depression

Would you rather?

/ Outrunning my demons / 3 Comments

Would you rather…be hurt or watch someone you love get hurt?

I’ve been overthinking again.

Maybe the dreary weather has been making me all dreary inside.

It was my childhood.

I feel alone.

If I said I grew up with an alcoholic parent, many of you could relate. But my parents rarely drank. It wasn’t that.

How could you understand?

My autistic/schizophrenic brother Matt hurt me again and again. He threatened me with a knife. He kicked, clawed, bit, hit, scratched, pulled my hair, and punched me on a regular basis without consequences.

My dad was either depressed, angry, or apathetic. He neither hit nor hugged me, but he tore me apart with his words.

My mother was more concerned about Matt than anyone else. If a person needed to pull Matt off of someone he was hurting, she was more concerned that their hands would grab onto him too tightly.

I lost my best friend from high school because Matt hurt her. I was the maid of honor in her wedding, but she wasn’t invited to mine. My mom said, “Oh well, you were going in different directions anyway.” But I didn’t have a choice in the matter.

I always defended my mother and her actions. I can’t seem to see that she did anything wrong.

I always demonized my dad. He never did anything right.

My parents fought a lot. Luke and I sided with my mom. Mark sided with my dad.

There must’ve been some coping mechanism in place to view someone as all bad or all good. Any thoughts to the contrary are declined. I can’t seem to break through it.

When Matt grew up, he threatened to hurt or kill our children at some time or another. Did I expect things to be any different?

How could I feel angry at Matt when he is severely mentally ill? His mind thinks like that of a young child forever.

So I walk this journey of healing alone, or so I think.

I was thinking about it this morning. My brothers Mark and Luke lived through this hell with me. I always thought I had it the hardest because not only was I expected to be a caregiver, I was at the receiving end of most of Matt’s attacks.

But then I thought about something else…

Is it easier to be hurt or is it easier to watch someone you love being hurt and not be able to do anything about it??

I know, I am starting to sound like the horrible ‘Would you Rather?’ game that my daughter has. Would you rather stab yourself in the eye with a needle or nail your hand to the table??

I would rather not be hurt at all. But, I would rather be hurt than to watch a loved one suffer and be powerless to do anything about it.

I recently came to the realization that my younger brothers are victims in this as much as I am. The sound of me crying is etched in their minds. They are haunted by the same demons.

It was my brother Luke’s birthday this week. I wished him a happy birthday and this is how he replied…when we have time, I would like to talk more in depth about when we grew up if you would be open to that.

We never really talked about it, our childhood, in depth.

He wanted to know if I would be open to talking…

YES!

I am not alone, my brothers were there right with me.

 

Switching gears

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As we speak, my daughter is on her way back to college. This is the first time that she doesn’t want to go back. It is because we are cool and all that. Seriously though, it is amazing having a child that wants to hang out with you versus having one that finds you annoying. She is finally able to see us as we really are.

To tell you the truth, I think parenting is a sham. We try to act like someone else around our children. We want them to be better than us. Part of the way we do that is try to hide our weaknesses and mistakes from our children. We nag our teens about being responsible and cleaning their rooms when we were back talking brats that lived in a pig sty like they do. Then suddenly they become adults. For better or worse, the blinders come off. We realize that our child has become a friend because she is really just like us.

We don’t have to lie to her anymore. We don’t have to tell elaborate stories about the tooth fairy, Easter bunny, or Santa. We don’t have to show fake excitement for stupid children’s songs or TV shows. When Angel was little, she was really into Barney. I sure am glad that is over now. If I had to listen to another song about cooperation and sharing from a purple dinosaur while my kids sat in front of the TV and fought, I would probably lose it.

Now we can have fun together and have serious conversations.

There were a lot of last minute dinner dates and shopping to send Angel back off to college.

On Friday, Angel and I went out to eat with my mom for lunch. We went to a local restaurant that wasn’t too busy and what did they do?? They set us up at a table next to and facing a couple with their adult disabled son. The couple was trying hard to get their son to act appropriately. He got up several times and burped loudly. Can I never escape reminders of my own brother??

My mom said that she really wants me to write a book with her. I also feel the mission that I have a story to tell.

I actually have two stories to tell…

The first story is about my brother Matt…growing up with a violent autistic/schizophrenic sibling. I have just touched the tip of the iceberg. There is so much hidden underneath the surface that I haven’t even begun to delve into yet.

But I can only tell the story in small pieces. There is a sadness, melancholy, depression that is hard to explain after diving into the depths. If I spend too much time there, I will surely drown.

I am a broken person, despite my tough exterior. Only a few people truly realize that. You are one of the few people I let inside. Paul notices so many things that others overlook. He understands. We are both high functioning broken people. Silently we weep together. Together we succeed at fighting our demons.

It is hard to find someone on the same level who has survived difficult circumstances. I’m thankful that we found each other.

The second story I was meant to tell is about Paul. So I am going to switch gears a little bit here…but trust me if you can…it will be well worth the ride.

Emerging from the ashes

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I am angry.

I am angry with my mother.

I am angry with Matt.

I am angry about my childhood.

I am angry.

There I said it.

It was difficult to admit and hard to post yesterday about feelings of anger. I must have edited the post a million times as the minutes slipped away. I cut and hacked the angry words away. I almost scrapped the post altogether. I thought about deleting it after I posted it.

Anger…I was taught that it was wrong to feel that way.

You shouldn’t feel angry, it agitates Matt.

You shouldn’t feel angry, he can’t help it.

You shouldn’t feel angry, you are normal.

You shouldn’t feel ANGRY!

You shouldn’t feel angry…

You shouldn’t feel…

I didn’t feel…I stopped feeling. I was numb inside. I could no longer feel pain, but could no longer feel joy. I was empty inside. I became devoid of color. I lived in a cold, barren desert. No more tears, no more laughter. I could stare at the same spot on the wall for hours. I was sinking inside of myself.

My mom sent me to a therapist.

How do you feel, Alissa? I don’t feel.

Yes, you do. Take a look at the feelings chart. I don’t know.

Over time I started to feel again. But the feelings right away weren’t good. I felt everything that I wasn’t trying to feel before. It was a dark place. I was afraid that I wouldn’t make it through to the faint light in the distance. Sometimes the empty void called me back. You don’t want to feel if you have to feel like that.

It was a long journey to get to the place I am now.

I had to lock away the demons that tore at my soul. But I still kept the key.

Sometimes, in the dark of night, the flame from the fire that burns through the keyhole draws me in. I’m curious if I can stoke the fire without getting burned. I keep looking in. I pick at old wounds to see if they still hurt. The scars are starting to fade.

I’m holding the key. I feel strong enough now to slowly unlock the door…

I think the person that emerges from the ashes will make walking through the fire worthwhile.

 

 

Past presents

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I think it was my aunt’s mission to get me drunk at the family Christmas party.

Alcohol…it has a way of bringing me to life. It makes me feel emotions that are otherwise stuffed away. I answer questions less guarded. Sometimes not only do I then like people, but I become the life of the party.

I was cornered. Have a glass of wine. Once it is emptied, it was refilled by another. Normally I might have told her to piss off (but probably in kinder words)…I am in control of my body and how much I choose to drink. But for some reason, I didn’t care. My aunt through marriage is a very eccentric person and I am drawn to her because she is exciting.

After a few drinks, my aunt started talking about her college days. Apparently she was in a sorority and could drink most people under the table. She started asking questions about my college days as she refilled my glass yet again.

What I told her was that I spent a majority of my college years taking care of my special needs brother. I told her that my mother needed my help so I stepped up to the plate.

What I didn’t tell her was that I only applied to one college, the one closest to home. I didn’t tell her that I never went to one party when I was in college. I didn’t tell her that my mom had a hard time keeping minimum wage caregivers for Matt because he was violent towards them. I didn’t tell her that Saturday night was shower night for Matt, not party night for me. This was the night I bathed him like a small child, not like a slightly younger brother.

My aunt told me I was gypped. Why didn’t my mother put Matt in a group home sooner so I could have a somewhat normal life?? She told me that she saw all these things happening to me but there was nothing that she could do about it.

Her words brought tears to my eyes that threatened to drop. I didn’t want her pity. I told her it made me a better person. That is just the type of bull I say to make people stop seeing me as a victim. I view myself as a strong person, not in any way am I weak or to be ever portrayed as such even though I once was. This is the protective shell I cover my hidden vulnerability with.

Has it made me a better person?? In all honesty, probably not. I don’t believe that I would’ve been a ‘bad’ person if I went to a keg party instead of staying home on a Saturday might to bathe my brother.

Usually I just keep my mouth shut about topics that could lead to conversations about my childhood. I don’t like people picking at my scabs. I feel very hurt that I was robbed of a childhood. It has been a great weakness for me as a parent. I’ve spoiled my children by giving them the childhood I never had. Deep down inside I feel hurt, anger, and resentment towards my mother for taking that away from me. I feel guilty because I know that my mother did not want it to be that way.

I am living the best years of my life right now, but I can’t seem to escape the constant reminders of a painful past.

Running update

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Good news! I was able to go for a 10 mile run today without pain!!

I think that cutting back in my running helped my body heal physically.

But it was not good for my mind.

I was starting to get depressed. I felt like life was meaningless. I felt like I had no purpose or reason to get up in the morning. I struggled to keep the tears from my eyes. I was edgy…moody…irritated. I felt like there wasn’t one person in the world that cared about me.

I know that those feelings are not real. My life is actually going pretty good. I’ve surrounded myself with so many people that care.

Not running does strange things to my mind…so it is good to be back on my feet again.

Thanks for your thoughts, comments, and prayers. I really appreciate that you take the time to follow the winding story of my crazy life.

Wow! See? I’m feeling better already!

Run off

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Today I had my first run after taking a week off. I ran 5 miles wearing an ankle brace. It wasn’t totally pain free, but it was feeling better than before. At this time, I decided to keep my leg in watch mode. I hate being in watch and see what happens mode. I want answers. I want solutions. I hate uncertainty.

I was doing some reading online about stress fractures. It said that women in their 40’s were more likely to get stress fractures from running due to brittle bones. Milk was a rarity in our house growing up, so I do worry about it.

Over the week I’ve had off of running, I could feel my mood plummet. There was one morning I woke up crying. I’ve wanted to withdraw from people and write my stories. I seem to feel the need to tell you the dreary and sad stories. But I don’t want to make you feel sad when reading them. It is a conundrum.

I’ve also felt edgy and irritable at times. I have to work extra hard to make sure my filter is on before I speak.

I got into arguments with my kids this morning which is unusual. I think it was justified.

I got into Arabella’s case for getting up 5 minutes before the bus came to pick her up. She didn’t even have time to take a shower.

I got into an argument with Alex too. Arabella and Alex are staying after school for after school activities. I asked Alex to bring Arabella home. He said that he didn’t want to wait for her since his activity let out before hers did. Now I have to pick her up.

I don’t ask a lot from my kids. But when I do ask, I expect them to do it. I usually don’t give them chores over the school year like I do in the summer. I feel very conflicted about this.

As children, my brothers and I had a long list of chores. At first, I worked outside with my brothers until I almost hurt myself carrying a really huge log to impress my parents. After that, I was no longer allowed to do outdoor work. As soon as I was tall enough to reach the clothes line, I was in charge of the family laundry. I also had to help my mother make meals…grating carrots, washing and cutting vegetables..simple boring stuff, and I was in charge of cleaning the kitchen.

There is a part of me that wants my kids to be children. I want them to have something I didn’t have, a childhood. There will be enough to do around the house when they are adults. They will figure it out.

Plus I am always fighting myself with wanting things to be done right. No one else knows how to do things right like I do. I really don’t know why I need to feel some sort of control over things that probably don’t matter. Who cares if the towels are folded wrong?? Or if the Teflon pan ends up in the dishwasher?? Apparently I do!

All I ask of my children is to keep a clean room and pick up after themselves a little. This is certainly not done up to my standards.

When I do ask for help, I expect a gracious response. Of course, I will help you mother. After all, I pay for my son’s gas for the car I bought for him to use. Although that may be coming to an end soon.

I tried to give my children everything I didn’t have and probably ended up spoiling them.

My son also said unkind words about his sister. He is now going out with a popular girl. He does not want to be seen with his unpopular sister. He said that he didn’t want to do her any favors, but I told him that it would be me he was helping. I have no sympathy for his embarrassment.

When I was his age, my brother was exposing himself to my friends. He also attacked my best friend which basically resulted in the end of our friendship.

What did you say about being embarrassed by your sister again?? Maybe I’ll throw that one in his face during our next argument.

I really need to get back into running hard core. I am starting to feel the bat $#!+ crazy coming on….!

 

 

Journal 5, part 2

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5/2/1991

I’m only going to eat one meal a day or else I will be sick. When I was younger this worked all of the time until I felt better..

It is true that sometimes the needs of the ‘normal’ kids get swept under the rug when there is a special needs child in the house.

I know now that I have been a lifelong sufferer of GERD. I didn’t know this as a child. All I knew was that I had stomachaches all of the time. When it was really bad sometimes eating made me feel sick. I felt like I had a fire in my chest. Eventually the acid crept into my throat, gave me frequent canker sores in my mouth, and wore down the enamel on my teeth as a child. My parents threatened to take me to the doctor if I didn’t eat, but they never did.

My brother Matt also has GERD which was made worse by his gagging from Tourette’s. He frequently threw up his breakfasts. There was a time that the valve completely closed between his stomach and intestines. He couldn’t keep down any food and had to have the valve surgically opened again. In the meantime, he dipped below 90 lbs and he almost died.

Whose needs were more important??

Not only did Matt suffer from GERD, he also has autism. He engaged in a lot of self-stimulating repetitive behaviors such as rocking and flapping his hands together. At one time he had to wear a helmet on his head because when he became agitated he would hit his head with his fist. He was hypersensitive to touch. He would scream when he had to have his teeth brushed. He had to be sedated to go to the dentist for cleanings. He would only tolerate having 1/4 of his teeth cleaned at a time and eventually his teeth rotted. He has difficulty communicating and understanding emotions.

He suffers from Tourette’s. He would gag when eating and constantly make sticky saliva sounds with his mouth. His body would twitch and he repeatedly blinked his eyes.

He suffers from schizophrenia. He hears voices that tell him to hurt little girls. Sometimes the voices terrified him. He had nightmares. He would talk to the voices and laugh at the evil things they would tell him to do.

He is intellectually impaired. He cannot read, write, or do simple math.

He has issues with anxiety.

Matt made anything that my brothers and I struggled with minor in comparison.

There was a 3 year period when Matt was not allowed to go to school because of his violence. After that time period, he had very limited exposure to the outside world up until he was placed on an anti-psychotic medicine that eliminated the voices and the violence towards self and others.

My mother did not want my brother institutionalized in a place for the violently mentally ill so she pulled him out of most situations where he could hurt others. That did not stop him from being violent towards me at home. He grabbed a knife and threatened to cut my eyes out. He punched, scratched, kicked, bit, and pulled my hair on a regular basis. Who protected me?? Who reported his violence against me? No one.

I want to say that I handled it like a trooper, but I did not.

I withdrew into myself. I became very depressed. Although childhood goes by fast, it seems to take forever when you are being abused. I wanted out. I cried myself to sleep at night. I woke up crying in the morning after being awoken by nightmares.

I held my body tight like I was always bracing for impact. I cowered like a dog that was beat too much. My shoulders were held tightly up to my ears. I suffered from insomnia. I fell asleep easily but was typically awake from 2 to 4 AM. In the middle of the night, I suffered from muscle pains. I had to wrap pillows and blankets around my legs. I think my muscles were finally trying to relax in the middle of the night and it hurt.

I suffered from anxiety and worry. I was angry. I developed structure, rituals, and routines to feel like I had some control over my environment. For awhile, I was a compulsive hand washer. I washed my hands so often that they cracked and bled.

With everything going on at home, I couldn’t concentrate at school. My grades were horrible. I was put on a high dose of ADD medicine. It helped me focus, but made my skin crawl. I scratched my skin until it bled, especially on my scalp. I scratched until I pulled out scabs with big clumps of hair.

I was exhausted most of the time.

I was a mess.

That was a long time ago.

I survived.

I am strong now.

I am healing.

I feel ready to fight my demons.

 

One step at a time…

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When I first met my future husband, I had a jar full of pills on my dresser.

It contained the remnants of unused anti-depressants…Zoloft…Prozac the pill that made me crazy…Anafranil the pill that made me sleep more than I was awake…Paxil, Pemelor…the list goes on…Dexedrine I couldn’t focus at school…Lithium…I remember getting my blood drawn. Weight gain, weight loss, a pill that I needed to eat extra salt…I had round red pills, small white pills, and capsules…even at the highest doses, none of them helped.

Apparently a pill couldn’t cure a crappy childhood.

Paul wanted me to throw the jar out.

I said a lot of negative self talk out loud. I am so stupid. I am so dumb. I am a klutz. I am unlovable. I echoed the words that my daddy said to me. Paul said for every negative thing I said about myself, I had to say 3 nice things about myself. I broke that habit with his help.

I had a tendency to self-destruct. I gravitated towards pain and denied myself joy. I was a harsh taskmaster. I was angry. I was depressed. I am still like that but I express it in healthier ways…like running.

I saw therapists. To be honest, some of them were a joke. How would you feel if you didn’t have an autistic, schizophrenic brother that liked to hurt you? Geez, I wouldn’t know…What would you do if you had a magic wand?…Is that a realistic therapy goal? Maybe I could get a fairy godmother too…Oh, don’t forget the frog that turns into a prince. With me, reality has always been the best approach.

I had one therapist that was really great. She made me talk about feelings..What feelings? I don’t have feelings. I feel nothing…not happiness nor sorrow. I am completely numb. When the memories and feelings came back I was completely devastated by the mess I found.

I went to college with the intentions of becoming a therapist. I wanted to fix my family. I wanted to help others like me. I am 43 years old and have not found one single person in this world that grew up with an autistic/schizophrenic violent brother to help by my experiences.

One day I got rid of the jar of pills on my dresser. My brother asked what I was on because I seemed normal. I was on my own…No more therapy, no more pills…just the love of a person that cared enough to listen.

I slowly started the healing process of recovering from a difficult childhood. It has made me a stronger person. I am no longer outrunning my demons…I am facing them…slowly at my pace…one step at a time…

Since those first few unsteady steps, I must’ve ran a million miles.

 

Who am I?

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Who am I?

Sometimes I wonder who you think I am.

Have the things I told you painted a picture in your mind?

Do you know the kind of person I am by the words I write?

I sometimes think about this in the dead of night…or the early morning light..

Who am I?

Sometimes I don’t even know.

This past week I finished reading journal 4. Last year I started the project of slowly going through all of my old childhood and early adulthood journals. It has been a healing process for me…to finally come to grips with my life…my demons..

My oldest daughter has been begging to read my journals for the past year now. I now am also tasked with the duty of reading my journals with the thought that someday they will belong to my children. I want them to have a certain image of me in their minds, even after I am dead.

Journal 4 was difficult. I was angry. I could feel the rage coursing through my words. I tore out half the pages of my journal, ripped them up, and threw them out (recycling). I crossed out some of the writings with a black pen. I never destroyed a part of my life’s writings before.

To tell you the truth, I didn’t recognize myself. It was like I was reading about another girl.

Maybe I don’t really want to know myself??

I just don’t want my kids to see my darkest days. I am describing a girl that is gone now..

I just started reading journal 5 which was written before journal 4. I will probably be sharing some stories with you…

But how will you know me if I don’t recognize the old me in me anymore??

Do you really want to know the real me anyway??

Or do you think of me as a character in a book with a twisted plot?

 

Walking away

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I bet you were waiting all weekend to hear if we have bedbugs. Good news! We don’t.

We spent money to find spiders apparently. But I have a piece of mind that everything is okay.

We have since moved on to our next crisis.

Our son’s car broke down right after the exterminator left. The car started steaming when he got to our road. When he pulled into the driveway, all of the antifreeze leaked out. Today we had to get the car towed to the garage to be fixed.

We have been having record high temps in WI. It has been hotter the first few days of fall than it has been all summer. All I wanted to do was go to the beach, but that never happened.

On Saturday we drove a couple hours to go to my friend Lisa’s 40th birthday party. She wanted to go to a small town’s Octoberfest.

While we were there, we heard from a friend that we might get sued.

Just a quick recap…last month my son, along with 20 other kids, went partying at another girl’s cabin without her. She got busted by her parents with alcohol but told her friends to go anyway. She gave them directions and told them how to get in. There was some minor property damage…a broken water pump, broken glass, blood on the carpet, and penises drawn on the wall.

We have been in constant communication with the parents and have offered to pay for a share of the damages. Now we are wondering if we need a lawyer. It doesn’t appear that my son will be facing criminal charges since he got permission to spend the weekend at the cabin via text from the daughter. However, we don’t want to get sued. We know some of the other parents will be unable or unwilling to pay. Will they go after us for more than our fair share?

I didn’t feel like celebrating after hearing we might be going to court. I didn’t even do one dance. I took a walk through the small unknown town by myself. I needed to be alone to think. I walked until I saw the courthouse and sat on the steps. It seemed bizarrely suiting for the occasion.

Sometimes I feel like walking out of my house with the clothes I have on and never coming back.

When I am really upset, I aimlessly drive for hours or go on a long walk. Last night I went for a long walk. I felt anger and despair. I wondered if God really was there.

Paul and I have been upset and/or fighting about this all weekend. We accused each other of not caring about the other, but neither one of us said that we didn’t care.

Now we just sit and wait wondering what will happen next. We just want this to be over with. We want to stop feeling angry every time we hear about it. Thankfully Paul and I are getting along better today..It is hard to be angry and to express that anger without feeling blamed or attacked.

I just want to walk away…or better yet, sit on the beach oblivious to the cares of my world..