Threats of imaginary monsters??

I was never safe. Matt was autistic/schizophrenic. He was the most dangerous when he was hearing voices. You could almost always tell when he was hearing voices because he would mutter back to them. Sometimes he would laugh in a way described as purely evil like a villain in a superhero movie except without the superhero. He was in his own psychotic world he couldn’t easily be pulled out of. He would become incredibly agitated in this state. His ears would turn red and his eyes constrict as if possessed. He was small but had superhuman strength in those moments. It was a matter of time before he hurt someone. Those were the days when we couldn’t leave the house with him. It was too dangerous.

Matt was also violent when the voices were silent especially when he had to do something he didn’t want to do. The most common thing he would do was pull someone’s hair, mainly mine. When I say he pulled my hair, it was more than a little tug. He would latch onto a fistful of hair and yank while his victim screamed trying to get away. I would’ve thought I would’ve lost more hair than I actually did. Typically it would take at the optimal two people to restrain him and try to peel his hands off of their head. I’ve done it many times. I’ve also been the victim of his attacks countless times because I was the only one in our house that was little and had long hair.

There were also times Matt would attack for no apparent reason. Here are some of the things I’ve seen him do as a child to myself and others, some strangers. He gave black eyes, bloody lips and noses, head butts, scratched up arms, pulled hair, kicked, poked eyes, slugged just to name a few. I was often seen sporting bruises and clawed up arms. He threatened me with a knife. He tortured my pets. He was so violent that he was not allowed in school for several years, the school sent a teacher out to our house. Hence the home school years. The police were called when he went back to school. He was arrested. Somewhere there is a mug shot of him.

Matt being violent was a common (at times multiple daily) occurrence throughout my childhood. He ran around like a wild child. We were not safe day or night. My mom took him to every doctor she could find in desperation but it wasn’t until he was in his 30’s that an anti-psychotic medicine removed his violent tendencies and rendered him docile.

Being autistic, Matt was extremely hypersensitive. He could not tolerate his teeth being brushed. This was very problematic because his teeth were rotting. My parents tried the best they could but he usually screamed every night when it was teeth brushing time. Sometimes my mom couldn’t do it and asked my dad for help. My dad would get angry, manhandle Matt and forcibly brush his teeth. This made Matt incredibly agitated. He didn’t dare attack my dad because my dad would give it back. A lot of times Matt would harm himself mainly by beating his head over and over with his fist.

There were journal accounts written by my mother of Matt attacking our sleeping youngest brother Luke. Imagine a little child awoken from sleep by being hit with a fist. Sometimes Matt would come into my room at night when I was trying to sleep with his fist raised at me.

But here is where I was lucky. Matt and my two other brothers had to share a room. I had my own room. But being a child, I was too frightened to sleep with my door closed and locked. There were demons and monsters hiding under my bed and in the closet. There were murderous dolls in my room just waiting for me to close my eyes. There were kidnappers outside the window. There were things that could get me if I slept with my door closed. As a child I was so afraid of the imaginary things that I was unable to protect myself from the real threats.

Now I am an adult and have long outgrown the threats of imaginary monsters. When I am up north with my extended family I am usually the last one to go to bed and the first to arise. Unconsciously I must feel safer that way. To this day I am a light sleeper and awake to every noise hyper-vigilant of every possible threat. I wish I could say that I outgrew the need to protect myself like I outgrew the threats of imaginary monsters. My body never overcame the fear that I was not safe.

But I am safe now.

The full story…coming soon

I got invited into the popular group once in middle school. They gave me a handful of candy. I threw it away.

I could never bring them to my house anyway. The outside of the house was brick, big and beautiful. But inside was another story altogether. I couldn’t do slumber parties and sleepovers.

My dad roamed the house in his underwear. He answered the door that way. On occasion, he mowed the lawn that way. Sometimes he would even get the mail that way. The truth is that he was more interested in porn than his own wife and kids. He never hugged me, held me, or told me that everything would be okay. Maybe it was a good thing he had an aversion to touching me.

Our house was a hoarder’s paradise. Piles of magazines and papers littered all seating surfaces, our table, and floors. My mom hoarded food so there was always rotting food in the fridge. There were cupboards full of food, a fruit cellar, freezer upon freezer, refrigerator upon refrigerator. But we knew the newest food was always in bags on the dining room floor. There was always a stack of unwashed dishes on the counter full of you guessed it rotten food. The whiff of rot hit you as soon as you entered the door.

If that wasn’t bad enough, there was always pee on the bathroom floor and a dirty sink. My dad was a greasy guy in more ways than one. He rarely showered and criticized us for showering daily as if we were the strange ones. My dad didn’t brush his teeth but wiped them on the hand towel so I always had to strategically plan where to dry my hands in a spot I thought would be the cleanest. I don’t know how I ever survived the 8th grade hand washing compulsion.

Then there was my brother Matt. He was the school ‘retard’. That’s what my classmates called him anyway as they mocked his bizarre behaviors. He heard voices that told him to attack other children and he listened. He ruled our house and my mother bowed down to him. Anything for Matt. Never mind her three other kids.

We had crazy rules to live by for the sake of Matt. For example, no one could come into our house that was wearing perfume. That is why you could find me before middle school started ratting my hair in the middle school bathroom along with the girls that changed their clothes into outfits not allowed out of the house. My unscented hairspray had too much scent. For awhile we had to brush our teeth with peroxide and baking soda. We had to shut the windows if there was an east wind blowing auto exhaust fumes into our house. We didn’t have A/C back then. My mom even took down her brand new curtains because of the formaldehyde and hung old blankets on the windows. We had to take shelter if a neighbor was spraying his fields. The air purifier ran constantly. But none of those things stopped the voices or the attacks.

So you can see I had to reject the popular kids before they had the chance to reject me. I hand selected a few close friends but in the end I lost them anyway because of Matt.

I hated my life. I didn’t belong. To make matters worse, kids looked at the outside of my big brick house and thought I was richer than they were. In high school I drove a bright red Firebird. I was an exceptionally beautiful child voted most likely to be a supermodel by the graduating class which did nothing to help me fit in when boyfriends of potential friends flirted with me. People envied and hated me for the things they saw outside. Things that I didn’t have any control over. In a heartbeat I would’ve given it up to just have a normal healthy family.

The kids at school could never see the pain and sadness inside of me. After awhile I stopped caring about what people thought. I hated small talk and following all the stupid rules anyway. I said screw them and became a rebel, strong and unreachable. When I got hurt, I retreated to the corner and licked my wounds alone. I had to take care of myself because no one else really cared.

I am still the same person. I try to play the best game with the hand I’ve been dealt. On the good days, I thank God for all my blessings. On the bad days, I reject God because I feel he has rejected me. I can’t sing that God has been good to me all my life when I don’t believe it. Why do I feel like God hates me when I try hard to be a good person? I spent a lot of my life trying to be perfect but it didn’t matter.

What is the purpose of pointless suffering? How has it made me a better person? How does it help anybody else? There will always be a part of me that feels alone no matter how many people are around. Maybe God will always be off in the distance and uncaring just like everybody else. I can’t seem to reach him either. I could never find a way to connect to normal people. My life has been way too crazy. I’ve had very different life experiences.

I will never be the motivational speaker that others seem to be. I am not the one who will tell you my anxiety went away by praying more or that my depression was cured by positive thinking. I don’t have the answers, just more questions. I am a broken person that will never be put back together right. Before my brain finished developing I experienced trauma more than compassion and love. I didn’t have that one teacher who made a difference in my life.

What can I say? I have a lot of trust issues. Who else has my back better than me? How am I supposed to trust?

Maybe someday I’ll get it right. Maybe someday I won’t feel angry anymore. Maybe even someday I will trust. But one thing I do know for sure. Soon I will be telling the full story. And it’s far from boring…

From the beginning

Strangely enough after Arabella went to residential I got asked even more (rather unusual) questions by the therapist. What was your pregnancy, childbirth, and Arabella’s early infancy years like?

When I got pregnant with Arabella I had a 4 year old and a 2 year old. I was also babysitting 50 hours a week for the next door neighbor’s kid who was 3. She called me mom. The neighbors worked all the time then every weekend they dumped their kid off at grandma’s so they could party with friends. The mom was harsh and I thought she was rather verbally abusive. The dad wasn’t the greatest either. The whole situation disgusted me, but I felt rather envious too. I rarely got a break from my kids.

Right before I got pregnant, my brother Matt heard voices to tell him to attack my daughter Angel which he did at her 4th birthday party. After he hurt her, I set a boundary with my mom that Matt could not be around my children anymore. My mom pushed back against that boundary and tried to force Matt back into my kids life which caused a lot of stress. I lost all help when I pushed Matt away because my mom had to care for him and he wasn’t allowed around my kids. My MIL didn’t help much at all. She could barely handle the one kid she had. Even my husband had to work the day our daughter was born because he just started his business at the time. He was a one man show and he was the one that paid our bills.

I was worried when I found out I was having another girl. I would have been more worried if it was a boy though. My brother was fixated on hurting little girls. But if I had a boy I worried he would be schizophrenic/autistic like my brother. I didn’t tell anyone the gender because it was too painful. Either way invoked worry that robbed me of the joy of pregnancy.

Arabella was breech. They told me it didn’t matter because she was to be my 3rd C-section. I felt really sick after she was born and didn’t even want to nurse her because I had a reaction to the pain medicine. My mom stayed with the older kids overnight so I could have Arabella early in the morning. Then she dropped the kids off at the hospital right after Arabella was born because Matt had a dentist appointment. I scheduled my C-section so I would be in the hospital over the weekend when my husband didn’t have to work because we didn’t have anyone to watch the kids.

A week after my C-section I was home alone with all three kids. I remember being a zombie hopped up on pain medicine after sleepless nights. I’m not going to lie, it was hard. Thankfully the neighbors got divorced and I wasn’t babysitting anymore.

I was constantly stressed because I didn’t have the help I needed. I didn’t take very good care of myself. I sometimes wonder if I caused this with all the stress hormones constantly pumping through my body. I ended up getting mastitis twice. I was sick all the time. Right after Arabella was born my grandma had open heart surgery. I took on all the holidays since my grandma wasn’t able to.

I had a baby that cried constantly day and night. She refused to be comforted. She wouldn’t take a pacifier. She didn’t suck her thumb or fingers. She didn’t want to be held unless she was nursing. The only thing that she responded to was the infant rocker and having music constantly playing on repeat in her room at night on the CD player. When the CD would stop at the end and go back to the beginning, she would cry.

I took her to several doctors. Did she have an ear infection? That was the only reason my other kids would cry at that age. Was she autistic like my brother? Colic? (I suspect doctors tell parents that when they don’t know why your baby doesn’t stop crying). Big surprise, they couldn’t find anything wrong with her. I nursed her longer than the rest of my babies. When I weaned her, she took her tiny fists and beat them against my chest while screaming. My other kids didn’t do that. Everything seemed wrong but nothing was wrong. It took her over a year to finally sleep through the night.

The therapist thought that Arabella always had emotional dysregulation and that her condition was genetic. She didn’t experience any out of the norm trauma (death of a grandparent). She was a lot like my MIL who did experience trauma. Or did she? I don’t even know anymore. And if trauma caused her mental illness then how did it influence her genes to pass borderline on to her granddaughters? There is so much that I don’t understand yet, but I do know that Arabella’s infancy years were tough and apparently that is indicative of future problems.

Survival; the lies I told myself

I’ve been depressed since I can remember time beginning. Maybe you would be too if you lived in my shoes. I told myself a lot of things that weren’t true. Survival, I thought childhood would never end. I said things to myself like at least I wasn’t sexually abused. If I was I wouldn’t have the will to live. Yet fuzzy memories tickled my mind. But if I couldn’t remember, it didn’t exist. Right?

It was bad enough that my psychotic brother terrorized our house. He was small and by any means did not look threatening. But when the voices in his head called to him he would fly into a psychotic rage. He clawed up my arms, punched, head butted, gave black eyes and bloodied lips, grabbed onto hair, twisted arms, kicked with an adrenaline rushed rage. I was not comforted, he was. I was told how lucky I was to be normal. I was punished if I wanted to retaliate or defend myself. Matt couldn’t help what he did, but I could.

When I was attacked at times I almost went into a meditative state. I repeated the mantra over and over in my head that this abuse was making me stronger like exercise. I told myself that all of the pain inflicted upon my body was good for me. If he punched and bruised my arms I thought in my head that my pain came from lifting weights. I was developing strong muscles and not being beaten and bruised. I think that is why part of my early healing involved marathon running and brutal body breaking workouts. My mind was already trained.

I never learned that touch could be comforting. Not only did my brother physically abuse me and those I loved, my father did as well. He would often squeeze my mother too tightly until she cried out in pain. My little brothers and I would try to get him off of her while he swung at us. I remember him hitting and spanking some of my brothers. He would tickle us until we wet ourselves all in the name of fun. Sometimes he would play ball with my brother for fun too. He would chuck the ball so hard he would hit my brother with it. The game usually ended when my brother came in the house crying while my dad called him a baby. But my dad never flew into a psychotic rage like Matt.

The most difficult thing to endure with my dad was the emotional abuse. He often told us how stupid we were. He had the innate ability to find the things we were most afraid of to terrorize us with. He would taunt us and encourage our siblings to laugh at us as well while we whimpered in fear. We were so frightened by our dad that we didn’t want to be left with him without mom because then he was merciless. If we tried to stand up for our siblings, we were targeted next.

My dad was evil. Does that make me evil too? The apple doesn’t fall far from the tree. I tried to be good like my mom. She would take us to church. My dad would laugh about this as well. God was a big joke to him. But it was a place I could go he couldn’t reach.

I never learned to be comforted by touch or encouraging words. In fact, quite the opposite. Touch and nice words made me feel uncomfortable. It was foreign to me. No one ever said they were proud of me. No one ever said it was okay to feel angry when my brother hurt me. I could never say ‘no’ to make it stop. I wasn’t protected. Nothing was entirely safe, not my body and not my mind.

I couldn’t control the things that happened to me. But I could control myself. I could convince myself of the lies I needed to tell myself in order to survive. It wasn’t that bad. A good beating made me stronger. I should’ve noticed the signs. I was the one that didn’t protect myself. It was my fault.

But hey, at least I wasn’t molested. What I can’t remember doesn’t hurt me. Right?

Especially special

Several weeks ago I attended my daughter Arabella’s first choir concert of the school year. It was our foreign exchange student Clara’s first choir concert ever.

I sat down in the theater only to have a teenage girl with Down Syndrome sit in front of me. In all honesty, sometimes I get triggered by people with special needs being a SN sibling. It brings up a smorgasbord of emotions.

The girl was so excited about the concert that you might think she got front row tickets to see Justin Bieber or whoever the hottest pop star is now. She waved her arms, clapped loudly, and cheered for every performer. Her family catered to her the whole show as if the show was about her. I didn’t find it too annoying, just triggering.

At this point, I thought, “Well, that figures!” because a few days before I was trying to free up some of my repressed anger related to being a SN sibling.

I personally think it is wrong to sacrifice for a SN child at the expense of the other family members. Children should be treated as equally and fairly as possible. It’s not fair to SN children to treat them like something is wrong with them either. I understand that SN children oftentimes need special care. I’m not talking about that.

I’m talking about parents that expect you to treat your sibling like every day is their birthday. It’s almost expected by everyone that you treat them like royalty because their disability royally sucks! You are supposed to be the one waiting on the sidelines to cheer them on when they participate in the Special Olympics. You are selfish for wanting to live your own life.

We went when he wanted to go. We stayed home when he didn’t. It didn’t matter how long it was planned. He was the god we were expected to worship. The life of our family revolved around him.

You are expected never to fight with your SN sibling. What kind of monster are you? You are expected never to feel jealous when they get all of the attention. You can’t cry when they hit you because damn you are so lucky to be normal. It is almost expected that you become a special education teacher because having a SN sibling changed your life. How noble.

You shouldn’t feel angry because your parents couldn’t afford your swimming lessons because they had doctor bills to pay. You shouldn’t feel angry that you had to drop out of the show because your brother had to be hospitalized. Why are you upset you lost your best friend because your brother attacked her? You can make more friends. He doesn’t have any friends. Why don’t you want him in your life after he hurt your child? He is your family too.

You are so selfish to want to have your own life! Ungrateful! Look at him. Do you think he will ever have a life as nice as yours? What is wrong with you? Nothing, unfortunately, I am normal.

These things cross my mind when I see you cater to your SN child. Yes, I am selfish. Yes, I am a monster for feeling this way. I am not here to please anybody. In fact I might like you more if you hate me like I hate me. Just like everyone else and their damn expectations. Blah, blah, blah…

Blogging therapy is going well today. Yes, I can see that you are making progress processing your anger.

The show was over. Most people left the theater. After things cleared out, I stood in the aisle and took pictures of Arabella and Clara. The SN girl pushed by me and yelled at me to get the hell out of her way. Her family giggled as they passed me as if her rude comment was the cutest thing ever. Did I not notice the sparkly butterflies and rainbows that she farted out of her ass?

I would like to think that most parents would not shrug off their teenager treating a stranger rudely in public. But she is special, so she shouldn’t be corrected for her bad behavior since basic rules of etiquette apparently don’t apply. Isn’t everyone special and unique just like everyone else? I think I was taught that in school. Or is there a class of especially special specials??

My brother did things like this in public and worse. Sometimes he would physically attack strangers, children. Treating people poorly should never be acceptable. There should never be an excuse for that. That is what makes me angry. At the very least, teach your child it is not acceptable to treat people this way. Make them apologize. Apologize for them. Whatever, at least act sorry. I didn’t find it funny.

Of course, it had to be me that this happened to.

But I suppose if I was like everyone else, I would’ve brushed it off and forgotten about it already.

 

I finished my book!!!

Tonight I’m celebrating.

I finished my book today!

I know that now the hard work begins…editing…trying to find a good publisher. But tonight I will put all those worries aside.

Tomorrow the video I created will be sent out to hundreds of parents of autistic children. Then it will be posted online to be viewed by countless people. I am nervous and excited to see what will happen.

Thanks for your continued encouragement and support!! I just wanted to share the good news!

Done, done, and almost done

I am so relived that all of the difficult things over my head this month are now done.

I finished my first 50k. I wasn’t sure I could do it. Being anemic and having a rough summer health wise made me really question my ability to get it done.

Today I sent in my video to the local autism chapter about what my childhood was like being a sibling of someone who was violently autistic. I also gave tips to parents on how to support their non-autistic children. I created a new Facebook account and a support page for siblings.

Making the video was very difficult, not just emotionally either. Somewhere in my mind I expected that I would look like someone on the news. I would be smooth, polished, and look like I was 25. The joys of being a perfectionist!

I found that I couldn’t make the video when other people were home. My husband walked in the room while I was recording and I had to start over. So I decided to tell everyone when I was recording to not walk into the room. But I could still hear the bass from my son’s music. The beat of the music banged in my head distracting me. I was paranoid that everyone could hear it.

Then I waited for the small window of time where I was completely alone in the house. I was still hoping that the dog wouldn’t bark. I created 3 fifteen to twenty minute videos on my phone. After I was finished, I watched the videos. They were okay. I was very critical of myself. Man, do I look old and tired. Look at those big black rings under my eyes. It was hard talking for that long in front of a camera without a script. Plus I was never one to like hearing recordings of myself singing or speaking.

Then I had problems sending the videos to my contact person because the videos were so large. It took me 6 days to figure that one out after a day and a half of actually making the videos. I wanted to wear the same shirt, hair style, and makeup to look like the whole thing was effortless. But trust me when I say it was not. I deleted more recordings than I kept.

Right before sending them out, I had a moment of sheer panic. It’s that awful feeling that you get before doing something risky, scary, but exhilarating. Would the videos be good enough? Would my best efforts suck? What would my family think? I feared success. I feared failure. My thoughts fluctuated between what I created sucked to everyone is going to know everything I never wanted anyone to know about me. I wanted to delete all of the hard work I put into this.

It is finished now. I sent them. Whatever happens, happens.

Next week I will go back to writing my book. I finished my research. I read about 40 journals written my myself, my mom, and the schools my brother went to. I read countless letters, notes, and articles about my brother. I even went back and reread my blog searching for clues. It’s done. I have everything I need to finish the book.

I am done, done, and almost done. If I heal and help other people in the process, it is worth it!

More than a shot

I took a pregnancy test today.

I had to take the test before I got the MMR vaccination which contains a live virus. Back in the 1990’s, when I was pregnant, my titer showed I was not immune despite receiving the shots in the 70’s.

I decided to get a booster shot because of the recent outbreak and my love for international travel. I might want to go on a mission trip in the next couple of years which will also take me off the beaten tourist trap path.

I started to think a bit more about vaccinations, more specifically the MMR vaccination. With the measles outbreak, I saw a lot of hateful comments made towards the anti-vaccination folks. I saw babies that wore shirts in photos saying, “I’m vaccinated because my parents aren’t morons”. I found this to be offensive because I’m sure most parents that don’t vaccinate are not morons.

Perhaps my opinion is not popular, but stick with me for a moment.

I had my first baby in 1998. In 1998, an article was published in a medical journal linking the MMR shot to autism. It caused a huge scare that I believe hasn’t been fully eradicated to this day. At that time, I was more fearful that my children would be severely autistic like my brother than to get measles, a disease that I’ve never seen anyone contract in my lifetime.

Later, after the article was published, we were told that the link was a sham. Being a very logical person, I wondered what kind of medical journal would publish crap research findings. Can anybody publish any research article that they want in a supposedly reputable medical journal?

I also thought about conspiracy theories. Here you have huge pharmaceutical companies making big money off of vaccinations pitted against a small probably under funded research doctor. Of course there wouldn’t be a link. Follow the money. What were concerned parents supposed to believe? You can’t just erase something you already saw. Shame on the journal for publishing the article in the first place if there were so many issues with the study’s validity. It caused so much unnecessary fear.

It was horrifying and I struggled with making the decision to have my children get the required vaccinations. I am happy to say that my children are fully vaccinated. I thought the best way around it was to vaccinate my children with the MMR shot after they safely passed the age when most cases of autism are diagnosed.

I feel angry with people who quickly judge others for not vaccinating. They are usually not morons, they might just be fearful like I was. My babies were born at the height of the autism linked to vaccinations scare.

I think that most people who choose not to vaccinate have their reasons not to. It is not lazy parenting. Believe me, it is a lot more work to choose not to vaccinate. I did receive some criticism for doing things on my timetable. But even if there was a small iota of a chance that vaccinations caused autism, I needed to be careful. Where those people that shamed me going to come in my house and take care of my child if he/she became autistic?

I honestly don’t know if I would have the strength to live through it again this time as a parent.

I have a lot of respect for people that grew up with a special needs sibling that end up becoming a special needs parent. I don’t think I have the courage to fight that battle twice.

I get angry about talk of forced vaccinations. Shouldn’t parents have the right to make that choice for their child?

I think pro-vaccine people would be more successful listening and being empathetic to the concerns of parents who don’t want to vaccinate. Don’t treat them like they are a bunch of morons because that won’t get you anywhere. Morons blindly follow. But educated people question and try to make the best decisions they can.

I am pro-vaccination, but I strongly believe that the parents should make the decision and be treated respectfully whatever they decide.

 

 

forgotten

One of the hardest parts about being a special needs sibling is being forgotten. It’s like I don’t even exist. Forgotten, no one would miss me if I was gone. It’s hard to get over the voice in my head that is on repeat saying that no one really cares about me.

Yesterday I went out to eat with my mom. At the restaurant, my mom noticed our previous dentist sitting near us. He lost his license to practice dentistry over a decade ago. He wasn’t the first provider that we had lose his license either. Let’s just say when traditional medicine didn’t heal my autistic brother, my mom went the alternative medicine route and some of those doctors were quacks.

My mom went over to talk to our dentist about Matt. She showed him all of Matt’s most recent pictures. On the way out, we said good-bye. I told my mother that the dentist probably remembered me. After all, I was the patient with the small mouth that no dentist could numb for fillings. My mom talked to the dentist some more about Matt, then asked the dentist if he remembered me.

The dentist said that he did not remember me. He had a very large practice and wasn’t expected to remember every patient. I was in his office so often that I still remember his secretary’s name. It was like a kick to the teeth. The polite thing to do would’ve been to lie. Yes, I remember you. How are you doing now? Instead he asked for my mom’s phone number because he would like to schedule a time to come out and visit Matt.

I told my husband about the interaction and he was rather appalled. But I told Paul this was the typical response.

As a teenager, the rare time I was with family friends or family, they would pepper me with questions about Matt. They asked how my brother Matt was doing with the same sympathetic frown on their faces. I was barely holding it together, but no one ever asked how I was doing or how my other brothers were doing. Yeah, just trying not to swallow a whole bottle full of pills here. But who cares?

As a child, I wanted something to be wrong with me so that I would be loved too. My babysitter told me if I wore her thick glasses and looked in the mirror, I would need glasses too. I wore her glasses looking in the mirror with a metallic gum wrapper covering my top teeth with a paper clip. I wanted to be special too.

I had a lot of stomachaches as a child. I could barely eat I felt so sick. But I wasn’t as sick as Matt. I didn’t need to go to the doctor. Matt’s valve between his stomach and intestines closed, and he almost died. What was I bellyaching about? I just wanted attention.

But as I am currently facing health issues, I wonder if I am just being paranoid. Maybe it’s just me wanting attention. Maybe it’s nothing and I am just crazy. I am probably just being selfish to focus so much on myself. Look at Matt.

It was always that way. It will probably always be that way. Seriously, who cares anyway? My thoughts and feeling don’t matter. I don’t know why I even bother.

I remember a special occasion with family several years back. We were supposed to go around the room and share something special that happened in our family over the past year. My mom spent 20 minutes in tears talking about all of Matt’s medical needs. She did not once mention that my brother Luke, who wasn’t there, got a HUGE promotion at work that year.

We are the forgotten ones. It makes me feel both sad and angry, hurt. But it was always like that. I should be used to it by now.

I didn’t feel that way about my dad. He pretty much checked out altogether. But in my mom’s life, the sun will around revolve around her special son Matt. Our accomplishments don’t matter. It doesn’t matter that Matt hurt us or our children. We should all work together to worship our god Matt because his life sucks.

My mother is a great person, a martyr perhaps. I feel guilty for my disloyalty. But the one thing that grieves me deeply, far beyond the memories of the physical pain of being attacked by Matt, is being forgotten. It’s hard to get over feeling like no one cares about me. Sometimes it’s hard to be caring towards myself. I feel selfish for sharing my wants and needs.

Forgotten.

 

Hurt again

I felt a burning fire rage within me today. I think it was the combination of a lot of different things that ignited the fiery red flame.

Yesterday I wrote in my book about one of my most painful early adult experiences. Previously in my writings, there seemed to be a separation between what I was saying and how I felt. There has been an insulation protecting me from the words. Yesterday it was removed and I felt angry.

My mom always told Matt that it wasn’t his fault he was violent. Sometimes she told him he was having a seizure after being exposed to loud music. Most of the time Matt was told that he was having an allergic reaction. It was an accident and not on purpose. The school told my mom that they wanted Matt to be told it was wrong when he hurt someone and to have consequences for his negative behavior.

That never happened. Six months later Matt got arrested at school for assaulting his teacher’s aide. She was pregnant at the time and it took 2 adults to get him off of her. Matt’s aide was my childhood best friend Shelly. I was the maid of honor in her wedding. We were best friends forever, or so I thought at the time.

When I got married, Shelly wasn’t invited to the wedding. I had to choose between my family and my best friend. My mom had the attitude of oh well you were growing apart anyway. But if we grew apart and the friendship ended it would’ve been my choice, but it wasn’t. It tore our whole friend group apart.

It was very painful to lose a best friend, all my close friends really because my brother attacked her.

I was rage cleaning this morning as a result.

I had to take a step back from running. My Boston marathon friend contacted me to go running again. We ran 8 miles together at breakneck speed. Then she told me that I really needed to work on hill training. I pushed it really, really hard and ended up hurting my ankle. Now just walking gives me pain.

Something else happened too. Someone I know told me the story of how her son recently fell asleep while driving and caused a fatal accident. After hearing her story, I started feeling anxiety driving again. It started by not sleeping well one night, then driving Arabella and her friends somewhere for her birthday. I started to worry that I would fall asleep and kill someone too. For the last couple of weeks, my driving anxiety has been back and I am worried that it is going to turn into full blown anxiety again. I worked so hard to get over it.

I have just been feeling angry and frustrated by the things I have experienced and the things I am experiencing. My son had some friends overnight and I waited until 1 PM to vacuum near them. I didn’t say one word to them but they seemed so terrified of my anger that they went from a dead sleep to packing up all of their stuff and leaving.

My son saw me rage cleaning and asked if he did something to make me so angry. I told him that it had nothing to do with him really. He pressed me for more details and I ended up telling him about my childhood for the first time. He is almost 19 and will know all about it when I publish my book anyway. We had a really nice conversation for almost 2 hours. In that time my anger dissipated.

I’m not sure what is going to happen, but I plan to keep writing no matter how hard it is or gets. Sometimes it is very hard to stir up my demons because I don’t know how I’m going to react. This has been my biggest obstacle so far, but I refuse to give up. After all, that is how I hurt my ankle. Sometimes I need to learn when it is time to ease up. That’s never been my strong suit.

It sounds kind of funny. Most people complain that they don’t have my determination, but all I want is the ability to relax and not be so hard on myself. So here I am, hurt again.