Parents

Time to move on

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The marathon is over, now it is time to move on to next weekend’s big event. Graduation! My daughter will be graduating from high school. I think that I finally accepted the fact that she is ready to move on with her life without us. Over the past couple of weeks we attended her last school play, a musical that she was in, state solo and ensemble, and her last choir concert crying a little along the way. Last, last, last, and last. I don’t want to be sad about this anymore! I want to be excited about all of her new adventures in life. First, first, new, new, new..

Throughout the last several years, my mom, Paul, and I have supported Angel though all of her events. Last night Angel expressed some sadness over the fact that some classmates have two rows of family come to support them. At her last choir concert, Angel had several solos with only 3 family members there to cheer her on.

She is worried that her grandparents won’t even come to her graduation. Besides my mom, I don’t think that her other grandparents will go either unless we try hard to convince them.

My dad volunteered to work at a food stand this whole weekend. If he can do that, I am sure he could take off an hour to see his granddaughter graduate. When I mentioned attending graduation to my mother-in-law she said that she probably couldn’t afford to go. She can’t afford to drive a half an hour to her grandchild’s (free) special event? Pathetic!

Year after year, we listened to lame excuses for not attending the parties/events of our children. I don’t feel good, it is too hot outside, it is too cold, it might snow, it’s raining, I don’t have money, my car broke down, I have a casino trip planned with the girls, I can’t take off of work, I had to go shopping but I will stop by after your event, my water heater broke and I couldn’t take a shower, etc… This has been very hurtful.

My dad isn’t any better. He doesn’t make lame excuses, he just doesn’t go.

But how can we expect our parents to be good grandparents when they weren’t good parents? It is very disappointing. They can blow off all the other events, but I think a graduation is a big deal. I am planning on giving my dad a call and Paul is going to call his mom and step-dad in an attempt to try to convince them that they should go.

We’ll see what happens. If they decide not to go after we tell them how important it is for them to be there, I am ready to write them all out of my life…

We really shouldn’t have to try to convince our parents to attend our daughter’s graduation, should we??

Our last supper

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Paul and I decided to take his mother Martha out to eat for one last Mother’s Day celebration where we can all be together.

A quick recap…Martha has stage 4 lung cancer that has already spread to her brain. This will most likely be her last Mother’s Day. Plus we were able to go out with all of our kids. This will also be the last time the kids are all living at home since Angel will be in college next year several hours away. So this was the big hurrah!

We took the family out to a Japanese steak house for hibachi. Martha doesn’t get to enjoy fine dining often and was very happy for the opportunity to go out. She was very sick earlier in the day from her chemo, so we weren’t even sure the evening out would happen. We thought about just cooking a nice meal at our house. But since this is the last time, we decided to go to a small quiet restaurant and make it memorable.

We had a wonderful hibachi chef. Arabella even tried some raw tuna sushi to get ready for her trip to Japan this fall. She is very brave. Martha was wearing a baseball cap to cover her bald head. Paul made sure that she received a special chef hat that they reserve for birthday parties. I took a lot of pictures.

When we received the bill, we were told that Martha’s supper was paid for. Someone at the table next to ours covered her bill.

Paul went over to the table and thanked the man. They embraced. Later the man followed Paul into the parking lot. He told Paul that his mother passed away a few months ago from cancer. He wanted Paul to pass on this generosity someday to another person going through the same thing.

Once again, the two grown men embraced. Total strangers sharing a moment of sorrow over their dead and dying mothers on Mother’s Day weekend.

Together they wept in each others arms.

I have never seen two big masculine men sobbing together in a parking lot before. Complete strangers for a brief moment sharing the same pain.

It was very moving.

 

A little down

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I think I am depressed. 

One of the signs of depression is losing interest in hobbies. What if you just can’t do the things you enjoy anymore?? 

If I spend too much time at work, type a lot (write), shuffle cards, or work jigsaw puzzles my carpal tunnel acts up. My hands ache. I need to wear a brace. If I exercise with weights, sometimes I can’t grasp them. Several times a week my hands just let go of items and I drop them. I’ve dropped my phone several times. Lately, I’ve dropped containers of foundation or eye shadow shattering them into powder so I have to throw them out. I have problems opening lids on jars. 

Sometimes my acid reflux gives me a hoarse voice and sore throat which makes it very difficult for me to sing, another hobby of mine.

I have enjoyed running and competing in races, but now my knee hurts so much that I might have to cut back or stop altogether. 

It seems like everything that I really enjoy doing to deal with my stress is being taken away from me. 

I feel depressed that my daughter will be graduating from high school in a few days. She is a lot like me. We have so much in common and have become close friends. Now she will be moving several hours away and starting a new life without me. I am happy for her, just sad for me.

My relationship with my other two kids sucks. My son is currently failing all of his core classes. He is angry at us or depressed when we give him consequences. The hard part is that he has a brilliant mind, but is too lazy and unorganized to put any effort into his studies. I have no control over this. My youngest daughter and I have nothing in common at all. She takes pride in annoying me and arguing with everything that I say.

Work is stressful. Running our own business, having employees, and demanding customers takes a lot of energy.

My mother-in-law has terminal lung cancer and at best has a few months to live. 

I am starting to see my own parents age in new ways that worry me.

Every organization that we belong to thinks that they are the only organization that we belong to. Everybody wants our time, our money, a life blood commitment. 

My husband and I have both been irritable and stressed these last couple of months. I honestly don’t know how much more of this we can take. Instead of people helping us through these difficult times, they drain us of whatever we have left.

So, yeah, I guess I am feeling a little down. 

  

Life times 

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I had every intention of writing yesterday, but things don’t always go as planned. After today, I am done with my spring cleaning. Now we are just waiting for spring. Usually in the middle of April, spring turns on like a light switch. I plan ahead to have my spring cleaning over and done with before it is nice out. 

It has been cold this past week with more days of snow than without. Some patchy snow remains on the ground with another inch of snow and sleet expected this afternoon. Friday afternoon thick snow flakes fell to the ground. Please don’t tell anyone else in WI that I am saying this, but it was very beautiful. Saturday morning the sun glistened making the snow sparkle like diamonds. But now it is bleak and cloudy. All of the babies cried in church. They seemed to take all of our repressed feelings towards winter and let them spring forth like the wailing of the wind that cries out to us today.

Yesterday, I went to the bowels of Hades into our little crawl space to peer into all of the bins and boxes. I was hoping to find the letters my mom wrote to me the summer that she spent out of state in the hospital with Matt. I haven’t been able to find them anywhere. I’m afraid that I may have accidently thrown them out with all of the high school notes that I found. My old school texting! LOL. You know, the notes that I didn’t want my parents to find and now I wouldn’t want my kids to find. LOL. It makes me sad, but maybe they will turn up somewhere yet.  

Also, I was looking for pictures to display for my daughter’s high school graduation next month. Since more than half of my childrens childhood was before the digital camera era, I have 4 big bins and multiple boxes of unorganized pictures and memorabilia. I started to feel stressed that my display of her life would suck. I hate to be unorganized with this since organization is a strength of mine. So I decided to make a display of pictures from all of the shows my daughter performed in along with a couple baby pictures. Then next winter, instead of working puzzles, I am planning on going through all of the pictures. I am going to work with my mom to take all of the old family pictures and back them up online. After my kids are settled as adults, I am going to gift them with a bin of their most precious childhood moments. 

Yesterday we had my parents and Matt over for supper last minute. We spent several hours watching the old family videos that we had uploaded to a hard drive. It was so strange seeing my brothers, cousins, and myself as young children. Then we watched my kids as young children. It was so strange seeing the progression of time all in one day. Time sure flies. Enjoy every moment while you can.

Easter, turning 40, and candy in the light fixture

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Now I officially feel old. This last week my younger brother turned 40. 

I don’t remember feeling old when I turned 40. Maybe it was because I spent the first few waking hours of my 40th birthday in the ER. Having a sick child really took the little joy left out of turning 40. Everyone took turns staying with Arabella so I could have my special day. I felt a little selfish about that. 

I bought a 1970’s vintage outfit that I was going to wear out for my birthday. I had to go all the way to Chicago to find something exciting to do on a Monday night. There is certainly no nightlife around here on a Monday. But with a sick kid and other children that refused to go anywhere with me dressed like that, I wore normal boring clothes. I am such an embarrassment. Seriously, it wasn’t as if I was going to go out wearing my birthday suit.

My friends did take me out a couple of weeks before my birthday. I didn’t feel old. They convinced some people that they were taking me out for my 21st birthday. It was kind of funny when people came up to me and asked me how it felt to finally be old enough to drink. Really? What are you talking about?? Believe me that looking like I was 10 when I was 16 really did pay off later. LOL. 

But now I feel old. I ran 15 miles the day after Matt turned 40. It was really difficult for me to do. My inner voice kept telling me how old I was and doubted I could do anything. Sometimes I want to tell my inner voice to shut up and summon my inner child instead. 

How does Matt feel about turning 40? He feels great! Being autistic, he really has little concept of aging. He is starting to get the tire around his waist like all the older men in my family seem to get. Still he has no worries about his weight. There was a time in his life when we worried. At 5’7″, there was a point where he barely weighed 90 lbs. He was very sick to the point where we thought he would die. So a little gut is not that big of a deal.

 Yesterday the whole family went bowling for Matt’s birthday. Matt loves to bowl so we go every year for his birthday. I really don’t like bowling. I find it boring and I suck at it. Matt loves it though and he even beat my score. We bought him a huge balloon bouquet that was a lot harder to fit into a car than you might think. We almost got it tangled in the ceiling fan when we got to the bowling alley.  

After bowling, we all went out to eat. My dad went somewhere else. I am not sure if that had to do with senility or miscommunication. After supper, everyone wanted to come over to my house for games. My dad started driving home until my mom reminded him he was coming to my house. Then he turned the car around after swearing a bit and came to my house. He dropped off everyone in his vehicle and sat out in the car. 

Today my whole family met up at church for Easter with the exception of my dad. My mom is a devout Christian and my dad is an atheist. No, it doesn’t work well. I was surprised to see my brother Mark in church and dressed up to boot. I thought that the only time that I would see him go to church was on his wedding day. Boy was I wrong. His new wife said that she wasn’t going to church by herself. Now Mark is a church goer. Maybe he thought a little about all the times that my mom went to church alone. I was happy that he went. He always sided with my dad. I was wondering if he would choose to go to church with his wife or stay home with my dad. I was surprised my dad didn’t give him a hard time.

The church was having some issues with its organ. Apparently they asked my dad to come fix it. My dad said that the last time he went to church it was working okay. I said it was true that the organ was working just fine in the 1980’s. I told my dad that it would have been nice if he came to church today with his family to at least view the condition of the organ. Oh well! At least he was wearing clothes today. He wore red plaid pajama bottoms with a Packer shirt. He didn’t match or even shower lately, but at least he wore clothes. Baby steps!

After eating ham at my mom’s, everyone started their journey back home. Mark and Luke live several hours away while I live nearby.  

I had the kids do some work while I hid their Easter candy. Alex is good at finding things. He found his sisters candy before they did. So this year I hid his candy in a very difficult spot. I unscrewed the light fixture, then hid his candy there. Brilliant spot, he did find it though before Arabella found hers.

I hope everyone had a great Easter! 

Last(ing) things

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Last night I woke up in the middle of the night crying from a nightmare. In my dream, Paul and I were in some sort of clinic. Someone we knew was close by and received good news. They were expecting a child after years of trying. But we received bad news. I dreamed that Paul had cancer too. We were going to watch his mother die, then he was going to die of the same thing. It was all very horrifying. I woke up upset and crying. I reached over and held onto Paul tightly.

Back in October, Paul’s mother Martha came out to Alex’s confirmation. She had been sick for over a year at that time. She had a cough that would not go away which her doctor said was caused by medicine that she was taking. She was always sick with sinus infections or bronchitis. When we saw her in October, she was wheezing, short of breath, and gasping for air. She looked horrible. We told her to go back to the doctor.

In November, the doctor found a tumor in her stomach and lung. They thought that the tumors were the same kind, that they  would be easily treated with a pill. She was going to be okay. Martha already survived breast cancer 15 years ago. 

Then in January, the doctor found out that the tumors were two different unrelated kinds. In February, Martha was diagnosed with stage 4 terminal lung cancer. The cancer filled one lung and was moving into the other. Then last week, she found out that the cancer had moved into her brain.

Martha is now taking a combination of chemo and radiation. Last week Martha lost her long shiny hair. I haven’t seen her yet without hair. That is going to hit us all hard. I am glad that Paul was given some forewarning to take the time to say good bye. I have to forgive her for all of the past hurts. 

Our relationship with Martha has always been volatile, especially in the earlier years. When Paul and I bought our first house, Martha wanted to help me make curtains. We went together and I spent more than I expected to on material. We started the project, but before we could finish Martha got into a big fight with her son and left me with unfinished curtains. My grandma helped me finish the project.

There were countless times that Paul and Martha would fight. Martha screamed at Paul and kicked him out of her house anytime that we had to discipline the kids. She would show up late for holidays. It has been years since we celebrated any holiday with Martha. Sometimes she would cancel out at last minute or not show up at all.

One time Martha and I were going to take the kids to a water park. She was running late to the point where we weren’t going to be able to make the trip worthwhile. This was the only time that I confronted her. She didn’t talk to me for a year.

Martha often called and spoke of gambling trips that she took with friends then complained that she didn’t have money for gas to come see the kids and their events. Our relationship was marked with a lot of anger, hurt, and resentment. She is a difficult person that likes to argue and say hurtful things, and now she is dying.

This week she called Paul and asked him what we were doing for Easter. We have plans with my family. Today is Matt’s 40th birthday. My whole family will be getting together to celebrate Matt’s birthday on Saturday and then Easter on Sunday. We are able to see each other as a group a couple of times a year. I told Paul that we could cancel the Easter plans with my family to see his mother. It most likely will be her last Easter. Paul decided to keep our plans as is. 

I forgive you, Martha! I will try to remember the good times. When you weren’t crabby, you were always so much fun. Your fun loving, upbeat, optimistic attitude is hard to beat. You provide a lot of excitement. There was never a dull moment with you. You are always happy with the littlest things. You are content with what you have. You try to make the most out of situations. You always had good intentions. 

By far the best gift that Martha gave me was her son. She made the right decision when she decided to keep her unwanted pregnancy. For that, I will be forever grateful.  

 

Surviving the time change

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My mom said earlier in the week that the risk of having a stroke or heart attack increases significantly for those 65 and older two days after the time change. My mom said she was planning on having the heart attack and my dad was planning on the stroke. Or maybe it was the other way around. Nevertheless, they survived another time change and it looks like you have too.

Last Sunday, my mom invited my family to her church for a chili meal. Before the meal, we all went to church with her and Matt. We didn’t fit into one pew, so Paul and Alex sat in the pew in front of us. During the prayer time, Matt announced loudly that he needed to use the bathroom. He kept saying it over and over until my mom nodded yes. Then she rolled her eyes and smiled at me. Matt will be Matt. When Matt got back from the bathroom, he sat down next to Paul in the pew ahead of the one that he was previously sitting in. After a few minutes, he looked at Paul and did a double take. He shook his head in shock and disapproval. Then he got up and sat down in his original spot.

After church, we headed to the chili meal. Matt has a special diet, so my mom brought his food to microwave. When she heated up his meal, it blew a fuse and the lights went out along with the power to the slow cookers. Whoops!

I am not crazy about chili. I like the flavor, but it really upsets my stomach sometimes. It didn’t help that on my second spoonful I almost ate some hair that I found in my soup. I did eat it though, albeit rather slowly.

Then we went back to my parents house. My dad was sitting on the couch in his shirt and underwear. He had a blanket slightly draped over his legs. Remember earlier when I said that I don’t embarrass easily? I just had to find a guy that would be able to tolerate my eccentric family. Of course, I was expected to return the favor.

My dad is a hard core pessimist. His common words of wisdom are shit happens and life’s a bitch then you die. Paul’s mom is a hard core optimist. She told the kids that when she retired she would buy them a swimming pool and spend time with them. It doesn’t seem to matter if the cup is half empty or not, neither one of them lives in reality.

My dad does have a few redeeming traits though. He has a great sense of humor which is one of the few traits that he seemed to pass down to me.

My dad was complaining about having a virus on his new laptop. Apparently he received an email from a deceased friend. He had to click on it to see what kind of message was being sent over from the dead. Then my mom clicked on the email too. I said that she probably didn’t even know that the guy was dead. She didn’t.

We spent a lot of time laughing at my dad’s story of his computer virus. He gets so worked up about technology issues. He even called the anti-virus software. They told him that he probably had a virus. He over the top thanked them for being so helpful. We briefly talked about getting together to smash our computers with bats. Now wouldn’t that be a smashing party??

They may have gotten a virus, but at least they survived the time change.

Autism’s sibling, journal 2, part 4

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I was my mother’s best friend. Before I was a teenager, I knew about every problem in the house. I helped solve them. I heard about financial concerns, marital problems, parenting issues, and autism galore. My advice was sought. I fixed things. After my dad checked out emotionally, it was like I became the other parent. I was never allowed to be the child. My mom had a hard time making and keeping friends because Matt’s violent behavior scared them away. He scared away many of my friends too, so I really couldn’t blame her.

So I deliberately planned that when I became a parent, I would allow my children to be children. They were never going to hear about my adult problems or issues. In fact, I haven’t told my children much about my childhood at all. I only told my oldest daughter about this blog since she is almost an adult and is old enough to know. Maybe someday when I am ready and they are old enough, my other children will be told.

My mom had a really hard time without the support of my dad and a few close friends. She often times would cry while listening to Christian music as she was driving. Sometimes she would do this while I had friends in the car. It embarrassed me to the point that I really disliked Christian music or relaxing piano music that would cause an eruption of tears from my mother.

Once my mother took my brothers and I to a Christian concert when we were little. She cried almost the whole time. We were bored and screwed around to the point that she had to leave the concert early. She was so angry and upset with us that she cried most of the way home. I wish she had some friends that she could have enjoyed the night away with.

Now I like some music that I wouldn’t want my kids to listen too. Music that is angry, dark, or downright nasty. Music that modern day teens might like and not an old lady like me. Sometimes my kids will test me. Bet you don’t know that song. Yes, it is Eminem singing ‘Till I Collapse (good running song by the way). Wow, I am such a cool mom. With the bass cranking out of my window, you would think that my daughter would be happy with me dropping her off right outside of the middle school. But, alas, I am an embarrassment. Sometimes I even embarrass myself.

Just small talk

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Yesterday was my dad’s birthday. I always dread calling him for his birthday. I really wish it wasn’t that way, really I do. 

Yesterday evening, I was the first person to call and wish him a happy birthday. I asked my dad if he received any birthday cards in the mail. “No,” he replied. Then we talked about the weather. He said that it was snowing. He said that he was driving but the roads weren’t slippery yet. After a few minutes of ackward silence and small talk, I told him that I should let him have both hands on the wheel. Bye dad.

I wish it wasn’t that way. I know that the time is coming soon when these birthday calls will end. Maybe it was already the last one. I feel sad for the relationship that never was. Although we get along better now than we ever have before, we never had a father daughter relationship that was anywhere near Hallmark greeting card close. I would settle for a relationship that gets beyond small talk.

Some things have been broken so long that I don’t know how to fix them.

A storm is brewing

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I feel the edginess right before the storm hits. The peacefulness and calm from my vacation is leaving slowly like a summertime tan. I feel the wind surround the emptiness inside of me, trying to find a void to fill with cold icy snow. The warmth and sunshine are gone now. Sorrow, darkness, and anger encapsulates me. I cry out to God, but He doesn’t seem to hear my prayers. I feel the tug of emotions trying to drown me in a river of despair. I am alone. I want to be alone. I don’t want to talk. I really don’t want to do anything.

It has been a hard start of the year. I miss my neighbor and friend that passed away a couple of weeks ago. Every time I look at her house, I think that she is still there. She will pull her car out of the driveway and wave at me. We were supposed to do something together next week. But guess what? I can’t go. I looked over the old messages that she sent me. My heart tells me that she is still alive. She just can’t come outside. My brain tells me to stop being such a fool. Stop pretending that things are fine.

Last summer my best friend moved to Florida. I had the opportunity to spend time with her while we were there on vacation. I didn’t realize how much I missed talking to her and seeing her. I miss her. I don’t feel like talking to anyone else. In 4 months, my oldest daughter will be leaving the house. I am excited for her to start the adult chapter in her life, but I am at such a loss. I started crying while she performed her solo and ensemble song for me. It bothered me that she sold her junior prom dress. It just seems so final.

Then yesterday we found out that my mother-in-law has stage 4 terminal lung cancer. They are giving her around 15 months to live. Wait a minute, I am not ready to deal with the loss of our parents yet. I have been having a hard time with this since I saw her last week. I have been feeling sad and angry. With all of the people that were praying for her and my friend that passed away, why didn’t God heal them? I don’t have any control. Why should I expect miracles? I feel helpless. Who can avoid death? It has given Paul time to say goodbye to his only parent. That has been good for him to spend time with her.

This morning my son got suspended from school. He got in a fight with someone in the hallway. It has been no secret that my son has been struggling with school for the last couple of months. He has been begging us to switch schools for a couple months now. Apparently a boy called him a faggot on facebook back in December and has been bullying him with some other kids. My son got in his face today. I suppose that it shouldn’t surprise me that the day after my son finds out that his grandma is dying that he confronts this other boy. Words were exchanged between my son and this boy. They were pushing and shoving each other in the hallway. Then I received a call from the school that my son was suspended for 3 days. He was trying to provoke the other kid that was picking on him. Maybe this is a good thing. Maybe we can finally resolve this issue head on.

We are expecting a snow storm today. We should be getting somewhere around 8 inches of snow with blowing winds. It just started to snow.