feelings

Living on video

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Today I saw my whole life pass before my eyes. No, I didn’t have a near death experience. I sat and watched my past fly by in fast forward as I was sitting with someone going through the old family videos. I started the project of converting those old videos onto hard drive.

I saw my grandma today. It was just a fleeting glimpse. She was living on video, beautiful and younger than my parents are now. Someday I will see her again. Until then, I will have to be satified seeing her at birthdays, concerts, and weddings living on video.

Ending the holiday season

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I didn’t tell anybody this earlier, but I started the new year off on the wrong foot. We had a couple of friends over for New Year’s Eve. Everything went well and the last people left at 1:30 AM. Paul and I finally made our way to bed around 2. At 6 AM, a noise woke me up. Somewhere between 2 and 6 AM, our furnace went out. The house temp was under 50 degrees. We ended up having someone come out at the crack of dawn on new year’s day receiving holiday pay to fix it. It was a rough start. 

Today we took down our Christmas tree. I put all of the decorations back in the crawl space and dug out all of my old journals. I don’t know how quick I will go through them to be honest with you. I always have a rough time this time of year with the lack of sunlight. Even though I take massive doses of vitamin D, my thoughts and emotions tend to be dark. Just thinking about the past can bring me down on the sunniest of days….so this month might be light and fluffy like the winter snow. Talking about the winter snow, Paul and I were able to get out and cross country ski for the first time on the skis that we bought last winter. What a workout! Sure made me feel out of shape, especially since we saw a friend of ours there and he did two laps to our one. 

Yesterday I told you that we were going to one last Christmas party at my uncle’s who happens to be a clean freak. Well, I am embarassed to say that it was me this year that made a mess. That’s right. After being at the party for about a half an hour, I cracked open a bottle of beer. I took 3 sips and proceeded to spill most of the bottle everywhere. It went down my shirt with a majority of it landing on my pants and their off white carpet. I greeted relatives coming to the party looking like I peed my pants. My uncle said I could leave behind some money for the carpet cleaning. I am glad he was just kidding. Or was he? He didn’t freak out though like the story I heard of when my cousins accidently knocked over his fish tank. Other than looking like a complete idiot, the party went well.

Our staff party a couple weeks ago went great too. We took our employees to a painting class. It was so much fun. And I didn’t suck at painting. I was happy to be average. Out of the four of us that went, not one single person between the ages of 30 and 52 ever painted on a canvas before. Checked that off my bucket list and would love to do it again. 

Other than that, I have been trying to upload a video of my daughter and I singing. I haven’t been successful at that. I will probably figure it out by July. Geez. We sang our Christmas songs at the party yesterday. Every year my aunt insists that we sing. My daughter moves people to tears with her singing. She wants to spend the summer singing and performing on tour. She is auditioning to do that next month. When my cousin heard that, she was bummed out because she wanted Angel to sing at her wedding this summer. Angel just sang at my brother’s wedding a few months back. Angel and I have very similar voices, except that hers is well trained and mine is not. I used to be the one asked to sing at weddings, now it is her. When did she become better than me??? She used to ask me for advice and now she tells me what to do. I listen to her because she is right, but can’t help but feel hurt that I am no longer wanted. I am happy that she has had so many opportunities that I didn’t.

Sometimes it is hard for me to accept this whole aging thing. 

Still the classical music plays

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My mom called me in the say that Mr. Smith died today. Tears fall from her eyes but all I want to do is go back outside to play. The snow is over my head and I want to go back to my little hill to sled. My little brothers are busy ants digging underground tunnels in the snow. It is cold and quiet outside. Sometimes I sing a song to hear my voice echo back to me. Then I don’t feel so alone. I am always alone. None of my friends are allowed to come over and play. Matt scares them away.

My mom takes me over to see the really old people in town. She said they like it when little girls come over to play. They don’t have any family and are all alone. I like Mr. and Mrs. Smith. Sometimes Mrs. Smith gives me cookies and one time she took me upstairs to see the dolls she used to play with. The dolls are really old and I can’t play with them. Mr. Smith showed me his card shuffling machine. I really liked it. Mr. Smith is sick. He coughs a lot. Sometimes he doesn’t get out of bed when we visit. Mom said Mr. Smith died today. Maybe I’ll see him tomorrow but right now I really want to play.

Mom keeps crying. It is making Matt upset. We can’t sleep. Matt rocks back and forth in his bed. He rocks until his face bleeds and blood is on his sheets. My little brothers can’t sleep because Matt is making too much noise. My three brothers share the room next to me. Mom cries. The day Mr. Smith died, mom put a record player in the hall at night. She thought that the classical music would soothe us to sleep.

Night after night, the classical music plays. But it doesn’t relax me. Instead I feel afraid.

 

 

Demons past, present, and future

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Every couple of months my mom and I take the day off of work to spend the day together. This usually involves going out to eat for lunch and getting a massage. Last week we had our mother-daughter day. This time it included a back burner task. I decided that we needed to take in all of our old family videos to be saved onto a hard drive. Silly me, I thought that we could drop off the old VHS tapes and be out of there in a half an hour. We ended up being in the store over an hour talking about not only converting our old family videos but also eventually taking the old family photos in to preserve them.  I know that I have at least 3 large bins full of pictures to scan. This is going to be a big project.

It was at that point when it really hit me that my parents are getting old. It seems like yesterday that I was going through all of the old pictures with my grandma and great aunt Grace trying to put names to faces. All of my grandparents are gone now. I have only one great aunt left. My mom is the oldest living sibling. My parents are close to 70. Now is the time to work on this huge project with my mom.

It is also the reason that I don’t want my mom reading my blog. She is getting old. I don’t want this to be a reminder of the most difficult times in her life. She finally has a sense of freedom that she never had before. She doesn’t need to be reminded of the hard times. I don’t need to remind her of the day that she was trying to stop Matt from hurting himself during a meltdown. That was the day that she ended up with a black eye and bloody lip. It would be very painful for her to have to remember those days. It is very painful for me. Her life has been very difficult, I want her last years to be happy.

Matt also went to my daughter’s choir concert this past weekend. At one point he became separated from our mother. He became very anxious and agitated pushing through the crowd to find her. I calmly reassured him that he was alright, that mom was close by. But what happens when she is no longer with us? How will I not only get myself through it but help my brother through when he cannot process change? Every time I spend time with my mom I reassure her that I will help take care of Matt when she is gone. It will be alright, I can do this.

I decided that I will write a book about the journey of life with an autistic sibling. It will be hard. It will be painful. Next year I will dig out the old box of journals written during the darkest years. I will share it with you. I will start the process. Maybe I will even find out why I can’t relax. Why I always have to stay busy. Relaxing makes me nervous. Why does my skin crawl listening to relaxing piano music? Why does quiet meditation fill my soul with terror? Time to face my demons. I can do this.

Why do I torment myself with this? Do you know how easy it would be to delete this blog and walk away like none of this ever happened? But I can’t seem to let it go.

Hoarding, clutter, and cleaning freaks

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I am knee deep in fall cleaning right now. I thoroughly clean my house twice a year, once for spring and once for fall. Spring cleaning is the big event of the year where I scrub the whole house with a toothbrush. Fall cleaning is more of a hairbrush clean. I used to thoroughly clean my house after every season, but I really hate dusting. Talk about a useless task! I dust everything and within a half an hour new dust takes over. Then I sneeze for 3 days.

I threw out and donated many items to the point of guilt. I come from a very long line of hoarders. When we sold Aunt Grace’s house, we moved everything into my grandma’s house. When we sold grandma’s house, we moved stuff into my parent’s shed. Now their very large shed is full. Time to build another shed! We did get a large dumpster for my grandma’s house which was emptied 3 times. We made multiple trips to Goodwill to the point where they didn’t want any of our crap anymore. Did you ever hear of anyone getting turned away from Goodwill for over donating? Yeah, me neither.

Yesterday I went to my parents house and watched them struggle to maintain their property. There was a pipe that was leaking into the basement. Mom took me downstairs to look at the damage. There was some water that pooled around food items that expired in the 1990’s. I feel overwhelmed at the thought of cleaning it all out someday. My mom has always been a food hoarder which she attributes to growing up poor.  She has 4 freezers and 2 refrigerators. The cupboards are full of mostly expired food. There are grocery bags sitting on the floor with new food. Downstairs the situation is worse. Multiple peanut butter containers that expired in the 90’s, homemade canned food items from the 80’s, glass containers full of stale grains, corroded cans, juice separating in bottles.

My parents also hoard other things like cars, magazines, paper, newspapers, clothing, blankets, wood, books, movies, old toys, candles, soap, empty jars, tools, and parts. My dad collects electronics, broken parts to fix other broken parts. The floor and chairs are stacked with papers. The dining room table is never clutter free and neither is the kitchen counter. Nothing is thrown out even if it is expired, broken, or useless. Paul’s mom and step-dad are hoarders too. They have 2 refrigerators in their small kitchen. One doesn’t work and is used for storage. Both of our parents have given us some of their junk which we throw out for them. Thankfully Paul and I share the same motto of when in doubt throw it out. Looking at my kids rooms, I think we may have a few future hoarders on our hands. 

As a clean freak, the clutter overwhelms me. I can’t breathe. I feel a lonely emptiness in a room stacked full of clutter. It rises within me a feeling of absolute despair which I cannot explain. It feels hopeless. I want to throw everything away. I want my house to be clean, but no matter what I do it still feels dirty and messy.

A few years back, my brother Luke and his wife brought her sister to my parents house with them for the weekend. Luke’s sister-in-law told my brother that my parents house was so messy that she would never stay there again. Luke told my mom. This started a big fight with a lot of tears and stress from my mom. Luke was hoping that my mom would throw things out like he does, but instead they built another shed. My mom gets very attached to items and needed a lot of moral support to throw out my brother’s baby blanket a few years ago when he was well into his 30’s. We also did not want our old baby clothes for our children. Why do items attach so much hurt for the people who don’t want to part with them and the people that don’t want to keep them?

I have helped my parents countless times in the past. It is so overwhelming to me. It is like emptying a lake with a cup. I feel guilty for not helping them more. I’ll be totally honest, I can’t handle it. It elicits such a strong negative response within me that is unbearable. So I scour every corner of my house. After cleaning I still see all of the streaks in the windows, all the stains on the carpeting, the little yellow rings that don’t come out of my sink and bath tubs, the grease that lingers around the oven, the little spots on the walls, and the cracks in the linoleum. Will we ever be free from cleaning or hoarding? Will we be forever haunted by earthly treasure or trash?

Judged

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I always thought that I was a really good judge of character. Don’t we all? I have heard people admit that they are selfish, lazy, unorganized, vain, but I don’t recall anyone ever saying to me that they are a bad judge of character. Why is that?  Do we want to see the best (or worst) in people despite contrary evidence? I have been struggling with this concept lately. I think most people are embarrassed to admit that they were wrong about someone’s character when their hearts were broken or money was stolen.

I met Jake a couple of years back when he still was a boy. The first time I saw him, he was walking his dog by our house. At the time, I thought maybe he would be a good friend for my son. One day I just happened to be looking out the window when Jake walked by. I just let my dog out and was looking towards the road when I saw Jake’s dog drag him over the meet my dog. In the process, Jake got clotheslined on our mailbox. The dog further dragged him into the ditch. Jake laid wounded on the grass with blood coming out of his neck. I freaked out. I sent my oldest daughter out to get him while I panicked. Eventually I bandaged up some of his wounds and gave him a warm washcloth to put on his scraped and bloody neck. I tracked down his muddy mutt and loaded them into my car to give them a ride home. Welcome to the neighborhood!

A few days later, Jake’s mom sent me a note thanking me for taking care of her son. I still have it which is remarkable because I throw everything out. Over the years, Jake and my son became very good friends. I always liked Jake. He was courteous, quiet, happy, friendly, and kind. He always thanked me when I gave him a ride to school. He was the kind of kid that I wanted my son to hang out with.

Then this summer, things changed. Jake grew into a troubled teen. He was no longer happy. He stopped thanking me for rides. He went to the gas station and stole a pack of cigarettes. His parents made him return them and apologize to the owners. He was grounded for over a month from everything. Then one cool rainy night, he ran away which I blogged about previously. He vanished for almost 48 hours, then went back to school like none of it ever happened. He was present, but not quite there.

A few days after Jake went back to school, his mom texted me with concern. She said that a teacher asked the students to draw a picture of what they were doing for the weekend. Jake drew a picture of himself alone in the corner of his room with his knees folded and his head down in despair.

Then a few weeks later, a note came home from school stating that a student talked about bringing a gun to school. Apparently, a boy had created a hit list with 6 names on it and stated that he was going to bring 7 bullets to school. It was Jake. Jake said that he didn’t mean it, but he was sent away for a couple of weeks for treatment.

Last week I saw Jake walking his dog when I went on a long run. I asked him how he was doing. He smiled and replied that he was doing good. I just have to wonder if his smile was sinister or sincere. I always liked Jake and thought he was a good person. I still want to believe that despite all of the contrary evidence. How could I be so wrong?? In my mind, he is still the sweet and caring boy that I first met years ago. Not the troubled teen that he has become. I have been having a really hard time with this. I feel unsettled, I want to trust him again but can’t. I feel thankful that the troubles with my teens are trivial in comparison. I worry about his family. I pray that Jake can find the friendly and happy boy he once was.

Waiting….for bad news

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Waiting…I sit here waiting. Worried. Waiting for bad news. I know it is going to be bad. I think of all the times that we didn’t get along. The guilt of feeling annoyed by you most of the time. You aren’t a bad person. You just talk before you think. My daughter called you rude the last time we saw each other. You commented that my hair looked terrible. Did I mean for it to look so bad? Did my finger get stuck into a light socket? I told you that I wasn’t offended, that your comments about my hair didn’t bother me. It didn’t bother me. What did bother me is all of the empty promises you made to my kids your only grandchildren, the times you said that you would show up and didn’t. 

Now I am thinking that you might not be here to see your granddaughter graduate next year. I feel terribly saddened by this. When I saw you last weekend, you did not look good. You were out of breath, wheezing, and coughing. The cough that lasted over a year. You have been continually sick for months at a time with head and chest colds. Your doctor thought that it might have been some of your medications, that once he took you off of the offending pill that you would get better. But you got worse. Now you are in the hospital, waiting. We worry and wait, wanting the distraction of work but have difficulty focusing. What do we tell the children? That the doctors think that you have lung cancer. So we sit here waiting, waiting for the bad news.

Life, goals, and dead plants

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I woke up this morning in a strange place, a different bed. I killed another house plant this week, my last living one. I justify that by saying that I spent one third of the month in hotel rooms like the one I am in now. Five different hotels, two states. Some for business, some for pleasure. My mind searches for the perfect excuse. I couldn’t provide proper care for the plant. Hey, at least I managed to feed my kids and pets. 

When my daughter gave me the plant for Mother’s Day, I inwardly cringed. I have to manage to keep this alive!  Once I got a chia pet for Christmas, I felt it was way too much pressure. So I took the plant to my office. I developed a watering routine. I watered it every Monday morning and every Friday afternoon. I put it in the sun like it said on the little tag it came with. It did thrive until the sunny days were gone. I didn’t achieve my seemingly easy goal. 

It made me think of other goals I have had. It seems like finishing a marathon is an easier goal than keeping plants alive for me. Crazy!?!  A few days ago, my husband asked me what my goal is for writing. That had me stumped. A goal? Was I supposed to have one? I started this blog right after I got my house plant. I am still going. It is still active and alive. But where is it going? 

I like to write for fun, to share unexpressed emotions, to help others. I want others to know what it was like growing up with an autistic brother back when no one had autism. I want to share my own struggles and joys of parenting teens. I want to share goals and experiences as a runner. I want to make people laugh. I want to share life and all of its woven intricacies. But where am I going?? As a goal oriented person, do I need goals to write?

My husband said that I am a gifted writer, but he is very biased. He said that maybe I should consider chasing my own dreams. He started his own successful business. We work together. He said that I was riding his dream. He said he would support me if I decided to start a career in writing. He suggested that since I have a love for photography and writing that I should think about writing marina reviews or write a book. His words overwhelmed me. What are my goals? I have no structure, I just write about what I want to write about. Where do I go from here? Is this just another time consuming hobby? All I can tell you for sure right now is that my future does not involve gardening or house plants. 

The dark unfeeling cardboard box

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When I was a young child, I never really liked school a lot. Sure, there were some bad teachers, some good, and some everywhere in between. But it really wasn’t that. It was never that. It had more to do with Matt, my autistic brother. Being less than 2 years younger than me, I could never get away. The school really didn’t know what to do with Matt. He was the first autistic child to come through the school district. When he couldn’t function in a regular classroom, they cut the library in half to make it a special ed room.

For a long period of time, Matt was nonverbal. Oh, he did scream and cry but he did not talk. He was uncontrollable. His teacher at school set up a naughty box for him between the library and special ed room. Almost every time we had library, my brother was in the box screaming and flailing around. The box seemed high at the time because I was so little. When my class lined up to look at books, the kids could peer into the box. Most of the time the kids laughed and I hated them. I put my feelings in a big box that seemed even bigger than the box that Matt was in. Many times I would rather be trapped in that empty box devoid of feelings, life, and light than to face the pain of the real world.

For a long time I floated around in my own little world. How could I make friends with my classmates? How could I like the kids that called my brother a retard? I went deeper and deeper into that box. I stopped eating. I didn’t talk to anyone. I started failing my classes. The only thing that touched my heart was music. I had this focal point that I would always stare at so I didn’t start crying in that class. I was so lost. My mom was very concerned, she had the school counselor talk to me. She was a wonderful person who tried to help me make friends and talk about feelings.

My mom wasn’t in much better shape herself. Mother daughter outings with the extended family ended up with my mom sharing with the family how much she hated autism and all of the things that Matt did or didn’t do. The family just wanted relaxation and fun. They were uncomfortable that my mom was crying and needed their support. They stared at me all the time. When I was alone with family, they peppered me with questions about if my mom was ok and how was Matt. I didn’t feel like anyone cared about me. Most of the time they were just trying to help without being very helpful.

One day Matt started talking again. He told stories of how his teacher in the grade school was abusive towards him. She shoved him under her desk and sat down at her desk squeezing him in there. He also said that the teacher would place him face down on the floor and sit on him making it hard to breathe. My mom asked me if this could be true, she was very upset.

After everything that happened, my mom tried to keep my younger brothers sheltered from going to school with Matt. She sent my brothers to parochial schools and schools that were out of our district. I wonder if that had anything to do with me not responding well to being in school with Matt. Did I save my younger brothers some pain? I hope so.