Family time

We haven’t been stopping to see the birds anymore..

Since we last talked, we have been to the nursing home twice.

The first visit was the hardest. Martha drifted in and out of sleep. When we talked to her, she responded with answers that didn’t make much sense. She seemed restless.

The absolute hardest part that night was leaving. When we told Martha we were leaving her eyes snapped open and she gave us the saddest most terrorized look that will forever haunt me.

I have been trying to get Martha’s last look out of my head but I can’t seem to do that. It was like she was pleading with us to stay. When I start to forget, something reminds me. Yesterday I was on the way to the gym and I saw a van with her nursing home’s name plastered on the side.

If I couldn’t fix things with my mind, I wanted to fix things with my might. After the nursing home reminder, I felt so angry. As I was working out, I imagined that I was taking cancer into a dark alley and kicking the living shit out of it.

So far I have found that fighting and fixing hasn’t helped anyone cope but myself. It just gives me a false sense of control over a situation I have no control over.

Last night’s visit was much more peaceful. Martha did not wake up at all. She seemed totally oblivious of our presence. We still spoke to her and played songs of Angel singing. I feel bad because Angel is really busy at college right now. She will not be able to make the 5 hour drive to come out to say good bye. She doesn’t even have a car there. But we were able to face time her while her grandma was still up and talking.

We are hanging in there, but it hasn’t been easy..

Since this original draft, we received word that it is time to call in the family. Tonight after the final good byes, they are going to remove her IV. It won’t be much longer after that.

A lot of praying, without a prayer

Playing the waiting game is never the fun and games it sounds like.

Yesterday my mom and Paul’s mom had doctor appointments.

As expected, my mom had the best news. The doctor wasn’t sure if she has glaucoma. She will have to do more waiting. But she does have cataracts and needs surgery.

My mom has always been the best driver that I ever knew, up until recently that is. I noticed little changes, like pulling out in front of traffic when she really didn’t have enough time or showing greater than necessary hesitation.

She is starting to forget little things too. She forgot my sister-in-law’s birthday. She forgot about my daughter’s holiday concerts. I found myself so busy at work that I didn’t have time to remind her either. The gradual decline is troubling at times.

My mother-in-law Martha’s decline has been more of a steep descent lately. She wanted to die at home which is not going to happen. She slept during her oncology appointment yesterday. The doctor decided to stop all treatment and keep her at the nursing home. He used words like keeping her comfortable.

I did start writing about two sentences of a eulogy. Oh, I already wrote it. I wrote it in my head while I was driving, running, and trying to sleep but I can’t seem to write it down on paper.

I started going through the old pictures. I didn’t realize how poor quality they are. The smiling images are not centered, blurry, or dark more often than not. I have gotten used to taking 50 images of the same event and deleting the ones that are not perfect. It’s not like the good old days where we took one or two pictures in an effort not to waste film and having them all turn out bad. I can’t part with the less than perfect images because that is all I have left besides the fading memories.

I feel depressed. Tomorrow is the anniversary of my grandma’s death, next week is the anniversary of the death of Aunt Grace. The despair of death and dying is surrounding me. It makes me feel nostalgic and melancholy on these bleak days of midwinter. This is the month that I lost the most loved ones and another will soon be added to the list.

We last visited Martha at the nursing home on Sunday. How I hate it there. I wondered how the young employees could work there day in and out without pondering their future fate. It seems like a nice place. I haven’t seen anyone mistreated.

What I hate is the joy that is robbed from having no hope. There is no hope that she is going to get better. There is no hope that her life will ever be the same. The despair of not having any hope left is emotionally draining. There is nothing we can do about it. Every time we see her, she is getting worse.

I have always clung to hope in the darkest times, but there isn’t a prayer although there is a lot of praying.

It was hard seeing Martha on Sunday. When we got there, she was laying in an uncomfortable position. We worked together to move her body. I lifted her shoulder while supporting her head. Her words came out in a mumbled whisper. She pointed and we guessed what was being said. She kept saying that her mouth was dry but she didn’t want to drink. She rummaged through her purse for aspirin although she just got pain medicine. She faded in and out of sleep.

Before we leave, we always take her for a walk to see the birds. The nurse carried her into a wheelchair and hooked her up to her portable oxygen tank. Paul pushed the wheelchair as I walked alongside with the IV. You would think that it would be easy to push the IV along but it rolled along like a shopping cart with a messed up wheel. I swerved around as I tried to avoid obstacles trying not rip or twist up her cords that were everywhere.

The birds flitted about in a relaxed manner. The residents spoke of the birds. They spoke of a man that comes around to clip the birds nails and clean out the cages. They spoke of this with great importance. They weren’t in a hurry, they were content to sit and watch the birds like it was the most important thing in the world.

It seemed like a mystery to me. The residents didn’t seem worried or to live in the hustle bustle world of deadlines and time constraints like most of us do, yet they have less time..

Tonight Paul and I will visit Martha. Darryl said that her condition has deteriorated considerably since our visit two days ago. We sense the urgency and are nervous when we hear the phone ring.

It could be any time now..

 

 

 

Fights with myself

Using my strength to fight my weakness has become a double edged sword right in the gut.

After yesterday, I thought I would have to call the doctor today. This has been the worst GERD episode that I have had in awhile. I know that it was stress related. The stress has been eating me alive lately despite the double dose of Prilosec the doctor prescribed me. That and a strong family history of ulcers and stomach issues probably doesn’t help.

Parenting teenagers has been difficult lately. Things have gotten better since we last spoke. My daughter is being more respectful. Life has been difficult for us all lately.

The situation with my son has gotten better too..Now instead of driving across the state with a car full of teens, my son decided to spend the weekend at home studying. While this may look good to you on paper(?), my son is working on a science project for the school science fair that involves doing an experiment on sleep. The kids are going to stay up for 24 hours and do testing every hour. This experiment is going to be done at my house. So, might as well just add me to the study. I almost wish now that he packed the car up with all of his friends (even the boy that rides in the trunk) and drove across the state.

Do you think he is trying to get back at me for not letting him go??

Then add in my mother-in-law being in the final stages of cancer, I have been stressed to the max.

I figured I wouldn’t be doing anyone any favors if I land myself in the hospital with an ulcer. I am NEEDED at home and at work.

I need to learn how to relax and find ways to take better care of myself.

My natural tendency after any perceived weakness is to be harder on myself. If my body fails me, I’m going to push it. I work harder. I make my workouts more grueling. I make sure to not rest or take it easy. I take on too much.

I use my biggest strength, my determination, to fight myself. I have to stop beating myself up. The world does that enough already!

It seems like the stress during this round of the fight has chosen to attack my body and not my mind. For the moment, the demons in my mind have not been stirred from their hibernation. It makes it easier to deal with the external stress.

Now I just need to learn how to relax. It has never been my strong suit.

My determination and self-discipline is what gets me out of bed in the morning. It forces me to work hard. It’s my drill seargant for my tough exercise routine. It’s what keeps me going. It helps me accomplish my goals.

And sometimes it is a double edged sword..I beat myself up instead of taking care of myself like I should.

 

Good grief!

The night ended with a crescendo of discord..

The morning came too soon…

I awoke at 3:30 AM unable to fall back to sleep for an hour. When I did sleep, I had another nightmare and woke up crying right before my alarm went off. For several weeks now I’ve slipped into a cycle of insomnia and nightmares, only sleeping good maybe once a week.

It doesn’t seem like my body is able to handle stress. I spent most of my morning in the bathroom with a major acid reflux flare up. I haven’t been able to eat much today. Then I had to train our new employee this morning and somehow manage to look like I didn’t wake up crying, that I actually slept, and that I spent the morning not almost throwing up my meager breakfast.

We got the news last night that my husband’s mother Martha is down to 90 lbs. She told her husband Darryl that she would like to die at home. It’s strange when someone is dying. I find myself remembering the old times together. Remember when….? I want to write a eulogy for her and go through all of the old pictures this weekend.

While all of this has been happening with Paul’s mom, we have had to deal with teenager issues. My daughter Arabella has been very angry lately. We have not been getting along at all. I can’t even count how many times she told me she hated me yesterday. She said a few things a lot worse than that too.

Then there was an argument with my son last night. His girlfriend made it to state and he wants to watch her perform this weekend. I was under the assumption that he was going there with her parents. Apparently, I was wrong.

I found out that Alex was planning on driving the 8 hour round trip with two of his friends. First of all, this violates his probationary license. Also, friend one was the guy that decided it would be smart to bang his head against the table 5 times when the clock struck midnight on New Year’s. Who knows if he ended up with a concussion. He did end up with a bruised and bloody forehead.

The other friend is the guy whose mom came over and yelled at us because my son wasn’t giving him all of the rides she thought he deserved. He was the kid that rode in the trunk of the car.

Then a week ago, Arabella forgot her laptop at home on a test day. I had my son drop it off at her school which meant that he and this friend he drives would be late for school. He wanted me to give them an excuse because if his friend was late or missed school one more time then his parents would be fined for truancy. My son said that his parents would be knocking at our door expecting us to pay for this. Which I wouldn’t doubt, but wouldn’t do.

These are the friends he wants to take on an 8 hour road trip and share a hotel room with unsupervised! We said absolutely NOT! Not at the age of 16. We don’t even let him stay home alone yet. This created an argument after 10 last night..

These are just some of the things we are dealing with as we have to make very difficult decisions. Decisions like….when we get the call that the end is near, do we take the kids along?? Paul and I have never seen anyone die before.

I feel like a complete failure filling the role of supportive wife.

Before I end with doom and gloom and just another negative social media post among many out there…This time under intense stress, Paul and I have been working together. Paul is a total optimist, but through this grieving process he has sunk down lower than I have ever seen him go. I have been reaching down into the darkness to bring him up.

Even if I am a basket case for today, he knows that there will always be supper on the table (even if the kids don’t like it). His laundry will be done. Some comfort can be found in order and routine, however small. And he said that he appreciates that he can trust me completely to not run the business he worked so hard to build into the ground if he needs to take time off.

I am thankful to have found such a wonderful man. Now we need to continue to trust that God will bring us through this together…

Another nightmare…

Last night I had another nightmare…

I dreamed that I was pregnant.

As a woman in my 40’s (AND the mother of 3 teenagers!!!!!!!), that is my worst nightmare.

My 13 year old daughter is currently going through a rebellious stage. She currently hates me. Yesterday she mentioned that she likes her brother more than me. Trust me, that is bad! Seriously, what did I do?? That’s right! I breathe. I’m annoying. I wouldn’t understand.

She told me this past weekend that she is a psychopath because of something she read on the internet. Of course, from a very reliable source.  Oh, and a few of her friends are psychopaths too. WTH??

Her worry over it tells me that there is zero possibility. That and my psychology degree. That, my psychology degree, and that she couldn’t hurt a flea. Trust me, I know THIS..

I only know one psychopath, my best friend Cindy’s ex-husband. He started another family while he was married to her. His oldest son was born a few months before their first son was born. He did crazy things like drive into a tree so he had an excuse not to visit his girlfriend after his wife gave birth.

Thankfully, I only had the pleasure of meeting her ex once!

Maybe she should start a blog.

Cindy is happy now. She married a wonderful man named Ted. They had teenagers in the house when she got pregnant in her 40’s. My nightmare is her dream come true.

I have to remember that this will pass..

Maybe someday I will even laugh about it.

Yes, I’m certain that I will….when my kids call me someday with teenager issues…while I am out traveling the world..

 

Dusting off my dancing shoes

Going out isn’t as exciting as it used to be.

I felt bored. I realized that small time bands in small towns suck. Just bringing live music in on the weekends creates a crowd. So I found myself in a bar that was packed beyond the capacity of 99. It was hard to get a drink. One of my companions drank too much and was telling me the same angry story over and over again an inch from my face. Loud angry words were spewed with spittle over the discordant clash of the band. My ears were ringing from the noise. I could feel the vibrations ripple through my hair down into my feet.

My companion talked louder and louder over the music, gesturing wildly almost hitting me while people bumped into me from behind and stepped on my feet. It was windy and cold outside but sweaty and dank inside. The smokers huddled outside the door bringing in a stream of cold steam and smoke as the the hordes of people came in.

I felt disconnected. My companion talked on and on and spilled her drink down my arm in an angry gesture. Some of my friends were dancing. Others were standing around bored like me. When was it time to leave?? Cori was planning on dancing all night. Then after the bar closed they were going out to eat. Her plan was to get home at 5 AM after being up for 24 hours straight. That Cori is a wild one. I had other plans.

The evening started out nice. We went to Cori’s house for a light dinner and games. I brought along the game Loaded Questions. It was fun until the question came up asking what was the worst thing you ever witnessed. Should I answer that honestly?? I did. I put down that the worst thing I witnessed was when my brother attacked my daughter. The guesser had no idea that was my answer.

They are or were some of my good friends and they know nothing about me.

I had a lot more fun Friday night with Cindy. We were going to go to a bar and grill. When we showed up the place was packed and a DJ was unloading his van. We decided to go to a hole in the wall in the middle of nowhere. The food wasn’t great. The drinks weren’t much better. There were only 10 people there. But we could have a conversation without screaming over crappy music.

I hate to say it, but sometimes I would rather just stay home. I can listen to the music I like. People don’t bump into me or spill drinks on me. My husband is a great cook. I can drink craft beer instead of unimaginative dribble. I can fall asleep when I’m tired. I don’t have to yell over loud bad bar music.

But every once in awhile, I have to be social and dust off my dancing shoes to get my required social time in for the year.. But to be honest, I had more fun wearing my running shoes yesterday and going for a 10 mile run than I did wearing my dancing shoes last night….

How messed up is that??!?

Sink, swim, or walk on water??

It has been a few days since we last spoke.

I haven’t lost interest in you. It just seems harder to find the time…

I did get some sleep since we last spoke. That just makes life better.

I really don’t mind the stresses of everyday life. I don’t, really! I would rather be busy than bored. I have no tolerance for boredom. I can’t handle it. But I also like routine and structure. Go figure?

But sometimes the pendulum swings too far to the side of busyness. Those are the times that I find myself at the fast end of a Tetris game. Things happen so fast that I can’t keep up and none of the pieces fit together. I have been living in this mode for the last couple of weeks now. Then add a couple of sleepless nights with nightmares and I am a completely miserable person to be around.

I have been getting a lot of comments this week from close friends and family. Are you okay?? You don’t seem like yourself lately.. Please try not to worry so much. Are you just tired or are you feeling depressed?? What’s wrong??

I don’t want to be so stressed out anymore. Everyone goes through rough patches in life. I want to be the person that has enough faith to walk on water. Not the person that is flailing around, drowning, barely able to keep my head above water…dragging down those around that notice and are trying to help me.

But through this I have found that I have a lot of people that care about me. Although their concern worries me, maybe I do need to take better care of myself.

I want to be me again.

I will be okay!

I grew up living most of my childhood in fight or flight mode. It was one big adrenaline rush. But the thing is that I can’t seem to turn it off. I don’t want to turn it off. I don’t know how to live any other way. I am like the dog that has been beat too many times, but prefers the harsh owner because that is what I know. It is hard to explain. It is also hard to find that same feeling in healthy ways. So I run marathons and hang out with exciting people.

Tonight I will be going out with my BFF Cindy for beers and burgers. Then tomorrow night the old gang will be getting back together for the first time in years for a night of dinner, games, cocktails, and dancing.

Wow, I will be going out two nights in a row! (It’s not like I have been sleeping all that great on my own after a night at home anyway!) Lol..

I will be hanging out with some very beautiful women that also have a great thirst for adventure which usually equates to some pretty interesting stories…

 

The weight of my world

I am having nightmares again..two last week and one this week so far..

Last night I dreamed my sister-in-law Emily died. It was right around 2 AM. I stayed up a few minutes and went back to sleep into the same nightmare again. Then for the next 2 hours I continued the dream. Emily died and her little girls were without a mom. It was shocking, unexpected, and tragic. Not only did Emily die, but whatever killed her was contagious and other family members were exposed and might die. I woke up crying and here I am typing a rough draft at 4 AM wanting to sleep, but not really wanting to sleep.

This is a stressful time in my life. I thought I was going to fall into a deep depression after my daughter Angel went back to college. It didn’t happen. Honestly, I have been too busy to notice her absence. 

Work has been crazy busy, but yesterday we hired our new employee. There is relief in sight.

My mother-in-law, still dying and getting weaker with each visit. We have been going to see her as much as possible. It is a depressing and hopeless situation. I feel a lot of guilt because I have been neglecting my own parents. 

All of this brings up guilt from when I was a caregiver for my Aunt Grace. She needed so much care that it took all of my time. I didn’t spend as much time with my grandma whom I was closer to. I often drove by grandma’s house without stopping because Grace needed me more. 

Is this how my mother felt all these years taking care of my autistic brother Matt? I think I am finally getting it. I wanted to spend time with you, but he needed me soooo much more. 

Matt still needs her more, will always need her more. He had a meltdown over Christmas. He went home from work one winter day with his boots on and forgot his shoes at work. He was so worked up that he needed to be medicated. My mom told me about this on Christmas Eve because someday she said I will be getting the phone calls.

The weight of my world is so suffocating some times. 

Outrunning, the first steps

I never intended to be a runner. I never considered myself to be an athlete. This journey began unintended as journeys often times do.

My friend Cori started running first. Then my husband Paul. They tried to talk me into running. I thought to myself that I would start (perhaps) when hell froze over. But I told them I would run once Cori convinced her husband to run (which at the time seemed VERY unlikely).

Sure enough, Cori’s husband started running. Since those first steps, Cori and her husband finished countless marathons and both finished the full Iron.

Being good to my word, I started running too. It was tough at first. I remember my first mile. I thought I was going to die. I didn’t have the proper equipment. I didn’t think I really needed to do anything but run. I ran in heavy cheap athletic shoes and didn’t even have an athletic bra.

Several years after taking my first steps into running, I signed up for my first race. It was a 10k. I was afraid, I never ran that far before. It was terrifying and exhilarating at the same time.

I remember the first time I ran 10 miles. I thought I was going to die. I felt light headed and sick. My whole body ached. My legs were on fire. I was out of breath.

Then I signed up for my first marathon at the age of 40. I was terrified. I tried to get any advice that I could. One book I read was actually someone’s blog that she turned into a book.

A marathon? A blog? Why couldn’t I do that too??

So I consulted with my cousin and my pastor (probably a good thing to do?) who are both runners and have a blog.

Then I started this blog. At first it was going to be about running, or more specifically, training for a marathon. Then it morphed into so much more…writing about my experience growing up with a severely autistic sibling, parenting teenagers, travel, working with my husband at our own business, adventures in sailing…and it will probably take me down other winding roads that I have no idea about yet..

This is where it all began…How I started outrunning my demons, one step at a time…And it was something that I (as a big time planner) never planned. If someone told me I would be doing this ten years ago, I would’ve laughed at them. You’re crazy! Maybe when hell freezes over..

It almost makes me wonder where my journey will take me in another 10 years.

 

I’ll probably worry about this

It was Friday night. I was hitting up a local bar that I never have been to but was close to home. I was surrounded by people, alone. There was a man outside. He was very large and scary looking. He also brandished a semi automatic weapon of some sort. He was telling people what to do. I was afraid, but I left my cell phone in the car.

Then it seemed like I went back in time to the 1980’s. The place seemed old and rather run down. No one had a cell phone, but the owner of the place had an old rotary phone that I called 911 on to try to get help. 911 said that it wasn’t in their jurisdiction. Sorry we can’t help you. I called my husband. He came inside the building with me along with faceless nameless other people I didn’t know who seemed oblivious to the threat. When he got there, I hid in the back room with a machete. I felt like a coward for hiding and leaving him out there to defend me.

They found me in the back room anyway. I had a knife fight with another person to defend myself. It was awkward because I was left handed. I got stabbed in the stomach. I was dying but felt no pain and wondered why.

I woke up at 3:43 AM.

On Friday night, we actually went to the nursing home to visit Martha. At the end of the visit, we watched the birds in the cages.

Last night I dreamed that I was going to be dropped off somewhere in the middle of nowhere to run at night. It was going to be dangerous. It might storm. I might have to seek shelter. I was excited until I got attacked by the nursing home birds. I woke up screaming NNNNNNNNNNNNNNNNOOOOOOOOOOOOOOOOOOOOO!

Two nights with nightmares, two days without exercise. Maybe I really do need to run to outrun my demons.

Yesterday I thought a lot about worrying. It has been a life long struggle for me. I decided to keep a list of every worry that came across my mind. I gave up after already having at least a dozen before I left for work.

I realize that worry is not going to add an extra day to my life. Worrying and overthinking every possible scenario does not equate to having control. It takes away my joy and I really want to sever its hold on me.

Sometimes I also have anxiety, which is a lot different from worry. Sometimes I even panic about the things I tell you. Opening up. Being honest. But if I really (over)think about it, who cares? Probably not the 3 people that actually take the time to read my posts.

I hate it when people tell me I need to worry less. Don’t worry. Be happy. Don’t you think I’ve already worried about how I can worry less?

Or they tell me that I really don’t trust God because if I did I wouldn’t worry. That just plain hurts my feelings. Let go and let God. If it were only that easy. Obviously those people don’t have the same struggle. If they did they would realize that it is not a kind, compassionate, or caring thing to say. It actually gives me more to worry about.

Sometimes I want to slam people with ‘you really don’t trust God enough’ for every weakness or struggle they have.

Wow, guess who is feeling a little edgy today??

I am going to end this here and sit around for the next couple of hours worrying about what I just wrote.