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Our visit to Acadia and Bar Harbor

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From Kennebunk, we made our way to Bar Harbor. On the way, we stopped in Bangor for lunch and to snap a couple of pictures outside of Stephen King’s house.

A fitting house for the King of Horror.

We stayed at another Airbnb a couple miles from Acadia National Park for 3 nights. On the morning of our first full day my mom, Paul, and I checked out Acadia. First of all, the park is huge. It took us a long time just to figure out where to go to get a park sticker. Our navigation didn’t work well on our phones. The park was packed, there wasn’t a space available in the main lot or the overflow lot to purchase a park pass.

We thought the park wouldn’t be as busy as it was in the end of September after the school year started. The parking was awful. There really wasn’t anywhere to park along the trails or scenic turnoffs. We did try to stop at one place and our monster SUV hung out a little. We were told to move by a park ranger so we didn’t even get any photos. Thankfully there was one place we were able to stop that was really scenic where multiple cars parked on the side of the road. At that point we were starting to get frustrated by the traffic and parking situation. We probably wouldn’t have wanted to go back if it wasn’t for this view.

The free park map was also really difficult to read if you are not familiar with the area. It did list hiking trails but nothing about the trails in general such as length or difficulty. If you are going to visit specifically to hike I would do a lot of research in advance. We were winging it a bit because we were going with my mom and daughter who don’t have the stamina of Paul and I.

The second day we decided to go to Bar Island. It’s a pretty cool experience because you can walk across the land in low tide to the island. In high tide the path to the island is totally covered with water. I would say it was a moderate hike as it was mountainous. You had to walk uphill on the way there and downhill on the way back on the island. There wasn’t a lot of flat surface on the island itself which was a little more challenging for my mom. The path to the island was rocky.

The view from the top of Bar Island.
Low tide.

We spent the afternoon visiting shops and buying gifts in Bar Harbor. Then we ate lobster on our last evening in Maine.

Gratitude week 85

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  1. Summer! The last couple of days the weather has been perfect. If only we had this weather last week so we could cross Lake Michigan. But I’m not complaining. I’m going to hold on to these nice days as long as they last.
  2. Even though we weren’t able to cross the big lake, we were able to go to some nice places. The pictures turned out great and maybe just maybe I’ll share some later this week.
  3. Although Angel tested negative for COVID, both of my daughters lost their sense of taste and smell. But they are both feeling a lot better and so far no one else has gotten sick that I know of.
  4. Although I love to travel, it is nice to be back at home and sleeping in my own bed.
  5. It’s nice to have a week with nothing planned until the weekend. I decided to spend some time today in the pool and started a new book. I try to remind myself that we were still supposed to be on vacation when I feel like I am being lazy by taking it easy.
  6. I’m grateful to find out what I don’t want. Paul and I are thinking ahead to our 25th anniversary next year. I was thinking that it would be fun to sail somewhere beautiful for our summer anniversary. But after the frustration of not being able to do anything that we planned months in advance for this last trip I would rather do something else.
  7. I started reading My Sister’s Keeper. It’s a great piece of fiction. I wanted to read more memoirs like Educated which was phenomenal. I decided this fall I will start the second edition of my book. I want to read some good memoirs in the mental health genre in the meantime. I want to analyze them to see what makes them great (if they are). Really good books in that genre are hard to find. If anyone has suggestions for books especially dealing with family members with mental health struggles, please let me know.
  8. As much as I hate to admit it, I’m grateful to have a crazy life to write about.
  9. I’m grateful that I don’t have a gas leak in my house especially since after we left we had the rest of the household lose their sense of smell.
  10. After I couldn’t find any in the stores, I’m grateful that my husband was able to order goat macaroni and cheese online for me. No, it’s not made out of goats but it is dairy free and delicious.
  11. I’m grateful for my husband, who was a big part of the leadership for the Lake Michigan crossing cruise, for the difficult decisions he had to make in order to keep everyone safe. We had a total of 5 boats wanting to make the crossing. A majority of the sailors have never sailed across before including all five people on our boat. Some of the boats were small. The rest, besides our boat, had only one experienced sailor with either inexperienced crew, incapacitated crew, or passengers that were very nervous. In some ways I’m grateful we didn’t cross because I couldn’t relax with a sick child at home. I guess it wasn’t meant to be this year.
  12. I’m also very grateful for the people we tried to cross Lake Michigan with, especially those on our boat. Everyone was very kind and supportive after we received the news that our daughter has COVID. Some offered rides home. No one expressed anger or irritation that they could’ve been exposed through us or that we wanted to go home early. Everyone seemed to have the attitude that being sick or exposed was the new world we live in now. I’m grateful to be around a wonderful group of people with a similar hobby.
  13. I’m grateful that my best friend has a new grandbaby.

The daughter

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Romantic films have happy endings. In real life only the beginnings are happy and nothing ends well. But then, nothing really ends.

The Daughter by Jane Shemilt

I picked up the book The Daughter at the airport in Chicago as I was waiting for my flight. I brought a book with me but almost finished it on the long layover. I bought the book because it looked intriguing. I know, I know, one should never choose a book by its cover. I didn’t know the author. How risky!

The main character of this fictional book was a physician whose daughter went missing. I don’t want to give anything away so I won’t. I’ll just tell you that I really liked it and think you would like it too. It struck some heavy chords such as if I wasn’t so busy at work I would’ve known something was wrong with my daughter.

Blame. It’s so easy to get into that trap as a parent. I’ve asked myself many of times what I did wrong. Maybe if I was paying more attention I would’ve known my daughter was depressed. Maybe she wouldn’t have tried to kill herself. Maybe she wouldn’t have mutilated her body so badly from cutting that she needs plastic surgery to look like she did before. But maybe, just maybe, I am part of the reason she is alive right now.

It’s hard not to blame yourself as a parent in the transition from everything’s normal to there is something really wrong. It’s easier to brush it off as a one off even though the patterns indicate it’s clearly not. We tend to trick ourselves into believing everything is fine and blame ourselves later when it’s obviously not.

At the end of the book I read the write up on the author. She is currently a full-time physician and mother of five. In her free time she went back to school to get a Master’s degree in writing and wrote a couple of books, one is a bestseller that I didn’t read yet. How impressive is that?? The author has a brilliant mind and it comes through in her writing. I loved the above quote from her book. Her quote pretty much sums up why I don’t like romance novels. Sometimes life is messy and things don’t work out in the end. I read a book a couple of months back that was a real mess but everything magically worked out in the end. I hated it because it offered false hope and not real life.

My favorite genre of books are psychological thrillers, mysteries, and dramas. I love reading self-help books too because who doesn’t want to fix themselves and everyone around them?!? I also love the classics, historical books, and survival stories fictional and non.

I don’t always want a happy ending. I want real characters and personable honest people. What are you really thinking and experiencing? I want problem upon problem. I want to know how people handle adversity. I don’t want things to magically work out in the end. I don’t know about you, but that is not how my life has been. I want to analyze how people deal with difficult circumstances. I want to know about the things you don’t want to tell anybody.

I finished my book that I was writing. It’s been over a year now. I even sent it off to test readers. But things changed. Since then I found out about the crime my dad committed. My daughter started struggling with serious mental health issues. I was no longer constrained to writing about my experiences as a sibling of someone with serious mental health issues. I could now write as a mother.

I am hoping to process everything I’ve experienced within the past year and write about it on my blog. From there I would like to incorporate it into the first edition of my book. To me it’s not all about happy endings, it’s about learning to live with what we have been given. There is beauty to be found in tragedy. That is where real stories of hope, courage, and inspiration lie.

I finished my book!!

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Last night I finished my book, my life story. It stirred within me many mixed emotions. I felt like I was covered in a blanket of deep sorrow, yet at the same time I felt joy. It’s been a journey of remembering and releasing in words previously unexpressed.

Last night I sent my book to two test readers, a friend who is an author and a friend that is a child psychologist who works specifically with autistic children. I also sent a copy to my therapist. After I receive feedback, I will edit my book again. Then I want to send my book to my husband, my daughter Angel, my son Alex, and my brother Luke. After that, I am going to find a publisher. Then I will share it with you.

Perhaps this will start the healing process, perhaps not.

I figure if I can do some really difficult things (like running a 50k or writing a book revealing my trauma), then I probably can figure out a way to do something almost everyone can do. Relax. Heal. Let go.

I have been working with my therapist on brainspotting. I shared my first session with you and that was a very positive experience. After that session, things took a dark turn. I have been releasing all of the negative garbage I’ve been holding inside. It stinks! I’ve been working hard on trying to express my feelings. It has been painful, yet beneficial. Through this process, my lifelong struggle with insomnia and nightmares has gone away.

For a long time, I understood myself. I know what triggers my depression and anxiety. I understand the attacks of my trauma on my well being. But I’ve never known what to do about it. Visiting a therapist is taking the next step. Self-awareness is important, but it isn’t a catalyst for change.

I’m trying to give up control. It’s not like I had any in the first place. Just like being a clean freak never seems to make the dirt go away. Being a control freak doesn’t give peace and serenity to the voice that cries out for it. Worry is a waste of time. It doesn’t bring me peace.

I am trying to figure out who I really am. For most of my life I lived in survival mode. Now who am I? The person I needed to be to survive? Or who I really am? It’s hard to be myself if I don’t know who I really am. It’s a new time for self-discovery and growth. I want to fully experience my purpose in life.

I started meditating. Maybe I will try yoga. I always burned my anxiety off by hard workouts at the gym. This is how I process my anger. I am going to keep this, but add to it by including relaxation exercises.

I am going to read a Bible verse a day. This will incorporate inspiration for spiritual healing and growth. I want to trust God more. I also want to trust the people that care about me even if it means I might get hurt. I want to cultivate meaningful relationships. I want to cut off unhealthy relationships altogether, and if I can’t then I’ll set healthy boundaries.

I also started visiting a wellness clinic for physical healing of my body. My nervous system took a big hit from the long term stress. I suffered from stomach and GI issues my whole life. I’ve been working on avoiding the foods I am sensitive to and rebuilding my gut for optimal physical health.

If I can train my body for a 50k, I can train my body for growth and healing. My book is done, but I will never stop writing. The story hasn’t ended yet. The best is yet to come.

I finished my book!!!

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Tonight I’m celebrating.

I finished my book today!

I know that now the hard work begins…editing…trying to find a good publisher. But tonight I will put all those worries aside.

Tomorrow the video I created will be sent out to hundreds of parents of autistic children. Then it will be posted online to be viewed by countless people. I am nervous and excited to see what will happen.

Thanks for your continued encouragement and support!! I just wanted to share the good news!

Write, right?

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It’s been a busy week and I haven’t really felt like writing.

Most of the time I have no qualms about throwing it out there. But for some reason this week I’ve felt impersonal. I want to keep my distance and my thoughts to myself. I worry that I’ve already shared too much.

I feel frustrated. My thoughts are fluctuating about my writing. One day I have great confidence. My book will be a bestseller and I can’t wait to chronicle my descent into despair. The next day I want to walk away from it all and not open myself up to be vulnerable to the world.

I don’t think I’ve ever read a book that has been as personal as mine is going to be.

Word has gotten around that I am writing a book. I got a call from a publisher this week. She wants to meet for coffee to discuss my book. She said that memoirs are flying off the shelves right now. She wants me to send her a sample of my book. I am thinking about turning her down, but I am not sure if that is a smart idea. She is a small publisher that mainly publishes works of fiction.

I am not ready to deal with this yet. I want to take my time and write a great book before I worry about finding a publisher. Then I feel bad because I have some good friends who wrote great fiction books and haven’t been able to find a publisher.

The end of the summer, I will be public speaking about being a sibling with an autistic brother. My contact said that once I have my book written, she had someone interested in publishing. I would prefer to publish my book in the mental health memoir genre. Now I will need to reach out and contact them to see what my options are. It is all very confusing as a first time author.

All I want to do is write my book and not worry about anything else right now. The publisher said that if I finish writing a book, I will find myself in the 1% of the population who has. That is rather exciting, but I have no interest in being an author.

I just want to write my book. I’m not sure what I’m going to do after that. I can see myself doing public speaking and being an advocate for families, especially siblings, of the disabled. But I haven’t even done my first public speaking stint yet. Maybe I won’t like it. Maybe I won’t be good at it. The thought of public speaking about something this personal is starting to fill me with anxiety.

I’m not sure where this path is going to lead me and I am filled with doubt. But I think I need to keep writing.

Write, right?

Outrunning my demons

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Arabella skipped school today. She was very upset and was crying this morning because she did not get cast in the next community theater show.

For some reason, it brought back memories for me of the time I tried out for a community theater show when I was a couple of years younger than her. Maybe it’s just because I am almost to this point in my book.

I remember sitting outside in the sunshine with other children that summer working on my lines. I got the part of a princess. I was a pretty little girl with the sun hitting my long golden hair. I was happy and excited about my part. It made me feel like I really was a princess.

But something went wrong. My brother Matt had to spend the summer in the hospital. I had to drop out of the show because my brother was really sick. (It took me 20 years to audition for another show).

After that, my whole life changed. My brother became home bound after getting out of the hospital. I saw the paperwork for that yesterday. The original paperwork gave him a period of 2 months to be educated at home. But he was home bound for over 3 years. My mom quit her job and pulled my other brothers and I out of school as well. It was the time of the great isolation. Few people were allowed to come in and we rarely went out.

I am making excellent progress on my book. I try to work on it several hours every day. There are usually one or two days a week when I cannot. Right now I am over 30,000 words and am nearing the halfway point in my story.

I’ve decided to title my book ‘Outrunning my Demons’ with the subtitle of ‘What Life is Really Like with a Mentally Ill Sibling’.

I know my daughter is very disappointed right now that she didn’t get a part in the show. I feel bad for her. But in a few days she will be on to something else. She probably won’t even give it another thought a couple months from now. But I will always remember the summer, over 30 years ago, that I could no longer be a princess.