Update

It seems like I am blogging less and less. This is not what I want, but there are a lot of things that I don’t want happening right now.

Last week went by in a blur. It’s been a whole week since the salvage yard came by and picked up not one but two of my son’s cars. One has been dead for a long time, the other was at the mechanics half the summer and was deemed unfixable. The little bit of money we got for them was gone the same day because the dryer broke later that afternoon. Tuesday the dryer was repaired. Wednesday I dropped a weight on my foot at strength training class. Thursday I woke up to a flat tire on my car. The mechanic was throwing a customer appreciation party when I got there. I am suspicious that they were throwing it because my son’s car was towed out of there never to be seen again.

It’s a sad time here. The boats are coming out of the water this week for the winter. Last week was brutal. We got tons of rain and broke the record for the wettest year ever recorded in history. We still have 3 months of rainfall left on the year. It was a rough summer. A lot of people had to change plans because of all the flooding and rain. We only had around 6 weeks of warm weather. So we have to go into the dark days feeling like we didn’t have much of a summer this year.

I haven’t been feeling well. I think I am still anemic. I don’t have much endurance at all anymore. I’m still having insomnia and nightmares. Pretty much everything I eat goes right through me. I feel nausea and acid re-flux every day. I’ve been sticking to my diet too. I haven’t had dairy for 6 weeks and avoided all of foods I am sensitive to for 2 weeks.

It’s been killing me to watch my friends drink beer and eat pizza while I can only have the salad bar. A salad without cheese, eggs, tomatoes, and dressing. Plus I still feel sick. Some days I can barely eat I am so miserable. There is nothing I can eat that I want to eat anyway.

It’s been emotionally challenging being on a special diet too. I feel like an outsider looking in. I feel lonely and left out. I don’t want to go out to eat. I don’t know what to make for supper anymore. It kills me to make and serve dishes I can’t eat. Maybe it wouldn’t be so bad if I actually felt better. It’s been dragging me down. I’ve been having a hard time with this. I feel so angry and impatient with myself for feeling sick. But it is important to keep to my regular routine whether I feel up to it or not. I haven’t cancelled any plans, although some days I don’t feel like getting out of bed. Friends and strangers alike have been coming up to me and ask me if I am alright. I hate feeling weak.

The good news is that tomorrow I have an appointment set up with a health and wellness doctor. Maybe I can get my body back on track again.

Other than that, I have been doing a lot of running around now that my son doesn’t have a car. I have 4 teenagers in the house. In the morning I drop the girls off at school then come back to take my son and his friend to work. He practically lives here too. Then this afternoon I dropped my daughter off at work, picked my son and his friend up from work, and picked our foreign exchange student up from after school sports. Plus I went grocery shopping, have to make supper, clean up afterwards, and then go pick my daughter up from work.

Every day is a variation of picking and dropping off kids. I feel very busy but like I don’t get anything important done. It’s been frustrating and I feel like blogging has been the last thing on the long list lately. I am going to try to blog more and be more positive. We’ll see what happens.

My intolerance

You may have remembered that I said I was going in for allergy testing a couple weeks back. Let’s just say that now I know why my mom wanted me to go in for testing. Something about misery loving company.

Although I don’t have any allergies that could send me to the ER, I was found to be intolerant of several of my favorite things. I guess the whole general premise is that if I am able to give up the things I am sensitive to, then after a year I may be able to reintroduce them into my diet.

The top foods that I am sensitive to are dairy, chick peas, and brewer’s yeast. I wasn’t expecting it at all. So no more cheese or beer for me for awhile. I might as well just exile myself from Wisconsin. Gotta love the dairy state. Not to mention that beer is pretty much a staple here as well.

I decided that after the Oktoberfest party this past weekend, I was going to give up the things I am most intolerant to. Then I will work on things that I have a minor intolerance to such as black pepper, rice, eggs, tomatoes, peanuts, almonds, crab, turkey, and baker’s yeast (breads, pizza crust, etc..). Seriously, what can I eat??

Friday night Paul made his famous homemade pizza. Then I sampled almost all of our friend’s homemade craft beers at the party on Saturday.

The party went by way too fast and soon Sunday morning came. I drank my coffee with my new hemp dairy free creamer. Yeah, my coffee tasted like rope.

I am a total cheese addict. I honestly don’t think I’ve gone a day without dairy in the last 20 years. It has been really hard. Although I do feel a lot less bloated.

Yesterday I went to a health conscious food store with my mom. She is dairy free too. I felt better after that. I was able to find some goat’s and vegan cheese. I was even able to find mac and cheese. Now if the stuff tastes good, that will be a bonus.

I am hoping to feel better and have less stomach issues. Maybe after I get this whole food thing figured out, I’ll go in for hormone testing. Two weeks of the month are total heaven and the other two weeks are complete hell. Thankfully the 50k will be in the good 2 week span. But I am back to having insomnia again. I haven’t slept for more than a few hours at a time over the last several days. I’ve been trying hard not to bite anyone’s head off, especially when I see them eating cheese.

A cold craft beer with a side order of cheese curds sounds so nice right now. I’m sure it will get easier and I will feel better. But right now giving up my favorite things has not been a lot of fun.

Brainspotting

I’ve realized a few new things about myself over the past couple days. The things I once thought were normal, or at least normal to me, I am questioning. I think I just got used to some things that are just not right.

There isn’t a day that goes past that I don’t think about the childhood trauma I’ve experienced. I wish I could just get over it or at best think about these things every other day. As a result, I’ve struggled with lifelong anxiety and depression.

But that isn’t all. I constantly experience exhaustion and fatigue. My doctor wanted me to go in for a sleep study when I was in my 20’s. I did and was told that I never went into deep sleep.

I started reading the book The Body Keeps the Score: Brain, Mind, and Body in the Healing of Trauma by Dr. Bessel Van Der Kolk. I would highly recommend the book if you have experienced or are interested in trauma in general. One of the chapters talks about EMDR. EMDR is a therapeutic process in which someone focuses on a pointer moving back and forth while thinking of traumatic experiences. It somewhat mimics REM sleep which PTSD sufferers apparently don’t get a lot of. It is supposed to be very effective in healing trauma.

When I was a little girl, my autistic brother was physically violent with me on a daily basis for years. Sometimes while I was trying to sleep at night, he would come in my room and threaten me with violence. As a child, I slept with my door open. You see, I was afraid of the monsters in my closet and the ghosts under my bed that would attack me when my door was closed. I thought like a child. I feared illogical demons instead of credible threats to my safety.

The stress hormones pumped through my veins with a steady beat day and night. My body learned to never relax. I had to be alert for danger at all times. Deep sleep wasn’t safe.

I started paying attention to my sleep patterns lately. They’ve been the same as long as I can remember. I don’t have problems falling asleep, but I can’t seem to stay asleep. I usually awake between 2 and 4 and stay awake for an hour or two. I try not to think because then I might as well get up because I won’t be able to fall back asleep. Sometimes I get up and walk around.

Usually once or twice a week, I have bad dreams. It seems when I am just about ready to go into REM sleep, my body awakens me. Even though the danger is gone, my body is still on high alert.

I can’t remember the last time I slept through the night. I can’t remember the last time I didn’t have a nightmare when I had a dream. When things are really bad, I experience insomnia and intense nightmares together on the same night. These are the nights that I wake up sobbing, can’t go back to sleep, and if I do I have nightmares again. Thankfully it doesn’t happen all that often.

I am exhausted, but can’t relax. My anemia is making things worse. I lack energy and can’t seem to think straight.

My counselor is trained in brainspotting, which is an offshoot of EMDR. Next session I am going to give it a try and see how it works. Maybe I’ll finally be able to get some sleep. Even though a pattern of insomnia and nightmares is normal to me, I don’t think that it is normal. Maybe there is nothing I can do about it, but I’m going to try.

What is happening? Part 1

So many things have happened in the last week, I don’t know where to start. It feels like a year has passed in a week. I will try to start at the beginning.

My faith feels tested. I’ve been asking God for a sign. But so many bizarre things have happened within a week that I don’t know how to interpret them.

It started last Friday as I was picking Arabella up from volunteering at Bible camp. I finally got a call from the doctor’s office. I don’t have Celiac and the polyps that were removed are benign. My stomach is starting to feel better. The doctor said if I went off Prilosec too fast, it will cause an excessive amount of acid to pour into my stomach. That is probably what happened, but I scheduled an appointment for allergy testing anyway.

Friday night a huge storm hit where our cabin is up north causing massive damage. I think that the power finally went back on yesterday. What a mess that will be to clean up. There were multiple trees down. Thankfully no one was hurt and the cabin is fine.

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Saturday morning we awoke to get ready for my Uncle Rick’s wedding. He had a whirlwind romance proposing 36 hours after meeting and moving in with her the following week. They married 7 months later, her 4th wedding and his 3rd. They seem like a good match. I really hope it works out for them.

We were going to leave early to meet up with my brother Luke and his family for lunch. It was my daughter Angel’s 21st birthday the following day and more than anything she wanted to meet up with the family for sushi. Just as we were ready to leave, another severe storm rolled in. There was a tornado warning for the path of our house, the restaurant we made reservations at, and where the wedding was going to be held.

The sky grew dark as night and sirens were going off. The wind swirled around in many different directions. Lightening bolts slashed through the sky as thunder clapped to usher in a torrential downpour. The rain came down so hard and fast that it poured into my son’s bedroom. After the storm passed, we mopped up the water as fast as we could in our dress clothes. We were running very late for lunch. Paul was an usher for the wedding and Angel was singing. They couldn’t be late. I worried that perhaps my uncle’s union wasn’t meant to be.

We made it to the restaurant an hour after our reservations. There were only a handful of customers. The place was always a classy joint, but on that day the music was the chef’s choice. They were playing rap. When a song came on with lyrics containing every profanity known to man, my brother Luke quietly left the table and complained to management that their choice of music was not appropriate for his little girls.

The wedding itself was held in a small church without A/C. I was a little worried that all of our cell phones would go off with the weather alarm during the ceremony, but the weather turned around. After the ceremony, there was a reception with an open bar. Once one of my aunt’s found out that Angel was turning 21, she started plying her with alcohol. Why wait?

It was at about this time that my son told me he no longer believes in God. I wanted to reassure him but I reminded myself that I was having my own crisis of faith. When I was having the most doubt, other people started cramming their faith down my throat which weakened my faith even more. I knew from my experience that I just had to listen. He left after the meal telling me that his rap band had their first gig that evening, but I wasn’t invited. He turned off his locator on his phone and returned home between 4 and 6 AM.

My daughter Angel caught the bouquet. Will she be the next to marry? As she danced with her boyfriend Dan, I thought perhaps she would be.

That evening Paul and I took advantage of a stunning sunset after weathering the storm.

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And the two shall become one.

To be continued…

Running out of time

I’m STILL waiting for a call from the doctor. I did get one call yesterday. It was from someone who barely spoke English trying to sell me final expense insurance. Did they somehow know I was worriedly waiting for test results?

At least all of this waiting gave me plenty of time to think. If I end up not having Celiac, I think I will go the allergy testing route. I was going to beg the doctor to put me back on Prilosec, but decided against it. When they did the scope, they found numerous polyps in my stomach that they think were caused by long term Prilosec use. It’s rare that they are cancerous, but they could be. They did a biopsy, but couldn’t remove them all.

In the meantime, I’m running out of time. My first 50k that I signed up for is a little more than a month away. I’m planning on running a marathon distance next week.

Training for this has been incredibly challenging. I really didn’t realize how awful I’d feel off of Prilosec. I have been feeling sick to my stomach a lot or having a stomachache. Several times I have been afraid to be far away from the bathroom. I’ve had to turn around and come back home. I’ve had to run into the woods. I’ve had no where I could go.

Being anemic, I feel exhausted, weak, and lightheaded without running. Running I feel like my legs are made of lead and I have a large weight on my back. Most days I need to take a nap.

I hurt my ankle last month and had to take some time off.

The weather hasn’t been cooperating either. We had a late start to the summer with record rainfall and cool days. My favorite trails were underwater. Some of the races in our area even had to be cancelled due to the weather. Then summer hit full force. Tomorrow will most likely be one of the top ten hottest days on record in our area. Followed by more rain and strong storms.

The storms have been hitting us unexpectedly at times. Just this week I drove my daughter to camp. It was sunny, hot, and humid. We passed a lady walking with her child on the way. By the time we got to camp, there was a continuous roar of thunder and heavy rain. On the way home, I saw the lady with her daughter who was about ten. It looked like the mom was huddled on the side of the road trying to protect her daughter. I know how terrifying it can be to get caught in an unexpected storm, so I pulled over and offered them a ride home.

I hollered at them to get into my car fast because a car was coming and I didn’t know if they could see me stopped in the torrential downpour. I was out in the middle of nowhere. I was almost out of gas. I was hydroplaning. Cars were driving slow or pulled over to the side of the road altogether. But it was exhilarating. I got someone home safe. But it grew exhausting driving about a half an hour through flash flooding in a torrential downpour.

You would think that all the rain would’ve washed all the mud off my car from trying to find a hiking trail that had its access dirt road under water. But no. Unfortunately, my car was unable to get through the washed out road. Instead it looked like I went mud running which regrettably didn’t earn me any bad ass mom points with my teenagers.

Needless to say, I have also wanted to stay close to home for fear of getting caught in a bad storm. Not to mention, I had a lady come up to me when running to tell me that a bear was spotted on my running route. Then there is the endless stream of drivers hellbent on trying to run me down with their cars.

I almost deserve more than a banana and medal if I can finish this race.

The good news is that I found a new running trail pictured above. It seems pretty safe and full of nature (and bathrooms). Despite my health and fears, I am determined to run this race. I might not finish, but I sure am going to do my best to try.

 

 

Still waiting for answers

I turned 45 this past weekend. Apparently I am now at the age where I can start to have long conversations with people about my declining health.

I had big plans for my birthday. I mean you only turn 45 once, as if I didn’t turn 29 or 44 once. Okay, I guess I did turn 29 a couple times.

Anyway, on Saturday the sailing club was having a pub crawl cruise. What a perfect way to celebrate my birthday. After all, I love craft beer, sailing, music festivals, great weather, and fun people. We were going to sail into town, go to a few breweries, and listen to live music. Perfect for a birthday weekend. Right?

But there was one problem, my stomach. I had a huge late lunch at our first pub stop along with everyone else and ordered a beer flight. I have to follow a perfect algorithm if I don’t want to be in pain. My stomach can’t be totally empty, but I can’t eat too much either especially paired with drinking. I couldn’t take my time because everyone wanted to head off to the next spot. Taking Tums for me is like putting a tiny bandage on a gushing spurting head wound.

I ended up in a great deal of stomach pain again like I have been off and on since I stopped taking Prilosec. I ordered nothing at the next pub and kept quietly to myself since I was in a lot of pain. Everyone asked me if I was feeling okay. I had to go through the whole health explanation that I went in to be scoped and was waiting for the results of my Celiac test. It was awful. I was hoping not to have to mention the health issues I was having and just have a fun time.

Then we walked a block to the music festival. I was asked if I would be able to walk the whole block to the festival. I am a marathon runner. I felt very sick and thought if I couldn’t find a place to sit I would lie down on the ground. People kept asking me over and over if I was okay. It was humiliating, I just wanted to be left alone. There were people everywhere. I decided to go back to the boat and lie down.

At one point even a homeless man came up to me and asked if I was alright. I know people were genuinely concerned, but it was really wrecking my tough girl persona. I don’t know what hurt worse, my stomach or my pride.

So this is how it has been. I have not been feeling well and have been waiting for answers to figure out how I can feel better again.

I had friends over on Sunday. I felt a little better because I was at home and could eat and drink at my leisure. We went swimming but spent most of the day sitting around talking and laughing.

Paul tried really hard to make the weekend special for me. He cooked my favorite foods and entertained with his music. I realized that I don’t share my music with other people. A majority of the songs I like, although good, are incredibly depressing or angry. Kind of like me I guess.

I’m still waiting for answers. The doctor’s office said that I would most likely get a call on Friday, Monday at the latest. Here it is Tuesday evening. Don’t they understand how frustrating it can be for patients to tell them they would have answers sooner than provided especially if they are not feeling well?

Waiting…

answers???

Tomorrow is the big day, I am getting scoped.

It’s been an eventful last couple of days to say the least. In the last couple of days I wrote about 4 drafts that I threw away. They seemed so negative and angry. Am I really that way?

It was a long holiday weekend. What should have been relaxing left me quite drained. I went up north for the holiday weekend. For the 4th of July, in Wisconsin, there is no place I’d rather be. Every night there were fireworks on the lake. Then it seemed like every day there were fireworks with my family. My dad picked fights with my mom. My brother Mark and his wife Carla were bickering. My mom got in an argument with Carla which was unlike her.

It was hot outside. The people of WI are not used to the heat. My dad sat around the cabin in only his underwear for some of the weekend which was disturbing to say the least. There were fights about whether the windows should be opened or closed.

I hope I’m wrong, but I feel fairly certain that I might have Celiac. I tried to spend some time relaxing drinking some of my favorite craft beers, hopefully not for the last time. Every time I cracked open a beer, my niece Gracie would lay into me. How many beers have you had? Wow, you really like beer. Are you a drunk? Her nagging got very annoying after awhile. I told her that she would make a very good wife someday in jest because of all her nagging. Then Gracie bragged to her sister Eva that I said she would make a great wife. Then Eva got upset that I didn’t say it to her. I just couldn’t win.

To make matters worse, my husband and I were having the argument of a decade. I was so angry and hurt that I wanted to take my wedding ring off and chuck it into the weeds. Incidentally, the fight started about a half an hour before I was supposed to meet the first guy that Arabella wanted to date. I tried not to look too angry.

I was so stressed out that I’m sure what happened next could’ve only have been explained by my relaxing (not) weekend. A few days after I stopped taking Prilosec, I was in GI distress. I spent Friday and Saturday barely eating and feeling so sick that I slept very little because I had to keep getting up to go to the bathroom. I had a lot of stomach pain and only got about 6 hours of sleep the whole weekend. When I did sleep, I had nightmares. It was terrible.

Then I had to drive home. I would not let Arabella drive home because it would take an experienced driver to fight the traffic going south on a Sunday afternoon after a holiday weekend. I had to wait 10 minutes to turn right to go south onto a 2 lane highway. I was only let in because someone stopped on the highway to let us in. There were times traffic came to a dead stop.

All in all, except for the beautiful fireworks at night, it was a miserable weekend. I am feeling a lot better now. Paul and I are getting along again. But for awhile, I was very angry with God. I am worried about my health. Even my brother Luke is having health issues and might need a biopsy. Not to mention all the crap going on with family over the weekend.

Tomorrow I might not get the answers I want, but at least I should have some answers. I guess that is a start.

More than a shot

I took a pregnancy test today.

I had to take the test before I got the MMR vaccination which contains a live virus. Back in the 1990’s, when I was pregnant, my titer showed I was not immune despite receiving the shots in the 70’s.

I decided to get a booster shot because of the recent outbreak and my love for international travel. I might want to go on a mission trip in the next couple of years which will also take me off the beaten tourist trap path.

I started to think a bit more about vaccinations, more specifically the MMR vaccination. With the measles outbreak, I saw a lot of hateful comments made towards the anti-vaccination folks. I saw babies that wore shirts in photos saying, “I’m vaccinated because my parents aren’t morons”. I found this to be offensive because I’m sure most parents that don’t vaccinate are not morons.

Perhaps my opinion is not popular, but stick with me for a moment.

I had my first baby in 1998. In 1998, an article was published in a medical journal linking the MMR shot to autism. It caused a huge scare that I believe hasn’t been fully eradicated to this day. At that time, I was more fearful that my children would be severely autistic like my brother than to get measles, a disease that I’ve never seen anyone contract in my lifetime.

Later, after the article was published, we were told that the link was a sham. Being a very logical person, I wondered what kind of medical journal would publish crap research findings. Can anybody publish any research article that they want in a supposedly reputable medical journal?

I also thought about conspiracy theories. Here you have huge pharmaceutical companies making big money off of vaccinations pitted against a small probably under funded research doctor. Of course there wouldn’t be a link. Follow the money. What were concerned parents supposed to believe? You can’t just erase something you already saw. Shame on the journal for publishing the article in the first place if there were so many issues with the study’s validity. It caused so much unnecessary fear.

It was horrifying and I struggled with making the decision to have my children get the required vaccinations. I am happy to say that my children are fully vaccinated. I thought the best way around it was to vaccinate my children with the MMR shot after they safely passed the age when most cases of autism are diagnosed.

I feel angry with people who quickly judge others for not vaccinating. They are usually not morons, they might just be fearful like I was. My babies were born at the height of the autism linked to vaccinations scare.

I think that most people who choose not to vaccinate have their reasons not to. It is not lazy parenting. Believe me, it is a lot more work to choose not to vaccinate. I did receive some criticism for doing things on my timetable. But even if there was a small iota of a chance that vaccinations caused autism, I needed to be careful. Where those people that shamed me going to come in my house and take care of my child if he/she became autistic?

I honestly don’t know if I would have the strength to live through it again this time as a parent.

I have a lot of respect for people that grew up with a special needs sibling that end up becoming a special needs parent. I don’t think I have the courage to fight that battle twice.

I get angry about talk of forced vaccinations. Shouldn’t parents have the right to make that choice for their child?

I think pro-vaccine people would be more successful listening and being empathetic to the concerns of parents who don’t want to vaccinate. Don’t treat them like they are a bunch of morons because that won’t get you anywhere. Morons blindly follow. But educated people question and try to make the best decisions they can.

I am pro-vaccination, but I strongly believe that the parents should make the decision and be treated respectfully whatever they decide.

 

 

forgotten

One of the hardest parts about being a special needs sibling is being forgotten. It’s like I don’t even exist. Forgotten, no one would miss me if I was gone. It’s hard to get over the voice in my head that is on repeat saying that no one really cares about me.

Yesterday I went out to eat with my mom. At the restaurant, my mom noticed our previous dentist sitting near us. He lost his license to practice dentistry over a decade ago. He wasn’t the first provider that we had lose his license either. Let’s just say when traditional medicine didn’t heal my autistic brother, my mom went the alternative medicine route and some of those doctors were quacks.

My mom went over to talk to our dentist about Matt. She showed him all of Matt’s most recent pictures. On the way out, we said good-bye. I told my mother that the dentist probably remembered me. After all, I was the patient with the small mouth that no dentist could numb for fillings. My mom talked to the dentist some more about Matt, then asked the dentist if he remembered me.

The dentist said that he did not remember me. He had a very large practice and wasn’t expected to remember every patient. I was in his office so often that I still remember his secretary’s name. It was like a kick to the teeth. The polite thing to do would’ve been to lie. Yes, I remember you. How are you doing now? Instead he asked for my mom’s phone number because he would like to schedule a time to come out and visit Matt.

I told my husband about the interaction and he was rather appalled. But I told Paul this was the typical response.

As a teenager, the rare time I was with family friends or family, they would pepper me with questions about Matt. They asked how my brother Matt was doing with the same sympathetic frown on their faces. I was barely holding it together, but no one ever asked how I was doing or how my other brothers were doing. Yeah, just trying not to swallow a whole bottle full of pills here. But who cares?

As a child, I wanted something to be wrong with me so that I would be loved too. My babysitter told me if I wore her thick glasses and looked in the mirror, I would need glasses too. I wore her glasses looking in the mirror with a metallic gum wrapper covering my top teeth with a paper clip. I wanted to be special too.

I had a lot of stomachaches as a child. I could barely eat I felt so sick. But I wasn’t as sick as Matt. I didn’t need to go to the doctor. Matt’s valve between his stomach and intestines closed, and he almost died. What was I bellyaching about? I just wanted attention.

But as I am currently facing health issues, I wonder if I am just being paranoid. Maybe it’s just me wanting attention. Maybe it’s nothing and I am just crazy. I am probably just being selfish to focus so much on myself. Look at Matt.

It was always that way. It will probably always be that way. Seriously, who cares anyway? My thoughts and feeling don’t matter. I don’t know why I even bother.

I remember a special occasion with family several years back. We were supposed to go around the room and share something special that happened in our family over the past year. My mom spent 20 minutes in tears talking about all of Matt’s medical needs. She did not once mention that my brother Luke, who wasn’t there, got a HUGE promotion at work that year.

We are the forgotten ones. It makes me feel both sad and angry, hurt. But it was always like that. I should be used to it by now.

I didn’t feel that way about my dad. He pretty much checked out altogether. But in my mom’s life, the sun will around revolve around her special son Matt. Our accomplishments don’t matter. It doesn’t matter that Matt hurt us or our children. We should all work together to worship our god Matt because his life sucks.

My mother is a great person, a martyr perhaps. I feel guilty for my disloyalty. But the one thing that grieves me deeply, far beyond the memories of the physical pain of being attacked by Matt, is being forgotten. It’s hard to get over feeling like no one cares about me. Sometimes it’s hard to be caring towards myself. I feel selfish for sharing my wants and needs.

Forgotten.

 

Not feeling well

To be honest with myself, I haven’t been feeling well for quite some time.

I noticed it several months ago when I transitioned from running on the treadmill inside to running outside again. I seemed more tired than usual. I didn’t have my regular stamina. Was it normal for my endurance to drop so drastically? I could run 6 miles without stopping relatively easily. Then I started needing walking breaks.

I chalked it up to aging. After all, I will be 45 in a few weeks.

Maybe I just wasn’t used to all the hills? Peri-menopause perhaps? Seasonal allergies? The cool rainy weather? Maybe it is normal to be sluggish at this age.

I doubt I could run a 50k with the shape I’m in today. I have two months to go until the race. How am I going to run further than I’ve ever run if I can’t even run 6 miles without stopping?

This week I had a physical with my new doctor. It didn’t go well. I complained about the fatigue. But what middle aged person is not tired? A couple nights a week I have insomnia, but it wasn’t anything new to me.

The doctor ran some extra tests. The results show that I am slightly anemic which does explain some of the symptoms I’ve been having.

But what really concerned the doctor was that I have been taking two Prilosec a day for GERD for several years without ever being scoped. She said that wasn’t normal for someone of my age and health. She asked several more questions, then said she would like me to get scoped and tested for Celiac which is an autoimmune disease. The only treatment of Celiac is a strict gluten free diet. I think 2 of my brothers already have undiagnosed Celiac.

I looked up Celiac when I got home. I have almost all of the symptoms and have had several of them since I was a child. I hope the doctor’s suspicion is wrong, but I think I see the writing on the wall. Even anemia is a symptom because Celiac prevents your body from absorbing nutrients. Otherwise it makes no sense since I am already taking a multi-vitamin with iron.

Today I bought donuts. I bought chicken patties to eat on big hamburger buns. I bought my favorite food, macaroni and cheese. I bought my very favorite craft beers. I am going to go to Arby’s to eat a big roast beef sandwich with mozzarella sticks on the side. I am starting to think of state fair cream puffs. I want to eat my favorite foods before I can never have them again. I almost started crying in the craft beer section.

I am feeling very down about this. I was told this was the best time in history to be gluten free. But that doesn’t make me feel any better at the thought of giving up my favorite foods and drinks forever.

I think it would be hard to even go grocery shopping. I don’t think I would want to go out to eat with friends and family. Forget parties. Maybe I won’t leave the house.

I need to stop taking Prilosec as well. I am down to one pill a day. I bought a big bottle of Tums and liquid antacid for the pain I will be in. It’s already started. This morning I felt nauseous. The acid burn in my throat is back, so is the burping.

But it will be good to have answers.

I have been feeling so tired, weak, and depressed lately. I have been having a hard time thinking. I am very organized and meticulously detail oriented. In the last couple weeks, I’ve forgotten things that were on my grocery shopping list. Today I went running and got lost on a trail I have been running for years. I can’t seem to keep a thought in my mind for long. I forget what I am going to say sometimes mid-sentence. That’s scary!

I am afraid.

I will have more answers soon and hopefully I’ll start feeling better. It just might not be the answer I want.