change the system

My daughter is going back to jail today. Trying to get her treatment was a big waste of time. They did change up her medicine a bit. They gave her something to calm her, help her sleep, and for PTSD. I want to know what gave her the diagnosis of PTSD. What trauma??

I called and called the treatment center. Sometimes no one answered the call. One time the nurse said I needed to talk to the therapist. I left several messages with the therapist. The only time she called me back was to tell me my daughter was being released. Apparently she is the only therapist for the whole ward. I asked to speak to a doctor but was told they were too busy because this was their third job. They barely had 5 minutes to talk to patients. From that 5 minutes, they allegedly gathered more information than the patients family who spent a lifetime with them.

Yesterday I finally found a nurse who was willing to listen. I told her my daughter was having delusions. The nurse said Arabella did not report having delusions. I told the nurse my daughter is not aware she is delusional. I told her my daughter is in jail for felonies relating to having delusions. I told her my daughter is suicidal because she made comments of life not being worth living once she is released. I told her I am afraid Arabella will kill herself or hurt someone else from the delusions she is having. I was feeling very hopeful after our conversation.

Then the case manager called and dashed every hope I had. I had plans yesterday afternoon which I was late to because of having to take her call. She said the likelihood of Arabella getting into a group home is virtually impossible. Even if I sell my soul and offer up my firstborn. She said I should look into a residential treatment facility. We decided we are not going to pay for that again. She gave me other numbers to call but said they probably wouldn’t talk to me because my daughter is an adult. She said my daughter will be released tomorrow. They think she is just trying to stay to get out of jail.

I am absolutely livid. The mental health system in the US is one big fucking joke. No wonder why there is so much violence. If only we had a system focused on suicide/homicide prevention and the treatment of mental illness!! My hands are tied. I’ve done everything I could do and it wasn’t enough. I’ll just watch as my daughter hurts herself or someone else.

I have lost all hope and faith in the system. I don’t have a lot of faith or hope left in anything. It takes a lot of courage to continue when everything I do seems pointless.

I just got home from taking my daughter back to jail. It’s very upsetting that she did not get the treatment she needs. Arabella said the therapist only talked to her for 5 minutes and only to ask her why she was in jail. The facility is very understaffed. Even Arabella felt she did not get the treatment she needed. She wanted help as much as we wanted help for her. On the way back to jail, I stopped at the gas station to get her pizza and soda. She won’t be home for Mother’s Day. They will be putting her back into isolation for the next 10 days. She will be spending her 20th birthday in jail in a cell by herself for 23 hours of the day. Something must be done to fix the broken mental health system. Stop the senseless loss of life. I am so pissed and motivated to fight the system and advocate for mental health reform. I had no idea how bad things are. But now that I know, something must be done.

Resilient and resourceful

I went to bed last night not knowing if my dad was going to live through the night. I knew by late afternoon an ambulance took him to the hospital. Right before bed, my mom called and said my dad was going through kidney failure and she was unsure if he was going to live through the night. I didn’t sleep well.

I was hoping I wouldn’t have to think about my dad dying for awhile. At least until my daughter is out of jail. A million different scenarios whirled around my head. I don’t know how I feel about my dad dying, our relationship is complicated. I received an update this morning the doctors drained 3 liters of fluid from my dad’s kidneys and his kidneys are functioning better. He will not need dialysis. But I don’t think he is out of the woods yet. I don’t think he will ever go back home though because my mom can’t take care of him anymore.

I’m not sure if I will ever see him again. I can’t remember the last time I saw him. Was it this calendar year? I can’t recall. As of right now, I don’t have any plans of seeing him or saying good-bye. I feel as if I have said everything that I need to say. But maybe I’ll regret it some day. I don’t think he has much time left. But who really knows?

Tomorrow Arabella has another court date. It’s a preliminary hearing which from what I gather will be a determination whether there is probable cause for the 3 felony charges she is facing. I’m not really sure what is going to happen. She has been in jail almost a month already. The only thing I’ve determined is nothing is certain and nothing happens fast.

Thankfully I had an appointment with my counselor this afternoon. She said I needed to come up with a plan. That is something I can do. Beyond that she said what she knows about me is that I am resilient and resourceful enough to figure out pretty much anything I’m going to have to face. By the end of the week, my daughter could be out of jail and my dad could be dead. There is so much uncertainty.

My counselor said I needed to come up with a plan for how to deal with the possibility my dad may die soon. I told her as of right now I don’t want to see him. I told her if he calls me and asks to see me, then I would see him. The next time I plan on seeing him is in a casket. I know it sounds harsh, but he never invested anything into our relationship. He is an abusive pedophile and most of the family wants nothing to do with him. The whole situation is very sad and not at all what I wanted.

The second plan I need to come up with is a safety plan for when Arabella comes home. So far I have two items on my plan. The first is to have my cell phone on me at all times in case my daughter tries to threaten or harm me so I can call 911. The second is to lock my door while I sleep at night. Beyond that, I really didn’t put too much time into thinking about it.

My therapist said I needed to look around my house and see what can be used as a weapon. Put away the knives sitting on the counter in the rack. Anything easily accessible. I remember having to do this as a kid when my schizophrenic brother pulled a knife on me and threatened to poke my eyes out. Sadly, it’s nothing new. The therapist said I should focus on removing items easily reached in an argument versus items my daughter could use to kill herself.

Back when my daughter was 17, her outpatient program told me she was planning on killing herself. They said I needed to scour her room for anything she could use to harm herself. I didn’t find much. She was too smart for me. She took disposable razors, took the blades out, and hid them in a gum wrapper in a pack of gum. She told me that later. I could never adequately protect her from herself.

The best I can do is protect me from her now. I have zero faith self-defense would work. She is twice my size. I learned a lot about psychotic rages from my brother. He is close to my size and when he was raging he had super human strength. It was unpredictable and could happen at any time. It could not be prevented. There weren’t any signs despite our hyper-vigilance.

Matt is being treated for his schizophrenia and the medication he is on works. He no longer hears voices telling him to hurt or kill people. Arabella is not being treated for schizophrenia. She is dangerous until she is if anyone will listen to find out what is really happening. Her delusions are very real to her and she becomes very agitated when we don’t believe what she does. Both times she ended up in jail was after bouts of going off her meds. So they do work somewhat. This is what life is like when family members are seriously mentally ill. My parents struggle with mental illness too. I love them all, but they are hard to deal with.

It’s really been a lot to handle. I’m sick of the stress. But as my therapist said, I am resilient and resourceful. I just don’t want to have to be.

A season of suffering

I woke up in the middle of the night when I heard my son leaving for work. I was having a nightmare that I had a baby who was kidnapped. When I fell back asleep, the nightmare continued. I searched and searched for the baby on a continuous loop all night. I woke up exhausted.

It’s been a long time since I’ve had nightmares. For awhile, I remembered even having some good dreams which is rare because it seemed if I dreamed at all they were bad dreams. Yesterday was a stressful day. I spent the day with my mom and my evening with Arabella doing deliveries. I think it was too much for one day because my mom and Arabella are known to stress me out. I wish it wasn’t that way, I really do.

Everything went pretty well with my mom. When she comes to visit, she likes to go out to eat for lunch. Yesterday we went out to eat at a restaurant we ate at dozens of times. When it was time to leave, she was very confused at how to get out of the restaurant. She went the wrong way and headed towards the kitchen which was opposite of the way we came in. She should have known that. I had to call out to her that she was going the wrong way. She just seemed so confused. I’ve noticed for awhile now that she is starting to slip mentally. She has been acting bizarrely like sending my daughter a photo of her ex on her wedding day. There are many times she acts childlike. I’m not sure if it is a normal part of aging or if something else like dementia is starting. Frequently I feel very annoyed by her behavior. Then I feel guilty because my mom is not really herself anymore.

Then I spent the evening driving Arabella around to do deliveries. I want to help her out but we don’t really get along very well. She wants everything her way and is very bossy towards me. I have to decide what is worth tolerating and what is worth fighting. I don’t want a relationship like that, but I want to help her out. Now her boyfriend and her both don’t have a car. Rent is due soon. They were late this month and got a notice to pay or vacate. They both have fines to pay. He now has thousand of dollars worth of medical bills. I’m motivated to help her out because I don’t want them living on the streets. Hell, they don’t even have a car to live in and I don’t think it would be good to have her live at home again for me. This has been weighing heavily on me. Last night I helped her work a couple hours. I used up a quarter tank of gas just for her to make $30. Doesn’t seem worth it to me.

While I was waiting for her to pick up food, I found out that our vet’s office is closing permanently next week. We go to a small town clinic. We’ve been taking our animals there for the last fifteen years. The vet was diagnosed with cancer and is closing shop. That’s his retirement. It’s so sad because he just lost his wife who worked with him to cancer a few years back. It’s so terribly sad. I’ve been going there for so long the staff and I know each other on a first name basis. That personal touch is so rare nowadays. Now they will be all losing their jobs as well right around Christmastime. One of the ladies is the mom of my son’s friend. She is a single parent. It just sucks.

There have been so many illnesses and deaths the last couple months. I just feel so overwhelmingly sad for the suffering of others. Our employee from our previous business just lost her sister who was a best friend to her last month. I got to know her a little. She died unexpectedly and she was only in her upper 30’s. Last week her husband committed suicide. He couldn’t live without his wife. That’s two suicides in the last two months, my blogging friend and the brother-in-law of a previous employee. Even though I didn’t know them personally, I feel so incredibly sad for the grief of their families this holiday season.

I’m sick of bad news and hearing about the suffering of others. Where is the peace? Where is the joy? Sorry to be so negative right before Christmas. The expectation on us is that we should be happy right now, but many are not. I guess I am just in a funk right now. The cold dark days are upon us. I wish I could see the light, just a little glimpse of the good days to come.

Gratitude tomorrow…

Yesterday I found out one of my blogging friends passed away after a long battle with depression. I wish I could’ve done something to help her. A couple weeks back I noticed her blogging patterns were off. She posted one day like normal and then she just disappeared. She no longer liked or commented on my posts either. A week went by, then another week. I was really getting worried. What if something happened to her? I decided to do a little poking around. I had her name and a general location so I started scouring the obituaries. Nothing…

For awhile I had a sense of false hope. Maybe she was in the hospital and couldn’t update her blog. Maybe she got in a car accident. Maybe she was taking a break on the beach of some nice resort. Maybe she was sick with a fever. The nagging voice in my head said maybe she was dead. Nope, couldn’t be that because I didn’t find an obituary. Maybe, maybe, maybe…until one day I saw a post from her family with her obituary.

Did she know the last time she posted it would be her last? She never said good-bye.

It hurts. Even though we never met in person, I felt like she was a good friend. On a hard day, she often would write an encouraging comment. I just can’t believe it. She was an inspiration to many, especially those struggling with mental health issues. Maybe some day I will go back and re-read some of the things she wrote but as of now I just can’t. Good bye Ashley, you will be greatly missed.

Muse ick

My daughter showed me how to view my 2021 review of the year on Spotify. Numbers don’t lie and it showed me myself which can be scary. Angel showed me her year in review and posted it on Facebook along with all her friends. I would never do that. People would wonder if I was okay.

Music has always been a big part of my life ever since I got my first radio in Kindergarten. For the most part, music has been a healthy coping mechanism in my life.

Through my years music has always been there for me. In grade school, I cried myself to sleep at night with the Duran Duran Arena album. Planet Earth echoed my emptiness. The Chauffeur, The Seventh Stranger I felt my aloneness with them.

In high school I found Pink Floyd. I understood The Wall because by that time I had locked myself behind one. Comfortably Numb spoke to me. I could find myself in the depression and numbness without ever touching a drug. I remember when The Division Bell came out. When I got a Spotify account I searched and scoured everything Pink Floyd. I now have 69 songs from them on my playlist. Sadly, there is nothing new to consume. In a few months I am planning on getting The Dark Side of the Moon prism tattooed on my back. That’s about as new as it gets. They are my #2 artist of this year.

Music means the world to me. According to Spotify, I listen to music 88% more than other listeners in the US. I am beyond happy that my daughter Angel has a music degree and my son plays many instruments and started making beats for a rapper.

I could almost say I have a music addiction. There were times I felt guilty about my intake. I destroyed my collections, later to buy them back again. I am extremely private about the music I listen to. I feel shame because I don’t like feel-good Christian or otherwise music like my mom does. I like music to express the feelings when I am having a hard day: the anger, the emptiness, the despair.

Spotify said my music mood is wistful and spooky. I listen to thoughtful hard to listen to music discussing difficult topics like death, suicide, emotional pain, broken relationships, etc.. I really wish I liked songs about grace, forgiveness, love (in a good way), and happiness. There are a few I like but not many. I want to like that kind of music but I don’t. I can’t force myself to. I tried.

This year I found a new band. It’s not really new, but new to me. I found it by watching the MTV videos on Beavis and Butthead. I know, I know. Just remember I wasn’t able to be a kid and my inner child likes it. I keep telling myself that anyway.

The band is called Type O Negative from when I was a teen. Never heard of them before. Some of their songs I don’t care for. But four out of five of my top five songs this year were from them. They are my top artist this year. I am in the top 0.1% of listeners. I’m predicting next year will be lower because they will no longer be new and they don’t have any new music since the lead singer is dead.

Type O Negative has some really difficult songs to listen to because they have some really really hard grief messages. It really helped me process my feelings about having a suicidal daughter, Arabella, and the resulting depression from it. I can’t take the mental illness from my daughter and it is killing me. Life is Killing Me. Been there, done that, got the t-shirt from this band. I recently ordered the Black No. 1 shirt with the lyrics written on it of ‘loving you is like loving the dead’. Sometimes I feel like anyone who could love me is loving the dead because at times I was so numb it was like I wasn’t even there.

My number three song was from the $uicideboy$ entitled Kill Yourself. No strong suicide lyrics there. NOT. My daughter Angel showed me this song. She said after she found the porn on my dad’s computer she became really depressed and started listening to this song. It helped me understand how she feels. Most parents would be worried but apparently I am not one of those parents since I started listening to it as well by myself. But seriously, it’s not going to be on my top 5 list next year. It’s just too dark even for me.

I wonder if there are any other dark people out there like me. Is there anybody out there? Why am I drawn to the darkness inside of myself? Why don’t I like uplifting music? Why do sad songs make me feel good? It doesn’t make sense.

Why do some people like romance and others horror movies? You probably already could guess what I would prefer. Yup, horror.

It’s hard to explain to people who don’t get it. It’s like music is a friend of mine. When I’m feeling sad it cries along with me. It’s always there for me. As an introvert who struggles with depression sometimes it’s easier to pour out those emotions with music than with people.

Maybe I just figured out why I don’t want to share my music with others. If I share my music, I really am sharing about myself and that is truly scary to put myself out there like that. Now I just have to figure out why I am okay putting myself out there here.

Borderpolar with SAD

Last week my daughter said she accidently sent me a text which contained a screenshot of a conversation she had with her friend. As her parent, I found it to be very disturbing. I was debating on whether or not to post this and decided that I needed to talk about it. I want to warn you in advance that it might be triggering because I will be discussing drug use and suicide.

Arabella: I tripped too too hard on cough medicine that I was seeing hallucinations. Cause I took around 13 at night. And then the next morning I took 13 more. And I was planning to call the police because of them. As I was so miserable. That when I wanted to take a relaxing shower I saw the bath turn into like intestines. Something you would see only in really fucked up entertainment like movies or like books. But then there was screaming and the devil talked to me. And luckily V picked up the phone and talked with me and told me not to call the police. And just had me sit and talk with her until I went to bed or she did, one of those. And she told everyone at school that…

V: And that’s a pretty weird call to get from someone you don’t talk to regularly that you didn’t think did drugs. And she was calling to say she took too many pills and was crying saying she had to call the police because she saw the devil talking to her in a bathtub.

Arabella: That was me. That is more than 4 times the safe amount to get fucked up within 24 hours. That fucks up your liver. That’s why I don’t think I’m going to live long.

Will: I’ve tried to OD with a variety of OTC and a couple prescription pills.

On the bottom of the screenshot of the conversation between Arabella and Will there was a selfie of Arabella looking awfully messed up with the caption good-bye. Underneath it read, I took too many pills.

The first thing I did when I got the message was make sure it wasn’t recent. I believe the attempt to OD originated before residential. It wasn’t a current call 911 threat. I literally felt sick I was so heartbroken. I didn’t know or maybe I’ve been in denial. She wasn’t like this before. Her mental health issues all started with an out of the blue suicide attempt. Before that she didn’t do drugs or even drink. That all changed after her third inpatient hospitalization. She met a girl there who was into stealing and drugs. That’s when it all began. She didn’t have many friends left at that point. I thought it couldn’t be that bad to have a few friends from the hospital. It’s not as if anyone healthy or well adjusted wanted to hang out with her. Now I know why they discourage those types of friendships post hospitalization.

Arabella told me a couple of months ago that she didn’t like being sober. She said she liked pot but when she couldn’t get that there was alcohol. She also told me when she didn’t have money she would shoplift cough medicine. I had no idea it could be so bad. I mean it wasn’t heroin, right? But that was before residential, right? Because she was supposed to go to residential and go into remission and lead a happy healthy productive life. That’s what I was telling myself anyway.

Sometimes teenagers experiment with drugs and alcohol. Alex did. He wasn’t an easy teen. There was that one kid in the neighborhood. When we found out, he wasn’t allowed over there anymore. But he lived a few houses down. It was hard to stop once it started.

But this was different. She wasn’t with a group of friends experimenting. She was alone. Was she trying to kill herself?

When we were on vacation, Arabella wanted us to buy her alcohol and weed. We didn’t. She was already on a smorgasbord of pharmaceutical medications. I honestly didn’t know she had a problem. Maybe she doesn’t. Maybe I’m in denial. All I know is that since the trip she went into a downward spiral. She lost her job. I knew she would be okay if she was able to hold down a job. Now that is even gone.

The initial diagnosis also includes substance abuse. I haven’t wanted to face it. I’m certain that the dual diagnosis of borderline and bipolar has the highest suicide rates. If you add substance abuse to that, the prognosis is very poor. My daughter already has had multiple suicide attempts. I have to live with the fact that my daughter is seriously mentally ill. I could get a call any day.

It’s been especially hard because she has been more delusional than I’ve ever seen her. She sincerely believes that I’ve been starving and torturing her. It’s been making it nearly impossible for me to help her. I feel so helpless. There is nothing I can do. She hates me and has been abusive towards me. Should I tolerate that because she is mentally ill? When do I let go and take care of me? I feel so much anger and despair. I’ve lost a lot of hope and don’t see this ending well. I want a miracle. I want her to be the one that beats the odds. But what if she doesn’t? I’m so afraid of what might happen next. I’m worried sick.

The support I need

Sometimes life happens and you need to just sit and gaze into the darkness inside of you for awhile. You have to face it to keep fighting.

I can tell when I’m really stressed out. I can’t sleep and when I do it’s filled with nightmares. My stomach is on a burning and raging fire. I thought maybe I had an ulcer this time. Maybe I had finally reached the end of my rope. I gazed into the water at Kennebunk and cried. I didn’t know if I could continue holding on.

But somehow I’ve been fighting this battle my whole life and never once tried to take my own life. Don’t get me wrong, I’ve thought about it sometimes a lot.

When I told my mom I felt this way after she asked what I was thinking about, she told me she would try to give me the support I needed. When we got home from our trip my mom was on the war path. She tried to beat a lot of dead horses. She told people I was thinking of killing myself and they needed to help me which infuriated me because it wasn’t exactly true.

She told my brother Luke he needed to be there for me. My brother Luke walked away from my family almost a year ago. I invited his family over for Christmas last year. We even put the date on the calendar. Then after he found out about Arabella, they cancelled. It wasn’t about COVID because his whole family had it in November. He didn’t want his daughters to be exposed to my screwed up family especially when his wife Emily has the perfect family. Then the few times I did see him up north this summer I felt criticized and condemned by him.

Then my mom went and told my dad that I was ready to jump off the Kennebunk bridge. I am one step away from killing myself and he needs to step up and call me. My dad made every excuse in the book not to call me so my mom kicked him out of the house for a couple days until he finally called me. I guess it wouldn’t have been so bad if I didn’t know the only reason he called was to get back in my mom’s good grace. It was the first phone call I got from him in over 3 years.

Maybe my mom even told my Aunt Jan because I got a message from her that she was thinking of me. I could tell how much she was thinking of me when she told me I wasn’t welcome at the family reunion because of my vaccination status. I am about ready to tell everyone to piss off.

I told my mom that it meant nothing to have people reach out to me out of obligation, force, or manipulation. My personal problems are really none of their concern. I can take care of myself like I’ve been doing just fine my whole entire damned life. I told her she had no right to share things I’ve said in confidence with anyone else especially since I was trying to be open and honest with her about my grief over my daughter’s mental illness. I told her if I wanted to tell them I would’ve.

I don’t want to be too hard on my mom because I sincerely believe her intentions were to try to help me. But she is driving me crazier. I felt stressed out when my dad called not comforted. None of this is supportive to me, it’s stressful. Telling people I want to kill myself. Sheesh! She did buy me flowers though. There’s that.

This morning I asked my daughter Angel if she thought I was going to kill myself. She looked stunned and said no. Angel is really supportive. She is a good listener. That’s all I want my mom to do. I want her to listen. I don’t want her to try to control things in my best interests. I don’t want her to tell everyone a sob story about me to try to drum up support. That just makes me feel worse.

Residential waiting list

We received the call that Arabella’s name came up on the waiting list for the DBT residential program for adolescent girls. We had less than a week to get everything together. She had to be there within a certain time period or she would lose her place. This was her last opportunity since they said she could not be there after turning 18. She was less than 3 months until 18 which meant by the time she came up on the waiting list again, she would be too old for the program.

She abruptly ended her time with the outpatient program that she was in for 2 months. I had to switch a dentist appointment around last minute. Thankfully they were able to sneak her in earlier with short notice. The residential program needed her dental records. We ended up getting all of the paperwork together and appointments done as soon as we possibly could. It was months of wait, wait, wait then boom hurry as fast as you could to get everything together. Plus I had to work with the insurance company which was pretty much a waste of my time. We ended up paying for everything out of pocket which wasn’t cheap. We emptied Arabella’s college fund. She wasn’t interested in college anyway. Without residential we honestly didn’t know if she would live that long anyway. This was our last ditch effort to save her life.

To make matters far more stressful, we also had a COVID scare within that time period. My daughter Angel’s boyfriend Dan tested positive then my daughter got sick with COVID as well. Once we found out he was sick, my daughter stayed with him at his parent’s house and didn’t come back home until she was better. It was a matter of life and death. If Arabella couldn’t go into the program because of a positive test I feared she would die. It was horrible and terrifying. FYI admitting your child into an inpatient, outpatient, or residential program is stressful and crappy as it is without the extra stress.

They ask questions such as how many suicide attempts have you made and when was the last one. My daughter answered that many times she cut herself so deeply that she was hoping not to wake up in the morning. They ask so many disturbing personal questions that no parent wants to hear the answer to. I suffered greatly the first time I saw the cutting on her arm. I had nightmares for days when I could sleep that is. It was very traumatic for me.

Thankfully Arabella’s COVID test came back negative and we all remained healthy at our house. I do think that the residential program has helped Arabella tremendously learn the skills that are needed to live a healthy and productive emotionally regulated life. We, as her parents, worked very closely with her therapist and the psychiatrist. We received a DBT parent workbook and listened to podcasts. It didn’t cure her. She is still taking plenty of medications. It was a very rewarding experience except for the cost. But as the saying goes…you get what you pay for.

Arabella was in the residential program for a little over 2 months. I’ve noticed a lot of improvements since she got back. It was worth it to give her a second chance at life. Now it is up to her what happens next. We did everything we could.

Waiting in the uncertainty

One day Arabella handed me a baggie full of pills. Inside was a month’s supply of sleeping pills. I didn’t understand. How did this happen when I watched her take her medication every morning and every night? I couldn’t imagine it would be that easy to stockpile pills while under supervision.

She gave me the pills because she said she was no longer planning on using them to kill herself. She said she was surprised that I never found them after outpatient said I should search her room. I also remember the late night text from Jordan’s mom saying that she had pills and was planning on using them.

Arabella said that on some nights she wouldn’t take her sleeping pills but instead would drink energy drinks so she could stay up all night. That is what she did to finish high school. I don’t understand why she would even want to do that. At the time she seemed rather manic and didn’t feel the need for sleep. But she didn’t feel like killing herself either. I would almost prefer mania to suicidal depression.

But was she really bipolar then? She told the doctor she couldn’t sleep at night even with the sleeping pills. But she didn’t tell him that she wasn’t always taking them.

I’m glad she handed over the sleeping pills. I finally felt some peace after hearing that my daughter was going to OD on pills but never being able to find anything.

The hard part was that her psychiatrist thought she could be bipolar but said he was retiring and just left us. He never put her on medication that would manage bipolar. At residential, they didn’t think she was bipolar. At home right now, she seems manic.

Over the past year, my daughter has had 6 different possible psychiatric diagnoses. It seems to me that the experts don’t agree. She still needs my help to manage her medications because she is not taking them properly. I still don’t have the answers that I need. I’m not sure what the future holds as far as her care goes. She is having a hard time finding a job because it is obvious that she has some serious mental health issues if you have a conversation with her. I don’t know where to turn.

But as for now, she gave me the pills back. She seems manic which presents itself with other safety concerns. At least she isn’t suicidal at the moment.

But now what? She wants me to butt out because she is an adult now. I can’t in good conscience walk away. I really would like her to have psychological testing for a firm diagnosis. The jury is still out whether or not she is going to be able to live independently and take care of herself someday. The uncertainty and lack of control over the situation is hard to deal with. I guess I’ll just have to wait and see and hope she doesn’t do something to destroy herself in the meantime.

New diagnosis

I was very concerned about the things that were happening with Arabella.

On New Year’s Eve, she made a strange comment when we had some friends over. She told everyone that her dad was walking on the ceiling and laughed about it. No one else laughed. They glanced at me and looked at her as if she was crazy. Was she on something? Was she delusional? Was she just trying to get attention?

She said strange things before like the time she said that Jordan’s mom was her mom and I wasn’t. She said other things that weren’t true. At times I could classify her as delusional or paranoid.

Then there were other things like the eating of non food items such as plastic forks. The binge eating and weight gain. The extreme fluctuations between us being evil and the world’s best parents. She fluctuated that same way with herself. Sometimes she saw herself as fat and ugly. Then at other times she wanted to be a stripper and show the world how gorgeous she was. Sometimes she was gay and other days maybe straight.

Then there was the impulsivity. Money in her hands was money spent. The shoplifting. The need to be more extreme than everyone else. The cutting, the suicide attempts. All her relationships were turbulent.

She had unusual emotional reactions, laughing instead of crying upon the loss of friendships that once meant everything to her. She seemed almost manic. She had a hard time sleeping at night even with the sleeping pills. I wanted to tell the doctor that all of this happened within a month’s time. Perhaps her medication was off.

Arabella was in rare form when I picked her up from outpatient to take her to her psychiatrist appointment. She was bouncing off the walls. A combination of caffeine, candy, and mania perhaps? She couldn’t keep a constant thought. She talked about the heating ducts in the office. Things people really don’t care about. She was talking a million miles a minute and I was feeling frustrated. In my mind she was acting pretty crazy and I wanted her to stop. But did I? It was the perfect place to act like this. Every time before this visit, she was quiet and depressed. She couldn’t sit still. She told the psychiatrist that she had crackhead energy.

I explained to the psychiatrist everything I’ve been trying to explain to you. Something was really wrong with my daughter. He got it. He said it was obvious to him that my daughter had more than a case of depression. He said she had disordered mood, thoughts, and personality. He thought she had Schizoaffective disorder with Bipolar 2 along with Borderline Personality Disorder. I didn’t see it coming, really I didn’t.

Then he said that he was retiring. He didn’t have a replacement. He didn’t want to change her medication which was a mess and not even adequate for her new diagnosis. We would have to wait for residential to figure that out. He pretty much said good-bye and good luck.

I was heartbroken. I cried the whole ride home. How did I not see this coming? Schizophrenia?? My brother is schizophrenic. He hears voices.

I grieved for a long time. All my hopes and dreams for a normal life for her were dashed. I wasn’t even sure she would graduate from high school at that point. Remember when she was an honor student? I couldn’t stand to hear about the bright futures of other kids her age. Your daughter is going to college for physics. I’m spending my daughter’s college money for psychiatric care. Yup, hope she doesn’t kill herself.

I remembered the last play she was in. I cried not knowing it would be the last time everything seemed fine. I cried thinking about the last dance she went to where she wore a pretty sleeveless dress before she started cutting her arms.

I grieved for what was that will nevermore be. It was painful that somehow I could’ve caused this. Bad genetics, nary a sane soul on both sides. I was riddled with shame and guilt. I couldn’t understand why my daughter hated me. I was doing everything I could to help her. I couldn’t stand seeing other normal families doing normal things. I resented them. I envied them for what I didn’t have. I would give away everything I had just to have that one thing, normal.

My mom was very comforting at the time. She experienced a lot of the same feelings with my brother Matt.

Now I just had to wait. My life was in limbo in a chaotic holding pattern until residential, if she could make it until then.