Siblings

Cabin chaos, part 4

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A couple of years back, Paul wanted to learn more about sailing. He signed up for a beginner’s sailing class. At the end of the class, the instructor suggested that the students buy a small sailboat to practice sailing. That is exactly what Paul did. He bought a 1960’s model 12 ft Puffer, complete with retro life jackets.

At the time, the sailboat seemed big. We took this boat up north and learned everything that we could on it. Since we bought a sailboat twice the size the following year, this boat looks so tiny. Now we keep this sailboat up north year round.

There were a few things that happened up north with the sailboat that were a little scary at the time. Now it makes for a humorous story.

We were up north for an unseasonably warm weekend in late September when Paul and Arabella decided to go for a sail. My mom was the one that alerted me of danger. A wind gust caught the small boat and tipped it over. Paul and Arabella were treading in cool deep water.

I couldn’t see them because the boat was blocking my view of them at first. I was worried that Paul got knocked out somehow. I feared that they were drowning or freezing to death. I tend to go through all of the worst case scenarios in my head. 

Paul said that they seemed to fall in slow motion. The biggest danger that they faced was losing the center board which he later secured.

I sent Angel and Alex out on a rescue mission in a paddle boat. I know what you are thinking. Really, a paddle boat?? Did that take a couple of months, or what? We didn’t have any other boats to send out. 

Meanwhile, under the stress of the rescue mission, Angel and Alex started fighting. I watched as my oldest two children started yelling, screaming, and swearing at each other over who had control of the paddle boat. The fighting escalated into pushing and shoving. Next thing I know, Angel was pushed overboard. Eventually, Angel and Arabella swam to shore and walked back to the cabin. I am glad we made sure that all of our kids are strong swimmers.

Paul and Alex struggled to bring the wayward boat back to shore. No lasting damage was done.

Too bad I didn’t get any pictures of that!

 

Cabin chaos, part 3

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After 50 years, the cabin became run down, bat ridden, and somewhat dilapidated. The roof leaked. The floor sagged under cracked worn flooring. Using the outhouse became outmoded as a commode. I really didn’t want to go up there anymore.

It was at this point that Aunt Grace decided to finance a major remodeling project. My brother Mark was the perfect guy for the job. He was good with his hands and was a very hard worker. When Mark was in middle school, he drew up a design for a water bed. He constructed the bed out of wood and spent the next 25 years sleeping in it.

Being the middle brother of my younger 3 brothers, Mark was almost invisible. Matt and Luke demanded almost all of the attention. Mark received attention and approval by working hard. He is the hardest worker that I have ever known. By the end of his teen years, he had already wrecked his knees and back from hard physical labor. Last summer I think he felt threatened when I told everyone that I was running a marathon. He told me that he bet he could run faster than me. He holds the title of family brawn.

Mark started to remodel the cabin in a process that took about 6 years. He managed the project and did a majority of the work despite living several hours away. He gutted out the cabin then put on new siding, new windows, redid the fireplace, and added an indoor bathroom. Once the old flooring was removed, we discovered hardwood floors underneath. Mark restored the hardwood flooring, put on a new roof, and put up dry wall. He also worked on the trim with precision and accuracy.

The most difficult thing he had to do was face his fears to get the job done. He braved claustrophobia, spiders, and rodents to squeeze in through a small opening to a crawl space. He needed to go underneath the cabin in a dark, musty, moldy dirt hole to reinforce the foundation. Plus, it was dangerous. If something went wrong, it could have collapsed and crushed him.

Everyone worked together as a team to complete the project, but almost all of the credit goes to Mark.

When Mark finished the remodeling project the cabin was magnificent.

 

Autism’s sibling, journal 2, part 3

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My mom said that Matt was a smart baby. He was speaking and knew the alphabet. Until he turned 2, that is. Then he quit talking altogether. Instead he screamed. He slept fitfully and had nightmares. For many early childhood years, Matt was nonverbal. Then something strange happened, he started talking.

Previous to the home bound years, my brothers and I attended the same grade school. I remember Matt being in the special ed room that was shared with the library. He spent a lot of time in the naughty box between the two rooms. He kicked and screamed in this box while the kids laughed when we went in for library. He also went out with us at recess. Some of the older girls mocked his bizarre movements and laughed at him. It made me very angry, but they were older and there was nothing I could do about it.

One day Matt told my mom that he didn’t like school. He said that the teacher was mean. He told us that she put him face down on the floor and sat on top of him. He said it was hard to breathe. The teacher also put him under her desk, then sat down squishing and trapping him inside. My mom asked me if this could possibly be true. By the time he could tell us what had happened, the teacher had already quit. The turnover was high and I am sure my brother didn’t help with that.

Matt was very hard to handle. He was so violent in the school setting that he had to be homeschooled for several years right around the time of puberty. We stayed at home 3 years, then Matt went back to school with me. My mom sent my youngest two brothers to two different schools. Some of the teachers at school gave my family a hard time for my autistic brother. They looked down upon us. Some of the kids weren’t much better. Like we wanted this? Or caused this?

When I came back to school my junior year, I was the first person in the school district to return to high school after homeschooling. They did not know what to do with me. They would not accept my transcripts from the accredited correspondence school. Some kids teased me by asking if I took off from school to have a baby.

After awhile Luke ended up going to high school with Matt. They graduated together. Mark graduated from a different school entirely. Matt took the short bus to school everyday. There was always a boy that would terrorize Matt on the bus. Sometimes he would get off of the bus with Matt and threaten to kill him. Mom was a little worried last summer that he would make good on his threat once he made parole for his violent criminal offenses.

After I graduated from high school, I came back to be Matt’s teacher’s aide. My best friend Shelly was his aide at school until she pressed criminal charges against Matt for assault when he pulled her hair. Matt was escorted out of the school in handcuffs. That was the end of Shelly’s employment and our friendship. The charges against Matt were dropped after his competency eval.

Then I was employed as Matt’s teacher’s aide for a short period of time. In the classroom, Matt had his own separate cubicle. Every time that I would try to get him to read or write he would grind his teeth and hit his head. Or sometimes he would hit me. He never did learn to read, write, or do basic math.

 

Autism’s sibling, journal 2, part 1

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Back in the late 1980’s, I was homeschooled for 3 years from 8th through 10th grade. This is a time of my life that I never talk about. There is a gap when I talk about middle school and high school. I don’t fill it in. It was a time of great isolation and introspection. As an introvert, I really didn’t mind. It was just difficult explaining the reason that I was homeschooled.

My autistic brother Matt’s behavior was so violent that they no longer allowed him in school. Instead the school sent a retired school teacher out to the house. He was likely to physically attack someone that tried to force him to learn. It took the patience of a saint to handle that job. Since my mom had to majorly cut back her hours at work, she decided to take my younger brothers out of school and homeschool them as well. My mom gave me a choice because I was older. But I didn’t really feel like I had much of a choice. 

In the late 80’s, a vast majority of the few people that were homeschooling were doing it for religious reasons. My mom joined a group of these women. The kids were all a lot younger than me. My mom signed me up for an accredited correspondence school. When two of my friend’s moms heard that I was leaving school, they dragged their kids out of school for a few months as well.

My friend’s mom cited religious persecution as the reason for pulling her youngest two children out of school. But I never thought that was true. To be honest with you, the kids were just strange. Yes, my friend’s older sister read the Bible over lunch period at school. But she was also the girl that I often saw standing in front of the class room blowing her nose loudly. Then she would stand in front of the class while the teacher was talking and pick her nose for another 10 minutes. It also didn’t help that she had red hair, acne, was overweight, had coke bottle glasses that made her eyes look like pins, and had an obsession with math. Her younger brother had similar social issues. The kids on the school bus took a scissors and cut the shirt off of his back. That was because every time someone said gosh or heck, he told them that they were going to hell. My friend, however, was relatively normal compared to her siblings. 

One time while I was staying at her house, someone drove by at night and threw a bottle through their front window. It is unfortunate how mean kids can be to someone that doesn’t fit in. I felt a little sorry for them yet at the same time felt embarrassed to associate with them. Even though Matt was teased a lot, he didn’t seem to realize it as much as my brothers and I did. My friend and I had having outcast siblings in common. Who knows, maybe they were on the spectrum too.

During this time, my mom spent a lot of time with her new friends. We went to Bible study all the time. When I wasn’t with my friend, she was at church or meetings at someones house which was basically church. We even went to church camp together for two summers. We had to wear pants at all times and weren’t allowed to swim. I had the opportunity to visit my friend while we were in Texas last year. I asked her if she still went to church. She said that she didn’t because she spent enough time there as a child to last her a whole lifetime. 

In the home bound years, my mom actively sought support from her new friends by taking an interest in their church groups. We even were able to be involved with the Amish community. I had the opportunity to go to an Amish wedding. How many people can say that they have done that? I think that at one time my mom was ready to leave the Lutheran church. She probably would have if it wasn’t for Aunt Grace. 

Then something happened to bring it all to a crashing halt.

Autism’s sibling, journal 1

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I love you Alissa. I am thankful the Lord has given you to me. You are a beautiful child. 

With Love, Your Mom XO

1/1/85

Had to clean my room before I ate. I ate at 8:07 PM.

6/19

I hate everything and everybody. Matt takes a knife and tries to poke mom’s eyes out. Mom blames me.

7/15/86

I hate mom. She only cares about the stupid Matt.

8/4

Matt tries to hurt our aunt. He is reacting to something he is allergic to. Luke pushed me into my aunt and uncle’s swimming pool with my clothes on. I had to ride home wrapped in a blanket.

8/19

Today Matt bit me. My arm will turn black and blue tomorrow. Mark stuffed a pepper up his nose. He cried and cried.

9/12

Mark got beat up by someone the day of his birthday party.

One last Christmas party

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This afternoon we will be going to one last Christmas party. It is for my mom’s side of the family. Unlike my dad who was an only child and only grandchild on one side, my mom comes from a very large family. We usually get together twice a year as a group. Collectively my mom’s siblings are hard working, average (not eccentric), and slightly neurotic.

The uncle’s house that we are going to today would fit into the above category very well. I am not sure why year after year they host the family Christmas party which usually attracts between 30 and 50 family members. My uncle is an extreme clean freak. I have never seen any clutter or anything dirty or out of place. Last year during the party, I saw my uncle on his hands and knees scrubbing the bathroom floor. I have a sneaky suspicion that my autistic brother may have missed the target. Years past, he has followed around his guests with a dust buster, vacuuming crumbs or any speck of dirt that they may have dragged in.

Last year we were at his house for the Packer game. When the game was over, he asked his guests if he could get their coats for them. The game is over, now get the hell out! His wife kindly suggested that he take the dog for a walk. After he got back, he seemed to calm down a little. I have another aunt that is also a clean freak. We went camping with her one year near her house when a huge storm came up out of nowhere. We were wet and cold. We ended up huddling in her garage. She didn’t want us to come in her house because we were too dirty. I guess that explains why I am slightly neurotic. It’s a family thing.

When we all get together, everyone is best friends. There is some animosity over some people getting more family heirlooms than others when their parents passed away. I imagine that this would be very hard to do fairly. One other thing about my family, they are very competitive when it comes to playing cards. I wouldn’t recommend a potential spouse of the cousins to join in a card game. Winning trumps being kind to each other in this one area. My mom just found out that her brother refused to go to my brother Mark’s wedding this past year because a couple of years ago he passed in a card game when he should have picked. God forbid!

I’m sure that we will have a good time today. Just stay out of the card games and don’t make a mess. Other than that, they are the nicest people that you would ever meet. There is a lot of laughter and fun.

A few minor Christmas detours

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I tend to be a black and white thinker. So I usually go into situations with really low expectations or very high expectations. When I go in with low expectations, I tend to have more of a negative attitude. This has earned me the title of pessimist, which I would argue that I am not. I tend to describe myself as a realist which is false for all practical purposes too because my expectations are not realistic. Most of the times it turns out in between. Some good, some bad. Which is still polar and I am back to thinking black and white again. I tried.

I placed Christmas within the high expectation category which can be disappointing if it is not perfect and what ever is? My daughter and I sang the duet O Holy Night for both Christmas Eve services. That went well. Christmas with the kids went really well the next day. Then Saturday morning we headed across the state to have Christmas at my brother Luke’s house. Expectations were high, I was in a good mood. Well, until we found ourselves on a country back road with the bridge out. There weren’t any detour signs or anything. Plus there was no cell reception at all to navigate or call for directions. We ended up on an icy gravel road that looked inviting to people seeking a place to hide a corpse. That should have been the first indication right there.

Despite sitting several hours in the car, all three kids got along great. Until we pulled into the driveway, that is. Then there was some bickering. We entered the house just in time for lunch despite the 20 minute detour. The kids weren’t terribly interested in helping unload the car. Paul ended up taking Alex’s cell phone away as he didn’t want to help after he unloaded his items. Alex got upset and locked himself in the bathroom. He refused to eat with us. Then it was time to open gifts, but Alex still refused to come out. Who would’ve thought? Then Alex felt too embarassed to come out, but eventually did. My 6 year old niece asked loudly why Alex was so upset over and over when he finally came out. This all happened while my brother Mark opened a gift that was a talking Darth Vader figurine that was bigger then my niece. His new wife exclaimed, “Where the hell are we going to put that?” My mom said that she had another one at home for them that she couldn’t fit in her car.

Other than a few snags, everything went really well. We had a lot of great food and played games all night. Mark got pretty drunk. For the most part everyone got along. No one got any sleep. Then we woke up and made our long journey back home. Only one more Christmas party to go before we can call this season a wrap.

A bright light on the darkest day

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Almost a century ago, in a very small town, my great-grandparents started a family business. They opened an automotive garage where they sold and fixed cars. They also had one of those old fashioned gas stations with two pumps and a wrecker service. They built a house next door to their business and had 4 children. My great-grandma passed away when I was five and my great-grandpa and great uncle passed away before I was born.

After serving in the military, Aunt Grace and Uncle Harold being single moved back into the family house to help run the family business. Their brother, my grandpa, moved down the road within walking distance. I never remember the siblings ever fighting.

Aunt Grace did all of the finance for the family business with some help from my grandma. Uncle Harold and my grandpa worked as mechanics. Today, on the darkest day of the year, was Uncle Harold’s birthday. But there was nothing dark about Uncle Harold. He was a very quiet, friendly man that loved to laugh.

Every year Aunt Grace would throw Uncle Harold a birthday party. It was always the same year after year. She would set the table with the best fiesta dishware that were stored behind the glass cupboard in the pantry. Everyone had a different colored plate that was used only once a year for this special occasion.  She would serve steak, baked potatoes, and a vegetable with coffee to drink, even for the kids. She had an old fashioned stove that she cooked on. It required her to put little pieces of wood into a fire on the left side of the stove. For dessert, we always had pineapple upside down cake. Afterwards, Aunt Grace made me help her do the dishes and clean up.

I didn’t see Uncle Harold a lot growing up. He was always working in the garage. I wasn’t supposed to go inside the garage much because I liked to wear shorts which Aunt Grace said was not proper attire for a young lady. But sometimes I would sneak in to buy a large glass bottle of soda for a quarter. My aunt and uncle were always up at 6 AM. Uncle Harold would eat breakfast then go to work. He would come in for lunch and they would both take a half an hour nap. Aunt Grace slept on her couch and Uncle Harold slept in his chair. Then Uncle Harold would work until 6 PM which was always the time that supper was ready. Most of the time after supper, Uncle Harold would go out to work until 9 or 10 at night. When he came in, he coughed a lot. Working 13 hour days in an unventilated garage did that to him. He usually worked until noon every Saturday and took Sunday off.

Uncle Harold was a generous man both towards his family and his community. He offered a window washing job to an illiterate man who was having a hard time without job skills providing for his family.  He paid for my college tuition. He never wanted anyone to know the good deeds that he did. Money was a topic that I wasn’t even supposed to talk about.  I don’t think I ever thanked him enough for the sacrifice that he made. He paid for my school from stocks that he inherited from his parents that someone gave them when they couldn’t afford to pay their garage bill.

That year I graduated from college in May, got married in August, and was pregnant in October. I remember driving out that fall Saturday to tell the family our news. I never was able to tell Uncle Harold the news personally as he was with a customer that afternoon. Then a month later, he died unexpectedly.

Every year Uncle Harold would take a week off to go hunting with his friends. It was on that trip that he had a heart attack. When he passed away, there was no one left to carry on the family business. Of the four siblings, my dad was the only child born and he wasn’t interested in continuing the family business. In the meantime, Uncle Harold had listed me as heir of that stock which we cashed in to start yet another family business.

So on the darkest day of the year, I will always remember the bright light that was in Uncle Harold. I am sad that he never met my children. Even now, his memory is starting to dim. I hope that in some way through my thoughts today the memory of him will shine on.

The darkest days of the darkest years

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Isn’t it funny that Christmas comes during the darkest days of the year, the time of the year that we so desperately seek out light. That was all that I wanted those darkest years, to be able to see a ray of light, a glimmer of hope. But all glimmer of light was gone. I had lost my hope. I fell into a time of deep despair. I was angry with God.

Those are the years that I don’t talk about to even the closest of new friends. Nothing. Nada. Zip. Zero. The darkest years happened when I was in middle school. My autistic brother Matt became increasingly violent. So much so that he was not allowed to go to school with other kids. He had to have a teacher come out to our house. When Matt got “kicked out” of school, my mom took my brothers and I out of school too. My parents had us 4 children in less than 5 years, with me being the oldest. I was homeschooled between 8th and 10th grade. While my classmates attended prom and homecoming, I was at home in isolation.

Through the darkest years, my dad totally checked out emotionally and became very depressed. My mom became desperate to find a cure for autism, taking Matt out of state to a hospital that did extreme allergy testing. She thought that if he avoided certain foods and allergens, it would curb some of his violent outbursts. When they came back everything changed for us.

Matt was allergic to everything. My parents got rid of their wood furnace and put purifiers throughout the house. My mom took down her bedroom curtains because they had formaldehyde in them. She used old sheets and blankets as curtains. If the local farmers were spraying their fields with pesticides, she would call them screaming if she didn’t get notified first and Matt would have to wear his charcoal mask. If they did call her to notify us, we had to pack up our car within a half an hour and head up north for a couple of days until things gassed out or it rained. My parents had to park their cars at the bottom of the driveway so exhaust fumes would not come in the house. If my dad snow blowed the driveway, he was not allowed into the house with his snow gear on and had to shower immediately. I wasn’t allowed to wear perfume, hairspray, or nail polish. Those were just a few of the changes that were made in attempts to control Matt’s violent behavior.

It was very hard that year at Christmas. My mom said that Matt was allergic to Christmas trees, even the fake ones. It was at that time that we no longer had a Christmas tree in the house. No decorations. No lights. Nothing. Even my grandma was instructed not to put up a Christmas tree. Instead she put little bows on the wall in the shape of a Christmas tree. It was horrible. Matt had meltdown, after meltdown, after meltdown. Day after day he attacked me. He kicked me, punched me, scratched me, hit me. Ironically, taking away all of the things away from Matt (and the rest of us) did nothing to tame his aggression. It seemed to hurt us more than it helped us.

But how could I be angry at my mom for trying everything she could think of trying? How could I be mad at my brother who wasn’t bright enough to read or write? I fell deeper and deeper into despair like a small flower buried under the cold deep snow.

Still the classical music plays

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My mom called me in the say that Mr. Smith died today. Tears fall from her eyes but all I want to do is go back outside to play. The snow is over my head and I want to go back to my little hill to sled. My little brothers are busy ants digging underground tunnels in the snow. It is cold and quiet outside. Sometimes I sing a song to hear my voice echo back to me. Then I don’t feel so alone. I am always alone. None of my friends are allowed to come over and play. Matt scares them away.

My mom takes me over to see the really old people in town. She said they like it when little girls come over to play. They don’t have any family and are all alone. I like Mr. and Mrs. Smith. Sometimes Mrs. Smith gives me cookies and one time she took me upstairs to see the dolls she used to play with. The dolls are really old and I can’t play with them. Mr. Smith showed me his card shuffling machine. I really liked it. Mr. Smith is sick. He coughs a lot. Sometimes he doesn’t get out of bed when we visit. Mom said Mr. Smith died today. Maybe I’ll see him tomorrow but right now I really want to play.

Mom keeps crying. It is making Matt upset. We can’t sleep. Matt rocks back and forth in his bed. He rocks until his face bleeds and blood is on his sheets. My little brothers can’t sleep because Matt is making too much noise. My three brothers share the room next to me. Mom cries. The day Mr. Smith died, mom put a record player in the hall at night. She thought that the classical music would soothe us to sleep.

Night after night, the classical music plays. But it doesn’t relax me. Instead I feel afraid.