Change

change the system

/ Outrunning my demons / 4 Comments

My daughter is going back to jail today. Trying to get her treatment was a big waste of time. They did change up her medicine a bit. They gave her something to calm her, help her sleep, and for PTSD. I want to know what gave her the diagnosis of PTSD. What trauma??

I called and called the treatment center. Sometimes no one answered the call. One time the nurse said I needed to talk to the therapist. I left several messages with the therapist. The only time she called me back was to tell me my daughter was being released. Apparently she is the only therapist for the whole ward. I asked to speak to a doctor but was told they were too busy because this was their third job. They barely had 5 minutes to talk to patients. From that 5 minutes, they allegedly gathered more information than the patients family who spent a lifetime with them.

Yesterday I finally found a nurse who was willing to listen. I told her my daughter was having delusions. The nurse said Arabella did not report having delusions. I told the nurse my daughter is not aware she is delusional. I told her my daughter is in jail for felonies relating to having delusions. I told her my daughter is suicidal because she made comments of life not being worth living once she is released. I told her I am afraid Arabella will kill herself or hurt someone else from the delusions she is having. I was feeling very hopeful after our conversation.

Then the case manager called and dashed every hope I had. I had plans yesterday afternoon which I was late to because of having to take her call. She said the likelihood of Arabella getting into a group home is virtually impossible. Even if I sell my soul and offer up my firstborn. She said I should look into a residential treatment facility. We decided we are not going to pay for that again. She gave me other numbers to call but said they probably wouldn’t talk to me because my daughter is an adult. She said my daughter will be released tomorrow. They think she is just trying to stay to get out of jail.

I am absolutely livid. The mental health system in the US is one big fucking joke. No wonder why there is so much violence. If only we had a system focused on suicide/homicide prevention and the treatment of mental illness!! My hands are tied. I’ve done everything I could do and it wasn’t enough. I’ll just watch as my daughter hurts herself or someone else.

I have lost all hope and faith in the system. I don’t have a lot of faith or hope left in anything. It takes a lot of courage to continue when everything I do seems pointless.

I just got home from taking my daughter back to jail. It’s very upsetting that she did not get the treatment she needs. Arabella said the therapist only talked to her for 5 minutes and only to ask her why she was in jail. The facility is very understaffed. Even Arabella felt she did not get the treatment she needed. She wanted help as much as we wanted help for her. On the way back to jail, I stopped at the gas station to get her pizza and soda. She won’t be home for Mother’s Day. They will be putting her back into isolation for the next 10 days. She will be spending her 20th birthday in jail in a cell by herself for 23 hours of the day. Something must be done to fix the broken mental health system. Stop the senseless loss of life. I am so pissed and motivated to fight the system and advocate for mental health reform. I had no idea how bad things are. But now that I know, something must be done.

Gratitude week 149

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  1. The first half of the week was unseasonably warm and sunny so we were able to get out and about walking on the area trails.
  2. We had a plumber come out again since one of our pumps was clicking almost non-stop. Turns out we had multiple leaking toilets and once those were serviced it fixed the problem. So, yeah, another home maintenance problem fixed.
  3. I’m also grateful we have a well and are not on a water line. Oh my gosh would that be expensive.
  4. Lunch with my friend Jen at a restaurant I’ve never tried before.
  5. My husband is going strong on his detox diet and is almost halfway done.
  6. We got a dumpster a couple days ago and not only is the future office painted but now the carpet is torn out. I did most of the work myself. Physical labor feels great and doing a home renovation project has always been on my bucket list.
  7. With the dumpster I’ve felt more motivated than ever to get rid of stuff and declutter.
  8. I’ve also been motivated to do a little redecorating. We bought our house furnished and I am satisfied with most of the decor. However, there are some things I really don’t like. The area rug under the dining room table is ugly, stained, and worn so I just ordered a new one I like.
  9. As strange as it sounds for someone my age, I feel like I am really starting to figure out who I am and what I want. I guess that’s the benefit of having adult children and a mostly empty nest. Most of my life I felt the need to be responsible for other people even people I shouldn’t have had that expectation for such as my mom and disabled brother. I’m done with that now.
  10. I’m grateful to have more time to volunteer. It has been a really enjoyable experience to help those in need. I volunteer through a program supported by area churches to give out diapers and kids clothing to families in need.

Gratitude week 127

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  1. I was able to visit with Angel and Dan after not seeing them for a couple weeks.
  2. Opening the cabin up north for the season.
  3. Last minute my brother Luke came up north with his daughters. It was the first time I saw them this year. We played games, went for a hike, and sat by the campfire. It was too cold to swim yet.
  4. One thing that has taken some adjustment, my husband is gone a lot with our seasonal business. I do most of my work out of the house. That being said, I find myself alone a lot for the first time since all the kids moved out. The first night I spent at the cabin by myself. It was different. I was feeling this melancholy nostalgia. I missed my husband, the kids when they were younger, and my dog who went there with us year after year until this year since his passing. I started to feel sorry for myself. Then the next day, my brother came up with his kids and dog. The next door neighbors had kids and a dog. Kids were fighting, the dogs were always trying to get away, not to mention the noise and commotion. It was in that moment I became grateful for the stage of life I’m in. I don’t think I have the energy anymore to be chasing after kids and dogs that get away. I didn’t have to be responsible for anyone and I kind of like it.
  5. I’m grateful for the time to discover what I like to do. I really like going thrifting and to rummage sales. I did both this past week but no huge finds.
  6. Angel and Dan checked out some local city wide rummage sales and asked if there was anything I was looking for they could find, and they did! I have been looking for a motorcycle helmet for Alex’s girlfriend. He only has one and he has been taking his off to give to his girlfriend when she rides with him. Angel found a pink motorcycle helmet for Lexi, her favorite color. Her birthday is next month and I have the perfect gift. Win, win, win.
  7. My mom and autistic brother Matt went up north this weekend too. Matt is more on the severe end of the autism spectrum and is not very socially aware. Two things happened this weekend that are worth mentioning. Matt asked me if Paul was coming up north too. He didn’t ask about my kids. This tells me he somehow knows Paul and I are linked together but that the kids are grown up. I was impressed by his awareness when most of the time he is oblivious to relationships.
  8. The other thing that happened is this…We were sitting around a campfire. My mom asked my 12 year old niece Gracie to move out of grandma’s chair so she could sit there. A few minutes later my brother Matt wanted the chair, so my mom moved out of the chair to an empty chair so Matt could sit there. I called my mom out on it. My mom said she is just a really good mom to Matt. She always gives him special treatment which I am not keen of. Later, Matt wanted my chair and moved all my stuff off of it while I was tending to the fire. I told him I was sitting there and it was rude of him to take my chair when I got up to do work especially when other chairs were available. But he did it anyway and I was pissed. My mom did nothing. A few minutes later Matt came over and apologized to me. I was floored. I never in a million years thought he was going to do that. I actually thought he was coming over to me to steal the other chair I was sitting on.
  9. Matt has been involved in a day program for the last several years for autistic children and adults. It’s made a big difference in his life. I know they have been working with him a lot on social skills and how to interact with people. Matt noticed I was up north alone. But the big thing was he noticed I was irritated at him for his behavior and he apologized. My parents didn’t teach him that. My mom always wanted us to give him special treatment like she does without giving him the opportunity to learn what appropriate behavior is. I’m grateful for this program and that even though he is in his 40’s, he is learning how to interact with others in a way that is also healthy for him.
  10. I’m grateful for warm spring days and cool nights. No need for the heat or the A/C.

Gratitude week 126

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  1. It’s the unofficial start of summer. Yeah! My favorite time of year in Wisconsin. Today the weather is perfect.
  2. We got Arabella TOTALLY moved out this past week. Her room is completely empty which was no small task. I really thought it would take weeks if not months to move all her stuff out, so I am grateful for that.
  3. I am going to make her bedroom into my office after summer is over. Her carpet is shot, so I am planning on ripping out the carpeting and painting the walls. I’ll put my desk in there and buy a futon couch if we have extra overnight guests.
  4. There are little kids in Arabella’s apartment building. One little boy, probably 3 or 4 asked if I was the landlord. When I said I wasn’t, he asked what I was doing there. I told him I was moving my daughter in. He had a really concerned look on his face when he asked me who was going to take care of her. What a sweetheart! Made my day.
  5. Paul and I signed up to do some volunteer work to help families in our community. I’m grateful for the opportunity to help others in need.
  6. Arabella found a new waitressing job!
  7. I spent the day Friday going out to eat and shopping with my best friend.
  8. Angel and Dan got their own cell phone plan. It’s hard to believe the wedding is 4 months away! It’s wonderful that my daughter is 100% independent from us now, has a great job, and is doing well. Plus I’ll save money on our phone plan.
  9. That being said, I upgraded to a new cell phone from an iPhone 8. I’m still saving money on our plan.
  10. I started getting WP notifications on my new phone. It’s probably been about a year since I received the last notification.
  11. We wanted to continue with our landscaping project. However, the quote for the little section we wanted done was $4,000. We decided to do it ourselves. Yesterday my son and some of his buddies removed the old landscaping rocks and took out some shrubs. It’s amazing to see the strength and energy of young men. I’m grateful we are still able to do the project at a fraction of the price.
  12. As tomorrow is Memorial Day, I’m grateful for the sacrifice of veterans who served and protected our country at all costs.
  13. I’m grateful for mid-week church services.

What should be taught?

/ Outrunning my demons / 13 Comments

The day I received the diagnosis of arthritis, I mailed a package. In and of itself, this fact is not very blog worthy. I mailed the package at a store which has a counter for the post office.

There was a young man, an employee of the store, that took my package. He inspected it and told me he could not read my handwriting. Specifically he could not read cursive. He needed me to translate what I wrote. I knew my cursive was not bad because back when I was in grade school my mom made me copy out of the encyclopedia (which for many years I worried I was guilty of plagiarism) so I wouldn’t have the cursive chicken scrawl of my dad. Since then no one ever said my cursive was illegible. In fact, most people said my handwriting is pretty good for someone who is left handed.

Young people are not being taught cursive in school anymore and now some of those children who weren’t taught are in the work force can’t read mail. How scary is that? I lamented to my best friend. I felt like I aged 10 years in just one day. She said someday no one will be able to read the documents our country are founded on such as the Constitution and Declaration of Independence. As if anyone is going to read them anyway. Someone must carry on the ancient art of hieroglyphics. That in and of itself is rather scary to me. If only a few are left who can read and translate they can have the power to make it say whatever they want it to say with no one the wiser. History is already being ‘changed’ because we don’t like it. How are we supposed to learn from the mistakes our country made when it was young?

My best friend also said alphabetizing is no longer taught in school, something we learned in grade school. She said she volunteered to hand out the baseball uniforms for her son’s baseball club. She had some high schoolers help her and they had no idea how to put the uniforms in alphabetical order by last name. First you start with A… Gone are the days of massive card catalogs at the library. I can’t even remember the last time I went to the library to find something out. That used to be the only place we could go to find answers. When is the last time you looked up a word in an actual dictionary or looked up something in an encyclopedia? Is alphabetization still something that needs to be taught?

Are there skills you think should be taught in school or removed from the curriculum? I always thought everyone should have some basic skills such as simple car care, budgeting, how to fill out forms such as taxes, how to balance a checking account, basic cooking, repairs etc…

One thing I found frustrating when my kids were in school is that they taught math differently. It was the same problem with the same answer with a different way to do the work making it almost impossible for parents to help their kids if needed. If something works, why fix it? Do we need countless useless updates? Is that really progress? I guess I am a stick with what works kind of person. Don’t change things for the sake of changing things.

Back when I was in high school, I took a class called shorthand along with a classroom full of girls. I should’ve taken typing instead. But shorthand was the rage. We could take notes super fast in little scribbles like on the doctor’s prescription pad. Oh wait, do doctors even do that anymore?? What a waste of time that class was. I even thought so at the time. Do you even know anyone who writes in shorthand anymore? If so, I bet no one can read it if some people nowadays can’t even read cursive. It took as much effort as learning a foreign language without the benefit of learning one. I think that’s one class we can ax. (It was probably already axed 20 years ago).

These are just some of my basic observations and thoughts without being an educator. What are your thoughts? Are there things no longer taught that should be taught? Are certain classes outdated? Should we change things that are tried and true for the sake of progress?

My run is over

/ Outrunning my demons / 11 Comments

It’s official. My run is over.

Tuesday I had an appointment with the rheumatoid doctor I waited 4 months to see. It started out a little rough. The nurse asked what tests I had done. Tests?? What? None, I replied. She said that my visit was probably a wild goose chase and they would end up sending me back to my doctor. I felt discouraged. I knew something was wrong. I mean, just this week I started having a hard time bending my toes. I am in almost constant pain. It’s more of a dull ache, but still.

Next the doctor came in. She listened to all I had to say…that I was a runner for 15 years…started having pain in my joints…having a hard time bending my toes. She did an exam. She heard my knees grind when I bent them. I can no longer bend over and touch my toes. Then there was the pain in my hands and feet. She told me I have osteoarthritis. I also have a bunion on my right foot which is a great source of my pain.

I told her that I could no longer run. The last time I ran I had a lot of back pain and a piercing stabbing pain in my ankle that would randomly come and go. She said I most likely have a bone spur on my ankle and when I would run it would pinch a nerve. The doctor said she didn’t recommend running anymore. Instead I should do low impact sports such as walking or swimming.

It’s difficult because I am sore when I get up in the morning. I’m sore if I sit too much. I can’t do any high impact exercise without a tremendous amount of pain. Even walking hurts. It just sucks. I tried walking with hand and leg weights and ended up with tendonitis in my shoulder. The doctor said I am overweight. Outside of being pregnant, I’m the heaviest I ever was. The doctor said I needed to exercise more. Yeah, I wish I could run and do everything I was able to do before. Of course I’m going to gain weight. I went from running marathons to Netflix marathons. I feel trapped in my own body. It no longer does what I want it to do anymore.

But I do feel better knowing I have arthritis. I knew something was wrong. How do you go from running to hardly being able to walk without something being wrong??

Next month Angel and Paul are running a 10k. This will be the first time I will be an observer of the sport I was once so passionate about. I am a little sad because the time I ran in races were some of the best years of my life. I felt so healthy and alive. I’ve accepted that my run is over. Recently, I donated or threw out most of my running gear. I guess it’s on to a new phase of my life whatever that will be.

I was worried (and pretty much everyone I told asked) I caused this arthritis in myself by being a long distance runner. The research says that is simply not true. You are at higher risk of developing arthritis if you are a professional athlete running 50+ miles a week which I am not. The research I found said you are more likely to develop arthritis if you are obese living a sedentary lifestyle and not as likely if you are a runner. Honestly, I don’t know why it happened to me. That’s life I guess…you just never know what’s going to happen next.

I once was a marathon runner. Now I have arthritis.

Gratitude week 119

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  1. We joined a new church today.
  2. We had the pastor and his family over for a swim yesterday. They have 7 children, age 13 and under. I got my baby fix in for awhile. The kids were very excited to come over and swim, so that was positive. The pastor spent the last couple months meeting with us and getting to know us, so all in all it has been a good experience and I’m grateful for the time the pastor spent with us. It was probably around 20 hours which is the longest time I think a pastor has talked to us one-on-one.
  3. I was able to do some volunteer work for the church using some of my previous job experience. It was good to help out. It made me really miss the business we used to run. But it’s nice to know those skills still have purpose in helping others.
  4. My tattoo is fully healed. I was able to swim in the pool this week for the first time since getting the tattoo. I was able to get outside and go for a couple walks for the first time since the tattoo as well. The weather has been miserable, but it should be spring soon. Someone told me that we had the wettest March since the 1800’s. After about 2 weeks of sitting on my butt, I decided to walk around inside the house with weights. I figured doing something is better than doing nothing.
  5. I am excited to do the spring purge this week and get rid of stuff. Time to bring out the spring clothes and go through everything. I’m going to do some yard work this afternoon. I’ll be picking up branches, raking, and getting on the ladder to replace burnt out light bulbs. I’ve been itching to get out and do something after being cooped up for so long.
  6. Last Sunday we visited Arabella at her new job.
  7. This past week I ended up taking Angel to the ER. She ended up having an ocular migraine (which other people in my family have had but not me). I’m grateful I was able to help her out when she needed me.
  8. Paul’s step-dad Darryl is engaged and we were able to meet his fiancé’s family when we went out for her birthday. They were very warm and welcoming.
  9. My best friend and her family came over last night to visit. Her son participated in the youth hunt and got a turkey right away in the morning which they brought over for us to sample. It’s always nice to get together with friends on a quiet weekend.
  10. I feel like I am out of survivor mode. The last several years have been such a roller coaster ride. It feels strange to have things relatively back to normal. And quite frankly, it is, well…rather boring. I have been feeling less motivated to write. Because what is there to write about?? Mundane things? In my natural state I am very structured, organized, and routine. Who wants to hear about that? Maybe it would be something new. LOL!

The old normal, part 7

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One of the biggest changes since the start of COVID is having an empty nest. When COVID began, I had four teenagers living in my house. Granted, two of them were foreign exchange students. Back then all my children were in school of some sort…high school, tech school, college. Now I don’t have any children at home or in school. That has been a huge change for me.

For almost 20 years of my life I had children in school. I was involved in their education. When they were little, I volunteered in their classrooms. I attended countless sporting events, field trips, concerts, conferences, and ceremonies. My weekends and a lot of week days were booked with kid stuff. My calendar was full. I was driving the kids all over the place. I was interacting with other parents. Then less than a year ago that abruptly ended. A month ago, my last child who was living with us moved out.

It’s been a big adjustment going from being needed to questioning what my purpose is now as a mother whose children are grown up and gone. It’s a strange experience having to only be responsible for me. Seeing moms wrestle in the grocery store with car seats and unruly kids makes me feel free, yet I miss it. It’s bittersweet. It’s so ingrained in me to want to take care of other people that I don’t know what to do with it now that it’s gone.

My life has changed so much in the last two years. The old normal is gone. I’m not sure where to even start. But it is a new beginning, a new season, a new chapter just waiting for me to explore. That can be exciting and fun.

The old normal, part 6

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Before COVID, I spent a lot of time at the gym. I don’t even have a gym membership anymore. How things have changed.

Back in the day, I used to go to the gym three times a week for at least an hour. In the summer, I would run the streets. I did countless marathons, a half Iron, and a 50k. When I first started blogging I wrote about training for my first marathon after reading a marathon training book written by a blogger. At the time I thought I could run a marathon and I could write on a blog, and I did. I even have running in the title of my blog. Over time this blog has morphed into something more than that.

I always thought I would be a runner. I didn’t often see a lot of older runners competing in races, but when I did I thought to myself that will be me someday. Running helped me burn off a lot of my anxiety and stress. I worried a lot about becoming injured because I didn’t think I would be sane without running. I know I have posted before if I couldn’t run someone would need to check on me because I would not be okay.

Then the world changed. When COVID hit my gym closed and all the races I was planning on running got cancelled. Not long after that, I had a 10 day bout of colitis that knocked me off my feet. A month later it was hard for me just to put the laundry from the washer into the dryer. I thought I would never be able to run again. I was able to but I lost most of what was left of my endurance. Then I started to experience joint pain which made it all but impossible to run without being in pain.

I’m not sure what is wrong. It could be a number of things or it could be nothing at all. I have an appointment scheduled with a specialist in May. My doctor thought the joint pain could be related to colitis. I recently read stress and trauma can cause inflammation like I have. Or maybe I overused my joints by all my long distance running. I also saw it could be a symptom of perimenopause. Or maybe I’m getting arthritis like some of my other relatives did. I started noticing bumps on the knuckles of my fingers. But until I see the doctor I’m just guessing.

I started doing low impact workouts but I find them to be frustrating because it doesn’t feel as if I am doing anything. I had to take a step back because I just couldn’t do it anymore. I miss running, I really do but I don’t feel like I will not be okay without it anymore. I don’t need to beat the hell out of my body anymore. But I don’t want to do nothing either. I’ve gained some weight. But is it realistic to think I’ll always be able to keep a youthful figure as I age?

Sometimes now I run into people from my running days. I’ve been asked what race I am training for. It’s hard to admit I am much more of a walker now. For 15 years I identified as a runner. Now it’s just another area of my life I don’t know who I am anymore. But one thing I can say for sure, I can live without running. I am okay. I never thought I would be saying that. Now it’s time for something new. I’m just not sure what that is yet.

Navigating life

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I can’t remember a time when I didn’t struggle with depression, anxiety, insomnia, and nightmares.

Why should I expect that to change? The likelihood of no longer struggling with these things is about as likely as me waking up one morning with schizophrenia. It’s probably not going to happen. I was thinking about these things while I laid awake the other night.

Some things have changed. I started taking medicine prescribed by my doctor to help me sleep at night. It works better than nothing. I still struggle with insomnia and nightmares. The insomnia part has improved, but the nightmares have not.

Do you ever have dreams where you are falling and you wake up before you hit the bottom? I don’t wake up anymore until I’m dead. Sounds strange, right? In the last week, I’ve had two dreams where I was shot point blank, heard the sound of gunfire, and woke up after I died in my dreams. The nightmares just seem to go on forever. In one of the nightmares I was shot while I was cleaning my house. I mean, seriously??

Then I got to thinking, people really don’t change either. Most of my childhood I believed my autistic/schizophrenic brother would become normal again. If only we could find the right doctor, the right diet, the right medication. I was waiting and hoping for this. God was going to heal my brother. I didn’t know what this was going to look like. Would he be able to suddenly read and write like me or was he going to start life over in his toddler years. I thought it was going to happen, but it never did.

When my own daughter started having mental health struggles a couple years back, I thought the same thing. If only I found the right doctor, the right medication, the right inpatient program, outpatient program, etc.. Surely an expensive residential treatment facility would do the trick. But it didn’t cure her. It didn’t take her mental illness away. She is not the same person she was before. She will never be that way again. She may decide to end her life someday and I have to accept that and love her where she is at. That’s a hard pill to swallow.

After my dad committed his crime, there was a period of time where I was under the impression that he accepted the Lord and was a changed person. I wanted so badly to believe that was true. I thought maybe he would finally be the kind of dad I always wanted. But guess what? Nothing changed.

If I pray more and have enough faith, then my anxiety will go away. I used to believe that too. Maybe something was wrong with me because when I prayed for my struggles to go away, they didn’t. I don’t believe people anymore when they tell me those kind of things. It sounds like a gimmick to me. God is bigger than that. I don’t see God in that way anymore. I think faith is a wonderful coping mechanism. But I think people do more harm than good by telling others if they do certain things then their sibling, their child, their parent, or they will not struggle anymore.

Miracles do happen, but they are truly one in a million. I’m better off accepting that the way things are will probably be the way things will always be. If I look at it that way, my life makes a lot more sense. Look at the patterns of behavior. It’s very simplistic, but for me it was a real aha moment in the middle of the night. People don’t change. They may grow and mature over time like a baby turns into an old lady. But it’s still the same person with the same strengths and weaknesses with a little more wisdom and mindfulness on how to navigate life.