schizoaffective

The fall, winds of change

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Even though autumn is my second favorite season, I always feel sad to see the end of summer. I don’t feel like I enjoyed summer as much as I should’ve. The end of summer brings another change, and not just with the seasons.

Tomorrow Arabella has her last court date. After two years, she will now be off of probation. She spoke with her lawyer, and told him she has since been diagnosed with schizoaffective disorder. Hopefully she will be able to have her charges dismissed. Her crime was classified as domestic abuse, without consideration she was in a manic state with psychosis. She didn’t have the diagnosis at the time of her criminal offense, her mental illness was just beginning.

The first couple months out of jail was a rough ride, but once she finally got a proper diagnosis with the proper treatment she has become the daughter I’ve always wanted her to be. Perfect, no. But finally getting her life back together. She has been holding down the same job for the past two years. My son Alex recently told Arabella he forgave her for hurting us and his hatred towards her. She is a different person now, a better person who wouldn’t think of hurting anyone. This past week she started dating someone new. He seems like a nice guy.

Alex starting dating someone too. He is with Arabella’s friend, the girl who went to rehab a couple months back. This past weekend Alex was playing with his band. By the time Paul, Angel, and I got to the show his new girlfriend was wasted. She was hitting on everyone. She met Angel for the first time and it didn’t go well. Angel tried to tell her she was Alex’s sister but Angel thought his new girlfriend saw her as competition. This girl was drunk and out of control in front of Alex while he was playing. At one point, she could barely walk so we sat her down with some water.

When Alex got done playing, he was upset and wasn’t sure what to do. We thought perhaps their relationship would be over. The next day, Alex told us he gave her an ultimatum. He told her if she wanted to be with him, she had to stop drinking. He told her in return he would quit drinking too. I have been really concerned lately about my son’s alcoholism. Since he started with this new girl, both of them took drinking to a whole new level. She wanted them to do shots first thing in the morning. He has been black out drunk several nights in a row for weeks, maybe longer. I don’t always see it.

It won’t be easy to turn away from alcohol in our culture. When Alex plays, fans often buy the band drinks and shots. The last week or so his eyes were opened. While playing he had the opportunity to see what hard core alcoholism looks like, how it can destroy people and relationships. He said with or without his new girlfriend, he was going to give up drinking because he doesn’t want that to be a part of his future.

I see a lot of change in the air.

POA

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Last week my mother’s power of attorney was activated as I surmised.

The neurologist gave my mom the diagnosis of frontotemporal dementia (FDT). We suspected that was the case, but the confirmation from the doctor hit me hard. That did explain a lot of my mother’s bizarre behaviors over the last several years, like sending my daughter a picture of her ex on her wedding day. The other symptoms I noticed were narcissism, jealousy, obsessions, hoarding, being melodramatic, and saying hurtful and rude things. These are the symptoms that started first before the memory issues and confusion started. It all makes sense to me now.

It’s hard to say where my mom ended and this horrible disease began. How much of my pain and anger towards her were for something that was not even something she has any control over. The disease has been progressing quickly over the last several months. My mom can go from hating on me to love bombing me within minutes. It’s hard to be around her for long periods of time because it’s depressing seeing this disease ravage her mind. It’s difficult to not feel frustrated and annoyed.

I have been feeling a lot of sadness and grief following the diagnosis. It’s hard to see the goodness in life right now. After doing research on the disease, I found that there is a strong genetic correlation between FTD and schizophrenia. I am not sure if my mom’s family suffered from this. When my mom was a teenager, her mother died in childbirth. After her mother’s death, my mother and her siblings fell out of contact with her mom’s side of the family. My mom outlived her mother and oldest sibling by over 25 years, so we really don’t know.

Out of the eight siblings, my mom has a younger brother and sister with similar personalities/symptoms. Her sister with similar symptoms has a daughter with schizophrenia. My brother has schizophrenia and my daughter has schizoaffective disorder. I would say my chances of getting FTD are very high. My dad’s side of the family has a high rate of dementia as well.

I asked the doctor if I should get tested. She said testing would do no good, it is something I have no control over and something that cannot be cured. I am terrified of what I could become. If there is a silver lining…or gray matter…my family can be prepared in a way we weren’t with my mom. I just don’t want them to have to live that way.

Middle of May update

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The clock keeps on ticking and time seems to fly by. Today is Arabella’s birthday and I have the day off of work. We’re planning on getting our nails done and going out to eat.

Life has been eventful as of late. I ran into an old friend of Arabella and they reconnected which lead to a whole bunch of excitement. Let’s just say that several nights were spent drinking. Literally whole nights where I woke up in the morning and they were still up. Arabella’s friend was doling out shots the whole night and come morning she was totally wasted along with my son. Through their intoxication, they realized they were totally in love. Arabella and her boyfriend were trying to talk both of them to go to sleep and figure things out later when they were sober. I awoke to Arabella’s boyfriend yelling at Alex.

Alex could barely walk as I walked with him to his room. I’ve never seen him so drunk. He had to perform in his band later that evening. By this time I was fed up with the whole lot of them. That evening was more of the same. Arabella’s friend was flirting with much older strangers talking them into giving her cigarettes and buying her shots. Paul had enough of it and ended up confronting the girl and telling her she was no longer welcome at our house unless she got her drinking under control. She already has been cut off by her family and has an ignition interlock device on her car from drunk driving. I hope she gets some help and figures her life out.

This was the first time Paul told someone they were not welcome here due to their drinking. Believe me when I say her drinking was pretty out of control for Paul to say that being a drinker himself. We were both afraid it would jeopardize Arabella’s recovery and if she started dating Alex the relationship would be toxic to say the least. They probably would both take their drinking to new heights.

We were sad to see Arabella’s friend go. Arabella doesn’t have many friends and this girl has been a good friend to her in the past. The rest of the weekend was pretty mild compared to this. Mother’s Day was almost uneventful. Paul and I took my mom and Matt to her church. My mom and brother displayed inappropriate behavior both passing gas several times in the pew. My mom was very confused. She couldn’t seem to reason that she needed enough room for 4 people to sit. But in some ways I enjoyed going to my childhood church. One member said I look more and more like my grandma the older I get. It made me feel good to receive that compliment and to be around people that remembered family long dead.

The rest of the time with my mom was stressful and I couldn’t wait to leave. She was confused about her medication. Earlier in the week I received a call from my dad who said that she took too many pills and ran out. She gets angry and emotional easily. Her food hoarding has gotten out of control. She wanted me to reimburse her out of Matt’s account (I am now his guardian) for over $200 worth of food which included 8 bags of gluten free flour and a dozen containers of breading.

Some good things did happen so far this week. I met with my therapist who said I am in a good spot and after almost a decade said I didn’t need therapy anymore. I saw a quote recently I thought applied to this which said that as someone with Complex PTSD we don’t need to know how to survive trauma and pain. This is something we are used to dealing with skillfully. What we need is to know how to handle joy and happiness, something I never learned how to do. It really resonated with me.

Over the next couple of days, I am looking forward to spending some time with Arabella for her birthday. Alex’s band is playing outdoors this weekend. Early next week Angel and her husband will be back home for a couple weeks.

Spring’s new start

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I started my new job yesterday. For the rest of the week I will be working remotely doing a new employee orientation. There are 60 some other people in the class with me. This will be the biggest company I worked for. I never thought at 50 I would be starting a new job in the healthcare industry, but here I am.

Since I last wrote, I took my mom to two of her appointments. At the appointment with the psychiatric nurse, I requested my mom to be taken off a medication that is hard on the brain as requested by the neuropsychiatrist. The next appointment was the first appointment with the neurologist. The neurologist seemed very concerned about the condition my mother is in. She only answered 11 out of 30 questions correctly. She was unable to think of any current events. She told the doctor we were going out to eat afterwards as the current event. The appointment lasted close to two hours. It was stressful to see how poorly my mom answered most of the questions. The doctor also said my mom had a movement disorder typically seen in the later stages of Alzheimer’s. Then the doctor ordered another slew of tests starting with a MRI.

Afterwards, my mom took us out to eat. Paul picked the restaurant as a reward for helping her keep track of Matt’s financial records. I felt bittersweet in the moment. I tried to enjoy the time with my mom but the doctor’s words rang in my head to start looking at care options soon. Her condition is not going to improve. In fact, quite the opposite is true. After going out to eat, we visited Alex at work in the music store.

The doctor said I should make sure my mom is taking her medication correctly when we got back to her house. Her pills were a mess. She had only one pill container where she put both AM and PM pills into it. I tried to help her straighten everything out but this only made her angry. She yelled at me to just leave her alone, but later apologized. I called her doctor as well because she was taking a lot of supplements and I was concerned. The whole experience resulted in another trip over with a new pill sorter with AM and PM slots and the removal of some supplements she was taking way too much of.

The trips to the doctors and bad news really took an emotional toll on me. I felt more empathy towards my mom than usual once I realized how sick she was. At the same time I felt conflicted in my mind over how toxic and difficult our relationship has been. Not everyone has close relationships with family they need to caretake. Something to be mindful of when I work in the ER.

By Friday I was ready to get out of town and make the drive to Milwaukee to see Alex’s band perform at a brewery. The venue was packed, and not just with people. There were a lot of dogs inside, kids running around, and someone even brought their pet pig. A younger man even brought his puppy over to me to hold. They said animals were allowed in the brewery because they didn’t sell food inside. However, they had food trucks set up outside and you could bring food in.

Paul and I stayed in a German Inn. The building was a hundred years old. We ate German food there and each had a flight of German beer. Everything was excellent. Then we took an Uber to see our son’s band play. I am so blessed to have two children who are very talented musicians. It’s amazing to see an audience adore them. We had a great time watching the band. Then afterwards we went to the bar with the band. We didn’t get to bed until 2 AM. I felt bad in the morning because we were probably really loud coming back to our room as I could hear the other residents awake early in the morning. It was a nice little getaway before work started though.

This weekend we will be seeing Alex’s band again and going to a film festival. I only work half a day on Friday and then I am going to get my 7th tattoo. I am getting outrunning my demons tattooed on my leg. This is something I was planning on doing once I finished my memoir. (Although, at this point, I can’t guarantee it is 100% done). However, this Friday would’ve been my grandma’s 100th birthday. As the most positive influence in my childhood, and the reason why I am here today (both literally and figuratively) I am also getting a tattoo on her birthday in remembrance of her.

My grandma passed away 16 years ago already. I am going to throw her a party by lighting every candle in my house surrounding her pictures, watching old family videos, and just sharing stories and remembering the good times with her. I am going to make cookies using her recipe because every time anyone would visit a jar of cookies would be waiting for them to take home. I want to say I will be making her favorite foods, but I really don’t know what they were because she would always make my favorite foods.

This past week I experienced a lot of ups and downs. The sadness of my mom’s deteriorating health. The joy of watching my son play in the band. A small getaway. Starting a new job in a new career. Not having the time to care for others as much with the start of a full-time job. I’m not sure if this is good or bad yet. Arabella had her doctor appointment today. This was the first appointment I didn’t go with her to in over a year. The doctor switched up her meds a bit. He also put her on a weight loss drug as her anti-psychotic meds are making her gain a lot of weight. But guess what? She managed going without me. It’s going to be a lot harder with my mom. But maybe other people need to step up and worry about it, not just me.

March on to the end

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Life has been pretty quiet since last week. I still have my thumb bandaged up and will be seeing the doctor tomorrow for a follow up. I never realized how much I used my thumb before. I haven’t been wearing pants with a zipper and a button because what happens if I need to go to the bathroom and struggle with limited use of my thumb. Unhooking my bra strap. Tying shoes. Opening pill bottles. Cleaning to name a few… I hope it heals quickly, but I am not sure my nail will ever look the same.

I start my new job in a week and a half. I still haven’t gotten my schedule yet so I have been hesitant to plan anything. Thankfully my mom has her neurology appointment set up for next week so I should be able to take her. I will be working 4 days a week and every other weekend. I am content with this schedule as it will leave me a couple days off during the week to volunteer and take family to doctor appointments. But before I start, I need to go through 6 weeks of training which might be either in person or online 5 days a week Monday through Friday. So until I find out more, I wait.

I am starting to make some headway with transitioning over as Matt’s guardian. For the past several years, my mom has struggled with financial tracking and balancing Matt’s checkbook. She has been paying all the bills and I want to transition over to a payee. Thankfully, my husband has been helping her with this and has been wonderful with the financial end of things. He has been an enormous help with record keeping which I need to set up a payee through the county. He was able to answer questions I had no clue about. The whole process to set up a payee will take 2 months. In the meantime, I need to pay all Matt’s bills without a lot of information on how to do it.

Also, the county has been marvelous to work with as well. Over the decades, I heard a lot of negative things about the county. However, I found the opposite to be true. They have been very diligent and supportive throughout the transition process. I’m starting to feel like everything is falling into place.

Arabella is continuing to make improvements. She is starting to wear makeup again. It might not seem like it, but it’s a big deal. She stopped wearing makeup over a year ago. She didn’t care much about her appearance and had no motivation to do anything about it. Plus her old anti-psychotic medication was making her hands shaky which made it almost impossible to do her eyeliner. I know it doesn’t seem like much since most of her peers are getting ready to graduate from college. I wish she could have a normal regular life too, but she does not. She is in a good place now and any proof of that is worth celebrating.

In the next couple days I am looking forward to: doing stand up comedy, having a game night with Paul, Arabella, and her boyfriend, coffee with friends (I want to try a coffee flight), volunteering at the cat rescue, and trivia night. I am in the process of finishing my memoir, which has been 6 years in the making. Next week I will be very busy tying up loose ends before I start working full-time. I have something going on every day.

February update

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I passed the proctored exam I needed to take to get to the next step of the hiring process.

It wasn’t an easy test and I was nervous about passing it. Starting a new career at 50 can be intimidating. Everything is so different now. I have yet to talk to an actual person about the position. Even taking the test was a whole new experience for me. The last time I took an important test was on paper with a number 2 pencil. I didn’t have a cell phone to lock up. I didn’t have to lift up my hair to show I wasn’t hiding any devices to cheat with. They even measured my wedding ring because if it was larger than a certain size, it would have to be removed.

I left the test site feeling out of touch. Most test takers were half my age. I had overdressed while the other test takers were wearing comfy clothes like oversized sweaters and jogging pants. My confidence dipped. Although I have a plethora of life experiences, I am not young and fresh with all the latest technology. But I have other things to offer. I keep telling myself that. It has been a month since I applied and I am still waiting. It’s been a week and a half since I filled out the background and credit check paperwork. I have no worries about that, but my patience is running thin as I check my email several times a day to see if I hear anything.

I just turned in all the paperwork to be my brother’s successor guardian. My mom’s functioning has continued to decline rather rapidly. She no longer makes a lot of sense when I talk to her. She has been forgetting to pay some of my brother’s bills on time. A week ago, Matt received a disconnect notice if his bills weren’t paid for his portion of the group home. It’s been stressful as my mom has been handling all of Matt’s finances and I don’t have any intentions of doing so. I would like to be more hands off. Matt’s roommates in the group home have a payee set up through the county and receive transportation for appointments. I would like to do that. He doesn’t live close by and with going back to work, I won’t be able to do everything.

Thankfully my mom has her neuropsychological evaluation next week. We have been waiting for months for this appointment. I wonder if there is still time for her to get treatment that would help her or if her dementia is too far advanced.

Meanwhile, Angel moved out to the east coast for the next couple months to be with her husband who is working there. Thankfully she is able to work remotely. They bought a camper to travel in for work. It’s an exciting adventure for them.

Alex got involved with a new band and he will be touring the west coast for a couple weeks this summer. He is planning on starting up a music studio and moving out. I wish I could travel coast to coast with my kids on their adventures. But it is not going to work out. That’s okay though. This is their time.

Arabella had her doctor appointment last week and she is on the road to recovery. She is still having some side effects from her meds, but continues not to suffer from symptoms of schizoaffective disorder. She still has her job and boyfriend. Life for her has been stable and that is all we are hoping for right now.

It has been very cold and snowy here as of late. I am ready for winter to end.

Blue Monday

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Apparently I forgot to cancel the trial and tribulations subscription in time for the new year. It’s been a rough start and I am feeling frustrated.

Some of it is the little things. This past weekend my son was performing with his band. As I was scooting my chair closer to the bar, I smashed my finger. I didn’t realize as I was pulling it in that the seat separated from the base. I sat down on my finger trapping it between the chair and the base with my body weight. Man did that hurt! My finger swelled up and was bleeding from under the nail. It still hurts a little and my finger is bruised under the nail, so I’m hoping I don’t lose my nail.

Or we can talk about today. Today I found a worm on my cat’s backside. I had to give both cats, under protest, de-wormer and deep clean their cat boxes. As I was cleaning, dirty litter box water splashed on my face. Fun times! As I was taking the dirty litter out to the garbage, the bag broke spilling dirty litter all over our walkway. I had to clean this up so the dogs wouldn’t get into it outside while the temperature was twenty below zero.

Then there are the bigger things. Like our investment falling through, from when we sold our business, that we were planning on living on the next couple years. Now I have to go back to work full-time. All the things I have been planning had to be cancelled, like our road trip out to Virginia to see Angel and Dan who will be living out there for the next couple of months. I applied for a job over the weekend. I think I have a good chance of getting it. I will need to pass a proctored exam to see if I will qualify. That was even a big process because I had to update my resume and all the stuff that goes into looking for a job. I will also need to pass a physical as the job is very active. Against medical advice I started running again.

The other big thing is that my mom’s health is deteriorating rapidly. It has become apparent that I need to take over guardianship of my brother Matt. That is not as easy as it would seem. I had to take an online class and fill out a whole bunch of complicated paperwork. At first, my mom refused to sign the paperwork to resign as guardian. She doesn’t think anything is wrong with her. She is trying to hide her dementia.

My brother Luke came home to try to figure out my parents finances. They have several accounts that are an absolute mess and haven’t been balanced in years. My mom is refusing help with her finances. Finally on Friday my mom signed the guardianship resignation letter. Luke and I went with my mom to pick up Matt from his group home. Then we stopped at the grocery store which was insanely busy. Luke and I were trying to help my mom shop with Matt. If you can imagine what it is like taking someone who has dementia and is confused along with someone with intellectual and mental illness. Neither have any awareness of other people. Matt almost bumped into someone. I had to pull him out of the way. Luke and I were very stressed out. I almost started crying in the store. But everyone was very nice and looked upon us with pity.

I have an appointment later in the week to meet up with someone from the county to see if my parents qualify for meals and in home care. I’m still in the middle of the whole guardianship paperwork process. That is also going to be intensive with the financial reporting, needing to meet with doctors and the case manager. My brother lives 40 minutes away so it is going to take a lot of time on my part to get everything set up.

Not to mention doctor appointments with my own daughter. Arabella is doing well on her new medication, but it is causing her to gain a lot of weight. At the last appointment, she gained 13 lbs in 6 weeks, so I’m not sure if she is going to go through another med change.

I have a feeling it’s going to be a long year.

almost to the end

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Over the weekend, we hosted a Christmas party with my mom, my siblings, and our families. We also attended a Christmas party with my mom’s extended family. There has been no hiding that my mom’s dementia is getting worse. She no longer recognized her brother-in-law, someone she knew since she was a teenager.

After the first Christmas party, my siblings and I had a meeting to discuss the current situation of our parents. Then we spoke to our parents about some of the things we discussed. I was very stressed out before the meeting. Thankfully my brothers and I are in agreement about how things should be handled. The biggest problem is that our parents are not in agreement with us.

My parents should not be driving. I’ve received several calls about my mom’s driving. She got into a car accident this year causing an injury to another person. Her friend told me she pulled out in front of someone without looking first and her friend came close to being killed. She also drove across her friend’s lawn and face planted her car into the ditch instead of using the driveway. When my brother asked her about her driving, she told us that she was a good driver. My dad can barely walk and doesn’t see well. They refused to stop driving or look into options such as assisted living.

The only thing they said they were willing to do was give me guardianship of my disabled brother Matt. Honestly, I don’t really want to do it. But I don’t feel like I have much of a choice. I told my brothers I was not going to baby Matt or give him special treatment which he is used to receiving from our mother.

I can’t stand even being at my parents house because the level of dysfunction and chaos is almost more than I can handle.

It’s hard not having any sense of control and just stand by waiting for something bad to happen before any changes are made. But I’ve been through this before recently when my daughter started developing a serious mental illness. When someone is an adult, it’s nearly impossible to intervene on their behalf if they don’t want your help.

Despite the stressful meeting, the holiday parties went really well. Everyone was for the most part nice and respectful. With the exception of a couple days, I’ve been in good spirits. I joked around and laughed a lot with my family when others around seemed to be rather down with all the bad news. Maybe it’s because I don’t care as much anymore about the things I can’t control, which is freeing. Maybe I’ve gotten used to living with suffering all around me and I’ve become desensitized. Or maybe it’s because I’m medicated. Life is just too short to take seriously all the time.

The most wonderful time of the year?

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It’s the most wonderful time of the year, or is it?

Just like everyone else, I’m getting into the hustle and bustle of the busiest time of year. I’m hosting 4 parties over the holiday season. I don’t really mind the decorating, the cleaning, set up, take down, or cooking all that much. As much of a planner and how organized I am, sometimes I don’t want to do all the planning. I don’t enjoy the menu planning anymore. It’s a ton of work trying to keep in mind everyone’s dietary restrictions and preferences.

Overall, Thanksgiving went well. But try as I might, I couldn’t get the menu right. Several people are gluten and dairy free. I tried to improvise by using dairy free butter and almond milk for the mashed potatoes versus regular butter and milk. But I found out that several people were almond free too. I had to set aside some plain potatoes for my brother Matt. My mom was constantly reminding me to set some aside for him. I was so annoyed as I had several foods I was preparing at once. She wanted me to mash his separately. I made sure at least one turkey was gluten free, as I had a regular and a smoked. Then I found out Paul’s step-dad’s fiancée couldn’t have turkey. Thankfully she brought some of her own food along to make it easier. But she ate something my mom brought which wasn’t GF and my mom didn’t tell her until she was almost done eating it.

The holidays are difficult in other ways. To me it’s a constant reminder of broken relationships and dysfunctional family members. This year my oldest two kids are not on speaking terms which is hard on me. There is a lot of strife with other family members. My dad is not a part of things because he is a horrible person. I think we all just do our best to tolerate each other which is not how family should be.

My mom’s cognitive functioning has greatly declined. Thankfully I have an appointment in the books for the end of February to see what is going on. It took months on the waiting list just to be able to schedule the appointment. I’m hoping she can hang on until then. I’ve been getting concerned calls from family and friends of my mom. My mom’s friend told me my mom went in the ditch at her house. As she was leaving, she drove across the lawn and into a deep ditch. She also said my mom didn’t even look before pulling out from a stop sign in front of somebody and they almost got hit. She said my mom was no longer a safe driver. She also said my mom needed to stop babying my disabled brother and my dad needed to get off the couch. The last two have been issues since I can remember.

I am hoping to sit down with my brothers over Christmas to discuss the care of our parents and disabled brother. I don’t want to be the only one making these calls and having all the responsibilities. I’m sure they would be willing to help, but they live further away and we don’t see each other often.

Other than that, I have most of my shopping done. My husband, our kids, and their significant others all made Amazon lists which made things really easy. So far everything went good with Arabella’s boyfriend meeting the family. By the end of the year, he will have met pretty much everyone. It’s so awkward to start dating someone right before the holidays. We like him, and he is absolutely crazy about Arabella. She is going through some major medication changes and she is responding well. Earlier in the year, I never would’ve guessed we would be at the point we are at today.

It will be interesting to see what the new year brings.

Riding with the changes

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I have been feeling uninspired as of late. I feel bored; which I guess isn’t too bad because it is a step above feeling melancholy. There is no immediate crisis, but change is in the air. I can’t tell if it’s good or bad or just is.

The past several days have been very summer like. It has been easy to convince myself that fall is way off into the future somewhere even though the calendar says otherwise.

Uncertainty and change are all around us. Who will our next president be? What kind of changes will that bring?

There have been some big changes in the business we are running and there is uncertainty which road to take. We are waiting in anticipation to see if our finances will change. If not, what kind of changes will that bring? My husband wrestles with wanting to retire and wanting to keep working indefinitely.

I have entered a new decade and my health has been changing.

My son and his girlfriend got new jobs. My son-in-law and daughter might be moving across the country for work for 6 months. I think it’s an exciting opportunity, but I will really miss them. They could be leaving within the month or not.

My parents are experiencing a great deterioration of their health. This has been problematic in many ways. I realized recently that my relationship with my parents has been very destructive and toxic. I sacrificed my young years, my best years, trying to help them because they needed me so much. I was more of their parent then they were ever mine. Looking back, I wish I cut ties with them decades ago. But I didn’t, and now I will never be set free. I will never have the relationship with them that I would’ve wanted.

My mom has been having memory issues, but refuses to admit anything is wrong. I’ve been seeing my mom in her raw form which is very difficult to see. She no longer disguises her extreme favoritism towards my disabled brother. She insists that the world needs to change around Matt instead of helping Matt adapt to the world he lives in which has been a huge disservice. She has placed her favoritism towards Matt over the safety of her children and grandchildren. Nothing is wrong with Matt or her, the problem is the rest of the world. Yet she seeks attention for being a martyr for taking care of my dad and Matt. It’s painful for me when others talk about their fond memories with their aging parents when the only thing I have to bring to the table is shame. There is a lot of uncertainty what will happen with my parents and brother in the near future.

Then there is Arabella. She is having side effects from her medication which have been hard for her to deal with. A couple weeks back I had to take her to the ER because of it. The doctor made a mistake and it ended up being a traumatic experience for both of us. Being on her medication has been a lifesaver, but not an optimal long term solution. Just keeping someone alive is different from being fully alive. Although a lot of troubling negative behaviors are gone, she is just a shell of the person she used to be. She used to be outgoing and fun loving. Now she spends her free time in isolation in her room watching TV. Her friends are gone. Her social interaction is limited to family and work. Her ex moved on and that has been hard for her. No one ever mentions how recovery is a lonely road.

Things have even changed on the blogosphere. Some of my favorite bloggers have fallen off the face of the earth. That feels like losing a friend. I have no intentions of leaving, although I know I’ve been too much of a stranger as of late. What is the purpose? Some days feel meaningless and it’s really hard to find motivation in that mind frame. I’m trying to just ride with the changes, although I’ve never been particularly good at that.