she is really sick. So sick that she couldn’t make it in to her chemo appointment yesterday. I believe that she is really sick this time. But I liken it to the story of the boy that called wolf. Martha has been calling wolf so many times over the past several years that now my mind finds it had to believe that there is a wolf.

But there is a wolf. Martha has terminal cancer, the big devouring wolf. A few weeks ago, Martha was going to go with me to see Angel perform her solo and ensemble pieces at state. Martha was supposed to be at my house by nine. I waited around until 11:00, Martha didn’t show up or call. By that time I had already missed half of Angel’s performances. At 11, Paul called his mom and she was still at home an hour away from our house. She wasn’t feeling good enough to go but didn’t bother to call. She was going to try to make it out to eat with us later that evening for Mother’s Day.

I knew that Martha was sick. But it still brought up all of those old feelings that I had towards her for standing up my kids. I was very angry and hurt. I drove fast to get to the remainder of Angel’s events. I was pissed that I wasn’t there to support Angel when I told her I would be there to watch her. Then I even started to feel a little guilty that I was angry with my mother-in-law who is dying. So I have become tolerant. I have repressed the years of resentment, hurt, and anger.

It is hard because now I think that Martha might want to go to Angel’s graduation. But it is too late now. She should have gone to more things when she was able to. She should have been the involved grandparent then. Now it is much too late.

 

Our last supper

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Paul and I decided to take his mother Martha out to eat for one last Mother’s Day celebration where we can all be together.

A quick recap…Martha has stage 4 lung cancer that has already spread to her brain. This will most likely be her last Mother’s Day. Plus we were able to go out with all of our kids. This will also be the last time the kids are all living at home since Angel will be in college next year several hours away. So this was the big hurrah!

We took the family out to a Japanese steak house for hibachi. Martha doesn’t get to enjoy fine dining often and was very happy for the opportunity to go out. She was very sick earlier in the day from her chemo, so we weren’t even sure the evening out would happen. We thought about just cooking a nice meal at our house. But since this is the last time, we decided to go to a small quiet restaurant and make it memorable.

We had a wonderful hibachi chef. Arabella even tried some raw tuna sushi to get ready for her trip to Japan this fall. She is very brave. Martha was wearing a baseball cap to cover her bald head. Paul made sure that she received a special chef hat that they reserve for birthday parties. I took a lot of pictures.

When we received the bill, we were told that Martha’s supper was paid for. Someone at the table next to ours covered her bill.

Paul went over to the table and thanked the man. They embraced. Later the man followed Paul into the parking lot. He told Paul that his mother passed away a few months ago from cancer. He wanted Paul to pass on this generosity someday to another person going through the same thing.

Once again, the two grown men embraced. Total strangers sharing a moment of sorrow over their dead and dying mothers on Mother’s Day weekend.

Together they wept in each others arms.

I have never seen two big masculine men sobbing together in a parking lot before. Complete strangers for a brief moment sharing the same pain.

It was very moving.

 

A little down

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I think I am depressed. 

One of the signs of depression is losing interest in hobbies. What if you just can’t do the things you enjoy anymore?? 

If I spend too much time at work, type a lot (write), shuffle cards, or work jigsaw puzzles my carpal tunnel acts up. My hands ache. I need to wear a brace. If I exercise with weights, sometimes I can’t grasp them. Several times a week my hands just let go of items and I drop them. I’ve dropped my phone several times. Lately, I’ve dropped containers of foundation or eye shadow shattering them into powder so I have to throw them out. I have problems opening lids on jars. 

Sometimes my acid reflux gives me a hoarse voice and sore throat which makes it very difficult for me to sing, another hobby of mine.

I have enjoyed running and competing in races, but now my knee hurts so much that I might have to cut back or stop altogether. 

It seems like everything that I really enjoy doing to deal with my stress is being taken away from me. 

I feel depressed that my daughter will be graduating from high school in a few days. She is a lot like me. We have so much in common and have become close friends. Now she will be moving several hours away and starting a new life without me. I am happy for her, just sad for me.

My relationship with my other two kids sucks. My son is currently failing all of his core classes. He is angry at us or depressed when we give him consequences. The hard part is that he has a brilliant mind, but is too lazy and unorganized to put any effort into his studies. I have no control over this. My youngest daughter and I have nothing in common at all. She takes pride in annoying me and arguing with everything that I say.

Work is stressful. Running our own business, having employees, and demanding customers takes a lot of energy.

My mother-in-law has terminal lung cancer and at best has a few months to live. 

I am starting to see my own parents age in new ways that worry me.

Every organization that we belong to thinks that they are the only organization that we belong to. Everybody wants our time, our money, a life blood commitment. 

My husband and I have both been irritable and stressed these last couple of months. I honestly don’t know how much more of this we can take. Instead of people helping us through these difficult times, they drain us of whatever we have left.

So, yeah, I guess I am feeling a little down.