Mother

No kidding

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Life has been busy the last couple weeks with the holiday season rolling in and working full-time. I will be working every day this week except Christmas day. Although I like my job, I am not looking forward to this week since I will be working the next 6 out of 7 days.

I had this weekend off. My uncle and cousins flew into town from Texas to say good-bye to my mom. We were told this past week that the nurse was considering putting her on hospice tomorrow. She had a UTI over the past couple of weeks that speeded up her trip downhill. I kind of blamed myself for that, although I know it’s silly. The times I took her out of the assisted living facility I had to help her with the bathroom and I told myself I didn’t do something right. Why do we tend to blame ourselves for things outside of our control? I realize it’s foolishness.

Now my mom is struggling with daily activities more, like walking. My mom was always physically active so it is hard to see her like that. The dementia is starting to ravage her body now as much as her mind. She still knows who I am, but she just repeats nonsense words. She kept saying no kidding over and over. But her voice was so quiet I had to go closer to hear expecting something meaningful, but just to get a no kidding. The rest of the time she just blankly stares at me.

No one knows what to say when they don’t feel like there is anything they can do to change the situation. I just feel this nagging sadness and overall numbness right now.

No kidding.

A harsh winter is on the way

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Just like that, the holiday season has begun. Winter weather came along with it blowing its harsh cold winds. We have snow on the ground and had a few days of subzero wind chills.

We hosted Thanksgiving here which turned out being very busy with a total of 18 people. The weather was very cold and I am thankful Angel and Paul decided not to run the Turkey Trot in order to help me out more. I didn’t ask them to forgo the race to help me, but I couldn’t have done it without their help. They helped me pick up my mom and Matt to bring them to the party. I didn’t know it yet, but my mom’s health had declined since I last saw her.

I dished up my mom and Matt’s food, giving my mom easy to eat foods and Matt whatever he wanted. My mom didn’t even notice this time when Matt ate foods she wouldn’t let him eat. This was confusing to Matt. He didn’t understand why he didn’t get angry when he ate foods with gluten. He asked mom if it was okay and she didn’t respond. I told Matt that God had healed him and now he can eat whatever he wants and be fine. Matt said some day mom would be healed when she goes to heaven. Matt said he would have lots of energy when he gets to heaven and that he would be able to run very fast. Oh, to have the faith of a child and be ignorant of everything around me.

My best friend’s family also celebrated Thanksgiving with us. The youngest member of their family arrived in late summer. I spent some time holding the new baby and feeling jealous of my best friend who now has 4 grandchildren and another on the way. I spent the weekend after Thanksgiving working and this past weekend we had our first Christmas party with my mom’s siblings and their families.

It was a difficult family party because everyone there spent some time saying good-bye to my mom. It will very likely be the last Christmas we spend with her. My mom didn’t talk a lot but when she did it didn’t make much sense. She told everyone she died on her birthday. And in some way she sort of did. Back in August, she was angry with me and agitated she wasn’t in control. Now she doesn’t seem to even care. She needs help going to the bathroom and even eating. We had a heck of a time getting her in and out of the vehicle. I wasn’t even sure we would be able to convince her to go anywhere.

My mom is almost gone now. The family has been coming to say their good-byes. I’m going to try to see her as much as I can before she is gone. In many ways, I wish we knew what was going on much sooner. Maybe we would’ve been less frustrated with her inappropriate behavior. I can’t pinpoint when my mom first left us, but she has been gone for several years now. It started so gradually, but now the time is going fast.

17 thoughts

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This summer has been very busy and unfortunately I haven’t been able to set aside as much time as I would’ve liked for writing. Here is a summary of what has been happening which may or may not lead to future posts about the events.

  1. My mom’s POA was activated after a diagnosis of frontotemporal dementia.
  2. I set up a tour for my parents of an assisted living facility. They will be moving in this weekend.
  3. My brothers and I will be meeting over the weekend to make some hard decisions about what to do with my parents properties, vehicles, belongings, etc… As my parents are hoarders, this could take more than a year to straighten this mess out.
  4. I am still dealing with guardianship issues with my brother Matt in terms of his finances and health. My mom has been very angry with me that I am allowing him to have a diet with no restrictions. There will probably be more about this in a later post.
  5. Arabella broke up with her boyfriend. It was more of a mutual breakup and they left on good terms.
  6. Arabella has less than a month of probation left.
  7. Angel and Dan moved their camper from North Carolina to Indiana. They are doing great, but it’s been an adjustment this year not seeing them often.
  8. Paul had genetic testing done for cancer. On the test, 76 out of 77 screenings came back as normal. The other was neither negative or positive as they don’t have enough info to be certain if it’s a problem area or not.
  9. Our dog jumped the fence and was missing for 24 hours. We looked for him everywhere. We thought he was a goner until the following day when I came into the house to find him laying on the couch like he never left.
  10. The dog ran away right before I had to leave for work. That day I went in late. I left a message for my supervisor who didn’t bother to ask if we found our dog. I think that was the point where I started to despise my supervisor. The company I work for and the management really suck as I’ve seen them screw over the employees. This left me in a hard spot. I really like my job, the people I work with, and the patients. But is that enough for me to stay with a company I have no respect for because they don’t take care of their employees.
  11. Talking about employees, a previous problem employee of ours when we ran our company was convicted of felonies which landed her in prison.
  12. For the first time, I was called to go in for jury duty and was selected to be one of the jurors for a felony case involving the se#ual assault of a child.
  13. I decided to have three rings resized that were a gift from my mom when I was in my 20’s. It means a lot more to me now that my mom is ‘gone’.
  14. My son moved back into the house. He is doing really well as a musician, having a full-time job, and starting a business on the side. But in other ways he is not doing well. Like his dad, he struggles a lot with his drinking. At least at this point he is acknowledging it’s an issue he needs to work on.
  15. I really think that now is a good place to end my memoir. It’s been six years since I started it. I even finished it at one point, but life kept happening.
  16. The bar I made my stand up comedy debut in shut down. There are other venues I can try out though.
  17. There are so many things I probably forgot about…

The appointment, part 1

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My mom’s first appointment the day her POA was activated was rough. My mom was crying and begging me to be able to have Matt overnight at her house again. Due to two recent medication errors, Matt’s case manager, nurse, and I made the call to not allow Matt to stay at our parents house overnight anymore. He was, however, free to visit them between 8AM and 8PM between medication times. My mom told her doctor she was not allowed to see him at all. Her primary doctor said she would be willing to be the second signature on the POA form and gave me the form to take to her afternoon neurologist appointment.

The primary doctor said that we needed to look for a facility to take care of my mom. She said that we should look into everything before it became a crisis and it has been at crisis stage for too long now. I told the doctor my parents wanted to stay at home and refused to go. My mom was adamant that my dad was going to take care of her. She said he was loving and supportive, which couldn’t be farther from the truth. Her doctor said in her 25 years of being a doctor, she only saw two husbands that were able to care for their wives and they had large families nearby to help. Not children who lived far away and were working full-time. She said worst case scenario was that I needed to call adult protective services to have them removed from their home.

After the appointment, I dropped my mom off at home and drove an hour to close the guardianship account my parents created for my brother back in the 90’s. The rep payee account had finally come through and I needed to close the old account. Upon arriving at the bank, the teller contacted her manager stating that I wanted to close an account that wasn’t mine. The manager said absolutely not as I pulled out the guardianship paperwork. The manager had to speak to the higher ups as I sat waiting in the lobby for an hour. When they finally talked to me, they told me the original account from 1994 was not set up as a guardianship account. Although I am now the guardian, they might still need my parents to come in to sign off the account because it was listed as a joint account. At this point, I was feeling really stressed. I was trying to hold back anger and tears as I explained I lived an hour and a half away. My dad can’t walk and my mom is losing her mind. Along with becoming my brother’s guardian, my mom’s POA was most likely going to be activated that afternoon.

I didn’t know when I would be able to come back with my parents. I took the day off to deal with everything. There wasn’t much else I could do and I had to be back for my mom’s afternoon appointment. After I left, I received a call from the bank saying the higher ups approved the closing of the account. I turned around and finally closed the account.

I picked my mom up for her second appointment of the day. She was still upset with me about Matt and was now crying because she thought she was going to be committed. The doctor was running late. After waiting for another hour, we finally saw the doctor. I explained everything that was happening, how my mom was getting worse since the last appointment. The doctor seemed upset she didn’t schedule to see my mom sooner. She signed the POA forms on the spot. Then she dropped the bomb of frontotemporal dementia. Since my mom was still crying, she asked if my mom was still on anti-depressants. I thought so but I didn’t go to that appointment with her. She told me my mom needed memory care ASAP. She said being at home was a major safety concern, especially with cooking.

I asked the neurologist about genetic testing. She said that I could if I wanted to but it was a waste of time because this condition is something you don’t have any power or control over and there is no cure. My thoughts turned dark, I would do anything to not do this to my own children and spouse. But I would have no idea I was losing my mind. For several weeks, I fell into a deep dark despair. I am still grieving the loss of my mother who is still alive. I am grieving the future I thought I would have. Angel did say something that made me feel a lot better which was that they were planning on taking care of me anyway whether I was in a wheelchair or lost my mind.

Mayday

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This whole past week has been hectic, almost overwhelmingly so. Although yesterday I did make some time for fun checking out area rummage sales, eating where my daughter was waitressing, and watching my son’s band perform.

The week started with taking my mom for her PET scan appointment several hours away. Hopefully we will have some results soon. Then I worked Tuesday through Friday at the ER. So far I’ve seen a lot of interesting, horrible, and sad things. I wonder when I will become apathetic towards others like my co-workers seem to be. You almost have to be in that setting to keep the suffering from bothering you.

The rest of the week went by in a blur. This next week will probably too. I will be working the next four days and have Mother’s Day weekend off. Unfortunately the Mother’s Day comedy show has been cancelled. I have this feeling that most comedians are like artists and musicians who are so focused on the creative that they overlook the structure.

My plans for Mother’s Day weekend are volunteering, going out to eat while my daughter is waitressing, and watching my son play kind of like this past weekend. But it is what I enjoy doing. Angel and Dan will not be home for Mother’s Day weekend. They moved their camper from Georgia to Alabama to spend the next couple weeks at a new job site. But they will be home soon!

I am also planning on going flower shopping this next weekend for a couple planters for my patio and as a gift for my mom. Just this past week everything got green. The buds are almost turning into leaves on the trees and the grass is starting to grow.

This uncertainty, part 1

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Lately I’ve been struggling a lot with indecision and uncertainty. Where do I even begin?

I’m not certain how I feel about my mom right now ever since she sent a picture to my daughter of her ex-boyfriend on her wedding day. Last week I talked to my therapist about it. She asked me how I don’t hate my mom. I don’t really…hate my mom. I just need space.

I just don’t understand how she could do something like that. Was it intentional? She had to dig back pretty far into her photos to find that one. Was she jealous my daughter asked me to be a bridesmaid? She is always making comments…must be nice…but it doesn’t sound nice. She was the one blemish on an otherwise perfect wedding day. My therapist said it doesn’t matter whether it was intentional or not. The issue is that my mom is always being the drama queen.

If it’s not one thing it’s another to try to get my attention. My mom has been to urgent care twice in the last week or so. Neither time for anything serious. The last time it was for a fever of 100. She has been calling and texting about how sick she is.

I’ve only seen her twice since the wedding a month ago. It’s been nice. I think twice a month is enough for me. But I know if I push back she is going to smother me. I just don’t know if it’s worth the fight.

I have to start planning Thanksgiving and Christmas. That’s another thing, my mom never once hosted those holidays. I started taking it on after my grandma no longer could when I was in my 20’s. Seems kind of young looking back now. I think I feel a lot of resentment towards my mom for that. Sometimes my brother Luke would take it on and he’s younger than me.

This year everyone is invited to the big extended family Christmas party regardless of vaccination status. Last year we were not invited because my household is of a mixed status. Now we are invited but I don’t really want to go. I probably will anyway because the aunts and uncles that are currently not in the family feud went out of their way to be great towards my daughter on her wedding day. Better than my mom was. Actions speak louder than my mom’s words. She sometimes exaggerates things to stir up drama and I can’t overlook that.

I’m not really sure what to do about my mom and my relationship with her. So far I’ve opted to do nothing and be noncommittal which is the opposite of how I try to live my life. I don’t know seems to be my answer for a lot of things these days and I don’t really like it. I’m the type of person who always has to have a plan.

Gratitude week 123

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  1. Mother’s Day; I was able to spend most of the day with my mom and all my children and their significant others. Angel made me a lemon cake and bought me a book. Alex brought me flowers and cheesecake. Arabella got me my favorite jelly beans. We played some games and had a bonfire. Paul made some ribs.
  2. I’m grateful for my husband who did most of the cooking and cleaning on Mother’s Day.
  3. Spring finally arrived in Wisconsin. It’s the start of my favorite time of year!
  4. I turned the heat off and took the quilt off my bed.
  5. I uncovered the pool today for the season.
  6. I had a really good therapy session.
  7. Paul had his annual physical and it went well.
  8. I finished the classic East of Eden by John Steinbeck. It was a remarkable book…there might be a post about it this week…
  9. Mom and I are going to the spa this week…can’t wait for that.
  10. Sailing season is starting…we’re planning on taking the boat across the bay this week to its summer home.
  11. I had another weekend of rummage sales. The big finds were a light blue floral area rug for $22, several snarky t-shirts, several albums specifically one with pipe organ music, colored exterior flood lights, candles and large candle holder, a beach scene picture, and some books. I bought some items for Angel’s house and Arabella’s apartment. I met some of my neighbors.
  12. This is worth a special mention. At a rummage sale I found a book of questions. I was specifically looking for an item like that for my blog to have more topics to write about when things get slow. I can’t believe I found an obscure item I was looking for at a random rummage sale. The best part is I paid 50 cents for it.

The first fire

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I never heard my mom cry like that before. It was the deep howling sorrow that was saved for behind closed doors. I could almost peak out the window she was staring out of if I stood on my tiptoes. The night sky a glowing orange haze in a hue I never saw outside before. Together we watched her childhood home burn down.

I went with my mom once to see her old house the year before when I was 3. I’m not sure how I remember it. Strong emotions of my mother typically elicited sparks of memories in me. There was a long dark inside staircase that went upstairs to the main floor of the house. There was a bright average sized kitchen with a window above the sink that I could imagine her mother standing at with her back to me. I never saw my grandmother’s face before but I was told my mother looked just like her.

We had to walk up one step to go into the living room from the kitchen. I found that rather strange. I saw the bedroom my mom shared with her sister Jan. It looked as small as a closet. I imagined my mother playing in that room with her one doll. Mom always said that Aunt Jan was messy and my mom was the clean one. They seemed to have switched roles. Aunt Jan never entertains because people get her house dirty. My mom never has people over because she is embarrassed by her clutter and hoarding.

I wonder now if she imagined her mother was still alive inside of that house cooking supper, washing dishes, or just living a normal life every time she used to walk by. That was the only house she remembered her mother living in. Her mother died and her family moved far away, but she remained in that small town.

My mom more often than not on nice days took us for walks by her old childhood home. Every day the memory of her mother was still alive inside of that house. I’m sure she thought of that when she took us on walks to visit her husband’s mother.

Until one day the house burned down and even those memories faded away. She couldn’t imagine her mother happy inside the house when the house was no longer there. It was almost like she lost her mother again.

I never wanted the dress

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Last week the girls and I went prom dress shopping. I didn’t expect it to trigger emotions in me, but it did. I am so easily triggered now it seems.

My mom and I never went prom dress shopping together. One day she just brought home a prom dress for me. It was the ugliest light pinkest thing you ever did (or in this case, you didn’t) see. I hated it, but wore it anyway.

That evening at prom a “friend” told me another girl wore the same dress last year and that my boyfriend was planning on breaking up with me. I should have never went out with this guy in the first place. He was a complete jerk. During study hall, he would sit at a table in the library with his friends instead of me. I guess that wasn’t a big deal. But sometimes he sat at the table with a girl “friend” he flirted with constantly. She was way out of his league and had an obsession with polka dots. After that I hated everything polka dots when I should’ve hated him.

But anyway, sometimes when your dad doesn’t care about you or who you are dating you pick guys that are emotionally distant like your dad. The night of prom started out rough. Now I can’t totally blame it on the dress. Or maybe some would. My boyfriend’s step-dad really liked my dress and grabbed my ass when no one was looking. The whole night was a nightmare.

Then after prom, my boyfriend and I were headed to a party but got into a huge fight instead over the rumor he was going to break up with me. It was raining and we were pulled over at the side of the road arguing. Several people stopped to see if we were okay. It happened so many times that my boyfriend just told the concerned citizens we were fighting.

Why don’t normal things ever happen to me??

But anyway, the dress. I felt like I didn’t have a choice. I didn’t pick the dress out. I didn’t even like it. I felt guilty for wanting something else, so I just wore it. My mom did spend a lot of money on it.

I felt that way a lot as a teen, though. I didn’t have any choice, although it seemed like I did. When my autistic brother Matt was home bound, my mom pulled my younger brothers out of school as well. I was entering 8th grade when this happened. She told me I had a choice between homeschooling and going to school. What I heard was…are you going to choose your family or your friends? I didn’t feel like I had a choice. I had to pick family.

Instead of spending my last year of middle school with my friends, I stayed home in isolation. Then I spent my first two years of high school at home as well. The chasm widened between my friends and I, my peers and I. For three years I rarely left the house. I became a recluse. My mom became my best friend. My mom was jealous if I had other friends beside her. It’s still the same today.

When I turned 18, you might think I would’ve left home as fast as I could. But I didn’t even consider it as an option. How could I leave behind my best friend when she needed me? But I don’t have any regrets. Do you know why?? Because I never lived. I was never allowed to be a child, a teenager. I had to be an adult when I was a child. I had to emotionally support my mother. I had to take care of my violent autistic brother.

Mom didn’t want me to play the piccolo, so I played a flute instead. I wanted to take singing lessons, but got piano lessons instead. When mom didn’t like my boyfriend, she set me up on a surprise date with an ex-boyfriend she did like.

When I wasn’t perfect, I was punished. I couldn’t be perfect, but I could be manipulated and controlled. I could be guilted into doing things I didn’t want to do. I hated not having any control over my life. My mom even read my diary. She was mad at me for the things I wrote in it. I never felt accepted for who I really am and for the decisions I made.

Part of it was my fault. I thought it was selfish to live my own life. I never stood up for myself. I never said I didn’t like the dress. I never said I wanted to go to school. I just wanted to be independent and live my own life.

I wanted to play piccolo. I wanted to be a singer. I wanted to choose my own clothes. I wanted to choose my own boyfriends.

I have a hard time as an adult making decisions and having choices. I sometimes still feel selfish doing what I want to do. But if I learned anything from this experience, it is to let my adult children live. Let them have their regrets. Their lives are not mine to control. But I will give unsolicited motherly advice.

On being a mother, their mother

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I had a pretty low key Mother’s Day. That’s the way I wanted it. The last thing I wanted was to take my teens somewhere they didn’t want to be surrounded by hordes of whining little kids. Been there, done that…

Instead, Paul grilled ribs and we played yard games.

My mom stopped by with Matt for awhile. He is slowly starting to get better. Now the doctors think he may have had a virus. No one really knows for sure..but he is starting to get better which is all that matters. I was worried there for awhile.

My daughter came home from college for the summer. It seems like yesterday that I told you I was dropping her off. I can’t believe the year went by so fast.

My baby turned 14 a few days ago. We had her last middle school choir concert. Soon she will be starting high school. The first of the lasts for her, the last of the firsts for us.

Time seems to be whirling by fast for the young folks, but here I am still the same.

At church on Sunday, we decided to sponsor a boy from Africa. He looked so skinny and sad that we turned in the money pretty quickly. The paperwork said that he is an average student. My son is pretty happy that I will now be nagging someone else about grades.

My son wants to get a motorcycle. He will be 17 next month. You better get your grades up son! If I let him get his temps now, maybe he will develop good habits. If I make him wait until 18, he might just say that he is an adult and can do what he wants…blah, blah, blah..

Even though my kids are all teens now, they still keep me on my feet.

But I am happy to be a mother, their mother.