depression

Making amends

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A couple of weeks before Arabella made it on the waiting list for residential, she started to make amends with friends and family.

I received a text from Jordan’s mom saying that she wanted us to come pick up a big box of Arabella’s stuff from when she was living there. Jordan and Arabella were no longer friends. When we went there to pick up her things, Arabella wanted to sit down and have a conversation with Jordan’s mom. She wanted to know how she could make things right and be friends with Jordan again. It really was uncomfortable.

Arabella also wanted to get along with her brother. She bought him a monster and some candy and asked if they could talk sometime. It was really touching that she wanted to make an effort to renew most of her troubled relationships. But it was also scary. Was she saying good-bye because she was going to be leaving soon to go to residential? Or was she once again planning on ending her life?

I can’t really remember but I think she gave away some of her things. That struck a resounding chord of fear in me. What kind of good-bye was this going to be? I couldn’t help be feel anxious about it.

But then I remembered that she gave me back her pills that she was stockpiling. She also put a lot of effort into finishing her high school diploma. Would she do that if she was planning on ending her life. I justified her actions to quiet my fears.

She did work really hard to make amends with family and friends before she left. I’m really not even sure why. I guess she just wanted to leave on a good note. Maybe she just didn’t want us to forget about her while she was gone. More than anything, I’m glad it wasn’t anything I was worried it could be.

Waiting in the uncertainty

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One day Arabella handed me a baggie full of pills. Inside was a month’s supply of sleeping pills. I didn’t understand. How did this happen when I watched her take her medication every morning and every night? I couldn’t imagine it would be that easy to stockpile pills while under supervision.

She gave me the pills because she said she was no longer planning on using them to kill herself. She said she was surprised that I never found them after outpatient said I should search her room. I also remember the late night text from Jordan’s mom saying that she had pills and was planning on using them.

Arabella said that on some nights she wouldn’t take her sleeping pills but instead would drink energy drinks so she could stay up all night. That is what she did to finish high school. I don’t understand why she would even want to do that. At the time she seemed rather manic and didn’t feel the need for sleep. But she didn’t feel like killing herself either. I would almost prefer mania to suicidal depression.

But was she really bipolar then? She told the doctor she couldn’t sleep at night even with the sleeping pills. But she didn’t tell him that she wasn’t always taking them.

I’m glad she handed over the sleeping pills. I finally felt some peace after hearing that my daughter was going to OD on pills but never being able to find anything.

The hard part was that her psychiatrist thought she could be bipolar but said he was retiring and just left us. He never put her on medication that would manage bipolar. At residential, they didn’t think she was bipolar. At home right now, she seems manic.

Over the past year, my daughter has had 6 different possible psychiatric diagnoses. It seems to me that the experts don’t agree. She still needs my help to manage her medications because she is not taking them properly. I still don’t have the answers that I need. I’m not sure what the future holds as far as her care goes. She is having a hard time finding a job because it is obvious that she has some serious mental health issues if you have a conversation with her. I don’t know where to turn.

But as for now, she gave me the pills back. She seems manic which presents itself with other safety concerns. At least she isn’t suicidal at the moment.

But now what? She wants me to butt out because she is an adult now. I can’t in good conscience walk away. I really would like her to have psychological testing for a firm diagnosis. The jury is still out whether or not she is going to be able to live independently and take care of herself someday. The uncertainty and lack of control over the situation is hard to deal with. I guess I’ll just have to wait and see and hope she doesn’t do something to destroy herself in the meantime.

I gotta let that go

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I’ve been feeling a bit off the last couple of days. I’ve been trying really hard to let go. I’ve been trying to stop policing. I’ve been trying hard not to get involved in other people’s problems. I’ve been trying to turn the sirens off for every little offense. But honestly, it’s not working out that well for me. I feel rather miserable.

I’ve been trying hard to let go of Arabella since she is 18 now. I went with her to her appointment to meet the new psychiatric nurse today since her doctor retired. After I was in the appointment for about 10 minutes, she got frustrated with me and kicked me out. I feel frustrated because she is not taking her medication like she should and because of that the nurse said it wasn’t working as effectively. But Arabella said she is a teenager that wants to live her life and not worry about taking medication. I really wish she didn’t have to take pills either.

She didn’t take her morning pills yet today. It’s almost suppertime. It is upsetting to me. Just because she is 18 doesn’t mean I can just turn off the worry switch. She is not totally capable of taking care of herself but gets really angry with me when I try to help.

She has another job interview tomorrow. She didn’t get the other jobs she wanted. She decided that she wants to tell all of her potential employers about her mental health issues during the interview. I told her that was a sure way not to get the job. I’ve interviewed people before. But what do I know? I got to let that one go.

My son turns 21 next week. He’s never been much of a drinker but now he is starting to drink. I realize that it’s not unusual for young folks to want to party and have fun. I’m trying not to blame my husband who modeled drinking too much. He cut back on his drinking, but he did start drinking again. I’m trying not to police it and nag him about it but it is hard. Sometimes I’m of the opinion to let them have fun and enjoy their lives and the next minute I want to yell at them to knock it off. Who am I to tell other people how to live their lives? But I will say something if I feel like they are being unsafe or taking things too far. But then again that makes me responsible to monitor them and frankly I just want to be responsible for me.

It’s hard to let go. My mom left to go back to her house for a couple days because she has doctor appointments with Matt. She is struggling taking care of both my dad and Matt. There is nothing I can do about it.

I watch as Angel struggles with anxiety. There is nothing I can do about it and I am probably the one that caused it. Today Angel told me she might not want to have children someday because of our family history of mental health struggles. It’s sad.

I am having problems letting go of my old pets. My dog is almost 14 and he has a hard time getting around. My cat is 15 with a lot of health issues. He pretty much stopped using the cat box. The vet said he is probably having arthritis pain and gave me pain medicine for him on top of his thyroid and arthritis pills. He is a very gentle and loving cat. I hate to put him down if I don’t have to. His favorite thing to do is snuggle on my lap every opportunity he gets. It’s really hard because he needs three different medications twice a day. I feel guilty leaving the house because he is hard to care for. When is it time to let him go? There is nothing I can do about aging and it makes me sad.

When can I let this all go and move on with my own life? I’ve been holding it for so long I don’t know if I can. That is really what I am struggling with right now.

Finding faith again

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Arabella told us she was an atheist right after her first attempt. Being our youngest child, it wasn’t too shocking when she started to question the faith we brought her up in since her siblings did the same thing right around her age. Up until that point, she went to church with us and was involved. But that ended.

A couple months back, Arabella hit a low point. She only had one real friend that was willing to hang out with her. She met Kami at inpatient. Kami was the girl that told everyone she was going to jump off a bridge, but her car broke down on the way. It wasn’t meant to be. It seems like divine intervention to me.

Kami is a very kind and caring friend. Rumor has it that her parents met in rehab. They turned their lives around and became devout Christians. Sounds very inspirational. I never met Kami’s parents, but I’ve talked to her mom several times on the phone. She called to introduce herself to us and wanted to know the kind of people her daughter was hanging out with. I could tell that she truly cared for her daughter. I also found out that Kami was the oldest with several younger siblings. Her mother wasn’t used to letting go yet. It’s especially hard when you have a child with mental health concerns.

I did notice a couple of times when they would have sleepovers that the liquor bottles were lighter. I expressed my concerns to Arabella stating how dangerous it was to mix alcohol with prescription medicine. Again, experimenting with alcohol wasn’t something that I haven’t dealt with with teenagers before.

Then there was this guy that Kami was hanging out with who wanted to hang out with my daughter late at night at our house. I told her no. I didn’t want Arabella hanging around with guys alone at our house or while we were sleeping. I didn’t want her to end up in a bad situation or have to worry.

Apparently Arabella spent the night talking to this boy on the phone. The next morning Arabella tried to sneak out of the house. She didn’t want to tell me where she was going. She finally fessed up that she was going to go to church somewhere by herself. She spent the night talking to the guy about his experience with faith.

When she came back home she said she was a Christian again. It was a little confusing because she still wanted to be a stripper. To me the whole experience seemed surreal. I didn’t know if she really meant it or if she was trying really hard to please us so that we wouldn’t leave her too. There was a disconnect. It seemed disjointed in some way.

Don’t get me wrong. I am happy about the decision she made. But it all seemed a little chaotic to me to constantly be swinging from one side to the other. She didn’t seem to really know who she was so she became what everyone else was or wanted her to be. That concerned me.

I never did meet the guy that walked her back to faith. But I am happy that her friendship with Kami is still strong. I know that Kami struggles with her own problems, but she is not the type to bring everyone else down. Kami was that one friend that stuck with her when no one else did. I am grateful for that.

I am glad that my daughter decided to find her faith again. I think it will help her get through the hard days ahead. It’s okay that things aren’t perfect or understandable at this point. I have to accept that and let go of it.

Current craziness

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I didn’t sleep well the last two nights. Both nights I had nightmares. This morning I woke up crying.

The worst nightmare had to do with my dad. I was at his house but it looked like a cluttered maze outdoors. The worst part of the dream was when I passed by a small fish tank filled with beautiful fully grown aquatic animals. The sting ray really caught my eye. There wasn’t any water in the tank. I watched the beautiful creatures suffocate. Some had already turned to bones but were still gasping for air. It was very upsetting to me but I had to pretend I didn’t notice their suffering. I couldn’t do anything to save the creatures. If I gave them water they would still be crammed in a tank that was too small for them.

I usually have insomnia and intense nightmares where I wake up crying when I do sleep when I am under an extreme amount of emotional distress. But I feel relatively fine. It’s rather troubling because of the disconnect. Does my body/mind know something I don’t?

This week went okay, better than last. My husband and I went to therapy together. It went really well. I have been frustrated because my husband is constantly barraging me to share my feelings with him. I don’t always want to so he pressures me more to the point where I get really angry with him and tell him a whole lot of stuff that he doesn’t want to hear. It doesn’t work well. The therapist made the discovery that when I don’t talk about how I feel, it triggers Paul’s fear of abandonment. I thought he was just trying to be controlling. Once I understood his struggle, I felt more compassion for him because there are times I do totally withdraw into myself. I put up my walls then I hide behind them.

I struggle with Paul because he started drinking again a couple weeks back. He didn’t make it the full year like he promised. He is under the impression that he can control it now and it is not going to control him. I also feel a similar fear that when he hides there I am not going to find him and our relationship will eventually end. So I constantly police him and everyone else. It’s not that I am controlling either, it’s that I am afraid.

It’s been hard not to police Arabella since she got back from residential. For the first week things were great. So great I got my hopes up. Since turning 18, Arabella doesn’t really want me to manage her anymore. I can’t really blame her. But the problem is that she can’t manage herself. Without any structure she has been sleeping strange hours. Sometimes she doesn’t get up until mid-afternoon and takes her morning pills then. Then she takes her night time pills at the wee hours of the morning. One morning she was taking her bedtime pills when I was waking up. Then she complains that her meds are out of whack. I told her she needs to take her morning pills and evening pills at the same time every day roughly 12 hours apart. But she doesn’t listen because she is an adult and knows better than I do. It’s frustrating.

She also over drafted her bank account. She started gambling once she turned 18. She bought $70 worth of scratch offs and now she is in the negative. Then the next day she wanted to borrow some money and got angry when I told her no. She argued with me about a graduation party. She wanted to send out an open invite to everyone we know and have them bring a dish to pass. I told her that is not how it works. On her graduation she refused to take a lot of pictures, so I don’t have any pictures of her and I alone at all.

It’s been hard to let go because she can’t manage things without me and then hates me for it. But things haven’t been all bad. She has kept her room pretty clean since coming home. She also hasn’t been self-harming or suicidal which is great. Quite the opposite in fact. She has been talking almost non-stop about how wonderful and beautiful she is. So many people want her that she doesn’t know which one to choose. Everyone stares at her and talks about how beautiful she is. It is extreme, disconcerting, and a bit delusional. I’ll take it over self-hatred though.

Meanwhile, my mom came back early from her trip with my brother Luke. Apparently they are not getting along now either. My mom freaked out because she didn’t sleep well and asked my dad to come pick her up. She was supposed to stay for my niece’s dance recital but left. Then my mom took too many of her anxiety pills because she thought it would help her sleep then ended up going to the ER because her blood pressure went through the roof. On her paperwork, it says she went to the ER for an OD. I really don’t know what she was thinking. But that is the problem, when she doesn’t sleep she gets very anxious and irrational.

The good thing was that my mom was able to go to my daughter’s graduation. Originally the graduation was only open to parents and guardians, but then they changed it last minute to include up to 4 family members. Since my mom already made plans around not being able to go I encouraged her to keep the plans with my brother and his family. Maybe now I am in trouble too since my mom went to the graduation instead of the dance recital. She asked me not to post any pictures with her in them at the graduation and I said no.

Apparently Luke and his wife said some harsh words to my mom. My mom said that Luke said she shouldn’t be staying with me because she wasn’t my responsibility. He said I couldn’t handle it or something. I know he was trying to protect me, but it made me angry because he didn’t call me one time since my mom moved in to check up on me. So his opinion about how I feel doesn’t really matter. I’m capable of taking care of myself.

Okay, maybe my life has been stressful lately and that is why I am having nightmares again. I don’t feel more stressed than usual though. Although tonight I am going up north for a few days. My mom will be there with my dad and Matt so I’m not sure how relaxing that will truly be.

Who knows, maybe I’m having a nervous breakdown and I don’t even know it. Wouldn’t that be funny? I always had this fantasy that when I finally snap I’ll do something really crazy. But compared to everyone else, perhaps I am the boring one.

A gasp of fresh air

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The day Arabella left us to move in with Jordan’s family is the day I started planning a vacation. Not only did all my vacation plans for 2020 fall through but I lost my daughter as well. She started calling another woman her mom. It didn’t matter what I said or did, I felt like my daughter hated me. On rare occasion, I was the best mom in the world but it had nothing to do with any effort on my part. Again, what I did or didn’t do didn’t seem to make a difference in how she felt about me.

It was hard to handle and I felt very depressed. So I started planning a trip. At that point, I didn’t even care if I had to cancel it. It was the planning and thinking about it that was the most therapeutic at the time because it allowed me to focus on something other than my problems. I had something on the calendar to look forward to. Besides my daughter was gone and I wasn’t sure if she was going to be coming back.

But she did come back home and burnt the bridge with Jordan’s family. After her most recent diagnosis I battled with myself about whether or not to go. My mom wasn’t going to help by staying at our house because she was terrified of COVID. My oldest daughter didn’t really want the responsibility either although she was already living at home. I felt guilty for wanting to get away.

I also felt like I was suffocating. Taking care of a suicidal teen with serious mental health issues was burning me out. I thought if I didn’t get away I would be sitting in a padded room myself or worse. At times it was so painful and grueling that I really didn’t want to live anymore myself. I wasn’t taking care of myself. The stress was so high that it seemed like all my husband and I did was fight and blame ourselves and each other for the problems we were having with our daughter. I seriously thought if I didn’t get a break and take care of myself and our marriage that I would not be able to handle it anymore.

We offered to pay for our oldest daughter’s therapy if she would keep an eye on things. I wish I was kidding. Plus my best friend was willing to do whatever it took to help if needed. We were not flying out of the country and were accessible by phone 24/7. So we went. Thankfully Arabella managed to get herself up for outpatient, took her pills, and didn’t have any emergencies while we were gone. Oddly enough, it was my other two adult children (Angel and Alex) that fought. Their relationship has been strained ever since. Sometimes you just can’t win.

But it was wonderful to get away. It was a breath of fresh air before the drowning started yet again.

New diagnosis

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I was very concerned about the things that were happening with Arabella.

On New Year’s Eve, she made a strange comment when we had some friends over. She told everyone that her dad was walking on the ceiling and laughed about it. No one else laughed. They glanced at me and looked at her as if she was crazy. Was she on something? Was she delusional? Was she just trying to get attention?

She said strange things before like the time she said that Jordan’s mom was her mom and I wasn’t. She said other things that weren’t true. At times I could classify her as delusional or paranoid.

Then there were other things like the eating of non food items such as plastic forks. The binge eating and weight gain. The extreme fluctuations between us being evil and the world’s best parents. She fluctuated that same way with herself. Sometimes she saw herself as fat and ugly. Then at other times she wanted to be a stripper and show the world how gorgeous she was. Sometimes she was gay and other days maybe straight.

Then there was the impulsivity. Money in her hands was money spent. The shoplifting. The need to be more extreme than everyone else. The cutting, the suicide attempts. All her relationships were turbulent.

She had unusual emotional reactions, laughing instead of crying upon the loss of friendships that once meant everything to her. She seemed almost manic. She had a hard time sleeping at night even with the sleeping pills. I wanted to tell the doctor that all of this happened within a month’s time. Perhaps her medication was off.

Arabella was in rare form when I picked her up from outpatient to take her to her psychiatrist appointment. She was bouncing off the walls. A combination of caffeine, candy, and mania perhaps? She couldn’t keep a constant thought. She talked about the heating ducts in the office. Things people really don’t care about. She was talking a million miles a minute and I was feeling frustrated. In my mind she was acting pretty crazy and I wanted her to stop. But did I? It was the perfect place to act like this. Every time before this visit, she was quiet and depressed. She couldn’t sit still. She told the psychiatrist that she had crackhead energy.

I explained to the psychiatrist everything I’ve been trying to explain to you. Something was really wrong with my daughter. He got it. He said it was obvious to him that my daughter had more than a case of depression. He said she had disordered mood, thoughts, and personality. He thought she had Schizoaffective disorder with Bipolar 2 along with Borderline Personality Disorder. I didn’t see it coming, really I didn’t.

Then he said that he was retiring. He didn’t have a replacement. He didn’t want to change her medication which was a mess and not even adequate for her new diagnosis. We would have to wait for residential to figure that out. He pretty much said good-bye and good luck.

I was heartbroken. I cried the whole ride home. How did I not see this coming? Schizophrenia?? My brother is schizophrenic. He hears voices.

I grieved for a long time. All my hopes and dreams for a normal life for her were dashed. I wasn’t even sure she would graduate from high school at that point. Remember when she was an honor student? I couldn’t stand to hear about the bright futures of other kids her age. Your daughter is going to college for physics. I’m spending my daughter’s college money for psychiatric care. Yup, hope she doesn’t kill herself.

I remembered the last play she was in. I cried not knowing it would be the last time everything seemed fine. I cried thinking about the last dance she went to where she wore a pretty sleeveless dress before she started cutting her arms.

I grieved for what was that will nevermore be. It was painful that somehow I could’ve caused this. Bad genetics, nary a sane soul on both sides. I was riddled with shame and guilt. I couldn’t understand why my daughter hated me. I was doing everything I could to help her. I couldn’t stand seeing other normal families doing normal things. I resented them. I envied them for what I didn’t have. I would give away everything I had just to have that one thing, normal.

My mom was very comforting at the time. She experienced a lot of the same feelings with my brother Matt.

Now I just had to wait. My life was in limbo in a chaotic holding pattern until residential, if she could make it until then.

Isolation

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I felt very isolated from my family. My brother Luke’s wife Emily gave me a call several weeks before Christmas. Their household had COVID in November so no one was concerned much about that with them. They were planning on renting a place close by and visiting for the holiday. Before that, I didn’t talk to my brothers much about what was happening with Arabella. I hate being the person who only calls with bad news. My brother Luke pretty much has a panic attack every time he sees my number on his caller ID as it is.

We set up a date to get together. Then I told Emily about the struggles I’d been having with Arabella. A week later my mom told me they decided not to come for Christmas. I can’t be sure, but I think it had a lot to do with Arabella. My mom said she wasn’t going to come over here for Christmas because of COVID, but she still could’ve spent time with my brother and his family because they were no longer a threat for her. The other issue is that my brother will not step foot in my parents house with his children as long as my dad is alive or living there. I respect his decision, but it still hurts. I can’t help but think that some of the reason he wasn’t coming home was because he didn’t want his children around my daughter.

I felt very isolated at a time when I could have used the support of friends and especially family. I don’t particularly care if I ever see my dad again either. My kids want nothing to do with him. The relationship with him was strained long before my daughter found child porn on his computer.

There was also a time when my brother Luke and I wanted nothing to do with our brother Matt either due to his mental illness. When he was hearing voices to attack/kill our children, we had to keep them apart for the safety of our children. But I never quite knew how it felt as the mother of someone who is severely mentally ill. It is painful and isolating to feel like we had to handle this by ourselves. I haven’t seen my brother Mark since 2019.

When I was a teenager, my brother Matt was so violent that he was homebound from school. They sent a retired school teacher out to our house. Because of this, I was homeschooled in almost complete isolation from 8th to 10th grade. My brother Matt was psychotic and my dad was always this greasy guy. How many friends do you think I was able to bring home?? Plus we lived in a hoarding house. I’m not going to lie, it wasn’t a pleasant place to live and I couldn’t stand it. I literally wanted to die and childhood couldn’t end soon enough for me because I was so miserable. I lost a lot of friendships because my brother attacked pretty much everyone who was in our house or who came to it.

I am no stranger to isolation. It was different back then. My family were the only ones that lived in isolation. Everyone around us had relatively normal lives. Kids went to school. Adults went to work. The world moved on without us.

When I heard my brother changed his mind about coming to visit for the holidays, I was heartbroken. When Arabella’s friends dropped like flies I felt a crushing sadness because I knew the isolation that was to come.

There is a difference in not being able to visit and not wanting to. The sense of abandonment in that is hard to overcome. But yet I understand it because I’ve stood on both sides of it.

The sorrow of friends lost

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Arabella lost almost all of her friends. She didn’t get invited to her best friend’s birthday party. Her best friend and another girl would still hang out with her but at the risk of being ostracized by the rest of the friend group.

Arabella decided with some guidance to let her friendship with Ashlynn go. Ashlynn continued to make poor choices. One night when Arabella was there, she decided to sneak out of the house in the middle of the night to hang out with some guys. Then she lied to her parents about it. Ashlynn was spiraling out of control. Once I found out about the shoplifting and smoking I told Arabella I didn’t want them to hang out anymore. Arabella did not fight it but agreed with me that this friend was going in a direction she didn’t want to go.

That left her with just one friend, a girl she met in inpatient called Kami.

Arabella tried to connect with a friend from her old school. But it wasn’t long after she left to visit this friend that she came back home. Her friend told her that she changed and asked her to leave saying she didn’t want to be friends anymore. I would’ve expected tears when Arabella got home. But instead, there was laughter. Arabella laughed at all of the friendships she had lost. I really started to worry when not only did she not cry, but she acted as if something really wonderful happened.

Yes, my daughter did change. She was no longer the easy going happy go lucky girl we all knew so well. I wondered if this is what it is like when someone who is relatively normal suddenly slips into psychosis. What happens to friendships if someone suddenly develops serious mental health issues in the late teen years? Almost every single interpersonal relationship she had became very rocky.

It made me feel incredibly sad. My daughter is severely mentally ill and it pushed away all of her friends. Forget a minute about the sappy Facebook posts that say if you are thinking of ending it all give me a call. I am that friend you can call in the middle of the night crap. I want to tell you a hard truth. When you actually hit rock bottom even most of those friends are nowhere to be found.

Mental illness is ugly. It’s robbed my daughter of so much. I can’t even blame some of her friends for leaving her either. She really wasn’t all that different from Ashlynn, unhealthy. It is very painful to watch as a parent. I wanted so much more for her.

Finding hope

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Tomorrow we are picking Arabella up from the residential behavioral health facility. I feel excited to see her tomorrow. It’s been over two months since I saw my daughter last.

I would be lying if I didn’t tell you that I was feeling a little apprehension as well. I wonder what things will be like when she gets back home. The past year has been very difficult with my daughter’s mental health struggles. To be completely honest, I feel a lot of guilt over writing about this. But the whole purpose of this blog for me is to write about the personal things I struggle with. Right now I’m struggling with parenting a teenager with mental health struggles. Believe me, I wish it wasn’t that way.

I think placing her in a residential facility was our last ditch effort to save her life. Her level of impulsiveness, self-harm, and suicidality was so high that I don’t think she would’ve had a chance out in the real world as a newly minted adult. I don’t know what things will be like when she gets back. I know there is going to be an adjustment period for all of us.

I don’t expect Arabella to be cured. But I do know we did the best we could to try to support her through her struggles. She did make a lot of progress over the last couple months. I hope she continues to grow when she gets home. I think it’s important to keep an account of the way things were to be able to chart her healing and growth on her journey. We’ve also learned a lot in the process and are waiting for the new post residential adventure to begin. I think it has been a very positive experience and I’ve found hope in the fact that Arabella is doing significantly better.