Gratitude week 3

  1. Tonight we are having some friends over to watch the Packer game. I suggested that we just order pizzas although I couldn’t have any. I am grateful my husband made me a dairy free pizza late last night for today so I don’t feel left out. I think that is the nicest thing anyone has ever done for me. I didn’t ask him. He just went to the store, bought my favorite ingredients, made a yeast free crust from scratch, and shredded goat cheese. His kindness towards me makes me feel loved. Way to go!!
  2. I am grateful I have a really good therapist. The last couple sessions she worked with me right through her lunch break. We started up brainspotting again this past week and for awhile I felt at peace.
  3. I am grateful to learn about Complex PTSD. I am eager to keep healing and growing into the best me I can be.
  4. I am grateful my kids made it home safely after driving through winter weather.
  5. I am grateful to have 700+ awesome followers who are interested in hearing my story.
  6. I am grateful to be able to push through my fear and anxiety which has been running rampant this week.
  7. I am grateful for my kids that keep me too busy so I don’t isolate myself from the world.
  8. Yesterday I had a pajama day. I’m grateful I didn’t have to go anywhere or do anything. (C’mon, some introverted isolation is okay!).
  9. I’m grateful to have an industrious husband. Yesterday he plowed out the driveway and he is working hard to start a new business.
  10. I am grateful my friend Cara liked my book. The test readers want me to go deeper. I am ready to go deeper now. It’s time to rip away the security blanket to embrace brutal honesty. It’s time to face my demons. It’s okay to write about things that are uncomfortable if expressing my thoughts and feelings is good for me.

When fear calls

I called my daughter that Sunday morning right before church started.

She was worried about suicide…or murder/suicide. After everything that happened, I shared her concern. What could I do about it?

I had been scheduled to sing that morning with the worship team. I ended the call abruptly as I saw everyone head up to sing.

I worried. Maybe this is good-bye. Maybe I will never see my parents again. It’s a horrible feeling especially when I had to act happy and sing on a live recorded feed. I felt so fake.

Smile! I felt like I was going to throw up or pass out. I started shaking. Smile. This could be the last day he is alive, they are alive. My God, the horror. Twenty minutes later, I felt like I was going to have a panic attack. Everything in my body told me to run off the stage. Flee. I had to stay. Everyone was watching me, in church and even online.

Maybe they would think I was having stage fright. I wish that was all it was. I couldn’t tell anybody. I wanted to drive out to the house. But the day before the car broke down, the only one free that afternoon. Plus I was asked not to because my family didn’t feel like it was safe.

I wanted to ask for prayer that day. But my husband was not in church that morning. He got asked by a friend of mine to help her out with something in place of her husband who spent the night in jail. I told him that helping out someone in need was more important than attending church. He agreed.

Shallow, I suppose. If I left the stage for prayer, it would be obvious. Then people might wonder if I was having problems with my husband because he wasn’t there. It could be misconstrued and gossiped about. I didn’t want that.

I called my brother Luke when I got home. Although he was treated the worst by our dad, he was the first to try to pull dad out of the grave he dug. That day my mom took my brother Matt back to his group home and stayed with us for several days. I made sure the doors were locked and became hyper-vigilant to signs of trouble.

Sometimes I wish my only stress was worrying about the holidays. The simple worries of getting that perfect gift. I couldn’t even think. Or worrying about hosting parties with special diets. Or having 4 teenagers in my house. Anything but this.

We are all worried. You’ve been depressed, suicidal before. Now you have a reason to end it all. Is this the only way your heart will change? Will your curses to God change to cries for help? Maybe this is the only way. But it’s not what I wanted for you, for the rest of us.

It’s been a month since I initially wrote this. I feel anxious. Tomorrow I will be singing on the worship team for the first time since this happened. I don’t want to do it anymore because it is triggering my feelings of fear. I understand why people seek isolation in times of despair. So many seemingly innocent things trigger bad feelings and memories associated with them. I’ve been trying to see my world as it really is but at times it is utterly terrifying and I question everything I blindly believed before.

Compassion rages

After I heard the news, I felt both intense compassion and rage towards my father simultaneously. It’s really hard to explain because I can’t remember feeling such extreme polarity before. How can I still feel compassion towards someone who is so easy to justifiably hate?

He was a horrible father. He was the role model of what I didn’t want to be as a partner and parent. He hated us and called us stupid. I never felt like I was good enough. I never felt like I was enough of anything. Smart enough. Brave enough. Happy enough. It’s hard to feel like I was never enough, unlovable, despite my best efforts.

He tormented us. He laughed at our fears. Even worse, he taught us to laugh at our siblings shortcomings and fears. If we laughed, we wouldn’t be targeted next. We were pitted against each other for sport. How could there be unity? Most of the time it was safe to pretend not to care. I’m sorry I did not comfort you, brother, while you cried. I was just a coward trying to survive.

My dad is a depressed man. He lived a life of regrets. I see that now. He wasted his life in front of the TV screen, not playing ball with his kids. But I always felt calm if the TV was blaring when I came into the house. It was the silence I feared most. In the silence, I never knew if I would find him dead. Do you know how scary it is to feel that fear as a child?

He often flew into rages over nothing. He was abusive, but he is still my dad. When I was a child I hated him and wanted him to burn in hell for all of the things he did to hurt us.  But now I feel pity for the mess he has become.

I had to see him one day after it all happened. My mom hasn’t been well and needed me to give her a ride to the doctor for tests. After the appointment, I sat down with my dad. It was mostly small talk, the only real conversations I ever had with my dad.

I felt a lot of stress leading up to our visit. What would I say? Would the rage or compassion come out? I had to be wise with my words, but was coming up blank. Should I tell him what a fool he is? Should I tell him how some of his actions hurt me? Should I scream and yell at him like he did many times to me?

Instead I told him I loved him as tears poured down my cheeks. He told me he loved me too. I said I was sorry. He asked why. I said I was sorry that it had to be this way. This wasn’t what I would have chosen.

He looked sickly, like he lost a lot of weight. He is already in hell. That is what you get when you live a life you regret. What good would heaping a few more coals be for someone who is already burning in hell? I felt pity towards him. I never wanted to see him burn. I just wanted him to be a dad to me.

I don’t have any regrets over how I handled the situation. More than anything, I don’t want to live a life of regrets. I don’t want to be like him.

I don’t want to be his daughter, yet I am. My compassion rages.

 

What else could go wrong??

Seriously, what else could go wrong?? Have you ever muttered those words to yourself only to regret them a few minutes later?

It’s been one of those days.

After I got home from running 5 miles at the gym, I got ready to wash a load of towels. So far, so good. I grabbed a dirty towel off the rack in the bathroom and went to turn off the light. The light switch is next to a door frame made of rough wood. As I was turning off the light my finger went down the wood frame and I got a splinter under my nail. It was extremely painful.

I got out the tweezers and tried in vain to get the splinter out. After a half an hour I sent a text to my husband to come in from his office to help. He tried a couple times, but it was so painful I started crying.

I decided to call the doctor’s office, but they were fully booked until like August or something. This is a horrible story, but I was thinking about a friend of ours that had a sliver under his fingernail that got infected. A couple months ago he ended up having to get his finger removed from that infection.

I decided to go to fast care. I didn’t want to have any more problems over the holiday. When Paul and I got there, they said that they didn’t have the tools to help me. So we walked around the store while I thought about what to do next.

In the meantime, my aunt Jan texted me saying I needed to take care of my mom. The devastating news I got was about my family. I wish I could tell you everything, but I can’t right now. Anyway, I was kind of upset about the text. Why do I need to take care of my mom? I am also going through hell.

While we were in the store, my aunt Jan called Paul. She wanted to make sure I got her message and Paul told her how he felt. He said that I have been taking care of my mother since I was a little girl. Who is taking care of Alissa? Why ask me about my mother? Why focus on my autistic brother? No one ever cared enough to ask how I was doing. I was just expected to be strong to take care of everyone else.

Paul told Jan that I have my own family now. I have 4 teenagers in the house. Alissa just needs to take care of Alissa because she is having a really hard time now too. It felt good to have someone stick up for me. But it didn’t feel good to have a personal conversation in the store while I was stressed about my finger.

Next stop, urgent care. The lady at the front desk asked me if I wanted to pay for my care. I mean, not really. Who does? But I wasn’t in the mood to make wise cracks.

Thankfully I was able to get in right away. The doctor tried in vain for a half an hour to get the splinter out. It was very painful because he had to dig in my nail bed. I was bleeding.

He said I had a couple options. First, I could do nothing. It most likely wouldn’t come out on its own, but it might. He could give me antibiotics. If it got infected or continued to be painful, I could contact a hand surgeon to have it removed. Or he could give me anesthesia and keep trying to dig deeper under my nail. Even then he gave himself a 50% chance to be able to get it out.

I just wanted it out, so I opted for the anesthesia. The anesthesia numbed my finger, but it still hurt. It was just like going to the dentist. I could feel everything even though they gave me enough anesthesia to take out my tooth. The doctor gave me a second dose of anesthesia. I could still feel pain, but it was muted a little.

I felt like I was going to pass out. I was in pain off and on for a couple hours at that point. I felt sick although I didn’t eat hardly anything all day. After another 20 minutes of poking underneath my nail, he was able to get it out.

While I was there, I heard screaming in the background. Someone else was vomiting nonstop, and another guy went into cardiac arrest. Call 9-1-1. When I got back to the reception area, it looked like a crime scene. There were several squad cars and ambulances. People were huddled together crying.

I debated whether or not Paul and I should burn our clothes after our trip to urgent care. Who wants the plague for Christmas??

Then I came home and did a head lice check on one of my kids. Thankfully, I didn’t see anything. Oh, and I almost hit a deer picking up the girls from school.

Honestly, I’m not even sure if it is safe for you to be reading this.

 

 

I finished my book!!

Last night I finished my book, my life story. It stirred within me many mixed emotions. I felt like I was covered in a blanket of deep sorrow, yet at the same time I felt joy. It’s been a journey of remembering and releasing in words previously unexpressed.

Last night I sent my book to two test readers, a friend who is an author and a friend that is a child psychologist who works specifically with autistic children. I also sent a copy to my therapist. After I receive feedback, I will edit my book again. Then I want to send my book to my husband, my daughter Angel, my son Alex, and my brother Luke. After that, I am going to find a publisher. Then I will share it with you.

Perhaps this will start the healing process, perhaps not.

I figure if I can do some really difficult things (like running a 50k or writing a book revealing my trauma), then I probably can figure out a way to do something almost everyone can do. Relax. Heal. Let go.

I have been working with my therapist on brainspotting. I shared my first session with you and that was a very positive experience. After that session, things took a dark turn. I have been releasing all of the negative garbage I’ve been holding inside. It stinks! I’ve been working hard on trying to express my feelings. It has been painful, yet beneficial. Through this process, my lifelong struggle with insomnia and nightmares has gone away.

For a long time, I understood myself. I know what triggers my depression and anxiety. I understand the attacks of my trauma on my well being. But I’ve never known what to do about it. Visiting a therapist is taking the next step. Self-awareness is important, but it isn’t a catalyst for change.

I’m trying to give up control. It’s not like I had any in the first place. Just like being a clean freak never seems to make the dirt go away. Being a control freak doesn’t give peace and serenity to the voice that cries out for it. Worry is a waste of time. It doesn’t bring me peace.

I am trying to figure out who I really am. For most of my life I lived in survival mode. Now who am I? The person I needed to be to survive? Or who I really am? It’s hard to be myself if I don’t know who I really am. It’s a new time for self-discovery and growth. I want to fully experience my purpose in life.

I started meditating. Maybe I will try yoga. I always burned my anxiety off by hard workouts at the gym. This is how I process my anger. I am going to keep this, but add to it by including relaxation exercises.

I am going to read a Bible verse a day. This will incorporate inspiration for spiritual healing and growth. I want to trust God more. I also want to trust the people that care about me even if it means I might get hurt. I want to cultivate meaningful relationships. I want to cut off unhealthy relationships altogether, and if I can’t then I’ll set healthy boundaries.

I also started visiting a wellness clinic for physical healing of my body. My nervous system took a big hit from the long term stress. I suffered from stomach and GI issues my whole life. I’ve been working on avoiding the foods I am sensitive to and rebuilding my gut for optimal physical health.

If I can train my body for a 50k, I can train my body for growth and healing. My book is done, but I will never stop writing. The story hasn’t ended yet. The best is yet to come.

The path

It’s very important. That is why I got up before everyone else did, so I could tell you.

I am on a narrow path. It leads from my house to the backyard where there is a clothesline that I can hang my laundry on. There are two people on my path, a man and a woman. They walk down the path twice a day at the same time everyday. I’ve gotten used to them, their patterns.

The path is very plain. I only have the things there that I need to survive. No more, no less. One day a garden light is put a little way off my path. I think the two people put it there because they are the only ones I ever see on my path. But I didn’t see them do it. I really don’t know because they never speak to me. They just walk in silence across my path in the morning and disappear until they walk back in the evening.

Nothing happens for days after I notice the change. When I think it is safe to veer off the path to look at it, it becomes a vicious snarling dog. Every couple of days I notice another garden light is added. I am curious, but I have to get used to it first. After a while it almost belongs there and feels safe. Maybe I can look at another one just outside of the path I must not stray from. Once I do, instead of a vicious dog I see a golden retriever. I am very frightened because I can’t seem to differentiate safety from danger.

I cry out in terror. Seeing the dog, any dog, triggers the panic in me from the vicious dog. The people show up at an unexpected time and laugh at me because I am afraid of a harmless tail wagging golden retriever. I feel frightened and alone.

It was safer to never veer from the path. Instead I needed to be more rigid and structured to feel safe and find comfort. I must follow the same routine, the same pattern. Everything must stay exactly the same. Nothing will change and I will be safe. I’m not sure the people are safe, but they are predictable if I stay on the path. If I try to leave it, they are not safe.

Every day there are more garden lights. I don’t even notice them anymore. I stay within the boundaries. But one day something scary happens. The wind blew my laundry off the line off my path. I was responsible to care for my laundry. It was part of the routine that must be followed. I now have a dilemma, a conundrum of sorts. I have to grab my laundry, but I am terrified to veer off the path. Maybe if I grab it as quick as I can and come right back then nothing bad would happen.

Nothing happened when I grabbed my laundry, except I began to notice the world outside. It changed me. I began to see things differently. I went back inside my mansion and noticed for the first time that I was only using a few rooms. There were garden lights outside of doors that I was afraid to even go into. There was so much more out there to see, to be, if I didn’t let fear stop me.

Anxiety has a way of trapping us in what we know. It was important to cling onto at one time in order to survive. Now I see a whole new world out there to explore. There are rooms in my house I have yet to go in. Fear always stopped me. I clung to structure and routine. But there is so much more. Maybe it will be safe now.

The dream awoke me. It all makes sense now. I must write this down.

The floodgates have finally opened and poured onto my paper. I can write again. I am back.

 

Done, done, and almost done

I am so relived that all of the difficult things over my head this month are now done.

I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.

Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.

Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!

I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.

Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.

Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.

Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.

It is finished now. I sent them. Whatever happens, happens.

Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.

I am done, done, and almost done. If I heal and help other people in the process, it is worth it!

What is happening? Part 2

We left the wedding that night before the clock struck midnight. Not because something magical was happening. My car wasn’t turning back into a pumpkin. But on that day, when the clock struck midnight, my princess was turning 21. I told Angel that I would take her out for a drink at midnight. We got back home just in time for me to freshen up. When I came out of my room, Angel was fast asleep on the couch. I didn’t really want to go anyway. I was exhausted.

We took Angel out for lunch instead. We were surprised to see that a lot of restaurants were closed from the storms. Some restaurants had no electricity. The restaurants that did have power said they didn’t have enough help to cover for the restaurants that were closed and people that went out to eat because they didn’t have electricity. It caused a storm surge of customers.

It was sad to see Angel leave. It was the first time she was home after she moved out. It made me realize how much I missed her conversations. I’m not sure when she will be coming home again. After she left, I was exhausted.

I decided that I was going to go for a long run the next morning. The plan was to find a point to get on and off the trail to run to my parents house and back. I was hoping to park my car on the trail and run 10 miles one way. I wasn’t sure how it would work because of the storm damage and because I never ran the trail there before.

I left later than I wanted to the next morning. It was a nice day, not too hot and not at all rainy. The trail was heavily wooded but beautiful. The first half of the run was well groomed. I ran into a lot of people on bikes. There were several trees down and at some times it felt like an obstacle course.

But the second half of my journey was very remote. The bottom two pictures were taken on the second half of the trail. It would be a great place to hide a body. Wouldn’t it? There were fewer people along the trail here. At times I feared for my safety. It ended up being 14 miles to my parents house. I had a late lunch with my mom and headed back home.

My mom walked with me for the first 3 miles, then got picked up by my dad. She was afraid for my safety. There were times that I was too. I did something that I wouldn’t want my daughters to do. I felt vulnerable. At times I would look behind me and no one was there only to be passed by someone from behind a few minutes later without knowing they were there. It was creepy. It was starting to get dark. My mom wanted to give me a ride closer to home, but I refused.

I spent a lot of time walking. I thought I would spend a lot of time thinking, but I didn’t. My mind was empty and free. No problems, but also no solutions. It was starting to get dark. I was running out of fuel. I didn’t have much water. My feet were starting to ache. But I made it! I ran 28 miles. It was the furthest I’ve ever ran/walked and 25 of the miles I was totally alone.

I think I am ready for a 50k. I feel confident now. I wasn’t as sore as I thought I would be, but I was sore. The next day I went in for a massage. I should’ve waited because I was almost too sore.

I’ve regained my confidence, but my mom was so worried that I promised her I would never take the trail to her house again.

 

 

More than a shot

I took a pregnancy test today.

I had to take the test before I got the MMR vaccination which contains a live virus. Back in the 1990’s, when I was pregnant, my titer showed I was not immune despite receiving the shots in the 70’s.

I decided to get a booster shot because of the recent outbreak and my love for international travel. I might want to go on a mission trip in the next couple of years which will also take me off the beaten tourist trap path.

I started to think a bit more about vaccinations, more specifically the MMR vaccination. With the measles outbreak, I saw a lot of hateful comments made towards the anti-vaccination folks. I saw babies that wore shirts in photos saying, “I’m vaccinated because my parents aren’t morons”. I found this to be offensive because I’m sure most parents that don’t vaccinate are not morons.

Perhaps my opinion is not popular, but stick with me for a moment.

I had my first baby in 1998. In 1998, an article was published in a medical journal linking the MMR shot to autism. It caused a huge scare that I believe hasn’t been fully eradicated to this day. At that time, I was more fearful that my children would be severely autistic like my brother than to get measles, a disease that I’ve never seen anyone contract in my lifetime.

Later, after the article was published, we were told that the link was a sham. Being a very logical person, I wondered what kind of medical journal would publish crap research findings. Can anybody publish any research article that they want in a supposedly reputable medical journal?

I also thought about conspiracy theories. Here you have huge pharmaceutical companies making big money off of vaccinations pitted against a small probably under funded research doctor. Of course there wouldn’t be a link. Follow the money. What were concerned parents supposed to believe? You can’t just erase something you already saw. Shame on the journal for publishing the article in the first place if there were so many issues with the study’s validity. It caused so much unnecessary fear.

It was horrifying and I struggled with making the decision to have my children get the required vaccinations. I am happy to say that my children are fully vaccinated. I thought the best way around it was to vaccinate my children with the MMR shot after they safely passed the age when most cases of autism are diagnosed.

I feel angry with people who quickly judge others for not vaccinating. They are usually not morons, they might just be fearful like I was. My babies were born at the height of the autism linked to vaccinations scare.

I think that most people who choose not to vaccinate have their reasons not to. It is not lazy parenting. Believe me, it is a lot more work to choose not to vaccinate. I did receive some criticism for doing things on my timetable. But even if there was a small iota of a chance that vaccinations caused autism, I needed to be careful. Where those people that shamed me going to come in my house and take care of my child if he/she became autistic?

I honestly don’t know if I would have the strength to live through it again this time as a parent.

I have a lot of respect for people that grew up with a special needs sibling that end up becoming a special needs parent. I don’t think I have the courage to fight that battle twice.

I get angry about talk of forced vaccinations. Shouldn’t parents have the right to make that choice for their child?

I think pro-vaccine people would be more successful listening and being empathetic to the concerns of parents who don’t want to vaccinate. Don’t treat them like they are a bunch of morons because that won’t get you anywhere. Morons blindly follow. But educated people question and try to make the best decisions they can.

I am pro-vaccination, but I strongly believe that the parents should make the decision and be treated respectfully whatever they decide.

 

 

My life with a teen driver

I wonder if Arabella will ever get her license. She is 16 now, but I am hesitant to set up her driving test appointment because I don’t think she will pass.

My life is in danger. Just yesterday, she blew through a stop sign. She almost ran a red light. I had to yell at her to stop. Generally a relatively patient person, I screamed an obscenity as I watched my life pass before me as she changed lanes into another car’s path on a roundabout. The other driver pulled over as if my daughter was driving an emergency vehicle with sirens blaring. I simply screamed as I saw myself going towards the other driver as if in a nightmarish bumper car ride.

But that wasn’t all! Yesterday she cut off a driver on the highway almost causing an accident. The elderly man drove past her wagging his finger at her violently. He must’ve been a nice man. Most drivers lay down on the horn screaming what I can only imagine are obscenities while shaking their middle finger at her.

Maybe if she goes one week without someone flipping her off, then I will schedule her appointment. Even if she passes her test, I will worry about her driving. It doesn’t help that a close friend’s daughter died in a car accident last year when she was 16. Having a new driver is one of the most horrifying steps of independence for a parent.

To make matters worse, Arabella has zero sense of direction. I have to give her directions to places that she has been to a million times.

She also knows everything about driving and doesn’t want to listen to my 30 years of experience. Even though I never got any tickets or was ever in an accident. I didn’t even hit a deer which is unheard of around here. I did run into a septic tank cap up north a couple weeks back that I didn’t see which caused some front end damage to my car. But we won’t talk about that today.

I wish I could help Arabella be a better driver. It’s really no wonder I feel anxious. Maybe things will get better…