Thank God for masks, I guess…

I am at the age of being in the sandwich generation. Meaning I have a child that has not reached the age of adulthood and aging parents that are both in the need of care. I am stuck in the middle. It is different now than it was a couple of years back. The issues I’m dealing with now are more mental health related in nature. I’m finding it hard to take time for my mental health. I’m afraid I am starting to slip.

Although I only have one child under the age of 18, it has been very difficult because of her severe mental health issues. She is currently in a residential mental health facility. Some days I actually have a lot of hope and other days I struggle. Paul and I can’t make visits because of COVID, but we talk on the phone six days a week for 15 minutes and Facetime twice a week. Sometime the conversations don’t go well. Last night she begged for us to send her things and spent the rest of the time arguing then ended up hanging up on us. In those moments, I wonder what kind of return we will get on our tens of thousands of dollars investment. I know that sounds harsh. But is she going to come home and kill herself anyway? It’s easy to have hope when the conversations go well or when she isn’t here to argue with everything we say. I imagine her in an environment of constant healing where she will return healthy or at least more like she was before. But is that realistic? I can’t bear to think it is not.

It was hard this Easter because she wasn’t here with us. My mom decided not to come either. She said she was too tired despite me telling her a few days before that we could arrange for her to get a ride here and back home. She didn’t have to prepare any food. She could even spent the night or rest in another room if she wanted to, but apparently she didn’t want to. It was extremely disappointing. I found myself angry, sad, and confused. She didn’t have to do anything but show up, eat, and then go back home. She said once she got the vaccine she would visit. But where was she for the holiday? It seemed like a lame excuse.

She would bend over backwards for my autistic brother Matt. Although she was tired she helped organize a birthday party for him with his autism group to have lunch at a sports bar. My daughter Angel’s boyfriend Dan had his 21st birthday party at a sports bar a couple years back and Matt has been talking about it ever since. Matt liked the music and the rowdy drunk patrons at a nearby table.

Right before the party, Matt got a rash. It wasn’t dangerous at all but it was painful, red, and itchy. Matt was really anxious and agitated about it. In response my mom also became very anxious about it. Their anxiety fed off of one another and festered bigger than the rash itself. Matt was like the kid on the playground that got hurt and waited to watch for mom’s reaction and he got one because she was freaking out about it. Matt was so upset that he did not want to wear the birthday button or really participate much in his event at all.

The coordinator of the autism group was trying to build some excitement in Matt about the button and the fact that my mom made him a cake. She told Matt that her mom didn’t bake her a cake on her birthday. I thought to myself neither does my mom. The whole party my mom catered to Matt. She helped him use the bathroom which he is fully capable of doing himself. She also cut up his hamburger into bite sized pieces. Again, something he was capable of doing. She babies him so much that it really is a disservice to him. Everyone needs to cater to Matt. Matt never has to adapt to his environment. He never has an opportunity to learn and grow for himself.

Sometimes I feel a twinge of jealousy because I want to have a mom like Matt’s. She pretty much let the rest of us fend for ourselves. I want a mom to plan my party and bake me a cake. But she couldn’t even show up for Easter because she was tired.

The last time I saw my mom she showed me where all her passwords and special papers are. She is convinced that she is going to die soon. I thought about a week ago she was going to have a nervous breakdown. She wants me to take care of Matt like she does. She totally bypassed my dad in the whole process. I feel extremely burdened by it all. I can’t even spend a lot of time thinking about it because it is too stressful for me. Doesn’t my mom understand that I am already close to my breaking point? Instead of helping me through this, she brings me down.

All I wanted was my mom to come over for Easter. I was already sad that my daughter couldn’t be here. It’s not like she was on vacation. She is in a mental hospital. Her whole senior year went down the drain and I really don’t know what the future will hold. It is hard to take.

I can’t remember anymore what it feels like to feel joy. It’s been a long time since a genuine smile touched my face. Thank God for masks, I guess.

Feeling tested

The last time we talked I told you that my daughter Arabella was admitted into a residential mental health treatment facility. What I didn’t tell you was that at the same time my other daughter Angel most likely had COVID.

Last weekend I briefly saw Angel’s boyfriend Dan. We were close to each other for a few minutes while I opened the sliding door we all walked out of. I was in close contact with my daughter Angel who was in close contact with her boyfriend Dan. Are you following me yet?

The next day Angel goes to Dan’s house. While she is there he develops a fever. She decides not to come home. The next day Dan has an instant test and tests positive for COVID.

To make matters more complicated, my mom stopped by with my brother Matt on Saturday. My mom and Matt both received all of their COVID vaccinations. Because of COVID, I have not seen my brother Matt since last June when my mom had a medical emergency and I needed to take him back to his group home. Once he returned to his group home, he couldn’t go back home until fully vaccinated. My brother Matt has not seen my daughter Angel or her boyfriend since Christmas of 2019 again thanks to COVID. After the visit, before we found out Dan was sick, my mom took Matt back to his group home. My mom and brother were not in close contact with us but they did give everyone hugs including Dan.

Monday morning Dan has an instant COVID test and tests positive. He gets really sick. His mother gets sick. My daughter Angel gets sick. So far his father is fine.

What am I to do? My daughter was scheduled to be admitted into residential care. This was her last chance to get into a great adolescent program. She will be an adult in 2 months and they said if she didn’t fill the bed she would lose the opportunity. She had to wait 3 months to get in.

I decided to call the COVID hotline. Not only was it a bad connection, but it was useless conversation. She told me that my situation was really unusual and complicated and that I would be better off calling my doctor or going on the CDC website. My husband and I fought over what to do next. We don’t see eye to eye on COVID. Words were said that weren’t meant.

Meanwhile, my mom’s COVID anxiety ramped up again. She called the group home, program, and case managers. Two of the people told her that Matt should be okay since he had both shots. What more could she do beyond that? Is he never allowed to see family again after everything was done in her power to prevent him from getting sick? Two of the people my mom contacted chewed her out. They said how irresponsible she was. One of them even told Matt he wasn’t going to be allowed home again which caused him distress. My mom was beside herself with worry about Matt. I tried to calm her down but I was worried myself about the ones who were already sick and what would happen next.

I was worried that my brief exposure to Dan would be enough to get me sick and then I would get Arabella sick and then she wouldn’t be able to go into residential. Or Arabella would get sick alone and spread it on to others in a hospital setting. A few days after Dan got sick, Angel got sick too. She got sick several days after I saw her last. I felt pretty confident that I didn’t get exposed from her. I felt iffy about Dan though. I did see him although we weren’t in close contact for very long at all. According to the CDC website I don’t think what we had was considered close contact but I still wasn’t sure because I saw him right before he got sick. But who knows? It’s not like I was keeping track of how far apart we were or how long he was in the room.

Thankfully I had Arabella tested for COVID right before she was admitted and it came back negative. Now it has been several days since I saw her and I still feel fine. I take my temperature everyday and I have been laying low. Everyone has been telling me I have to stop worrying about it and trust God. I’m trying but this has been really stressful. To be honest, trust wasn’t my first instinct. I felt angry. Of all times, why does this have to happen right now??

The first time my mom takes Matt out of the group home he gets exposed. Why God? Why? I sometimes wonder if my family is cursed. Arabella is healthy and everything ended up being alright. But still??!? It was horrible timing to go through a COVID scare. Plus I’ve been worried sick about Angel and Dan and his family. It’s hard knowing my daughter is sick and there is nothing I can do to help her. I’m feeling that way about both my daughters right now.

I ran over to Dan’s parents house today and dropped off some medicine, vitamins, and Gatorade. Angel is feeling a lot better already, but Dan is still pretty sick.

What a week! What a wreck it has made of me! I feel so tested.

The daughter

Romantic films have happy endings. In real life only the beginnings are happy and nothing ends well. But then, nothing really ends.

The Daughter by Jane Shemilt

I picked up the book The Daughter at the airport in Chicago as I was waiting for my flight. I brought a book with me but almost finished it on the long layover. I bought the book because it looked intriguing. I know, I know, one should never choose a book by its cover. I didn’t know the author. How risky!

The main character of this fictional book was a physician whose daughter went missing. I don’t want to give anything away so I won’t. I’ll just tell you that I really liked it and think you would like it too. It struck some heavy chords such as if I wasn’t so busy at work I would’ve known something was wrong with my daughter.

Blame. It’s so easy to get into that trap as a parent. I’ve asked myself many of times what I did wrong. Maybe if I was paying more attention I would’ve known my daughter was depressed. Maybe she wouldn’t have tried to kill herself. Maybe she wouldn’t have mutilated her body so badly from cutting that she needs plastic surgery to look like she did before. But maybe, just maybe, I am part of the reason she is alive right now.

It’s hard not to blame yourself as a parent in the transition from everything’s normal to there is something really wrong. It’s easier to brush it off as a one off even though the patterns indicate it’s clearly not. We tend to trick ourselves into believing everything is fine and blame ourselves later when it’s obviously not.

At the end of the book I read the write up on the author. She is currently a full-time physician and mother of five. In her free time she went back to school to get a Master’s degree in writing and wrote a couple of books, one is a bestseller that I didn’t read yet. How impressive is that?? The author has a brilliant mind and it comes through in her writing. I loved the above quote from her book. Her quote pretty much sums up why I don’t like romance novels. Sometimes life is messy and things don’t work out in the end. I read a book a couple of months back that was a real mess but everything magically worked out in the end. I hated it because it offered false hope and not real life.

My favorite genre of books are psychological thrillers, mysteries, and dramas. I love reading self-help books too because who doesn’t want to fix themselves and everyone around them?!? I also love the classics, historical books, and survival stories fictional and non.

I don’t always want a happy ending. I want real characters and personable honest people. What are you really thinking and experiencing? I want problem upon problem. I want to know how people handle adversity. I don’t want things to magically work out in the end. I don’t know about you, but that is not how my life has been. I want to analyze how people deal with difficult circumstances. I want to know about the things you don’t want to tell anybody.

I finished my book that I was writing. It’s been over a year now. I even sent it off to test readers. But things changed. Since then I found out about the crime my dad committed. My daughter started struggling with serious mental health issues. I was no longer constrained to writing about my experiences as a sibling of someone with serious mental health issues. I could now write as a mother.

I am hoping to process everything I’ve experienced within the past year and write about it on my blog. From there I would like to incorporate it into the first edition of my book. To me it’s not all about happy endings, it’s about learning to live with what we have been given. There is beauty to be found in tragedy. That is where real stories of hope, courage, and inspiration lie.

The day after the police came

The day after the police came was the large extended family Christmas party. We showed up a little late since we were having vehicle trouble. In fact, Paul dropped us off at the party while he tried to figure out what was wrong with his truck.

When I walked in I saw my mom hugging a relative and crying. I was looking for signs that she knew something was up with my dad. Crying at a family Christmas party was not outside of the norm. It happened so often as a kid that relatives prompted me to be a good girl and take care of my mother.

My dad didn’t show up to the Christmas party. That wasn’t out of the norm either. He didn’t show up for Thanksgiving at my house. He didn’t really take an interest in family gatherings. Sometimes he stayed home with Matt so he would have a good excuse not to go. He couldn’t use Matt as an excuse anymore because Matt was there and no longer violent thanks to anti-psychotic medication.

I wasn’t feeling very festive last year and really didn’t want to go. But it was important to keep up the appearance as if everything was normal. This was not unusual for me either. Trying to muster up some fake smiles while my life was falling apart. Yeah, just found out my dad is a pedophile which triggered traumatic memories but hey life is great because it is the Christmas season. I’m good, how are you?

On a quest to find vehicle answers, Paul’s truck broke down and we had to have the vehicle towed to a garage. Perhaps this could be my excuse for the forced smiles. Yeah, I’m worried about something else.

Something seemed a little off with my mom. She said she needed to talk to me about something important. Did she know?

We ended up getting a ride home from some relatives that lived near us. I tried calling my mom later but she didn’t answer. She called me back when she got home but didn’t talk about anything important. What was going on?

The day the police came

The day the police came was a day like today, a Friday afternoon in early December. It was the opening night for the local community theater show that my daughter Arabella and our foreign exchange student Clara were performing in. The following day was the extended family Christmas party.

The original plan was that my brother Luke was going to be coming home to visit my parents with his family. They were going to see the show and go to the Christmas party. But thankfully my brother cancelled those plans after he was diagnosed with kidney disease a couple weeks before. The doctor told him he needed to try to take it easy and cut back on some of the stress in his life. He decided to stay home instead. Otherwise he might have showed up as the police arrived.

The police knocked on the door asking for my dad. My mom said he couldn’t come to the door because he had a hard time getting around. Several officers came in to talk to my dad, several more to talk to my mom, and another to search my parents house.

I thought my dad was going to be arrested when the police came. Instead they took all the computers in the house. They also went through my mom’s ipad and phone which were as expected clean.

My brother Matt was home for the weekend too. He wondered why the police were at their house. My mom told him that they were checking to make sure the computers were safe. Surprisingly, the answer seemed to placate Matt. He didn’t seem to notice that our mom was crying. He wasn’t shocked or angry. He somehow believed that several squad cars can show up at someone’s house just to make sure everything was safe. Life went on as normal for him.

That night my mom attended the show. My best friend Cindy and her family took my brother Luke’s tickets. My mom carried on as usual. I acted like everything was fine as well. We rivaled the community theater performance.

I didn’t know that the police arrived at their house until a couple days later.

Caring for Matt

It’s been at least a decade since I took care of my autistic brother Matt in my house. A few things precipitated this change. Initially I stopped providing weekend respite care for my parents after Matt was violent towards my daughter.

There may have been a few times I took care of Matt and my mom took my kids although it wasn’t much of a break. It was difficult raising 3 little kids without having much for family support. My mom had to take care of Matt. My brothers didn’t live close. My mother-in-law could barely handle raising the one child she did have, my husband. I found myself bitter towards parents that could dump their kids off and get away every now and then.

But the biggest change for me as a care provider for Matt was when my parents placed him in a group home. I was no longer needed to help out, until now that is. Matt’s group home was closed since the virus started. It is now open but if he goes back this month, he is not allowed to leave.

Originally my mom wanted me to stop by the house every night to make sure Matt was okay under my dad’s care. I told her it would be easier for me to have him stay with us for almost a week which is longer than he has ever stayed with me before.

I told my kids that Matt was coming to stay here for awhile but they wouldn’t have to adjust their lives around him. If it didn’t work out, Matt could always go home and I could check in on him everyday. One of my kids called me selfish for saying that our world didn’t revolve around Matt.

As a child my whole life revolved around Matt and if I had to tiptoe around him in my own house it wasn’t going to work. No other family member is willing to step up and offer to take him in for almost a week. That should count for something.

The whole experience went better than I expected. Although Matt is no longer violent, caring for him is not easy. He is on a special diet. I needed to make separate meals for him. At certain times of the day his medicine needs to be ground up and put into applesauce. He doesn’t have table manners. He farts and belches at the table. Sometimes he gags on his food especially if you bring a napkin near him.

He has poor hygiene. He is a messy eater and soils his clothes. He often wears his clothes inside out and/or backwards. He doesn’t change his clothes often. He refused to shower which he would need assistance doing. He wouldn’t ask for help after using the bathroom and made a mess on the floor. I had to floss his teeth and big clumps of food came out of his mouth which made me feel nauseous. He made a total mess out of the bathroom he used. In all honesty, it did trigger feelings of hopelessness in me.

Not only are my parents hoarders, but they rarely cleaned the house. Cleaning up after Matt would be like fixing up a house before you knew a tornado was going to hit. I didn’t even feel completely relieved that everything was clean after I cleaned once he left. I can’t always clean up messy feelings inside by cleaning the filth in my house.

I felt guilty when I wasn’t spending every minute taking care of him. Most of the time he would sit on the couch and stare off into space when I wasn’t interacting with him. I felt the ingrained need to please him because his life is so sad.

I found his favorite movies and put them on for him to watch. We went on walks together. I talked to him about the shared good memories from childhood. I talked about places and loved ones that long since passed. I talked to him about the things only a sibling would know. All these things helped ease his separation anxiety from my mom. I think things went really well, as good as I could have hoped for.

As a sibling, I worry a lot about what life will be like for Matt when my mom is no longer here. My parents are getting old. It is comforting to know that maybe he will adjust with my help. Matt will probably never be easy to care for but I think he would do well with me. I was impressed with how well he adapted to his new environment. It felt good to be able to help my mom out. In some ways it was nostalgic and strangely comforting for me as well.

 

Gratitude week 23

  1. I am finally feeling like I am making progress on my self-improvement project.
  2. Summer weather!!
  3. I was able to get out on the sailboat for the first time this season.
  4. Things went better than I expected taking care of my autistic brother Matt. He adapted to our family well. More on this later.
  5. Taking care of my brother allowed my mom to get away with her sisters for a few days. It felt good to be able to give her a break. She decided she didn’t want to let fear control her life.
  6. I’m grateful our best friends had a really good experience with the foreign exchange student our daughter talked them into hosting. It was sad to say farewell to him over the weekend, but I’m grateful for the experience they had and we have had with our foreign exchange students. They are all awesome which says a lot since I’ve heard quite a few horror stories.
  7. I’m grateful that Paul’s new business is doing better than he thought it would.
  8. I’m grateful that for the first time I had a good experience singing in church. It has been difficult at times singing about the love I feel or the trust I have in God when I am struggling with that. Not only that, but I was able to sing relatively anxiety free. There were times that family issues made me feel panic or the thought of having to run to the bathroom in the middle of the service was terrifying.
  9. I’m grateful to have a clean house today.
  10. I’m grateful for the times I feel like everything is normal. That’s saying a lot because the last few months have been far from normal in so many ways.

Trips to the dump

I thought of my grandpa the other day as a baby bee brushed against my fingers.

Things fell apart the summer I turned 13. My grandpa fell trying to get out of bed in the morning and spent the summer in the hospital trying to walk again. It was the year after my brother Matt spent the summer in the hospital. My grandpa wasn’t the same after that. He was diagnosed with a rare autoimmune disease. Before he came home a wheelchair ramp was added and the bathroom was remodeled to accommodate a wheelchair. He never walked again.

Maybe that was the year things got harder for me. My grandma was one of Matt’s biggest caregivers and now she needed to take care of my grandpa. That put a lot of pressure on me and I stopped my social life before it really even started to help take care of my brother.

But before grandpa got sick, we had some good times together. He used to take me fishing. I must have talked his ear off because he told me I was scaring the fish away with my incessant chatter. Many years later I found out this wasn’t true.

We also had our occasional Saturday morning trips to the dump. Grandpa would back his truck into our driveway to pick up our garbage which wasn’t a lot since we had a burning barrel and a compost pile. My parents are hoarders, so only true garbage was thrown away like used cat litter. Although sometimes that was used in the winter on the ice. Everything had a use or purpose even when it didn’t. Some rooms of the house and even the garage were dedicated junk piles. It was one of the zillion reasons I didn’t have friends over often. Apparently most people seem to find hoarding off-putting.

But anyway, the trips to the dump with my grandpa were wonderful. He was friends with the dump man who was also a hoarder. I swear the guy would go through everyone’s garbage to find treasures to take home. There were bags of garbage everywhere, some were burning in a big pit.

The dump was sandy and smoky. It wasn’t a good place to be on a windy day. But when there wasn’t wind, there were bees. The dump man said I didn’t need to be afraid of the bees. He told me to put out my finger and the little bees would land on it. I did and they tickled my finger. Since then I’ve never been afraid of bees or wasps and they have never hurt me. Of all the things I am afraid of, I’m not generally afraid of animals. My dad was afraid of spiders so he never used them to terrify me. Win, win I guess.

My grandpa and I made several trips to the dump because we were looking for the perfect bike. The dump man started setting aside the bikes for us that others threw away. Then one day we found the perfect piece of junk. Grandpa lovingly painted it purple, my favorite color. He put on a new chain, new tires, and a new sparkly purple banana seat.

One day I outgrew the little one speed bike. My last birthday before grandpa got sick, he took me to the store to buy a bike kit so he could put a ten speed together for me. It meant a lot because he bought it new and also because he took me to the store to buy it. That was the first and last time I remember my grandpa going inside a public place. He refused to leave the house after he was wheelchair bound. We had to fight with him to go to the doctor when he needed to go. He didn’t even go to my wedding. He would even panic if grandma was gone for more than an hour or two.

So when I saw the little bee buzz by the other day, I put out my finger to say hello. It instantly took me back to the trips to the dump. How crazy to have the trips to the dump be one of my fondest childhood memories. I am thankful for that though. My younger brothers barely remember the good times with grandpa before he was in a wheelchair.

 

 

In health

Yesterday I had my first Craniosacral therapy appointment after the start of the pandemic followed by an appointment with my therapist. Afterwards, I felt great. I finally feel like I am making some headway with my healing process.

Fixing myself has been hard because I’ve been broken so long I got used to the cracks. It’s been an adjustment. It’s created some problems I’ve never guessed it would. Now that I am healing I’m starting to notice the brokenness around me more. For example, I find myself more critical of my husband because I feel like I am in a healthier place than he is. Before he was always the healthier one.

Since I started seeing the therapist a year and a half ago, I’ve gone through several crises. My therapist wants me to focus on letting go of the original trauma that I hold locked inside my body and mind. She thinks that once I do this all of the other stressors will flow through. I liken it to Tetris. If you clear out the bottom rows before everything starts piling up, it will be easier for everything else to flow through.

My therapist told me that with three teenagers in my house life realistically won’t be stress free anytime soon. What she says is true. Teenagers are stressful even when they aren’t trying to be. For example, our foreign exchange student Estelle wants to join in the protesting. I told her that she couldn’t because I couldn’t guarantee that it would be peaceful. I am in charge of someone else’s child and I want to feel reasonably sure that the activities she is involved in are safe.

Then Estelle said she wanted to run a mile every hour for 24 hours to raise money instead of protesting. Her idea was that she was going to run alone on country roads by herself day and night. She was rather upset when I said no to that idea too. Then she asked if she could run laps around the house at night and I told her it would be perfectly fine.

I think Estelle will be frightened running around the house at night. I took my brother Matt for a walk today and we saw 4 deer. We saw the cutest baby fawn. My autistic brother Matt is staying with us for a couple days. My mom is going up north to visit with her sisters for a couple days. I’m proud of her for not living her life in fear.

This means that I will be helping Matt with daily living. I will be fixing his meals separate from ours since he is on a special diet. I will have to help him shower, clean up himself after going to the bathroom, floss his teeth, and give him his medication. He is quite used to getting his way so I want to see how he will handle being with my family for several days. Someday when my parents are gone I will probably take him in once a month to stay with me if this works out.

If it doesn’t work out, I will take him back home to stay with my dad. I will just run over every day to check on him. My husband thinks it’s funny that my mom trusts me more than my dad to take care of my brother. But he doesn’t understand that is always the way it was even when I was a child myself. I hope this experience is not triggering. But I am mother henning right now which isn’t entirely unsatisfying since it is the last thing my teenagers want.

I am in a good place right now and hopefully I can remain here for awhile.

Isolating fears

I wish life was back to normal. Or perhaps I should say I wish I could take my favorite things from my old life and mix it with the best things of this new world to form some sort of utopian society.

Since this whole thing started my mom has lived in great fear. She is so terrified that I don’t think she will leave the house if it means being around other people after the safer at home order is over in two weeks. I didn’t say anything up until this point but I might have to. I figured how can it hurt her if she wants to stay at home with my dad and autistic brother.

Now she is talking about getting a mask with a filter in it to wear under her cloth mask. She found some gloves to wear. This is only if she has to leave the house. Other people have been buying groceries. I’m wondering now if locking herself away is only temporary.

She does leave the house to go on walks with my brother Matt. The other day I was on the phone with her while they were out walking. She saw some kids on the path and freaked out. They quickly walked in the opposite direction in sheer panic.

It took me back to when I was a kid. My brother heard voices that told him to attack little girls. There was a period of 3 years where my brothers and I were homeschooled because Matt was psychotic. We avoided public places. If we were out and little kids would show up, we had to quickly pack up and head out. Nothing was wrong but it would only take a second for Matt to attack someone. Thankfully he is medicated now.

My grandpa had a tree nursery next to our house. Sometimes customers would show up looking at trees. We always had to keep on the lookout. If a potential customer showed up with little girls, someone had to call grandpa and then run out to meet them before they came to our house. Someone else had to make sure that Matt did not see the children outside. We had to be hyper-vigilant and work as a team to make sure no one got hurt.

Now I see the same type of paranoia in my mom. The children are potential threats. Even if they seem healthy they could be carrying a potentially deadly virus. Even if Matt seemed fine, in a matter of seconds he could potentially hurt someone. Even if it remains unseen, the threat is very real.

I see my mom very frightened and almost in a flashback of the other time we kept in isolation. I see the parallels of the fear and isolation.

I don’t think it is good for my mom’s mental health to stay in isolation much longer. My dad is very difficult to live with and needs care along with my brother.

I think my mom is going to stay in fear and isolation for a long time, longer than it is safer at home. My husband thinks she will stay in isolation until a vaccine is developed. Like my mom is going to trust a vaccine that is put out in record time. I probably wouldn’t even trust that.

I don’t want my mom to spend the last few years of her life not living out of fear. It’s hard to see her so afraid. I’m going to have to say something if it continues much longer.