What is happening? Part 2

We left the wedding that night before the clock struck midnight. Not because something magical was happening. My car wasn’t turning back into a pumpkin. But on that day, when the clock struck midnight, my princess was turning 21. I told Angel that I would take her out for a drink at midnight. We got back home just in time for me to freshen up. When I came out of my room, Angel was fast asleep on the couch. I didn’t really want to go anyway. I was exhausted.

We took Angel out for lunch instead. We were surprised to see that a lot of restaurants were closed from the storms. Some restaurants had no electricity. The restaurants that did have power said they didn’t have enough help to cover for the restaurants that were closed and people that went out to eat because they didn’t have electricity. It caused a storm surge of customers.

It was sad to see Angel leave. It was the first time she was home after she moved out. It made me realize how much I missed her conversations. I’m not sure when she will be coming home again. After she left, I was exhausted.

I decided that I was going to go for a long run the next morning. The plan was to find a point to get on and off the trail to run to my parents house and back. I was hoping to park my car on the trail and run 10 miles one way. I wasn’t sure how it would work because of the storm damage and because I never ran the trail there before.

I left later than I wanted to the next morning. It was a nice day, not too hot and not at all rainy. The trail was heavily wooded but beautiful. The first half of the run was well groomed. I ran into a lot of people on bikes. There were several trees down and at some times it felt like an obstacle course.

But the second half of my journey was very remote. The bottom two pictures were taken on the second half of the trail. It would be a great place to hide a body. Wouldn’t it? There were fewer people along the trail here. At times I feared for my safety. It ended up being 14 miles to my parents house. I had a late lunch with my mom and headed back home.

My mom walked with me for the first 3 miles, then got picked up by my dad. She was afraid for my safety. There were times that I was too. I did something that I wouldn’t want my daughters to do. I felt vulnerable. At times I would look behind me and no one was there only to be passed by someone from behind a few minutes later without knowing they were there. It was creepy. It was starting to get dark. My mom wanted to give me a ride closer to home, but I refused.

I spent a lot of time walking. I thought I would spend a lot of time thinking, but I didn’t. My mind was empty and free. No problems, but also no solutions. It was starting to get dark. I was running out of fuel. I didn’t have much water. My feet were starting to ache. But I made it! I ran 28 miles. It was the furthest I’ve ever ran/walked and 25 of the miles I was totally alone.

I think I am ready for a 50k. I feel confident now. I wasn’t as sore as I thought I would be, but I was sore. The next day I went in for a massage. I should’ve waited because I was almost too sore.

I’ve regained my confidence, but my mom was so worried that I promised her I would never take the trail to her house again.

 

 

More than a shot

I took a pregnancy test today.

I had to take the test before I got the MMR vaccination which contains a live virus. Back in the 1990’s, when I was pregnant, my titer showed I was not immune despite receiving the shots in the 70’s.

I decided to get a booster shot because of the recent outbreak and my love for international travel. I might want to go on a mission trip in the next couple of years which will also take me off the beaten tourist trap path.

I started to think a bit more about vaccinations, more specifically the MMR vaccination. With the measles outbreak, I saw a lot of hateful comments made towards the anti-vaccination folks. I saw babies that wore shirts in photos saying, “I’m vaccinated because my parents aren’t morons”. I found this to be offensive because I’m sure most parents that don’t vaccinate are not morons.

Perhaps my opinion is not popular, but stick with me for a moment.

I had my first baby in 1998. In 1998, an article was published in a medical journal linking the MMR shot to autism. It caused a huge scare that I believe hasn’t been fully eradicated to this day. At that time, I was more fearful that my children would be severely autistic like my brother than to get measles, a disease that I’ve never seen anyone contract in my lifetime.

Later, after the article was published, we were told that the link was a sham. Being a very logical person, I wondered what kind of medical journal would publish crap research findings. Can anybody publish any research article that they want in a supposedly reputable medical journal?

I also thought about conspiracy theories. Here you have huge pharmaceutical companies making big money off of vaccinations pitted against a small probably under funded research doctor. Of course there wouldn’t be a link. Follow the money. What were concerned parents supposed to believe? You can’t just erase something you already saw. Shame on the journal for publishing the article in the first place if there were so many issues with the study’s validity. It caused so much unnecessary fear.

It was horrifying and I struggled with making the decision to have my children get the required vaccinations. I am happy to say that my children are fully vaccinated. I thought the best way around it was to vaccinate my children with the MMR shot after they safely passed the age when most cases of autism are diagnosed.

I feel angry with people who quickly judge others for not vaccinating. They are usually not morons, they might just be fearful like I was. My babies were born at the height of the autism linked to vaccinations scare.

I think that most people who choose not to vaccinate have their reasons not to. It is not lazy parenting. Believe me, it is a lot more work to choose not to vaccinate. I did receive some criticism for doing things on my timetable. But even if there was a small iota of a chance that vaccinations caused autism, I needed to be careful. Where those people that shamed me going to come in my house and take care of my child if he/she became autistic?

I honestly don’t know if I would have the strength to live through it again this time as a parent.

I have a lot of respect for people that grew up with a special needs sibling that end up becoming a special needs parent. I don’t think I have the courage to fight that battle twice.

I get angry about talk of forced vaccinations. Shouldn’t parents have the right to make that choice for their child?

I think pro-vaccine people would be more successful listening and being empathetic to the concerns of parents who don’t want to vaccinate. Don’t treat them like they are a bunch of morons because that won’t get you anywhere. Morons blindly follow. But educated people question and try to make the best decisions they can.

I am pro-vaccination, but I strongly believe that the parents should make the decision and be treated respectfully whatever they decide.

 

 

My life with a teen driver

I wonder if Arabella will ever get her license. She is 16 now, but I am hesitant to set up her driving test appointment because I don’t think she will pass.

My life is in danger. Just yesterday, she blew through a stop sign. She almost ran a red light. I had to yell at her to stop. Generally a relatively patient person, I screamed an obscenity as I watched my life pass before me as she changed lanes into another car’s path on a roundabout. The other driver pulled over as if my daughter was driving an emergency vehicle with sirens blaring. I simply screamed as I saw myself going towards the other driver as if in a nightmarish bumper car ride.

But that wasn’t all! Yesterday she cut off a driver on the highway almost causing an accident. The elderly man drove past her wagging his finger at her violently. He must’ve been a nice man. Most drivers lay down on the horn screaming what I can only imagine are obscenities while shaking their middle finger at her.

Maybe if she goes one week without someone flipping her off, then I will schedule her appointment. Even if she passes her test, I will worry about her driving. It doesn’t help that a close friend’s daughter died in a car accident last year when she was 16. Having a new driver is one of the most horrifying steps of independence for a parent.

To make matters worse, Arabella has zero sense of direction. I have to give her directions to places that she has been to a million times.

She also knows everything about driving and doesn’t want to listen to my 30 years of experience. Even though I never got any tickets or was ever in an accident. I didn’t even hit a deer which is unheard of around here. I did run into a septic tank cap up north a couple weeks back that I didn’t see which caused some front end damage to my car. But we won’t talk about that today.

I wish I could help Arabella be a better driver. It’s really no wonder I feel anxious. Maybe things will get better…

Speaking instead of talking about it

Last week I had a meeting scheduled with someone from the local autism chapter. In a couple of months, I am scheduled to be on a panel as a sibling talking to parents about my story. What does this mean?

I am going to be given an hour to talk to parents of autistic children on how it feels to be a sibling. An hour! I will write my own presentation where I will speak in front of parents for 45 minutes and then have a 15 minute question and answer segment.

I did not know that I would be doing public speaking. Alone! In front of an audience. She also asked if I felt comfortable being recorded. Absolutely! I have no fear in doing any of this. In all honesty, I always saw myself doing this some day.

I also told her that I started writing a book about my experience as a sibling. She thought it was a great idea and also thought that there was a niche out there for a book like mine. No one else is doing this. She said she knew a publisher that would eat my book up if I decided that I wanted to publish my story. She said that she could also link my public speaking to this blog and would do what she could to promote my book.

She said that in previous videos, she received up to 7,000 views. People just love personal stories. This is where my fear started. I am not afraid to be a public speaker. I am not afraid to talk to strangers about my very personal experiences. I think it is powerful and moving. But, and here is the big but, I am afraid to tell my story to people I know.

I am afraid of getting more followers. I am afraid to put myself out there. I am rather paranoid about being found in all reality. That scares me. I’m not even sure why. Who cares, really? I won’t let anyone in. I have never told my friends my story, maybe just bits and pieces. My friends have asked to follow my blog and I told them that it is too personal.

I refuse to use my real name. But it is getting bigger. It is starting to snowball and I’m afraid I can’t stop it. But the question remains, why do I want to stop it? Isn’t it time to let people in?

This is my struggle, I want to tell my story but I don’t want anyone to know about it. I don’t know why this scares me more than public speaking. You would think I would want to talk about it with friends and family before speaking about it to strangers.

Has anyone else ever experienced this? How do I get over this fear?

Doubt

Would you be willing to hurt people you are closest to in order to help strangers?

Fear that is toxic. Anxiety whispers an endless echoing rhyme. Worry incessant. Doubt creeps in like a vine that entwines the wrestling demons running around in my mind.

I’m not sure I can do it. It’s too risky. Who do I think I am? Do I really think this will be a bestseller? Do I really think that my poison will be a tonic? Do I really think that my story is going to make a difference, change things?

Really, Alissa, you couldn’t even save your own family.

The thoughts painfully pierce my poorly healed wounds. The scabs tear away and bleed onto my parched paper skin. The memories scratch at the demons inside. They wreck havoc on my mind. Tears slip from my eyes.

Now I understand why there aren’t a lot of siblings telling their stories. I get it now. It is too painful. If the story is going to be effective, I have to be brutally honest. But that honesty is going to hurt, not just myself but other people.

Tomorrow I have a meeting with a lady from the local autism group. She wants me to be on a panel representing siblings of autistic children in front of a group of parents. There are not a lot of programs available for siblings because they are ‘normal’. I think that is very tragic if a child needs help and doesn’t receive it because they aren’t special enough.

My goal is to write a book about my story as a sibling. I want to advocate for siblings. My thought was to write a book and donate a certain amount of the proceeds to go towards helping siblings that are struggling through support groups and therapy, etc. Just how it is all going to come together is not totally known to me at this time. I would be willing to donate my time and money to help other’s struggling through what I’ve experienced.

Maybe tomorrow I will have some answers. But as for today, I never want to write again. I want to delete my blog. I want to throw the book that I started into the trash. I feel unsettled, almost angry and sad. Restless.

I am at a crossroad of sorts. Will it make a difference? Am I just picking at scabs and bleeding out into my words? Will it heal me? Or will it hurt me and those I love? Should I just let it go?

Will I be able to help others? Am I being delusional that I can make a difference? Would it be worth it if my story can help someone contemplating suicide if  my family turns away from me? Maybe my vision is too grandiose?

I am absolutely terrified, but I think it will be worth it.

What if I don’t help anyone and end up alienating myself from my family? Do I have the strength and courage to do what needs to be done?

I have my doubts.

Goal 6: Try new things/explore different interests/be fun/enjoy lifelong learning.

When I was younger I was afraid to try new things. Now that I am older, I long for something new.

When I was younger, I never thought I was good enough or smart enough. But being older, I don’t really care if I make a fool out of myself.

This morning I went to an exercise class for the first time. I was the only one in the front row, all the other spots were taken. Front and center for everyone to watch me make mistakes. But I don’t care anymore. Besides I am old enough to know that everyone else is really concerned about themselves and how they look. If they make fun of me, shame on them.

Everyone has been very welcoming though. I took a strength training class for the first time this week and everyone introduced themselves and helped me set up my equipment. Someone even cleaned and put away some of my stuff. They even gave me helpful suggestions and asked if I was coming back.

I have to admit, I’ve been rather shocked lately about the kindness of other people.

I’ve been trying new things, like exercise classes. I also bought an Indian cookbook. I  tried making a few recipes this week. They turned out okay, although it has been a real challenge to find the ingredients I need.

The most exciting new adventure for me this year has been to start writing a book. I am still terrified about this! I’m not sure how it will turn out, but I keep pecking away at it every day.

I don’t have to be perfect nor do I even need to be good to enjoy trying new things. It took me a long time in life just to learn that.

 

Goal 4: Worry less/let go/learn how to relax and handle stress better

I’m sure you’ve heard of the phrase ‘let go and let God’. It is something that is a lot easier said than done. I really wish there was a step by step manual on how to do it like an idiots guide or something.

Is it a process? Is it something that just happens? Will I be able to turn off my worry someday like a faucet? Or will it incessantly drip until it drives everyone, including myself, crazy?

How can I relax? How can I handle stress better than I already am?

How can I let go of these children that were once mine to hold onto? How do I let go of a business that I once helped build? How do I let go of past hurts? How do I trust God? Is there a dummies guide?

Maybe eventually I will figure it out. But until then I want to keep working on it. I don’t want worry to rob me of my joy in life.

The cough

In the midst of everything else going on, last week my husband Paul went in for a CT scan.

My husband has had a chronic cough for years. He finally broke down and let me make him a doctor’s appointment. I was worried especially since his mother and an uncle both passed away from lung cancer last year. His mother and grandmother who lived with him smoked during his whole childhood. His mother smoked while pregnant with him. But it was the 1960’s, people smoked in libraries. Almost everyone smoked back then and no one thought much about it.

Then after Paul left home, his mother quit smoking and he started. He smoked for almost a decade. He was exposed to cigarette smoke in some shape or form for half of his life. He had close family members die of lung cancer. I was worried.

That day at the doctor’s office, they made him wear a mask because ‘cough’ was listed as his symptom. He glared at me in contempt and muttered muted garbled words of unhappiness through the mask. Look what you made me do! I am not even sick! The doctor set up a urine test and blood work along with an appointment for a CT scan several weeks later.

After the doctor appointment, we ate lunch at a Chinese restaurant. He received a fortune cookie that stated he would enjoy good health for a long time. See! I’m fine!!! It’s probably just allergies.

In the meantime, we worried. We worried more after I lost my job.

What if?? What if I have cancer like my mom?? How am I going to work? How are we going to make ends meet? How am I going to handle the lead part in the show if I have been given bad news the same day?

What are we going to do?? It took our minds to dark places…

The morning of the show, Paul left home early for the CT scan. A few hours later, we received the results. Everything was fine. No cancer! Praise God!

I’m just fine he said with a cough. May the fortune cookie be right. May he have good health for a long time.

This time another crisis was averted. I can’t bug him anymore about the cough, but I bet he will bug me about the doctor bill. Knowing that I did everything I could and having a peace of mind that everything is okay is money well spent.

 

 

 

I am the problem?

Okay, I have something that I have to admit. I didn’t vote last week.

I apparently am the problem within my state and country right now.

But wait, before you unfollow…I have an excuse. Gum disease. You heard me right.

Monday I had my regularly scheduled dental check up. For the record, I think that dentists and everyone associated with the dental field are sadists. They seem to take great joy in my pain. And if the dental procedure doesn’t hurt, the bill sure will.

Back to Monday, the hygenist told me that I needed to come in as soon as possible for a deep cleaning. I scheduled an appointment for the following day over the lunch hour.

So when Tuesday rolled around, I went to the gym in the morning to work out. After that, I hurried off to work so I could leave early for the dentist.

After 20 minutes of painful drilling, I asked the hygenist what I did wrong. She said that gum disease is caused by poor hygiene. I pleaded that I floss several times a week and brush several times a day. I argued my innocence like a convicted felon who was incarcerated for a crime never commited. Paul said that everyone probably says they have good hygiene even if they don’t.

Really, is there a wrong way to floss??

Gum disease could also be cause by stress and hormones and I am sticking to it.

I got poked, prodded, and slapped with a $200 bill.

For a couple of hours after the appointment, I felt like crap. I don’t know if I’m getting an ulcer or if it was the aftermath of the extreme anxiety I feel towards dentists.

I went back to work with the idea that I would leave early to vote. That didn’t work out because we had an employee call in so I had to stay late.

I barely made it home in time to eat something before play practice. How could I go vote?

We just moved and I couldn’t find any mail sitting around associated with my name and new address. Plus the cars outside of where I would vote were lined up into the next county. How could I zip in and out before my next time committment??

So I didn’t vote. I am the problem with this country right now. Good intentions don’t count as a ballot. Might as well blame it on the dentist. Yeah, why not??

 

My psych eval (25 years later) part 8

At times Alissa had the appearance of as if she might cry at any moment. She said that she cannot remember many things and cannot remember portions of her childhood. She may pull back in therapy and treatment when things are going well, discontinuing experiences that might have proven gratifying. She may defeat her chances to experience events that can promote growth and change. It is cautioned that therapists should not set their goals too high or press changes too fast as Alissa cannot tolerate demands well.

Sometimes I wonder what you would see in me if you met me. I bear my heart and soul, but you can never look into my eyes. What would you see if passing by?

I find it very troubling that as a teen I said I could not remember portions of my childhood. What still lurks beneath the surface? I find the thought terrifying.

You know what the funny thing is? I am a blatantly honest person, yet I am the biggest liar. I’ve been lying to myself for years. I have been working lately on being honest with myself even if the truth hurts. When traumatic events happened, I told myself that those things didn’t happen.

I locked my feelings behind a door in my mind. Many years later, the door unexpectedly opened and I experienced the feelings many times worse than it may have been. I just couldn’t handle the truth when it happened. I could barely handle the memory of it. I have many such demons behind many such doors. I am afraid.

Telling myself the truth has been causing me to have a lot of anxiety. What is real? What is not real? What if something that I thought was not real is really real? What do I do about it given the new information? I have been lying to myself for so long that it is hard to tell what the truth is.

Reading this psych eval has really opened my eyes. In many ways I have progressed greatly in 25 years and in other areas I have only crawled a few baby steps.

My brother Luke said that emotional development is stunted at the age that the trauma starts. I laughed about this. My first childhood memories and most of my childhood memories in general are very traumatic.

Am I an emotional infant?? Maybe I am. I am still stuck in the trust vs. mistrust stage of development. I can’t talk to friends about this because I don’t trust them. If they get too close, I push them away. But what is to be lost by trusting a few trustworthy people? I don’t understand myself sometimes.

A few of my family members have sought counseling and have reached out to me to do likewise. But I am stubborn and proud. Remember that Alissa does not tolerate demands well. Ha! It’s true, I don’t.

I went to a counselor a couple years as a teenager. She always talked about the feelings chart. I remember that because I didn’t have any feelings at the time. I don’t know why I stopped going. She said that I had the second worst childhood of anyone she has ever seen. I remember that too. I really liked her and hope she never felt like I left because of her.

I was always comfortable growing and changing at my own pace. I don’t want a diagnosis or to be made to feel like something is wrong with me because of the experiences I went through. But maybe if I went to a counselor I could grow and become a better person faster. I don’t know. I will think about it.