childhood

Self-therapy breakthrough

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Last night I dreamt about Matt for the first time that I can ever remember.

Yesterday I went to the mall shopping with Arabella and my mom. My mom spent most of her time worrying about getting back home because she had to give Matt his medicine. Frankly, it didn’t bother me much because I wanted to go home early because I hate shopping. It was my daughter Arabella’s choice for a girls day and she picked shopping.

As I mentioned before, my brother Matt is autistic and most likely schizophrenic as he hears voices that tell him to hurt people.

As a child Matt would:

  1. Have psychotic fits out the the blue where he would be violent towards himself or others. I don’t believe that this was within his control.
  2. Have episodes of anger where he would be violent towards himself or others when he was asked to do something he didn’t want to do. I believe this was within his realm of control.

Sometimes it was hard to tell the difference between the first and second scenario. Matt did not have a lot of chores besides unloading the dishwasher. When asked to do that, he would sometimes hit himself on the head. Matt did have a lot of trouble in school. When asked to do his school work, he would often attack his teacher or his aide.

There was a time when Matt was schooled at home due to his extreme psychotic outbursts. The district sent a retired school teacher to our house. That woman was a saint because she was strict while loving. Some days Matt didn’t cooperate and she had to leave early.

Later Matt went back to the public school. At one time, my best friend was his aide. When asked to do work, he often attacked her just because he didn’t want to do it. One time after he attacked her, she called the police. They came to the school and hauled my brother away in handcuffs.

After that incident our lifelong best friendship dissolved. And I wonder why I have trust issues with friends??

I had a dream that Matt and I were at an amusement park. I was watching him. I told him that he couldn’t go on any more rides because he hurt me physically. My mom overruled me and said that Matt could go on the rides. I told her that if she wanted to have Matt go on the rides that she could take care of him. Matt was angry at me for saying no to him so he hurt me. He spit on me. Then Matt hurled himself off of the cliff. He landed grotesquely on the pavement below. I was afraid that he was dead or seriously hurt. But the feeling that I felt the most was guilt.

I woke up realizing for the first time that Matt hurt people when he was having a psychotic fit and when he had to do something he didn’t want to do. I feel angry that he was never told that his actions were wrong. It would’ve made me feel better, like there was justice, even if he had absolutely no control over it.

Matt had total control, but no one else ever saw it that way. Was I wrong? I don’t think so. Matt was in control of our house and he wanted things his way. If we were all packed up ready to go and he wanted to stay, we stayed. If we were all too hot to sleep but he wanted the fan off, it was turned off. Anything that could set him off was taken away. One Christmas a boyfriend gave me perfume, I threw it away because I wasn’t allowed to wear it because it might set Matt off. We had to live our life around the god of what might upset Matt. Matt had to have things his way or somebody was going to get hurt.

You have no idea what it is like to be forced to worship that kind of god or how it messed up my life. I am just beginning to realize.

Chaos reigned which is why I need to live in a controlled environment today. I like my schedule, routine, and organization. It is my security blanket. I like to control the temperature and lights in my house, etc.. I learned to have control over the little things to find comfort. The things that most people don’t care to have control over like the placement of an object on the shelf. It is safe. I go absolutely crazy if someone tries to take my control away which is not even a bit logical. It gives me extreme anxiety. Turn on the lights right after I turn them off and see what happens. It makes no sense.

I have also learned to have a great amount of control over myself. Me. No one I know can beat my self-discipline with the possible exception of my brother Mark. At times I make myself hard to love. I am tough. I have high expections on others and even higher expectations for myself. I embrace pain and deny myself pleasure. I guess that is what attracts me to long distance running.

I am too old now for a baby security blanket. I have to learn to be able to rest without it. But I can’t relax.

I’ve made a tremendous amount of progress on my self-therapy.

This session is over.

Healing wounds

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My mom hasn’t been feeling well since she retired. At first, the doctor thought that she was having problems with her gallbladder. But instead, she found out that she has an ulcer which she attributes to the stress in her life. I think that working and keeping busy kept her mind off of it. I understand because that is how I cope.

It has been a rough year for my mom. It’s been hard since she took my brother off of his anti-psychotic medicine due to some health issues. Matt started hallucinating again and became fixated on wanting to hurt my brother Luke’s daughter.

My mom was looking out for the best interests of Matt and my brother Luke was concerned about protecting his family from Matt. This caused a lot of conflict.

It stirred the demons from our childhood within Luke. This was a very painful time for Luke. But it was also a catalyst for him to process, deal with it, and heal. I’ve found that the healing process is very difficult. It has forced both of us to deal with feelings that are unexpected that we have never processed before.

It is hard for my mom. She says that it is very hard to deal with a child that isn’t okay. She spent day to day just trying to survive. I can understand that more now that I have teenagers. I worry all the time about how the decisions my son makes will affect his whole entire life. It’s a heavy burden to carry worrying that your child is falling but nothing you can do will pick them up. I somewhat understand.

Luke feels a lot of anger towards my mom for favoring Matt over him and even over the safety of his children. Matt will always be first in my mother’s life and I have come to accept that. I was once in Luke’s place when Matt wanted to hurt my kids. I had to have boundaries. I had to be the bad guy. I had to isolate myself from my family when I needed their help the most. I understand.

It’s not easy and there isn’t an easy answer. Some good has come out of it though. Luke started the healing process. We have been having a lot of deep conversations and working through this together. For the first time, we have each other. Sometimes good can come out of bad. This has given us strength that we never thought we had.

Matt has been back on his medicine for awhile and is passive again. The voices in his head have been quieted. It’s surprising how long it has taken for the rest of us to heal our wounds. Slowly, surely we are on the mend.

New endings

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I was planning on writing something inspirational today. But, hey, it’s a stormy Monday and I’m just not feeling it. I feel sad and tired today.

This past weekend Angel left to start her junior year in college. She really doesn’t need us anymore. Her boyfriend helped move her in. I guess I always feel sad this time of year. But with each passing year, it does get easier when she leaves. It is also hard to think of summer ending when we know the harshness that lies ahead.

Angel left on a good note. Even her brother Alex and her are getting along.

We’ve been struggling with Alex. We have a college tour scheduled in a couple of weeks and he just said that he is no longer interested in going to college. The only thing he wants to do with his life is music, which will be a difficult path even if he does go to college. Now that he is an adult, he is ready to move out. We have been talking to him and giving him advice, but he has no interest in listening.

We are out of touch and don’t know anything. Wait! I thought that was my parents, not me!!

I suppose it is the natural way of life. You have so much wisdom and experience to share with your adult children, but they just want to do it their own way. No one ever told me it would be so hard to see them making the wrong decisions. It’s laughable actually. I thought that when my kids became adults I would be done with this. But it is actually one of the hardest parenting times ever. For the first time ever, you have to learn to walk away.

My youngest daughter Arabella will be starting a new school next week as a sophomore. She decided that she wanted to get up early this week and prepare herself for having to get up early for school. She stays out of trouble, gets good grades, and has a job. She is very responsible. But will that all come to a crashing halt in the next couple of years?? I am afraid of that, but this time I am totally prepared for it.

I feel disappointment and sorrow. Maybe I need to change my focus from all that is going wrong to all that is going right. I have to let go and move on with my own life. I did everything that I could do.

 

Luke’s visit, part 9

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We didn’t spend the whole time talking when Luke came to visit. Although I must say that I didn’t talk a lot. I spent a lot of time listening, transfixed by Luke’s words. It was the first time he spoke about our childhood with any meaning.

I think that through his struggles, he has gained new insight, wisdom, and purpose to his life.

Maybe our suffering wasn’t in vain after all.

Doesn’t a brilliant rainbow first need rain?

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We invited Luke and his family to our new house and out sailing for the first time. Luke’s youngest daughter wanted to jump off the balcony into the swimming pool. Not a good sign for the upcoming teenage years. She also wanted to buy a sailboat, but said that she didn’t have any money. She is so funny that I think the carefree comedian Luke is still living on.

Paul patiently taught the kids all about sailing. I think someday he would make a wonderful grandpa. My dad spent a lot of time ridiculing us for things we didn’t know and called us stupid when we came to him with questions. But as I watched Paul and Luke with the children, I was happy to know that they are both wonderful fathers without ever having had wonderful fathers.

Sometimes our struggles can become a blessing.

 

Luke’s visit, part 8

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Over the past year, both Mark and Luke quit drinking. I was a little worried about Mark a couple summers back. One morning he started drinking at the cabin before most of the family woke up. Luke was always a drinker. He knew everything there was to know about beer. Luke was also the comedian. He’s not funny anymore. It’s strange that I felt some sadness at the loss of his role. He always made us laugh which made going through hard times easier.

Luke was upset that our parents did not seem to want to hear what he had to say to them. He told them that he needed to talk to them for him. It wasn’t about him being emotionally supportive for them anymore. He needed this for him to heal. He quit being the comedian not all that long ago. But making us laugh made us feel better, not him.

Luke stripped himself of all coping mechanisms and dove right into the truth. He is relying on God to get him through this. Me, I like to dip my feet in the water and keep my coping mechanisms nearby. Maybe I’m okay with the lies I tell myself until I am ready to face the truth. What is wrong with that?

Mark played the part of the invisible middle child. He had an important role too. He was the one who advocated for my dad when my mom packed up the car with her stuff and was ready to leave. He kept the family together.

I played the part of the caregiver/counselor. I was always the ultra responsible first born. This has been my role since I can remember. I think it is going to be hard for me once my kids all leave home. I cared for my autistic brother Matt since I was a little kid. I still was his caregiver after my children were born up until he started acting violent towards them. Then I had my own family to care for.

Luke asked my husband how I cope. Paul told him that running helps me cope and it does. I don’t drink to cope. I could never let anything control me. But is that really true? I like to work and keep busy at all times. Perhaps that controls me since I can’t ever seem to relax. But how can working be a bad thing? What if my coping mechanisms aren’t unhealthy? Who can I hurt by having a clean house, etc?

I like to write about my experiences. But on the days when I write about the most difficult times, I feel very depressed. Paul said that although writing seems good for me, maybe I need a counselor. But I stubbornly resist the notion of anyone helping me with anything. I don’t want help. I don’t think I need it right now. I want to work through this on my own.

I will be okay. I am healing. But it is not always a beautiful process.

Luke’s visit, part 7

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Suppose that a little girl whom you were close to died.

In the first scenario, I want you to imagine that the girl died in a tragic accident and was killed unintentionally by one of her friends.

In the second scenario, I want you to imagine that the girl was brutally murdered.

How might you feel in either scenario? Would the loss of someone close be the same regardless of how she died? Could you blame someone if they didn’t intend to hurt another but did? Is it okay to be angry even if it was an accident?

It’s easy to be angry if that feeling was justified. But what if it is not?

Sometimes I feel angry at Matt. It is hard to justify feeling anger towards someone severely mentally ill. I don’t think that he intended to be violent towards us, his siblings. But the end result was the same, he ruined our childhood.

Luke said that when he was younger he told Matt to hit a wasp nest with a stick. Matt got stung.

We were told that feeling angry was bad. Yet we still felt that way.

Sometimes it was hard not to feel angry at our mother for favoring him so.

But isn’t it natural to want to soothe the baby that is always crying?

Luke said that he needed to have boundaries. He told our mom that he didn’t want to hear about Matt unless he asked how Matt was doing. Our lives don’t revolve around Matt anymore. It was hard to break away from that. But we needed to break away from that to heal.

It is okay sometimes to feel angry.

 

 

 

 

Luke’s visit, part 6

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I don’t like it when people touch me, neither does Mark.

Luke has always been an affectionate guy.

Maybe it just boils down to personal preference. We had the same upbringing.

We remember the bite marks on our arms, the scratches, head butts, eye pokes, kicks, punches…that we received from our autistic brother Matt.

My dad seemed afraid to hit or hug me. He would tickle my brothers and I which was miserable because he just wouldn’t stop when we told him to.

Touch was not usually a good thing, but I did like my grandma’s hugs.

My dad was not gentle in any way. He would squeeze my mother in hugs too tight until she would cry out…stop you are hurting me. Her cries would draw in my little brothers. They would jump on my dad and try to get him to let go while he swung at them like pesky mosquitoes. It was all a game.

Now Luke was a mama’s boy, which really seemed to bother my dad. If anyone tattled on Luke, he would get it. Mark and I never got spankings, but Luke always seemed to get in trouble. He hated my dad and did a lot of things to bother him like cutting the cords on his electronics. Mark and I never really did the things that would fuel my dad’s anger.

There are some things I feel bad about. Sometimes my dad would fly off the handle with Luke about minor things that I tattled about. There was also a period of time that Luke looked to me to be a second mother. He clung to me and I pushed him away.

There were times when my dad was a little rough with Luke and Matt. But most of the scars came from Matt. He would out of the blue attack someone. It would bother me that no one told him what he was doing was wrong. In fact, if we tried to defend ourselves or retaliate, we were punished. He couldn’t help it, but we could.

It was always hard to see Matt hurt someone, stranger or friend. Sometimes we could see the signs beforehand that he was was agitated. I always felt guilty that I couldn’t stop it from happening. Sometimes I felt responsible for it. Maybe if I noticed sooner, I could’ve stopped it. Why should I feel responsible for my brother’s actions?

His actions had a direct effect on my life. It was the reason that friends weren’t allowed to come to our house. It was the reason I lost friends. It was the reason for my isolation. Matt was so violent that he wasn’t allowed in school for 3 years. A teacher came to our house for Matt. My mom pulled us all out of school. I spent one year of middle school and two years of high school at home. I only saw my friends a couple times a month.

My cats became my friends. Sometimes Matt would hurt them. If they tried to come in the house, my dad would pick them up by the tail and throw them out. But I always let them sneak in my bedroom window.

There was nothing normal about my childhood. Yet here I am trying to live a normal life.

 

Luke’s visit, part 5

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I don’t understand why he did the things he did. I don’t like to think about it, much less write about it. It makes me feel incredibly sad to tell you all of these things.

We didn’t travel much as kids. The only place we ever went to was the family cabin up north. I can’t even remember one family meal at a restaurant. Matt’s violent and disruptive behaviors made it nearly impossible to be welcomed anywhere.

I didn’t like the weeds in the water at the lake. Oftentimes, we would walk to our neighbor’s cabin nearby to swim. They raked by their dock giving them a sandy beach. They knew my parents and were okay with it, although I never remembered asking and they always glared at us.

There was that one time that my brothers and I thought it would be a great idea to throw the neighbor’s decorative rocks off the end of their dock. They were so angry. We were too little to get them out of the water at the end of the dock, the water was over our heads. My mom didn’t swim.

After that unfortunate incident when my brother almost drowned, we were always watched more closely in the water. It was my dad’s idea for my mom to put me in charge as a 6 year old of my 3 younger brothers in the water. They thought I would holler if something went wrong, but instead I froze when Luke went under.

After that, my mom would sit on the neighbor’s dock in her lawn chair to watch us swim. Sometimes if my mom wasn’t able to be there, she would send my dad. He was never really happy about that.

We didn’t have fun playing in the water with dad. He would grab our ankles while we swam under water and yank us back making us choke, sputter, and gasp water. It was all a game, like tag, you see. He seemed to think it was fun.

He thought it was terribly humorous that I was afraid of weeds. He grabbed my little body and planted my feet far away from the sand into the weeds. The few minutes he forced me to stand there seemed like hours. I was so terrified feeling the slimy weeds and what I imagined slithered underneath. Even to this day, I rarely like my feet to be uncovered.

I cried in terror and when he finally let go, I ran as fast as I could through the weeds to shore. All the while, he called me names and threw mucky weeds, a dead fish, and sticks at me. Then he swam back to our cabin through the weeds. He said that I was such a baby for being afraid.

But I still loved the water. I wanted to learn how to swim really good. My mom gave us basic swim lessons so we didn’t drown but said I couldn’t take the advanced class because they had doctor bills to pay for Matt.

Last summer I swam across the lake up north. I swam right through the weeds even though I was scared. I even competed in a Half Ironman. But I always remained a beginner swimmer.

My brother Luke’s daughters are really good swimmers and are on the swim team. My oldest niece, who is just 10, competed in her first triathlon this year. Luke set up a mock triathlon course for his girls up north. At least I am glad that he is the father that our dad never was. They have been given so many opportunities. They don’t have to grow up being afraid.

 

Luke’s visit, part 4

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When we were young, my dad was a very cruel man. He is not like that anymore.

Luke said what terrified him the most was the train. It was one of his earliest memories. He remembers dad inching closer and closer to the tracks while the train was passing. He hid crying in the back window of the car as my dad and brother Mark laughed. He said I wasn’t there.

I don’t remember this being an isolated incident. I was there. I almost forgot about this. The train did not terrify me. I liked to wave at the man in the caboose when mom took us on walks. As kids, we lived near the railroad tracks. I found the sound of the train’s whistle to be rather soothing at night. We even saw a train derail in our lifetime, but not on those tracks.

I remember my dad doing other things like crossing the tracks right before the train passed. But I think he found much more satisfaction in waiting for the train to pass. He inched closer and closer until the front of the car seemed to kiss the side of the train car.

If you get really close to a train, it is squeaky and loud. The cars teeter and rock back and forth making an awful grating noise. Sparks fly. It seems like it could come off the tracks at any moment and destroy the car in a big ball of fire. My dad took the opportunity to scare Luke or any of us whenever he had the chance. I remember this happening several times with the train. I was there, but Luke does not remember that.

We couldn’t comfort our terrified sibling otherwise it would probably be our turn next. Compassion and empathy were not rewarded. In fact, they were more of a weakness. Laughter was probably the safest response. If you laughed or acted like it didn’t scare you, he wouldn’t do that to you. I often responded with no response. But Luke was terrified and I think he was too little to hide it.

My dad did other things to scare us in the car. He drove fast and laughed at us if we tried to put on our seat belts. He drove fast over hills. He would taunt us by saying that he had no idea what could be waiting on the other side of the hill. I was big enough to see out of the window, maybe they weren’t. There could be a family walking on the other side of the hill….a dog…another car and he wouldn’t be able to stop from hitting whatever could be on the other side. Sometimes he would drive up hills on the wrong side of the road.

I’ve had nightmares about him driving fast or going up steep hills not knowing what could be on the other side. I think it was also the root of my struggles with a fear of driving, especially hills. I was afraid of hurting someone. I was afraid of not having control over that. I couldn’t see what was ahead of me.

Today I am obsessed with conquering my fears. If the fear wins, so does my dad.

I built a big wall around myself. I have a thick shell. But maybe somewhere inside is that little girl who is kind and caring.

I don’t think that my mom even knew about the things our dad did when she wasn’t around.

 

Luke’s visit, part 2

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I suppose since you have a big house now that you will be hosting Christmas this year.

It wasn’t the first time I heard this comment…

I told Luke that I didn’t really like an aunt and uncle of ours.

Why?

Because of the time that they came over for supper when we were kids.

What about it?

They had the house with the piano. They wanted us to come live with them if mom and dad left us forever. That evening while we were eating, Matt hurt our aunt. It wasn’t unusual for Matt to hurt someone.  It was our aunt who was acting strange. She locked herself in the car crying hysterically. She could not be comforted. I’ve never seen her so upset before or since.

Suppose that our aunt was attacked and Matt triggered her memory of it.

Aunt left and didn’t come back. They said that they didn’t want us to come live with them in their house with the piano anymore.

Who told you that?

Mom. She cried and said that no one cared. She said things would be different if her mom was still living.

How old were you?

I don’t know, maybe 8 or 9.

You were too young, why would she tell you that you were unwanted?

Something strange happened in the course of our conversation. For the first time I was able to see the event through adult eyes.

I was able to let go of the rejection of 30+ years. My aunt has always been kind to me, but I didn’t trust her since that night. Other family members cared. They were busy living their own lives. Some were only a few years older than me. They saw what was happening but didn’t know what to do about it. Some lived far away. The ones that were near did help.

My mom just needed more help than anyone could reasonably provide.

So I became the helper. I became the adult.

I have forgiven my family.

Someday I will forgive my mother too for my lost childhood and for giving me this heavy weight to carry. I think it is time to start unpacking my baggage.