The ultimatum, part 3

The morning of our 22nd anniversary was perfect. The weather was wonderful and promised a beautiful day. We left the marina in our sailboat and headed to a nearby town for lunch at an Irish pub. On the way back to the boat we stopped at a consignment store along the way. We didn’t find any bargains, just junk.

Then we headed back to the place we started. Paul introduced us to the boaters nearby who invited us onboard for an anniversary drink. By suppertime Paul seemed upset for no apparent reason other than he had too much to drink. It was a special occasion and we were on vacation which meant he drank more than usual. By the time the day was done he had 15 drinks.

After supper, the fight began. He started yelling loudly and told me to leave. When I didn’t, he threatened to leave starting the motor on the boat. I told him to leave the boat at the dock because I was leaving. I left so quickly that I didn’t take anything with me.

I wandered around the marina and to the park nearby. It was a dark night and I tried to hide myself in the darkness. I hoped Paul was worriedly searching for me but I didn’t want to be found. I was embarrassed to be seen wandering around by myself in the night.

I heard people laughing and partying nearby. I didn’t want to be seen. I didn’t feel confident in my safety from people or wild animals without my phone. I could literally just disappear. A part of me wanted to just keep walking and leave everything behind. But I didn’t have any money, my phone, or even a jacket so I probably wouldn’t get too far. Besides I didn’t even know where I was.

I stayed at the park a long time until the grass I was sitting on grew damp and the bugs started biting. But I wasn’t ready to go back to the boat.

I got cold outside and sat for awhile inside to think in the boater’s lounge. It was awkward. I was sitting by myself looking sad on my anniversary when people wandered through. Maybe they knew? Maybe they heard the fight? I couldn’t stay there all night. Was I going to sleep in my clothes on the couch?

Maybe I could get my phone and call someone for a ride home. But it was late and we didn’t live close. Was Paul still upset? What was I going to do that night? What was I going to do going forward? Will our marriage end on the day it all began?

Eventually I made my way back to the boat.

Gratitude week 24

  1. This school year is finally in the books!! I think my daughter passed all of her classes. For the first time, I wasn’t sure it was going to happen…so that is tons of stress off of me!
  2. Summer!! Mother Nature has been moody this year. It’s either been hot, humid, and rainy or cool, dry, and windy. I almost froze this weekend sleeping in my winter pajamas. Some days we need the heat and others the A/C, but we are saving money by keeping both off.
  3. For the first time in my lifetime a tropical storm passed through the state of Wisconsin setting records. I almost felt like I did get that trip to Florida. Just another thing to add to the list this year of weird historical events I’ve lived through. Our foreign exchange student had her 16th birthday and party the day the storm hit. Talk about memorable.
  4. I finished a self(?)-help marriage book this past week. I realized I am an avoidant marriage partner. I like to take care of myself and not ask for help. I tend to hide out in my shell and have to be drawn out. As an introvert avoider raised by two introvert avoiders, I don’t tend to reach out to others as a source of comfort. I sometimes wonder if blogging is another way of avoiding relationships with other people. I am grateful for books that bring about more self-awareness.
  5. I also finished the colitis for dummies book. I learned a lot of helpful information. I also met with my wellness nurse this past week. I expressed frustration over not feeling good after going for almost a year. She still thinks she can help me but said that I have a lot of things going on in my body that have been that way for decades and are resistant to change. She gave me her personal contact info which she doesn’t give out to any of her other clients so I can update her on my progress. I feel like I can trust her. I am working hard with the nurse, counselor, and craniosacral therapist to heal my body. It seems almost voodoo like to have to purge all the junk I’ve stored in my body for so long to deal with the trauma in my life.
  6. I bought some flowers this week to decorate the outside of my house.
  7. I have been working with a mentor the last couple months on a Bible study on anxiety. When talking about what to do next, I suggested a couples study on marriage. I’ve been dealing with anxiety and depression my whole life but I haven’t been married that long. It’s something we want to work on with someone who has been married longer than us.
  8. I’m grateful my husband spent the weekend away working. His new business is taking off and I am happy about that since it was something we worried about.
  9. Flavored sparkling water.
  10. I’m grateful my daughter will be coming home for a visit this week.

Trips to the dump

I thought of my grandpa the other day as a baby bee brushed against my fingers.

Things fell apart the summer I turned 13. My grandpa fell trying to get out of bed in the morning and spent the summer in the hospital trying to walk again. It was the year after my brother Matt spent the summer in the hospital. My grandpa wasn’t the same after that. He was diagnosed with a rare autoimmune disease. Before he came home a wheelchair ramp was added and the bathroom was remodeled to accommodate a wheelchair. He never walked again.

Maybe that was the year things got harder for me. My grandma was one of Matt’s biggest caregivers and now she needed to take care of my grandpa. That put a lot of pressure on me and I stopped my social life before it really even started to help take care of my brother.

But before grandpa got sick, we had some good times together. He used to take me fishing. I must have talked his ear off because he told me I was scaring the fish away with my incessant chatter. Many years later I found out this wasn’t true.

We also had our occasional Saturday morning trips to the dump. Grandpa would back his truck into our driveway to pick up our garbage which wasn’t a lot since we had a burning barrel and a compost pile. My parents are hoarders, so only true garbage was thrown away like used cat litter. Although sometimes that was used in the winter on the ice. Everything had a use or purpose even when it didn’t. Some rooms of the house and even the garage were dedicated junk piles. It was one of the zillion reasons I didn’t have friends over often. Apparently most people seem to find hoarding off-putting.

But anyway, the trips to the dump with my grandpa were wonderful. He was friends with the dump man who was also a hoarder. I swear the guy would go through everyone’s garbage to find treasures to take home. There were bags of garbage everywhere, some were burning in a big pit.

The dump was sandy and smoky. It wasn’t a good place to be on a windy day. But when there wasn’t wind, there were bees. The dump man said I didn’t need to be afraid of the bees. He told me to put out my finger and the little bees would land on it. I did and they tickled my finger. Since then I’ve never been afraid of bees or wasps and they have never hurt me. Of all the things I am afraid of, I’m not generally afraid of animals. My dad was afraid of spiders so he never used them to terrify me. Win, win I guess.

My grandpa and I made several trips to the dump because we were looking for the perfect bike. The dump man started setting aside the bikes for us that others threw away. Then one day we found the perfect piece of junk. Grandpa lovingly painted it purple, my favorite color. He put on a new chain, new tires, and a new sparkly purple banana seat.

One day I outgrew the little one speed bike. My last birthday before grandpa got sick, he took me to the store to buy a bike kit so he could put a ten speed together for me. It meant a lot because he bought it new and also because he took me to the store to buy it. That was the first and last time I remember my grandpa going inside a public place. He refused to leave the house after he was wheelchair bound. We had to fight with him to go to the doctor when he needed to go. He didn’t even go to my wedding. He would even panic if grandma was gone for more than an hour or two.

So when I saw the little bee buzz by the other day, I put out my finger to say hello. It instantly took me back to the trips to the dump. How crazy to have the trips to the dump be one of my fondest childhood memories. I am thankful for that though. My younger brothers barely remember the good times with grandpa before he was in a wheelchair.

 

 

In sickness and in health

I wonder if wedding vows still espouse the traditional in sickness and in health. It’s been awhile since I went to a wedding, my own being almost 23 years ago. When I think of someone getting married, I think about young and healthy couples who probably don’t think that their love could battle health issues that might mess up their future dreams.

And the two shall become one. But what happens if one is sick? I’ve been thinking about that a lot lately since I haven’t been well.

Currently I am drinking 15 liquid elixir shots and popping 21 pills a day of supplements. I’m getting sick of it. I still don’t feel well. I am now trying to eat two small meals a day. My stomach hurts if I get too hungry and it pretty much always hurts after I eat. It’s a delicate dance.

Over the weekend I ate only bone broth. It is disgusting. I watched as my family ate pizza, hamburgers, birthday cake, chips with nacho cheese, and ice cream. It was hard to watch especially since my bone broth didn’t make me feel much better. I got very weak. The last thing I wanted to do was clean the kitchen up after they feasted which is a chore that mainly I do. Thankfully I didn’t have to.

Sometimes they feel bad for me. I get barraged everyday by well meaning loved ones with an are you feeling better yet. Sometimes they feel guilty for eating my favorite foods which I cannot have in front of me. Sometimes they care more about themselves.

Yesterday my husband went for a run and was apologetic to me. I didn’t enjoy running, I’m only doing it for my health. I feel horrible they are apologizing to me for doing the things they normally do. It makes me feel bad. But their normal behaviors are tormenting me because I can’t do it anymore. I think it is wrong for me to be upset about that. But it does upset me.

Oh, and another thing since I’m being totally honest here. It is hard to live with three teenagers in the house. The other day my daughter Arabella was eating cookie dough for breakfast at noon. My husband confronted her telling her she needed to eat something healthy. It was the right thing for him to do. Since then she has been angry at us and is once again slipping behind on her homework. I can foresee a lot of problems and confrontation with her in the near future.

Stress tends to make me feel worse. I have zero tolerance for stress right now which sucks because I see no end to that in sight.

Other than not feeling healthy, my mental health has been a struggle too. I used to cope with anxiety by running and keeping busy. Now I sit around and worry. I’m depressed because I don’t feel like I am accomplishing much. My husband gets irritated sometimes that he has to pull more of the weight since I’ve been sick. I don’t like it anymore than he does. It’s not like I’m trying to deliberately get out of doing my fair share. I’ve never been much of a slacker. No one in this house understands what it feels like.

I’ve been depressed because I don’t want to spend the rest of my life feeling this way. Now I think I understand why in sickness and in health are a part of the wedding vows. Will I still be loved if I am no longer the person I used to be?

For better or for worse, for richer and poorer, in sickness and in health…If you stay with someone long enough, you pretty much see it all.

Losing myself

It’s funny but one of the things I miss most is not wearing lip gloss. Shiny sparkly lips covered by a mask is not possible anymore. It’s messy and it smears.

Life is like that sometimes, messy.

I don’t even want to leave the house anymore. The last time you saw me I was beautiful and strong. Since then I’ve let my hair go gray. My strength left behind me with my last run at the gym before its doors closed along with my youthful blonde locks.

I’m ashamed of myself. I’ve tried to put myself back out there but I’ve been much too weak to run. Perhaps it’s over. I’ve had to let myself go. Instead of outrunning I’ve been overrun.

Do you know how much work it takes to run a 50k? Or maybe a marathon? I used to be a great runner. But now I can barely walk a couple miles without feeling winded. How will I get it back? Everything I built gone in one swift blow to my health. I just can’t seem to do it anymore. Maybe my toned athletic body will turn into a blob of sludge.

I will never be what I was.

I’m mourning the loss of me. Aren’t I too old to have to find myself again?

Or is that just a part of life? Do we ever realize ahead of time when things are ending or even beginning?

Is this the end? I don’t know anymore.

If I had known it was going to be over, I would’ve enjoyed it more. I would’ve held on longer before it slipped through my hands.

But isn’t that what we always tell ourselves when we realize we just said our last good-bye? The guilt of not making the most out of our last time never seems to leave. I would’ve tried harder.

I have to let it go if it is truly over…but right now it hurts to even think it might be.

 

Isolating fears

I wish life was back to normal. Or perhaps I should say I wish I could take my favorite things from my old life and mix it with the best things of this new world to form some sort of utopian society.

Since this whole thing started my mom has lived in great fear. She is so terrified that I don’t think she will leave the house if it means being around other people after the safer at home order is over in two weeks. I didn’t say anything up until this point but I might have to. I figured how can it hurt her if she wants to stay at home with my dad and autistic brother.

Now she is talking about getting a mask with a filter in it to wear under her cloth mask. She found some gloves to wear. This is only if she has to leave the house. Other people have been buying groceries. I’m wondering now if locking herself away is only temporary.

She does leave the house to go on walks with my brother Matt. The other day I was on the phone with her while they were out walking. She saw some kids on the path and freaked out. They quickly walked in the opposite direction in sheer panic.

It took me back to when I was a kid. My brother heard voices that told him to attack little girls. There was a period of 3 years where my brothers and I were homeschooled because Matt was psychotic. We avoided public places. If we were out and little kids would show up, we had to quickly pack up and head out. Nothing was wrong but it would only take a second for Matt to attack someone. Thankfully he is medicated now.

My grandpa had a tree nursery next to our house. Sometimes customers would show up looking at trees. We always had to keep on the lookout. If a potential customer showed up with little girls, someone had to call grandpa and then run out to meet them before they came to our house. Someone else had to make sure that Matt did not see the children outside. We had to be hyper-vigilant and work as a team to make sure no one got hurt.

Now I see the same type of paranoia in my mom. The children are potential threats. Even if they seem healthy they could be carrying a potentially deadly virus. Even if Matt seemed fine, in a matter of seconds he could potentially hurt someone. Even if it remains unseen, the threat is very real.

I see my mom very frightened and almost in a flashback of the other time we kept in isolation. I see the parallels of the fear and isolation.

I don’t think it is good for my mom’s mental health to stay in isolation much longer. My dad is very difficult to live with and needs care along with my brother.

I think my mom is going to stay in fear and isolation for a long time, longer than it is safer at home. My husband thinks she will stay in isolation until a vaccine is developed. Like my mom is going to trust a vaccine that is put out in record time. I probably wouldn’t even trust that.

I don’t want my mom to spend the last few years of her life not living out of fear. It’s hard to see her so afraid. I’m going to have to say something if it continues much longer.

Gratitude week 18

Once again, this past week has been really rough. I felt very sick for 10 days. I was even up 3 to 4 times a night to run to the bathroom. I got very little rest and my body feels weak. The preliminary test results are showing that I have some form of colitis.

Sadly, the doctor’s office called me on Friday a few minutes before closing. When I called back I got the answering service. I didn’t even receive a call back until 10 on Saturday morning from the nurse. She said the doctor wanted to treat me with a steroid but he wasn’t going to be able to talk to me until Monday morning.

The sun was shining and I felt pretty good yesterday. I probably overdid it with the yard work. I wanted to go for a run today but was so weak and tired I could barely walk. I started to feel pretty down. My body is not doing what I want it to do. How long will it be before my muscles start to atrophy? I take pride in long distance running. I spent the last 10 to 15 years toning my body. My arms have great definition for a woman in her mid-40’s. It makes me sick to think I might have to throw away all the work I put into being athletic.

I started to worry that I was going to become a burden to my family. I like taking care of things, not having others take care of me. I have plans to travel and more races to do.

Then I started to panic today because I realized the doctor intends to treat me with immunosuppressant drugs. I would do ANYTHING to not have to suffer through another episode of the kind of pain I just experienced. However, now is probably not the best time to be on immunosuppressant drugs.

This past week someone from our church died from the coronavirus. He was my husband’s age. I would be willing to go on medication to suppress my immune system to never go through what I went through again. But I am afraid.

Also, what about working?

So, I am going to try to be grateful for 10 things this past week….here goes..

  1.  I should have my health questions answered this week.
  2.  My aunt Jan sent me a get well card in the mail. It feels good to have people thinking and praying for me.
  3.  My husband helped take care of a lot of things while I was sick.
  4.  My daughter was very behind on school work and my husband helped design a schedule to help her get caught up. Plus he helped her with Algebra 2. He is a great teacher and great at math which I appreciate since I am not.
  5.  The year of April finally ended.
  6.  The weather was perfect this weekend which always makes life better. Winter will be back tomorrow and for the extended forecast. Yuck!!
  7.  I felt pretty good yesterday.
  8.  I bought a funny shirt. It says Pink Freud, The Dark Side of Your Mom. Consider it a Mother’s Day gift for myself. I love Pink Floyd and went to college for psychology, so Freud..
  9.  I broke down and ate some macaroni and cheese. It was the first time I ate dairy in 9 months. I figured I couldn’t feel much worse than I was already feeling and I was right.
  10.  With technology, I am still able to do a lot of the same things everyone else is doing. I am not at home by myself missing out. I can check out new shows and movies. I can still see my mom and daughter although I cannot visit them.

Gratitude week 17

The past week has been very rough. I guess I’ve been saying that a lot lately.

I am now on day 6 of being sick. I haven’t slept much because I am up multiple times a night to use the bathroom. I am not well. I’ve had to take all my goals, dreams, and hopes for the future and put them on a shelf. Or maybe I have to give them up forever. I’m starting to grieve that my old life is probably over.

There have been times I’ve curled up in pain in a fetal position on the floor tears cascading from my eyes. I’ve had a fever off and on and I feel it starting to climb back. I don’t know how I am going to make it through the prep tonight for my procedure. I’ve been thinking about that a lot, death. Sometimes it feels so close that everything still left inside me tells me to prepare.

I don’t have much time to talk, nor much energy. So, that being said, here are my ten things I’m grateful for this week.

  1. Soon maybe I’ll finally have the answers for what is wrong with me.
  2.  I reached over 750 followers on my blog. I am thankful for you my readers and friends who are supportive of me telling my story.
  3.  I am thankful for my husband. He is the best man I could ever ask for. Please keep him in your thoughts and prayers because he is really having a hard time with this.
  4.  I am grateful especially for my children, my mom, my brothers, my aunt Jan, and my best friend Cindy. They have been checking in on me so much that I can barely get any rest.
  5.  I am thankful for my pets, especially my cat. He follows me around everywhere.
  6.  I am thankful for the deer that grace my yard. Watching nature keeps my mind off my pain.
  7.  I am thankful for finally getting some weather that makes us think of spring.
  8.  I am grateful I tested negative for COVID-19.
  9.  I’m grateful I’m not missing much because I’ve been stuck inside sick.
  10.  I’m grateful that my procedure is very early tomorrow morning. I don’t have to wait much longer to hopefully get some relief.

I need to take some more Tylenol and eat some chicken broth. Prep starts in less than 2 hours. I will try to update you in the next couple days. Thanks for your thoughts and prayers.

This stinking sinking boat we’re in

I think the numbness has worn off and it is starting to hurt now.

I’m struggling today. Just the other day I was thinking about how hard it would be to be trapped inside the house with toddlers. But, you know what, it is hard to be trapped inside with teenagers.

It came to my attention yesterday that my daughter Arabella is behind in her online schooling. I had a sneaky suspicion about that although she has never had issues with grades or school before. I didn’t think I would have to micromanage my teen. I would almost rather teach common core math to a grade schooler right now. It would probably be less frustrating.

I can imagine how hard online schooling must be for a teenager. It takes a lot of grit, maturity, and strength of character to have self-motivation. When your whole world is falling apart you still have homework to do. The world is ending, but math..

The girls were supposed to go to prom this weekend. They had appointments to get their hair done. Now their beautiful dresses hang on a rack in the back of a closet. I could go on and on. The musical. Concerts. Going to state. Track. Spring break trip. Goofing around with friends. ALL GONE!

Why bother when the only thing left is the thing about school that most teenagers don’t want to do?

I have been angry. YOU NEED TO DO YOUR HOMEWORK. I have been frustrated…impatient. How do you help your teenager cope with disappointment? Now my daughter dug herself into a hole she might have a hard time getting out of. How do you deal with that? Should I ground her from her phone? She hasn’t seen her friends in a month. What else is there to take away?

How can you be upset with someone for feeling depressed right now?

It is hard to deal with disappointment if you never learned to deal with it at this level before. My daughter clearly is not at her best. All she does is mope around and eat junk food. Over the past year she worked really hard to lose 50 lbs. Now she is packing on the weight again and it is awful to see.

Our remaining foreign exchange student is not fairing much better. She has been sleeping a lot and not eating much. She hardly weighs anything as it is. It’s hard for her to find the motivation for school as well since this year does not count for her when she goes back. This is no longer the American experience she paid a lot of money for.

Also, her mother was going to visit in June and they were going to go back home together. Estelle just found out that her mom won’t be coming and she is not even sure she will be able to go home as planned. So far her departure is the only remaining thing left planned on my calendar.

So here we sit. What do I do? My just do it mentality is not working. I see everyone around me falling apart and I can’t motivate them. I’m trying to be supportive and understanding but it isn’t working well.

I’m not sure what to do about it but I can’t be the only one in the same stinking sinking boat.

Gratitude week 13

I’m not the superstitious type, but week 13 pretty such says it all for me right now. I’m having a hard time feeling grateful. Whose stupid idea was it to do this gratitude crap anyway? Oh well!

Right now I’m supposed to be touring New Orleans for the first time with our foreign exchange students and family. Instead we got the news today that Clara’s parents want her to go back home to Germany. We are so sad it has to be this way. We also decided not to have our daughter be a foreign exchange student.

This week the last thing I put in pen on my calendar is gone. We will not be visiting my brother and his family for Easter.

The Europe trip open to students and their family that got cancelled is not refunding us all of our money. They are keeping almost 1/3 of the travel expenses. Parents are angry and a petition is being sent around to try to get everything but our security deposit back. It’s a huge mess.

My husband and I have been fighting like crazy.

Everything keeps breaking. Now my son is having problems with his car.

Need I mention the economy.

So…it might be hard to find ten things this week.. Here goes..

  1. We are all healthy.
  2. We have enough food to eat.
  3. I only left the house once this week. That being said, the only compliment on my hair was from my husband. Just for the record, the last time I colored my hair was in September. I started doing this before it became cool (the hair salon’s closed).
  4.  I spent some time working on our new business today and it felt good to be productive.
  5.  In some ways I kind of like not being so busy.
  6.  The weather is going to be nice this week, sunny and temps around 50. It is so hard to exercise outside when I am freezing so this will be nice.
  7.  We named our indoor pool Florida. We can go to Florida now.
  8.  I think I am doing pretty well holding things together.
  9.  We will only have 3 teenagers in the house, although I am very sad Clara is leaving early since we get along so well. But it isn’t good bye forever and she will be reunited with her family.
  10.  I had a couple nights this week that I slept fairly good.