April’s Fools

I woke up this morning hoping this whole thing was going to be an April Fool’s Day joke. But it seems like we are all stuck in some time warped Groundhog’s Day movie.

As each day runs into the next, I fight the urge to be unproductive. I feel sluggish like I’ve gained a great weight. I must keep fighting against the desire to hibernate. I don’t want this blog to become stagnant either. This week I finished puzzles, books, and Netflix series. I don’t want next week to be the same story at least on my blog anyway.

I still need lists and goals even if it is something simple like changing the lightbulb in my bathroom which I checked off my list today.

It’s time to clean house. Currently I have 11 posts in my drafts. It’s time to resurrect them or toss them in the trash. By the end of April my goal is to have zero drafts.

My normal writing process is as such. I usually write a draft in the morning or early afternoon. By late afternoon I edit and publish it. But sometimes I feel like the post is not ready. Some of the first editions end up in the drafts and I rewrite it altogether until it’s right.

If I have a bad feeling about something I wrote, then most of the time I don’t publish. Sometimes I let it marinate for a day or two, but some have been sitting in my queue since August. Those are the really personal ones.

Things are about to get a little crazier around here! Now is the perfect time for some spring cleaning!

 

Paper cuts

12/24/19

I have nothing left to live for. My whole life has been a joke. Hell couldn’t be any worse than living at this point.

Why? Why did it have to end this way? There isn’t a day in my life that I feel joy or peace. It’s just unrelentless pain. Why would I want to continue down this path of suffering? I just want it to end. Every day it’s the same struggle to place one foot in front of the other. Every day I fight against this meaningless existence. I don’t want to do this anymore. I feel like I have to. There is nothing left here for me.

The holidays are the hardest time of the year for me. This year especially with everything going on with my dad. It happens every year, the holidays come and like clockwork, I’m depressed. It seems like the season of light, joy, and merriment are the darkest times for me.

Why am I telling you this? I want you to understand what it is like even if you can’t relate.

This was a really bad episode of depression. My very heart was being attacked. Every time I have a heart attack I hope I will survive. You can’t tell me to be happy and count my blessings once an episode starts. Don’t you think I would if I could? It’s like telling someone who is drunk to be sober. Once it starts I can’t positive thought my way out of it. I have to work my way through it and it takes time.

I can be depressed for days, weeks, months at a time and not once feel suicidal. It’s a long lasting sadness. Sometimes I don’t feel depressed at all. Then there is the rare occasion I feel extreme intense depression. It generally is short lived ending within a few hours. It sometimes includes rage. Usually it has to do with a trigger, flashback, or extreme stress that throws me through a loop. Once it starts I can’t stop it until it is done. That is why I think I have Complex PTSD. It really sucks to feel like your emotions are out of control.

Later that evening, life went back to normal. We attended the candlelit Christmas Eve service. I was still feeling pretty down, questioning the existence of a God that allows evil, and couldn’t even bring myself to sing. But I was there. Then we had a Christmas Eve supper with Paul’s family. Paul’s family consisted of his step-dad Darryl and his girlfriend/fiancee/ex-girlfriend (it’s complicated).

Darryl and his SO got into an argument when he was walking her out to her car to leave our house. There was drama he wanted to get us involved in. Now my family causes the most drama by far, but not all. I’m going to tell you right now, I am so sick of the drama and stress our so called role models try to get us involved in.

I am done rescuing and trying to fix people. Right now it’s a full-time job just trying to fix me.

I learned now for the first time I am not responsible for cleaning up the messes of others. Not my problem. No longer my job. I am trying to heal me. Writing is a wonderful way to cope. Now when I feel over the top depressed, I’m going to write about how I feel. I am not going to do anything stupid. Although there is always a chance I might get a paper cut.

I am alive, but what I want more than anything is to fully live.

 

Gratitude week 3

  1. Tonight we are having some friends over to watch the Packer game. I suggested that we just order pizzas although I couldn’t have any. I am grateful my husband made me a dairy free pizza late last night for today so I don’t feel left out. I think that is the nicest thing anyone has ever done for me. I didn’t ask him. He just went to the store, bought my favorite ingredients, made a yeast free crust from scratch, and shredded goat cheese. His kindness towards me makes me feel loved. Way to go!!
  2. I am grateful I have a really good therapist. The last couple sessions she worked with me right through her lunch break. We started up brainspotting again this past week and for awhile I felt at peace.
  3. I am grateful to learn about Complex PTSD. I am eager to keep healing and growing into the best me I can be.
  4. I am grateful my kids made it home safely after driving through winter weather.
  5. I am grateful to have 700+ awesome followers who are interested in hearing my story.
  6. I am grateful to be able to push through my fear and anxiety which has been running rampant this week.
  7. I am grateful for my kids that keep me too busy so I don’t isolate myself from the world.
  8. Yesterday I had a pajama day. I’m grateful I didn’t have to go anywhere or do anything. (C’mon, some introverted isolation is okay!).
  9. I’m grateful to have an industrious husband. Yesterday he plowed out the driveway and he is working hard to start a new business.
  10. I am grateful my friend Cara liked my book. The test readers want me to go deeper. I am ready to go deeper now. It’s time to rip away the security blanket to embrace brutal honesty. It’s time to face my demons. It’s okay to write about things that are uncomfortable if expressing my thoughts and feelings is good for me.

Gratitude week 2

  1. We spent the weekend in Chicago and didn’t get murdered. The girls and I went to Chicago with Paul. He attended a conference and we went shopping. I had a nightmare before we left that the girls got murdered. I was a little nervous being the “chaperone” of my daughter and our two foreign exchange students. I was afraid because they do not understand our culture and might not know what is safe. All the people that we met were wonderful. We walked 6 miles then took an Uber back to the hotel and didn’t get murdered. I don’t know what I was so worried about. Ah, I am too much country mouse.
  2. We were supposed to get a major snowstorm on the way back from Chicago. Instead we only got a dusting of snow which made the drive a lot better than we were expecting. Gotta love when the weather forecasters are wrong!
  3. I met with my therapist who read my book over Christmas break. She said it was a Christmas present to herself (which is good I told her, since I didn’t get her anything). She thought it was so wonderful she wanted to read it again. She thought I should go deeper with my writing. I am grateful that so far two out of three readers were very happy with my book. I am meeting with my third test reader tomorrow.
  4. I decided to get an even shorter haircut this week. I also am growing out my blonde hair color and letting it go grey. I think it doesn’t look the greatest. However, I got complimented by two strangers on my hair this weekend after wearing a hat on it most of the day. Bizarre. Two people raved over my unbrushed hat hair. Then another stranger complimented me on my new glasses.
  5. I am grateful my son was in a really good mood all week. Although now that I think about it, maybe it was because we were all leaving for the weekend and he had the house to himself. I also found a really cool shirt for him that he loves.
  6. I am grateful to find a beer that I am not allergic to. Also, I am grateful for goat and vegan cheese so I can enjoy macaroni and cheese and pizza. Although we had good Chicago style pizza, I am grateful that my husband makes the best pizza around that I can eat.
  7. Although I love to travel, I am grateful to be sleeping in my own bed tonight with fresh clean sheets.
  8. I am grateful we stayed at a really unique hotel called Fieldhouse Jones in Chicago. The decor was amazing, all antique sports stuff. Our bedroom wall was about 10 feet from the L which was cool. Paul and I played a game of air hockey in the hotel basement this morning. Although he beat me by one point, it’s been a long time since we had fun together.
  9. Although there were periods of rain and snow, I am thankful it wasn’t too cold to walk around Chicago.
  10. I am grateful that I don’t have a lot of plans for the rest of the month and can finally have some down time.

I finished my book!!

Last night I finished my book, my life story. It stirred within me many mixed emotions. I felt like I was covered in a blanket of deep sorrow, yet at the same time I felt joy. It’s been a journey of remembering and releasing in words previously unexpressed.

Last night I sent my book to two test readers, a friend who is an author and a friend that is a child psychologist who works specifically with autistic children. I also sent a copy to my therapist. After I receive feedback, I will edit my book again. Then I want to send my book to my husband, my daughter Angel, my son Alex, and my brother Luke. After that, I am going to find a publisher. Then I will share it with you.

Perhaps this will start the healing process, perhaps not.

I figure if I can do some really difficult things (like running a 50k or writing a book revealing my trauma), then I probably can figure out a way to do something almost everyone can do. Relax. Heal. Let go.

I have been working with my therapist on brainspotting. I shared my first session with you and that was a very positive experience. After that session, things took a dark turn. I have been releasing all of the negative garbage I’ve been holding inside. It stinks! I’ve been working hard on trying to express my feelings. It has been painful, yet beneficial. Through this process, my lifelong struggle with insomnia and nightmares has gone away.

For a long time, I understood myself. I know what triggers my depression and anxiety. I understand the attacks of my trauma on my well being. But I’ve never known what to do about it. Visiting a therapist is taking the next step. Self-awareness is important, but it isn’t a catalyst for change.

I’m trying to give up control. It’s not like I had any in the first place. Just like being a clean freak never seems to make the dirt go away. Being a control freak doesn’t give peace and serenity to the voice that cries out for it. Worry is a waste of time. It doesn’t bring me peace.

I am trying to figure out who I really am. For most of my life I lived in survival mode. Now who am I? The person I needed to be to survive? Or who I really am? It’s hard to be myself if I don’t know who I really am. It’s a new time for self-discovery and growth. I want to fully experience my purpose in life.

I started meditating. Maybe I will try yoga. I always burned my anxiety off by hard workouts at the gym. This is how I process my anger. I am going to keep this, but add to it by including relaxation exercises.

I am going to read a Bible verse a day. This will incorporate inspiration for spiritual healing and growth. I want to trust God more. I also want to trust the people that care about me even if it means I might get hurt. I want to cultivate meaningful relationships. I want to cut off unhealthy relationships altogether, and if I can’t then I’ll set healthy boundaries.

I also started visiting a wellness clinic for physical healing of my body. My nervous system took a big hit from the long term stress. I suffered from stomach and GI issues my whole life. I’ve been working on avoiding the foods I am sensitive to and rebuilding my gut for optimal physical health.

If I can train my body for a 50k, I can train my body for growth and healing. My book is done, but I will never stop writing. The story hasn’t ended yet. The best is yet to come.

Unrest

I don’t want to do this anymore, this whole life thing. I want to hibernate somewhere, hidden away under cover.

I don’t know how I got to this point. I’m just tired of it. I’m just tired.

I couldn’t fall asleep last night. It was after midnight before I silently fell into slumber. This happened twice this week although this type of insomnia rarely happens.

I couldn’t stay asleep last night. I slept restlessly. I awoke several times. At 4 AM I had to go to the bathroom. This is the type of insomnia I call home.

I had one of the most intense nightmares that I had in a long time. I was a little girl. I was brought to an empty house because there was going to be a lot of blood, my blood. I went willingly because I knew I had to be the sacrifice. I was afraid. I was going to be hurt badly, but I would live through it. Before anything happened, the owner of the house came back. She looked like a grown up me. I told her that she needed to leave because she would get killed for being there. She tried to help me, we ran away. She was killed and I hid in the closet terrified knowing I would be next. Now we both were going to die because she tried to save me.

I awoke at 5:30, less than an hour before my alarm was going to go off.

Today is the day that my video is being posted. I didn’t know it until this morning. I hate the video. I want to destroy it. I feel so anxious about it.

Why do I have this need to tell everyone about the things I’ve experienced? I just don’t want to do this anymore. I don’t want to write. I don’t want to blog. I want to disappear off the face of the earth like I never even existed.

I thought of strange things. I remembered the book my mom used to read to me about Toad and Frog. They left the door open and winter came in. They were cold, sad, and lonely. They made soup out of their tears. It was almost as if the hauntingly sad child me came for an unwanted visit. But to cast her away would destroy us both.

I struggled to find the motivation to do everything I needed to do. Some days are like that. I’ve been stirring up my demons. But I was able to make it through. It is hard to do when my body and mind doesn’t let me rest.

Maybe tonight I will sleep.

Unrest.

 

I finished my book!!!

Tonight I’m celebrating.

I finished my book today!

I know that now the hard work begins…editing…trying to find a good publisher. But tonight I will put all those worries aside.

Tomorrow the video I created will be sent out to hundreds of parents of autistic children. Then it will be posted online to be viewed by countless people. I am nervous and excited to see what will happen.

Thanks for your continued encouragement and support!! I just wanted to share the good news!

Write, right?

It’s been a busy week and I haven’t really felt like writing.

Most of the time I have no qualms about throwing it out there. But for some reason this week I’ve felt impersonal. I want to keep my distance and my thoughts to myself. I worry that I’ve already shared too much.

I feel frustrated. My thoughts are fluctuating about my writing. One day I have great confidence. My book will be a bestseller and I can’t wait to chronicle my descent into despair. The next day I want to walk away from it all and not open myself up to be vulnerable to the world.

I don’t think I’ve ever read a book that has been as personal as mine is going to be.

Word has gotten around that I am writing a book. I got a call from a publisher this week. She wants to meet for coffee to discuss my book. She said that memoirs are flying off the shelves right now. She wants me to send her a sample of my book. I am thinking about turning her down, but I am not sure if that is a smart idea. She is a small publisher that mainly publishes works of fiction.

I am not ready to deal with this yet. I want to take my time and write a great book before I worry about finding a publisher. Then I feel bad because I have some good friends who wrote great fiction books and haven’t been able to find a publisher.

The end of the summer, I will be public speaking about being a sibling with an autistic brother. My contact said that once I have my book written, she had someone interested in publishing. I would prefer to publish my book in the mental health memoir genre. Now I will need to reach out and contact them to see what my options are. It is all very confusing as a first time author.

All I want to do is write my book and not worry about anything else right now. The publisher said that if I finish writing a book, I will find myself in the 1% of the population who has. That is rather exciting, but I have no interest in being an author.

I just want to write my book. I’m not sure what I’m going to do after that. I can see myself doing public speaking and being an advocate for families, especially siblings, of the disabled. But I haven’t even done my first public speaking stint yet. Maybe I won’t like it. Maybe I won’t be good at it. The thought of public speaking about something this personal is starting to fill me with anxiety.

I’m not sure where this path is going to lead me and I am filled with doubt. But I think I need to keep writing.

Write, right?

Fortune Cookie Wisdom #19

You have many special gifts, go experiment with them!

I really like this fortune cookie.

But how do you know what your gifts are? I think the best way to find out is by trying  new things.

Last summer my mom retired at age 70. She was really quite miserable after retiring because she really loved her job. She even got an ulcer shortly after retirement. But then she started trying new things. She started a sewing project with her sister-in-law. Once a week, we work together doing genealogy research. She discovered that she really has a passion for history. She wants to start volunteering at the literacy council.

My husband’s step-dad Darryl also retired recently. He, like my mom, has a hard time sitting around doing nothing. He decided that he wanted to be a first responder and signed up to take EMT classes. He also joined his church choir which always practiced during the time he was working.

I wonder what other ‘gifts’ we will discover that we have.

I found out that I love to run when I was in my 30’s and started writing a book this year. I probably won’t be running marathons forever and as of right now I am thinking one and done as far as the book goes. We’ll see where this path takes me.

I am encouraged by the others around me that even in my 60’s and 70’s, I might still find new and exciting gifts.

 

 

Outrunning my demons

Arabella skipped school today. She was very upset and was crying this morning because she did not get cast in the next community theater show.

For some reason, it brought back memories for me of the time I tried out for a community theater show when I was a couple of years younger than her. Maybe it’s just because I am almost to this point in my book.

I remember sitting outside in the sunshine with other children that summer working on my lines. I got the part of a princess. I was a pretty little girl with the sun hitting my long golden hair. I was happy and excited about my part. It made me feel like I really was a princess.

But something went wrong. My brother Matt had to spend the summer in the hospital. I had to drop out of the show because my brother was really sick. (It took me 20 years to audition for another show).

After that, my whole life changed. My brother became home bound after getting out of the hospital. I saw the paperwork for that yesterday. The original paperwork gave him a period of 2 months to be educated at home. But he was home bound for over 3 years. My mom quit her job and pulled my other brothers and I out of school as well. It was the time of the great isolation. Few people were allowed to come in and we rarely went out.

I am making excellent progress on my book. I try to work on it several hours every day. There are usually one or two days a week when I cannot. Right now I am over 30,000 words and am nearing the halfway point in my story.

I’ve decided to title my book ‘Outrunning my Demons’ with the subtitle of ‘What Life is Really Like with a Mentally Ill Sibling’.

I know my daughter is very disappointed right now that she didn’t get a part in the show. I feel bad for her. But in a few days she will be on to something else. She probably won’t even give it another thought a couple months from now. But I will always remember the summer, over 30 years ago, that I could no longer be a princess.