Lack of control

Monday’s dirty laundry

/ Outrunning my demons / Leave a comment

I started the week off by having to buy a new washing machine. The last couple of weeks it sounded like a gun range in my house every time I threw in a load of laundry. Bang, bang, pop, pop, pop. Then this morning it almost started on fire. Good thing I didn’t throw in a load and leave for work. Stinky smoke billowed out of our utility room. I sure hope this is not an indicator of how the rest of the week will go. Lol. 

Yesterday my mom came over for supper. We spoke about my mother’s childhood years. She said that as the second oldest girl, without older brothers, it was her job to assist her dad in his work. His job was very labor intensive. She spent the summers picking cucumbers to sell to help support her family. She had to help her mother wash clothes, including cloth diapers every day, in a basin with bleach. They did not have a washer or dryer. It sure makes me appreciate my broken washer, or should I say being able to afford to buy a nice new front loader. 

I wish that my mom would write down her stories so I could understand her life more. Just like I hope someday my kids will read my writing and understand me more.
Then we talked about Matt and parenting an autistic child in the late 70’s. She said that she was thinking about writing down everything that happened to help herself heal. At times like this, I am so tempted to tell her about my blog but didn’t. She said that she is helping herself heal by helping others that are struggling. She has more compassion than anyone. She said that she wouldn’t have been able to make it through without her faith in God.

We spoke about the abuse that Matt suffered at the hands of the school. She said that she only saw Matt cry twice in his life. He cried when he spoke of what happened at school. It was absolutely barbaric. The teacher had him sit underneath her desk while she sat at her desk. If Matt touched her, she would kick him. One teacher held him face down on the floor while the other sat on his back. He couldn’t breathe. That is the story he cried about. There was a disabled child that died that year from a teacher that used the same discipline method.

We spoke about my mom’s church friends. I was not aware of this, she said one time when Matt swore in church her friend hit him. Another friend told my mom that they needed to beat it out of him. Oh, my dad did try to beat it out of him. It didn’t work. My mom spoke of when my dad kept hitting Matt over and over trying to beat it out of him. I told her that I remember that day clearly because it was my first childhood memory. I remember the screaming of my dad and Matt. I remember the plunking noise of Matt being knocked back and forth against the cupboards in the kitchen.

My mom said that Matt crawled around on the floor like an animal. He spent a lot of time screaming after he quit talking. 

Later on he became fixated on hurting little girls and I just happened to be the only little girl around. My mom said that she felt terrible that I had to suffer. She spoke of the birth of her first grandchild, my daughter Angel. She said that she was excited and filled with joy the day Angel was born. But her second feeling was horror because she knew what that might mean.

Matt did hurt Angel. What I didn’t tell you was that the two years leading up to the attack, Matt became obsessed with the thought of hurting Angel. He ruminated about it. He asked questions about what it would be like if he pulled her hair, twisted her arm, hit her, or held her head underwater when we were together. My mom and I were worried. I had to take a step back from Matt.

When Matt hurt Angel on her 4th birthday, my mom went in the other room and cried. She was so upset that she didn’t talk and was inconsolable. Luke took Matt home and the whole time it was like he was possessed. He laughed. The voices in his head were whispering over and over out loud. I almost forgot about his maniacal laughter after hurting someone. I could only describe it as evil or demonic.

My mom was at her breaking point. We had to part ways. She quit going to church for the next 3 years. She was angry at God for allowing this to happen. 

We have forgiven Matt for all of the things that happened. But it has been a long road and painful process.

Tomorrow I am going to start another autism series. I have a copy of Matt’s clinical diagnosis report from the early 80’s. I have been holding on to it for the last 20 years. I am going to share it with you along with my feelings about what was written.

Training like a warrior (oops, I meant worrier)

/ Outrunning my demons / 8 Comments

The dishes are done. The laundry is folded and put away. I just put on my pajamas and am sitting on the recliner with my feet up. Lazy? No way, I took a half a day off of work to run 20 miles. I did it and it went better than I expected. The last couple of miles were dreadful, but I did it. I admit I was a little worried. This has been the most miles that I ran since the marathon last summer. My endurance hasn’t been what I wanted it to be lately. I almost feel out of shape. Treadmill running is tough, but I am satisfied with how I did today. I was wondering if I don’t have what it takes anymore. I am not getting any younger.

I thought that after I was done running that I would feel better, but I don’t. I feel edgy, worried. I feel like the pattern is off. Some detail is out of place, but I can’t figure out what is wrong. I feel like something bad is going to happen. Call me crazy, you wouldn’t be the first. Maybe it is the rain. It hasn’t stopped raining in days. 

Or maybe I feel a little self-conscious about opening up to you. Things are getting a little too personal and I want to step back. I want to pull away. You are starting to find out who I am. Maybe you won’t like the real me. Sure, I can tell you a lot of good things about me. I could tell you stories of how I like to save birds or give people their lost wallets back. But what about the bad? I feel vulnerable and afraid. I am not leaving, but sometimes I want to.

Or maybe I feel edgy because this morning I got a text from another mom warning me of a new potential threat. We just severed Alex’s ties to his druggie friend last week just to have another come walking through the door. If my son wants to do drugs, there is nothing that I can do to stop him. I wish I had full control. I like to play God instead of trusting Him. 

I need to relax…Grrrr.. Tomorrow I made lunch plans with my mom. Then we are going to get a massage. I thought that it would be great to get my long run in today so the massage tomorrow will feel even better. I am not in a lot of physical pain, just the normal aches and pains of a long run. No knee pain which is great. Then tomorrow night I will be watching Angel perform in her last high school play. I am so proud of her, I always have been. She got straight A’s this quarter. Paul and I always told the kids that if they got straight A’s we would take them out to a restaurant of their choice. It has been close, but this is the first time it happened. Finally some good news!!

P.S. I decided to make some split pea soup with the leftover Easter ham. I put yellow split peas, carrots, and potatoes in the slow cooker all day along with the rest of the ham on the bone. It was the first time I made it in the slow cooker. It was the best batch that I have ever made. It was more soupy than thick. Yum. I didn’t eat much all day with running so I had two bowls. I hope I don’t regret that tomorrow. 

Letting go of a broken wing

/ Outrunning my demons / 2 Comments

Yesterday as I was heading back to work after my lunch break, I noticed a peculiar sight. There was a robin hanging from a tree branch in my front yard. At first, I thought she was dead. Then I saw a flap of a wing, a bit of a struggle.

I noticed a nest starting a few branches higher. But something went terribly wrong. There was a black line, like fishing line, wrapped around the tree and around the wing of the bird. Every time the bird tried to break free, she wrapped her wing around the small branch again and again.

I approached the bird in a panic wondering what to do. I was afraid of the bird. The bird was afraid of me too. I spoke quietly panicked F words to the bird. I went back inside the house and grabbed a scissors. I started to cut away the line entrapping the bird. As I cut closer, the bird shrieked loudly. Panic took over my body. The tunnel vision started, my stomach acid built, and I started shaking. I was terrified to cut closer to the bird’s body, but I couldn’t leave it there to die.

So I did the next best thing after wimping out. I found someone to help me free the bird. He cut the line that was wrapped tightly around the wing. The bird fell to the ground and quickly ran away too injured to fly.

Then I started ruminating about horrible things. I thought about the nature shows I’ve watched where sea animals are caught in fishing nets. Or of all the animals that I hit with my car. Maybe some were pets. The dog that looked like mine that I saw dead along the highway years back. The pets that I lost. The fish that swallowed the hooks.

By far the worst thing that happened was a few years ago. I almost hit a deer at dusk. I slammed on my brakes just missing the deer. He ran quickly past me to the woods that was surrounded by a fence. The deer hit the fence at full force and did a flip. It was kind of comical at the time so I laughed. It felt good to relieve my nerves from the stress of almost hitting the deer. The deer was stunned from hitting the fence, but seemed to be  fine. So I left.

A few weeks later I was driving down the same road when I looked over at the area where I almost hit the deer. I noticed a dead deer that was tangled up in the fence. I knew it had to be the deer that I almost hit, that he didn’t end up being alright after all. I felt so horrible. Maybe I should have stayed longer to make sure the deer was okay. I felt guilty for my laughter. Things didn’t turn out okay like I thought they did at the time. It had to be the same animal, right? I NEVER would have left that animal there if I knew it was hurt or in any pain. It really bothered me.

Today when I came home for lunch, I saw the injured bird. Paul armed himself with a fishing net and I carried the cat carrier. We trudged around the neighborhood in attempts to capture the injured bird. I want to tell you that we caught it and brought it to the wildlife refuge like I planned, but we couldn’t catch it. The bird escaped into a muddy field. Now it probably would’ve been amusing watching us chase a bird in knee deep mud, but we had to give up. We couldn’t even catch it while on solid ground.

I can sense the storm approaching. The temperature dropped and the winds are ferociously howling. The ominous threat of a blizzard lingers. By tomorrow we are supposed to have a foot of snow whipping around in 40 mph winds.

I can’t control everything. I can’t protect everyone. I did the best I could. I am just going to have to let this go…

 

A storm is brewing

/ Outrunning my demons / Leave a comment

I feel the edginess right before the storm hits. The peacefulness and calm from my vacation is leaving slowly like a summertime tan. I feel the wind surround the emptiness inside of me, trying to find a void to fill with cold icy snow. The warmth and sunshine are gone now. Sorrow, darkness, and anger encapsulates me. I cry out to God, but He doesn’t seem to hear my prayers. I feel the tug of emotions trying to drown me in a river of despair. I am alone. I want to be alone. I don’t want to talk. I really don’t want to do anything.

It has been a hard start of the year. I miss my neighbor and friend that passed away a couple of weeks ago. Every time I look at her house, I think that she is still there. She will pull her car out of the driveway and wave at me. We were supposed to do something together next week. But guess what? I can’t go. I looked over the old messages that she sent me. My heart tells me that she is still alive. She just can’t come outside. My brain tells me to stop being such a fool. Stop pretending that things are fine.

Last summer my best friend moved to Florida. I had the opportunity to spend time with her while we were there on vacation. I didn’t realize how much I missed talking to her and seeing her. I miss her. I don’t feel like talking to anyone else. In 4 months, my oldest daughter will be leaving the house. I am excited for her to start the adult chapter in her life, but I am at such a loss. I started crying while she performed her solo and ensemble song for me. It bothered me that she sold her junior prom dress. It just seems so final.

Then yesterday we found out that my mother-in-law has stage 4 terminal lung cancer. They are giving her around 15 months to live. Wait a minute, I am not ready to deal with the loss of our parents yet. I have been having a hard time with this since I saw her last week. I have been feeling sad and angry. With all of the people that were praying for her and my friend that passed away, why didn’t God heal them? I don’t have any control. Why should I expect miracles? I feel helpless. Who can avoid death? It has given Paul time to say goodbye to his only parent. That has been good for him to spend time with her.

This morning my son got suspended from school. He got in a fight with someone in the hallway. It has been no secret that my son has been struggling with school for the last couple of months. He has been begging us to switch schools for a couple months now. Apparently a boy called him a faggot on facebook back in December and has been bullying him with some other kids. My son got in his face today. I suppose that it shouldn’t surprise me that the day after my son finds out that his grandma is dying that he confronts this other boy. Words were exchanged between my son and this boy. They were pushing and shoving each other in the hallway. Then I received a call from the school that my son was suspended for 3 days. He was trying to provoke the other kid that was picking on him. Maybe this is a good thing. Maybe we can finally resolve this issue head on.

We are expecting a snow storm today. We should be getting somewhere around 8 inches of snow with blowing winds. It just started to snow.

The incident at the public library

/ Outrunning my demons / Leave a comment

Once, for a very short time in my life, I was a compulsive hand washer. It started after a frightening incident in the library parking lot that happened when I was 13 with my grade school best friend, Jody.

I met Jody in kindergarten. When I was really young my parents had me stay with Jody for a week when they took my brother Matt to the hospital. At the time, Jody’s parents were going through a divorce. I remember sitting on the steps with Jody at age 6 listening to her parents fight. Things may have been thrown, I don’t recall for sure. Just a lot of noise, a lot of yelling. I had my grandparents pick me up before the week was through.

I don’t know why Jody’s mom didn’t like her dad anymore. He was a fun guy. He loved to laugh and would buy us soda at the bar. One night the roads were way too icy to take Jody and I to dance class, so we went to the bar instead. He told me not to tell my mom as she would probably worry. I also went up north with Jody, her dad, and his girlfriend for the weekend. He had to stop halfway there because he was tired and needed a drink at the bar. Lots of quarters for soda that night. I think we may have even put some songs in the jukebox. When Jody turned 10 she had her birthday party at you guessed it, the bar! Jody was a lot of fun too.

When my mom told me that I could bring a friend with me to the library that night, I chose Jody. Once a month, my mom attended a support group for mothers of the disabled at the library. Most of the time the meetings ended after the library closed which is what happened that night. It was a warm summer night, so we waited for my mom in the car. We were talking when 3 older boys showed up at the car on bikes. They saw us and tried to get in the car. We locked the doors, but it was hot. We had to roll the windows down a little as the heat was stifling. The boys tried to pry their fingers in through the crack in the windows. They banged on the glass. That kept trying the car handles over and over, rattling on them, trying to get in. They taunted us, put their penises against the glass, and held condoms against the windows. I found the incident very frightening. 

It was after this happened that I washed my hands over and over. I washed them until they were cracked and bleeding. For months I refused to touch the car handles that those boys touched to try to attack us. Everything they touched felt unclean to me. I wouldn’t touch those handles even if it meant that I had to sit in the middle of the back seat. So I washed and washed until the memory and terror of that night faded. At least I had control over something. 

 

 

Hoarding, clutter, and cleaning freaks

/ Outrunning my demons / Leave a comment

I am knee deep in fall cleaning right now. I thoroughly clean my house twice a year, once for spring and once for fall. Spring cleaning is the big event of the year where I scrub the whole house with a toothbrush. Fall cleaning is more of a hairbrush clean. I used to thoroughly clean my house after every season, but I really hate dusting. Talk about a useless task! I dust everything and within a half an hour new dust takes over. Then I sneeze for 3 days.

I threw out and donated many items to the point of guilt. I come from a very long line of hoarders. When we sold Aunt Grace’s house, we moved everything into my grandma’s house. When we sold grandma’s house, we moved stuff into my parent’s shed. Now their very large shed is full. Time to build another shed! We did get a large dumpster for my grandma’s house which was emptied 3 times. We made multiple trips to Goodwill to the point where they didn’t want any of our crap anymore. Did you ever hear of anyone getting turned away from Goodwill for over donating? Yeah, me neither.

Yesterday I went to my parents house and watched them struggle to maintain their property. There was a pipe that was leaking into the basement. Mom took me downstairs to look at the damage. There was some water that pooled around food items that expired in the 1990’s. I feel overwhelmed at the thought of cleaning it all out someday. My mom has always been a food hoarder which she attributes to growing up poor.  She has 4 freezers and 2 refrigerators. The cupboards are full of mostly expired food. There are grocery bags sitting on the floor with new food. Downstairs the situation is worse. Multiple peanut butter containers that expired in the 90’s, homemade canned food items from the 80’s, glass containers full of stale grains, corroded cans, juice separating in bottles.

My parents also hoard other things like cars, magazines, paper, newspapers, clothing, blankets, wood, books, movies, old toys, candles, soap, empty jars, tools, and parts. My dad collects electronics, broken parts to fix other broken parts. The floor and chairs are stacked with papers. The dining room table is never clutter free and neither is the kitchen counter. Nothing is thrown out even if it is expired, broken, or useless. Paul’s mom and step-dad are hoarders too. They have 2 refrigerators in their small kitchen. One doesn’t work and is used for storage. Both of our parents have given us some of their junk which we throw out for them. Thankfully Paul and I share the same motto of when in doubt throw it out. Looking at my kids rooms, I think we may have a few future hoarders on our hands. 

As a clean freak, the clutter overwhelms me. I can’t breathe. I feel a lonely emptiness in a room stacked full of clutter. It rises within me a feeling of absolute despair which I cannot explain. It feels hopeless. I want to throw everything away. I want my house to be clean, but no matter what I do it still feels dirty and messy.

A few years back, my brother Luke and his wife brought her sister to my parents house with them for the weekend. Luke’s sister-in-law told my brother that my parents house was so messy that she would never stay there again. Luke told my mom. This started a big fight with a lot of tears and stress from my mom. Luke was hoping that my mom would throw things out like he does, but instead they built another shed. My mom gets very attached to items and needed a lot of moral support to throw out my brother’s baby blanket a few years ago when he was well into his 30’s. We also did not want our old baby clothes for our children. Why do items attach so much hurt for the people who don’t want to part with them and the people that don’t want to keep them?

I have helped my parents countless times in the past. It is so overwhelming to me. It is like emptying a lake with a cup. I feel guilty for not helping them more. I’ll be totally honest, I can’t handle it. It elicits such a strong negative response within me that is unbearable. So I scour every corner of my house. After cleaning I still see all of the streaks in the windows, all the stains on the carpeting, the little yellow rings that don’t come out of my sink and bath tubs, the grease that lingers around the oven, the little spots on the walls, and the cracks in the linoleum. Will we ever be free from cleaning or hoarding? Will we be forever haunted by earthly treasure or trash?

Waiting….for bad news

/ Outrunning my demons / Leave a comment

Waiting…I sit here waiting. Worried. Waiting for bad news. I know it is going to be bad. I think of all the times that we didn’t get along. The guilt of feeling annoyed by you most of the time. You aren’t a bad person. You just talk before you think. My daughter called you rude the last time we saw each other. You commented that my hair looked terrible. Did I mean for it to look so bad? Did my finger get stuck into a light socket? I told you that I wasn’t offended, that your comments about my hair didn’t bother me. It didn’t bother me. What did bother me is all of the empty promises you made to my kids your only grandchildren, the times you said that you would show up and didn’t. 

Now I am thinking that you might not be here to see your granddaughter graduate next year. I feel terribly saddened by this. When I saw you last weekend, you did not look good. You were out of breath, wheezing, and coughing. The cough that lasted over a year. You have been continually sick for months at a time with head and chest colds. Your doctor thought that it might have been some of your medications, that once he took you off of the offending pill that you would get better. But you got worse. Now you are in the hospital, waiting. We worry and wait, wanting the distraction of work but have difficulty focusing. What do we tell the children? That the doctors think that you have lung cancer. So we sit here waiting, waiting for the bad news.

Scabies and other things that bug me

/ Outrunning my demons / Leave a comment

My autistic brother Matt has been in a group home for about 5 years now. Begrudgingly, my mother decided that it was better for her to choose a home of her liking versus having us do it after she is gone. It was something that my parents put off doing until Matt was in his mid 30’s and they were their 60’s. It wasn’t an easy adjustment, but it was mainly good. Well, except for the scabies. That’s right, one of the care providers brought scabies to the house. This ended up resulting in my brother getting scabies which he needed 3 pesticide treatments for. He had a major allergic reaction to the treatments which caused his hands to blister, peel, bleed, ooze in a red angry rash. My brother went around looking like he had a flesh eating virus for the past 6 months. The care provider refused to seek treatment and kept spreading it to this group of people again and again until they were forced to let her go. My brother is starting to finally get better. It was something so disgustingly horrible that I find hard to describe without pictures. You wouldn’t want to see them anyway. 

In response to all of this, my mother did some extreme allergy testing. This resulted in some extreme responses while we were up north this last weekend. First of all, the sun revolves around Matt. Remember me saying that last time up north when it was very hot Matt was angry because he couldn’t sleep? He wanted all of the fans off so my mom turned them off. So what? Who cares if he is angry? What, is he going to hurt our children like he hurt us? About the diet, my mom was going to wash off the grill after we made hamburgers just in case there was something in the seasoning that Matt was allergic too. That is too extreme. When he comes to my house he brings his own hand towel because he may be allergic to my detergent. That is too extreme. He also brings his own soap. That is too extreme. Matt is allergic to one kind of sugar and not another, but the canned food label only says sugar. Perhaps we should call the company and ask what kind of sugar they use. That is too extreme. He can no longer have baked beans because he is allergic to the pork now. 

Mark and Carla decided to have a pig roast for their wedding in 2 weeks. Matt now can’t eat what they are serving. My parents asked if they could stay at  Carla’s house for the wedding because of the special diet and linens that needed to be used for Matt.  Carla said that she didn’t have anywhere else to get ready, to put on her dress. Emily passed on a word of advice to Carla that apparently I gave her, to set boundaries. Emily said that my mom asked her to ask what kind of butter was in the mashed potatoes on her wedding day. Emily is right, the bride has too many other things she has to worry about. Mom asked Mark if Matt would be the best man at the wedding. Mark just said that in passing a couple weeks ago because he hates being the center of attention. Tensions are high, no one is ready. 

Recently, my brother Luke and I have been discussing taking our families on vacation this winter. I told Luke that mom might want to bring Matt along. He said absolutely not. I agree. I’m sorry, I can’t live like this anymore. If we decide this week to fly down to Florida, either my brother or I will have to be the bad guy. We love our mother and Matt, but this extreme favoritism just brings resentment from the rest of us. We have our own problems with our own kids. I don’t think that scrubbing down the grill is going to make a difference. I know mom needs to feel like she has some control. 

I am sorry, I feel very angry today. I realize that parenting a forever child is difficult for the parents, but guess what? It is hard for the siblings as well. We spent our whole lives dealing with all of this crap. Just because you are martyrs doesn’t mean that we don’t struggle. I’m sorry to be so edgy, some bad things happened today that I can’t talk about now. I will probably be able to talk more about it tomorrow. 

Control freak!!

/ Outrunning my demons / Leave a comment

If I was the world’s most articulate writer, I think I would still miserably fail to communicate to you the world of chaos that I grew up in. I didn’t have any control over my environment. We would often try to go somewhere and end up going nowhere at all. At times, I felt like I had no control over myself, my emotions. I certainly had no control over whether or not my autistic brother Matt decided to inflict pain on my body. What may have been even worse was seeing Matt inflict pain upon others; friends, family members, or complete strangers. That may have been harder then being hurt myself. It was hard to place hatred upon my brother when he didn’t seem to have any control either.

I decided that I needed control and structure in my life. I became a control freak. I was not going to allow anything or anyone to control my life. I certainly was not going to allow addiction or vices of any sort control me. But then a couple of weeks ago, I realized I was wrong. I was allowing control to control my life. Then I realized that everything I am afraid of has to do with a lack of control. 

I thought I was afraid of heights. Being on an airplane freaks me out. But I don’t mind looking out the window. It is the hours of turbulence, grasping the sides on the seat in panic that got me to seek help. I felt trapped in a tight area. A person that I didn’t know had control of my life. You say that flying is safe compared to driving. Yes, I agree, that is why I was terrified of driving too. Several years back I was afraid of driving, especially over bridges and on highways. It got so bad that at one point any driving on the highway would bring about a panic attack. It wasn’t long before I realized that my biggest fear is total lack of control. There was nowhere I could pull over on a bridge or a busy highway. The big concrete partitions locked me in. Trapped. I refused to stop driving. It has been almost 2 years since I panicked while driving. I was driving through construction. There was nowhere to pull over. I started to sweat profusely. I opened all the windows. The music from the radio unnerved me. The tunnel vision started, darkness creeping in until I thought I would pass out. I slowed down, driving erratically. My heart beating fast. I always pulled off the highway at the next exit feeling like a total failure bracing myself to face it again, feeling exhausted. I refused to let fear control me. 

I think the secret to figuring me out is making me feel like I have control. My husband is very good with giving me a false sense of control. I am ok with that. I keep my days very structured, any average stalker could figure that out. Once again I need to find equilibrium. In response to total chaos, I allowed the pendulum to swing too far in the opposite direction. I need to let go….