Cycles of life

I’m at the period in my life when I’m feeling the most hormonal.

It’s crazy like the very beginning, without the excitement of what is yet to come.

I’m getting older, midlife.

Hot flashes.

My body aches.

My skin itches.

My stomach bloats.

I feel ugly and fat.

My clothes don’t fit right.

Lights seem glaringly brighter.

Sounds normally tolerated scratch like nails on a chalkboard.

I feel irritated and angry.

Like PMS on steroids.

What sounds like my normal voice to me comes across as an attack to them.

They ask why I’m being so rude.

But I respond in my regular tone.

What do you mean?

I cry at the slightest provocation.

My eyes are red and puffy wrapped in dark circles.

I want to be left alone, yet I don’t.

Mood swings.

Laughter mixed with tears of sorrow.

Anxiety kicks in, marching in double time.

I am exhausted.

I can’t sleep.

I stare at the clock.

Is it too early to get up?

When sleep finally comes, I wake up soaking wet.

He is cold, but the room is on fire.

I feel hot, not in a good way.

I feel stinky, gritty, grimy, and gross.

My body seems to have forgotten how to regulate itself right.

I want to wish time away so this will be over.

But I don’t have extra time to spare.

I know in a few days I’ll feel better.

Then the whole cycle starts again.

 

 

 

 

Another weekend, another party!

Another weekend, another party!

I wonder why my son always hangs out with his friends?

Friday night, game night. Shuffling the cards we have been dealt.

Saturday, a murder mystery party. Strangers in even stranger clothes.

Will the weekend adventures never end?

My son came home late last night. Who is in the house tonight? Strangers that he’s never met. Dressed up in some garish garb. Food prepared, glasses clink. Questioning who the killer is.

We talk and laugh the night away. I wonder if he thinks it’s strange?

Then an unusual thought occurred to me. I had more friends over this weekend than my parents did my whole childhood. Maybe that is what he would find strange. He doesn’t know the me from back then. The person I spent half my life being is just another stranger.

I wonder why my son always hangs out with his friends?

Another weekend, another party!

Until next weekend…

Some April Fool’s Day joke

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Yes, it’s snowing again! I told my husband this morning that it was supposed to snow today. He said nice try, I do realize it is April Fool’s Day. But I wasn’t joking.

I decided not to play any pranks this year. Maybe I am getting old. I was just not feeling it. Plus I couldn’t think of anything great that I didn’t already previously do.

Sometimes life can be a big enough joke and today was one of those days.

In February, I had a meeting scheduled with the dean of students to talk about Alex’s graduation. I was feeling very positive after the meeting although I was feeling very negative going into it. We came up with a plan that involved a lot of choices on Alex’s part. I thought it was a great plan and I was feeling more positive than I was in a very long time.

Alex applied at the local tech college for this fall. He got a job working in retail. Some days he has to be at work on the weekends at the crack of dawn or work late on a Saturday night. Things have been going great. I’ve even noticed a greater effort on his part to get up earlier and be to school on time. Until this morning, that is.

I was worried that I would be getting a call from the school and I did. But it wasn’t the type of call I was expecting. I received a call from the school saying Alex didn’t even show up today. I was really confused since things seemed to have turned around so wonderfully. I even asked the secretary if it was some kind of April Fool’s Day joke. I also received an email from the school counselor saying that my son would also be dropped from a class if his absence was unexcused.

I was stressing. Now I am not so sure my son will be graduating next month.

I tried to get a hold of my son to no avail. I was feeling very worried and upset. I told my husband what was going on and he could tell from my expression that it wasn’t a joke. We blamed each other, argued a bit, and then came up with a fairly solid game plan.

My son texted me back a while later. He was in a dead zone when I called. He said that he got an excuse from a teacher to work on a group project. He would straighten everything out with the school later. Why didn’t he just tell us that ahead of time??

The April Fool’s Day joke was on me. The strange thing is that nobody really was playing the joke.

The bittersweet end

Today is the bittersweet day after the show is over. I am relieved to have more time on my hands. I even started working on my book again. But I will miss playing the part. This role was one of my all time favorites. I enjoyed working with the cast and made some new friends.

Things did end up getting a little out of hand with the special needs child backstage this past weekend. I am glad that I mentioned something though. The special needs girl latched on to another teen girl that was totally inappropriate. She said that she would die without the other girl’s attention and demanded to know what she talked about with other people. She even followed the girl out into the wings and hung on her right before going on stage. This behavior was upsetting to everyone and I’m glad I spoke up even though I took some criticism for it.

I did make a new friend, another runner. We are planning on going running together this week. I’m not sure if it will work out. This other woman is younger than me and qualified twice for the Boston Marathon. She is younger and faster. I told her if it doesn’t work out that I wouldn’t have any hard feelings. We have a lot in common, so even if it doesn’t work out maybe we could still be friends.

Friday night, after the first show, the cast that likes to hang around and celebrate got kicked out of the theater after the last patron left. So it was suggested that the next night I would have a pool party at my house. I was already planning that for the second weekend, but last minute threw it together for the first weekend as well. Both nights I ended up going to bed at 3 AM. THREE IN THE MORNING!! I don’t remember ever staying up that late which made the Sunday performance a little hard.

I have a lot of new friends (and enemies) now that I have a house with an indoor pool. For the first time in my life, I am really popular. I want to think people like me for me, but I really don’t care anymore. It makes me feel special, liked. In a strange way it makes me feel like I can make up now for the childhood I never had.

I had some friends and family come out to the show. Some lady even asked me for my autograph. Yeah, like I am ever going to be famous for my acting. But it felt good.

Something strange happened. My mom came to the show and my stage husband raved on and on to her about how wonderful I was on stage and off. My mother replied, “Is that so?” and then spoke to me about a problem she was having. She wanted my help in solving the problem. Why would she talk to me about something like that right after a show? Why didn’t she rave about the show? Or me? Or my daughter who had her first solo in a performance? I really felt hurt and wondered if she was always like that or if it was the first time I noticed it?

Someone asked me why I liked performing. I really had to think about it. I like to be somebody else. I love the costumes and the makeup. I love to sing. I love to be challenged. The strange thing about being an anxious person is that I don’t feel a lot more anxious being on stage than I already feel. Which in a weird way frees me to try things that most people would be anxious about. Plus I already know how to deal with anxiety. Does that make sense?

It was great to be in the show, but I am ready to get back to my regular programming with a couple of new friends in tow.

 

Good-bye winter?

Good-bye winter! Spring comes today.

It’s been a long winter in Wisconsin. My kids had 8 days off of school for inclement weather. The average is 2-3. We’ve had heavy snowfall followed by subzero temperatures multiple times this winter. The salt doesn’t melt the snow on the very cold days. Some towns ran out of salt. The roads were horrible for an extended period of time.

A lot of people died on our roads this winter. A couple of weeks ago there was fatal pile up on the highway that involved 131 cars. It wasn’t even snowing that day. There weren’t any warnings or advisories in that area. It just happened to be very windy and blew snow across the highway causing white out conditions.

There were some days that school wasn’t called off when it should’ve been because we used up so many snow days. What are we to do when we live in a climate that has the potential for nasty weather half the year? We drink! Which pretty much makes our roads hazardous year round. We lock ourselves indoors chronically depressed from the lack of sunshine and stormy weather that cancels our plans.

Okay, I will try to be more positive. Winter is beautiful. I had to share some pictures of the big snow this year. I was able to go out cross country skiing a couple of times. It was a great year for winter sports such as snowmobiling. Most years we don’t get this much snow.

Do I think that winter is over because the calendar says that it is spring? Probably not. Last year we got a huge blizzard in April. That is what I hate about spring (besides seasonal allergies). It fails to deliver. Spring is my least favorite season. I like summer best followed by fall then winter. At least with winter, we know what we are getting.

The trick is to try to enjoy every season while it is happening. That is sometimes easier said than done. The first few warm days gives me a feeling of false hope. But it won’t be too much longer. Last week we had a day in the 50’s. People started putting on shorts and were driving around with their windows open. But I know we will probably get more snow in April or May.

I can’t wait for the first run outside in this new year. It won’t be too much longer. I have to keep telling myself that at the end of a long grueling winter. The days are getting longer. The birds are coming back. The bugs will soon follow. But I won’t complain, winter makes me enjoy summer more. You need a few dark days to enjoy the light.

Good-bye winter!?!!

 

On writing

I took a step back from writing my book.

I was doing it all wrong. In January, I just jumped in and started writing. I took a break when we went on vacation in the beginning of February and haven’t wrote a word since.

It has become common knowledge now that I am writing a book. When my mom found out, she brought over 2 boxes of journals. I sat down and read through them all over a weekend. Most of them were notes between my mom and special ed teachers. It really gave me a glimpse into some of the school day that I didn’t see.

It was a reminder to me how incredibly violent my brother Matt was. There were times that he threatened school children with scissors and was into poking eyes. That is just a small glimpse.

Then I went and reread all of my personal journals. I flagged all pertinent parts of at least 15 journals and created a general outline of what I wanted to share in the book. Then I am going to go back and rewrite what I already started. I am even thinking about asking my other siblings if there was something that they wanted me to share. But I am afraid that they will be more open to what they don’t want me to share.

I decided that I will not write when I am really stressed out or feeling depressed. The next couple of weeks I will be performing a major part in the community theater production. That would not be a good time to stir my demons.

I have to be careful. I have to know when to run forward and stay back. I could get lost in it or worse dragged back into it. There have been times that I experienced PSTD symptoms. It is horrifying, but I am not afraid of it. I have people around me that will make sure I am safe. This is what I was meant to do.

I see writing this book as a challenge similar to my desire to conquer a 50k. It is a test of strength, determination, and will.

The people who know what I have experienced are saying that I am brave and strong to tackle this. I have a unique story that unfortunately is not unique anymore. When my brother was diagnosed with autism, as the first generation of de-institutionalized mentally ill, it was rather rare.

This is going to be a story of survival and abuse, many people do not realize that when I talk to them about it…the people that didn’t know me then. I seem so normal, healthy, and strong. But remember how I said I am in community theater. I can be a good actress. They don’t know how difficult this is going to be emotionally. I have to be very strong. I have to be smart to notice if I am slipping.

I am doing some public speaking in September for the local autism chapter. When I told the woman that I was going to write a book about my experience, she said that she knew of a publisher who would be interested. Maybe that should be my last resort. Maybe I can do this. Maybe this will be really big. If not, I am okay with it. I want to tell my story for me. I want to heal. I want to help others feel like they are not alone even if it makes me look bad.

I have decided to also keep my blog personal. I am at times tempted to share this blog with family and friends. I can’t waver. If I tell you I am tempted, please remind me of my words. It is a struggle to be fully honest with myself and others. I need to be completely genuine.

I can’t let anything stop me from telling my story.

 

BVI, day 8

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**This is a picture of the sailboat we stayed on.**

I was very happy that we awoke this morning without fish poisoning!

As the week progressed, my mood improved. We only had a few more days left. Any problem that might have occurred while we were gone was only a few days from a possible solution. My anxiety abated kind of like a reverse homesickness.

Our plan for the day was to sail to Little Harbor 2 1/2 hours away. It is Valentine’s Day. Stan surprised Angela with a big heart shaped box of chocolates. Kind of made the other gift less guys feel bad.

The wind was still very strong. When we got to Little Harbor, there wasn’t much to see and it was getting hit directly by the wind. No other boats were moored there. We decided to go to the next harbor. The next harbor was very picturesque, however there wasn’t an empty mooring ball to be found there. We decided to go to Tortola instead.

The harbor in Tortola was the busiest place we stayed at. We could see signs of hurricane damage there. A powerboat was laying on its side on shore. There was a crane working on the shoreline. There were houses without roofs with boarded up windows.

We went to shore to explore and asked where we could find a nice place to eat for Valentine’s Day. Someone said what sounded to me like My Ex which was rather troublesome considering the day. I apparently misheard the man because when we got there, it was called Myetts.

We checked out the restaurant by getting a drink at the bar. Then each couple reserved their own table for the evening meal that night. The girls left the guys at the bar and went shopping. The store within the restaurant area was very fancy and overpriced. We didn’t buy anything and wandered out the back door.

There were a couple local vendors set up outside. I found a cool red sailing shirt for Paul and decided to get it for him for V-day. I also bought a little gift for my mom for helping out at home. The vendors were very nice and told us about life after the hurricane. They said that some people still did not have roofs. There were many houses we saw with tarps for a roof. They said not only did the hurricane destroy their property, it kept tourists away for the season that they rely on to make a living. They were very thankful for the small purchases we made.

On the way back to the sailboat, we saw many chickens and kittens wandering the streets. The animals congregated at a dumpster that was overflowing with both garbage and recyclables together. A man walked by and pitched an aluminum can at the dumpster that scared a rooster from his task of finding food. There were two watch dogs that were tied up guarding a beautiful house that was damaged and had building supplies outside. They looked bored and didn’t bother to bark when we walked by.

I gave Paul his gift when we got back to the sailboat. He felt bad that he didn’t get me anything. Paul asked Tim if he wanted to take a quick trip back to shore with him. That evening as we got ready to go out we could hear the music of the steel drums on shore. Paul and Tim came back from their little trip bearing gifts. We got all dressed up and took nice couple pictures as the sun was setting.

Paul and I had the best dinner yet. He had lobster and I had the lobster mac. The restaurant had a DJ that played the sappiest love songs of the 70’s and 80’s. It was a little much and we were looking forward to getting together with our group to listen to the steel drums afterwards.

On the way back, we passed the nice house with the watch dogs. One dog was sleeping on a pile of lumber. I (of course!) worried if the dogs had food or any water on the hot day. I wasn’t going to go any closer to find out. There were times I had to remind myself that I was in a foreign country. I couldn’t save the people from their poverty. I couldn’t take the dirty dumpster kittens home. But I wanted to.

We made a quick stop at the small store for provisions. I scooped up whatever craft beer I could find which amounted to 4 bottles of British Island’s Summer Ale. We talked to the local people. Then we headed to the steel drum bar for a drink just as they were packing up the steel drums. Bummer!

After today we will only have one full day left on the sailboat.

 

BVI, day 6

Last night after supper, the girls and I booked a massage. Before our appointments, we went to the local store to provision. The grocery store was very small. It reminded me of the small town grocery store we went to when I was growing up when we didn’t want to make the 20 mile trip into town to the big store.

The couple (owners?) that managed the store was very nice. The lady was humming along to the Christian music that was on the store’s radio. Half of the store held groceries, the other half liquor with a little meat section in between. The atmosphere was very laid back and friendly. A lot different from our little town store where the guy smoked a cigar and the lady smelled of liquor always touting the latest gossip.

I have to admit, I absolutely love massages but I am always a tad bit nervous about receiving them in a foreign country. The previous evening the lady behind the counter asked us if we would be comfortable with a male masseuse. Quickly, Cara and Angela said no. I told her I would prefer a female, however I would go with whoever was available. I would rather receive a massage by a guy than no massage at all. This whole massage thing was my idea.

We all had female masseuses. I was lead back to a room with a very small table. I could hear Cara talking in the next room which was partitioned by a closet door. My massage was awesome! The prices were very comparable to a massage at home.

Today we are planning on sailing to Monkey Point. We had the option before leaving to top off our water supply and ended up paying quite a bit of money to do so.

We never made it to Monkey Point. Today it’s cool and incredibly windy. We decided as a group to spend the night at Scrub Island.

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Today was our third day of rainbows. Tim called me to come out to take pictures. He convinced me with the double rainbow over the water. It was beautiful.

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That night we ate at Pusser’s. Cara ordered a drink in the souvenir Pirate Mug, but they were out of the mug she wanted. I don’t think she was too crazy about what she ordered either.

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The next morning we were greeted with a glorious sunrise.

Cara had some eco friendly laundry soap. Since we packed light and my clothes were dirty, I decided to give it a whirl. To be honest, it wasn’t worth the effort. Off the back deck, I leaned down 2 1/2 ft and dipped all of the dirty clothes in salt water. I put small items in a plastic bag. I was afraid that I might lose some of the items. Then I washed the items in soap, rinsed in salt water again, hosed them off with fresh water, and hung them out to dry.

It was really hard on the knees. As I was hanging them out, I noticed that my pajamas had blood on it under the arm. I checked for a flesh wound, nothing. Then I thought I must’ve brushed it against some fish blood somewhere along the deck. Always make sure that the area that you are doing laundry in is clean. Apparently, I did not. It was a lot of work to have some clothes dirtier than they started.

I hung the clothes on the life line to dry. With the wind and the sailing, I was worried that they might blow off. They didn’t. Despite sailing and the wind, it took my clothes all day to dry. With the periods of rain and the humidity, some of the clothes felt damp and never fully dried.

Then we left for our original destination, Monkey Point.

BVI, day 4

Cara got sick during the night and we ate the same thing. I feel fine. Cara was also feeling seasick. She slept a lot while we were sailing.

We left this morning heading to Cooper Island. We stopped at the Indians for a short snorkeling trip on the way. We still didn’t see any sharks. We were told if we did see a shark to make eye contact and stand our ground, not swim away frantically like I would instinctively want to do.

I decided not to snorkel with everyone else and opted instead to take photos of the incredibly scenic area.

We are heading into the wind today so we motored instead of sailing. It is very windy and wavy. The journal I am writing this in got wet on the bow. Paul was worried about my safety. We were very careful to make sure that everyone was accounted for at all times.

I feel so very far away from home. It is really difficult not having a way to communicate with those at home. Cara was able to access data on her cell phone and spoke of another snow storm that was supposed to hit home. I was worried about my son driving on the roads. But I reasoned to myself that he was in his element while we were out of ours. Maybe they should worry about us with the rough seas and sharks.

We got to Cooper Island at lunch time and decided to go to shore to eat. It was a lovely place. I ordered a bacon cheeseburger and fries. They also brought Cara the same meal although she just wanted a hamburger. She sent her meal back, they scraped off the cheese and brought it back. With Cara’s sickness and trouble with her meals, I jokingly said if we have any problems we might have to throw her overboard. It would be a shame because she did all the work to plan the trip.

After the meal, we went to the gift shop. Paul bought a swimsuit and I bought a Cooper Island Brewery shirt. The problem was I didn’t try any of their beer. I solved the problem by buying a keepsake mug of beer at the bar next door. It was the best craft beer I had on the trip. However, the local craft beer options were very limited.

After lunch we went snorkeling and saw a manta ray. Stan saw a shark while snorkeling. We hit a patch of rain in the dinghy on the way back to the boat which was chilly. It seems to rain several times everyday for about 10 minutes keeping everything damp. We saw beautiful rainbows for 4 days in a row starting today.

We saw another turtle with fish sucking on it. Paul caught one of the turtle sucking fish with his fishing pole. It looked like a cross between a worm and an eel. The guys spent the evening fishing.

I’ve been having a hard time sleeping. It is hot and humid at night. Most evenings it rains and I get wet through the hatch over the area where we sleep. I’ve been waking up stiff with a backache. I’ve been having a hard time relaxing. I feel sad and disconnected from the group because I am worried about those at home and have been having a hard time just letting it go. Sometimes it takes a few days and I wish it didn’t because it is frustrating. As if being close to home will prevent accidents from happening. Anxiety apparently cannot be reasoned with.

I had to escape my fear to truly enjoy the time away. It did happen eventually.

 

 

BVI, day 1

This is a new series of our British Virgin Islands sailing charter vacation..

We weren’t sure what was going to happen, even if we were going to be able to leave.

The night before we left, shortly after I posted, Paul and I had a meeting at the sailing club to plan this summer’s cruises. Paul was tying up loose ends at work and ended up plowing out our driveway and my parents, so he did not start packing. Not to mention his trip to the ER the night before. The next morning I was planning on getting up at 2 AM to shower and depart.

After the meeting, I started receiving texts from our group. My friend Cara planned the whole trip. Paul and I were traveling with Cara’s husband Tim and their friends Angela and Stan. Cara was concerned because the weather forecast was predicting rain, snow, and freezing rain for our flight departure time.

We tossed around the idea of leaving at midnight and driving a couple of hours to the nearest major city’s airport that had a direct flight to Puerto Rico, our layover location. That plan was rather iffy too. We wouldn’t get any sleep and still might have to drive through bad weather. In the end we decided to keep things as planned and risk it.

It was a slow drive to the airport. Our flight was delayed by an hour due to a mandatory rest for the flight crew. The roads were icy. It was hard seeing through the windshield. The streetlights looked like cars coming towards us in the wrong lane down the dark highway. The roads were empty and icy, I drove slow because I didn’t want to go in the ditch. What would we do then?

Before we left, I received calls from the school saying that school was cancelled due to an ice storm. We ended up sitting on the plane for over a half an hour for them to de-ice the plane. They told us 15 minutes, it is never 15 minutes. Once they de-iced, it seemed to ice back up again because of the ice storm.

The only way Cara and I could sit by our husbands on the plane was to take seats in the exit row. Cara jumped at the seats before I could say no. I decided not to take any anti-anxiety meds because I didn’t want to be dopey for our overnight stay in Puerto Rico. Plus I had to be responsible to save people in the event of an emergency landing. It was only a 3 hour flight to Atlanta. What could possibly go wrong?

The drink cart just made its way over to me. I ordered a ginger ale, Paul ordered coffee. I got my drink, and as Paul was getting his we hit a really rough patch of turbulence unexpectedly. The drink of the lady in front of me hit the ceiling. I poured my soda onto Paul’s lap. The flight attendant packed up and ran off before the coffee had a chance to scald my face. I screamed and held on tight to anything I could grab onto. I started to hyperventilate and scream that we were all going to die. Perfect exit row material right there.

The flight to San Juan from Atlanta was rather uneventful. We were able to make the flight with enough time despite the delay. I watched the movie ‘Beautiful Boy’ which was about a teenage drug addict that looked remarkably like my son. It was kind of a downer to start my vacation that way.

We got into Puerto Rico at suppertime and ate at Casita Miramar which was creative in decorating and food. The restaurant is very charming. I ate mahi mahi in a stuffed avocado. There were a lot of nooks and crannies of uniquely designed rooms. The waiter brought out the menu on a chalkboard.

That night we shared a bedroom with Angela and Stan which was rather awkward. Stan snored and I didn’t have the heart to go over and kick him like I do with Paul.

The next morning we had a flight booked on a puddle jumper to Tortola.