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No kidding

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Life has been busy the last couple weeks with the holiday season rolling in and working full-time. I will be working every day this week except Christmas day. Although I like my job, I am not looking forward to this week since I will be working the next 6 out of 7 days.

I had this weekend off. My uncle and cousins flew into town from Texas to say good-bye to my mom. We were told this past week that the nurse was considering putting her on hospice tomorrow. She had a UTI over the past couple of weeks that speeded up her trip downhill. I kind of blamed myself for that, although I know it’s silly. The times I took her out of the assisted living facility I had to help her with the bathroom and I told myself I didn’t do something right. Why do we tend to blame ourselves for things outside of our control? I realize it’s foolishness.

Now my mom is struggling with daily activities more, like walking. My mom was always physically active so it is hard to see her like that. The dementia is starting to ravage her body now as much as her mind. She still knows who I am, but she just repeats nonsense words. She kept saying no kidding over and over. But her voice was so quiet I had to go closer to hear expecting something meaningful, but just to get a no kidding. The rest of the time she just blankly stares at me.

No one knows what to say when they don’t feel like there is anything they can do to change the situation. I just feel this nagging sadness and overall numbness right now.

No kidding.

A harsh winter is on the way

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Just like that, the holiday season has begun. Winter weather came along with it blowing its harsh cold winds. We have snow on the ground and had a few days of subzero wind chills.

We hosted Thanksgiving here which turned out being very busy with a total of 18 people. The weather was very cold and I am thankful Angel and Paul decided not to run the Turkey Trot in order to help me out more. I didn’t ask them to forgo the race to help me, but I couldn’t have done it without their help. They helped me pick up my mom and Matt to bring them to the party. I didn’t know it yet, but my mom’s health had declined since I last saw her.

I dished up my mom and Matt’s food, giving my mom easy to eat foods and Matt whatever he wanted. My mom didn’t even notice this time when Matt ate foods she wouldn’t let him eat. This was confusing to Matt. He didn’t understand why he didn’t get angry when he ate foods with gluten. He asked mom if it was okay and she didn’t respond. I told Matt that God had healed him and now he can eat whatever he wants and be fine. Matt said some day mom would be healed when she goes to heaven. Matt said he would have lots of energy when he gets to heaven and that he would be able to run very fast. Oh, to have the faith of a child and be ignorant of everything around me.

My best friend’s family also celebrated Thanksgiving with us. The youngest member of their family arrived in late summer. I spent some time holding the new baby and feeling jealous of my best friend who now has 4 grandchildren and another on the way. I spent the weekend after Thanksgiving working and this past weekend we had our first Christmas party with my mom’s siblings and their families.

It was a difficult family party because everyone there spent some time saying good-bye to my mom. It will very likely be the last Christmas we spend with her. My mom didn’t talk a lot but when she did it didn’t make much sense. She told everyone she died on her birthday. And in some way she sort of did. Back in August, she was angry with me and agitated she wasn’t in control. Now she doesn’t seem to even care. She needs help going to the bathroom and even eating. We had a heck of a time getting her in and out of the vehicle. I wasn’t even sure we would be able to convince her to go anywhere.

My mom is almost gone now. The family has been coming to say their good-byes. I’m going to try to see her as much as I can before she is gone. In many ways, I wish we knew what was going on much sooner. Maybe we would’ve been less frustrated with her inappropriate behavior. I can’t pinpoint when my mom first left us, but she has been gone for several years now. It started so gradually, but now the time is going fast.

Visits to the ER

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Over the past week, three family members went to the ER. Four, if you consider I work in the ER.

The first one to go was my mom. I received a phone call from the assisted living facility saying my mom’s face and lips were swollen. It appeared she was having an allergic reaction of some sort. They wanted to know if I could pick her up and take her. Because I live about an hour away, I declined as I thought she would need to go in long before I was able to get there. We are not sure what caused the reaction, but she was able to be treated and released. They did notice swelling in her legs too which caused them concern about her heart.

The second one to go to the ER was Arabella. It was dark outside and she twisted her ankle as she fell into a large pothole in the driveway of her boyfriend’s apartment complex. She was having a hard time walking and thought maybe she fractured her ankle. Just a week before, she also fell at work. She was wheeling a high chair back to where it belonged when it got caught in the carpet. She fell against the high chair into a wall. Not only did she have fresh bruises, but she had bruises from another fall a week before. The ER team gave her boyfriend suspicious looks, but he had nothing to do with it. She ended up with a sprained ankle.

The third one to go to the ER was my dad. He fell and by some urinary symptoms he was having, they thought he had another UTI. He ended up being admitted into the hospital. In the process, they found a large mass on his kidney which most likely is benign. My dad was weak, confused, and needed IV antibiotics. If I was close to my dad, I would’ve been there even if it was a long drive and I had to take off of work. But I’m not. I didn’t even tell my kids because they wouldn’t care. It’s harsh, I know. In normal families, there would be crying, prayers, and support. I see this all the time in the ER. And I also see people who through their own actions have pushed everyone away like my dad did.

My dad is back at the assisted living facility.

Because of the parent I am, I know I won’t be dying alone if I’m spending my last moments in a hospital. Maybe there is justice to reaping what you sow for better or worse.

Mid November update

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As of right now, we are keeping our heads above water. Life has settled down since the last time I wrote. Alex is more stable. He has been seeing a therapist which is something he was vehemently against in the past. So that is a step in the right direction I guess. He has been a man of few words, at least with my husband and I anyway.

My brothers and I started the process of cleaning out our parent’s house. What an overwhelming task! The one time we got together we barely made a dent in everything. I’m not sure when we are going to be able to get together again to go through everything.

In the meantime, Paul and I rented a huge dumpster for our own house. We got rid of the couches the dogs chewed up among other things. We are not going to be leaving a huge mess behind for our children to clean. It feels good to purge, clean, and declutter. Today I dropped off a trunk load of previous treasures to the thrift store. Some of the items I got rid of were gifts from Alex’s old girlfriend. It was time as they broke up over a year ago. And guess who ended up working at the thrift store and taking in my donations?? Alex’s old girlfriend! I wonder what she thought when I was getting rid of the stuff she gave me, like the cat cookie jar. Or the dress I let her borrow to wear for my daughter’s wedding. In an odd way, it really felt like closure to me.

My husband just accepted a new seasonal position doing tax work. He also decided to start a new career this year. Right now he has been diligently studying and learning everything he can.

I started taking medicine for high blood pressure. I feel old now that I am into my 50’s. But most of the time I don’t care as much about things that I used to think were important, so it evens out.

We suffer alone together

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And so it begins again. This time with a different child.

Five loud raps on the front door, and the baying of the hounds. Something seemed wrong, but I couldn’t tell if I was awake or dreaming the whole thing. I heard his voice, arguing with someone. What is going on I thought as I dragged myself out of bed and towards the door.

The police were here, my son pleading with them he was fine and they should leave. He saw that I was up and became angry they woke me up. What is going on? Why are the police here in the middle of the night? The officer said they were here for a welfare check on my son. Someone called to tell them my son was planning on ending it all that very night. Alex was arguing he was fine and didn’t want their help. I ran to the bedroom to wake up my husband.

He wasn’t fine, my son. He was drunk and suicidal. I took him aside in another room as my husband spoke with the police. He told them he would stay with our son. We spent the next hour and a half listening. My son said he couldn’t do it anymore, live. He spent most the night curled up on the floor sobbing.

He was scaring his friends. Getting drunk and walking in the middle of the road at night. Wanting to borrow a gun. Talking about death and loneliness. They didn’t know what to do. Some contacted us, someone called the police, and most just walked away. I went to bed. My husband stayed up all night. Alex fought and made it through the night but missed his work meeting in the morning.

I had a restless night’s sleep and got up for work like usual the next morning. I didn’t tell anyone or talk about it because these kind of illnesses no one brings a casserole for. He was embarrassed and ashamed of his fight with the demons no one else can see on the inside outside.

Through this we suffer alone together.

He lost his job last week. Fired.

We long for the best and fear for the rest.

I hope he can hear our offerings over his cries for help.

Fall update

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It’s hard to believe we are into October already. We have been enjoying unseasonably warm temps up until today so it was easy to deceive myself otherwise.

I have been at my job for half a year already. Three more employees started working after I was hired so I guess I am not really the new person anymore. My old perfectionistic workaholic ways are catching up to me. I haven’t called in or taken a day off yet, instead I’ve been picking up extra hours and working overtime. I’ve already climbed to a position of respect amongst my co-workers. The management still sucks though, but for now I’m staying. I really like the chaos of working in an ER setting.

Arabella had her day in court and her felony charges have been dismissed. She is off probation and head over heels in love with her new boyfriend. It seems the feeling is mutual. I have a feeling she will be moving out in the next couple months.

Angel will be heading out of state this weekend and won’t be home until the holiday season. While she was back home, her husband rescued a stray kitten hanging around their camper and now they have two cats. I finally set up the graduation trip with my daughter. Back in 2020 when Angel graduated from college, we told her instead of a gift or money, we would like to make memories and take a trip with her. Well, I guess I don’t have to tell you how that turned out back in 2020. Finally I planned a trip for next March with my husband, and Angel and her husband. The most exciting thing is that it is a mystery trip. Angel gave me ideas and I am planning a big surprise.

On a sour note, Alex and his girlfriend broke up. She was seeing other guys behind his back. One night when Alex was playing at a gig out of town, Arabella and his girlfriend went out. Once again, Alex’s girlfriend got really drunk and this time hooked up with a random stranger at the bar. She told Arabella not to tell her brother about it or about her still seeing other people. She told Arabella if she did, she wasn’t going to be her friend anymore and would never see her again. The next evening Alex’s girlfriend was hanging out with him at our house when Arabella came home from work and told her brother everything. Alex took the break up really hard and is really struggling right now. Thankfully instead of closing himself off, he has been open and talking to us.

Paul is just finishing up his summer seasonal job and is toying around with the thought of working a winter seasonal job. Today I spent my day off washing windows and getting everything ready for winter. Soon will be the great purge of getting rid of the old and bringing in the new. Soon we will be going through my parents house and starting to empty it out. It feels good to empty myself of the garbage in my life.

The fall, winds of change

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Even though autumn is my second favorite season, I always feel sad to see the end of summer. I don’t feel like I enjoyed summer as much as I should’ve. The end of summer brings another change, and not just with the seasons.

Tomorrow Arabella has her last court date. After two years, she will now be off of probation. She spoke with her lawyer, and told him she has since been diagnosed with schizoaffective disorder. Hopefully she will be able to have her charges dismissed. Her crime was classified as domestic abuse, without consideration she was in a manic state with psychosis. She didn’t have the diagnosis at the time of her criminal offense, her mental illness was just beginning.

The first couple months out of jail was a rough ride, but once she finally got a proper diagnosis with the proper treatment she has become the daughter I’ve always wanted her to be. Perfect, no. But finally getting her life back together. She has been holding down the same job for the past two years. My son Alex recently told Arabella he forgave her for hurting us and his hatred towards her. She is a different person now, a better person who wouldn’t think of hurting anyone. This past week she started dating someone new. He seems like a nice guy.

Alex starting dating someone too. He is with Arabella’s friend, the girl who went to rehab a couple months back. This past weekend Alex was playing with his band. By the time Paul, Angel, and I got to the show his new girlfriend was wasted. She was hitting on everyone. She met Angel for the first time and it didn’t go well. Angel tried to tell her she was Alex’s sister but Angel thought his new girlfriend saw her as competition. This girl was drunk and out of control in front of Alex while he was playing. At one point, she could barely walk so we sat her down with some water.

When Alex got done playing, he was upset and wasn’t sure what to do. We thought perhaps their relationship would be over. The next day, Alex told us he gave her an ultimatum. He told her if she wanted to be with him, she had to stop drinking. He told her in return he would quit drinking too. I have been really concerned lately about my son’s alcoholism. Since he started with this new girl, both of them took drinking to a whole new level. She wanted them to do shots first thing in the morning. He has been black out drunk several nights in a row for weeks, maybe longer. I don’t always see it.

It won’t be easy to turn away from alcohol in our culture. When Alex plays, fans often buy the band drinks and shots. The last week or so his eyes were opened. While playing he had the opportunity to see what hard core alcoholism looks like, how it can destroy people and relationships. He said with or without his new girlfriend, he was going to give up drinking because he doesn’t want that to be a part of his future.

I see a lot of change in the air.

Assisted living

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I scheduled an appointment to visit an assisted living facility with my parents after my mom’s birthday in early August. They had two immediate openings for two rooms next to each other with a shared bathroom. They were willing to take both my mom and dad, although my mom needs memory care and my dad has a physical disability. We jumped at the opportunity. Finally a windfall!

My aunt threw a birthday party for my mom on her birthday which I attended. My mom expressed anger with me at her party for allowing my brother, whom I am guardian of, to have an unrestricted diet. It was all very awkward, being reprimanded by my mom in front of everyone in a public place. I told my mom we could talk about it later but at the moment we were there to have fun and celebrate her birthday.

My SIL also threw my mom a birthday party at the family cabin. It would probably be the last time she goes up to the cabin and maybe the last birthday she will be somewhat cognizant for. That in and of itself was depressing. Once again, my mom expressed anger towards me about Matt. I helped Matt make a plate of food for himself and my mom took half the food I put on his plate and threw it in the garbage. She was upset I forgot to bring his applesauce for him to take his pills. I also forgot a few other things I had no idea she wanted me to bring. She was so upset she wanted to leave.

Then last weekend arrived, the weekend my parents were set to move in. On Saturday we went up north and closed down the cabin for the season. Then my brothers and I sat down and talked for several hours about the plan going forward. What are we going to do with the house, cabin, their vehicles, finances, cleaning out the house, etc. My brother Luke said he was living off his faith to get through it. I said I was burning off my anger. It’s hard to have to grieve your parents while they are still alive, even more so because my relationship with my parents is complicated. I feel a lot of anger about how I was treated in the past and how the mess they made, we are going to have to clean up. Because of their hoarding tendencies, I think it’s going to take years to clean out the house. I hope I am wrong.

Then moving day came along. We went to my parents house to load up some of their belongings. My mom kept grabbing things to put in boxes. My SIL took them out and put them back. I decided to go outside with my mom to keep her out of their hair. My mom wanted to take a walk to her church down the road. I was the last one to walk with my mom down the only road that I could remember her living on. My mom stopped along the way to pull out weeds along the ditch. She carried them over to to a grassy area on an uneven pathway. I was afraid she might lose her step.

When we got to the church, mom wanted to walk around the cemetery and talk about people who died. I saw the gravestones of my ancestors and familiar names. My mom asked if I knew them, the graves of my great-great-grandparents. I said I did, but I didn’t really. I softly cried on the walk. My mom was always a fast walker, and I had to struggle to keep up. But this time she shuffled along and I was afraid she might not have the strength to make it all the way back.

This time my mom was kind towards me, almost childlike. I watched her say good-bye to her house, the only house I’ve ever seen her live in. The grief slipped from anger into sadness. My mom is gone now. She is leaving more and more every day.

17 thoughts

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This summer has been very busy and unfortunately I haven’t been able to set aside as much time as I would’ve liked for writing. Here is a summary of what has been happening which may or may not lead to future posts about the events.

  1. My mom’s POA was activated after a diagnosis of frontotemporal dementia.
  2. I set up a tour for my parents of an assisted living facility. They will be moving in this weekend.
  3. My brothers and I will be meeting over the weekend to make some hard decisions about what to do with my parents properties, vehicles, belongings, etc… As my parents are hoarders, this could take more than a year to straighten this mess out.
  4. I am still dealing with guardianship issues with my brother Matt in terms of his finances and health. My mom has been very angry with me that I am allowing him to have a diet with no restrictions. There will probably be more about this in a later post.
  5. Arabella broke up with her boyfriend. It was more of a mutual breakup and they left on good terms.
  6. Arabella has less than a month of probation left.
  7. Angel and Dan moved their camper from North Carolina to Indiana. They are doing great, but it’s been an adjustment this year not seeing them often.
  8. Paul had genetic testing done for cancer. On the test, 76 out of 77 screenings came back as normal. The other was neither negative or positive as they don’t have enough info to be certain if it’s a problem area or not.
  9. Our dog jumped the fence and was missing for 24 hours. We looked for him everywhere. We thought he was a goner until the following day when I came into the house to find him laying on the couch like he never left.
  10. The dog ran away right before I had to leave for work. That day I went in late. I left a message for my supervisor who didn’t bother to ask if we found our dog. I think that was the point where I started to despise my supervisor. The company I work for and the management really suck as I’ve seen them screw over the employees. This left me in a hard spot. I really like my job, the people I work with, and the patients. But is that enough for me to stay with a company I have no respect for because they don’t take care of their employees.
  11. Talking about employees, a previous problem employee of ours when we ran our company was convicted of felonies which landed her in prison.
  12. For the first time, I was called to go in for jury duty and was selected to be one of the jurors for a felony case involving the se#ual assault of a child.
  13. I decided to have three rings resized that were a gift from my mom when I was in my 20’s. It means a lot more to me now that my mom is ‘gone’.
  14. My son moved back into the house. He is doing really well as a musician, having a full-time job, and starting a business on the side. But in other ways he is not doing well. Like his dad, he struggles a lot with his drinking. At least at this point he is acknowledging it’s an issue he needs to work on.
  15. I really think that now is a good place to end my memoir. It’s been six years since I started it. I even finished it at one point, but life kept happening.
  16. The bar I made my stand up comedy debut in shut down. There are other venues I can try out though.
  17. There are so many things I probably forgot about…

The appointment, part 2

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July was the month of appointments, none of them mine. Matt had an appointment scheduled for his physical. I had a long list of questions to take with me. My mom never allowed anyone to take part in Matt’s care. She wanted full control and everyone had to do what she told them.

I expressed concern to the doctor how many supplements Matt was taking along with his medications. Matt was even taking a multi-vitamin with iron, although he had no medical purpose that I knew of to be taking it. I asked the doctor if Matt should be taking dozens of supplements. Was it possible his previous liver issues were due to taking too many supplements? The doctor said it was likely.

Then I discussed with the doctor the strict diet Matt was on. I told her I would like Matt to try a diet with no restrictions. The doctor asked Matt if he would like to have some ice cream. I told her Matt has no idea what ice cream is because he never had it before. As kids, we never drank milk. There were many foods Matt never had before. I wasn’t sure how his system would respond to a new diet. I was fearful he might have an allergic reaction of some sort. The doctor decided to draw some blood just to check if Matt was deficient and needed vitamins.

The blood draw was difficult for Matt as they couldn’t find his veins easily. The doctor said she could order allergy testing and even a brain scan to see what was going on if I wanted. But I told her I didn’t want to do anything invasive to Matt if what we were doing was working for him. His anti-psychotic meds are working. I didn’t feel the need to do a brain scan to prove he has schizophrenia or another disease or disorder.

The doctor told me the group home called her and pleaded with her to talk to my mom about Matt’s care. I went home and cried. I was overwhelmed with sadness that Matt was forced to live this way for so long with no one stepping in to tell my mom she was going too far. I came to the conclusion that he wasn’t sick, she was. It rang Munchhausen by Proxy warning bells in my head. It made me question everything I ever believed, everything she taught me as truth. I felt anger towards my mom for the abuse. I am so ashamed of my family. I feel nothing but disgust, yet I have to be the bigger person to make the decisions about everyone’s care. Was I making the right call??

Weeks passed, Matt started trying new foods. He ate ice cream cake for the first time at 49 years old. He really liked it. He didn’t have a reaction to it at all. Then he tried pizza. My mom found out that Matt was off his special diet. She became very angry and yelled at the staff member who gave it to him. I was afraid something like that would happen.

The last time we visited Matt he looked happy. I have more compassion towards him. I feel sad I couldn’t have changed things before. But my mom was the guardian and wanted to be in complete control. I couldn’t do anything about it before, but I can now and I am.