Mental health

End of February update

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Not a lot has changed since the last update. My parents are still with us. I still have a huge pile of boxes in my office to go through from their house. And when I get through those, I will bring in more.

Nothing has changed with my job. If anything, things have gotten worse. The work environment is toxic. I don’t want to stay. However, being the diligent employee that I am, I earned a month of vacation days that I will lose if I leave. I just had my annual review where my supervisor said I’m doing an excellent job. I double my collection goal every month. My job accuracy is 100%. I have never called in. I am the top employee. But they have implemented the on call policy. I will be on call Mother’s Day weekend, the weekend I am hosting my daughter’s baby shower. And if my mom is still alive, I am planning on spending time with her not being at work. When I expressed my concerns to my supervisor she had the attitude of too bad. Yes, it is too bad for her because I am not going to stay. Gone are the days when I go above and beyond. I will not be going in early, staying late, or taking on open shifts. I will be gone.

Just to give you an idea of how things are at work… My supervisor accused my co-worker of stealing money in public in front of other staff and patients. Only to find out later that the supervisor misplaced the money. No apology was granted or concern for the employee who was publicly humiliated. It makes my blood boil to see how she mistreats not only me but the other employees. My husband wants me to leave right away and find a better job. But I want to hang in there a couple more months to use up the PTO I earned. Plus I already created his summer seasonal work schedule around my schedule when I am off. I haven’t taken any time off since I started my job and I don’t want to build that again starting a new job.

The engine went out on my husband’s truck. So now we have to replace a vehicle we thought had many more years and miles left on it. We weren’t expecting to have to find a new vehicle so that adds to the pressure of my husband wanting me to find a better paying job. One thing I can say is that I expressed my thoughts to my supervisor and stood up for myself which I feel very good about. But once again I am plunging into the land of uncertainty which drives me crazy.

Just one more month until we leave for our vacation. I am really looking forward to that and using up some of my PTO days.

End of January update

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Hello! January just seemed to breeze by in the worst way. It’s been a harsh winter, a lot of snow and weeks of subzero wind chills. The feeling of unsatisfying coldness. The rough harsh winds that sting and burn.

It’s been a rough month all around. Nothing has changed on the home front. My mom is still on hospice and every time I visit I feel a part of her is shriveling away. My parents taking long winter naps under the cover of warm blankets, not sure if the chill in their bones is justifiable or not.

I am trying to get back to the gym again. It’s been a challenge with juggling all the responsibilities. It’s a challenge to do anything for myself, but I must try even if it is going to the gym. At the moment, I feel a certain melancholy. I’m thinking of quitting my job. Don’t get me wrong, I love working with suffering. It’s where I feel at home amongst the chaos. When you learn to embrace suffering, and not fear it, it is a magical place. Where else could I hold the hand of a stranger as her son is in the other room dying? I have the opportunity to be a comfort and that is very rewarding.

My workplace issued a new responsibility. Starting in the beginning of March, everyone is going to have to be on call one weekend every other month. It will be mandatory. They will pay $2 an hour to be on call and if someone calls in you are responsible for finding a replacement out of 4 other people, or that replacement is you. You have an hour to show up to work. I already work every other weekend. For me, that will mean I will work two weekends one month and then three weekends the following month. Working every other weekend already cuts into my life a lot. I usually try to cram everything in to the weekends I don’t work and am not willing to give up another weekend. Maybe if I don’t have anything going on, but as of now my open weekends are booked through the summer. I even helped my husband to schedule his work schedule around my schedule.

The new policy is in effect because there are multiple people who are always calling in. I’ve worked there for almost a year and haven’t called in once. I feel like the responsible people are the ones being hurt by this. It should be the supervisor’s job, but she really doesn’t want to work or do much of anything. I don’t want to leave, but if I have to I will. We just found out about this earlier this week and I am feeling stressed out about it. We’ll see what happens I guess.

We suffer alone together

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And so it begins again. This time with a different child.

Five loud raps on the front door, and the baying of the hounds. Something seemed wrong, but I couldn’t tell if I was awake or dreaming the whole thing. I heard his voice, arguing with someone. What is going on I thought as I dragged myself out of bed and towards the door.

The police were here, my son pleading with them he was fine and they should leave. He saw that I was up and became angry they woke me up. What is going on? Why are the police here in the middle of the night? The officer said they were here for a welfare check on my son. Someone called to tell them my son was planning on ending it all that very night. Alex was arguing he was fine and didn’t want their help. I ran to the bedroom to wake up my husband.

He wasn’t fine, my son. He was drunk and suicidal. I took him aside in another room as my husband spoke with the police. He told them he would stay with our son. We spent the next hour and a half listening. My son said he couldn’t do it anymore, live. He spent most the night curled up on the floor sobbing.

He was scaring his friends. Getting drunk and walking in the middle of the road at night. Wanting to borrow a gun. Talking about death and loneliness. They didn’t know what to do. Some contacted us, someone called the police, and most just walked away. I went to bed. My husband stayed up all night. Alex fought and made it through the night but missed his work meeting in the morning.

I had a restless night’s sleep and got up for work like usual the next morning. I didn’t tell anyone or talk about it because these kind of illnesses no one brings a casserole for. He was embarrassed and ashamed of his fight with the demons no one else can see on the inside outside.

Through this we suffer alone together.

He lost his job last week. Fired.

We long for the best and fear for the rest.

I hope he can hear our offerings over his cries for help.

Middle of May update

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The clock keeps on ticking and time seems to fly by. Today is Arabella’s birthday and I have the day off of work. We’re planning on getting our nails done and going out to eat.

Life has been eventful as of late. I ran into an old friend of Arabella and they reconnected which lead to a whole bunch of excitement. Let’s just say that several nights were spent drinking. Literally whole nights where I woke up in the morning and they were still up. Arabella’s friend was doling out shots the whole night and come morning she was totally wasted along with my son. Through their intoxication, they realized they were totally in love. Arabella and her boyfriend were trying to talk both of them to go to sleep and figure things out later when they were sober. I awoke to Arabella’s boyfriend yelling at Alex.

Alex could barely walk as I walked with him to his room. I’ve never seen him so drunk. He had to perform in his band later that evening. By this time I was fed up with the whole lot of them. That evening was more of the same. Arabella’s friend was flirting with much older strangers talking them into giving her cigarettes and buying her shots. Paul had enough of it and ended up confronting the girl and telling her she was no longer welcome at our house unless she got her drinking under control. She already has been cut off by her family and has an ignition interlock device on her car from drunk driving. I hope she gets some help and figures her life out.

This was the first time Paul told someone they were not welcome here due to their drinking. Believe me when I say her drinking was pretty out of control for Paul to say that being a drinker himself. We were both afraid it would jeopardize Arabella’s recovery and if she started dating Alex the relationship would be toxic to say the least. They probably would both take their drinking to new heights.

We were sad to see Arabella’s friend go. Arabella doesn’t have many friends and this girl has been a good friend to her in the past. The rest of the weekend was pretty mild compared to this. Mother’s Day was almost uneventful. Paul and I took my mom and Matt to her church. My mom and brother displayed inappropriate behavior both passing gas several times in the pew. My mom was very confused. She couldn’t seem to reason that she needed enough room for 4 people to sit. But in some ways I enjoyed going to my childhood church. One member said I look more and more like my grandma the older I get. It made me feel good to receive that compliment and to be around people that remembered family long dead.

The rest of the time with my mom was stressful and I couldn’t wait to leave. She was confused about her medication. Earlier in the week I received a call from my dad who said that she took too many pills and ran out. She gets angry and emotional easily. Her food hoarding has gotten out of control. She wanted me to reimburse her out of Matt’s account (I am now his guardian) for over $200 worth of food which included 8 bags of gluten free flour and a dozen containers of breading.

Some good things did happen so far this week. I met with my therapist who said I am in a good spot and after almost a decade said I didn’t need therapy anymore. I saw a quote recently I thought applied to this which said that as someone with Complex PTSD we don’t need to know how to survive trauma and pain. This is something we are used to dealing with skillfully. What we need is to know how to handle joy and happiness, something I never learned how to do. It really resonated with me.

Over the next couple of days, I am looking forward to spending some time with Arabella for her birthday. Alex’s band is playing outdoors this weekend. Early next week Angel and her husband will be back home for a couple weeks.

What is coming next

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I want to start blogging more again. Maybe I can try for once a week. I realized today I have been blogging almost ten years. It takes some form of dedication or insanity to continue that long. One of the hardest parts for me is finding people I connect really well with and then they are gone. Maybe their blogging experience is only temporary. Sometimes bloggers pass away. That component is harder for me then finding things to write about.

This past week has been difficult/emotional in different ways. The job search has lead to several dead ends. I was selected for the lucrative job I took the proctored exam for. However, I am sitting in limbo. It’s been over a month since I applied. When I reached out, I was sent a form letter stating that I am in a pool of applicants and if/when they need me they will reach out. My test results will be on file for two years and if I don’t hear anything by then I am welcome to reapply. But I am looking for a job now.

A friend told me over the weekend that she knows someone who works for the job I am waiting on. She said for the first 6 months they had to work 3rd shift until there was an opening in 1st shift. I am not willing to work 3rd shift, been there done that and don’t ever want to do that again. I would be willing to work those hours once in a while but not often. I AM, however, willing to work day shift (early morning is fine), 2nd shift, weekends, and holidays. I don’t want to work a regular Monday through Friday 9 to 5 job either. I just don’t think it would be possible for me at where I am in my life right now.

As of this last week, I am now the successor guardian for my brother Matt. However, I am not going to do everything the same way my mom did. I am not going to cater to his every whim. This is going to be an adjustment period for all of us and I am going to be pulling off the band-aid. At first I felt a tremendous amount of guilt for doing things my way, the way I think will be the best for Matt. But I had to remind myself that I have taken on the responsibility to be responsible for my brother for the rest of his life or mine. I never signed up for this. I don’t want to have a brother with a disability. But I was willing to take it on even though it was not in my best interest. There are going to be a lot of things I have to learn.

This past week my mom had her neuropsychological evaluation we waited 5 months for. We will be getting the results this week. My brother Luke went with my mom and I to the appointment which lasted 4 hours. We had around an hour to talk to the doctor about our concerns without our mom in the room. I think we were listened to and adequately described the situation. The last few months my mom’s dementia has gotten worse and she reached a new level of raw unfiltered obsessiveness and self-focus. I think she may have more than one personality disorder on top of whatever dementia she is facing. Spending time with my mom is very difficult. I have to limit it to once a week for my own mental health. I had horrible nightmares the evening of her appointment.

This is why I can’t look for a 9 to 5 job. I have several appointments during the month during the day for my mom, daughter, and will for my brother Matt as well. Also, I would like to continue volunteering for several organizations during work hours. My husband and I just finished facilitating an 8 week family class through NAMI this week. We had the opportunity to guide ten other people who are new to mental health struggles with family members. It was great to use my experiences to help other people. We had such a great group and I am sad to see the class is over.

Every week I am looking forward to several opportunities to de-stress. This week I am planning on going to trivia night with friends. The first time we did it, we won second place. This will be the second time. After taking two months off to teach the class, I had to take a hiatus from stand up comedy. I will be doing stand up comedy this week. This weekend my son’s band will be playing so I am looking forward to going with friends and family to watch them perform.

I am also planning on finishing the third edition of my memoir this week. Last year I was planning on ending it but so much more has happened to write about. I feel like I finally found a good place to stop the story. My plan is to have it completely finished by April 11, which would’ve been my grandma’s 100th birthday. Even though she has passed many many years ago, I want to celebrate her day and the life she has given to me. Without her influence in my life, I don’t know where I would be.

Other than that, my husband and kids are doing well. It’s great they are all in a good place right now. I feel like I am at a crossroads of sort. It is a very uncertain and anxious time, yet on the other side of the same coin is a sense of anticipation and excitement for what is to come next. I might take some classes and go a whole different career route. Who knows at this point? I think I should have a lot of answers this week.

February update

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I passed the proctored exam I needed to take to get to the next step of the hiring process.

It wasn’t an easy test and I was nervous about passing it. Starting a new career at 50 can be intimidating. Everything is so different now. I have yet to talk to an actual person about the position. Even taking the test was a whole new experience for me. The last time I took an important test was on paper with a number 2 pencil. I didn’t have a cell phone to lock up. I didn’t have to lift up my hair to show I wasn’t hiding any devices to cheat with. They even measured my wedding ring because if it was larger than a certain size, it would have to be removed.

I left the test site feeling out of touch. Most test takers were half my age. I had overdressed while the other test takers were wearing comfy clothes like oversized sweaters and jogging pants. My confidence dipped. Although I have a plethora of life experiences, I am not young and fresh with all the latest technology. But I have other things to offer. I keep telling myself that. It has been a month since I applied and I am still waiting. It’s been a week and a half since I filled out the background and credit check paperwork. I have no worries about that, but my patience is running thin as I check my email several times a day to see if I hear anything.

I just turned in all the paperwork to be my brother’s successor guardian. My mom’s functioning has continued to decline rather rapidly. She no longer makes a lot of sense when I talk to her. She has been forgetting to pay some of my brother’s bills on time. A week ago, Matt received a disconnect notice if his bills weren’t paid for his portion of the group home. It’s been stressful as my mom has been handling all of Matt’s finances and I don’t have any intentions of doing so. I would like to be more hands off. Matt’s roommates in the group home have a payee set up through the county and receive transportation for appointments. I would like to do that. He doesn’t live close by and with going back to work, I won’t be able to do everything.

Thankfully my mom has her neuropsychological evaluation next week. We have been waiting for months for this appointment. I wonder if there is still time for her to get treatment that would help her or if her dementia is too far advanced.

Meanwhile, Angel moved out to the east coast for the next couple months to be with her husband who is working there. Thankfully she is able to work remotely. They bought a camper to travel in for work. It’s an exciting adventure for them.

Alex got involved with a new band and he will be touring the west coast for a couple weeks this summer. He is planning on starting up a music studio and moving out. I wish I could travel coast to coast with my kids on their adventures. But it is not going to work out. That’s okay though. This is their time.

Arabella had her doctor appointment last week and she is on the road to recovery. She is still having some side effects from her meds, but continues not to suffer from symptoms of schizoaffective disorder. She still has her job and boyfriend. Life for her has been stable and that is all we are hoping for right now.

It has been very cold and snowy here as of late. I am ready for winter to end.

November happenings

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It’s hard to believe November is half over already. Soon we’ll be entering the holiday season and just like that another year will slip away.

Change seems to be the only thing that is consistent in my life.

Angel and Dan just bought a camper. Soon Dan’s job will be taking him to the East coast for half a year. Angel will be joining him and working remotely out of the camper. It’s going to be very strange without them living 20 minutes away. I’m going to miss them so much, but what a grand adventure.

Alex joined another band, a bigger name band that just released an album, and is possibly touring the West coast next summer. We went to see his band and for the first time we had to pay to watch him perform. The venue was crowded. It’s exciting to see where this new adventure might take him as well.

Arabella’s medication change is working out well for her. She is less like a zombie and more like the person we knew before. She is putting herself out there more and just recently started dating someone new. We met her new boyfriend already and so far so good.

My mom’s memory issues are getting worse and I was finally able to get her set up for a neuropsych eval for the end of February. I have been making a lot of phone calls lately regarding my mom and I’m hoping she can stumble along until then. I’m hoping to talk to my brothers over the holidays and come up with a plan. I don’t want to get stuck managing the care for both of my parents and disabled brother by myself.

Sometimes when life is hard, you just need to have a good laugh about it. One of my bucket list items is to do stand up comedy. I’ve been up on the stage for open mic several times now and it’s been so much fun. You’re never too old to try something new. I foresee a lot of adventures in the upcoming year!

Riding with the changes

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I have been feeling uninspired as of late. I feel bored; which I guess isn’t too bad because it is a step above feeling melancholy. There is no immediate crisis, but change is in the air. I can’t tell if it’s good or bad or just is.

The past several days have been very summer like. It has been easy to convince myself that fall is way off into the future somewhere even though the calendar says otherwise.

Uncertainty and change are all around us. Who will our next president be? What kind of changes will that bring?

There have been some big changes in the business we are running and there is uncertainty which road to take. We are waiting in anticipation to see if our finances will change. If not, what kind of changes will that bring? My husband wrestles with wanting to retire and wanting to keep working indefinitely.

I have entered a new decade and my health has been changing.

My son and his girlfriend got new jobs. My son-in-law and daughter might be moving across the country for work for 6 months. I think it’s an exciting opportunity, but I will really miss them. They could be leaving within the month or not.

My parents are experiencing a great deterioration of their health. This has been problematic in many ways. I realized recently that my relationship with my parents has been very destructive and toxic. I sacrificed my young years, my best years, trying to help them because they needed me so much. I was more of their parent then they were ever mine. Looking back, I wish I cut ties with them decades ago. But I didn’t, and now I will never be set free. I will never have the relationship with them that I would’ve wanted.

My mom has been having memory issues, but refuses to admit anything is wrong. I’ve been seeing my mom in her raw form which is very difficult to see. She no longer disguises her extreme favoritism towards my disabled brother. She insists that the world needs to change around Matt instead of helping Matt adapt to the world he lives in which has been a huge disservice. She has placed her favoritism towards Matt over the safety of her children and grandchildren. Nothing is wrong with Matt or her, the problem is the rest of the world. Yet she seeks attention for being a martyr for taking care of my dad and Matt. It’s painful for me when others talk about their fond memories with their aging parents when the only thing I have to bring to the table is shame. There is a lot of uncertainty what will happen with my parents and brother in the near future.

Then there is Arabella. She is having side effects from her medication which have been hard for her to deal with. A couple weeks back I had to take her to the ER because of it. The doctor made a mistake and it ended up being a traumatic experience for both of us. Being on her medication has been a lifesaver, but not an optimal long term solution. Just keeping someone alive is different from being fully alive. Although a lot of troubling negative behaviors are gone, she is just a shell of the person she used to be. She used to be outgoing and fun loving. Now she spends her free time in isolation in her room watching TV. Her friends are gone. Her social interaction is limited to family and work. Her ex moved on and that has been hard for her. No one ever mentions how recovery is a lonely road.

Things have even changed on the blogosphere. Some of my favorite bloggers have fallen off the face of the earth. That feels like losing a friend. I have no intentions of leaving, although I know I’ve been too much of a stranger as of late. What is the purpose? Some days feel meaningless and it’s really hard to find motivation in that mind frame. I’m trying to just ride with the changes, although I’ve never been particularly good at that.

Safe for now

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I feel like I got my daughter back. The daughter I had before everything started. Before the suicide attempts, the cutting, sneaking out late at night to meet up with strangers, the delusions, the depression, the mania, hospitalizations, jail, and all the other struggles I’ve been writing about the past 4+ years. We are getting along better than we have before.

Everything changed once she was on the right medication. At her last hospitalization, they put her on a mega dose of the powerful anti-psychotic Haldol. The doctor has been slowly trying to taper her off the medication. In the beginning her doctor also put her on Lithium as a mood stabilizer. She has been diagnosed with Schizoaffective Disorder which is a mix of schizophrenia and bipolar. After several months, her doctor tried to take her off of Lithium thinking an anti-psychotic would be enough to manage her symptoms. After a week off of Lithium, she started to hear voices telling her to kill herself. Thankfully she communicated what was happening to her with me. I called the doctor’s office and they put her back on Lithium. Once again she was stable.

At the last appointment, the doctor tried to reduce her Haldol. He wants her off of the medication altogether. I asked the doctor if the hospital made a mistake by putting her on Haldol in the first place. He said when Arabella was admitted to the hospital she was very, very psychotic. If a psychiatrist says that it must mean a lot more than usual. They had her on ten times the average dose. That’s why when we visited her in the hospital, we were traumatized to see her because she was shaking and couldn’t talk right. Her jaw was tremoring and her words were slurred. They put her on another medication for side effects of Haldol and that caused her to have vision changes.

At the last appointment, the doctor tried to taper Arabella down to a high dose within the normal range. She didn’t respond well. She started to have intrusive violent thoughts. He decided to put her back on her dose previous to her last appointment. And once again, she is stable and enjoyable to be around. If it was up to me right now, I would like to keep her on the medication she is on now for the rest of her life. But the doctor said that after being on Haldol long term she will very likely have irreversible side effects similar to the ones she had before on the mega high dose. By age 30, the medication that is saving her now will cause her to be physically disabled by her condition.

Is it worth it? We might not have another choice. The doctor said it’s going to be a very long process to get her where she needs to be. But as for right now, it’s wonderful to have my daughter back.

What to write

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I haven’t been feeling very motivated to write since I finished my book. I say finished loosely because it is going to need more work. Nothing major though. I hope to have it ready to publish by early next year.

I think I need to revisit my goals. What do I want to do next? Try my hand at fiction? Or am I happy to keep writing on a personal blog although with my book it seems like I told everything I wanted to tell. I think I want to keep writing in some capacity, but what?

There are always things going on in my life to write about. I guess I wasn’t meant for a life of mediocrity. Sometimes I am jealous of people who live an ordinary average life who can join groups on Facebook called the dull women’s club. True story, I looked at some of their posts and some people just sit around watching their garden grow. I could only post about watching my plants slowly die.

I figured part of my problem is that I was never shown how to care for plants. My mom got rid of all our houseplants when she went on a kick that my brother Matt was allergic to them all. Last summer I bought a banana plant and the only way it lived over winter was because a friend showed me basic plant care 101.

My grandpa had a nursery when I was young. One day, he pulled out a dying shrub he was going to get rid of. I decided I was going to ‘rescue’ the shrub. So I planted it in my backyard and watered it everyday. One day I went out to water it, and it was no longer dying. It even looked twice its size, green and healthy. It was a miracle, I saved it. But now as I am older I realize my grandpa probably had something to do with my unrealistic expectations about plant rescue.

This is totally going in an unanticipated path. I do have a lot of stories to tell, but we’ll save them for another rainy day. There have been a lot of rainy days as of late. The arthritis in my knee has been acting up for the last week or so. I may soon be able to predict the weather like my relatives of old. My arthritis is acting up, it’s going to rain. How time changes things. Five years ago I would be trying to get in a run before the storm. Now I sit around and complain about how hard it is to walk because my joints can feel the rain coming. It’s hard to think I will never be able to do something again I used to enjoy so much.

Maybe I’m just having another mid-life crisis. I will be 50 in less than a month. It’s hard kissing my 40’s good-bye. Fifty is old. I’ve gained weight. I can’t see worth a crap. Some days I have a hard time getting around. Arthritis. Grey hair. I don’t look or feel young anymore. I’m at an all time low, but it’s not going to get any better. But I’m trying not to complain about it too much because those people are just a drag to be around.

Otherwise, things are going okay. Arabella is stable on her medicine. On Monday, she has a goal planning appointment with her new case manager to help her gain independence. She literally hasn’t visited with friends for weeks and spends her day following me around. I don’t mind all that much. I’m trying to enjoy what time I have with her. She never liked me before so in that way it is kind of nice. I know I’m cool and all, but I want much more for her than that.

My other two kids, Angel and Alex, are not getting along. That has been stressful because I hate feeling like I am in the middle especially with a holiday weekend coming up. Not to mention dealing with the extended family. Then having a party and turning 50 right after that.

I have been feeling pensive and melancholy lately. Maybe I just need a little sunshine.